impact t h e p o s i t i v e o u t c o m e s o f f o c u s i n g o n qua l i t y A n n u a l R e p o r t 2 0 1 2 – 2 0 1 3 t a b l e o f c o n t e n t s 3 29 42 Letter from the Leaders Research Institute Finances 4 34 46 Quality with STEEEP Learning Institute SickKids Leaders Safe Timely Effective Efficient 36 47 Industry Partnerships Performance and Commercialization Equitable 38 Patient-centred SickKids Foundation 28 39 At a Glance Global Child Health 40 SickKids International 48 Milestones 50 Our People letter from the leaders Measuring Impact Measuring the impact of what we do at The Hospital for Sick Children is an important commitment to quality and improvement. At SickKids, we pride ourselves in putting children and families first – at the centre of our mission, our care delivery model and in the spaces where we provide services. SickKids touches millions of lives. We are actively engaged in many communities in Ontario and around the globe providing care, collaborating on research or expanding capacity for improved child health. Our stories are told far and wide. Children and families speak about their experience at SickKids for a lifetime. Last summer, SickKids commissioned an independent study to quantify the socio-economic impact of our organization. The results reaffirmed our belief that SickKids contributes significantly to children’s health and to economic and social prosperity in Toronto, Ontario and Canada. It noted that SickKids is a world-class patient-care organization, knowledge generator and educator, with five unique differentiators. These are key assets you could call “Avenues to Innovation” and include our human capital and brand as well as our approaches to integration, partnership and technology. We are indebted to our tremendously talented and engaged staff whose commitment to our shared values of excellence, collaboration, innovation and integrity enable a culture of commitment to doing our very best. Once again this year, we were pleased to be recognized as one of Canada’s top 100 employers, and one of Canada’s top 40 research hospitals. We are grateful to our thousands of community supporters who enable our vision through partnership, collaboration and philanthropy. We are immensely proud to lead such a strong, vibrant, resilient and innovative organization and remain focused and committed to doing our best on behalf of children and children’s health. Gratefully, Mary Jo Haddad, President and CEO Robert Harding, Chair, Board of Trustees This year’s annual report shares the stories of the past year that reflect our accomplishments through the lens of the six dimensions of quality: Safe, Timely, Effective, Efficient, Equitable and Patient-centred. Using this framework has helped us to illustrate our commitment to quality for our staff, the patients and families we serve, for the trainees who come to SickKids to learn and for our collaborators who partner with us for health system improvement. Annual Report 2012-2013 | 3 q u a l i t y i s b e i n g safe Safety above all – it is at the centre of excellent care. At SickKids we think of safety inside the hospital and at home, preventing hospitalization, if we can, and helping families stay healthy. Feeling safe at SickKids. Rebate falls SickKids prevents fall-related injuries with guidelines for a safe sleep environment for infants, fall risk assessments, and by ensuring a safe environment. Workplace injury rates at SickKids were below the average for Ontario hospitals in 2012 and SickKids received a rebate of $778,827 in WSIB premiums. bacteria Early exposure to GI-tract bacteria protects against autoimmune disease in mice, SickKids scientists say. Their study may also explain why females are at greater risk than males of such diseases as multiple sclerosis and lupus. Molecule probiotics SickKids researchers use imaging, biochemical and genetic tools to analyze a molecule that can help or harm. Further work may lead to prevention or treatment of malaria, atherosclerosis and cardiovascular disease. Medical use of probiotics could be significant in minimizing C. difficile infection among hospitalized patients taking antibiotics, according to collaborative research from SickKids and McMaster University. Parachute Safe Kids Canada, founded by SickKids in 1992 to help parents keep their kids safe, became part of a new national organization, “Parachute – Leaders in Injury Prevention.” quality is safety Patient Safety How we handle the flu Safety is something families and patients should not have to be concerned about at SickKids. That’s because staff are keenly aware of safety and consider safety in everything they do. Every winter when influenza hits, the Emergency Department at SickKids is inundated with patients. To reduce the number of cases, we try to prevent the spread of the flu and to minimize its effects. The Families as Partners in Patient Safety Committee works collaboratively with patients, families and staff to create a safe atmosphere and environment. In our public flu advisory message we emphasize the importance of vaccination for adults and children. Indeed, paediatric and public health leaders across Canada recommend that children over the age of six months receive the influenza vaccine. Since our Emergency Department does not provide flu shots, we recommend that people go to their family doctor or local public health unit. The committee identifies safety issues at SickKids; makes recommendations to improve patient safety, such as new hospital policies or procedures; implements and evaluates changes made to improve patient safety; increases awareness and promotes the partnership between patients/ families and staff in patient safety; and shares new knowledge locally, nationally and internationally. SickKids is required to report the results of certain patient safety indicators to the Ontario government. In December 2012, patient safety indicator results, as reported by Ontario hospitals, as well as other patient safety information, were made available on the Health Quality Ontario website. Reporting on patient safety indicators is an important and positive step in creating a better SickKids and strengthening confidence in hospitals. Nine patient safety indicators related to infection prevention and control and surgical safety are listed on our site. The description for each indicator includes additional links and resources for those who would like more detailed information. It is important to note that the public reporting of rates across Ontario is not intended to serve as a way for the public to compare hospitals, but as an opportunity to inspire improved performance and reduce the number of health-care-associated infections and enhance surgical safety. 6 | the hospital for sick children The flu campaign for staff starts in the fall. Dr. Upton Allen, Chief, Division of Infectious Diseases, says he has many reasons to get the influenza vaccine, “but I cannot think of a single reason why I shouldn’t. “It is well recognized that the flu can be a serious illness that can lead to hospitalization and sometimes even death among people with normal immune systems. Each year the virus changes and one cannot predict how the immune system will react to the circulating strain of the virus. The annual influenza vaccine is the best way to ensure that our immune systems are best prepared to fight the flu. Vaccination also lessens the chances that health-care workers will spread the influenza virus to others, including patients, family members and friends.” Handwashing, “coughing into your elbow,” and other strategies to reduce the risk of infection are also important. Indeed, compliance with hand hygiene guidelines is a patient safety indicator at SickKids. Our target in 2012 was 80 per cent compliance, which we met, but there is still room for improvement. SickKids poison prevention service extended to Manitoba When the Manitoba Poison Centre wanted to improve its services, it initiated a competitive process and invited bids from all over North America. The Ontario Poison Centre was awarded the contract and developed the program in less than three months. The OPC at SickKids began to provide the Province of Manitoba with enhanced poison services in 2012. Known as the Manitoba Poison Centre, the new 24/7 service was launched on July 1 with a new toll-free number that provides clinical toxicology consultations to the public and health-care providers throughout Manitoba. “Key leaders travelled to Manitoba throughout the planning process to establish and build on collaborative relationships.” During the first three months of the service, the OPC managed a total of 2,278 calls from Manitoba, freeing up Manitoba emergency room physicians who previously fielded the calls. In the same period of time, the OPC effectively managed 27,457 poison calls from across Ontario. “The Ontario Poison Centre is excited about our new relationship with physicians and health-care providers in Manitoba,” says Karen Fontana Chow, Director of Clinical Programs, OPC, Telemedicine and Motherisk. “Key leaders travelled to Manitoba throughout the planning process to establish and build on collaborative relationships. We recognize the wonderful efforts of stakeholders within SickKids and the Winnipeg Health Authority.” The partnership represents optimum utilization of health-care resources. Previously, the level of service in Manitoba was determined in part by how busy emergency room physicians were on any given day. With the introduction of the toll-free number, many patients are treated in their home with the help of one of the SickKids specialists in poison information, thereby freeing up emergency resources and allowing physicians to focus on the needs of patients in their busy emergency departments. The interdisciplinary team is able to respond to the needs of the poisoned patient with expert, timely, and evidence-based treatment recommendations. A public awareness campaign took place in March 2013 in Manitoba to coincide with Poison Prevention Week. Staff from Toronto offered train-the-trainer sessions in Winnipeg and Thompson, increasing the visibility of the service in northern Manitoba. Information booths were set up to distribute poison prevention materials, tweets were retweeted, and news media covered the story. “Ontario and Manitoba toxicologists are now working together to ensure the best care for the poisoned patient in their environment,” says Fontana Chow. “The long-term goal is to create a national system of interconnected poison centres with a national poison database. Tracking national statistics, identifying trends, forecasting issues and developing national prevention strategies are important next steps.” Annual Report 2012-2013 | 7 q u a l i t y i s b e i n g timely Waiting is a serious matter when you’re a growing child and need hospital care as soon as possible. Every child deserves timely access to quality care; that’s our vision for healthier children and a better world. Surgical wait times: Alexander Mosoiu learning innovation Innovation is how we do things better. To speed up the process of innovation, SickKids established the Innovation Fund to implement new ideas that can be used at SickKids and other hospitals. Access to