Children’s Mental Health Ontario Santé mentale pour enfants Ontario The Unique Value of Children’s Mental Health Centres: A CMHO Position Statement Table of Contents 1 Purpose 2 The Vital Role of Children’s Mental Health Centres in a System of Care 4 Growing Wait Times for Treatment are Failing Children, Youth and Families 6 The Risk of Failure 7 Optimizing the Children’s Mental Health System 2 3 4 4 5 5 6 7 7 8 Alleviating hospital capacity pressures due to children and youth in crisis Supporting primary health care physicians Reducing mental health related demands on educators The crisis of capacity within children’s mental health centres Transformation in other sectors Meeting increasing demand on the system Short-term implications of wait times at children’s mental health centres Long-term repercussions of failing to invest in the capacity of children’s mental health centres Summary Key recommendations The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | i The Unique Value of Children’s Mental Health Centres Any or all parts of this publication may be reproduced or copied with acknowledgment, without the permission of the publisher. However, this publication may not be reproduced and distributed for a fee without the specific, written authorization of the publisher. The ideas presented in this statement reflect the views and concerns expressed by Children’s Mental Health Ontario (CMHO), the Value of Children’s Mental Health Centres Task Force, and the member agencies and external partners with whom we consulted. The authors would like to acknowledge the important contributions of the Value of Children’s Mental Health Centres Task Force for their hard work on the development of this position statement: Gloria Chaim Kim Ciavarella Shannon Cormier Ewa Deszynski Ric Jones Betty Kashima Michele Lupa Susan Sweetman Michael Tross Cheryl Webb Ailene Wittstein Deputy Clinical Director, Centre for Addiction and Mental Health Executive Director, Banyan Community Services Executive Director, North of Superior Counselling Programs Executive Director, Etobicoke Children’s Centre Quality Assurance Lead, Chimo Youth and Family Services Executive Director, Aisling Discoveries Child and Family Centre Executive Director, Mothercraft Executive Director, Children’s Mental Health Services (Chair) Director of Residential and Counselling Programs, YouthLink Executive Director, Adventure Place Child and Family Centre Executive Director, Merrymount Family Support and Crisis Centre Suggested Citation: The Value of Children’s Mental Health Centres: A CMHO Position Statement. (2015). Children’s Mental Health Ontario: Toronto. Please direct all inquiries to: Children’s Mental Health Ontario Tel: (416) 921-2109 [email protected] www.kidsmentalhealth.ca Children’s Mental Health Ontario (CMHO) works to identify and develop solutions to important policy issues affecting the child and youth mental health sector. We represent more than 85 accredited children’s mental health centres that provide treatment and support to children, youth and families. This includes targeted prevention, early intervention, short- and long-term counselling and therapy, and intensive services such as The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | ii 1.Purpose M ental health issues are multifaceted and require a coordinated treatment approach. Due to the complexities involved, children, youth and families* seek treatment for a variety of mental health issues across various settings, including primary care, hospitals, schools and children’s mental health centres (CMHCs). Children’s mental health centres (CMHCs) are the backbone of Ontario’s communitybased child and youth mental health system. They deliver a complex array of programs and services in each area including: • targeted prevention (inclusive of pre- natal care for at-risk mothers and infants); • brief services; • counselling and therapy; • family capacity-building and support; • specialized consultation and assessments; • crisis support services; and • intensive treatment services (e.g. in home, childREN’S Mental health centres health education residential, section 23 programs and/or secure treatment). family CMHCs are also responsible for guiding key processes including: children Children’s Mental Health System of Care The Government of Ontario (the government) introduced the Moving on Mental Health (MoMH) plan with the goal of providing the right services for children and youth, in the right place, at the right time. Research demonstrates that appropriate and timely access to proper care will help mitigate future mental health issues and reduce the cost of other supports over one’s life span.2 This paper will describe the important role that CMHCs play in an integrated system of care and will articulate how the government can improve system efficiency, as well as outcomes for children, youth and families, by investing in their capacity. • coordinated access; • intake, eligibility and consent; • identifying strengths, needs and risks; • child, youth and family engagement; • service planning and review; • case management/service coordination; • monitoring and evaluating client response to service; and • transition planning and preparation.1 * The term ‘children, youth and families’ is intended to include all infants, children and youth from 0-18 years of age, young adults transitioning to the adult system, and young mothers receiving support from children’s mental health centres. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 1 2.The Vital Role of Children’s Mental Health Centres in a System of Care CMHCs have tremendous expertise in providing direct treatment and services to children, youth and families. They are family-focused, close to home and responsive to community need. CMHCs offer culturally and linguistically appropriate services, helping to reduce barriers to mental health treatment. They are also instrumental in building connections across sectors to help ensure that families are well supported while they navigate the system. When community-based care is easy to access, those seeking help are less likely to utilize resourceintensive interventions, such as costly visits to the Emergency Department (ED). Yet, CMHCs have been chronically underfunded, impacting their ability to support the system as a whole. Fourteen percent of Canadian children experience mental health disorders that significantly impair their functioning, but most never gain access to mental health treatment in part due to the limited availability of services.3 A significant obstacle preventing CMHCs from fulfilling their crucial role in the system of care is the lack of capacity to serve children and youth in dire need of services, which is evidenced by unacceptable wait times for key services in Ontario, exceeding one year.4 Unique benefits of the children’s mental health centres (CMHCs) include: • longitudinal care provided to children from birth to adulthood; • community-based settings (outside of hospital environments) to effectively treat on-going child and youth mental health issues in less traumatizing environments for fragile young people in crisis; • treatment in a child and youth-friendly setting, where rapport and trust with counsellors and psychiatrists can be developed over time; • comprehensive treatment provided to the entire family unit, helping to create a supportive environment for both the child or youth and his or her family; • transitional support to reduce the rate of hospital re-admissions; • flexible services to meet the unique needs of children, youth and families; • service delivery tailored to the distinct needs of local populations that are culturally and linguistically appropriate; • recognized service cost efficiencies; • appropriate and effective levels of care; and • services delivered typically free of charge. 2.1 Alleviating hospital capacity pressures due to children and youth in crisis Hospitals play an important role in the system of care by providing acute ED and in-patient services for children and youth in crisis. Additionally, some hospitals provide mental health related outpatient programs. However, in many cases, seeking care in hospitals for a mental health issue reflects an inability for families to access the right kind of treatment in their communities before a crisis occurs. Early identification, intervention and prevention programs are vital to prevent children and youth from requiring short-term stabilization and acute mental health care in hospitals later on in life. Similarly, prompt access to counselling and therapy for identified mental health issues helps keep children, youth and families from reaching a point of crisis. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 2 New statistics from the Canadian Institute of Health Information show a 48% increase in ED visits and a 58% increase in hospitalizations for children and youth with mental disorders in Ontario from 20062014.5 These statistics are particularly distressing given hospitalizations for other conditions over the same period of time have decreased by 12%.6 My counselor at a CMHC got to know me and my issues and was able to help me work through them. At the hospital, each visit meant different people who didn’t know me and weren’t able to provide me with the help I needed.” –Matthew, 18, Brampton, ON Children and youth cannot receive the treatment they require from hospital ED or inpatient units where the focus is on emergency, acute, short-term stabilization. Over a third of children and youth presenting in hospitals with mental health challenges in Ontario had three or more repeat visits to emergency departments, compared to only 13% of those with other issues. Alarmingly, 11% had three or more inpatient stays, more than double the figure of those with other issues.7 The high utilization of hospitals by children and youth with mental health issues indicates that the system of care is not currently being optimized. Immense pressures on ED and inpatient units could be relieved by investing in the capacity of CMHCs, helping to support the system as a whole. 