UCEDD Outcome Measures
Restarting the Discussion
Overview of Session
ADD perspective
 Historical perspective
 Federal outlook
 Facilitated Discussion

Purpose of Discussion
Expectations with regard to
accountability is not going away
 Timing is right

Implementation of data collection
system
 Expiration of OMB approval
 Westat Independent Evaluation

Purpose of Discussion

Promote a dialogue and thinking
about how to evaluate UCEDDs
From a national perspective
 At the individual UCEDD level

Goals of Discussion

Inform a method for evaluating UCEDD
outcomes at the national and individual
UCEDD levels

Gather information that will help define
outcomes for the UCEDD network

Stimulate individual UCEDDs to think about
their own evaluation

Have outcome measures included in the
Annual Report
Considerations

Westat work is on-going and should inform
our discussions

Needs to be feasible – we do not want to
create a burden for UCEDDs

Needs to be relevant

Need to look at work done in the past (i.e.,
“Suggested Approach” document)
Considerations

Based on consensus

Need to build upon current data
collection systems

Need to find a way to bring multiple
data systems and guiding documents
together
GPRA Measure
Annual Measure8D.
Increase the percent of University Centers of Excellence in
Developmental Disabilities (UCEDD) trainees who demonstrate
leadership in the developmental disabilities field at 1, 5, and 10
years after completion of UCEDD training. (outcome)


Expected progress: 1% increase over prior year
Baseline Sep-07
Cross Reference: This performance measure supports HHS
Strategic Objective 6.3, and was developed as a result of the
PART review. This measure also supports the Secretary’s
5,000 Day Horizon, in which, “… persons with disabilities are
cared for with dignity and respect.”
HHS Strategic Plan

GOAL 6: Improve the economic and social wellbeing of individuals, families, and communities,
especially those most in need





Objective 6.1: Increase the proportion of low-income
individuals and families, including those receiving
welfare, who improve their economic condition
Objective 6.2: Increase the proportion of older Americans
who stay active and healthy
Objective 6.3: Increase the independence and
quality of life of persons with disabilities,
including those with long-term care needs
Objective 6.4: Improve the economic and social
development of distressed communities
Objective 6.5: Expand community and faith-based
partnerships
Other items for alignment
ADD Logic Model
 MTARS
 NIRS
 Annual Report
 Independent Evaluation

Next steps

Seeking volunteers for a workgroup
who will further discussions about
appropriate outcome measures for
the UCEDDs

Include outcome measures in the
OMB package – timeline TBD