online learning is growing at SickKids. The staff learning site, iLearn, offers 200 modules of varying length; 105 of those were developed in 2012-2013. Priorities SickKids marks Global Child Health Day, which raises awareness about diseases and deaths of millions of children and provides a forum for discussion about children’s health. genes transplants Access to individualized medicine: genetic screening can be done at birth to identify risk factors and conditions, which is the focus of the new SickKids Centre for Genetic Medicine. When a child requires a heart transplant, any wait feels too long. Researchers find that a device known as the “Berlin Heart,” used during the waiting period, significantly increases survival rates. Outreach SickKids is a trailblazer among Ontario public sector organizations in establishing international consultancy roles, which increases access to high-quality health-care expertise. quality is timely Free online service about kids’ health If you have a computer with access to the Internet, you also have access to SickKids’ highly trusted, round-the-clock advice about child health. AboutKidsHealth.ca is the world’s leading non-profit information source for children’s health. Its mission is to improve the health and well-being of children in Canada and around the world. In 2011-2012, the website had more than 1.5 million visits from over 200 countries, and from about 600 towns and cities throughout Canada. Its 3,000 pages are available in English and select pages have been translated into eight other languages: Arabic, Chinese, Portuguese, Punjabi, Spanish, Swahili, Tamil, and Urdu. AboutKidsHealth is available on other websites, among them BC Children’s Hospital and IWK Health Centre in Halifax. With the help of social media, AboutKidsHealth had written 3,636 tweets and counted 2,726 Twitter followers as of March 31, 2013. Its 52 public-view videos on YouTube had 70,000 views in 2012-2013, up from 5,000 views the year before. Phenomenal improvements At the Annual General Meeting of the Board of Trustees in 2012, Mary Jo Haddad, President and CEO, presented Dinarte Viveiros, Director of Emergency Medicine, 7BCD, and Access Initiatives, with the President’s Award for his outstanding commitment to quality, continuous process improvement and service excellence, which has created transformational change in Emergency Services and Patient Access. 10 | the hospital for sick children “Dinarte’s leadership has had a profound impact on those around him, enabling them to grow, develop and see opportunities in every challenge they face,” says Haddad. “The result has been phenomenal improvements in patient access and flow, employee engagement, patient satisfaction and our financial health.” Viveiros was recognized for leading the Emergency Department in achieving significant reductions in length of stay for discharged patients. He has also established the Nurse Practitioner role in the Emergency Department, which contributed to significant decreases in times for initial provider assessment. Under his leadership, SickKids is now the Toronto Central LHIN leader in ED wait times, having achieved a remarkable 49 per cent improvement across the three pay-for-results fixed funding indicators. Despite an 11 per cent increase in emergency patient volumes in 2011-2012, the improvement margin at SickKids more than doubled that of the next best performing hospital in the LHIN and exceeded the required 10 per cent improvement margin more than four times over. Viveiros began his career at SickKids in 2000 as an RN in the Emergency Department and Paediatric Medicine Unit. In 2010, he became Senior Manager in the Emergency Department, before being promoted to director of the department in March 2011. “Dinarte lives the values of SickKids,” says Haddad. “His calm, collaborative approach and relentless focus on utilizing data to drive performance is well recognized across the organization and the results speak for themselves.” Surgical wait times improve at SickKids Wait times for surgery are improving at SickKids. As part of SickKids’ Quality Improvement Plan, the hospital is implementing innovative strategies to ensure that the percentage of “out-of-window” surgical wait times (nationally accepted timelines) is consistently declining. This commitment to lead in world-class quality and service excellence is paying off – there have been significant improvements in surgical wait times, with an improvement of over 40 percentage points at SickKids since 2009. “Every year is better than the year before. We’re doing better, serving patients and families better.” “The Paediatric Canadian Access Targets for Surgery, developed with the involvement of more than 200 physicians from across Canada, allows a child anywhere at one of the nation’s children’s hospitals to receive the same priority for surgery,” says Dr. James Wright, Chief of Peri-operative Services and Surgeon-in-Chief. “Not meeting access targets for surgery has real and meaningful effects on the outcome of treatment for children. Our goal is to ensure that all children receive their surgery within target.” SickKids remains committed to improving surgical access and has recently tightened its target from 30 per cent to 15 per cent. In 2011-2012, eighteen per cent of surgeries were out of window at SickKids. “Executive sets a target each year based on the previous year and various initiatives,” says Alexander Mosoiu, Site Lead, Surgical Wait Times. “Every year is better than the year before. We’re doing better, serving patients and families better.” Next, Mosoiu and his team will look at process redesign and audit and feedback systems. By blocking times for unexpected high-urgency cases, less urgent or other elective surgeries will not be adversely affected. These next steps require careful analysis of demand, surgical access targets, historical utilization, and other systemic issues to ensure that operating room resources are maximized. “Quality improvement in the area of surgical wait times is critical because it impacts health outcomes,” says Mosoiu. “Ensuring that surgeries are ‘in window’ improves health outcomes in terms of both physical and psychosocial outcomes. There is stress involved with waiting that affects entire families – the sooner treatment occurs, the sooner that stress is relieved and kids may be able to participate more fully in regular development, things as obvious as hanging out with friends and going to gym class.” Annual Report 2012-2013 | 11 q u a l i t y i s b e i n g effective As an academic health sciences centre, SickKids is dedicated to both basic and clinical research to improve health outcomes. We embrace transparency and accountability measures that help us to make our programs and services effective. Nursing: Charis Kelly and Laura Beacock Vitamin D TB Dr. Daniel Roth wins $2 million grant to study how vitamin D and parathyroid hormone influence fetal and infant growth in Dhaka, Bangladesh. Researchers have recovered viable tuberculosis bacteria from stem cells in the bone marrow of individuals who thought they had been cured of TB. Mobility A SickKids researcher has found that a known protein is also key in maintaining muscle mass, offering hope to those coping with immobility caused by illness or genetic conditions. Leukemia Memory Study reveals possible method of removing leukemia stem cells, preventing relapse of acute myeloid leukemia, a rapidly progressive cancer of the blood affecting immature cells of bone marrow. Neuroscientists discover key molecular steps in the way a single protein disrupts the connections between brain cells. This adds another clue to how memory is formed. brain Recreational drug use tends to start in adolescence, a time when cocaine may change the part of the brain involved in reward and learning, SickKids scientists say. quality is effective Best learning experience ever SickKids is moving forward with knowledge translation initiatives. Knowledge translation, or KT, is the action of moving beyond the dissemination of knowledge into the actual use of knowledge. Through the use of KT, SickKids is strengthening health services and the health-care system. The knowledge translation team at the SickKids Learning Institute offers a workshop for scientists, the Scientist Knowledge Translation Training, as well as a course that grants a Knowledge Translation Professional Certificate. The five-day KTPC course is the only one of its kind in North America. The leadership and value that the course offers have been demonstrated by a growing number of applicants locally and from across the country, and by positive evaluations from participants after the course. “The best learning experience I have ever had,” one participant commented. The role of nurses has changed Nursing Week was celebrated at SickKids in May, but not a day goes by when nurses don’t prove their worth at SickKids. Nurses have been committed to providing the best possible care to children and their families since Elizabeth McMaster opened The Hospital for Sick Children in 1875. Traditionally, the role of nurses has been considered at the bedside but through the years there has been an evolution and nurses 14 | the hospital for sick children are leaders, serving integral roles in education, research, technology, hospital management, and global health. As educators, nurses teach patients and families about their condition and treatment as well as provide guidance, knowledge and expertise to new nurses. Their role has extended beyond the hospital, and they are helping others in the community and internationally. As scientists, nurses are able to study the condition of the patient and develop improvement strategies. At SickKids, nurses continue to study the effects of pain on children and through these studies have developed web- and smartphone-based tools that can be used to improve the assessment and management of pain in children. Every day nurses use new technologies and medical devices for such tasks as programming an IV pump or using a computer application that charts patient care. Since nurses have a great deal of contact with patients during their hospital stay, nurses also play a leading role in the design, training and implementation of new technologies and medical devices. Participating in hospital management is a much different role than being a nurse at the bedside. Playing an intermediary role in patient care and the health-care system, nurses are essential to promoting collaboration which results in efficient use of resources and quality patient care. Nurses at SickKids have changed the traditional bedside role by travelling internationally. Evolution is a continuous process that brings progress, improvements and new roles. Nurses will continue to work at the bedside but they will also define and evolve their leadership role to improve all aspects of effective patient care. a partnership of impakt SickKids has started a new partnership with Ryerson University called IMPAKT – The Ontario Institute for Child and Youth Success. The partnership will create a network for exchanging information between educators, learners, decision-makers and care providers. The idea for IMPAKT came from SickKids’ Dr. Joanna Anneke