Owning our support:
personalisation – theory and reality
Your name
here
Support
Plan
A presentation at Autscape 2011 by Yo
© Yo 2011
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Structure
1. So what is personalisation?
2. Owning our support? Personalisation The theory
3. Owning our support? Personalisation The reality
4. What will help?
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1. So what is personalisation?
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2. Owning our support?
Personalisation – The theory
Equality
Independence
Freedom
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2. Owning our support?
Personalisation – The theory
“putting in place the support people need
to live their lives on as equal terms as
possible with non-service users, rather
than seeing service users as needing
‘care’ because of perceived deficits and
pathologies.” (Rowntree, 2011)
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3. Owning our support?
Personalisation – The reality
National survey (all social care – not just autism)
• 4 out of 5 knew how much money, were getting help to
plan and were getting a say in their support
• Majority report improvements in many areas of their life
100%
90%
80%
70%
60%
50%
40%
30%
20%
10%
0%
Dignity
Independence
Control of
support
Control of life
Feeling safe
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3. Owning our support?
Personalisation – The reality
BUT:
• Money, money, money
• Huge variations between councils
• Difficulties with the process
• Doesn’t help with everything (employment,
volunteering, housing, personal
relationships)
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3. Owning our support?
Personalisation – The reality
What do autistics need support with?
100%
80%
60%
40%
20%
O
th
er
Le
isu
re
Jo
b/
st
ud
y
l
So
cia
na
l
ot
io
Em
Ho
us
eh
ol
d
Pa
pe
rw
or
k
Se
lf-
ca
re
0%
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3. Owning our support?
Personalisation – The reality
Not applied or unsure
Refused
Receiving
social care
(not personal
budget)
Receiving
social care
(personal
budget)
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3. Owning our support?
Personalisation – The reality
It would be lovely, if we could get there!
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3. Owning our support?
Personalisation – The reality
“Barriers seem to be rooted in two major
and inter-related problems: chronic
inadequacy of social care funding and the
continued existence of a social care
culture at odds with person-centred
support.” (Rowntree, 2011)
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4. What will help?
“The conclusion from the
findings from this project
is that funding through
general taxation is likely
to be the most viable and
effective way …”
(Rowntree, 2011)
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