What Does the Public Think About Alternative Dispensing/Distribution Strategies for Antivirals? Summary of IOM Public Engagements Umair A. Shah, MD, MPH CDC/ASTHO/NACCHO Nurse Triage Line Stakeholders Meeting March 20, 2012 IOM Antivirals Public Engagements: Purpose To allow the CDC to receive input from a diverse crosssection of the public on the acceptability of Nurse Triage Lines and other possible strategies to assist in the distribution and dispensing of antiviral drugs during a flu pandemic 2 IOM Antivirals Public Engagements: The Basics “Community Conversations” in geographically and demographically diverse locations with general public participants who reflect the diversity of their communities • Series of 4-hour sessions 1. Frontier Rural: Fort Benton, MT (Feb. 9) 2. Midsize Urban: Chattanooga, TN (Feb. 16) 3. Large Metropolitan: Los Angeles, CA (Mar. 2) • 232 participants total • Collaboration with local public health and advocacy organizations on participant recruitment and logistics • IOM planning committee designed method and tools 3 IOM Planning Committee Membership • • • • • • • • • • • • • • Arthur Kellermann (co-chair), The RAND Corporation Lisa Koonin (co-chair), Centers for Disease Control and Prevention Alex Adams, National Association of Chain Drug Stores Roger Bernier, University of Georgia James S. Blumenstock, Association of State and Territorial Health Officials Greg Bogdan, Rocky Mountain Poison Center Susan Cooper, State of Tennessee Jack Herrmann, National Association of County and City Health Officials Ruth Lynfield, Minnesota Department of Health Suzet McKinney, Tauri Group Judy Meehan, National Healthy Mothers, Healthy Babies Coalition Elena Rios, National Hispanic Health Foundation Carol Rutenberg, Telephone Triage Consulting, Inc. Umair A. Shah, Harris County Public Health and Environmental Services 4 How We Framed the Issue “In a Flu Pandemic: Getting Life-Saving Medicines to the Public” • In a severe pandemic, possible roadblocks – – – – – Many people sick at the same time Crowded hospitals, doctor’s offices and clinics Long waits to see a healthcare provider for a prescription Sick, contagious people in waiting rooms and other public places People don’t know where to turn for information • In response, possible new strategies – – To provide quicker access to antiviral drugs To get medical advice to sick people and the worried well 5 Strategies For Participants’ Consideration 1. Nurse Triage Lines 2. “Collaborative Practice Agreements” 3. Text Message System 4. Friend and Neighbor Pick Up and Delivery 5. Pandemic Flu Website 6 Method and Tools Surveys and scenarios designed to elicit— 1. Participants’ thoughts about these 5 strategies – What are their pros and cons? – Do they seem fair? – Would they be acceptable if antivirals were in short supply? 2. Participants’ own ideas about how to get antivirals to the public during a flu pandemic 7 Agenda: Main Features 1. Audience Response System (ARS) pre-survey 2. CDC expert presentation on flu pandemics, antivirals, and proposed distribution/dispensing strategies 3. Two roundtable scenario discussions a. b. A severe flu pandemic causing long waits to see a healthcare provider for a prescription As pandemic continues, antivirals become scarce 4. ARS post-survey 8 Characteristics of Three Sites Fort Benton, MT Chattanooga, TN Los Angeles, CA 75 49 108 Older Young adult-middle age Middle age 100% White (7% Hutterite) 41% African American, 4% Hispanic > 90% African American, Hispanic Educational Level 84% ≥ some college 80% ≥ some college 55% ≥ some college Health Insurance Coverage 93% 83% 58% Nearest Pharmacy 32% > 25 miles 92% < 5 miles 98% < 5 miles Have called any medical hotline 62% 64% 42% Have called a poison control center 27% 10% 9% Number of Participants Age Racial/Ethnic 9 High-Level Takeaways 1. Widespread acceptance of concept that there should be alternative ways for people to access antiviral drugs during a flu pandemic 2. Broad acceptance of all proposed strategies, including Nurse Triage Lines and Collaborative Practice Agreements 3. Few