Rummens, Project Lead and Health Systems Research Scientist at the Learning Institute’s Community Health Systems Resource Group. Rummens, whose research explores the links between identity, diversity, health and well-being, points out that directing the latest research findings to front-line professionals can have a profound impact on child and youth success. IMPAKT will help us to achieve optimal life outcomes for children in Ontario and beyond. IMPAKT helps eliminate the gap between research and practice by connecting researchers with future front-line professionals and getting the latest research findings and practice-based knowledge into the hands of tomorrow’s caregivers. “The purpose of IMPAKT is to take what we know about children’s health and well-being and link it with what we actually do,” says Rummens. IMPAKT covers everything from eating disorders to bullying, mental health and family dynamics. A two-day symposium, co-organized with Women’s College Hospital, was held in February at Ryerson University and focused on health status and access to care for medically uninsured children and youth, pregnant women and newborns. The partnership between the Community Health Systems Resource Group at SickKids and Ryerson University is an example of SickKids’ commitment to innovation partnership and outreach. By enabling health systems scientists to develop and conduct research, SickKids can share the results to improve the health and well-being of children all over the world. It is an example of knowledge translation in action. “We have a wealth of research on the various factors that affect youth life outcomes, and there are many organizations with expertise in different areas of child well-being,” says Mary Jo Haddad, President and CEO. “IMPAKT will enable us to come together to share this knowledge and implement it into policy and practice, helping to achieve optimal life outcomes for children in Ontario and beyond.” The benefits of IMPAKT can be thought of as a cyclical process. Research is carried out at SickKids, disseminated to students as part of the IMPAKT network, students take in the information and use it by incorporating the research into their practice. The building of the network is echoed in SickKids’ strategic objectives to enhance child health systems by addressing key child health issues. Also, the sharing of information reflects SickKids’ value of translating research to practice. Moving forward, SickKids and Ryerson aim to expand the network to engage more researchers, educators, decision-makers and health-care providers in research and practice sharing. IMPAKT also aims to collaborate with other professional schools and child-focused organizations to increase the range of student and future front-line care providers. Annual Report 2012-2013 | 15 q u a l i t y i s b e i n g efficient A hospital holds little attraction for a child, so we make the most of our patients’ experience. Being efficient means having respect for the time and resources of patients, families and staff and a commitment to continuous improvement. MyEducation Passport: Dr. Anna Gold and Gurpreet Saggu dynamic pharmacy The Division of Pharmacy has succeeded in eliminating 80 hours a month of unnecessary work for each pharmacist and technician. Hospital volunteers, including Women’s Auxiliary members, donate more than 100,000 hours of their time, equivalent to 65 full-time staff. 30 to 5 The average number of days for the Research Ethics Board to approve clinical research applications goes down from 30 to five after the implementation of LEAN initiatives, a toolset for reducing inefficiencies. Mental health Paperless SickKids, the Centre for Addiction and Mental Health and University of Toronto collaborate on the appointment of Dr. Peter Szatmari to develop and lead an integrated child and youth mental health program. Patient care has improved with Computers on Wheels, a paperless initiative that provides nurses with up-to-date patient care summaries from SickKids’ clinical information system. volunteers VSys One, SickKids’ new volunteer system, allows volunteers to badge in, check their hours and receive messages, cutting back the work of clerical staff. quality is efficient MyEducation Passport helps students be their own advocate A new tool created by SickKids, MyEducation Passport, helps teenage patients take important learning information with them wherever they go. MyEducation Passport allows them or their care providers to fill out an online form that produces a summary outlining any learning disabilities they may have and useful strategies to facilitate learning. Usually, such a document would be several pages long, but with this tool, users create a wallet-sized passport that allows them to better communicate their educational challenges, strengths and needs with teachers, guidance counsellors and employers. By the end of the year, 213 patients or former patients had made a passport, assisted by the SickKids Good 2 Go Transition Program. The goal is to prepare youth who are leaving SickKids by the age of 18 with the necessary skills for self-advocacy, and the ability to maintain health-promoting behaviours and successfully use adult health-care services. Portfolio for efficiency Shiraz Bajwa was appointed to the new role of Director of Innovation & Improvement, in the Strategy, Performance and Communications portfolio. The purpose of the role is to facilitate the journey towards an evidence-based approach to transform quality, service and innovation at SickKids. Generally, this involves the use of structured problem-solving tools, like Lean Six Sigma. Through these tools Bajwa and his team will aim to change how people think about processes that support the SickKids focus on care, education and research. 18 | the hospital for sick children “My ultimate vision for this role is that of a catalyst helping SickKids achieve service excellence and continuous improvement capability in every patientand employee-focused activity, regardless of functional or departmental boundaries,” Bajwa says. As well as a background in biological and medical sciences and a fair bit of research experience, Bajwa holds an MBA in operations management and earned a Black Belt and Master Black Belt leadership roles in aerospace and energy. “I am used to managing complex relationships and I hope I can bring some of that experience with me to SickKids,” he said when he joined SickKids in July 2012. SickKids was already using Lean Six Sigma in areas such as Laboratory Medicine, Emergency and Quality & Risk Management and had demonstrated success in improving turnaround times, quality and employee empowerment. Bajwa is building on these successes so that the entire organization can use a robust in-house framework for learning and utilizing Lean Six Sigma. Process improvement plays a key role in the success of any organization. At SickKids clinicians and researchers have to approach their work from an evidence-based perspective. “There is no reason why we shouldn’t adopt a similar approach towards the operation and management of everything else,” Bajwa says. “Process improvement is about how you run an entire organization.” Over 80 per cent of Fortune 100 companies have had formal Lean Six Sigma programs in place for the past two decades. Now major health-care providers have taken serious notice and have used Lean Six Sigma to transform their own performance levels with respect to patient care and quality. Daily improvement – a foundation for quality SickKids encourages staff to play an active part in service excellence. With a new program, known as the Daily Continuous Improvement Program, process improvement has been revolutionized throughout the organization. The goal of the Daily CIP is to develop a habit of problem solving. Short meetings held every day by units across the hospital provide each team member with a voice and a means of organized and efficient communication. The team meetings also recognize the contributions of individual members. “The innovative program stimulates idea generation and uses structured problem solving processes to resolve complicated issues affecting satisfaction, efficiency and costs,” says Shiraz Bajwa, Director of Innovation & Improvement, who developed the program. Service excellence is a learned behaviour and a subject that is taught in a series of workshops, launched in 2013. Participants learn about things like communication, first impressions and their impact on patients, families and staff, and service excellence behaviours. Service excellence can be difficult to define, a workshop on the subject tells participants. It often falls into the “I know it when I see it” category. One way to define service excellence is to see each interaction between a staff member and patient/family/colleague as an experience. With each interaction, there is an opportunity to provide high-value service excellence and exceed the other person’s expectations. Consistency is also important. Service excellence is the consistent delivery by everyone of a high-value experience, day after day, year after year. In essence, excellence is when employees feel valued and patients feel the service and quality they receive are extraordinary. While SickKids is recognized for providing excellent service, there are always opportunities to do it better and more consistently. In 2012, ninety-nine per cent of patients and their families responded positively to our questions about overall satisfaction, ranging from good to excellent. Our goal is to keep increasing the number of “excellent” responses. Some workshop participants are surprised to discover that they have something to learn about service excellence. “Being in my profession for over 15 years and attending workshops, you think you know it all and have it all covered. That’s not true at all,” says Wayne Moore, Patient Information Clerk, Infectious Diseases. “The workshop upgraded my skills to a higher level, and it will benefit others, too, giving them a foundation to provide optimal customer service for our families.” The goal of the Daily CIP and service excellence training is to meet the strategic objective “To lead in world-class quality and service excellence.” Results will be captured in patient and family satisfaction surveys. Annual Report 2012-2013 | 19 q u a l i t y i s b e i n g equitable We work on finding the best solutions for key child health issues affecting our diverse population. With stronger child health systems we increase the chances for all children to receive the medical care they deserve. Better global health systems: Verena Brand and Shaun Morris CULTURAL COMPETENCE interpreter services The Interpreter Services Department at SickKids is an on-site, service-oriented resource that offers language service to patients and families whose English is limited or who are hearing impaired. SickKids offers cultural competence workshops for staff to enhance understanding of the relationships between personal biases and assumptions, social determinants of health, health literacy, culture, and the delivery of culturally competent care. speak up SickKids produced Keeping Your Child Safe: Speak Up, a pamphlet and a video that encourage families to ask, listen and talk