Research briefing Living with Sight Loss: Updating the National Picture 1. Introduction People with sight loss experience inequality across many areas of their lives. Living with Sight Loss: Updating the National Picture takes information from two national surveys to describe the extent of those inequalities for adults in Great Britain in the period 2010 to 2013. Three years ago, RNIB and NatCen Social Research published Circumstances of People with Sight Loss (2012), which used the results of the Life Opportunities Survey and Understanding Society to describe the lives of people with sight loss. Both surveys have since been updated. The Living with Sight Loss report presents the latest findings. It highlights the circumstances of adults with sight loss across a wide range of areas, and makes comparisons with adults without impairments, after controlling for differences in age and sex profile. This research briefing and the full report will be of interest to people working in the sight loss sector and other professionals who are seeking to further understand the circumstances of blind and partially sighted people. 2. Method 2.1 Secondary analysis Two publicly available, large-scale survey datasets were used in this report. The Life Opportunities Survey is longitudinal, which means it follows respondents over time and collects information on changes in their situations and experiences. Respondents were Logo – RNIB supporting blind and partially sighted people Registered charity number 226227 interviewed for the first time at Wave One (June 2009 – March 2011). The findings were used for the Circumstances of People with Sight Loss report. A second set of interviews were conducted at Wave Two (June 2010 – March 2012), and it is these responses that we examine here. The findings presented throughout this report are drawn from the Life Opportunities Survey, except for wellbeing data. Understanding Society is a major survey of the socio-economic circumstances and attitudes of people living in Britain. It is funded by the Economic and Social Research Council. The sample is drawn from the whole population and is longitudinal. We used Understanding Society’s wellbeing data from the period January 2012 to December 2013. Together, RNIB and NatCen Social Research looked at the survey questions and agreed which topics were suitable for analysis. For each topic we calculated what proportion of the adult sight loss population gave a particular response. The proportion of people with other types of impairment and with no impairment was then also calculated for comparison. Unless otherwise stated, differences mentioned in the report have been found to be statistically significant. 2.2 Defining sight loss To understand which respondents had sight loss we looked at whether, in their own judgement, respondents said they had difficulties seeing. Although respondents’ own reports aren’t an objective assessment, they do provide a good indication of who’s affected by sight loss. We classified respondents to the Life Opportunities Survey as a person with sight loss if they reported that they have: difficulty seeing or wear glasses or contact lenses ESI Research briefing 2 and “moderate” or “great” difficulty either seeing ordinary newsprint at arm’s length or clearly seeing the face of someone across a room and this limits the amount or kind of activities that the respondent could do. All respondents to the Understanding Society survey were asked whether they had “any long-standing physical or mental impairment, illness or disability”. Respondents who said yes were then asked whether this meant that they had substantial difficulties in various areas of their life, including “sight (apart from wearing standard glasses)”. We used this question to identify respondents with sight loss. 2.3 Age standardisation The results were standardised for age and sex. This means that any differences we observe between groups cannot simply be attributed to the fact people with sight loss are older than the sighted population. 3. Key findings from the research 3.1 Respondents with sight loss are nearly three times as likely as respondents with no impairment to report feeling depressed. 44 per cent of respondents with sight loss said they’d recently felt more unhappy or depressed than usual, compared with 15 per cent of respondents with no impairment. In the Circumstances of People with Sight Loss report, 38 per cent of respondents with sight loss reported feeling depressed. The current figure of 44 per cent is significantly higher. ESI Research briefing 3 3.2 Respondents with sight loss are 24 times more likely than respondents with no impairment to report bad or very bad general health. 24 per cent of respondents with sight loss reported that their general health was bad or very bad, compared with one per cent of respondents without an impairment. 50 per cent of respondents with sight loss reported good or very good general health compared with 91 per cent of people without impairments. Nearly a third of respondents with sight loss reported some or a lot of difficulty accessing the health service in the last 12 months, compared with 15 per cent of respondents with no impairment. The proportion of respondents with sight loss who experienced difficulty has remained stable since the last wave of the survey. 3.3 Most respondents with sight loss have formal qualifications, but comparisons to respondents with no impairments still show signs of inequality. Three quarters of respondents with sight loss were educated to at least O Level or GCSE at Grade A to C. This proportion is similar to those without impairments (79 per cent). However respondents with sight loss were much less likely than people with no impairments to have a degree level qualification (19 per cent compared with 28 per cent). 64 per cent of respondents with sight loss said they had access to learning opportunities, compared with 86 per cent of people with no impairment. When asked what limits access to learning opportunities, the most commonly reported barrier was financial. 48 per cent of respondents with sight loss reported that lack of money limited their access to learning opportunities, as did 54 per cent of respondents with no impairment. ESI Research briefing 4 3.4 Respondents with sight loss are less likely to be in work than respondents with no impairments. 