Increasing the Clinical and Programmatic Utility of BCFPI and CAFAS Prepared by: Sandra Cunning, Ph.D. Director of Research, The George Hull Centre for Children and Families On behalf of: Jewish Family and Child Service Funded by: The Provincial Centre of Excellence for Child and Youth Mental Health at CHEO TABLE OF CONTENTS Area Overview Goals & Outcomes Training BCFPI & CAFAS Process Outcomes Examination of BCFPI & CAFAS Data Summary and Recommendations Appendices • Appendix A: Logic Model • Appendix B: Work Plan • Appendix C: CAFAS Overview • Appendix D: BCFPI Overview • Appendix E: BCFPI Average Scores • Appendix F: BCFPI Problem Prevalence • Appendix G: BCFPI Income by Family Structure • Appendix H: CAFAS Pre-post Test Scores for All and Completed Cases Page 3 3 4 4 5 6 7 7 9 11 16 22 24 26 28 2 Overview Jewish Family and Child Service’s (JFCS) Jerome D. Diamond Adolescent Centre (JDD) is a children’s mental health centre day treatment program. JDD serves approximately 34 youth between the ages of 12 to 17 in four classrooms staffed by 4 special education teachers from the Toronto District School Board. The program also is staffed by a program manager, two social workers, four child and youth workers, and one support staff. The JDD collects data for the Brief Child and Family Phone Interview (BCFPI) and the Child and Adolescent Functional Assessment Scale (CAFAS). JDD currently collects BCFPI and CAFAS data that is submitted to the Ministry of Children and Youth Services. However, due to limited resources, the Centre has been unable to fully explore the data and apply the findings to develop an overview of the clients accessing the centre or use the data for quality assurance and program planning purposes. The main purpose of the project was to increase the Centre’s capacity to understand and utilize BFCPI and CAFAS data. Goals & Outcomes In the initial proposal, JFCS identified 3 key goals related to BCFPI and CAFAS data collected for use in the JDD Centre. These goals were aimed at: • Developing an overview of the clinical and program needs of the youth served by the Centre • Assisting staff in developing an increased awareness of the youth they serve • Building infrastructure capacity to store and analyze BCFPI and CAFAS data for the purpose of program evaluation, quality assurance, clinical planning, and program development Specific outcomes of the project were to: • Systematically store, integrate, and analyze BCFPI and CAFAS data • Train JDD staff in the analysis of BCFPI and CAFAS data • Develop templates for summarizing client data to inform clinical and program development and to measure the effectiveness of clinical interventions • Disseminate findings to engage staff, clients, and families in the interpretation and review of clinical progress Although all key outcomes of the project are attainable, some are more distal (e.g., disseminate findings to engage staff and families in the interpretation and review of clinical progress) and beyond the scope of the current project. However, more immediate outcomes, as seen below, will position JDD in achieving these longer-term goals. A meeting with the Director of Family and Community Services to review the proposal and staff/centre needs facilitated the development of a brief logic model (Appendix A) that articulated 3 key areas of focus for the current project. For each area, specific activities, deliverables, and outcomes were identified. The main areas of focus for the current project included increased understanding, integration, and reporting of BCFPI and CAFAS data. A work plan to achieve the project goals was developed and presented to the BCFPI/CAFAS Working Group and is included in Appendix B. 3 Staff Training As outlined in the logic model (Appendix A), a key outcome of the current project the increased ability of staff to interpret BCFPI and CAFAS data/reports. Given this objective, training sessions on BCFPI and CAFAS are scheduled for JDD program staff for May 18th. Training will include an overview of the purpose, scope, and scores for each measure. Training also will include interpretation of BCFPI and CAFAS reports from select clients at the JDD Centre. Training presentations for CAFAS and BCFPI are included in Appendix C and D, respectively. Note: Due to the limited timeframe of the funding/reporting period, school schedules (e.g., March break), and holidays (e.g., Passover and Easter), staff training has been scheduled for May. A brief, follow-up report will be submitted following staff training. BCFPI and CAFAS Process Outcomes Although specific training pertaining to BCFPI and CAFAS is scheduled for JDD