to their health-care providers. Immigration Reading The goal of the New Immigrant Support Network at SickKids is to improve access to quality health care and health information for newcomer children and families through the provision of culturally competent care. Children with reading disabilities are benefitting from the SickKids Empower Reading program which has reached 19 school boards and over 6,500 students at nearly 500 Canadian schools. Training The African Medical and Research Foundation and SickKids are working together in an educational project to fight the high mortality rate of children in rural Tanzania. quality is equitable SickKids researchers accept challenges as rising stars The challenges may be grand, but the solutions are even grander! SickKids is an enthusiastic participant in Grand Challenges Canada and has won several grants to improve global health. In April 2012, three SickKids researchers showcased their work in the Stars in Global Health program, which taps into the creativity, knowledge and skills of emerging Canadian innovators to solve some of the most persistent health challenges in the developing world. The three submissions are examples of the work that SickKids does for global health. Shaun Morris, Clinician-Scientist, Infectious Diseases, Department of Paediatrics, worked on A Portable Toolkit to Save Newborn Lives. In April 2012, GCC announced that Morris was the recipient of a grant. Verena Brand, Research Fellow, Molecular Structure & Function, worked on A Metabolomics and Proteomics approach to find Drug Targets Against Toxoplasma Gondii. Yan Yuqing, PhD Student, proposed Nutritional Intervention in Southwest Nigeria to address malnutrition and obesity among women, children, youth and adults. navigating the system Every day, in various ways and throughout clinics, labs and offices, SickKids addresses all six dimensions of well-being that are outlined by the Organisation for Economic Co-operation and Development (OECD) including material 22 | the hospital for sick children well-being, housing and environment, education well-being, quality of school life, health and safety, and risk behaviours. For example, the Haematology and Oncology Program has introduced a new patient navigator role to provide support and guidance during this difficult time, assisting patients and their families through the complexity of clinical trials, introducing them to family-centred care, guiding them through the Ontario health-care system, and helping them find their way in the city. A Canadian first, Pro Bono Law Ontario at SickKids is a free legal service for patients and families who are referred to the program by clinical staff. The idea behind the initiative is to provide patients and their families, who are already under stress from their medical concerns, with legal assistance to address the non-medical issues that impact a child’s health or a family’s capacity to care for their sick child – for example, housing concerns of caregivers who have stopped working because of the child’s hospital stay. The program is the result of a partnership between SickKids and PBLO. It covers several aspects: training doctors, nurses and social workers so they can identify cases that may require legal intervention; referring families to PBLO’s triage lawyer whose office is at the hospital; offering legal information to families who need it; and providing access to legal services, either by the onsite lawyer or, through a referral, to pro bono lawyers or other legal services in the community. Since the office was established in 2009, it has handled 1,531 cases, 449 of them in 2012. Learn about SickKids Family Centre. Supporting expecting moms and dads in Nunavut Using the rich aboriginal tradition of storytelling, AboutKidsHealth.ca is helping to improve the health and well-being of new and expecting families among Canada’s Inuit population in Nunavut. AboutKidsHealth.ca, the child health information website developed by SickKids, launched a new initiative called Inuit Health Matters in June. The Inuit of Nunavut experience the highest Canadian rates of teen pregnancy, pre-term births, smoking, drug and alcohol use during pregnancy, infection, newborn and infant death and hospital readmission after birth. “In order to improve health outcomes in Canada’s Northern communities, like Nunavut, discussions about healthy lifestyles, sex and sexuality need to take place earlier, before the pregnancy begins,” says Dr. Amanda Sheppard, Project Lead and Applied Scientist at AboutKidsHealth.ca. “Pregnancy and birth are part of a continuum for better health.” Using culturally relevant stories with illustrations, Inuit Health Matters offers engaging and informative health materials including week-byweek prenatal health guides for expecting moms, month-by-month information for expecting dads, a sex education teaching poster for parents and additional resources for health care providers. The health guides are being distributed through the Government of Nunavut’s Department of Health and Social Services to health centres in all territorial communities. Materials are available in English, French, Inuktitut and Inuinnaqtun. Highlighting the rich oral tradition of Canada’s Inuit populations, the stories of three family relationships are weaved through the health education content. The characters were chosen with the goal of reflecting realistic scenarios in the North. It was also important that the materials had a Northern look and feel, explains Sheppard. Not only are the majority of the characters Inuit, but attention was also paid to the subtle details of clothing, homes and communities. The chosen colours reflect those naturally occurring in the Northern landscape – blues, purples and reds. “Discussions about healthy lifestyles, sex and sexuality need to take place earlier, before the pregnancy begins.” “Every expecting mom and dad deserves to be informed about all aspects of their pregnancy,” says Sheppard. “I hope the Inuit Health Matters content will empower and educate the soon-to-be-moms and dads about healthy behaviours and attitudes about the pregnancy and their baby’s development.” When Sheppard went to Iqaluit to deliver some of the Inuit Health Matters materials to new and expecting families at different family-centred programs, “There wasn’t one person who didn’t have an enthusiastic response to seeing the ‘Pregnancy Stories,’” she says. “The dads-to-be were impressed that there was content specific to them too. Those who had already had their babies said they wished they’d had the Pregnancy Stories booklet while they were pregnant.” Annual Report 2012-2013 | 23 q u a l i t y i s b e i n g patient-centred The ultimate goal for family-centred care is an integrated planning of health, education, social support, and health-care services with shared accountability across the systems. Yusuf Hirji: treatment in backpack Resource Obesity SickKids researchers test behavioural intervention technique to see if it reduces screen time or cuts back on the number of meals in front of the television. The Family Resource Centre provides resources and services for in- and outpatient families, to positively influence the health and quality of life of children and youth. Ideas Wikidea, an online innovations forum for staff, is generating lots of ideas. In the challenge, “Making Time Fly,” 67 people suggested how to make the best use of patients’ waiting times. Toys New guidelines are introduced for donation of unwrapped toys, books, electronics, crafts and other items, to respect patient safety, privacy and infection-control policies. Education Epilepsy The Epilepsy Surgery Program uses a multidisciplinary approach that brings a team together to deliver effective care to patients and their families. SickKids joins forces with TVOParents.com to provide parents with educational resources that will help their children succeed at school and in life. quality is patient-centred Outpatients with a backpack A new treatment for patients with bone or muscle tumours is being tested at SickKids. Typically, patients with paediatric sarcoma check-in for up to a week at a time to receive their chemotherapy treatment. On the first day of treatment, they receive about four hours of a common chemotherapy drug called methotrexate and must stay in hospital for an additional three to four days until the drug has cleared. When families asked if it was possible to do some of this treatment at home, an interdisciplinary team with strong representation from the Department of Pharmacy started a pilot research project, which continues with clinical trials. The treatment includes three litres of fluid that the patients carry around in a backpack, a great step forward in normalizing their life. This is the first time aggressive chemotherapy has been given as an outpatient treatment to paediatric patients in Canada. See video with Yusuf Hirji. award-winning App helps cancer patients manage pain Researchers at SickKids are always looking for new ways to improve pain management for cancer patients. Working with Cundari, a Toronto-based marketing communications agency, they have developed a pain diary app called Pain Squad. Pain Squad is an iPhone app that helps kids and teens with cancer track how intense their pain is, how long it lasts, where it hurts and what helps to treat it. They are also able to record how pain impacts their mood and activities, such as doing schoolwork, sleeping and interacting with others. 26 | the hospital for sick children While there are many hurdles in pain treatment, inadequate assessment and a patient’s reluctance to report pain are among the biggest barriers. Adolescents with cancer were involved in the research and development of the app, providing feedback on content and user-friendliness. “We made it easier for kids and teens to track their pain symptoms by using technology that they’re familiar with,” says Dr. Jennifer Stinson, Scientist and Nurse Practitioner in the Chronic Pain Program, and lead researcher of the project. “Keeping an iPhone pain diary is not only less work, but fun, too. Pain Squad is unique because while it helps patients keep track of their own symptoms, it also contributes to research by collecting data on cancer pain. Having solid information on the prevalence and severity of pain and the effectiveness of treatment will allow us to better manage pain.” Cundari created the Pain Squad theme to keep kids engaged and motivated to complete their pain surveys twice a day. The company sought the help of celebrities from two prime-time Canadian law enforcement shows, Rookie Blue and Flashpoint. Playing their crime-fighting characters, the actors performed in encouraging video clips that are unlocked as the kids win promotions to higher ranks. Patient-users join the Pain Squad as “Rookies” and progress through different levels. Pain Squad finished the third phase of testing to assess whether patients find it easy to use and understand the device. The app will also be tested in other Canadian paediatric oncology centres. The ultimate goal, said Dr. Stinson, is to make the Pain Squad app available to all Canadian adolescents with cancer. The focus on family-centred care Family-centred care is the