Rights at risk staff manual final version Rights at Risk Shared Rights, Risk and Recovery Assessment and Plan STAFF MANUAL Rights at risk staff manual amendments V1 7.2.15 Authors Christy Laganis (Trainee Clinical Psychologist, University of Liverpool/Mersey Care NHS Trust) Claire Dowling (Assistant Psychologist, Mersey Care NHS Trust) Bethan Roberts (Trainee Clinical Psychologist, University of Lancaster) Sophie Howes (Senior Human Rights Officer, British Institute of Human Rights) Dr Sarah Butchard (Clinical Psychologist, Mersey Care NHS Trust) Dr Beth Greenhill (Senior Clinical Tutor/ Clinical Psychologist, University of Liverpool/Mersey Care NHS Trust) Acknowledgements The authors would like to thank Professor Richard Whittington, Professor John Read, Dr Caroline Logan, Dr James Riley, Dr Sarah Hamner and Vikki Harrison for their helpful comments and feedback during the development of this resource. We would also like to thank the staff and service users from Mersey Care NHS Trust who have been involved in developing and piloting this resource. We would like to acknowledge the input into this element of the project made by Lyndsey Holt, Khowla Jomar, Emma Forde and James Dudley who were part of the overall project team and all those who took part in the steering groups. We would also like to thank Richard Whitehead for the support shown by him to the authors throughout the project. We would like to know your views on how this resource can be improved and further developed. To give feedback, or to get involved in further piloting work or adaptation please contact Beth Greenhill at [email protected] © <2015> Equality and Human Rights Commission. All rights reserved. This material may be copied for use within Higher Education Institutions on the understanding that the authors and the University of Liverpool are acknowledged as the developer of the material on all copies, that this copyright statement is retained and that the intellectual property rights of the authors and of the Equality and Human Rights Commission are acknowledged. 1 Rights at risk staff manual amendments V1 7.2.15 Contents Contents ................................................................................................................................. 2 Introduction ........................................................................................................................... 5 References ............................................................................................................................. 6 Who is this guide for? ............................................................................................................ 7 How to use this guide ............................................................................................................ 7 Rights.......................................................................................................................................... 8 Why take a human rights based approach? .......................................................................... 8 Human rights and the law: The Human Rights Act ................................................................ 9 International and European human rights law .................................................................. 9 The Human Rights Act........................................................................................................ 9 Key rights in the Human Rights Act in health and social care ............................................... 9 Article 2: The right to life ................................................................................................... 9 Article 3: The right to be free from torture and inhuman or degrading treatment ........ 10 Article 5: The right to liberty ............................................................................................ 10 Article 8: The right to family life, private life, home and correspondence. .................... 10 Article 14: The right not to be discriminated against in relation to any of the rights contained in the European Convention. .......................................................................... 10 The FREDA principles ........................................................................................................... 10 A human rights based approach .......................................................................................... 11 The Mental Health Act and the Mental Capacity Act .......................................................... 11 Mental Health Act .......................................................................................................... 12 The Mental Capacity Act ................................................................................................. 12 Human rights and Positive Behaviour Support .................................................................... 13 References ........................................................................................................................... 15 Risk ........................................................................................................................................... 17 Risk in mental health services .............................................................................................. 17 Existing approaches to risk assessment: Static and dynamic risk ....................................... 17 Best practice in managing risk ............................................................................................. 18 Box 1: The 16 Best Practice in Managing Risk Principles ........ Error! Bookmark not defined. Positive Risk Management ................................................................................................... 19 Box 2: What is positive risk management? .......................................................................... 19 Risk sharing partnerships ..................................................................................................... 20 Risk formulation ................................................................................................................... 20 Protective factors and coping strategies ............................................................................. 21 2 Rights at risk staff manual amendments V1 7.2.15 Care programme approach to risk assessment ................................................................... 21 References ........................................................................................................................... 23 How to complete the Rights at risk: Shared rights, risk and recovery plan ............................ 24 Why have we done it the way we have? ............................................................................. 24 Positive Risk Management ...................................................... Error! Bookmark not defined. Ownership of Risk ................................................................... Error! Bookmark not defined. Relationships ........................................................................... Error! Bookmark not defined. Criminality and Mental Health ................................................ Error! Bookmark not defined. Providing a rationale for the questions we ask ...................... Error! Bookmark not defined. Literacy in the General Population ......................................... Error! Bookmark not defined. Guidance notes .................................................................................................................... 25 Facilitating Service User Involvement.................................................................................. 25 Where to obtain the information from?.......................................................................... 26 Assessing risk: Likelihood and Severity ............................................................................ 28 2.3 Completing the risk assessment ................................................................................ 30 2.4 Recording and worked example ................................................................................ 31 Risks Areas: Questions, prompts and human rights involved ................................................. 33 Section 1: Advanced Statement ............................................................................................... 33 Section 2: Risks to self .............................................................................................................. 34 Please turn to ‘Section 2: Risks to self’ in the shared information booklet .................... 34 1) Physical health ................................................................................................................. 34 2) Taking medication............................................................................................................ 36 3) Mental Health .................................................................................................................. 38 4) Self-neglect (not looking after myself) ............................................................................ 40 5) Self-harm (Hurting or harming myself)............................................................................ 42 6) Suicide .............................................................................................................................. 44 7) Engagement (Not wanting help from services) ............................................................... 47 Rationale: ......................................................................................................................... 47 8) Alcohol/Substance misuse ............................................................................................... 49 9) Transport (private) ..................................................................................................... 51 10) Safety at home ............................................................................................................... 52 Section 3: Risks to others ......................................................................................................... 54 1) People you Care for: Dependants and Children .............................................................. 54 2) Verbal aggression/ Intimidation ...................................................................................... 56 3) Physical violence (no weapons) ....................................................................................... 58 3 Rights at risk staff manual amendments V1 7.2.15 4) Physical Violence (weapons)............................................... Error! Bookmark not defined. 5) Sexually inappropriate behaviour.................................................................................... 60 6) Criminal or Antisocial acts ............................................................................................... 61 7) Arson (Starting Fires) ....................................................................................................... 63 8) Difficulties with relationships ............................................. Error! Bookmark not defined. Section 4: Risk from others ...................................................................................................... 65 1) Discrimination ............................................................................................................... 65 2) Physical abuse by others ............................................................................................... 67 3) Sexual abuse by others .................................................................................................... 69 4) Financial abuse by others ............................................................................................. 71 5) Emotional abuse by others ........................................................................................... 72 Section 5) Protective factors and coping strategies ................................................................ 73 1) Protective factors .......................................................................................................... 73 2) Coping Strategies .......................................................................................................... 74 Section 6: Human rights based formulation: ........................................................................... 77 Section 7: Shared rights, risk and recovery plan...................................................................... 80 Appendix A ............................................................................................................................... 81 Box 1: The 16 Best Practice in Managing Risk Principles ..................................................... 81 4 Rights at risk staff manual amendments V1 7.2.15 Introduction A family of progressive approaches, inspired by service user movements, is leading a paradigm shift in mental health services. Recovery, rights, person-centred planning, Positive Behaviour Support and service user involvement are changing services for the better. However, the influence of these ideas is often missing from risk assessment and management. Service users often feel their perspectives are excluded from risk assessment and management (1, 2) and that risk processes are an obstacle to recovery (3). Although human rights principles inform the Care Quality Commission’s (4) evaluation of mental health services, and positive risk management advocates have created risk alliances between service users and staff (5, 6), there is little to practically guide the clinician who wants to adopt an empowering, relational and collaborative approach to risk. ‘Rights at risk’ is a practical toolkit for developing risk sharing alliances using a human rights based approach to risk. ‘Rights at risk’ maximises service user participation in the risk assessment and management process. ‘Rights at risk’ aims to balance the human rights of service users, their carers, and members of their communities; so risk can be managed more positively. Using a human rights based approach allows ‘Rights at risk’ to integrate complex legal and policy drivers, including the Mental Health Act, the Mental Capacity Act and recent government recommendations on using Positive Behaviour Support to reduce restraint and restrictive practice (7). The approach to risk outlined here has been adopted for a number of years in learning disability services through the ‘Keeping Me Safe and Well Risk Assessment’ (8). We are now applying our learning to mental health services. Bringing human rights to life in risk assessment is a work in progress, but one in which we hope this risk sharing plan and guide will be a significant milestone. 5 Rights at risk staff manual amendments V1 7.2.15 Quick Summary: • Rights rarely feature in planning and assessment around risk. • A rights based approach balances the human rights of service users, their carers, and members of their communities; so risk can be managed more positively. • The approach to risk outlined here has been adopted for a number of years in learning disability services. • This risk sharing plan and guide aims to help keep rights at the forefront of thinking about risk. References 1. Sheldon, K. (2011). Service User’s Experiences of Risk and Risk Management. In R. Whittington, & C. Logan, (Eds.) Self-harm and violence: Towards best practice in managing risk in mental health services (p. 11-34). London: Wiley. 2. Langan, J. & Lindow, V. (2004). Living with risk: Mental health service user involvement in risk assessment and management. Bristol: Policy Press. 3. Boardman, J. & Roberts, G. (2009). Risk, Safety and Recovery. ImRoc briefing paper. Retrieved from: http://www.centreformentalhealth.org.uk/pdfs/ImROC-Briefing-RiskSafety-and-Recovery.pdf. [Accessed 4 Jan 2015]. 4. Care Quality Commission. (2014). Human rights approach for our regulation of health and social care services. Retrieved from: http://www.cqc.org.uk/sites/default/files/20140925_our_human_rights_approach_final .pdf. [Accessed 4 Jan 2015]. 5. Department of Health. (2007). Best practice in managing risk: Principles and evidence for best practice in the assessment and management of risk to self and others in mental health services. London: Department of Health. 6. Whittington, R. & Logan, C. (2011). Self-Harm and Violence: Towards Best Practice in Managing Risk in Mental Health Services. London: Wiley. 7. Department of Health. (2014). Positive and proactive care: Reducing the need for restrictive interventions. London: The Stationary Office. 8. Lee, A., Kaur K., Cookson, A. & Greenhill, B. (2008). The Keeping Me Safe and Well Screen (KMSAW), 2nd edn. Equality & Human Rights Commission. Available from https://www.ewin.nhs.uk/resources/item/477/keeping-me-safe-and-well-kmsawscreen . [Accessed 27 February 2015]. 6 Rights at risk staff manual amendments V1 7.2.15 Who is this guide for? This guide is for use by appropriately qualified mental health professionals who want to create risk sharing alliances with service users. Appropriately qualified in this instance refers to any healthcare professional registered with the Health and Care Professions Council, Nursing and Midwifery Council, or General Medical Council and tasked with assessing clinical risk as part of their professional role. The use of this guide is not limited to any particular setting, for example inpatient or community. How to use this guide This staff manual provides professionals with background information about why human rights based approaches are integral to exploring risk issues. It then provides guidance on how to conduct a risk assessment jointly with a service user. The manual consists of three main sections. The first section, ‘Rights’, outlines the human rights background to the staff manual. The second section ‘Risk’, explains key concepts and best practice in risk assessment and management. The third section, the practical guidance, describes how to complete the ‘Rights at risk’ shared rights, risk and recovery plan before detailing questions, prompts and human rights involved in each of the risk areas. 7 Rights at risk staff manual amendments V1 7.2.15 Rights In this section we explain the basic ideas of a human rights based approach. We argue that a human rights approach to risk has a number of advantages. We describe the Human Rights Act (HRA) and the underlying principles and values it expresses. We also explain how the Human Rights Act fits with key legislation in mental health services such as the Mental Health Act and the Mental Capacity Act. Finally, we consider how human rights approaches can be seen as integral to Positive Behaviour Support. Why take a human rights based approach? There are many good reasons to adopt a human rights based approach to risk. Human rights based approaches can provide a robust and unifying framework for the disparate strands of policy and law which are relevant to risk assessment (1). In the UK, new legislation, including mental health law, must be compatible with the European Convention on Human Rights, unless a declaration of incompatibility is made. This is because of the Human Rights Act. Many of the policies in mental health services are informed by the human rights principles enshrined in the Human Rights Act. The statutory weight of human rights can strengthen person-centered approaches to risk, which are often the first casualty of competing agendas such as risk management or time and financial pressures (2). The legal duties on and regulation of the National Health Service (NHS) also suggest human rights should be included in risk processes. Under section 6 of the Human Rights Act, it is unlawful for a public authority, like the NHS, to act incompatibly with an ECHR right (unless required to do so by primary legislation). Under section 7, anyone whose rights have been violated can bring proceedings against the public authority. Public authorities not only have to refrain from breaching human rights (‘negative’ obligations) but also, in certain well-defined circumstances, have to take preventative steps to secure people’s human rights, even if the threat is from a private party and not the authority itself (‘positive’ obligations). This is because of the Human Rights Act. The health care regulator, the Care Quality Commission (CQC), views respecting diversity, promoting equality and ensuring human rights as a key means of securing quality services for service users and has developed a human rights approach to the regulation of care services (3). There is also an economic case for human rights based approaches. Human rights approaches emphasise a preventative, proactive, approach which is usually cheaper than more restrictive and invasive practice. For example, responding to a service user’s ‘behaviours which challenge’ at home in their local community with a positive behaviour support approach involving family and carers is far less expensive than removing the person to an ‘out of area’ placement, such as Winterbourne View, which can cost in the region of £180,000 per year (4). 