staff, other staff members also are involved in the collection, storage, export, and usage of BCFPI and CAFAS data. Therefore, IT, clinical, and CQI staff also were trained with respect to “data” aspects of the measures. In terms of the BCPFI, staff were shown how to: Export form data, including setting parameters such as referral dates • Create “canned” reports including: MH x Months Waiting, MH Details, MH Problem Prevalence, MH Average Scores, and Family Structure x Income • View and manipulate graphs for customized reports (e.g., using pivot tables to breakdown outcomes by age group) • View and manipulate Excel spreadsheets to create lists for various tasks including cleaning data (e.g., checking for waitlist cases that have opened to service or closed cases that remain open) and waitlists sorted by problem severity and months waiting • Check and clean BCFPI data • Add ID’s to sync BCFPI and CAFAS cases • IT staff also were able to create a Lotus Notes spreadsheet that captures key demographic (e.g., gender, d.o.b.) and Centre information (e.g., ID codes) to facilitate the data cleaning process. JFCS has been provided with an Excel spreadsheet (hard copy and electronic) that highlights data cleaning and verification points. Reminders around completing BCFPI include: • Adding ID codes to match CAFAS ID codes (not including dashes) • Checking key data points (e.g., d.o.b.) • Opening or closing older cases as necessary before running MH x Months Waiting reports • Verifying filters before exporting data • Verifying use of correct database when running reports • Checking BCFPI Website for updates and info on best practice (http://www.bcfpi.org) 4 In terms of CAFAS, staff were shown how to: • Create a new CAFAS “junk” site to remove problem CAFAS forms (e.g., duplicates, errors) • Move CAFAS cases between sites • Create an internal standard export including client and clinician names for data cleaning • View and manipulate Excel spreadsheets to clean data and export data to SPSS • Run some preliminary analysis of CAFAS data in SPSS (e.g., explore, frequencies, t-tests) JFCS has been provided with an Excel spreadsheet (hard copy and electronic) that highlights data cleaning and verification points. Reminders around completing CAFAS include: • Checking ID codes and removing all dashes (this may pose a problem with SPSS) • Ensuring all clients have a birthdate • Verifying status of cases that have been open for more than 2 years • Rating the most severe behaviour in the past 1 month period as outlined in CAFAS in Ontario • Identifying type of rater based on client (e.g., Manager vs. Treating Therapist) • Reviewing coding guidelines for CAFAS common data set (hard copy provided) • Checking CAFAS in Ontario Website for updates (http://www.cafasinontario.ca) Examination of BCFPI & CAFAS Data Overall both BCFPI and CAFAS data for JDD was relatively clean. In terms of BCFPI, cases will need to be updated before accurate waitlists can be generated. However, the Centre can run various analyses to explore Average BCFPI scores (Appendix E), Problem Prevalence (Appendix F) and Income by Family Structure (Appendix G) reports. Results of all BCFPI’s conducted by the Centre over the last 4 years (N = 184) reveals that clients presenting to the Centre have, on average, Total Externalizing and Internalizing scores that are in the Clinical range when compared to the general population. Overall Child and Family Functioning are also in the Clinical range with Global Family functioning being the highest score. In specific subscales, BCFPI results suggest that, youth being referred to the Centre are experiencing particular difficulty in Managing Mood, Self-harm*, Social Participation and School Performance. In terms of Problem Prevalence, 50% or more of the referrals to the Centre experience problems in the areas of Regulation of Attention and Impulsivity, Managing Mood and Self-harm*, Social Participation, Quality of Relationships, School Performance, Family Activities and Family Comfort. *Note: Calculated based on number of referrals completing these items For CAFAS data, 4 cases were identified as duplicates and removed from the analyses resulting in a total of 45 cases with pre-post test data. Initial analyses revealed that 64% of these cases showed some level of improved functioning between beginning and end of service. The average amount of improvement between total pre-test (M = 104.00, SD = 34.34) and post-test (M = 78.44, SD = 45.48) was significant [t (1, 44) = 3.91, p < .01] (See Appendix H). However, closer examination of the data revealed that, of the 16 clients who did not show some level of improvement, 