Blind Citizens’ Annual Conference 2016 Speech by Chief Ombudsman Judge Peter Boshier delivered to the Blind Citizens’ Annual Conference Brentwood Hotel, Kilbirnie, Wellington—8 October 2016 Introduction I am extremely proud and privileged to be addressing the Annual Conference of Blind Citizens New Zealand as Chief Ombudsman. My Office recognises Blind Citizens as one of our key partners in the disability community. I want to acknowledge the mana of Blind Citizens as New Zealand’s longest serving disability consumer organisation and to recognise the particular status given to the role of disabled people’s organisations (DPOs) in the United Nations Convention on the Rights of Persons with Disabilities (the Convention): Article 4(3) says that disabled people through their representative organisations need to be closely consulted with and actively involved in the development and implementation of laws and other decisionmaking processes on issues affecting disabled people. Today I’m going to cover a range of issues including: my Office’s role in relation to disability issues; say a bit on what we mean by monitor in relation to the Convention; and our work as a partner organisation of New Zealand’s Independent Monitoring Mechanism (IMM). But firstly, I’d like to talk about my experience of disabled people in the court system. My interest in delivering the speech today comes not only as a result of being Chief Ombudsman, but as a result of having been a Judge since 1988. I was appointed at the time that the Protection of Personal and Property Rights Act was introduced. At the time, it was a far-reaching and socially courageous piece of legislation. It did much to empower vulnerable people. And yet during my time sitting in the Family Court, I felt that the Act never reached its full potential. It could have been better resourced than it was. I also felt that for disabled people appearing in court, we were often less than prepared and often less helpful than we should have been. I can recall my court day, in which people with disabilities appeared, often being organised so tightly that people were kept waiting when they should not have been, and in my view, we were not as sensitive in responding to the individual needs of people before us. For instance, I often found that we were not adequately prepared for people coming into my court who had a hearing disability. At times, it was stressful for everyone. 1|P a g e And so, I am particularly sensitive to doing the right thing by people with disabilities, and ensuring that justice is just as accessible as it is to everyone else. And now, can I talk about my office and our role in this important work. General overview of the OOTO disability role The New Zealand Office of the Ombudsman is one of the three organisations which constitute New Zealand’s IMM under Article 33 of the Convention. The Convention is the first UN Convention adopted which advocates, and explicitly requires, full and direct participation of those it seeks to assist—persons with disabilities. We support this approach, and consider that too often in the past, persons with disabilities have had decisions made for them and about them, with inadequate consultation and involvement. As an Independent Monitoring Mechanism we are responsible for protecting and monitoring the rights of disabled people pursuant to the Convention. We work collectively on a number of projects with the New Zealand Human Rights Commission and the New Zealand Convention Coalition Monitoring Group—the two other organisations which make up the IMM. We also have an individual role which is carried out under the Ombudsmen Act 1975. This allows us to: receive, and where appropriate, investigate complaints from affected individuals or groups about the administrative conduct of state sector agencies which relate to the implementation of the Convention; and conduct wider investigations and other monitoring activities in relation to administrative conduct of state sector agencies in implementing the Convention. We regularly consider how state sector agencies interpret and enforce legislation, along with policies and programmes that are relevant to disability issues. Monitoring these cases can provide information to help understand the implementation of the Convention and how justice or fairness is, or is not, accessible. For us, it is also important to explore whether decisions by state sector agencies are appropriately executed. For example, a government agency might have stated that it will allow persons with a disability to access amenities at that organisation. Yet if this agency does not follow through with its assurance persons with disabilities are no better off. We are aware that at times, there can be a significant gap between disability policy provisions on paper and the reality of people’s everyday lives. It is therefore necessary to compare policies and reports with information received directly from persons with disabilities sharing their experiences and views. This is why complaints to our Office are important, and ultimately provide persons in the disability community with an avenue for their concerns to be considered, and possibly investigated. We understand that it is monitoring the rights of persons with disabilities that is important, not disability itself. As a monitor under the Convention we must ask what society has or has not done which is obstructing people with disabilities from the full enjoyment of their rights— not how their physical or mental impairment has affected the enjoyment of their rights. 