standard at SickKids. It’s both our brand and our aspiration. Families have always been part of SickKids but never as much as today when we have made it a priority for families to play an active role in the care we provide to a sick child. Our partnerships with families are valuable for several reasons. For one thing, they ensure that the care we provide in the hospital is appropriate and will continue after discharge for better results and happier children. Two years ago, we created the Centre for Innovation and Excellence in Child and FamilyCentred Care. Under the direction of Karima Karmali, the centre is evolving with a vision to be recognized worldwide as a leader and innovator in child- and family-centred care. The centre has plans to integrate family theory with CFCC and to establish academic programming in the area. As well, its members hope to establish a research agenda that focuses on the impact of CFCC on clinical outcomes (psychosocial, psychological), patient/family satisfaction and organizational outcomes. The centre is active on several fronts. It oversees the Family-Centred Care Advisory Council, which provides feedback to SickKids staff about new initiatives or changes to existing programs. The council works with SickKids staff to turn familycentred ideas into realities and hosts education sessions for parents and staff. The Children’s Council is also under the umbrella of the CFCC. This is a group of 10 children, aged nine to 18, who are dedicated to helping make SickKids a better place for children. Nominated by hospital staff, Children’s Council members represent units throughout the hospital. They advise staff, act as advocates for children’s health, and provide leadership and guidance for family-centred initiatives at the hospital and the community. The Child and Family Relations office is open to parents who wish to discuss any concerns about their hospital experience. Accessibility and language services are available free for patients and families with limited English proficiency or are deaf or hard of hearing. The office will • Listen to and support families through their experience • Outline a process that is consistent, fair and timely • Advocate for a clear and transparent communication process between patients, families and staff • Assist families in communicating effectively with their care team •Disseminate complimentary messages to care teams. Read about our Values and Expectations The Family Centre is the hub for family-centred care at SickKids and provides a range of resources and services for in- and outpatient families, including brochures, books, DVDs and computer programs. The children’s library has books for children of all ages. There are books on tape, large-print books, magazines, and books in different languages. It also has computers with CD-ROMS. The library is home to Storytime, a daily event that children can attend in person or view on the television in their room. Annual Report 2012-2013 | 27 at a glance operating room cases 6,707 5,199 11,906 Inpatient Day Surgery Total Operating Room Cases (6,799 in 2011-12) (5,106 in 2011-12) (11,905 in 2011-12) inpatient activity 279.6 6.6 Average Number of Patients Per Day Average Length of Stay (Days) (280.7 in 2011-12) (6.7 in 2011-12) 15,088 102,037 Admissions Patient Days (15,323 in 2011-12) (102,743 in 2011-12) ambulatory activity 63,638 Emergency (63,679 in 2011-12) 28 | the hospital for sick children 217,945 281,583 Clinics Total Ambulatory Activity (218,903 in 2011-12) (282,582 in 2011-12) research institute research institute This is an exciting time for SickKids! We are months away from our move to the new Peter Gilgan Centre for Research and Learning at the corner of Bay and Elm streets. By the fall of 2013, more than 2,000 research staff will have completed the move from six different locations across our campus into this new state-of-the-art facility. The move promises greater collaboration, innovation and further advancements in research, leading to better child health outcomes. Using an innovative neighbourhood concept – clusters of two to three floors of the building each interconnected by interactive atriums – members from our seven research programs will have the opportunity to engage and collaborate in new ways. Each research neighbourhood will focus on specific child health issues. This concept will foster synergies in research, resulting in improved child health not only within the walls of our hospital but all around the world. Critical to the future of Canadian health research is sustained funding; the Research Institute operates in a singularly competitive funding era. Peer-reviewed national and international operating grant funding brings significant resources to the organization to support research. This year there were 1,824 peer-reviewed operating grants underway at SickKids. These represent $68.7 million in operating grant funding for which our researchers have successfully competed. Our scientists have succeeded in bringing an additional $26.2 million in infrastructure grant funding (63 projects) in 2012-2013, and $8.4 million in personnel awards. In addition, our investigators brought $5.7 million to the organization in Industry Sponsored research, continued on page 30 Annual Report 2012-2013 | 29 research institute continued from page 29 with 174 projects ongoing. A key indicator of the excellence of SickKids research is our success rate compared to the national average when competing for Canadian Institutes of Health Research grant funding. CIHR is Canada’s largest health research granting agency. In 2012-2013, SickKids success rate in competing for CIHR funding across two competitions was 23%, comparing favourably to the national success rate of 17%. We are grateful to many generous donors who contribute to the SickKids Foundation, both private and public. All of our partners enable us to continue to engage in world-class research for the benefit of children everywhere. Research at SickKids. Who we are During 2012-2013, the Research Institute was home to the following members Principal Investigators (> 50% of time committed 244 to research activities; includes Emeritus) Project Investigators and Team Investigators 339 (< 50% of time committed to research activities) Research staff (primarily grant funded) Total number of research trainees at SickKids in 2012-2013 855 1,094 Graduate students 554 Research Fellows 269 Summer students 271 Operations staff 30 | the hospital for sick children 182 research institute total funding (2012-2013) Type of Award Canada Research Chairs and Other Personnel Awards Number Of Awards 32 amount 4,215,410 Training Awards 226 4,220,960 Total Personnel and Training Awards 258 8,436,370 Research Operating Projects 1824 68,713,859 Industry Sponsored Research 174 5,675,055 63 26,193,467 Infrastructure Grants SickKids Foundation 39,913,478 Commercial Services at SickKids 5,289,350 Indirect Cost Recoveries 8,518,853 Trust Fund Income 3,955,041 Investment Income 9,105,584 Technology and Licencing Income 3,572,209 Total Projects and Operations 2061 170,936,896 Total Funding 2319 179,373,266 Annual Report 2012-2013 | 31 personnel awards Canada Research Chairs Tier I Canadian Institutes of Health Research (CIHR) 2002-15 David Bazett-Jones Genetics & Genome Biology New Investigator Award 2005-20 Gabrielle Boulianne Developmental & 2011-13 Robert Jankov Stem Cell Biology 2001-14 Mark Henkelman Physiology & Experimental Medicine Physiology & 2007-12 John Rubinstein Molecular Structure & Function Experimental Medicine 2009-14 Padmaja Subbarao Physiology & 2006-20 Lynne Howell Molecular Structure & Function 2002-16 David Kaplan Cell Biology 2009-14 Lillian Sung Child Health Evaluative Sciences 2004-18 Amira Klip Cell Biology 2010-15 Uri Tabori Genetics & Genome Biology 2005-20 Freda Miller Developmental & Clinician Scientist Award Stem Cell Biology 2010-13 2005-20 Michael Moran* Molecular Structure & Function 2001-14 Martin Post Physiology & 2005-19 Norman Rosenblum Experimental Medicine Michael Taylor Developmental & Stem Cell Biology Experimental Medicine CIHR/Canadian Association of Gastroenterology/ Developmental & Crohn's and Colitis Foundation of Canada Stem Cell Biology Transition Award 2008-12 2004-18 Daniela Rotin Cell Biology 2004-18 Michael Salter Neurosciences & Mental Health 2001-14 Philip Sherman Cell Biology CIHR Rx&D Collaborative Research Program 2006-19 Rosemary Tannock* Neurosciences & Mental Health GSK/CIHR Research Chair in Genetics & Genomics 2005-19 William Trimble Cell Biology 2008-13 2005-12 Shoshana Wodak Molecular Structure & Function Aleixo Muise Stephen Scherer Cell Biology Genetics & Genome Biology Ontario Institute for Cancer Research Canada Research Chairs Tier II New Investigator Award 2007-17 2009-15 Brian Ciruna Developmental & Brian Nieman Stem Cell Biology 2006-16 Andrea Kassner* Experimental Medicine Physiology & Investigator Award Experimental Medicine 2010-16 2004-14 Lisa Robinson Cell Biology 2006-16 Simon Sharpe Molecular Structure & Function 2012-17 Michael Wilson Genetics & Genome Biology Physiology & Bret Pearson Developmental & Stem Cell Biology Ontario Mental Health Foundation New Investigator Award Canada Research Chairs Transitional Tier II 2010-13 Jennifer Crosbie 2003-13 Meredith Irwin Cell Biology 2002-12 Andrew Paterson Genetics & Genome Biology The Arthritis Society 2002-12 Lu-Yang Wang Neurosciences & Mental Health Investigator Award 2004-13 Sheena Josselyn Neurosciences & Mental Health 2007-12 2004-13 Paul Frankland Neurosciences & Mental Health Rae Yeung Neurosciences & Mental Health Cell Biology The Arthritis Society * nominated by the McLaughlin Centre for Molecular Medicine Scholar Award 2011-14 Jennifer Stinson Child Health Evaluative Sciences research Agency funding funding Agency funding SickKids Foundation, Restricted Donations 39,913,478.09 McLaughlin Centre, University of Toronto 615,915.94 Canadian Institutes of Health Research 34,923,214.01 NeuroDevNet 606,053.71 Physicians' Services Incorporated Foundation 513,955.95 Miscellaneous 9,961,951.68 Interest Income, Pooled Funds 10,274,884.71 Ontario Student Opportunity Trust Fund 500,316.84 Ontario Ministry of Research and Innovation 10,071,627.21 Cystic Fibrosis Foundation Therapeutics, Inc. 445,342.98 Genome Canada 7,738,620.39 University of Toronto 419,228.69 Canada Foundation for Innovation 7,577,798.33 Bayer Inc. 416,008.57 Commercial Services at Sickkids 5,289,350.00 b.r.a.i.n.CHILD 405,902.22 National Institutes of Health 4,909,181.57 JDRF Canadian Clinical Trial Network 399,062.99 Canada Research Chairs Secretariat - 4,757,219.23 AllerGen NCE Inc. 393,362.49 Canadian Breast Cancer Foundation 363,535.11 Autism Speaks 294,252.04 Sequenom, Inc 284,278.76 Federal Indirect Cost Program Canada Research Chairs Secretariat - 3,106,557.33 CRC Program Canadian Cancer Society 2,179,902.30 University Of Michigan 271,846.08 J.P. Bickell Foundation 2,108,627.69 C17 Network 271,078.70 Ontario Brain Institute 1,769,768.34 Crohn's & Colitis Foundation of Canada 263,692.89 Ontario Institute for Cancer Research 1,659,416.68 Cancer Research Society Inc 254,929.51 MaRS Discovery District 1,474,428.95 Canadian Arthritis Network 235,441.03 Natural Sciences and