Forward in partnership for children and young people with additional needs: Proposals for reform of the legislative framework for special educational needs Consultation Response Form Your name: Dr Alison Stroud Organisation (if applicable): Royal College of Speech and Language Therapists (RCSLT) e-mail/telephone number: [email protected] Your address: Wales Policy Office, Transport House, 1 Cathedral Road, Cardiff, CF11 9SB Responses should be returned by 19 October 2012 to: Additional Needs Branch Support for Learners Division Department for Education and Skills Welsh Government Cathays Park Cardiff CF10 3NQ Tel: 029 2082 6044 Fax: 029 2080 1044 or completed electronically and sent to: e-mail: [email protected] Question 1 Do you agree with the proposals in section 2, and that special educational needs (SEN) should be replaced by additional needs (AN)? Agree X Disagree Neither agree nor disagree Supporting comments The RCSLT welcomes the proposed change as it recognises a wider spectrum of additional needs. We are pleased that communications needs are included under the new definitions. However, we are also concerned that a broader definition of needs is introduced at a time when services are being asked to make efficiency savings, local council budgets have been reduced and the NHS is undergoing further major reform. Our concern is that this may be to the detriment of those with greatest need if resources are spread too thinly. Furthermore, those with less severe impairments but in whom the greatest cost effective and efficient outcomes can be made, risk losing out if resources are not allocated according to evidence base. Definitions must be made clearer. Question 2 In section 3 we state that statements of SEN should be replaced with an integrated assessment and planning process and that an integrated web-based Individual Development Plan will be developed to replace or integrate not just statements, but the range of individual plans to which children and young people might be subject. Do you: a) agree with the proposal in section 3? Agree x Disagree Neither agree nor disagree Supporting comments We welcome the principle of a collaborative multi-agency plan to replace statements – particularly the introduction of a simple, more person-centred system. We would wish to have clarity around accountability in terms of which organisation will be ultimately responsible for co-ordinating and overseeing IDPs. The RCSLT has not seen the results of the IDP pilots and believes that health professionals have not been as engaged in the pilots as we would have hoped. b) agree with the extended age range outlined in section 5? Agree X Disagree Neither agree nor disagree Supporting comments We believe this proposal requires further clarification in terms of a lead agency for 16 to 25s. The plethora of agencies engaging with people in this age-group for a wide range of services could lead to confusion, duplication and breakdown of partnership working in relation to this age-group. This may have significant resource implications. Question 3 Do you agree that the planning tool should be a common web-based one across Wales – as described in section 3? Agree X Disagree Neither agree nor disagree Supporting comments RCSLT warmly welcomes the person-centred approach. We would wish to be reassured about IT compatibility between agencies and individuals accessing the system and the security of an IT system holding records of vulnerable children and young people. RCSLT believe the hardware resources in LHBs inadequate. Similarly, we are concerned that parent’s in lower income groups may not have adequate access to IT. Question 4 Do you agree that multi-agency working – see section 4 – should be a requirement in the delivery of this reform proposal, i.e. that the statutory partners of education, health, and social services should be under a legal obligation to play an active part in devising and delivering services for learners with significant and severe and/or complex needs? Agree X Disagree Neither agree nor disagree Supporting comments We welcome proposals to strengthen multi-agency working if it leads to a seamless care pathway supporting children with complex additional needs through to adulthood. However, it is important to stress that a significant number of children with Speech Language and Communication Needs (SLCN) do not have complex needs requiring a multi-agency approach (about 93% of current caseloads in Wales). We are concerned that those children may slip through the gaps in service delivery. We would also seek clarification on what is meant by flexible funding responses. We also have reservations concerning the practicality of budget holders from each agency sitting on Support Panels given the demands on individuals of this seniority. RCSLT understands that complaints about SLT services in Wales have reduced following ‘Working Together’ joint pilot projects in Wales (2005-2008) and NHS Therapy Waiting time targets improving access times. Health Service and LA partners have improved cooperation without legislation. It would be important that provision mapping clearly informs a true, current reflection of gaps and/or duplication. Question 5 We describe in section 6 the proposal to deal with concerns and disagreements in a much more proactive way. Do you agree with what is set out in that section? Agree X Disagree Neither agree nor disagree Supporting comments The proposal to provide for early resolution of concerns and disagreements and the intention to include parents/carers throughout the process is a welcome and positive step. We would wish to see Health Care Professions Council registered professionals sitting on Tribunals as a significant number of disputes concerns