8 Rights at risk staff manual amendments V1 7.2.15 Human rights and the law: Human rights in the UK can be defined in law at three levels; internationally, at European level, and within UK law. International and European human rights law Although other international human rights law is relevant to UK health care practices, for example the UN Convention on The Rights of Person with Disabilities, the most accessible and relevant for the UK context is the ECHR (5). The ECHR also has the greatest legal force, because of the Human Rights Act. The Human Rights Act The Human Rights Act (1998) incorporated into UK law most of the rights detailed in the ECHR and, as such, is the main legal source of human rights protection in the UK. Table 1: Articles of the European Convention on Human Rights (ECHR) The rights of the ECHR included in the Human Rights Act (1998) are: Article 2: The right to life Article 3: The right not to be tortured or treated in an inhuman or degrading way Article 4: The right to be free from slavery or forced labour Article 5: The right to liberty Article 6: The right to a fair trial Article 7: The right to no punishment without law Article 8: The right to respect for private and family life, home and correspondence Article 9: The right to freedom of thought, conscience and religion Article 10: The right to freedom of expression Article 11: The right to freedom of assembly and association Article 12: The right to marry and found a family Article 14: The right not to be discriminated against in relation to any of the rights contained in the ECHR. Article 1 Protocol 1: The right to peaceful enjoyment of possessions Article 2 Protocol 1: The right to education Article 3 Protocol 1: The right to free elections Protocol 6: Abolition of the death penalty Key rights listed in the Human Rights Act relevant to health and social care The human rights articles which are most often engaged in health and social care are discussed below. Article 2: The right to life Article 2 protects the right to life. It places both a negative duty on the state not to take life and a positive duty, in some circumstances, to actively protect life. An example of the positive duty to protect life might be where you aware of a person under your care who has expressed suicidal thoughts or behaviours, or somebody who is experiencing life threatening neglect or abuse. Article 2 also includes a duty to carry out an effective and independent investigation into a death in which the state is implicated. 9 Rights at risk staff manual amendments V1 7.2.15 Article 3: The right to be free from torture and inhuman or degrading treatment Treatment must cause serious harm to a person to be classed as inhuman or degrading. There is a negative duty on the state not to treat someone like this, and a positive duty to take action where this right might be at risk. There is also a duty to carry out an investigation into allegations that this right has been breached. Abuse, neglect, or poor treatment in a health and social care setting may place this right at risk. Article 5: The right to liberty Article 5 protects the right to liberty. This is not a right to be free to do whatever you want; it protects you against extreme restrictions being placed on your movement. This right can only be restricted in very specific circumstances as set out in Article 5, for example to keep someone safe, or to protect the rights of others. Any restrictions to someone’s right to liberty must comply with the safeguards, listed in Article 5. These safeguards form the basis of the Mental Health Act and the Mental Capacity Act. Article 8: The right to family life, private life, home and correspondence Family life: The right to develop ‘ordinary’ family relationships and the right to on-going contact when the family is split up. Private life: The right to psychological and physical integrity. This means having control over your own body and life. Consent and dignity are an important part of this right, including the right to participate in important decisions about care and treatment. Home: Respect for the home you already have, whether this is the house you own or another place you call home (e.g. a care home or hospital ward). Correspondence: Uninterrupted, uncensored communication with others. Article 8 (2) - Article 8 is a 'qualified' right. This means that the state can interfere in the right to respect for private and family life, home and correspondence, but only in certain circumstances. The interference must be for one of the legitimate reasons set out in Article 8 itself, there must be a law that allows the restriction, and the action must be necessary – that is, responding to a pressing social need - and proportionate to achieving this aim. Article 14: The right not to be discriminated against in relation to any of the rights contained in the ECHR This is not a stand-alone right not to be discriminated against. It is a right not to be discriminated against in relation to any of the other rights in the ECHR, unless the discrimination can be objectively and reasonably justified. This prohibition on discrimination is not restricted to specific grounds; the list is open-ended and so Article 14 can be used to challenge discrimination on a wide range of grounds. For example, somebody in hospital who is prevented from seeing their family because of mental health problems may argue that their right to family life is not being protected because they are being discriminated against as a person with a mental health problem. The FREDA principles The human rights listed in the Human Rights Act can be understood through the FREDA principles (5). The FREDA principles are not in and of themselves law, but are the values 10 Rights at risk staff manual amendments V1 7.2.15 which run through all human rights and are at the heart of high quality health and social care. The CQC use the FREDA principles as an accessible way of making rights meaningful (3). Box 1 outlines the FREDA Principles. Box 1: FREDA principles Value Fairness Respect Equality Dignity Autonomy Examples of human rights that reflect each of these values Right to fair trial Fairness is also protected by the 'procedural obligations' under the right to respect for family and private life, home and correspondence Right to respect for family and private life, home and correspondence Right not to be discriminated against in the enjoyment of other human rights Right not to be tortured or treated in an inhuman or degrading way Right to respect for family and private life, home and correspondence Right to respect for private life A human rights based approach ‘Human Rights in Healthcare’ (5) outlines a human rights based approach to service delivery. The human rights based approach is particularly useful for considering changes to or assessments of service delivery as it provides service standards and a guide to good processes. The principles underlying a human rights based approach have been called the ‘PANEL’ principles (6). Table two below outlines the PANEL principles, as defined by the British Institute of Human Rights (6). We have used the PANEL principles to guide the approach we take to risk assessment in the staff manual. Table 2: The PANEL Principles for applying a human rights based approach. Principle Participation Accountability Non-discrimination Empowerment Legality Definition Enabling meaningful participation of all key people and stakeholders Ensuring clear accountability, identifying who has legal duties and practical responsibility for a human rights approach Discrimination avoided, attention paid to groups made vulnerable Empowerment of staff and service users with knowledge, skills and commitment to realising human rights Expressly applying human rights laws, particularly the Human Rights Act The Mental Health Act and the Mental Capacity Act The Mental Capacity Act (2005) and Mental Health Act (1983, amended 2007) are strongly informed by the Human Rights Act. 11 Rights at risk staff manual amendments V1 7.2.15 Mental Health Act The revised code of practice for the Mental Health Act (7) draws on the ECHR rights listed in the Human Rights Act for its guiding principles. The guiding principles (table three below) are highly congruent with the values of the Human Rights Act. The revised code of practice contains adapted statutory guidance including a chapter on human rights, equality and health inequalities. The Mental Health Act outlines the duty to comply with the Human Rights Act and to ensure the human rights of all service users are safeguarded. Table 3: Description of Guiding Principles of the Mental Health Act Principle of the Mental Health Description Act Least restrictive option and Where it is possible to treat a service user safely and maximising independence lawfully without detaining them under the Act, the service user should not be detained. Wherever possible, a service user’s independence should be encouraged and supported with a focus on promoting recovery wherever possible. Empowerment and Service users should be fully involved in decisions about involvement care, support and treatment. The views of families, carers and others, if appropriate, should be fully considered when taking decisions. Where decisions are taken which are contradictory to views expressed, professionals should explain the reasons for this. Respect and dignity Service users, their families and carers should be treated with respect and dignity and listened to by professionals. Purpose and effectiveness Decisions about care and treatment should be appropriate to the service user, with clear therapeutic aims, promote recovery and should be performed to current national guidelines and/or current, available best practice guidelines. Efficiency and equity Providers, commissioners and other relevant organisations should work together to ensure that the quality of commissioning and provision of mental healthcare services are of high quality and are given equal priority to physical health and social care services. All relevant services should work together to facilitate timely, safe and supportive discharge from detention. The Mental Capacity Act The Mental Capacity Act (2005) provides a framework for decision-making involving people who have not got the mental capacity to make their own decisions. The Mental Capacity Act is designed to be fully compliant with the Human Rights Act. The Mental Capacity Act takes a similar approach to the Mental Health Act (1983) in outlining five guiding principles (table four) to guide clinicians (8). 12 Rights at risk staff manual amendments V1 7.2.15 Table 4: Guiding Principles of the Mental Capacity Act Principle of the Mental Capacity Act A presumption of capacity Description Every adult (aged over 16) has the right to make his or her own decisions and must be assumed to have capacity to do so unless it is proved otherwise in respect of each specific decision. Individuals must be supported to make A person must be given all practicable help their own decisions: before any anyone treats them as not being able to make their own decisions. Unwise decisions Just because an individual makes a decision others may consider to be unwise, they should not be treated as lacking capacity to make that decision Best interests An act done or decision made under the Act for or on behalf of a person who lacks capacity must be done in that person’s best interests Least restrictive option A person doing anything for or on behalf of a person who lacks capacity should consider options that are less restrictive of their basic rights and freedoms while meeting the identified need. (Sourced from NHS England, 2014) Deprivation of Liberty Safeguards (DoLS) Following the findings of the ‘Bournewood judgement’ (9,10), the Mental Capacity Act was amended in 2009 to include the DoLS. In the ‘Bournewood judgement’ a man was judged to have been unlawfully deprived of his liberty in breach of article 5 of the ECHR when he had been informally admitted to a psychiatric hospital without being able to give consent. These amendments created procedures to ensure the Mental Capacity Act is observed when adults are being, or are potentially being, deprived of their liberty in care homes or hospitals. Again, the DoLs resonate strongly with the rights protected by the Human Rights Act. Human rights and Positive Behaviour Support Positive Behaviour Support is an approach which “blends values about the rights of people…with a practical science about how learning and behaviour change occur” (11, p. 97). As such it fits well with a human rights based approach (12). Positive Behaviour Support is a technique for supporting and managing a person’s behaviour in the long-term (13). Positive Behaviour Support focuses on understanding why people may express their feelings through difficult or ‘challenging’ behaviour. It tries to understand and address the underlying issues for a person to prevent their behaviours that challenge us. 13 Rights at risk staff manual amendments V1 7.2.15 Positive Behaviour Support uses positive, person-centred methods to reinforce and teach the person new behaviours and to improve the person’s quality of life. Box 4 outlines the principles of Positive Behaviour Support. The PANEL framework is used in the ‘Positive and Proactive’ guidance on how to use Positive behaviour support to help reduce restrictive practice (14). ‘Positive and Proactive’ states that management plans should be a collaboratively developed between service-users, their carers and services. They should also acknowledge service user’s strengths and embed a positive risk management approach within the culture of services. Box 4: The principles of Positive Behaviour Support (13) Positive Behaviour Support is about: • A person-centred and value led approach. • Behaviour as having meaning. • The understanding of behaviour in leading to change. • Predicting behaviour in reducing its likelihood. • Focusing on the elimination of problems by helping to establish new behaviours or skills; or by re-establishing those which have been lost or distorted. • Improvements to quality of life Box 5 below is a re-production of how the PANEL principles apply to Positive Behaviour Support as explained in ‘Positive and Proactive’. 14 Rights at risk staff manual amendments V1 7.2.15 Box 5: Application of the PANEL principles to Positive Behaviour Support References 1. Greenhill, B. & Whitehead, R. (2011). Promoting Service User Inclusion in Risk Assessment and Management: A Pilot Project Developing a human rights based approach. British Journal of Learning Disabilities, 39 (4), 277–83. 2. Mansell, J. & Beadle-Brown, J. (2005). Historical Overview and a critical appraisal of Person-Centred Planning. In: Cambridge P, Carnaby S. (Eds). Person Centred Planning and Care Management for People with Learning Disabilities. London: Jessica Kingsley. 3. Care Quality Commission. (2014). Human rights approach for our regulation of health and social care services. Retrieved from: [http://www.cqc.org.uk/sites/default/files/20140925_our_human_rights_approach_fina l.pdf]. [Accessed 6 Jan 2015]. 4. Department of Health. (2012). Transforming care: A national response to Winterbourne View hospital. Department of health review: Final report. London: The Stationary Office. Retrieved from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/21321 5/final-report.pdf. [Accessed 28 February 2015]. 5. Equality and human rights group. (2008). Human rights in healthcare: A framework for local action (2nd Edition). London: Department of Health. Retrieved from: http://webarchive.nationalarchives.gov.uk/20130107105354/http://www.dh.gov.uk/pr od_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_088972 .pdf. . [Accessed 6 Jan 2015]. 15 Rights at risk staff manual amendments V1 7.2.15 6. British Institute of Human Rights. (2013). The difference it makes: Putting human rights at the heart of health and social care. Retrieved from: www.bihr.org.uk. [Accessed 25 January 2014]. 7. Department of Health. (2015). Mental Health Act 1983: Code of practice. London: Department of Health. Retrieved from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/39691 8/Code_of_Practice.pdf. [Accessed 1 May 2015]. 8. NHS England. (2014). Mental Capacity Act 2005: A guide for clinical commissioning groups and other commissioners of healthcare services on commissioning for compliance. London: NHS England. [Retrieved from http://www.england.nhs.uk/wpcontent/uploads/2014/09/guide-for-clinical-commissioning.pdf. 9. R (L) v Bournewood Community and Mental Health NHS Trust (1998) UKHL 24 10. HL v UK 45508/99 (2004) ECHR 471 11. Horner, R.H. (2000). Positive behaviour supports. Focus on Autism and Other Developmental Disabilities, 15 (2): 97–105. 12. Bailey, S., Ridley, J., Greenhill, B. (2010) Challenging behaviour: A human rights based approach. Advances in Mental Health and Intellectual Disabilities, 4 (2), p. 20-26. 13. Allen, D., James, W., Evans, J., Hawkins, S. & Jenkins, R. (2005). ‘Positive Behaviour Support: Definition, current status and future directions’, Tizard Learning Disability Review, 10 (2), 4–11. 14. Department of Health. (2014). Positive and Proactive Care: Reducing the need for restrictive interventions. London: The Stationary Office. 