Ellen Murray @ellenfromnowon Healthcare & Education Worker, SAIL NI sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 These slides are available online: sailni.com/medicalschool For personal use and reference. All rights reserved. sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 genderjam.lgbt/pride Access information • Discussion around the following topics throughout – Mental illness, self-harm and suicide – Drug and alcohol use and addiction – Family rejection and homelessness – Violent crime, including sexual crime – Medical transphobia, homophobia and biphobia sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Major community problems • • • • • • • Healthcare Access to education Employment Legal recognition The criminal justice system Social discrimination Support services sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 What the problems cause • Mental health emergencies – Depression & anxiety – PTSD – Suicide • • • • Physical health problems Poverty Social isolation Ongoing risk behaviours sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Mental health • Comorbidity of mental illness common • Mostly due to social factors • Largely helped by acceptance & accommodation • Suicide – 41% attempt rate (all ages)1 – 48% attempt rate (25 and under)2 1 2 – Speaking From The Margins, Transgender Equality Network Ireland, 2013 – RaRE Study, PACE, 2014 sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Trans healthcare • We’ve largely the same healthcare needs as the general population • Specialist gender identity services – Psychiatric/psychosexual setting – Mental health support – Referrals for endocrinology, surgery & other interventions – Holistic care sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Specific healthcare needs • • • • • • Mental health support Endocrine interventions Speech & language therapy Fertility therapy (gamete storage) Surgical interventions On-going monitoring sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Healthcare services available Info online: transgenderni.com/healthcare sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Problems in healthcare • Informed by significant work with over 170 service users from August 2014 to April 2016 in Northern Ireland – Lead to exclusion from health services – Knock-on effect to health of individuals – Wider impact socially on individuals – Lead to mental health emergencies & suicide sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Mental illness & healthcare • Generally poor experiences of mental health care: – Invalidation of trans identity due to comorbid mental illness – Denial or delay of endocrine & surgical care due to comorbid mental illness – Perceived inability to seek mental health care when in specialist gender identity services – Stigmatisation and misunderstanding generally sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Refusal of treatment • Inaccessibility or denial of treatment relatively common in general & specialist practice: – GPs unwilling to prescribe or monitor hormone replacement therapy off-licence – Patients perceived as “not trans enough” – Specialists feel unqualified to support a trans person sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Inappropriate referrals & delays • “The trans cold” – Referring trans people with unconnected healthcare needs to gender identity services • “Ruling out mental illness / delusion” – Facilitating a referral to gender identity services on the condition of attending psychiatric service prior to referral – Recommendations of “reparative therapy” or not coming out / transitioning sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Sexual & reproductive health services • Inaccessibility (real & perceived) – Gender/sex segregation – Inability to facilitate trans people with “atypical” genital configuration – Post-surgical sexual health care – Lack of understanding of common trans endocrine care & its impact on sexual health • Abortion access sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Gender Identity Services • Perceived stigmatisation of trans identities – Mandatory mental health assessments – “Real Life Experience” requirements – Scrutiny over sex lives of trans people • Clinical threshold of “being trans” – Propagation of narratives of typical trans experiences – Difficulties for non-binary people and gender non-conforming men & women sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Records & confidentiality • Recording of correct names & gender markers • Access to preventative healthcare – Prostate screening for trans women & other people assigned male at birth – Cervical smears and breast cancer screening for trans men & other people assigned female at birth • Inappropriate disclosure of trans status sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Clinical transphobia • Common throughout healthcare services – Humiliation and invalidation on basis of trans status – Refusal to treat, or inappropriate treatment on basis of trans status – Harassment and bullying – Inappropriate treatment of partners & families of trans people – “Reparative/conversion therapy” sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Clinical homophobia & biphobia • Invalidation of gender on the basis of sexual orientation – Heterosexuality expected – Typical homophobia & biphobia propagated – Invalidation on grounds of asexuality, especially after transition • Erasure of LGBTQ culture and expression – RLE requirements of masculinity / femininity sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Issues for non-binary people • Invalidation • Lack of clinical leadership – Misinterpretation of guidelines & governance • Records problems, misgendering, erasure • Specific refusal of treatment • Real Life Experience requirements sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Issues for young people • Access to healthcare – Very long assessment times in specialist services – High age requirements for endocrine interventions – Invalidation of identity; written off to teenage confusion – Particular difficulties for non-binary young people – Requirement of parental consent, including when over 16 sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Issues for ill & disabled people • Similar issues as cisgender disabled people • Comorbidity & access problems • Invalidation of trans identity due to illness or disability • Delays in care due to changes in disability/illness • Lack of care for people with learning disabilities • Extended assessment times for Autistic people & others with developmental disabilities sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 What you can expect • >120% year on year increase in trans & nonbinary people accessing support – Healthcare service waiting lists – Support services being overwhelmed • Slow improvement in social understanding • Language changing • Your friends are trans sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Supporting trans patients • Using correct names, honorific titles, pronouns & gender markers • Respecting confidentiality & sensitivity • Respecting agency & capacity • Not pathologising their identity or experience • Making accommodations where possible • Making appropriate referrals sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 How you can help • Make sure your work is inclusive (it’s probably not) • Challenge your own prejudices and misconceptions • Consider getting involved with advocacy • Listen to and amplify trans community voices • Never accept transphobia sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Support & guidance TransgenderNI.com Hub of information & support for trans people and carers/professionals in NI RCGP NI guidance bit.ly/GPtransNI RCPsych GIS guidance bit.ly/CR181 GMC guidance bit.ly/GMCtrans GIRES gires.org.uk GenderJam Sexual Health Guide genderjam.org.uk/sexualhealth sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Questions sailni.com Copyright 2015 SAIL NI @SAIL_NI /SAIL.NI.1 Thank you sailni.com [email protected] @SAIL_NI / @ellenfromnowon fb.com/SAIL.NI.1 Healthcare info: transgenderni.com/healthcare General resources: transgenderni.com Copyright 2015 SAIL NI
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