2.2 Supporting primary health care physicians Primary Health Care (PHC) is also a critical component of the system of care for children, youth and families dealing with mental health issues. PHC physicians know the family, the patient and their entire medical history. Yet, PHC physicians often express that they are not equipped nor mandated to provide specialized counselling services for children and youth. PHC physicians are also challenged with treating a large number of patients and are limited in the amount of time they are able to allocate to each one. Getting to the root of a mental health problem takes time, and building rapport is an essential component of care, especially for children and youth. CMHCs provide highly trained mental health professionals who are able to offer the expertise and attention required to treat children and youth presenting with a variety of mental health issues. While PHC physicians play a vital role in identifying mental health issues, CMHCs are instrumental in providing the necessary support that is required to implement early intervention programs and to treat moderate and severe mental health issues. In addition, CMHCs provide extensive counselling for the families involved, which is an important part of the recovery process for a child or youth. To create a fully functioning system of care, new initiatives, including family health teams, shared care approaches and community health centres will need to work with CMHCs to ensure that access points are clearly understood by children, youth and families with emerging mental health challenges. Increased communication and collaboration between service providers would also be beneficial in monitoring progress and recognizing signs of relapse in children, youth and families, helping to maintain progress gains. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 3 2.3 Reducing mental health related demands on educators Child care centres, pre-schools, kindergartens, elementary and high schools are also essential components of the system. The Ministry of Education clearly articulated that schools are responsible for mental health promotion and early identification rather than intensive treatment for youth. When educators or mental health nurses recognize that a child or youth is presenting with a potential mental health issue, they rely on the ability to make referrals to CMHCs that can provide specialized treatment. CMHCs also offer support outside of the classroom and can assist families with fostering the right home environment to help aid in their child’s recovery process. Teachers and educators often need to devote a disproportionate amount of their time to supporting children and youth dealing with mental health issues, which can leave little time for assisting other students with their studies. CMHCs act as a critical piece of the system of care by helping teachers, principals, guidance counsellors and parents address mental health issues early on, creating a more supportive school environment for all children. Recommendation: The government must support and invest in a process to foster greater collaboration and communication between the various mental health service providers, including CMHCs, hospitals, primary care physicians, and educators, within the system of care. This will result in clearer pathways for children, youth and families, increased spending efficiencies through a reduction in service duplications and better long-term outcomes for children, youth and families. 3. Growing Wait Times are Failing Children, Youth and Families The Ministry of Children and Youth Services (MCYS) is working to improve Ontario’s children’s mental health system through the execution of MoMH and system transformation. While CMHO applauds these plans, the new lead agency model may not be effective in improving system efficiencies that would result in I was in and out of hospital...I decreased wait times. In order to meet the proposed couldn’t physically leave my house… goals of system transformation, more harmonized it was intense. I started self-harming funding is required. Recognizing that the government is more than I used to. I told my mum in a challenging fiscal situation, funding demands must ‘I think it’s time to get me into long be prioritized across the system of care to address current gaps, to consider how to shift spending patterns, term treatment’, because the shortand to obtain the greatest value for the dollars invested term stays that lasted a week weren’t in mental health across the province. doing anything.” Youth, ON 3.1 The crisis of capacity within children’s mental health centres CMHCs are facing a crisis in capacity, as demand for services continues to rise without corresponding funding increases. Although system transformation will help children, youth and families know where to seek help, many will face long wait times, preventing them from accessing the services they desperately require. The success of system transformation is contingent on the ability of CMHCs to build the The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 4 capacity needed to meet rising demand. If clients cannot access services in a timely manner, the goals of the lead agency model will not be realized, as wait times are prohibitive to positive outcomes for children, youth and families. CMHCs face a variety of mounting financial pressures including: • implementing the new lead agency model, which will require additional administrative support and new communications strategies and information and technology tools; • the costs associated with providing more sophisticated outcome measurement data to improve quality service delivery and to measure system performance; • base funding envelopes that are not tied to demand or demographic changes; and • a lack of funding allocations to account for annual increases in budget items such as rent, property tax, and negotiated union wages. 