16 Rights at risk staff manual amendments V1 7.2.15 Risk In this section, we explore the role of risk assessment and management in mental health services. We discuss existing approaches towards risk assessment and consider the influence of static and dynamic risk factors. We explain how positive risk management is part of developing risk sharing alliances. We outline the key features of positive risk management, the importance of protective factors, coping strategies and discuss risk formulation. Finally, we place risk assessment in the context of the Care Programme Approach. Risk in mental health services Mental health difficulties and risk have a complex relationship. Stigma and stereotypes can create a focus on how mental health issues ‘cause’ people to pose risks to themselves or others. However, people with mental health difficulties may often be more vulnerable to harm from, rather than to, others (1). In recognition of this complexity, a core function of mental health services has been to minimise harm to service-users and others and more recently, to promote recovery. Consequently, risk assessment and risk management have been routinely embedded in the practice of mental health services. Mental health practitioners and their employers face the uncertainties associated with risk assessment and management on a daily basis; the ‘duty of care’ and ‘dignity of risk’ must be carefully balanced. Managing this tension can create anxiety and stress. For some practitioners, this may translate into risk avoidance and a defensive risk practice which focuses on protecting the practitioner and the organisation. Service users have considered defensive risk management to be a consequence of the blame culture within the NHS (1). Staff reported that helpful factors in positive risk management included developing a good relationship with the service-user and acknowledging their strengths with consideration of the context in which risks arise (1). Overly restrictive practice may violate the service user’s human rights, limit their opportunities for recovery and creates negative experiences of mental health services. Existing approaches to risk assessment: Static and dynamic risk Risk assessments are used to make predictions about a person’s behaviour about ‘risk’ factors, usually based on historical incidents of risk behaviour (2). Many risk assessments focus on unchangeable, statistical risk factors, known as ‘static risks’ (3). Static risks include gender, religious beliefs, sexuality and historical incidents of risk. These risk factors will not change depending on other mediating variables; for example, fluctuations in mental health (4). Static risk assessments can reinforce explicit and implicit attitudes towards individuals with mental health problems or towards particular minority groups. This has obvious human rights implications. For example, exploring a young Black and Minority Ethnic (BME) male service user’s risk of violence without considering any situational factors (i.e. environment) may reinforce the beliefs about young BME men as a group (4). Risk assessments which focus only on static risk predictors can create the illusion that the risk is chronic and 17 Rights at risk staff manual amendments V1 7.2.15 irreversible (4). Overemphasising risk factors can lead professionals to hold negative beliefs about the person and result in stigmatisation (4). Although it is important to be aware of static risk factors, the narrow focus of many risk assessments can underestimate the importance of protective factors, coping strategies and mediating and moderating effects in managing risk (5). Collaboratively exploring protective factors can enable practitioners and service users to manage risk in a way that is least restrictive and proportionate to the risk posed, in keeping with a human rights based approach. For example, a good relationship with a close friend could decrease the likelihood of a person hurting themselves or others. A balanced consideration of risk factors and mediating protective factors can benefit both the individual and the professional (6). A dynamic approach involves acknowledging the interactive process between the professional, the service user and their interpretations of the world around them. Dynamic risk factors are factors which change over time, for example use of alcohol or drugs (7). Dynamic risk factors can be aspects of the individual or factors relating to their environment or social context. For example, if a person does not want to engage with mental health services they may build trust in professionals over time, this means this risk will change and become easier to manage. Some dynamic risk factors may be a stable feature of somebody’s life which change slowly over time i.e. use of alcohol. A collaborative approach to risk assessment helps practitioners consider dynamic risk factors and develop awareness of how best to support service users during risky situations. Best practice in managing risk ‘Best practice in managing risk’ (8) advocates risk sharing partnerships, and promotes many of the same values which inform the Human Rights Act. Risk assessment and management are viewed as the joint responsibility of health professionals, the service-user, their carers and any other agencies involved. Best practice is believed to be founded upon a collaborative, therapeutic relationship which respects the views of service users and those involved in the service user’s care. The guidance recognises that risk factors are dynamic and relational; an interaction between individuals, situations and environments. Risk formulation is believed to explain the contexts in which risks become triggered and can subsequently inform risk management. The guidance advocates risk management plans based on positive risk management principles and which recognise the service user’s strengths and protective factors. Appendix A contains a reproduction of the sixteen best practice principles outlined in the guidance. Each of the domains outlined in ‘Best practice in managing risk’ will now be discussed in turn; positive risk management, risk sharing partnerships, risk formulation, protective factors and coping strategies. 18 Rights at risk staff manual amendments V1 7.2.15 Positive Risk Management Positive risk management “emphasises the positive aspects of what can be achieved through risk management rather than simply the avoidance of undesirable consequences” (9, p. 206) and fits well with the philosophy of human rights based approaches. Risks are encountered on a daily basis in all of our lives. It is therefore unreasonable and undesirable to expect mental health practitioners to eliminate all risks posed to service users and so care plans will inevitably carry a degree of risk. Providing that clinical judgement is informed by relevant guidelines, based on the best information available at the time, is clearly documented and communicated, this will be deemed the best decision at the time regardless of outcome (8). Box 2 reproduces the principles of positive risk management (8). Box 2: What is positive risk management? Positive risk management includes: working with the service user to identify what is likely to work; paying attention to the views of carers and others around the service user when deciding a plan of action; weighing up the potential benefits and harms of choosing one action over another; being willing to take a decision that involves an element of risk because the potential positive benefits outweigh the risk; being clear to all involved about the potential benefits and the potential risks; developing plans and actions that support the positive potentials and priorities stated by the service user, and minimise the risks to the service user or others; ensuring that the service user, carer and others who might be affected are fully informed of the decision, the reasons for it and the associated plans; and using available resources and support to achieve a balance between a focus on achieving the desired outcomes and minimising the potential harmful outcome. 19 Rights at risk staff manual amendments V1 7.2.15 Risk sharing partnerships The principles of positive risk management, the recovery movement, and of a human rights based approach suggest risk sharing partnerships or alliances in which risk is not ‘done to’ a person but is explored collaboratively. Therefore, the therapeutic relationship is often at the heart of effective risk assessment and management. In risk alliances, service users and their carers are empowered to accept responsibility for their risks, well-being and recovery, as far as possible. In the spirit of this approach it is important that all parties are open and honest about the risks which are posed to and by the service-user. A collaborative approach may involve negotiating disagreements, but this can provide additional clinical information rather than being seen as problematic if it is openly discussed and clearly recorded. If disagreement does arise, advocacy services can play an important role. Full engagement is not always possible and the timing engagement within the process can be key. Collaboration with the service user should always be considered but if not possible alternatives may be considered, such as collaborating with family members, advocates or chosen support staff until it is possible to involve the service user more explicitly. Risk formulation Risk formulation “is a way of making sense of the person’s behaviour and of drawing together all the information in a manageable format” (11, p. 225). Risk formulation bridges the gap from risk assessment to developing a risk management plan, guided by an understanding of the service user and the context of risk. Consequently, risk formulation is a vital process in risk management and contributes to developing person-centred management plans which have the best chance at minimising risk and contributing towards achieving positive outcomes. Risk formulation provides a framework showing how and why identified risks may present again in the future. It also provides hypotheses about which management strategies may prevent this from occurring. Collaboration with the service user and their support networks is also vital throughout this process. As such, risk formulation adheres to the principles of accountability; empowerment and participation which are part of the human rights based approach (see chapter 2). Box 3 outlines the factors which should be considered in developing a formulation. Box 3: Factors to be considered in risk formulations Risk formulations should consider: Predisposing factors: These are historical factors which contribute to the service user’s risk. Precipitating factors: These are immediate factors or events which have contributed to the present risk. Perpetuating factors: These are factors which maintain the risk. Protective factors: These are factors which contribute to a reduction in risk or prevent escalation in risks. 20 Rights at risk staff manual amendments V1 7.2.15 Protective factors and coping strategies Protective factors are those which alleviate or prevent an escalation in risk and should be included within a risk formulation. Recognising the service user’s protective factors, strengths and current coping strategies facilitates a balanced approach towards risk assessment and management. Focussing on protective factors and coping strategies fits with a human rights based approach through communicating hope and empowering service users to recover (7). This focus also contributes to establishing a shared risk alliance with the service user through outlining how they are mitigating identified risks and contributing to the risk management strategy, thus promoting responsibility and ownership of risk (9). Care programme approach to risk assessment The Care Programme Approach (CPA; 11) offers secondary mental health services a framework to co-ordinate service user’s care. CPA views risk assessment and management as part of a holistic assessment to meet the complex needs of service users. CPA includes supporting the service user to: maintain diverse roles, meet their individual needs to work towards recovery and wellbeing, ensure that care is personalised and that service-user and carer involvement is facilitated via a trusting therapeutic relationship (11). The refocused CPA makes clearer links with risk management, emphasising that risk assessment, crisis, contingency and risk management are integral to the CPA process and refers to the best practice guidance set out by the Department of Health (2007) to underpin clinical practice (8). The principles of positive risk management, risk sharing partnerships, risk formulation, protective factors and coping strategies are not separate to the CPA but are integral to the objectives of the CPA, and therefore reflect the values of the human rights based approach (see chapter 2). 21 Rights at risk staff manual amendments V1 7.2.15 Quick Summary: • Risk assessment and management is a core responsibility in mental health services. • Risk assessments traditionally focus on statistical risk factors known as ‘static risks’ which do not change. • Whilst it is important to be aware of static risk factors, focussing too much on these ignores scope to change and dynamic risk factors. • • Dynamic risk factors are factors which can change over time. • Collaborative consideration of both static and dynamic risk factors can inform management plans to minimise risk whilst also working towards service users aspirations for recovery. • ‘Best practice in managing risk’ guidelines emphasise the importance of risk sharing partnerships and understanding the context in which risk occurs • ‘Best practice in managing risk’ guidelines state risk management plans should use positive risk management principles and recognise service users’ strengths. • Developing risk sharing partnerships during the risk assessment and management process can empower service users and carers to accept responsibility of their risks, wellbeing and recovery. • Risk formulation aids understanding of a person’s risks and can offer an explanation why they may occur again. This can help guide a personcentred risk management plan to minimise risks and promote positive outcomes. • Positive risk management aims to balance the risks involved in choosing one management strategy over another in order to ensure that risks are minimised but are also aligned with service user’s goals and recovery. • Service user’s protective factors and coping strategies should be considered in the risk assessment and management process because it offers useful insight into what service users can contribute to the risk management plan. • The care programme approach (CPA) is adopted nationally and views risk assessment and management as part of a holistic assessment. • Positive risk management, risk sharing partnerships, risk formulation, and protective factors and coping strategies are an integral process of the CPA. Collaboratively exploring dynamic risk factors with service users will facilitate consideration of factors which make risk more or less likely. 22 Rights at risk staff manual amendments V1 7.2.15 References 1. Langan, J., & Lindow, V. (2004). Living with risk: Mental health service user involvement in risk assessment and management. Bristol: Policy Press. 2. McDermott, B., Edens, J., Quanbeck, C., Busse, D., Scott, C. (2008). Examining the role of static and dynamic risk factors in the prediction of inpatient violence: Variable and person focused analyses. Law and Human Behaviour, 32 (4), 325-38. 3. Thornton, D. (2002). Constructing and Testing a Framework for Dynamic Risk Assessment. Sexual Abuse, 14 (2), 139-53. 4. Rogers, R. (2000). The Uncritical Acceptance of Risk Assessment in Forensic Practice. Law and Human Behaviour, 24 (5), 595- 605. 5. Heilbrun, K., Philipson, J., Berman, L. & Warren, J. (1999). Risk communication: Clinicians' reported approaches and perceived values. Journal of the American Academy of Psychiatry and the Law, 27 (3), 397–406. 6. Lauritsen, J., Sampson, R. & Laub, J. (1991). Link between offending and victimization among adolescents. Criminology, 29 (2), 265-291. 7. Sullivan, G., Wells, K.B., Morgenstern, H., Leake, B. (1995). Identifying modifiable risk factors for rehospitalisation: A case-control study of seriously mentally ill persons in Mississippi. American Journal of Psychiatry, 152 (12), 1749-56. 8. Department of Health. (2007). Best practice in managing risk: Principles and evidence for best practice in the assessment and management of risk to self and others in mental health services. London: Department of Health. 9. Clifford, P. (2011). Evidence and principles for positive risk management. In: R. Whittington & C., Logan. (Eds.). Self-Harm and Violence: Towards Best Practice in Managing Risk in Mental Health Services, 205–14. London: Wiley. 10. Whitehead, R., Carney, G., & Greenhill, B. (2011). Encouraging positive risk management: Supporting decisions by people with learning disabilities using a human rights-based approach. In: R. Whittington & C., Logan. (Eds.). Self-Harm and Violence: Towards Best Practice in Managing Risk in Mental Health Services, p. 215– 36. London: Wiley. 11. Department of Health. (2008). Refocusing the care programme approach: Policy and positive practice guidance. London: Department of Health. 23 Rights at risk staff manual amendments V1 7.2.15 How to complete the Rights at risk: Shared rights, risk and recovery plan In this section, we present a summary of the common features of the approaches described so far. We also provide guidance on the process of completing the shared rights, risk and recovery plan including risk assessment, a human rights based formulation and on constructing a risk management plan. Integrating Rights and Risk This manual has explored a number of policies and laws which are relevant to risk assessment and management. Many shared principles and concepts link recovery, the Mental Health Act, the Mental Capacity Act, positive risk management, Positive Behaviour Support and human rights. Appendix B contains a detailed mapping of those principles and concepts. These can be distilled into few central principles; Including service users in the risk assessment and management processes Advocating least restrictive and proportionate practice Valuing service user’s coping strategies, strengths and other resources Maximising capacity and autonomous decision making Considering diversity and the impact of stigma Making risk assessment accessible Being explicit about human rights Balancing the human rights of the service user, their carers, their staff and their community. Appendix C provides information about the development of the shared rights, risk and recovery plan. 24 Rights at risk staff manual amendments V1 7.2.15 Guidance notes This step-by-step staff risk assessment manual is accompanied by a shared information booklet for use with the service user. You can find the form for recording your risk assessment at the end of the shared information booklet. This form includes a: Record form Human rights formulation For each item in the risk assessment manual there is a corresponding section in the recording form. Assessors should not be constrained by the space available or feel they have to fill it all. However, there should not be any blank spaces in the final assessment document. Assessments and plans should be written in plain English, using the language of the service user where possible and appropriate. Facilitating Service User Involvement How much involvement should the service user have? A human rights based approach to risk means ensuring service users are as involved as they can possibly be in their own risk assessment process. Whether the service user participates fully or contributes to a small aspect of their risk assessment, some involvement will almost always be possible. However, we recognise that when someone with a mental health need first accesses our service, they might not be able to take part in every aspect of their risk assessment process. Their ability to engage might be affected in different ways. Who should complete the risk assessment? Speaking to the service user to find out who they would like to be involved in their risk assessment is essential. They may want to complete the screen with their health worker. They may also want, or indeed choose not to have, input from family members, advocacy services or chosen support staff. Is a person able to become actively involved? A number of elements may be helpful in considering how best to involve the service user in their ‘Rights at risk’ assessment. These may include thinking about the person’s: • Psychological state (e.g. is depression, anxiety or active psychosis preventing the person from engaging with the assessment?) • Attention span (e.g. how long can the person concentrate for?) • Engagement (e.g. will the person engage with the assessment?) • Insight (e.g. if the person has problems with physical violence, do they realise they could be causing risk to themselves or others?) • Remorse (e.g. if the person has hurt somebody, do they say sorry and mean it?) • Suggestibility (e.g. is the person able to say ‘no’ and expect this to be heard or do they feel as though they have to agree and say ‘yes’?) Timing can be key when considering at what level the service user can participate in the ’Rights at risk’ assessment and requires good clinical judgement about what the service user can tolerate. Where full participation is not possible, the practitioner would be 25 Rights at risk staff manual amendments V1 7.2.15 expected to work through the ‘Rights at risk’ assessment on the service user’s behalf with the help of family members, the person’s advocate or chosen support staff. A ‘service user consultant’, or ‘expert by experience’, could become involved if the person is unable to participate. The continuum below (figure one) shows the journey a service user may go on in relation to their ‘Rights at risk’ assessment. The ‘gold standard’ is for the service user to lead and be fully involved with the whole process. Although this is the aim, the level of inclusion may move back and forth along the continuum depending on the presentation of the service user at any given time and their level of involvement should be regularly reviewed. Figure 1: Inclusion continuum Information gathering It is vital to consult all possible sources of information that may be useful. Where possible, sources should be cross-referenced to provide corroboration of particular critical events. Assessors should also reference where they obtained the information, including the date that applies to each particular source (e.g. “CPA report, October 2013”). The reliability and comprehensiveness of the information obtained should be considered. Where caution needs to be exercised in interpreting data this should be clearly stated. The following, although not an exhaustive list, may provide a useful checklist of sources of information: Interviewing the service user Family members/ partners Carers/ friends Previous/ current care staff 26 Rights at risk staff manual amendments V1 7.2.15 Psychiatric reports/ clinical records Probation services Police services Court reports and depositions 27 Rights at risk staff manual amendments V1 7.2.15 Assessing risk: Likelihood and Severity When assessing risk, consideration of the likelihood of risk occurring and also the severity of the consequences should be made. Likelihood When considering likelihood, only take into account the next 6 months. You should look at events over the last 6 months to make an estimate of likelihood over the next 6 months. The scoring for likelihood is as follows: 1. Unlikely It is unlikely that the risk will happen in the next 6 months. 