56 per cent of respondents with sight loss hadn’t done paid work in the last week, compared with 40 per cent of respondents without impairments. Respondents who said that they were limited in what work they could do were asked what limited them. The most common answers for respondents with sight loss were a health condition, illness, or impairment (74 per cent) and disability related reasons (56 per cent). A third said anxiety or lack of confidence, compared with six per cent of respondents with no impairment. A quarter said they had difficulty with transport, compared with six per cent of respondents with no impairment. Among those who weren’t working, respondents with sight loss were about as likely as those without impairments to have looked for work in the last four weeks (12 per cent compared to 13 per cent). 3.5 Respondents with sight loss are less likely to be high earners and more likely to be on a low income. Nine per cent of respondents with sight loss earn more than £500 a week, compared with 25 per cent of respondents with no impairment. Nearly half of respondents with sight loss earn less than £200 a week compared with a third of respondents with no impairment. There are some significant differences from the Circumstances of People with Sight Loss report. The proportion of blind and partially sighted respondents who earn £500 or more a week is significantly lower, at nine per cent, than previously (13 per cent). However, the proportion earning less than £200 a week is also significantly lower than previously (48 per cent compared to 54 per cent). ESI Research briefing 5 3.6 Respondents with sight loss are more likely than those without impairments to have had difficulties accessing benefits services. 38 per cent of respondents with sight loss reported some or a lot of difficulty accessing benefits services, compared with 25 per cent of respondents without sight loss. The proportion of respondents with sight loss experiencing difficulties has remained stable since the last wave of the survey. The survey asked for the causes of difficulty. Most respondents with sight loss reporting a difficulty said that that the problems were caused by difficulty contacting by phone (65 per cent) and unhelpful or inexperienced staff (57 per cent). 3.7 The survey’s findings suggest that respondents with sight loss face barriers to participation in a range of life areas. Respondents with sight loss were around five times more likely than respondents with no impairments to report limited participation in work (46 per cent compared with nine per cent), around six times more likely to report limited participation in transport (45 per cent compared with seven per cent), and 10 times more likely to report limited participation in personal relationships (20 per cent compared with two per cent). The majority of respondents with sight loss said their participation was limited by their health condition, illness or impairment (58 per cent) or their disability (39 per cent). Nearly a third (32 per cent) said they were limited for financial reasons. 3.8 Around a third of respondents with sight loss have difficulties going into buildings Over the last year, a third of respondents with sight loss had difficulty going into buildings at least sometimes, rising to 41 per ESI Research briefing 6 cent among those with severe sight loss. A third of respondents with sight loss had difficulty moving about and finding their way around buildings at least some of the time. Common causes of difficulty were the transport getting to the building, lack of ramps and handrails in approach areas, stairs, doors and narrow corridors, inadequate lifts of escalators, and the attitudes of others. 3.9 Respondents with sight loss are more than four times as likely as respondents with no impairments to report feeling they had been a victim of hate crime 13 per cent of respondents with sight loss reported feeling they had been a victim of a hate crime, compared with 3 per cent of respondents with no impairment. 10 per cent of respondents with sight loss said they experienced discrimination because of a disability. When the survey asked who had treated them unfairly, 44 per cent of those reporting discrimination said people in the street, a third said an employer, and a third said health staff such as a GP, nurse, or hospital employee. 3.10 Respondents with sight loss were 50 per cent more likely to live alone than those with no impairment 21 per cent of respondents with sight loss lived alone, compared with 14 per cent of respondents with no impairment. However, the proportion of respondents with sight loss who look after someone they live with (16 per cent) is twice as high as the proportion of respondents without impairments who do so (eight per cent). 4. Conclusions Since the previous waves of Understanding Society and the Life Opportunities Survey, circumstances have worsened in some ESI Research briefing 7 respects for blind and partially sighted people. 44 per cent reported feeling more than usually depressed, which was significantly higher than in the previous wave of the survey (38 per cent). The proportion of blind and partially sighted respondents who earn £500 or more a week is significantly lower, at nine per cent, than in the previous wave of the survey (13 per cent). However, the proportion earning less than £200 a week is also significantly lower than previously (48 per cent compared to 54 per cent). In other areas, such as accessing health and benefits services, respondents’ circumstances have remained stable since the last wave. Key areas of inequality are employment, participation, and experience of hate crime. All three of these areas pose concern, as a much higher percentage of respondents with sight loss report difficulties than those without impairments. 5. Further information The full report can be downloaded from the research section of the RNIB website: www.rnib.org.uk/research. The reference for the report is: Flynn K and Lord C (2015) Living with sight loss: Updating the national picture. RNIB and NatCen Social Research. For further information please contact RNIB Evidence and Service Impact by emailing [email protected]. © RNIB 2015 ESI Research briefing 8
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