12 clients had an interruption in their treatment. Removal of clients who demonstrated disruption in treatment (e.g., quit prematurely) resulted in a sample of 27 clients with complete pre-post test scores. The average level of improvement between pre-test (M = 99.26, SD = 34.96) and post-test (M = 57.04, SD = 37.91) was 42.22 points [t (1, 26) = 5.43, p < .01] (See Appendix H). Removal of the clients 5 who did not complete service resulted in 78% of clients showing some level of improved functioning and less variability in outcome scores. In terms of specific subscales, non-parametric analyses (Wilcoxon Signed Ranks Test) revealed significant improvements between pre-test and post-test scores for School Performance, Home Role, Community, Behaviour Towards Others, Mood, Self-harm and Thinking (p < .05). Summary & Recommedations Overall, there is increased capacity for the staff to understand BCFPI and CAFAS data, export and analyze the data, and integrate these measures into their clinical work and program planning. Results from the data also suggest that program is receiving referrals from a high needs population and, although numbers are small at this point, effectively serving those clients, particularly when treatment is not disrupted. Next steps for JFCS are to: • Finish cleaning BCFPI and CAFAS data • Explore BCFPI data by running various reports (e.g., referrals vs. active cases vs. nonmaterialized cases, yearly trends in referrals, age x gender profiles) • Explore CAFAS data • Match BCFPI and CAFAS cases • Install BCFPI (and possibly) CAFAS on CQI staff computer • Develop customized reports for CQI and client purposes • Increase interaction between staff doing different “components” of the process • Invest in staff training in Excel to help staff utilize information from CAFAS and BFCPI more effectively Beyond the planned outcomes, unintended outcomes from the project also have occurred. For the first time in recent history JFCS and The George Hull Centre for Children and Families have collaborated in an evaluation/research process. This has led to an increased understanding between the Centres and has paved the way for future collaboration in this area. Another outcome is the ability to use BCFPI data to provide accurate information pertaining to staff workload. For example, in the 2005-06 fiscal year, the individual responsible for BCFPI entry completed 63 referrals. A final outcome that will hopefully result from this project is the addition of centre ID’s to BCFPI “canned” Excel reports to facilitate data cleaning and matching. 6 Appendix A Logic Model Jewish Family and Child Service BCFPI/CAFAS Project Logic Model Objectives Activities Deliverables Outcomes Increased Understanding of BCFPI/CAFAS Staff Training on Measures • Overview BCFPI/CAFAS • Review of scoring/interpretation Training/Info Package • BCFPI • CAFAS Staff • Increased ability to interpret BCFPI/CAFAS reports Increased Integration of BCFPI/CAFAS Data Cleaning • Cleaning BCFPI/CAFAS data • Matching BCFPI/CAFAS cases Data • Improved data quality • Data cleaning and extraction procedures Integration • Increased ability to generate and analyze BCFPI /CAFAS data • Increased ability to match BCFPI/CAFAS data Increased Reporting of BCFPI/CAFAS Training/Support • Creating plug-in reports and custom report Reports • Standard reports • Template for custom reports Usage • Increased ability to generate reports for key stakeholders Appendix B Work Plan Staff Training JEWISH FAMILY AND CHILD SERVICE BCFPI/CAFAS STUDY WORK PLAN Description Date Developing work plan and training April 4, 2006 materials April 15, 2006 Meetings with working group to March 10, 2006 establish logic model, review work plan March 17, 2006 and materials and presentation of final April 5, 2006 report April 24, 2006 Additional Extraction of BCFPI and CAFAS data April 10, 2006 to check integrity. Necessary cleaning April 11, 2006 of data. Procedures for cleaning and April 17, 2006 creating. Methods for matching cases. April 18, 2006 Preliminary reports. Meeting with key May 5, 2006 staff involved with each measure Overview of BCFPI & CAFAS May 18, 2006 Report Final report of study Item Prep Meetings Data cleaning and extraction April 22 & 23, 2006 Appendix C CAFAS Overview The Child and Adolscent Functional Assessment Scale (CAFAS): An Overview Jewish Family and Child Service May 18, 2006 Adapted from CAFAS Manual and CAFAS in Ontario materials What is CAFAS? Clinician-rated measure 10 - 15 minutes Measures degree of functional impairment of children and youth (6 -17 years) with emotional, behavioural, psychological, and substance use problems