therapies – particularly Speech and Language Therapy. RCSLT believes a key solution to reduce the waste in the current system is to develop prevention services and early resolution to build trust in parents and partners. Question 6 Section 7 outlines the revised process of appeal to Tribunal. Do you agree with: a) the expanded remit for the Tribunal? Agree Disagree Neither agree nor disagree X Supporting comments While we understand the proposal to broaden the remit of the SEN Tribunal to include Health and Social Care, we do not believe that an individual patient’s health provision can be subject to a Tribunal ruling. Health must always be a matter for clinical judgement – not a legal right. RCSLT recommend Health Economic expert advice is considered. Tribunals could have to consider an outcome-based resource allocation, not just an input-based allocation, which in health economics considers the evidence base. HCPC legally protects the role of registrants to assess, diagnose and treat individuals according to the evidence base of that profession. b) the proposed requirement to go to dispute resolution before a case can be taken to Tribunal? Agree x Disagree Neither agree nor disagree Supporting comments Question 7 Section 8 outlines an aspiration for a much more robust Family Partnership Service to support families and children/young people. We describe how the proposed reforms should reinforce support and active dispute resolution to ensure the need to challenge decisions is minimised. Do you agree with the general principles outlined? Agree X Disagree Neither agree nor disagree Supporting comments We agree in principle and believe that the emphasis on prevention of disagreements and better information is a positive approach. We would need more detail of the proposal to respond fully. We would wish to contribute to information provided through a Family Partnership Service to help parents and carers have a better understanding of Speech and Language Therapy in relation to their child. Question 8 Section 9 sets out how we propose to build in quality assurance to the proposed system. Do you agree with these proposals? Agree x Disagree Neither agree nor disagree Supporting comments The RCSLT supports the proposal for Welsh Ministers to have a duty to issue an Additional Needs Code of Practice. We would like to assist in defining key indicators so that the needs of children and young people with SLCN are properly addressed. Question 9 Do you agree with the proposal to develop Provision Pathways as described in section 9 paragraphs 9.8 and 9.9? Agree Disagree Neither agree nor disagree Supporting comments RCSLT expert members have developed a draft SLCN pathway ( attached) and would value working further with WG on developing detail and guidance documents. Question 10 There is a specific reference to the changes proposed for post-16 specialist placements as outlined in section 10 – the transfer of this responsibility to local authorities. Do you agree in principle with this change? Agree Disagree Neither agree nor disagree Supporting comments RCSLT support in principle, assuming LA ring fenced budgets Question 11 This area of policy is one of the most important for the most vulnerable children and young people in our society and effective planning, provision of assessed needs support and the monitoring of outcomes is one of the most important elements. The consultation document covers the main principles of the SEN reform. Do you agree that the key elements have been addressed in this document? Agree x Disagree Neither agree nor disagree Supporting comments RCSLT welcomes elements of this proposal, particularly the shift from ‘diagnostic’ based support to a person-centred approach. RCSLT agrees the need to remove waste from the current system. However, we have reservations as to whether a new legislative framework will deliver the aspiration to remove waste. We believe there is a risk of simply shifting some of the waste from education to other agencies. We also have reservations about whether the proposals will be cost neutral. The new system must be outcome not input focussed and must be evidenced-based. Effective joint planning must be based on the needs of the population focussing on a whole system pathway with an emphasis on early universal identification and prevention. Question 12 We have asked a number of specific questions. If you have any related issues which we have not specifically addressed, please use this space to report them: a) RCSLT believes it is essential for a Speech and Language Therapist to be seconded to support the development of the guidance. This was found to be extremely beneficial to the development of new SEN legislation in Scotland. b) RCSLT are concerned that the new legislation will set out the duties to be imposed on relevant bodies that would relieve the HCPC practitioner of their role at the individual patient level to exercise the clinical judgement of need. Legislating health provision for individuals may set a new precedent and Health Economist advice should clarify the risk to the balance of the current system. We are not reassured current proposals would be cost neutral to the whole system. c) RCSLT are concerned that children with the greatest ability to benefit from SLT are not always those with the multi agency definition of severe and complex need. Clear glossary definitions of ‘additional need’, significant additional need’ and ‘severe and complex needs’ is required. RCSLT would be pleased to support this development. Responses to consultations may be made public – on the internet or in a report. If you would prefer your response to be kept confidential, please tick here:
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