2. Up to 50% chance There is up to 50% chance that the risk will occur in the next 6 months. 3. More than 50% chance There is more than a 50% chance of the risk occurring in the next 6 months. Severity When considering severity the scoring is as follows:1. Minor The risks that the client or others are exposed to are no greater than for the general population. Where any harm that results (physical or psychological), it would not require professional support (e.g. medical, clinical, on-call etc.). 2. Serious Physical injury to the client or others which would require medical attention (e.g. GP) Psychological trauma which impinges on the clients or others quality of life and sense of well-being, and would require professional support. Behaviour which may lead to breakdown of current place of residence/ placement. 3. Major Physical injury to the client or others which would require their admission to hospital (including death). Psychological trauma to the client or others which would require their admission to hospital. Behaviour which would result in criminal prosecution and imprisonment or sectioning under the Mental Health Act. 28 Rights at risk staff manual amendments V1 7.2.15 Service users are also asked to rate what they believe the risk is. The scoring system for service users is: “This does not concern me” “This concerns me somewhat” “This is a big concern for me”. Scoring The total score is obtained by multiplying the likelihood score by the severity score, e.g. 2 x 2 = 4. The scores correspond to service user’s rating as follows: A score of 1 or 2 equates to “This does not concern me” A score of 3 or 4 equates to “This concerns me somewhat” A score of 6 and 9 equates to “This is a big concern for me”. Example: For somebody who has offended with children in the past, but who is now in a closely supervised package of support, the likelihood of the risk happening might be low (a score of 1), but the severity of the risk if it were to occur would be major (a score of 3). Therefore, the combined risk would be 3, or “This concerns me somewhat”. When is a risk management plan needed? If a service user scores more than 4 on a risk area, a more detailed risk management plan may be needed for the identified risk. Your clinical discretion and knowledge may sometimes inform a decision to develop a management plan where lower levels of risk have been identified. You may choose to complete a human rights based formulation to understand the context of the risk and to help produce the shared rights, risk and recovery plan. Both of these can be found at the back of the shared information booklet. 29 Rights at risk staff manual amendments V1 7.2.15 Completing the risk assessment Explaining risk, rights and the scoring system Please turn to the “Explaining risk, rights and the scoring system” section in the shared information booklet. Talk through each of the sections using the shared information booklet: What is a risk? What is this plan about? What are human rights? What is the scoring system? What will staff look for? This will give the service user the opportunity to ask any questions and to fully understand what the assessment is about. Identifying Human Rights issues The human rights which may be relevant to each area of risk are listed under each risk section. The human rights are listed in order of relevance. Not every right mentioned will necessarily be relevant but, if listed, should be considered for the person you are working with and the situation they are describing. The human rights issues have been identified by taking into account case law, relevant literature and have been reviewed by the British Institute of Human Rights and the Equality and Human Rights Commission. 30 Rights at risk staff manual amendments V1 7.2.15 Recording and worked example Each question in the risk assessment asks you to work with the person to rate their risk using the scoring system. The manual lists the human rights that could be affected for each area of risk. Both you and the service user are then asked to consider if any of the human rights listed have been engaged. If a significant risk is recognised the assessor must record which human rights may be engaged (see figure two). Figure two provides an example of how to fill in the record form. It demonstrates how to reference the human rights that have been engaged following the recognition of a significant risk. Figure 2: Example of question on record sheet Self-harm Please include details of identified risk “Jack has hurt himself by cutting his arm with a razor blade on numerous occasions over the last 6 months when he has been upset. This has resulted in Jack going to A&E on numerous occasions” Likelihood Please score here on the likelihood it will happen again 1 - 3 3 Severity Please score here on the severity of consequences 3 Total Please multiply the likelihood score by the severity score 9 Service user rating Please indicate level of risk by circling the relevant score “This does not concern me” “This concerns me somewhat” “This is a big concern for me”. Human rights implication(s Please indicate which human rights are at risk of being infringed using the Article number(s). (Human rights articles are listed below each question). “2, 3, 8” In this example Jack’s self-harm has posed a significant risk for him within the last six months. He scored 3 for the likelihood that he would have to attend A&E again and a score of 3 for the severity of consequences. 31 Rights at risk staff manual amendments V1 7.2.15 Multiplying the likelihood and severity together gave Jack a total score of 9 for self-harm. Using the human rights which were already listed in the document, both the assessor and Jack were able to identify that the following human rights may be engaged: Right to life (Article 2), freedom from inhuman or degrading treatment (Article 3) and right to respect for private and family life (Article 8). 32 Rights at risk staff manual amendments V1 7.2.15 Risks Areas: Questions, prompts and human rights involved Section 1: Advanced Statement Rationale: Advanced statements are documents written when you are feeling well, to help other people to respect your wishes when you are in crisis. You can let people know how, by whom and in what way you would like to be supported. You can say if there are medications you prefer to take, for example, because they have fewer side effects. You can also tell people things you do not want to happen or people you do not want to be involved. Advanced statements are not necessarily legally binding but the people involved in your care should normally follow them. Prompt questions: Advanced statement ICON Do you have an advanced statement? Would you like to have an advanced statement? What are the important things in your advanced statement which could help to keep you safe and well? How could your advanced statement help us think about your coping strategies or the things which help you to feel and stay safe? Human rights which may be engaged: Article 8: Right to respect for family and private life: Working in a collaborative way to help implement a person’s advance statement is likely to help protect and respect service user’s human rights, in particular their right to respect for private and family life. This way of working treats service users with respect and dignity and values their autonomy through asking about their choices and working with them to make these choices a reality where possible. 33 Rights at risk staff manual amendments V1 7.2.15 Section 2: Risks to self Please turn to ‘Section 2: Risks to self’ in the shared information booklet This section focuses on the risks to the service user. 1) Physical health Rationale: Routinely asking about a Service User’s physical health issues can help to provide them with a holistic package of care and can meet national agendas set up to improve the physical health of service users with mental health difficulties. People with severe mental health difficulties are more likely to experience physical health problems and may live for twenty years less than people without the same difficulties (1). Commissioning for Quality and Innovation (CQUIN) is a payment framework which aims to improve outcomes in healthcare. CQUIN targets require consideration of physical health difficulties e.g. likelihood of cardiovascular disease by exploration of known risk factors. Physical health issues can also affect psychological wellbeing. Prompt questions: Do you any health problems? Do you have diabetes or epilepsy? Do you have a GP and how frequently do you attend? When was your last physical health check? Do you have physical health problems or pain? Are you on any medication for your physical health? Do you smoke? Would you like to stop? Do you exercise regularly? Do you have a healthy diet? Do you have a history of health issues? PHYSICAL HEALTH ICON 34 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life – An untreated physical health problem could have an impact on the person’s physical and psychological well-being. Is the person supported to make informed choices around medical treatment (e.g. attending the doctors)? Being able to participate in decisions that affect your health and wellbeing is an important part of Article 8. Does the person have access to appropriate health care services? Are reasonable adjustments made for their mental health difficulties in accessing health care? health medication if it is not in their possession e.g. if somebody needs their inhaler or insulin, are there enough staff to ensure the person has access to it as needed? If not, in some situations this could risk the right to life. FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with fairness, respect, equality, dignity, and autonomy in relation to their physical health? Article 14: Freedom from discrimination in relation to other human rights – eg, has the person been denied informed choices in treatment for physical health on the grounds of their mental health difficulties or disability? Article 3: Right to be free from inhuman or degrading treatment- e.g. Are facilities available to avoid treating people with physical health needs (eg wheelchair users) in a degrading way? In serious cases of degrading treatment, this could be a breach of Article 3. If the person is detained under MCA (DOLs) or MHA, are they getting the medical treatment that they need? If a failure to provide treatment to someone deprived of their liberty leads to serious harm, this could be a breach of Article 3. Article 2: Right to life Is the person supported to access medical checks and clinics? In extreme cases, lack of support with healthcare could lead to a fatality. Does the person have access to their physical health medication? If necessary, are enough staff available to ensure that the person is able to access their physical 35 Rights at risk staff manual amendments V1 7.2.15 2) Taking medication Rationale: Medication can sometimes help people stay well. Sometimes not taking medication can contribute to a relapse. Equally taking medication can cause side effects, which may not only affect wellbeing but may also contribute to non-concordance. Prompt questions: How do you feel about any medication you take? Do you always take your medication? Do you forget to take your medication? Do you take more medication than you need to? Do you experience any side effects from your medication? Do you feel that taking your medication is helping you? Has this been an issue in the past? Taking medication icon ______________________________________________ 36 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life – Is information about the person’s medication shared only on a ‘need-to-know’ basis? Does the person have any input into decisions about their medication? (Do they have capacity?) Is the person responsible for administering their own medication? Is the person given respect and privacy while taking their medication? Are they given information about their medication and any side effects? Is medication used as a form of restraint for the person? Article 2: Right to life – e.g. Does the person have access to any regular medication (e.g. is diabetes or epilepsy medication taken at the correct time with the correct doses etc.). In extreme cases, lack of support with medication could lead to a fatality. Are the relevant agencies taking steps to provide any support that is necessary? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with fairness, respect, equality, dignity, and autonomy in relation to their medication? e.g. are they able to take it in private? 37 Rights at risk staff manual amendments V1 7.2.15 3) Mental Health and Wellbeing Rationale: Poor mental health is the largest cause of disability in the UK (1). It can affect every aspect of a person’s life including their physical health, relationships, work and education. It is also a known risk factor for suicide (2). The government’s mental health strategy, ‘No Health without Mental Health’ (3), states that mental health is equally as important as physical health and those with mental health difficulties should be supported to get the care they need to improve their quality of life. Prompt questions: How would you describe your mood? Mental health Have you felt low or anxious recently? icon Have you been feeling irritated or angry? Have you heard voices or seen things which other people cannot recently? Have you felt suspicious of others recently? Have you had any difficulty sleeping? Have you been isolating yourself from others? Have people been discriminating against you because of your mental health? Have you experienced difficulties with your mental health in the past? 38 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be problems? This includes treatment by staff, family and others. Article 5: Right to liberty and security- e.g. is the person able to leave when they want? If they are not free to leave, this is a deprivation of liberty and can only be done lawfully under the MHA or MCA, If the person is sectioned under the MHA, have the right procedures been followed and have they been given information about why they are sectioned, and are regular reviews being carried out by the Mental Health Tribunal? If the person lacks mental capacity and is not free to leave the hospital or care home where they live, is there a DOLs in place? Article 8: Right to respect for private and family life – This risk has clear implications for the person’s psychological wellbeing. Is the person using ‘behaviours which challenge’ to communicate their distress? If they do, is any physical restraint used in response, proportionate, necessary and part of a Positive Behaviour Support plan? Article 3: Right to be free from inhuman or degrading treatment - If the person is detained under MCA (DOLs) or MHA, are they getting the medical treatment that they need? If a failure to provide treatment to someone deprived of their liberty leads to serious harm, this could be a breach of Article 3. Article 14: Protection against discrimination in relation to other human rights – e.g. does the person lack informed choice on appropriate healthcare services because of their mental health difficulties? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with respect and dignity in relation to their mental health 39 Rights at risk staff manual amendments V1 7.2.15 4) Self-neglect (not looking after myself) Rationale: Self-neglect can be due to mental health difficulties, brain injury or dementia. Factors which can contribute to self-neglect occurring include: physical abilities, poor motivation or attention and low energy levels. In extreme cases, self-neglect can be life threating and can cause dehydration, malnutrition and can make medical conditions worse. It is therefore important to assess self-neglect to reduce the likelihood of these risks. Prompt questions: Do you look after yourself properly? Do you eat and drink regularly or do you eat more or less than you should? Do you wash/shower and change your clothes regularly? Do you do things around the house like cleaning and shopping? Do you look after your money? Has this been an issue in the past? Self-neglect icon 40 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life – e.g. is the person able to make or get a drink or food when they want? Does the person have access to money? Are they able to spend their money on whatever they decide? Article 3: Right to be free from inhuman or degrading treatment – is the self-neglect severe enough to place the person at risk of harming themselves, or of being in a state which is seriously degrading? Are appropriate steps in place to ensure this does not happen? Article 2: Right to life – If self-neglect becomes extreme; this could potentially lead to loss of life. Are appropriate steps in place to ensure this does not happen? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with equality and dignity regardless of their presentation? Is the person given respect and privacy (by both staff and other service users) whilst undertaking personal care? If the person refuses to do personal care, is this right respected? Is the person encouraged to eat if they refuse food? 41 Rights at risk staff manual amendments V1 7.2.15 5) Self-harm (Hurting or harming myself) Rationale: Self-harming behaviour varies from person to person but it can involve: cutting, burning, hitting or scratching, breaking bones, hair pulling, swallowing toxic substances or objects or risky behaviour. It is often a sign of emotional distress or mental health difficulties. Self-harm is often used to communicate and cope with distressing emotions. There is often no intent to die by suicide but people who self-harm are at an increased risk of dying by suicide (4). It is important to consider the extent of the person’s distress and their coping skills, as well as the extent of the risk, including accidental suicide. Prompt questions: Do you hurt yourself to cope with difficult feelings? Do you use objects to cut yourself? Self-harm icon Do you ever burn yourself on purpose? Do you swallow objects/substances to harm yourself? Do you ever swallow substances to harm yourself? Do you ever hit/punch yourself to hurt yourself? How do you feel when you cut or hurt yourself? At the time? Afterwards? Do you have ways of coping with difficult feelings? Has this been an issue in the past? 42 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life – e.g. is all information about the person’s behaviour kept confidential? If not, is it only shared on a ‘need-to-know’ basis? Is there a collaborative support plan which aims to understand the function of the person’s self-harm and address any underlying psychological distress? Have harm minimisation approaches been considered? Does the support plan, where possible, promote the person’s choices in caring for wounds and choice of staff intervening (including staff gender)? Article 3: Right to be free from inhuman or degrading treatment – is the person at risk of causing serious harm to themselves? Are there appropriate interventions to prevent this? Article 2: Right to life – e.g. are appropriate interventions in place to avoid serious injury to the person that places their life at risk? Does the person have access to suitable healthcare services to get help? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with dignity and respect in the event of self-harm? e.g. are they given the opportunity to speak to somebody after they have cut or hurt themselves? If the person needs medical treatment (e.g. Accident and Emergency), are they treated respectfully by staff? 43 Rights at risk staff manual amendments V1 7.2.15 6) Suicide Rationale: A key national objective is a reduction in the suicide rate of people in the care of mental health services, including inpatients and other high risk groups such as: young and middle-aged men, people with a history of self-harm, people in contact with the criminal justice system and specific occupational groups (e.g. doctors, nurses, veterinary workers, farmers and agricultural workers) (5). It is important that those at increased risk of suicide are adequately supported to be kept safe from preventable harm and to ensure intervention is timely when somebody is in distress or in crisis. Prompt questions: Has anybody in your family ever taken their own life? Have you ever tried to take your own life in the past? If you have tried to take your own life in the past, was it planned? Do you ever think about taking your own life? How often/how long do you experience these thoughts? Do you have any plans to take your own life? Have you thought about how you would take your own life? Have you written a suicide note? Do you feel like things can get better? How do you feel about having these thoughts? Suicide icon 44 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life – e.g. is all information about the person’s behaviour kept confidential? If not, is it just shared on a ‘need-to-know’ basis? Is the intervention proportionate to the risk? Article 2: Right to life – e.g. have appropriate interventions been put in place to avoid the person taking their own life (with appropriate observations, access to therapy / services to help with their feelings). Article 3: Right to be free from inhuman or degrading treatment - Is the person at risk of causing serious harm to themselves if they attempt, unsuccessfully, to take their own life? Are appropriate interventions in place to avoid this happening? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person taken seriously and treated with dignity in the event of attempted suicide? 45 Rights at risk staff manual amendments V1 7.2.15 7) Interpersonal difficulties Rationale Sometimes people find it difficult to develop and maintain relationships, especially if their trust has been broken or they have experienced trauma in the past. Sometimes people have learnt and get stuck in the same patterns of relating to the people around them, even when these ways of relating cause problems. Difficulties with relationships can cause stress and can contribute to mental health difficulties. Equally, when people are distressed their relationships can be affected. Depending on a person’s life experiences, they may have different ways of relating to people, some of which may be difficult for us to understand. This domain will enable you to explore this sensitive topic with the service user to hopefully develop a joint awareness of this risk. Prompt questions: Do you feel very stuck in the same patterns in lots of different relationships in your life? Do you sometimes do things other people don’t like in order to try and make them listen or to get your needs met? Do other people say you challenge boundaries? Do you sometimes act in a way to scare people? Do you make demands that other people don’t like? Difficulties with relationships icon Human rights which may be engaged: Article 8: Right to respect for private and family life – This risk might affect the service user’s psychological or physical wellbeing. It may also impact on family, carers and other service users. FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person treated with dignity and respect despite difficulties in relationships? Do they have a reputation around this risk? Does this then impact on the care they receive, or how they are treated by either staff members or other service users? 46 Rights at risk staff manual amendments V1 7.2.15 8) Engagement (Not wanting help from services) Rationale: Those who are the most difficult to engage with mental health services are often the most vulnerable and can be at the greatest risk. Lack of engagement may be due to a number of different reasons including previous negative experience of services and suspiciousness of statutory services because of upbringing. It is important to consider engagement with services as this can mitigate or increase risk and needs to be taken into consideration in treatment plans. Discussions about this can potentially support engagement to overcome barriers. Prompt questions: Engagement Do you ever miss appointments with staff icon from mental health services? What makes you miss appointments? Do you ever leave home for long periods of time without telling people where you are going and when you will be back? Do you want support from services? If not, it might help if we can talk about the reasons for this? If you been admitted from hospital previously, have you ever run away or walked out? 47 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to family and private life- If the person doesn’t want support from services is this right respected by the service providers? If the person seems to lack the capacity to decline support from services, has the MCA guidance been followed in making an assessment of this? Article 5: Right to liberty and security - If the person is a voluntary inpatient, are they aware of their right to leave when they want? If they are not free to leave, this could be an unlawful deprivation of liberty. If the person is sectioned, have the right procedures been followed? Have they been given information about why they have been sectioned and has their case been reviewed by the Mental Health Tribunal? Is the care plan proportionate to the risks and the least restrictive course of action? Have proactive strategies been developed as part of a Positive Behaviour Support plan? If the person lacks the capacity to consent to their detention is there a DoLs in place? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with fairness, respect, equality, dignity and autonomy in relation to the level of support they receive i.e. too much or too little? 48 Rights at risk staff manual amendments V1 7.2.15 9) Alcohol/Substance misuse Rationale: Approximately half of those who have mental health difficulties also misuse alcohol or drugs (6). This may be to cope with difficult feelings but alcohol or substance misuse can also contribute to a deterioration of mental health. It may also impact on a person’s wellbeing, physical health, relationships with others and employment. Dual diagnosis is also associated with increased risk of suicide and suicide attempts (7). Misusing alcohol or substances can also contribute to anti-social behaviour, including violence. It is important to assess the extent to which this is a problem to consider how or if it mitigates other risks to self or others. Prompt questions: Do people worry that you drink a lot of alcohol or use Alcohol/ drugs? substance Do you use alcohol or drugs to cope? misuse icon Do you take legal highs? How much? How often? Do you experience withdrawal symptoms if you do not drink/ take drugs? In the past, have you used alcohol or drugs to cope? Do you engage in any risky behaviour when you are under the influence of alcohol/drugs? Do you experience any other problems related to your alcohol/substance use? 49 Rights at risk staff manual amendments V1 7.2.15 Human rights engaged: which may be Article 8: Right to respect for private and family life –Is the person supported in making informed choices regarding his or her drinking? Article 3: Right to be free from inhuman or degrading treatment – is the person’s misuse of alcohol or substances making them at risk of causing serious harm to themselves ? Could this harm be avoided through appropriate intervention? Article 2: Right to life – e.g. are there services available for the person to help with serious alcohol problems (e.g. specialist alcohol services)? Does the person have access to suitable healthcare to get help? In extreme cases lack of access to suitable healthcare may lead to a fatality. FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person being treated with respect and dignity in relation to alcohol/substance use? Are they receiving adequate support with this issue? 50 Rights at risk staff manual amendments V1 7.2.15 10) Transport (private) Rationale: When people experience mental health difficulties it can affect their ability to drive. This can be due to either the mental health symptoms or side effects of the medication a person is taking. The Driver Vehicle and Standards Agency (DVLA; 8) has regulations about driving when a person has been diagnosed with a mental health problem. You may want to prompt the person to contact the DVLA to discuss their difficulties. If a person is unable to drive due to their mental health problem, they may be eligible for a free pass to use public transport. Prompt questions: Do you currently have a driving licence? Do you own a vehicle? Do you regularly drive your vehicle? Transport Icon Are you taking any medication which might make it difficult for you to drive? Have you informed the Driver Vehicle and Standards Agency (DVLA) of your diagnosis? Do you have access to any other means of transport i.e. public transport? Has this been an issue in the past? Human rights which may be engaged: Article 8: Right to respect for private and family life - Is the person’s lack of access to transport likely to impact on their physical and psychological wellbeing? For example, by preventing them from accessing health services, or preventing them from engaging in social activities? Are there reasons why the person needs to have access to a particular type of transport – for example, are they a wheelchair user? If so, could denying access potentially impact upon their psychological wellbeing? If the person is not able to drive for legal reasons, has the person been supported to think about other options available to them i.e. public transport? FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. 51 Rights at risk staff manual amendments V1 7.2.15 11) Safety at home Rationale: People have a right to feel safe and secure in all aspects of life, including their health and wellbeing, to enjoy safety but not feel over-protected, and to be free from exploitation and abuse at home. When people are experiencing mental health problems, they may not feel able to keep themselves safe. This domain explores whether the person feels able to maintain their safety in their own home. Prompt questions: Do you live at home alone? Do you have any support at home either from family, friends or support staff? Do you feel like you can keep yourself safe at Safety at home home? icon Do you know what to do if you don’t feel safe at home? Do people worry that you have items at home you may harm yourself or others with? For example, sharp knives or weapons. Has this been an issue in the past? Human rights which may be engaged: Article 8: Right to respect for private and family life – Either the risk itself or the strategies in place could have implications for the person’s psychological wellbeing. Is enough being done to reduce any restriction as much as possible? Is any intervention proportionate to the person’s difficulties? In shared accommodation, does any restriction impact on the quality of life of other service users who do not have a problem with keeping themselves safe? Article 3: Right to be free from inhuman or degrading treatment – is the person at risk of causing serious harm to themselves? If so how can this be minimised? e.g. if the person is restricted from using knives, could they be supervised to use them? Is there a Positive Behaviour Support plan? Article 2: Right to life – e.g. if the person is in danger of seriously harming or killing themselves, are procedures in place to prevent this happening? (e.g. are sharp knives locked away?) 52 Rights at risk staff manual amendments V1 7.2.15 FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy. Is the person treated with fairness, dignity and respect in relation to their issues around managing their safety at home? 53 Rights at risk staff manual amendments V1 7.2.15 Section 3: Risks to others Please turn to ‘Section 3: Risks to others’ in the shared information booklet. This section focuses on the risks to other people in the service user’s life. This section is important because public authorities such as the NHS have a positive obligation to take steps to prevent risks to other people arising as a result of their decisions about a service user in their care. 1) People you care for: Dependants and children Rationale: Many people using mental health services will have some kind of caring responsibilities, either as parents or as carers for older people. Caring for someone else can mean that a person experiences high levels of stress. Forty per cent of carers may experience depression or psychological problems (9). Parents with mental health difficulties may struggle to manage their parenting role or need support. Children may become carers for their parents. Roughly 175,000 young carers are caring for a parent or another family member with mental health difficulties in the UK (10). Prompt questions: Are you a carer? Do you look after anyone? CARER ICON Is this a child, an older person or someone with a disability? Do people worry that you do things to put them in danger? Do you sometimes find it hard to cope? Do you find it hard to keep them clean? If you lose your temper, do you ever take it out on the person you care for? If the person you care for is a child: Do you find it hard to get your child to school? Do people worry that children might not be safe with you? Do you like to play with children, but hear other people say that you shouldn’t? Do people say you can’t look after children properly? Has this been a risk in the past? Human rights which may be engaged: 54 Rights at risk staff manual amendments V1 7.2.15 Rights of service user Article 8: Right to respect for private and family life – Is the person’s family life respected? Do services take a ‘whole family’ approach to supporting them as a carer? Is the person supported or given the opportunity to have a family life with their child? If the child does not live with the person, do they have visiting rights to see the child? Are steps in place to support the person to have a safe and productive family life with the child? Is the person supported to participate in important decisions affecting their family life? Article 14: Protection against discrimination in relation to these human rights – Do any allegations of inadequate care relate solely to prejudice about disability or mental health? Is the person treated differently in terms of access to their children because of their mental health? Rights of others Article 8: Right to respect for a private and family life- Is the dependents' right for a family life respected? Are dependents supported to see the service user to maintain a family life, irrespective of the service user’s mental health needs? If the dependent has limited access to see the service user because of their mental health needs, has this been properly assessed as being in the best interests of the dependent and the service user? Article 2 of Protocol 1: Right to education – A risk to a dependent child could potentially affect the child’s education e.g. if the person finds it difficult to take the child to school. Article 3: Right to be from inhuman or degrading treatment – Serious cases of neglect can cause inhuman or degrading treatment. Are measures in place to prevent this from happening? Article 2: Right to life – Neglect of a dependent could potentially be life threatening. Steps should be in place to prevent this from happening. e.g. support should be available for the person in relation to their child. FREDA principles: You may also wish to consider the FREDA principles: Fairness, Respect, Equality, Dignity, and Autonomy for both the service user and others. 55 Rights at risk staff manual amendments V1 7.2.15 2) Verbal aggression or intimidation Rationale: When people are experiencing mental health problems they may become verbally aggressive or intimidating towards others. It may be that the person is having difficulty expressing their thoughts and feelings and does not have any alternative strategies for coping at this time. This domain will enable you to explore verbal aggression or intimidation jointly with the service user. Prompt questions: Do you get angry with people? Do people seem scared of you? Do you say nasty things to people when you are annoyed or upset? Do you shout at people when you’re annoyed or upset? Do you have thoughts about harming other people? Do you want to act on these thoughts? Do you get angry a lot? Do you argue a lot? Has this been a risk in the past? Verbal aggression/ Intimidation icon _________________________________________________ Human rights which may be engaged: Rights of service user Article 8: Right to respect for private and family life - Is there a policy of restraint around the person to prevent verbal aggression or intimidation? If so, does the person have any input into this? Have they been involved with any discussions? Is any restriction or restraint, necessary and proportionate to the risk? Is a Positive Behaviour Support plan in place? Rights of others Article 8: Right to respect for private and family life – Verbal aggression may engage another person’s right to psychological wellbeing. For example, if the person is focusing their verbal aggression at another service user living at the same address, are their human rights compromised? If so, is anything in place to prevent this? Are any interventions proportionate to the risk and the least restrictive course of action? Are they part of a positive behavior support plan? If so, does the person have any input into this? Have they been involved with any discussions? Article 14: Protection against discrimination -– If verbal aggression against someone is as a 56 Rights at risk staff manual amendments V1 7.2.15 result of their gender/race/culture etc then their right to be protected against discrimination in relation to their Article 8 rights may be engaged. Article 3: Right to be free from inhuman or degrading treatment- In cases of extreme and systematic verbal aggression this may meet the threshold a person’s right to be free from inhuman or degrading treatment. Are measures in place to prevent this? FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to both the service user and others. Is the service user treated with respect and autonomy by staff despite any verbal aggression or intimidation they may display? Are others involved treated according to FREDA principles when they have contact with the agencies involved? 