Engineering 1,445,673.94 The Leukemia & Lymphoma Society 232,290.09 Research Council of Canada Grand Challenges Canada 227,338.37 Heart and Stroke Foundation of Ontario 1,326,049.89 Abbott Labratories Limited 223,876.10 Cystic Fibrosis Canada 1,260,648.76 Biogen Idec Inc. 200,655.25 Multiple Sclerosis Scientific 1,143,637.65 Thrasher Research Fund 192,914.18 Research Foundation Pediatric Oncology Group of Ontario 189,285.23 991,704.59 Trillium Therapeutics Inc. 187,674.59 BioMarin Pharmaceutical Inc. 948,691.25 Pfizer Canada Inc. 170,727.93 Stem Cell Network 932,274.65 Canadian Diabetes Association 169,663.10 Juvenile Diabetes Research 804,470.85 MaRS Innovation 168,108.86 Shire Human Genetic Therapies, Inc. 165,570.74 Luminex Molecular Diagnostics Foundation Canada 748,232.61 Crohn's & Colitis Foundation of America 165,481.28 Duchesnay Inc. Institute of Education Sciences 718,729.40 European Commission Directorate General 162,112.03 Pediatric Brain Tumor Foundation 686,239.44 Juvenile Diabetes Foundation International 159,543.29 The Terry Fox Research Institute 157,897.65 of the United States J.R. Robertson Estate 677,112.95 Hoffmann-La Roche Limited 157,507.27 Boston Scientific Corporation 673,573.11 Ontario Mental Health Foundation 156,520.67 Ontario Ministry of Health 663,942.63 Merck Canada Inc and Long-Term Care Myriad Genetics, Inc. Other 616,855.33 Grand Total 154,606.47 7,823,425.08 179,373,266.23 Annual Report 2012-2013 | 33 learning institute learning institute Learning has always been part of our organization, from the establishment of SickKids’ first school for children in 1892 to the development of Canada’s largest training program for child health clinicians and researchers. The establishment of the Learning Institute in 2007 gave SickKids a single organization to support educational initiatives and advocate for this valued pursuit. Each day we strive to provide better care, a pursuit of excellence that depends on learning, the critical link between new knowledge and its application in the care of a sick child. SickKids is affiliated with the University of Toronto and collaborates with other teaching hospitals and U of T in the Toronto Academic Health Science Network. SickKids is home to U of T’s paediatrics department, the largest in Canada. The department’s overall goal is the improvement in child health locally, provincially, nationally and internationally through the creation, evaluation, dissemination, and application of knowledge. Clinical, education 34 | the hospital for sick children and research programs at SickKids have been developed to ensure the emergence of leadership in paediatric health care in Canada and abroad. Highlights of the activities supported by the Learning Institute in 2012-2013 included: • Over 4.1 million visits to the patient and family education site AboutKidsHealth.ca. In a typical month, visitors to the site come from more than 225 different countries and 750 Canadian cities. • 31,423 visits to the Hospital Library to access print and electronic resources. More than 174,500 full text journal articles retrieved to support clinical, education and research activities. • SickKids is home to the largest, most comprehensive paediatric medical and surgical training program in Canada. During the 2012-2013 academic year, there were more than 809 residents and 435 fellows at SickKids. • Continuing professional development (CPD) opportunities, organized by the Learning Institute’s Conference Management Service, were hosted on the topics of Ophthalmology, Procedural Pain, Palliative Care, Respiratory Therapy, and Health Equity. Many other CPD opportunities were provided across the organization, for example, in Management and Leadership Development, Project Management, Information Technology, Quality and Risk Management, and Occupational Health and Safety. • The Simulation Program supported over 4,100 participants in 425 sessions through opportunities for individual skill acquisition and team training. • In 2012-2013 there was upward of 660 interprofessional and corporate student placements in the areas listed in the chart below: AboutKidsHealth Occupational Health & Safety Services Child Life Occupational Therapy Clinical and Metabolic Genetics Office of Strategy Management, Decision Support, Clinical Informatics & Technology Assisted Programs Innovation & Improvement Communications & Public Affairs Paediatric Medicine Division Dietetics Paediatric Laboratory Medicine Executive Office Pharmacy Facilities Development Physiotherapy General Radiology Psychology Health Information & Registration Services Respiratory Therapy Information Services Speech Language Pathology Learning Institute Social Work Library & Archives New Immigrant Support Network Nuclear Medicine Volunteer Resources Nursing Annual Report 2012-2013 | 35 iP & C I n d u s t ry pa r t n e r s h i p s a n d c o m m e r c i a l i z at i o n industry partnerships and commercialization Industry Partnerships and Commercialization (IP&C) helps researchers, physicians and scientists transfer their knowledge into products and programs that have social and economic benefit. The team matches industry professionals with researchers to foster complementary business relationships. SickKids is the leading research hospital in Canada with respect to technological transfer. The IP&C team consists of enthusiastic professionals with a wide range of expertise in business development, communications and marketing, technology commercialization, intellectual property, and license and royalty management. SickKids is a leading member of MaRS Innovation, the Toronto Discovery District’s commercialization engine, which disclosed 12 discoveries in 20122013 and received more than $480,000 of investment directly from MaRS Innovation to support new start-up companies and proof of principle design. 36 | the hospital for sick children Through the efforts of MaRS Innovation, an additional $275,000 was leveraged from other organizations to support SickKids start-up companies. IP&C ranking* •Number one in licensing revenues among research hospitals in Canada •Number one in licenses and options executed among research hospitals in Canada • Top 10 in licensing revenues among all academic institutions * Source: 2012-2013 Association of University Technology Managers annual licensing survey Areas of expertise • Assessment of invention disclosures/ideas for commercialization potential •Development and commercialization of intellectual property assets • Management and protection of SickKids’ intellectual property assets through patents and copyrights • Industry relations (incl. marketing and promotion) • Contract negotiation and payment compliance Industry Engagement Activities • Sponsored research/joint collaborations • Research contracts • Identify and market SickKids basic and clinical research expertise • Fee for service/access to core facilities • Identify alternate sources of funding for development and commercialization • Partner SickKids researchers and industry representatives to identify areas of mutual interest • Beta testing • Clinical trials • Student fellowship programs • Create collaborations between industry and SickKids researchers at various stages of the research and development Areas for Industry Collaborations • Cystic fibrosis and protein misfolding diseases • Paediatric oncology • Child health and nutrition IP&C at a glance 2012-2013 • Medical devices related to imaging and robotics Total Licensing Revenue $ 3,520,009 Disclosures Reviewed 57 Licenses & Option Agreements Executed 44 Spin-off Companies Created 1 US Patents Issued 7 • Regenerative medicine • Genetics and molecular diagnostics Annual Report 2012-2013 | 37 sickkids foundation sickkids foundation Philanthropy has enormous impact at SickKids. Since 1972, SickKids Foundation has been raising funds that have helped to earn and ensure the hospital’s international reputation for excellence in care, research and learning. The Foundation had another record-breaking fundraising year in 2012-2013 and made an investment of $88.7 million in SickKids – the largest amount in its history. This investment accounted for 13 per cent of overall funding support at SickKids last year. Donations to SickKids funded the infrastructure for the SickKids Research Institute, allowing us to recruit and retain some of the world’s best scientists and to enable them to push the frontiers of science. Last year, the Foundation granted $42.3 million to the Research Institute. 38 | the hospital for sick children Donations supported major equipment purchases and capital renovations – ensuring our facilities remain leading edge. Last year, the Foundation provided $21 million for equipment and projects in areas of the hospital including the operating suite, ophthalmology and neonatology. Donations funded training programs for our health professionals to keep them at the top of their fields. For example, more than $5.2 million was provided to support the training and education of fellows as well as for bursaries, conference attendance, lectureships and staff recognition and awards. The Foundation provided $14.6 million for family and patient support services and programs including the Family Centre, the Bear Theatre, the Starlight Room, chaplaincy, creative arts therapy, bereavement and family education days; $1.3 million went to health promotion initiatives, including AboutKidsHealth; and $1 million went to support the Patient Amenities Fund, double the amount provided last year. In testament to our shared vision, Healthier Children. A Better World, SickKids Foundation also provided $2.1 million for the Hospital’s global programs last year, including our newly launched SickKids-Caribbean Paediatric Cancer and Blood Disorders Project. “We are enormously grateful to our community of donors who through SickKids Foundation contribute to our vision and our commitment to excellence.” Mary Jo Haddad And in true partnership with the aspirations of SickKids, SickKids Foundation is also committed to raising $200 million to support the Peter Gilgan Centre for Research and Learning. In fact, $70 million has already been received, with total commitments of $181 towards the target as of March 31, 2013. With more than 262,000 donors last year, SickKids Foundation is the largest funder of child health research, learning and care in Canada, next to government. The success of the Foundation comes from its many fundraising programs which encourage communities to get involved – programs for corporate and major giving, in direct marketing and through events. SickKids Foundation is a leader among Canadian charities. Last year, it was one of the first to receive distinction through Imagine Canada’s new Standards Program for excellence in charitable operations. To learn more about SickKids Foundation, read its 2012-2013 Annual Report. Annual Report 2012-2013 | 39 global child Global Child Health In 2013, SickKids named Dr. Stanley Zlotkin as the inaugural Chief of Global Child Health. As Canada’s leading paediatric health sciences centre, SickKids’ expertise is well matched to the needs of children globally. Building and expanding on our strong foundation in paediatric health, the SickKids office for Global Child Health is based on four core functions: research, capacity building through education, advocacy and knowledge translation, and policy advice. Research – Including knowledge generation, translation and synthesis, and implementation. a.To conduct basic, translational, clinical and epidemiologic research - focusing on health issues of direct relevance to maternal, newborn and child health (MNCH). Examples of priority areas include nutrition, growth and development, and infectious diseases. 