significant regional differences across the three sessions 10 The Devil Is In the Details • Some concerns expressed about-– Capacity of hotlines (need to avoid “cold-lines”) – Competency (medical, cultural, etc.) of hotline staff – Streamlining of access – Locus of control (national vs. local) – Gaming the system if antivirals are in short supply • Other comments – Scarcity scenarios might require different strategies – Transparency and communication as essential to trust, acceptance 11 Some Specifics: Level of Confidence in Normal Systems 1. Split of opinion on whether participants’ normal ways of getting prescription drugs will work well for them personally in a pandemic Disagree 47.2% Strongly Disagree 32.5% 36.4% 31.3% 31.8% Agree Strongly Agree 30.6% 15.3% 6.9% Fort Benton 18.2% 13.6% Chattanooga 20.5% 15.7% Los Angeles 12 Nurse Triage Lines: Trust 2. Vast majority agree that they would trust an NTL nurse to determine if they needed an antiviral prescription Disagree 53.5% 56.5% 57.0% Strongly Disagree Agree Strongly Agree 38.0% 30.4% 8.5% 0.0% Fort Benton 13.0% 0.0% Chattanooga 26.6% 10.1% 6.3% Los Angeles 13 NTLs: Safety 3. But, somewhat less agreement about “feeling safe” taking an NTL-prescribed antiviral without first seeing a healthcare provider 52.1% Disagree Strongly Disagree 48.9% Agree 39.5% 30.9% Strongly Agree 21.3% 39.4% 8.5% 0.0% Fort Benton 25.5% 17.3% 4.3% Chattanooga 12.4% Los Angeles 14 NTLs: Children 4. People also are less likely to agree that it would be safe to use NTLs to prescribe antivirals to children Note regional variation on this point Disagree 64.3% Strongly Disagree 45.9% 46.8% 29.8% 18.6% 15.7% 1.4% Fort Benton 31.8% 10.6% 12.8% 10.6% 11.8% Chattanooga Los Angeles Agree Strongly Agree 15 NTLs: Gaming the System 5. General agreement (though not necessarily concern) that if people can access antivirals through an NTL, many will lie about their symptoms 40.0% 46.8% Note regional variation on this point Disagree Strongly Disagree Agree 59.2% Strongly Agree 28.2% 11.3% 48.2% 40.4% 10.6% 1.4% Fort Benton 2.1% Chattanooga 4.7% 7.1% Los Angeles 16 NTLs: Scarcity 6. Split of opinion over whether NTLs could be trusted to get antivirals to the people who should receive them in times of scarcity Disagree 44.7% 50.0% 40.3% 2.8% 6.9% Fort Benton 36.6% 26.8% 31.9% 12.8% 10.6% Chattanooga Strongly Disagree Agree Strongly Agree 19.5% 17.1% Los Angeles 17 Collaborative Practice Agreements 7. Vast majority would trust pharmacists working under a CPA to prescribe an antiviral drug Disagree 41.7% 53.3% Strongly Disagree 55.6% Agree Strongly Agree 55.6% 42.2% 30.9% 2.8% 0.0% Fort Benton 4.4% 0.0% Chattanooga 9.9% 3.7% Los Angeles 18 Information via Text Message 8. Most would like to be able to sign up to receive text messages about the antiviral drugs that they had been prescribed (e.g., side effects, reminders to take medicine) 41% 59% Disagree 52% Strongly Disagree Agree Strongly Agree 44% 31% 16% 11% 2% 4% Chattanooga Los Angeles 30% 10% 0% Fort Benton 19 Generally speaking… 9. Strong agreement that even if there are small risks to changing the ways people get antivirals, it is better for more people to get them in time 34.7% 41.3% Disagree 38.6% Strongly Disagree Agree Strongly Agree 63.9% 52.2% 1.4% 0.0% Fort Benton 51.8% 6.5% 0.0% Chattanooga 6.0% 3.6% Los Angeles 20 Final Takeaways 1. Widespread acceptance of NTLs and CPAs – Concerns increase when children, scarcity at issue 2. Conversations mainly increased acceptance of proposed strategies 3. Participant evaluation reflected consistent, broad agreement that-– The information presented was trustworthy and helped them understand the challenges of getting antivirals to the public in a pandemic – The scenario discussions were productive and allowed them to express their views – It was useful to hear other participants’ opinions – By the post-survey, they had a better understanding of the issues – They would recommend that family and friends participate in a similar session if offered the chance 21 DISCUSSION 22
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