57 Rights at risk staff manual amendments V1 7.2.15 3) Physical violence (with or without weapons) Rationale Guidelines (11, 12) on the prevention and management of violence in healthcare highlight safety priorities in mental health. The guidelines outline the importance of using preventive measures to manage violent behaviour, as well as of employing strict guidelines to govern the use of physical restraint, which remains common in mental health settings (13). Practitioners must consider several factors when conducting a risk assessment around violent behaviours, including historical incidents. Practitioners must also be skilled in viewing violent behaviour as part of a wider context i.e. does somebody’s risk of being a perpetrator of violence increase when they are in an inpatient setting (14, 15)? Prompt questions: If you are angry or frustrated, do you sometimes hit Physical Violence out or hurt people? (no weapons) If you want to hurt someone, do you think about what icon objects you are going to use? Do you use things like a chair, hot water or a knife? In the past, have you ever physically hurt other people? Did you use a weapon to do this? Do you have items in your home that you could hurt other people with, like a knife, chair or hot water? When you are angry or frustrated or scared, do you have ways of coping with this? Do you sometimes hurt people to help cope with difficult feelings? __________________________________________________ Human rights which may be engaged: Rights of service user Article 8: Right to respect for private and family life - Is there a policy of restraint around the person to prevent physical violence? If so, does the person have any input into this? Have they been involved with any discussions? Is any restriction or restraint, necessary and proportionate to the risk? Is a Positive Behaviour Support plan in place? If the person’s physical aggression is directed towards staff, family or other service users, are their human rights compromised? If so, is anything in place to prevent this? Rights of others Article 8: Right to respect for private and family life – Article 8 included the right to physical and psychological integrity. Any injury or trauma relating to physical violence will engage a person’s right to physical and psychological integrity, Article 3: Right to be free from inhuman or degrading treatment – e.g. is the person likely to focus their aggression towards carers / family / service users or the general public? If so, are any care plans in place to prevent other people’s human rights being compromised? 58 Rights at risk staff manual amendments V1 7.2.15 Article 2: Right to life – If the physical violence becomes so extreme that it could result in a loss of life, then the victim’s ‘right to life’ may be breached. There is a duty to put in place measures to prevent this from happening. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to both the service user and others. Is the service user treated with fairness and respect in relation to any potential violence? e.g. If the person has a complaint made against them because of their aggression, will it be investigated fully? Will they be supported? Also, are there consequences following violent outbursts? Removal of privileges may affect the person’s rights. Are the victims or potential victims of the aggression also treated according to FREDA principles when they have contact with the agencies involved? 59 Rights at risk staff manual amendments V1 7.2.15 4) Sexually inappropriate behaviour Rationale Some people may exhibit sexually inappropriate or disinhibited behaviour when they are experiencing mental health difficulties. These behaviours can be very distressing for the person and others around them. This domain will enable you to explore any issues relating to the person exhibiting sexually inappropriate behaviour towards others. Prompt questions: • Have you made someone do sexual things even when they didn’t want to? Do you find it hard to tell whether someone wants you to touch them, or if they want to touch you? Have you showed someone private parts of your body without them agreeing to this? Has this been a risk in the past? Have you touched someone without them agreeing to this? • Have you made someone have sex with you? Sexually Inappropriate Behaviour Icon ________________________________________ Human rights which may be engaged: Rights of others Article 8: Right to respect for private and family life – Steps must be taken to prevent damage to the psychological or physical wellbeing of survivors of sexual abuse. Article 3: Right to be free from inhuman or degrading treatment – Sexually abusing someone else is likely to constitute inhuman or degrading treatment and steps must be taken by agencies involved to prevent this. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to both the service user and others. Is the service user being treated with dignity and respect – even where their behaviour is sexually inappropriate? Are the others involved treated according to FREDA principles when they have contact with relevant agencies? 60 Rights at risk staff manual amendments V1 7.2.15 5) Criminal or Antisocial acts Rationale A Home Office (2002) review of criminal and antisocial acts found that in 60% of cases there was a mitigating factor such as mental distress, addiction, or learning disabilities (16). This domain will enable you and the service user to explore the risk of the person engaging in criminal or antisocial acts. Prompt questions: • Have you done things which get you into trouble with the police? Were you arrested? Did they say that you had done something illegal? • Have you taken things from other people that don’t belong to you? Are you doing anything at the moment which could get you into trouble with the police? Do you sometimes find it hard to tell if things are against the law? Criminal or Antisocial acts icon __________________________________________________________________________ Human rights which may be engaged: Rights of others Article 1 of Protocol 1: Protection of property – Are any care plans in place to protect this right in relation to other service users who live with the person? Article 8: Right to respect for private and family life – By stealing, the service user might affect the victim’s psychological wellbeing. This includes family, carers and other service users. Are steps being taken by the agencies involved to address this risk? Article 3: Right to be free from inhuman or degrading treatment– Some criminal acts are directly targeted at people, and in some circumstances the victims may experience inhuman or degrading treatment as a result. Steps must be taken by agencies involved to prevent this. Article 2: Right to life – If the antisocial behaviour becomes so extreme that it could result in a loss of life, then the victim’s ‘right to life’ may be breached. There is a duty to take precautions eg via a Positive Behaviour Support plan to prevent this from happening. 61 Rights at risk staff manual amendments V1 7.2.15 Article 14: Protection against discrimination in relation to these human rights – If a criminal act been carried out against someone as a result of their gender/race/culture etc and the relevant agencies did not take steps to respond to this, then the person’s right to be protected against discrimination in relation to their human rights (eg freedom from inhuman or degrading treatment) may be engaged. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to both the service user and others. Is the service user treated with dignity and respect despite the potential for any other criminal or antisocial acts? Do they have a reputation around this risk? Does this then impact on the care they receive, or how they are treated by either staff members or other service users? Are the victims/potential victims also treated according to FREDA principles when they have contact with the agencies involved? 62 Rights at risk staff manual amendments V1 7.2.15 6) Arson (Starting Fires) Rationale Some research has demonstrated that the risk of committing arson is higher in people with mental health problems, in particularly in people who experience psychosis (17). This domain will support you and the service user to explore any historical incidents of arson in relation to current risk factors. Prompt questions: • Have you set fire to something? • Have you put someone else in danger by setting fire to something? Have you damaged a building by setting fire to it? Have you got into trouble in the past for setting fire to something? • Have you ever tried to set fire to something in the past? ____________________________________________ Human rights which may be engaged: Arson Icon Rights of others Article 1 of Protocol 1: Protection of property - By setting fire to somebody’s property, the service user is impinging on another person’s right to have their property protected. Is there anything in place to stop this happening? Article 8: Right to private and family life – Starting fires may risk other people’s right to their home. In addition, less serious harm caused by fire could risk a person’s physical and psychological wellbeing, which is an important aspect of Article 8. Article 3: Right to be free from inhuman or degrading treatment – If the fire is severe enough to cause serious injury, it may risk a person’s right not to be treated in an inhuman or degrading way. Steps should be taken to prevent arson attacks from happening. Article 2: Right to life - If the fire is severe enough, it could cause death to the service user or others. This would be a breach of their right to life. If this presents a real risk, agencies must take steps to prevent arson attacks from happening. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to both the service user and others. Is the service user treated with dignity and respect despite the risk of arson? Are they treated as an equal? Do they have a reputation relating to this risk? Does this affect the care they receive, or how they are treated by either staff members or other service users? Are 63 Rights at risk staff manual amendments V1 7.2.15 the victims/potential victims of the arson risk also treated according to FREDA principles when they have contact with the agencies involved? 64 Rights at risk staff manual amendments V1 7.2.15 Section 4: Risk from others Please turn to ‘Section 4: Risks from others’ in the shared information booklet This section focuses on the risks from other people in the service user’s life. 1) Discrimination Rationale: Research suggests that nearly nine out of ten people (87%) with mental health problems have been affected by stigma and discrimination (18). People with mental health problems say that stigma and discrimination affect all aspects of their lives: work, education, friendships, community participation, going to the shops, going out to the pub, and talking to other people about their mental health problems. This domain will help you to explore with the person whether they are being physically harmed or verbally abused by others because of their mental health problems, gender, religious beliefs, ethnicity, sexuality or any other reason. Prompt questions: Do people bully you because of your gender, ethnicity, religious beliefs, sexuality or for other reasons? Do people pick on or hurt you because of your gender, ethnicity, religious beliefs, sexuality for other reasons? Do people pick on or hurt you because you experience mental health issues? Has this happened in the past? Discrimination icon _________________________________________________ Human rights which may be engaged: Article 8: Right to respect for private and family life - Does the person feel able to express themselves? Is the person given the opportunity to express their identity by making choices about their clothes, hair, food, and activities etc? Is the person supported to attend groups should they wish? Do they feel pressurised to attend groups when they would prefer not to? Is the person able to access health services that address their specific needs? Has the person been consulted to see if services are meeting their specific needs? If these things are happening because of the person’s mental health issues, it may be useful to consider Article 8 along with Article 14 (see below). Article 9: Freedom of thought, conscience and religion – e.g. does the person feel able to express their beliefs and practice activities in relation to their beliefs? Is the person supported to attend meetings and events relating to their beliefs if they wish to do so? You should bear in mind that a person is not automatically protected when doing things 65 Rights at risk staff manual amendments V1 7.2.15 affecting other people that are motivated by their belief – such forcing their religion onto others. Article 14: Freedom from discrimination in relation to these rights – Are there particular reasons why the person may be vulnerable to discrimination in relation to their human rights, from staff or other service users? Is the person treated differently from others in a way that cannot be reasonably justified, for example, because of their ethnicity. Article 3: Right to be free from inhuman or degrading treatment –e.g. is the person treated in a way that might be construed as inhuman or degrading as a result of any issues relating to their sexuality, religious beliefs, ethnicity, gender or for any other reason? If this is a risk, steps should be taken to prevent it from happening. Equality Act: Article 14, listed in the Human Rights Act, protects our rights not to be discriminated against in relation to any of the other rights listed in the Human Rights Act. Service users , as well as workers etc, are also entitled to be protected from discrimination by the Equality Act (2010) and this doesn’t depend on having a link with one of the rights listed in the Human Rights Act. The Equality Act states that we should not be treated less favourably because of a protected characteristic. There are nine protected characteristics: age, disability, gender reassignment, marriage or civil partnership, race, religion or belief, sex or sexual orientation. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. Is the person treated as an equal and with respect? e.g. if the person makes a complaint about how they are being treated, is it taken seriously and investigated fully? 66 Rights at risk staff manual amendments V1 7.2.15 2) Physical abuse by others Rationale: Past or current physical assault is traumatic and may have serious mental health consequences. Domestic violence is the leading cause of illness and death for women of childbearing age, with the main contribution being from the mental health consequences of abuse (19).This domain supports you to ask the person about any experiences of assault or violence now or in childhood. It includes excessive restraint from services and prone (face down) restraint. Prompt questions: Does anyone hurt you? Does anyone hit/slap/punch you? Does anyone spit at you? Have you experienced domestic violence? Have you been unnecessarily restrained? Has this happened in the past? Physical abuse by others icon Human rights which may be engaged: Article 8: Right to respect for private and family life – Physical abuse will affect the person’s physical integrity and their psychological well-being. Are strategies in place to reduce this abuse as much as possible as part of a Positive Behaviour Support plan? Article 3: Right to be free from inhuman or degrading treatment- If another service user is abusing the person, is anything being done about this to prevent this? Is the person vulnerable and likely to be a victim of physical abuse when out on their own? If so, are care plans and support in place to try and prevent this? (e.g. having a carer with them). Article 2: Right to life – If the person is subjected to extreme physical abuse by others, this could result in a loss of their life. Strategies should be in place to prevent this from happening as part of a Positive Behaviour Support plan. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. 67 Rights at risk staff manual amendments V1 7.2.15 Is the person treated as an equal and with respect? e.g. if the person has made a complaint about physical abuse, is it investigated fully and taken seriously? Have appropriate safeguarding referrals been made? 68 Rights at risk staff manual amendments V1 7.2.15 3) Sexual abuse by others Rationale: Sexual abuse is experienced by between 15-30% of girls, and up to 30% of boys during childhood (20), and it has been established that childhood sexual abuse is linked to increased physical complaints, psychological distress, substance abuse, suicide attempts and ideation in adulthood (21) Asking about sexual abuse can be difficult, and staff can be reluctant to ask about such a sensitive area. However, research has shown that service users can experience the absence of this question as silencing, that survivors of sexual abuse want to be asked and other service users do not resent the question. Being asked about abuse, listened to and believed can be an affirming first step (22). Using ‘meta’ questions (questions about questions) can help the service user to have control of the decision to answer Prompt questions: Meta question: The next area we are going to ask about is about sexual abuse. Is it ok for me to ask you about this? [if Sexual abuse by the person says no, offer them the choice to talk about this others icon another time, if they wish to, and move onto the next question] Does anyone touch you in a way you don’t like? Does anyone make you have sex when you don’t want to? Does anyone try to take photos of you when you are undressed? Does anyone try to make you watch sex you don’t want to see on the internet? Has anyone done these things in the past? _________________________________________________ Human rights which may be engaged: Article 8: Right to respect for private and family life – Is the person supported or given the opportunity to make relationships? If the client wishes to engage in sexual relationships, is this supported? Has the person had help and advice about sex? Have they been supported to know their rights, therefore limiting the chance of sexual abuse? If the person has been sexually abused, this right is likely to be at risk. Article 3: Right to be free from inhuman or degrading treatment- For some people, the nature and type of the abuse they have experienced may meet the legal threshold for Article 3. Steps should be put in place to prevent this from happening. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, 69 Rights at risk staff manual amendments V1 7.2.15 and Autonomy) in relation to the service user. Is the person treated as an equal and with respect? If the person makes a complaint about sexual abuse, is it investigated fully and taken seriously? Should a safeguarding referral be made? 70 Rights at risk staff manual amendments V1 7.2.15 4) Financial abuse by others Rationale: Financial abuse occurs when someone tries to take advantage of another person’s vulnerability to steal their money or their property. When unwell, people with mental health difficulties may be more vulnerable to online or phone scams and fraud. Older adults may be particularly vulnerable (23) Prompt questions: Do you worry about money? Does anyone else use your cash card/cheque book? Do you think your money is going missing? Does anyone make you buy things for them or pressure you to give them money? Do you get phone calls or emails offering you money or free products or asking for sensitive information about your money? Has this happened in the past? Financial abuse by others icon _________________________________________________ Human rights which may be engaged: Article 1 of Protocol 1: Right to respect for property - Are the person’s possessions and finances respected by others? Article 4: Freedom from slavery and forced labour e.g. does the person undertake any kind of work, and if they do, do they receive suitable payment for the work? Article 8: Right to respect for private and family life – Who handles the person’s money? Are they informed about this and do they understand why? Does the person have access to their own money? Are they able to spend their money on whatever they decide? Is confidential data about the person’s money kept locked away and only shared on a ‘needto-know’ basis? FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. Is the person treated as an equal and with respect? If the person makes a complaint about their financial situation, is it taken seriously and is it investigated fully? 71 Rights at risk staff manual amendments V1 7.2.15 5) Emotional abuse by others Rationale: Emotional abuse often happens with other forms of abuse. It often involves someone behaving in a controlling or bullying way and abusing their power. Emotional abuse can be particularly difficult to pinpoint but can have devastating consequences for a service user’s mental health and wellbeing. It can happen in any relationship; at home, in the workplace or in the family. Prompt questions: Do people make demands on you that you don’t like? Do people act in a way that scares you? Do people listen to you? Are your emotional needs met? Does anyone try to isolate you or stop you from seeing friends? Does anyone humiliate you or put you down a lot? Has this happened in the past? Emotional abuse by others icon _________________________________________________ Human rights which may be engaged: Article 8: Right to respect for private and family life – Does the person feel respected in his /her home? Does the person have any involvement in choosing their staff or housemates? This is especially important if they feel they are being emotionally abused by somebody they live with. Emotional abuse is likely to impact on a person’s psychological and physical wellbeing, an important part of this right. Article 3: Right to be free from inhuman or degrading treatment - Extreme emotional abuse could place at risk the right to be free from inhuman or degrading treatment. Strategies should be in place as part of a Positive Behaviour Support plan to prevent this from happening. Staff need to be attuned for signs of potential emotional abuse as it can be more difficult to identify. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. Is the person treated as an equal and with respect? If the person makes a complaint regarding any emotional abuse, is it taken seriously and is it investigated fully? Are appropriate safeguarding referrals being made? 72 Rights at risk staff manual amendments V1 7.2.15 Section 5) Protective factors and coping strategies Please turn to ‘Section 5: Protective factors and coping strategies in the shared information booklet. This section focuses on the service user’s strengths and the resources they have in their life. 1) Protective factors Rationale: A rights and recovery based approach to risk assessment needs to include the service user’s strengths. This means identifying protective factors, or things which help to keep the service user safe. Prompt questions Were there people who were there for you when you were growing up? Protective Are there people you have get on well with now? Factors icon What do you enjoy doing? (work/education/hobbies) How are your finances? Do you have money worries or are your finances secure? Wanting to engage with services (consider whether the person is taking medication or not or engaging in appointments) What do you want to do in the future? Are you able to tell when you are starting to feel unwell? What are the early signs you notice when you are starting to feel unwell? What do other people notice when you are starting to feel unwell? Do you have an advanced statement which could help us to think about things in your life which keep you safe and well? _________________________________________________ Human rights which may be engaged: Article 8: Right to a private and family life: Working in a collaborative way to identify protective factors is likely to help ensure service user’s human rights are protected and respected. This way of working treats service users with respect and dignity and values their autonomy through asking about their choices. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. 73 Rights at risk staff manual amendments V1 7.2.15 2) Coping Strategies Rationale: A rights and recovery based approach to risk assessment needs to include the service user’s strengths. This means identifying ways of coping the service user has already identified and is using to help manage their difficulties. Prompt questions What has helped when things have been difficult in the past? Last time you were feeling unwell, what helped you to feel Coping better? Strategies icon What helps you to feel safe? How do you know when things aren’t going well? What exercise do you do or enjoy? Are there people who you feel comfortable with you can ask for help? Who can you talk to? Who listens to you? What do you do to relax? What takes your mind off things? What makes you feel grounded? Do you have an advanced statement which could help us to think about ways you can cope? _________________________________________________ Human rights which may be engaged: Article 8: Right to a private and family life - Working in a collaborative way is more likely to promote the service user’s human rights. This way of working treats service users with respect and dignity and values their autonomy through asking about their choices. FREDA principles: You may also wish to consider the FREDA principles (Fairness, Respect, Equality, Dignity, and Autonomy) in relation to the service user. 74 Rights at risk staff manual amendments V1 7.2.15 REFERENCES 1. World Health Organisation. (2014). Disabilties and Health. WHO Fact Sheet: World Health Organisation. Retrieved from: http://www.who.int/mediacentre/factsheets/fs352/en/. [Accessed 4th June 2015]. 2. Nock, M.K., Hwang, I., Sampson, N., Kessler, R.C., Angermeyer, M., Beautrais, A., et al. (2009). Cross-National Analysis of the Associations among Mental Disorders and Suicidal Behavior: Findings from the WHO World Mental Health Surveys. PLOS Med, 6(8). 3. HM Government. (2011). No health without mental health: A cross government mental health outcomes strategy for people of all ages. Retrieved from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/13825 3/dh_124058.pdf. [Accessed on 4th June 2015]. 4. Carter, G., Reith, D., Whyte, I., & Mcpherson, M. (2005). Repeated self poisoning: increasing severity of self- harm as a predictor of subsequent suicide. British Journal of Psychiatry, 186, 253-257. 5. HM Government. (2012). Preventing suicide in England: A cross government outcomes strategy to save lives. Retrieved from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/21692 8/Preventing-Suicide-in-England-A-cross-government-outcomes-strategy-to-savelives.pdf. [Accessed 4th June 2015]. 6. Llopis, E., & Matytsina, I. (2009). Mental health and alcohol, drugs and tobacco: a review of the comorbidity between mental disorders and the use of alcohol, tobacco and illicit drugs. Drug and Alcohol Review, 25, 515-536. 7. Kendall, R. (1983). Alcohol and suicide. Substance and Alcohol Actions/Misuse, 4, 121127. 8. Driver and Vehicle Licensing Agency. (2013). Current medical guidelines: DVLA guidance for professionals. Retrieved from : https://www.gov.uk/current-medical-guidelines-dvlaguidance-for-professionals-psychiatric-chapter-appendix. [Accessed 4th June 2015]. 9. Royal College of General Practitioners. (2011). Supporting carers: An action guide for general practitioners and their teams (2nd edition). Essex: The Princes Royal Trust for Carers. Retrieved from: http://www.rcgp.org.uk/~/media/Files/CIRC/Carers/CarersAction-Guide.ashx. [Accessed 6 Jan 2015]. 10. Mental health foundation. (Unknown). Parents [Internet]. United Kingdom: Mental health foundation. Retrieved from: http://www.mentalhealth.org.uk/helpinformation/mental-health-a-z/P/parents/. [Accessed 25 Jan 2015]. 11. National Institute for Mental Health in England. (2004). Mental health policy implementation guide: developing positive practice to support the safe and therapeutic management of aggression and violence in mental health in-patient settings. Retrieved from: http://www.nimhe.org.uk/downloads/78130-DoH-Viol%20Management.pdf. 12. National Institute of Clinical Excellence. (2005). Violence: The short-term management of disturbed/violent behaviour in in-patient psychiatric settings and emergency departments. Retrieved from http://www.nice.org.uk/CG25. 13. Richter, D. & Whittington, R. (2006). Violence in mental health settings: Causes, consequences, management (Eds). New York: Springer. 14. Duxbury, F. (2011). Domestic violence, PTSD, and diagnostic enquiry. The British Journal of General Practice, 61(589), 496. 15. Vincent, G. M. (2006). Psychopathy and violence risk assessment in youth. Child and Adolescent Psychiatric Clinics of North America, 15(2), 407-428. 75 Rights at risk staff manual amendments V1 7.2.15 16. Campbell, S., & Markesinis, B. S. (2002). A review of anti-social behaviour orders. London: Home Office. 17. Anwar, S., Långström, N., Grann, M. & Fazel, S. (2011). Is arson the crime most strongly associated with psychosis? A national case-control study of arson risk in schizophrenia and other psychoses. Schizophrenia Bulletin, 37 (3), 580-586. 18. Time to Change. (2008). Stigma and Discrimination. Accessed at http://www.time-tochange.org.uk/what-are-mental-health-problems/stigma-discrimination. [Accessed on 4th June 2016]. 19. Hegarty, K. (2011). Domestic violence: The hidden epidemic associated with mental illness. The British Journal of Psychiatry, 198, 169-170. 20. Gilbert, R., Widom, C. S., Browne, K., Fergusson, D., Webb, E., & Janson, S. (2009). Burden and consequences of child maltreatment in high-income countries. The Lancet, 373(9657), 68-81. 21. McCauley, J., Kern, D. E., Kolodner, K., Dill, L., Schroeder, A. F., DeChant, H. K., ... & Bass, E. B. (1997). Clinical characteristics of women with a history of childhood abuse: unhealed wounds. Jama, 277(17), 1362-1368. 22. Read, J., Hammersley, P. & Rudegeair, T. (2007). Why when and how to ask about childhood abuse. Advances in Psychiatric Treatment, 13, 101-110. 23. O’Keefe, M., Hills, A., Doyle, M., McCreadie, C., Scholes, S., Constantine R, et al. (2007). UK study of abuse and neglect of older people: Prevalence survey report. London: National Centre for Social Research. 76 Rights at risk staff manual amendments V1 7.2.15 Section 6: Human rights based formulation: This section focuses on the risks identified in the previous section which have obtained a score of 4 or higher. The human rights based formulation attempts to pull all the risk factor information together. A human rights based formulation can be completed for risks i which have scored 4 or over. To aid in completing the formulation, answer the questions below and add any other information which you think is relevant. 1. What’s the rights issue we want to think about? When you have identified a risk, the human rights which are implicated will be listed. Start by listing these human rights. 2. Whose rights are engaged? What are they? You should indicate which implicated human rights belongs to whom including the service user, others (those in close proximity to the service user e.g. family members, other service users), staff and the community. Consider who is at most risk in relation to their human rights. 3. Why has this happened (a)? You should consider predisposing (historical factors) which have contributed to this occurring. These do not necessarily have to be linked specifically to Human Rights. For example, events from childhood would come under this heading. 4. Why has this happened (b)? You should consider the precipitating (immediate factors or events) which have contributed to this occurring. These could be factors considered to be “triggers” to the current situation. 5. Why might this happen again? Why is this still happening? You should consider the perpetuating (maintenance) factors which are likely to contribute to this being problem again. These might relate to the way in which the situation is currently being managed, or the way in which the service user or others are responding to it. 6. What is likely to stop it? You should consider the protective (the service user’s strengths and coping strategies) which contribute to reducing the difficulty or prevent it from deteriorating. 77 Rights at risk staff manual amendments V1 7.2.15 7. What opinions and frameworks help me make the decision? Ask the service user what they would like to happen or what they would think is a reasonable plan, using the answers to the previous questions to help. Consider what legal obligations you have e.g. is the service user in immediate risk and require sectioning under the mental health act. You should consider both of these to determine what you think is fair and the least restrictive approach which is proportionate to the risk under exploration. 8. What is our intervention strategy? This formulation collated should now inform your intervention strategy. You should consider the following points in developing your strategy: Is it proactive? Is it proportionate? Is it the least restrictive? Does it balance the rights of those involved? Is it legal? Is it necessary and legitimate? Is it culturally sensitive? 9. What are the barriers? Any barriers to implementing the intervention should be considered. You and the serviceuser should consider if there are any ways in which these barriers can be overcome, this should also be detailed in the intervention strategy. 78 Rights at risk staff manual amendments V1 What’s 7.2.15 the rights issue we want to think about? Why has this happened(a)? What are the predisposing factors giving rise to this rights issue? Why has this happened (b)? What are the precipitating factors giving rise to this rights issue? Is this a legal issue? Is it an issue which is necessary to address? Is your aim in addressing it legitimate? Whose rights are engaged? What are they? SU Why might this happen again? Why is this still happening? Others Are any SU’s/family engaged? other rights What are the perpetuating factors giving rise to this rights issue What is likely to stop it? What are the protective factors? Staff What is our intervention strategy? Is it proactive? Is it proportionate? Is it the least restrictive? Does it balance the rights of those involved? Is it legal? Is it necessary and legitimate? Is it culturally sensitive? Community What opinions and frameworks help me make the decision? What does the SU want? What needs to happen legally? Mental Health Act, Mental Capacity Act, DOLS, Safeguarding policy, abosulute rights/ What is fair? What are the barriers? 79 Rights at risk staff manual amendments V1 7.2.15 Section 7: Shared rights, risk and recovery plan If you have completed the formulation, the information you have discussed can be used to produce a risk management or a shared rights, risk and recovery plan. The layout below integrates human rights principles with a Positive Behaviour Support approach. For each area where the service user’s rights are engaged, the plan should describe; a) The presenting problem: the rights or the safety issue involved in a clear and accurate way b) Precipitating factors: any identified triggers to the rights or safety issue c) Any identified early warning signs that the rights or safety issue is about to happen d) any proactive or preventative strategies which aim to stop the rights or safety issue from occurring (including the person’s protective factors) e) Any reactive or crisis strategies which aim to minimise the harm from the rights or safety issue occurring (including the person’s coping strategies) The plan should be regularly reviewed with the service user. 80 Rights at risk staff manual amendments V1 7.2.15 Appendix A Box 1: The 16 Best Practice in Managing Risk Principles Introduction 1. Best practice involves making decisions based on knowledge of the research evidence, knowledge of the individual service user and their social context, knowledge of the service user’s own experience, and clinical judgement. Fundamentals 2. Positive risk management as part of a carefully constructed plan is a required competence for all mental health practitioners. 3. Risk management should be conducted in a spirit of collaboration and based on a relationship between the service user and their carers that is as trusting as possible. 4. Risk management must be built on recognition of the service-user’s strengths and should emphasize recovery. 5. Risk management requires an organizational strategy as well as efforts by the individual practitioner. Basic ideas in risk management 6. Risk management involves developing flexible strategies aimed at preventing any negative event from occurring or, if this is not possible, minimising the harm caused. 7. Risk management should take into account that risk can be both general and specific, and that good management can reduce and prevent harm. 8. Knowledge and understanding of mental health legislation is an important component of risk management. 9. The risk management plan should include a summary of all risks identified, formulations of the situations in which identified risks may occur, and actions to be taken by practitioners and the service user in response to crisis. 10. Where suitable tools are available, risk management should be based on assessment using the structured clinical judgement approach. 11. Risk assessment is integral to deciding on the most appropriate level of risk management and the right kind of intervention for a service user. Working with service users and carers 12. All staff involved in risk management must be capable of demonstrating sensitivity and competence in relation to diversity in race, faith, age, gender, disability and sexual orientation. 13. Risk management must always be based on awareness of the capacity for the service user’s risk level to change over time, and recognition that each service user requires a consistent and individualised approach. Individual practice and team working 14. Risk management plans should be developed by multidisciplinary and multi-agency teams operating in an open, democratic and transparent culture that embraces reflective practice. 15. All staff involved in risk management should receive relevant training, which should be updated 81 at least every three years. 