40 | the hospital for sick children health b.To inform advocacy, capacity building, policy development, coordination and governance of activities at all levels. c.To facilitate collaborations among researchers on specific child health topics, leveraging existing networks and databases where possible. Three current areas of global health research include; nutrition, growth and development; infection and immunity; and cancer and blood disorders. Capacity Building through Education – Sharing expertise on MNCH issues leading to translation and sustainable scaling of knowledge-based interventions that improve health systems. This includes the formation or strengthening of partnerships with Ministries of Health, hospitals, universities, non-governmental organizations, UN agencies and communities in low and middle income countries. Partnerships collaboratively identify knowledge gaps and devise appropriate solutions. a.Health systems, human resources for health, health workforce education and quality improvement projects with ministries of health, hospitals, clinics, universities, NGOs, UN agencies, and communities. Projects include: -- Collaborative paediatric health workforce training and education programs. -- Health systems strengthening on specific MNCH issues where there is a match between local need (in low- and middleincome countries) and SickKids expertise. b.Criteria for future projects will include impact, reach, sustainability, local ownership, efficacy and scalability. Advocacy and knowledge translation – The purpose is to ensure buy-in and support for local, national and international programs and priorities. Advocacy activities will include: a.Advocacy for a future Centre for Global Child Health (C-GCH) to ensure Greater Toronto Area support. b.Advocacy for MNCH in support of the Millennium Development Goals (MDGs) and the emerging post-2015 global action agenda. c.Advocacy for specific programs, e.g. paediatric health workforce education, the Global Sprinkles Initiative, etc. C-GCH knowledge translation (KT) activities will fulfill our mission with respect to translation of research into therapeutic and preventative strategies. KT and knowledge management in specific areas of MNCH includes evaluation of the implementation, scale-up and impact of proven interventions, and meets the increasing priority of funding agencies for sharing and implementing successful interventions. Policy Advice – C-GCH faculty will be engaged in the process of informing policy through a combination of strategic systematic reviews on topics of relevance to those responsible for setting policies in global child health, including UNICEF and the World Health Organization. Annual Report 2012-2013 | 41 sickkids international sickkids international Mission Through SickKids International, SickKids engages in opportunities to enhance global child health by facilitating knowledge transfer and focusing on building sustainable system capacity through its business development services and International Patient Office. We collaborate with partners, both in Canada and around the world, to advance the health of children through integrated child health education, research and clinical initiatives. Undertaking research and providing education and care in the global context is essential to fulfilling SickKids’ vision for Healthier Children. A Better World. Global Impact Our international work is focused in three areas: • Business Development Advisory Services: SickKids International undertakes revenue- 42 | the hospital for sick children generating projects that will support the funding of innovative and strategic projects at SickKids. Through our advisory partnerships, we provide tailored products and services to meet the needs and objectives of health-care institutions, governments and regulatory bodies in the areas of care, education and research. • International Education Services: SickKids International offers paediatric education and training to health-care professionals around the world. Education services are customized to the health-care professionals’ specific learning needs, and can take place at SickKids or in the home country. • International Patient Office: SickKids International coordinates medical planning for international patients who require specialized treatment at SickKids that is not available in their home countries. Some of these children may require financial support, which is provided via the Herbie Fund. Since 1979, the Herbie Fund has assisted more than 710 children from approximately 105 countries. Business Development Through SickKids International, SickKids is confirming its reputation as a hub for international health by providing high-quality advisory services. Our international collaborations draw on the expertise and experience of the SickKids team, a diverse network of skilled and knowledgeable professionals spanning the range of children’s health concerns. Examples of the types of advisory collaborations we undertake are: • Integrated hospital projects; • Clinical, research, or education projects that are aligned with SickKids expertise in specific clinical areas; and • Short-term needs assessments that generate a status report with improvement recommendations. International Education Through the International Learner Program™, SickKids International provides a unique learning opportunity for international health-care professionals to undertake observation or practice experience at SickKids. SickKids International, in partnership with SickKids experts, will develop, implement and evaluate continuing education curricula tailored to the specific needs of the international party. SickKids experts can also provide direct mentorship and coaching in the international partner’s home country. SickKids International also provides the International Health Assignment Workshop, a half-day workshop to introduce health-care professionals to the concept of international health competencies. Focusing on providing health care from a global approach, the workshop enhances participants’ professional practices and skills. Projects and Programs Advisory Services Doha, Qatar: A five-year partnership with Hamad Medical Corporation to develop a world-class paediatric hospital in Qatar. Doha, Qatar: Since 2012, SickKids has been working with Sidra Medical and Research Center (Sidra) as a strategic clinical research partner of Sidra. As part of this commitment, SickKids will provide advice and support to the clinical and research programs. international education Singapore: A multi-year agreement to provide observation and practice experience opportunities to select nurses and allied health professionals from KK Women’s and Children’s Hospital. Hong Kong: A multi-year agreement to provide observation and practice experience opportunities to select nurses and allied health professionals working in hospitals under the umbrella of the Hong Kong Hospital Authority. Philippines: A multi-year agreement with UBM Asia to provide customized continuing education programs on selected topics to general paediatricians. Looking to the Future Over the past 18 months, SickKids International has continued to expand its global reach by increasing its efforts to communicate the value proposition of the advisory and educational services that we are able to provide. This outreach has resulted in the signing of 12 Memoranda of Understanding to pursue discussions on potential collaborations, designed to support the efforts of potential partners in the pursuit of their goals to improve the standards of paediatric health care in their respective countries. Annual Report 2012-2013 | 43 finances fiscal years ended march 31 (in thousands of dollars) 2013 2012 2011** Revenue 740,927 717,487 709,501 Expenses 740,491 717,440 709,105 436 47 396 14,326* 25,194 6,535 14,762 25,241 6,931 Statement of Operations Excess (deficiency) of revenue over expenses before investment income (loss) Investment income (loss) Excess (deficiency) of revenue over expenses Balance Sheet Assets 1,418,445 1,340,812 1,178,468 Liabilities 1,077,108 1,020,987 Unrestricted net assets Accumulated remeasurement gains (losses) Total liabilities and net assets 319,825 294,725 6,750* – – 1,418,445 1,340,812 1,178,468 *Beginning in Fiscal 2013, SickKids adopted the Public Sector Accounting Standards which dictate that unrealized gains be reflected on the Balance Sheet and not the Statement of Operations. Total investment income of $14.3 million and unrealized gains of $6.8 million amounts to $21.1 million in 2013 which is comparative to $25.2 million in investment income in Fiscal 2012. **Fiscal 2011 Statement of Operations not restated for Public Sector Accounting Standards. ***Capital funding: yellow Operations funding: blue 44 | the hospital for sick children 883,743 334,587 Revenue ($ Millions) 710 717 741 Investment Income/(Loss), including unrealized gains ($ Millions)* 25.2 21.1 6.5 10/11 11/12 12/13 10/11** External Research Funding ($ Millions) 154 154 11/12 12/13 Foundation Funding Capital vs. Operations ($ Millions)*** 161 72.3 55.1 10/11 11/12 12/13 56.5 2.6 2.6 16.4 10/11 11/12 12/13 finances B B C C D E D A A F E 2012-2013 revenue ($740.9M), 2012-2013 expenses ($740.5M) excluding investment income A 62% Salary and benefits A Ontario Ministry of B 13% Other operating Health & Long-Term Care C 10% Medical, laboratory 59% B3% Amortization and drug supplies C 9% Commercial services D 3% Cost of goods sold D 19% Research grants E 5% Administrative, general E 10% Patient care and other and interest expense F7%Depreciation Note: Other operating includes: Purchases services and other referred-out services (43%), Building and equipment (36%), Utilities (11%), Operating fund expenses (7%), Royalty payments (2%), Dietary expenses (1%) B C D E A 2012-2013 sources of operational funding ($670.7M) A 66% Ontario Ministry of Health & Long-Term Care B 3% Commercial services C 10% SickKids Foundation D 6% Patient care and other E 15% Research grants B B C C D A D E F A E G F H G 2012-2013 sources of capital funding ($146.9M) 2012-2013 SOURces of research A Long-term debt (supported operational funding ($179.4M) by SickKids Foundation) 36% A 41% Research operating grants B 18%Net depreciation B 7% Estate and investment income C 1% Other funds C 5% Indirect cost recoveries D 6% SickKids Foundation D 2% Licensing income E 2% Ontario Ministry of E 3% Commercial services Health & Long-Term Care F 5% Personnel awards F 5% Research grants G 15% Infrastructure grants G 32% Peter Gilgan Centre H 22% SickKids Foundation for Research and Learning B C A 2012-2013 spending ($801.6M) A 66% Patient care B 20%Research C 14%Capital performance Process improvement and the identification of clinical efficiencies is an ongoing focus for SickKids. keyrehenit, achievements in 2012-2013: que si sit est que res iliaspi temque headerThe following are some examples of cor Adi bersperferum simet et aut eaquibus quam, que experoruptat ut volest facerovit et omnihil ignatet expla expe estrum velitat quos quas eatio. 