Impairment - problems that interfere with child/youth’s functioning in various life roles CAFAS is rated (at minimum) at two different times: Pre-treatment Post-treatment: end of service OR at the end of 1 year. 12 What is CAFAS? (cont.) Contains behavioural descriptors that cover 8 domains of functioning: School Home Community Behaviour Towards Others Moods/Emotions Self-Harmful Behaviour Substance Use Thinking What is CAFAS? (cont.) Two additional scales that apply to the caregiver (Primary Family, Non-custodial Caregiver, Surrogate Caregiver) Material Needs Family Social Support 13 What is CAFAS? (cont.) For each scale, behaviours are grouped into 4 levels of impairment: Severe (30): marked impact, severe disruption to functioning or incapacitation Moderate (20): frequent difficulties with negative impact, major or persistent disruption Mild(10): significant difficulties or impacts, problems or distress but no major dysfunction Minimal/No impairment (0): no disruption of functioning CAFAS Uses Assessing level of client functioning Planning treatment Monitoring change over time Monitoring program effectiveness 14 CAFAS Reports 15 Appendix D BCFPI Overview 16 The Brief Child and Family Phone Interview (BCFPI): An Overview Jewish Family and Child Service May 18, 2006 Adapted from BCFPI materials What is BCFPI? Brief Child and Family Phone Interview for children from 6 to 18 “Structured” interview completed with parents or adolescents Completed as part of the intake process Takes approx. 30 min. 17 What is BCFPI? Narrative of Basic Concerns Mental Health Child Functioning Family Functioning Abuse Barriers to Service Utilization Basic Demographic information Risk & Protective Factors Readiness for Service 18 MH: Internalizing Subscales Separating from Parents (SP) Managing Anxiety (MA) Managing Mood (MM) Self-Harm Internalizing Composite Child Functional Impact Subscales Child’s Social Participation Quality of the Child’s Social Relationships School Participation and Achievement Impact on Child Functioning Composite 19 Family Functional Impact Subscales Family Activities Family Comfort Global Family Situation BCFPI Scores T-Scores Standardized score (e.g., IQ or SAT scores) How a particular individual stands relative to others who are the same age and gender Mean of 50 and a Standard Deviation of 10 T-score of 70 higher than 98% of the population - Clinical Range T-score of 65 higher than 93% of the population - Borderline Range 20 BCFPI Uses Screen/overview of presenting problems Clinically relevant information on type and severity of problems Organizational view of referrals Assists in decision-making CAUTION: not a diagnostic tool/with limitations 21 Appendix E BCFPI Average Scores 22 Age Group (All) Gender (All) Informant Type (All) Stage (All) Form (All) Status (All) City (All) Postal/Zip Code (All) User Geo Code 1 (All) Average BCFPI Scores (N = 184) 85 80 75 70 Agency 65 60 55 50 J.D.D. - Jerome D. Diamond Centre RAIAp Avg Scr 68.47 COp Avg CDp Avg Scr Scr 68.88 66.82 EXp Avg Scr 71.62 SPp Avg MAp Avg MMp Avg SHp Avg Scr Scr Scr Scr 61.61 65.15 71.15 72.82 INp Avg Scr TMHP Avg Scr SocPartP Avg Scr QRelP Avg Scr 69.90 73.52 78.58 69.86 Data SchoolP ChFp Avg FActP Avg Scr Scr Avg Scr 77.35 80.58 79.78 FcFp Avg GFsP Avg Scr Scr 78.22 83.11 Appendix F BCFPI Problem Prevalence Age Group (All) Gender (All) Informant Type (All) Stage (All) Form (All) Status (All) City (All) Postal/Zip Code (All) User Geo Code 1 (All) % Problem Prevalence (N = 184) 100% 90% 80% 70% 60% Agency 50% 40% 30% 20% 10% 0% J.D.D. - Jerome D. Diamond Centre RAIAp % Prob COp % Prob CDp % Prob EXp % Prob SPp % Prob MAp % Prob MMp % Prob SHp % Prob INp % Prob 50.0% 49.5% 35.3% 58.7% 34.2% 37.0% 56.5% 57.1% 47.8% Data TMHP % SocPartP QRelP % Prob % Prob Prob 63.0% 71.6% 55.2% SchoolP % Prob ChFp % Prob FActP % Prob FcFp % Prob GFsP % Prob 78.7% 84.2% 53.8% 74.3% 72.0% Appendix G BCFPI Income by Family Structure Drop Page Fields Here JDD BCFPI Income X Family Structure (N = 182) % of Total 45% 40% 40% 35% 30% Family Structure 25% Partner or spouse 20% Single parent 15% 10% 9% 8% 5% 2% 7% 2% 1% 7% 3% 7% 4% 3% 3% 3% 1% 1% 1% 1% 0% 1) $0-$9,999 2) $10,000$14,999 3) $15,000$19,999 4) $20,000$29,999 5) $30,000$39,999 Income 6) $40,000$49,999 7) $50,000$59,999 8) Greater than $60K (blank) Appendix H CAFAS Pre-post Test Scores for All and Completed Cases JDD Average Pre-Post Test CAFAS Scores for All (N = 45) and Cases Completing (N = 27) Cases 110.0 104.0 99.4 100.0 90.0 78.4 Total Scores 80.0 70.0 57.0 60.0 Pre Test Post Test 50.0 40.0 30.0 20.0 10.0 0.0 All Completed Case 29
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