16. A risk management plan is only as good as the time and effort put into communicating its findings to others. Rights at risk staff manual amendments V1 7.2.15 Appendix B Mapping of key elements of relevant frameworks to a human rights based approach and method of inclusion in ‘Rights at Risk’. Framework Recovery Key Elements Recognising strengths human rights based approaches Present? How PANEL - Empowerment Present? Empowerment PANEL - Empowerment Sense of purpose PANEL – Participation Collaboration PANEL - Participation Person-centred FREDA + PANEL Developing perspectives Resilience PANEL – Empowerment PANEL – empowerment FREDA - dignity, resilience Being believed in PANEL – Empowerment Tool How Assessment should acknowledge service-users’ strengths and embed a positive risk management approach within the culture of services. Helps service users to “own” their own risk assessment and to be involved in decisions. Least restrictive approach allows greater access to community activities or work opportunities. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. Approach strongly embedded in person-centred principles. Involves development of a person-centred plan. Formulation helps to develop understanding of behaviour from different perspectives. Recognises that people can learn from past experiences, and that working within a “leastrestrictive” approach allows for people to make mistakes and learn from them rather than be punished. A least-restrictive approach encourages services to 82 Rights at risk staff manual amendments V1 7.2.15 Mental Capacity Act Being listened to Social inclusion Non-blaming Assumption autonomy Assumption capacity PANEL – participation, non-discrimination, empowerment FREDA FREDA – equality, fairness PANEL – nondiscrimination FREDA + PANEL of FREDA – Autonomy of Facilitating participation PANEL – nondiscrimination, empowerment FREDA – Autonomy, respect PANEL – participation Quality of life PANEL + FREDA PANEL + FREDA FREDA Working interests in Least restrictive best - autonomy, have faith in service users and to believe in them. The collaborative nature of the assessment encourages services to listen to SUs and to take their views into account when formulating and planning assessments. The approach focuses on helping people to avoid being excluded from services or activities through thinking about ways to facilitate involvement and minimise risks. The ethos of this approach is to approach risk in a person-centred way which does not allocate “blame” for risk, but instead uses FREDA and PANEL principles to help think about risk within a wider context The assessment facilitates asking about choices and helping these choices to become a reality. It is assumed that service users have a capacity to contribute to their risk assessment and to be included within the decision making process. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. Through facilitating service users in being able to make choices about their lives they will be able to access activities that improve their quality of life. The approach strongly advocates working in the best interests of the service user and to consider this when making decisions which affect them. A person-centred human-rights based approach 83 Rights at risk staff manual amendments V1 7.2.15 fairness, dignity Positive Behaviour Support requires taking the least restrictive approach at all times when making decisions, and using the assessment helps facilitate this This approach acknowledges that it is the right of everyone to be able to make unwise decisions, and a taking a least restrictive approach allows service users to make decisions without being punished for making mistakes. Service users are involved in decision making at every level, and they are encouraged to make choices about all aspects of their life including their care. Right to make unwise decisions FREDA Encourage preferences of care Advocacy PANEL – empowerment, nondiscrimination, participation FREDA – fairness, autonomy PANEL – empowerment, legality FREDA – autonomy Knowing service users’ preferences helps staff and services to advocate for them, and the tool facilitates service users in expressing their wishes. FREDA + PANEL Quality of life PANEL + FREDA Collaboration Least restrictive FREDA – equality, autonomy PANEL – participation, empowerment FREDA - autonomy, By seeking input from service users when completing the tool, developing a formulation and making a plan, the tool encourages the rights and values of service users to be respected. Through facilitating service users in being able to make choices about their lives they will be able to access activities that improve their quality of life. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. Respecting and values rights A person-centred human-rights based approach 84 Rights at risk staff manual amendments V1 7.2.15 fairness, dignity Advocating PANEL – empowerment, legality FREDA – autonomy FREDA + PANEL Person-centred PANEL – participation FREDA - equality Facilitating communication PANEL – participation, empowerment, nondiscrimination Expressing rights PANEL + FREDA Proactive strategies PANEL + FREDA FREDA – equality, autonomy PANEL – participation, empowerment PANEL + FREDA Working partnership Service User Collaboration Involvement Facilitating in requires taking the least restrictive approach when making decisions, and using the assessment helps facilitate this Knowing service users’ preferences helps staff and services to advocate for them, and the tool facilitates service users in expressing their wishes. The approach is strongly embedded in person-centred principles. Involves development of a person-centred plan. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. The tool facilitates good communication through encouraging staff and service users to have conversations about their care, and will give service users a means to express their views and feel heard. The visible human rights element to the assessment ensures that both staff and service-users are aware of the interaction between risk and human rights, and gives an opportunity for all to be aware of and express their rights. By taking a least restrictive and human rights based approach, services are encouraged to put in place proactive rather than reactive strategies to avoid risk situations. The tool is completed collaboratively between service users and staff and opinions are sought and listened to. The tool is completed collaboratively between service 85 Rights at risk staff manual amendments V1 7.2.15 Engagement Enabling voices PANEL – empowerment, nondiscrimination, participation FREDA – fairness, respect, autonomy PANEL + FREDA Sharing power Participation PANEL + FREDA social centred PANEL – Participation, accountability, nondiscrimination, empowerment FREDA - Equality FREDA + PANEL Rights FREDA + PANEL Values FREDA + PANEL Promoting inclusion Person approach users and staff and opinions are sought and listened to. Knowing service users’ preferences helps staff and services to advocate for them, and the tool facilitates service users in expressing their wishes. The tool encourages staff and service users to communicate about many different topics, and requires staff to regularly talk to service users about their preferences. By making decisions collaboratively and taking the views of all parties into consideration, the assessment aims to help service users feel in control of their lives. The tool is completed collaboratively between service users and staff and opinions are sought and listened to. Service users are encouraged to participate fully throughout. The approach focuses on helping people to avoid being excluded from services or activities through thinking about ways to facilitate involvement and minimise risks. The approach is strongly embedded in person-centred principles. Involves development of a person-centred plan. The visible human rights element to the assessment ensures that both staff and service-users are aware of the interaction between risk and human rights, and gives an opportunity for all to be aware of and express their rights. By seeking input from service users when completing 86 Rights at risk staff manual amendments V1 7.2.15 PANEL – empowerment, legality FREDA – autonomy Promoting Choice Empowerment FREDA – equality, autonomy PANEL – participation, empowerment PANEL Collaboration PANEL Advocating Promoting Independence Personcenteredness PANEL – empowerment, legality FREDA – autonomy FREDA – equality, autonomy PANEL – participation, empowerment PANEL + FREDA Least Restrictive FREDA - autonomy, fairness, dignity Protection PANEL – legality Positive Risk Consultation Managemen t from the tool, developing a formulation and making a plan, the tool encourages the rights and values of service users to be respected. The tool encourages consultation between professionals and takes a multi-disciplinary approach – developing a shared risk plan can facilitate this consultation. Service users are involved in decision making at every level, and they are encouraged to make choices about all aspects of their life including their care. Helps service users to “own” their own risk assessment and to be involved in decisions. The tool is completed collaboratively between service users and staff. Opinions are sought and listened to. Knowing service users’ preferences helps staff and services to advocate for them, and the tool facilitates service users in expressing their wishes. Through using a least restrictive approach, service users are encouraged to be able to make choices about what they want to do, and to be as independent as possible within the context of their needs. Approach strongly embedded in person-centred principles. Involves development of a person-centred plan. A person-centred human-rights based approach requires taking the least restrictive approach at all times when making decisions, and using the assessment helps facilitate this While working within a least restrictive approach, the 87 Rights at risk staff manual amendments V1 7.2.15 harm Mental Health Act Least restrictive FREDA + PANEL Rights FREDA + PANEL PANEL + FREDA PANEL – participation, empowerment PANEL – legality, nondiscrimination FREDA – fairness, respect FREDA – respect FREDA fairness Collaboration Involvement decisions Maximising wellbeing Protection harm and in from Respect Effectiveness, efficiency and equity principle – equality, assessment still puts safety at its’ heart and allows for open discussions about risks and harm to the service user and/or to others. A person-centred human-rights based approach requires taking the least restrictive approach at all times when making decisions, and using the assessment helps facilitate this. The visible human rights element to the assessment facilitates both staff and service-users to be aware of the interaction between risk and human rights, and gives an opportunity for all to be aware of and express their rights. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. Through facilitating service users in being able to make choices about their lives they will be able to access activities that improve their quality of life and wellbeing While working within a least restrictive approach, the assessment still puts safety at its’ heart and allows for open discussions about risks and harm to the service user and/or to others. The assessment encourages respect of service users in terms of ensuring that they are listened to, consulted and their needs are met within a human rights framework. The assessment tool aims to make decision making more effective in that by making decisions collaboratively they are more likely to be adhered to, and these decisions are 88 Rights at risk staff manual amendments V1 7.2.15 Participation PANEL - participation made equitable through the involvement of multiple stakeholders. The tool is completed collaboratively between service users and staff and opinions are sought and listened to throughout. 89 Rights at risk staff manual amendments V1 7.2.15 Appendix C Development of ‘Rights at Risk’ Consistent with a human rights approach, the ‘Rights at risk’ plan was co-produced with staff in adult mental health services to adapt existing human rights risk assessment tools developed in learning disability services. Discussions with clinicians, along with a review of the evidence-base and policy, informed the ‘Rights at risk’ plan. Interviews with staff in adult mental health services identified that risk management, ownership of risk, the therapeutic relationship, criminality and mental health and providing a rationale for asking questions were key considerations in their clinical practice. These are each discussed in turn below. A key objective of the tool is to facilitate service-user involvement with risk assessment and management. Positive Risk Management Risk assessment was reportedly viewed as being problem-focussed with less attention being paid to existing coping strategies. Staff also mentioned that social stigma about service users of mental health services being “risky” shaped their decision-making through focussing on “concrete” areas to alleviate uncertainty rather focussing on the factors which mitigate the risk. However, practitioners acknowledged the importance of “weighing the risk up”. To help facilitate the principles of positive risk management: service user’s protective factors and coping strategies are listed as an assessment item within the shared safety plan, the human rights based formulation offers a framework to “weigh risk up” and helps to provide an understanding of the context in which the risks identified arise and are mitigated. the principles of proportionality are clearly outlined and the language of the human rights based formulation has been changed to focus on activation of human rights rather than on “risks”. Ownership of Risk It was felt that the ‘Rights at risk’ plan should make clear that the ownership of risk was a shared responsibility between the care team, the service-user and their carers and should help those involved identify the strengths which they bring to the partnership. Staff acknowledged, however, that they remained mindful of their legal responsibilities and the ‘blame culture’ within the NHS. The title of ‘Rights at risk: Shared rights, risk and recovery plan_’ was selected to communicate the joint venture in the ownership of risk. The process of collaboration with the service-user at every stage of the process is hoped to promote participation in the development of the management plan to empower them to take responsibility. In addition, the ‘Rights at risk’ plan supports you to justify the decisions you make and fulfil your responsibilities as the Human Rights Act underpins all law. You are asked to consider your 90 Rights at risk staff manual amendments V1 7.2.15 legal responsibilities within the development of the management plan and decision making processes are clearly documented within the plan. Relationships The risk assessment process was viewed as a dynamic process underpinned by the therapeutic relationship and rapport developed with the service-user. Risk assessment and management is therefore more than the tools utilised and relies upon the skill set which practitioners foster to develop warm, trusting, therapeutic relationships. It was acknowledged that this can be difficult when service-users disagree with their treatment. The way in which the ‘Rights at risk’ plan is completed is of central importance in supporting the development of a warm therapeutic relationship. Your interpersonal style and clinical skills are largely viewed as the tools to support this. The tool has been constructed in a way to promote collaboration with the aim to reduce the power imbalance inherent amongst the roles of mental health practitioner and service user/carer. It also promotes transparency and respect by attempting to elicit the views of service users’ in relation to their care plans. Whilst disagreements within the care plan may exist, it is hoped that by listening to these views, the service user will feel validated and thus contribute towards the development of a therapeutic relationship. Criminality and Mental Health Risks to others was deemed fundamental within risk assessment. It was noted mental health practitioners were often tasked with the responsibility of determining whether criminal behaviour was born from mental illness and psychological distress or simply a criminal act. It was believed that clarification of this distinction would have different implications for the risk management plan. Whilst noted to be a difficult task, practitioners identified consideration of motivation and context in which behaviour occurs facilitates clarification of this distinction. Furthermore they felt exploration of service users belief system was of paramount importance, particularly establishing if any beliefs which could be classified as delusional motivated the behaviour. Risk to others is a key domain of exploration within the ‘Rights at risk’ plan. Prompts are provided to facilitate consideration of the motivation underlying the behaviour and mental health, including unusual belief systems. Context is also explored within human rights based risk formulation to help provide an understanding of why the behaviour occurred to inform the risk management plan. Providing a rationale for the questions we ask Practitioners acknowledged exploration of risk often required sensitive and intrusive questions to be asked and felt that sometimes the focus upon risk may contribute to service user’s experience of being stigmatised as “risky”. Practitioners also reported that feeling confident and having a clear rationale for asking questions helped with asking difficult questions. The ‘Rights at risk’ plan aims to offer a clear rationale of why questions have been included. 91 Rights at risk staff manual amendments V1 7.2.15 Accessibility The ‘Rights at risk’ plan aims to utilise simple, lay language and avoid the use of clinical jargon. The layout of the plan, including the inclusion of icons aims to make the information clear and concise so the ‘Rights at risk’ plan is accessible to service users and their carers and promotes collaboration and engagement. 92 Rights at risk staff manual amendments V1 7.2.15 Terms and Conditions Important information on ‘Rights at Risk’. By using this guide you agree to comply with the following terms: 1. Disclaimer The ‘Rights at Risk’ resources have been developed by Mersey Care NHS Trust and funded by the Equality and Human Rights Commission, in partnership with the British Institute of Human Rights. The guide has been piloted for use within mental health services but has not yet been researched on a wider basis. This version is therefore intended for use alongside the risk assessment and management structures of the Care Programme Approach. Whilst every reasonable care has been taken to ensure the accuracy and suitability of this guide, neither the authors, Mersey Care NHS Trust, the British Institute of Human Rights nor the Equality and Human Rights Commission can accept any responsibility for any action taken, or not taken, on the basis of this guide. The authors, Mersey Care NHS Trust, the British Institute of Human Rights, or the Equality and Human Rights Commission shall not be liable to any persons for any loss or damage which may arise from the use of the ‘Rights at Risk’ resources. Nothing in the above disclaimer shall restrict or exclude liability for death or personal injury caused by the negligence of Mersey Care NHS Trust. 2. ‘Rights at Risk’ Resources Limitations The ‘Rights at Risk’ resources may become out of date over time, require modification or replacement as new data and protocols are published. Users of this guide have the responsibility to be fully aware of current best practice and to use their own judgement in using the guide to support their decisions. 3. Intellectual Property The ‘Rights at Risk’ resources are an Equality and Human Rights Commission funded publication. They should not be altered without the permission of the Equality and Human Rights Commission and the authors. 93
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