3.2 Transformation in other sectors Concurrent transformations in health, child welfare and education have also put a significant strain on CMHCs: • New funding structures incentivize hospitals to treat high-acuity patients and reduce the length of stay for all other in-patients, leading to faster discharge of children and youth seeking mental health treatment. • Transformational changes in the child welfare sector keep more children in community settings, such as kinship homes, requiring those families/ caregivers to access substantial counselling and therapy services. Government will see savings of almost $700 million over the next five years if hospital utilization rates for children and youth with mental health disorders can be returned to 2006/7 levels. 8 • New mental health programs in schools, including School Mental Health Assist and mental health nurses in schools, are increasing referrals to CMHCs. 3.3 Meeting increasing demand on the system Advocacy efforts to reduce stigma have led to an increase in demand across the system with resulting referrals from hospitals, schools, primary care physicians, and child care centres. As a result, demand for services in the community sector is continuing to grow. Referrals for treatment are on the rise by a startling 10% per year.9 Approximately 6,000 children and youth are waiting a year on average for long-term counselling and therapy services at children’s mental health centres.10 While they wait for service, many of these children will deteriorate and require multiple and expensive interventions, such as emergency room visits and in-patient hospital admission, child welfare or youth justice involvement, and resourceintensive interventions at school. This significant gap in the continuum of care is creating compounded costs, putting a significant strain on limited government resources. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 5 The 58% increase in inpatient hospital stays for children and youth with mental health needs indicates that they are failing to obtain the services they require within their communities before a crisis occurs. This trend is extremely expensive, as average costs for ED visits for mental disorders can be double those for other health issues, and costs for mental health-related inpatient stays can be up to three times more than other stays.11 A $30 million annual investment in CMHCs will reach an additional 7,000 children and youth each year, bringing wait times down. This investment will result in fewer children and youth accessing expensive hospital services. Further investment in CMHCs can result in substantive savings for the government as well as optimizing value for money across the system of care. Recommendation: The government must redeploy investments across the system of care to prioritize the treatment children, youth and families require at community-based CMHCs. A new investment of $30 million dollars in CMHCs will reduce unacceptable wait times for services. 4. The Risk of Failure Seventy percent of mental illnesses emerge in childhood and adolescence.12 If left untreated, mental health issues can negatively impact children and youth over the course of their lifetime. 4.1 Short-term implications of wait times at children’s mental health centres include: • complaints from children, youth and their families, as they cannot receive the right care, at the right time, in the right place; • emergency room overcrowding and expensive hospital treatment; Families need doctors, hospitals, schools and children’s mental health centres to work together to create a system of care that helps both us and our children, as they live with serious mental health challenges.” – Paul B. (Parent) Toronto, ON • increased psychotherapy billing by primary care physicians; • additional resources allocated to children’s aid to support families in crisis; • an influx of youth in the justice system; • overworked teachers struggling to cope with students facing mental health issues; • an increasing demand for special needs programs in schools; • stress on families and caregivers, which contributes to unhealthy home environments; and • out of pocket costs to youth and families seeking care in the private sector or out of country. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 6 4.2 Long-term repercussions of failing to invest in the capacity of children’s mental health centres include: • an overall economic burden of untreated mental illness of approximately $50 billion per year (including health care costs, reductions in health-related quality of life, and lost productivity);13entrenched mental health and addiction issues in adulthood, which are more difficult to treat; • potentially irreversible behavioural outcomes, as developing minds are particularly sensitive to difficult experiences;14 • significant school dropout rates and/or reduced academic performance; • substantial costs in schools to provide support for youth with mental health issues; • high unemployment and underemployment often tied to reduced academic performance; • increases in child welfare interventions for youth and families unable to cope with ongoing and/ or severe mental health problems; • an increase in homeless and drug-involved youth; and • a continuing cycle of inter-generational mental health issues and social issues when youth with untreated mental health issues bear children. 5. Optimizing the Children’s Mental Health System 5.1 Summary Children, youth, families, service providers, and government recognize that services must be delivered in a coordinated manner to optimize efficiency and treatment outcomes across the system of care. Primary care physicians, psychiatrists, ED and in-patient units, schools and CMHCs need to work together seamlessly to provide the right type of care, in the right place, at the right time. When there is a lack of role clarity across the system of care, there is a risk of duplication of services, gaps in treatment options and client confusion and dissatisfaction. Service providers are aligned in the need for greater role clarity to help solve the aforementioned issues. CMHCs provide the mental health treatment children and youth require, together with their families. With wait times of more than one year for services, children and youth can quickly deteriorate and become acutely ill, which forces them to use hospitals as a first point of access. When they cannot receive the care they need in their communities after being discharged, they continue to return to hospitals in a state of crisis. This leads to skyrocketing rates of emergency room and in-patient hospital usage in Ontario for children and youth with mental health disorders. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 7 5.2 Key recommendations 1. The government must support and invest in a process to clarify the roles of the many different service providers within the system of care. This will result in clearer pathways for children, youth and families, as well as a reduction in service duplications and gaps. 2. The government must redeploy investments across the system of care to prioritize the treatment children, youth and families require at community-based CMHCs. A new investment of $30 million dollars in CMHCs will reduce unacceptable wait times for services. The Unique Value of Children’s Ment al Health Centres - Novemb er 2015 | 8 1 Ministry of Children and Youth Services. (2015). Community-Based Child and Youth Mental Health Program Guidelines and Requirements #01: Core Services and Key Processes. Government of Ontario. Retrieved from: http://www.children. gov.on.ca/htdocs/English/documents/topics/specialneeds/mentalhealth/pgr1.pdf 2 The Economics of Children’s Mental Health. (2009). Children’s Mental Health Research Quarterly Vol . No. 1. 3 Wadell, C. (2004). Children’s Mental Health In Canada: Preventing Disorders and Promoting Population Health . Canadian Institute for Health Information. 4 2015 Report Card: Child and Youth Mental Health. (2015). Children’s Mental Health Ontario. Retrieved from: http:// www.kidsmentalhealth.ca/documents/cmho-report-card-2015-english.pdf 5 National Ambulatory Care Reporting System, 2006–2007 to 2013–2014, Canadian Institute for Health Information; Alberta Ambulatory Care Reporting System, 2006–2007 to 2009–2010, Alberta Health Services; Discharge Abstract Database and Hospital Morbidity Database 2006–2007 to 2013–2014, Ontario Mental Health Reporting System, 2013–2014, Canadian Institute for Health Information. 6 Ibid. 7 Ibid. 8 Calculation based on internal calculations derived from statistics obtained from National Ambulatory Care Reporting System, 2006–2007 to 2013–2014, Canadian Institute for Health Information; Alberta Ambulatory Care Reporting System, 2006–2007 to 2009–2010, Alberta Health Services; Discharge Abstract Database and Hospital Morbidity Database 2006–2007 to 2013–2014, Ontario Mental Health Reporting System, 2013–2014, Canadian Institute for Health Information. 9 CMHO 2015 Pre-Budget Submission. (2015). Children’s Mental Health Ontario. Retrieved from: http://www. kidsmentalhealth.ca/documents/CMHO-PreBudget-Submission-2015-16.pdf 10 Ibid. 11 Care for Children and Youth With Mental Disorders. (2015). Canadian Institute for Health Information. Retrieved from: https://secure.cihi.ca/free_products/CIHI%20CYMH%20Final%20for%20pubs_EN_web.pdf 12 Government of Canada (2006). The human face of mental health and mental illness in Canada.Statistics Canada (2013). Canadian Community Health Survey – Mental Health. 13 Ratnasingham S, Cairney J, Rehm J, Manson H, Kurdyak P. (2012). Opening Eyes, Opening Minds: The Ontario Burden of Mental Illness and Addictions Report. Institute for Clinical Evaluative Sciences. Retrieved from: http://www. publichealthontario.ca/en/eRepository/Opening_Eyes_Report_En_2012.pdf9 14 Hartley & Lee. (2014). Sensitive Periods in Affective Development: Nonlinear Maturation of Fear Learning. Neuropsychopharmacology, 40, 50–60. 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