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Us acest exerspe riorro cus solut acessimus rescia peliberio milique endictur, et venimagnisti reriorem quos debit experum essuntisto que lacero magnimo luptam quas iduciis et pore, occus cuptatu sdaessuntus et qui utem repero odis est estiur, aut evero te omni blab il ma dolorer ibeatint alique net est, occusa cuptasp erferes etur, si ut aliquidita voles dolo oditas apic tempore auditia vent et et quis et estiae ipsum vid quae odit, omnis sinulparcid mo dolori remporeius mos molupta tiorepernam facius vendae dist molores aut omni omnim quas improvement in medication reconciliation ex earchici autentio. Nes minullectis volor aligen(year over year) di res aboriandi ad earum deremol oreribea non restrum volor sequis derum ut moloriae nissunti volupture, sunt ere, estet ut alit et quia venis aboreiu ndandita audipsum faceate culparci blam idundelis aut eum int. 10.4 % pts 8.6 % pts 30.7 Picto derios et pratumendes denimus non re assi tem erem consequis nonserciae vent atur abo. Itateca esequibust, sum ipsandis moluptissum il iusae. Hilibusdandi dolorerrore sanis anda dolupta et que con et quam none quam, ut qui odist, consed et alis et il inciistrum quiam aut latur? Quis % pts improvement in pain intervention at emergency department triage (year over year) 48 | the hospital for sick children sickkids leaders sickkids board of trustees 2012 – 2013 Trustees Robert J. Harding, Chair Sarabjit Marwah, Vice-Chair Rose Patten, Vice-Chair Catherine Delaney Claire Duboc Ajit Khanna David McKay Gail O’Brien Tim Penner Robert Prichard Cheryl Reicin Lawrence Repar Paul Reynolds Larry Scott Bruce Simpson Stuart Smith Dr. Terrence Sullivan Robert Weese ex-officio trustees Mary Jo Haddad Dr. James Wright Pam Hubley Dr. Paolo Campisi John Francis Tom Long Annual Report 2012-2013 | 49 sickkids leaders senior management 2012 – 2013 executives Mary Jo Haddad, President and Chief Executive Officer, was appointed President and CEO of The Hospital for Sick Children in 2004. Through a distinguished career of over 30 years in health care, she is recognized for her innovative leadership and commitment to children’s health. She has championed collaboration and partnerships to enable health system improvement, building capacity and enabling individual and team success. Jim Garner, Executive Vice-President, Corporate, is responsible for Information Management and Technology, Health Information, Medical Engineering, Facilities, Business Services, Legal, Internal Audit and International Affairs. Jeff Mainland, Executive Vice-President, Strategy, Quality, Performance & Communications, oversees the development and execution of SickKids’ strategy. He also has enterprise responsibility for quality, risk, performance and communications. 50 | the hospital for sick children Marilyn Monk, Executive Vice-President, Clinical, provides leadership to all clinical services and programs and she is responsible for the physician practices and scientific teams in Paediatric Laboratory Medicine, Diagnostic Imaging and Psychiatry. Denis Daneman, Paediatrician-in-Chief, joined SickKids in 1981 and was named Paediatrician-in-Chief in 2006. The Chief Paediatrician is the leading physician at SickKids and Chair of Paediatrics at the University of Toronto. Pam Hubley, Chief, Professional Practice & Nursing, joined SickKids in 1987 as a staff nurse in the Burns & Plastic Surgery Unit. She was appointed to her current position in 2012. Jonathan Kronick, Chief of Education, joined SickKids in 2012 as the head of SickKids Learning Institute and as Professor of Paediatrics in the Division of Clinical & Metabolic Genetics at U of T. Janet Rossant, Chief of Research, is head of SickKids Research Institute. She is a Senior Scientist in Developmental & Stem Cell Biology, and Professor of Molecular Genetics, Obstetrics/Gynaecology and Paediatrics at U of T. Daniela Crivianu-Gaita, Vice-President, Information Management and Technology & Chief Information Officer, leads the selection and implementation of innovative technologies in support of the SickKids strategic directions. James G. Wright, Surgeon-in-Chief, is Chief of Perioperative Services and holds the Robert B. Salter Chair of Paediatric Surgical Research. He is responsible for six surgical divisions and five departments and serves as Vice-President, Medical. Laurie Harrison, Vice-President, Finance & Chief Financial Officer, re-joined SickKids in 2013. She leads the development and implementation of financial strategies to further SickKids’ mission and vision. Stanley Zlotkin, Chief, Global Child Health and Director of the Centre for Global Child Health, is Professor of Paediatrics and Senior Scientist in the Research Institute. He is recognized internationally for his work on micronutrients. Susan O’Dowd, Vice-President, Human Resources, joined SickKids in 2012. She has oversight for strategies and processes within Human Resources and Occupational Health and Safety, aligning with the hospital’s strategic direction. Cathy Seguin, Vice-President, SickKids International, leads international strategy that furthers SickKids’ leadership goals in care, education and research. She is Chair of the Board of Parachute, a national organization for injury prevention. Annual Report 2012-2013 | 51 milestones historic top-off award Publications Peter Gilgan, Founder, Mattamy Homes, helps build future home of SickKids researchers with $40-million gift. SickKids celebrates a key milestone in the construction timeline of the Peter Gilgan Centre for Research and Learning on May 3. Drs. Stephen Scherer and Peter Szatmari receive $10 million, part of a $150-million federal investment in personalized medicine. Clinician-researchers at SickKids regularly publish in leading journals, such as this article in Nature about treatment of medulloblastoma. bravery improving new leaders genetics The Women’s Auxiliary and Child Life celebrate 10 years of the Bravery Beads program. The Daily Continuous Improvement Program makes process improvement a daily occurrence across SickKids. Drs. Ronald Cohn, Jonathon Kronick, Steven Laussen, Steven Miller and Martin Offringa. The SickKids Centre for Genetic Medicine brings together the brightest minds in patient care, education, policy and research. retiring trustees STAR CHILD Canadian astronaut, Commander Chris Hadfield, talks to SickKids kids from the International Space Station. The Board of Trustees announces Mary Jo Haddad’s plan to retire as SickKids CEO at the end of 2013. Board chair announces the appointment of four new trustees: Claire Duboc, Timothy H. Penner, Cheryl V. Reicin and Terrence Sullivan. Researchers develop Standards for Research (StaR) in Child Health to impact child health in Canada and around the world. service mentor epilepsy researcher Dr. Yaron Finkelstein receives the 2013 American College of Medical Toxicology Service Award. The American Urology Association Foundation recognizes Dr. Darius Bägli as the 2012 Distinguished Mentor. In honour of Purple Day, experts and students from the Epilepsy Classroom share their knowledge on epilepsy. Drs. Gregory Borschel and Uri Tabori receive the Early Researcher Awards. space call safety happy explore scholar Oct. 29 to Nov. 2, 2012 was Canadian Patient Safety Week – Working as Partners in Patient Safety. Inaugural Healthy & Happy campaign generates community support and increases foundation revenue by 5.6 per cent in May. Clinician-scientist Dr. Stephen Freedman receives funding through the Grand Challenges Explorations initiative. Dr. Freda Miller is selected as a Senior International Research Scholar by the Howard Hughes Medical Institute. influence merit action discovery Mary Jo Haddad is named one of the 50 most influential people in Toronto by Toronto Life magazine. Dr. Brian McCrindle wins the Dr. Harold N. Segall Award of Merit of the Canadian Cardiovascular Society. Dr. Meredith Irwin is recognized by Israel Cancer Research Fund with a Women of Action Award. Researchers find therapeutic approach to treating brain injuries and potentially neurodegenerative diseases. mental health flu season fresh olympics SickKids and The Toronto District School Board form three-year partnership providing youth with mental health support. Dr. Stephen Porter shares information about the influenza virus and what to do during flu season. The Friends of the Greenbelt Foundation gives $50,000 to support Chef Joshna Maharaj and more fresh Ontario food. Dr. Greg Wells of SickKids, alongside Canadian sportscaster Brian Williams, covers the Summer 2012 Olympics. therapy chairs competition mri SickKids celebrates music therapy – one of our creative arts programs – with a video. Drs. Lynne Howell and Michael Wilson are awarded Canada Research Chairs. SickKids teams are awarded research grants of the Genome Canada Bioinformatics and Computational Biology competition. SickKids uses advanced magnetic resonance imaging technologies to look inside the human body. For more milestones visit our newsroom. w e c e l e b r a t e our people A community of passionate and engaged staff committed to our vision, mission and values. 10,090 Total headcount on March 31, 2013 Staff engagement at SickKids is outstanding. Organizational engagement scores rose to 74.5 per cent and job engagement scores to 76.6 per cent. SickKids had the highest survey participation rate of hospitals with over 2,000 employees. We also set highest scores for 10 of the factors that are measured. title Pudandi debitatem voluptas as ipic maiorest quas aut lit et ommollent facim rem hictessum nimodi sapit moluptate. 1,147 title Pudandi debitatem voluptas as ipic maiorest quas aut lit et ommollent facim rem Research hictessum Staff nimodi sapit moluptate. Scientists and senior scientists 5,327 Pudandi debitatem voluptas as ipic maiorest quas aut lit et ommollent hospital facimstaff rem hictessum (excluding fellows & students) nimodi sapit moluptate. 80 (164 clinician-scientists are captured in other clinical categories on this page) Research Staff (primarily grant-funded staff)877 Operations Staff title Management & Support 2,214 Health-Care Professionals 3,113 190 704 1,412 physicians volunteers Active & Associate Medical Staff Registered Volunteers Women’s Auxiliary Volunteers title 1,500 1,204 208 title Pudandi debitatem Pudandi debitatem voluptas as ipic maiorest voluptas as ipic maiorest quas aut lit et ommollent residents, fellows, students and trainees quas aut lit et ommollent facim rem hictessum facim rem hictessum nimodi sapit moluptate. nimodi sapit moluptate. title Research Fellows 208 Pudandi debitatem graduate Students 345 voluptas as ipic maiorest quas aut lit et ommollent undergraduate students 67 facim rem hictessum hospital fellows and students 220 nimodi sapit moluptate. medical residents and fellows 660 555 University Avenue Toronto, Ontario M5G 1X8 416.813.1500 www.sickkids.ca
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