2|P a g e In recent investigations and communications into state sector agencies, we have made explicit reference to relevant articles in the Convention, and requested evidence to show that the Convention is being taken into account and adhered to by particular agencies. We have also been informing persons with disabilities that the Convention can act as a very powerful tool for individual advocacy, as it sets clear benchmarks around the way that people with disabilities should be treated, especially where there are no equivalents in existing legislation. We have encouraged persons with disabilities to refer to their rights under the Convention when communicating with agencies, and to ask such agencies how their processes align with the Convention. Examples of investigations/enquiries involving disability issues Canterbury Earthquakes The Office of the Ombudsman has frequently commented on the inadequacy of the current limitation period of three months for making claims under the Earthquake Commission Act. Since the first Canterbury Earthquake in 2010, we have received a number of complaints from people who have been advised they are ‘out of time’. Many of these people have already experienced a great deal of frustration and trauma, or have an existing disability. For example, we received a complaint from a person with a visual impairment who did not initially notice damage to her house caused by an earthquake. It was only when her parents visited that she became aware of the extent of the damage, more than three months later. The Ombudsman at the time formed the opinion that EQC’s decision to decline to accept the claim was made in accordance with a law that is unreasonable and improperly discriminatory. The Office of the Ombudsman, and the IMM, have recommended that the Government expedite a review of the three month time limit set out for lodging claims, noting that Article 11 of the Convention deals with situations of risk and humanitarian emergencies. In September 2015 we reaffirmed our position in this regard, and made a submission to the Treasury advocating for greater flexibility around the three month time limit. Crimes of Torture Act I want to talk a little about our Crimes of Torture Act (COTA) work and how that has played out in the much-publicised case of Ashley Peacock. Ashley is an inpatient at the Tawhirimatea Unit of Capital and Coast District Health Board, where he has resided since 2006 pursuant to a Compulsory Treatment Order under Section 30 of the Mental Health (Compulsory Assessment and Treatment) Act 1992. Ashley has a complex neurodevelopmental disability and autism spectrum disorder. Ashley has, for a long period of time, been housed in the seclusion/de-escalation area at the Tawhirimatea Unit. This space consists of a Spartan row of cells designed as short-term accommodation for patients whose behaviour has rendered them unsafe. The seclusion/de-escalation area is not suitable for Ashley, or any other patient, on a long term basis. Ashley’s mental health and general behaviour have deteriorated during his time at the Tawhirimatea Unit. His parents feel that his 3|P a g e treatment has had an emphasis on control rather than rehabilitation, and that the conditions in which he has lived, including the very extensive use of seclusion, have compromised his general wellbeing. Their enduring focus has been to find more suitable and humane accommodation for Ashley. Our COTA Inspectors first picked up on Ashley’s situation during an inspection visit to the Tawhirimatea Unit on 8 September 2011. Our ensuing report included a recommendation that: ‘a more appropriate facility needs to be sourced for [Ashley who is] being housed in the seclusion unit on a semi-permanent basis.’ Our COTA Inspectors have continued to comment on Ashley’s unsatisfactory circumstances, and as recently as February 2016 (in a report on an unannounced visit to Tawhirimatea Unit under the Crimes of Torture Act 1989) I made a further recommendation stating: ‘The Client previously identified as living in a seclusion room on a semi-permanent basis (COTA Reports dated September 2011 and June 2012) was still living in a seclusion room. I consider this client’s living situation to be cruel, inhuman or degrading treatment or punishment for the purpose of the Convention Against Torture.’ Staff at my Office continue to deal with matters relating to Ashley’s wellbeing under the Ombudsmen Act 1975. As recently as June 2016, an Ombudsman wrote to Capital and Coast DHB noting that Ashley’s living arrangements are highly unsatisfactory and have persisted for far too long. The Ombudsman again suggested that action be taken to transfer Ashley to an appropriate placement in the community. Wider administrative investigations and submissions on government policy As mentioned earlier, we have the ability to commence Wider Administrative investigations on matters relevant to the Convention. This has occurred in relation to mental health services being provided to prisoners by the Department of Corrections and the Ministry of Health. As part of this ongoing monitoring exercise we have requested that the Department of Corrections and the Ministry of Health provide regular updates on joint initiatives underway to help improve the circumstances of prisoners who experience mental illness. Both agencies know that we expect them to develop an overall framework that outlines how the individualised/specialised projects underway, fit into the larger picture of improved mental health services in prisons. Mental health in prisons is an area of significant interest to my Office, and I am currently considering whether further action is required in this area. An Ombudsman also dealt with an enquiry from a disability service provider about the lack of data available around the number of involuntary sterilisations performed on women and girls with intellectual disabilities in New Zealand. The agency had attempted to obtain statistics from both the Ministry of Health and the Ministry of Justice but was advised that the 4|P a g e information is not held, and that reporting on sterilisation procedures explicitly prohibits patient identification orders. The Ombudsman made a number of enquiries to both the Ministry of Health and the Ministry of Justice noting that the lack of data in this area makes it difficult to monitor important disability rights for an already vulnerable population group. He agreed with the enquiring agency that the involuntary sterilisation of women and girls with intellectual disabilities in New Zealand is a ‘matter of significant public interest’, and noted that the United Nations Committee on the Rights of Persons with Disabilities, in its Concluding Observations on New Zealand in October 2014, had stated that New Zealand ought to: ‘enact legislation prohibiting the use of sterilisation on boys and girls with disabilities, and on adults with disabilities, in the absence of their prior, fully informed and free consent.’ The Ministry of Health and the Ministry of Justice undertook some research around the number of such orders that have taken place in the past five years, and uncovered only a single example of the involuntary sterilisation of a female with an intellectual disability. However, the Ombudsman considered that the electronic information system for recording such information was inadequate, and noted it was possible that other such orders have taken place but not been recorded (a manual review of a large number of physical files would be required to determine whether other such orders took place). The Ombudsman felt this was a ‘surprising state of affairs in 2016 when electronic data can be easily collected and analysed’, and suggested both agencies update their mechanisms for reviewing and recording sterilisation orders. The Ombudsman reminded the Ministry of Health and the Ministry of Justice that New Zealand’s updated Disability Action Plan includes a new priority to protect against nontherapeutic sterilisation, and that there is internationally an expectation that New Zealand passes legislation prohibiting such sterilisation altogether. The Ombudsman also reminded both agencies of Article 31 in the Disability Convention which requires that: ‘State Parties undertake to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect the [Disability] Convention.’ The Ombudsman asked the Ministry of Health and the Ministry of Justice to provide a written update addressing his suggestions for improvement in the data collection around involuntary sterilisation of women and girls with disabilities, and this update is due shortly. Further, we also make submissions on consultations and proposed legislation. Recently they have included detailed submissions on: NZ signing the Optional Protocol of the Convention— we are delighted that Minister Wagner announced on Wednesday this week that NZ has acceded to the Optional Protocol (acceding to the Optional Protocol allows individuals to take complaints to the UN Disability Committee, once they have exhausted all national remedies); NZ acceding to the Marrakesh Treaty (which would make more books available to people who are blind or have low vision); and on the Small Passenger Services Sector Review (which proposed far reaching de-regulation of taxis including removing the regulations for taxis to 5|P a g e display braille signage and to operate 24-7, amongst further de-regulation that my Office deemed would adversely impact disabled people). IMM activities As mentioned earlier, we are one of three agencies which constitute New Zealand’s IMM. We must ensure such monitoring is undertaken in a manner which helps to provide guidance about the rights of persons with disabilities that can assist relevant agencies to understand the implications of the Convention on their roles. After all, a major objective of monitoring compliance of the Convention is to increase inclusive practices throughout New Zealand. We are an active part of the IMM, contributing to a number of projects, including both of the Making Disability Rights Real Reports. These reports provided commentary around the progress, or lack of it, that New Zealand is making under articles in the Convention. The reports also make a number of recommendations, and it is clear the United Nations Committee on the Rights of Persons with Disabilities took these into account when issuing its Concluding Observations after New Zealand’s disability context was reviewed in Geneva in 2014. Reasonable accommodation We recently launched a guide on reasonable accommodation for persons with disabilities. The guide aims to assist persons with disabilities to understand what reasonable accommodation is, and provide guidance on how such requests might be made. It also aims to educate employers or service providers on why reasonable accommodation is important, and how requests for it can be considered. There is still a lack of understanding around what reasonable accommodation means. In the past year, my Office recorded 81 disability-focussed complaints, and many of these involved cases where reasonable accommodation should have been provided, but wasn’t. The complaints concerned a number of subject matters including education, healthcare, physical access in the community, access to information, housing and prison services. Reasonable accommodation is important to everyone, whether you are a disabled consumer, or providing services to the community as an architect, an office manager, an IT developer or a school teacher. I also hope the reasonable accommodation guide gets people thinking about the benefits of being flexible when engaging with the disability community. This is particularly true of those providing services. Agencies need to be aware that in most cases, providing reasonable accommodation costs very little, or nothing at all, and can be as simple as changing attitudes, means of communication or improving accessibility. It is disappointing that some agencies continue to put requests for reasonable accommodation in the ‘too hard basket’. For instance, staff from my Office have attended a meeting in a public forum where a fairly senior official expressed frustration that accommodating a person using a wheelchair at a polytechnic institution meant installing elevators in one of the buildings. He considered this costly and burdensome. However, he had given little thought to other methods of accommodating the individual on the campus, including simply ensuring that the relevant 6|P a g e training and lectures were scheduled to take place in an accessible classroom on the ground floor. Service providers must move away from a closed mindset and lead the way by encouraging increased social responsibility and inclusivity. It is important to acknowledge the diversity of the disability community, and the fact that information should be accessible to everyone. We are proud that the reasonable accommodation guide exists in a number of formats, including Easy-Read, a structured Word document and a New Zealand Sign Language video. We would be delighted to receive feedback from people who consult the document. Conclusion I hope that I have provided you with a reasonable overview of the work of my Office in the area of disability and demonstrated how we are monitoring and intend to continue monitoring implementation of the Convention. I want to assure you of my personal commitment to this work and to state clearly that disability issues will remain a key focus for my Office on my watch. [Ends] 7|P a g e
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