Centre for Autism RECOGNISING ASD IN CHILDREN AND YOUNG PEOPLE Tom Loucas, Speech and Language Therapist, Co-director Centre for Autism Iona Wood, Trainee Consultant Practitioner (Speech and Language Therapist) LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OUTLINE • Patient journey • NICE guidance and recognising ASD • Observe and support: “Dynamic assessment” • Examples of observe and support to help with recognising ASD LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT • Initial identification/concerns • Referral for assessment and waiting for an appointment • Diagnostic assessment • Post-diagnosis Observe and support “Dynamic assessment” “PATIENT” JOURNEY LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT NICE GUIDELINE • Recognising and diagnosing ASD in children and young people (CG128, 2011) • Improving early recognition by raising awareness of the signs and symptoms • “Consider the possibility of autism if there are concerns about development or behaviour, but be aware that there may be other explanations for individual signs and symptoms.” LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT SIGNS AND SYMPTOMS TABLES • Intended to alert professionals to the possibility of ASD if concerns have been raised • Not to be used alone, but to help professionals recognise a pattern of impairments • Reciprocal social • Communication skills • Unusual restricted and repetitive behaviours • Observe and offer support to manage behaviours causing concern LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT SIGNS &SYMPTOMS: PRESCHOOL • Spoken Language • Reduced/infrequent use of language for communication • Responding to others • Absent/delayed response to name, despite normal hearing • Interaction with others • Reduced or absent initiation of social play with others, plays alone • Eye contact, pointing and other gestures • Reduced/absent use of gestures to communicate • Unusual, restricted, repetitive behaviours/interests • Repetitive or stereotyped play 6 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT SIGNS &SYMPTOMS: PRIMARY • Spoken Language • Talking 'at' others rather than sharing a two-way conversation • Responding to others • Subtle difficulties in understanding other's intentions • Interaction with others • Reduced/absent ability to share in social play or ideas of others • Eye contact, pointing and other gestures • Reduced or absent social use of eye contact • Unusual, restricted, repetitive behaviours/interests • Dislike of change; can leads to anxiety or other forms of distress 7 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT DYNAMIC ASSESSMENT • Observe and support. • Not a ‘diagnostic’ assessment. • Must not delay an onward referral if there is sufficient evidence of difficulties. “Dynamic assessment” • Active process • Responsive • Adult participates and adapts support according to the child’s needs and responses to input. Focus is on identifying the child’s skills and learning potential. 8 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OBSERVE AND SUPPORT • Observe: Assess the child's current needs • Identifies strengths. • Supports partnership with families. • Support: Introduce strategies to support the child. • Provides intervention. Observe the child's response to support and modify support as needed. • Gathers information on what works well in real-life, natural situations. • Review: Have there been any changes? Have changes generalised to other situations? • Can support with decision makingBUT- don’t delay referral if sufficient evidence of difficulties. 9 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT EARLY YEARS • Katie is 3 years old. • There are no concerns about her language ability. • She enjoys playing with dolls and animals and will make up stories. • Stories can be repetitive and Katie will often become frustrated when other children try to play with her. • She rarely responds to her name and doesn’t usually respond to group instructions. • She will often ‘tell off’ the other children and doesn’t respond to ‘authority figures’ as expected. LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OBSERVE AND SUPPORT KATIE • Attention- absent/delayed response to name. Observation: Katie does not respond to her name when playing. Support: Increase motivation and praise. Ensure that Katie is motivated to respond to her name by taking into account her interests, e.g., by immediately showing her a favourite book/toy or offering an enjoyable activity. • Ensure success, e.g., by minimising distractions, being close to Katie. • Offer praise when Katie she responds to others. • Consider person/time/environment/activity/setting. LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OBSERVE AND SUPPORT KATIE • Play- repetitive or stereotyped play. Observation: Stories can be repetitive and Katie will often become frustrated when other children try to play with her. Support: Introduce a structured play activity. • Support the structure visually using pictures. • Give opportunities for turn taking with other children within the play activity. 12 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT PRIMARY AGED CHILD • George is 8 years old and attends mainstream school. • He is described as a perfectionist. He will often rub out his work and become anxious if others try to stop him from doing this. • He gets agitated and tearful easily when there is a supply teacher taking the class. • Group work can be challenging and George becomes frustrated if the group do not accept his ideas. • George can be very blunt and will say what he is thinking regardless of who he is talking to, e.g ”that was not a very interesting story” LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OBSERVE AND SUPPORT GEORGE • Reduced ability to share ideas of others • Observation: George becomes frustrated if the group do not accept his ideas • Support: Teach social rule using a Social StoryTM • Children work together in groups in class. Children share their ideas about what to do. Every one’s ideas are important. I get annoyed when other children do not agree with my idea. Other children can be annoyed because I insist my idea is best. I will work on listening to other children’s ideas, when I am working in a group. LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT OBSERVE AND SUPPORT GEORGE Mr B Wednesday Ms A Tuesday Monday • Dislike of change • Observation: George gets agitated and tearful easily when there is a supply teacher taking the class • Support: Support for change with a visual timetable Ms A LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT SUMMARY • Professionals working with children and young people have a key role in recognising risk of ASD • NICE guideline provides resources to support recognising risk • Careful observation • Without relying on single instances of concerning behaviour • Talking with parents • Offering support • As a way of testing concern LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT THANK YOU FOR LISTENING [email protected] [email protected] 17 LIMITLESS POTENTIAL | LIMITLESS OPPORTUNITIES | LIMITLESS IMPACT
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