This report was produced under the supervision of Ernest Massiah, Director UNAIDS Caribbean Support Team The research, data quality control and validation, and writing of the report were coordinated by Bilali Camara who supervised the team responsible for the production of the report. The team includes Maxine Jackson-Ghent, Jose Picans, Natalie Sydney, Shelona Ali, Emmanuel Villafana and Cheryl O’Neil who provided administrative and editorial support. Thanks to the following individuals for their suggestions and written contributions to this publication: Civilla Kentish (Anguilla), Delcora Williams (Antigua and Barbuda), Perry Gomez (The Bahamas), Henrick Ellis (Barbados), Nigel Taylor (Barbados), Carol Jacobs (CBMP, Barbados), Allyson Leacock (CBMP, Barbados), William Conn (PEPFAR, Barbados), Tracy Robinson (UWI, Barbados), Marvin Manzanero (Belize), Julie Frampton (Dominica), Felipe Garcia (Dominican Republic), Paula Disla (Dominican Republic), Shanti SinghAnthony (Guyana), Miriam Edwards (CVC, Guyana), Ryan Rawlins (Guyana), Carl Browne (PANCAP, Guyana), Suzanne A. French (Guyana), Joëlle Daes-van Onacker (Haiti), Jean William Pape (Haiti), Nathalie Cameau Legros (Transgender, Haiti), Pamelon Nickenson (Haiti), Kevin Harvey (Jamaica), Ian McKnight (CVC, Jamaica), Dwayne Gutzmer (CARICOM Youth Ambassador, Jamaica), Peter Figueroa (UWI, Jamaica) Brendan Bain (UWI, Jamaica), Gardenia Destang-Richardson (St Kitts and Nevis), Nahum Jean Baptiste (St. Lucia), Erma Jules (St. Lucia), Marcus Day (CDARI, St. Lucia), James St Catherine (OECS, St. Lucia), Del Hamilton (St. Vincent and the Grenadines), Firoz Abdoel Wahid (Suriname), Kenneth van Emden (Suriname), Wendy Fitzwilliam (Trinidad and Tobago), Andy Fearon (Trinidad and Tobago), Yolanda Simon (CRN+, Trinidad and Tobago), David Soomarie (CARe, Trinidad and Tobago), Colin Robinson (CAISO, Trinidad and Tobago), Ashily Dior (Transgender, Trinidad and Tobago), Suzy Q (Transgender, Trinidad and Tobago), Carmen (Transgender, Trinidad and Tobago), Tanoa (Transgender, Trinidad and Tobago), Colleen Connell (Clinton Foundation) and the United Nations, Kwame Boafo (UNESCO), Mark Connolly (UNICEF), Giovanni di Cola and Madhuri Supersad (ILO), Maria Tallarico and David Ruiz Villafranca (UNDP), Amalia del Riego (PAHO/WHO), Federico Duarte (UNHCR), Shiyan Chao (World Bank), Hugo Farias (WFP), Karen Stanecki , Michel de Groulard, Walter Saba, Reeta Bhatia, Ruben del Prado, Izola Garcia, Ernesto Guerrero, Anita Navarro, Pierre Somse, Yordana Dolores, Kate Spring, Beatrice Dalencour-Turnier, Melissa Sobers, Otilia St. Charles, Erva Stevens and Sandra Smith (UNAIDS). All rights reserved. Publications produced by UNAIDS can be obtained from the office of the UNAIDS Caribbean Regional Support Team (CAR-RST). Requests for permission to reproduce or translate UNAIDS publications whether for sale or non-commercial distribution should also be addressed to the office of the UNAIDS Caribbean Regional Support Team (CAR-RST ) at the address below or by fax, at 1-868-623-8516 or email [email protected] The designations employed and the presentation of the material in this publication do not imply the expression of any opinion whatsoever on the part of UNAIDS concerning the legal status of any country, territory, city or of its authorities, or concerning the delimitation of its frontiers or boundaries. WHO Library Cataloguing-in-Publication Data KEEPING SCORE III THE VOICE OF THE CARIBBEAN PEOPLE UNAIDS/2011 1. Acquired immunodeficiency syndrometreatment, care and support. 2. HIV infections-therapy. 3. HIV infections-statistics. 4. HIV infections-prevention. 5. Delivery of health care. 6. Human Rights. Caribbean Region. 7. UNAIDS Programme Effectiveness and Country Support Department. ISBN 978-976-8210-43-2 (NLM classification WC 503.4 DC3) The mention of specific companies or of certain manufacturers’ products does not imply that they are endorsed or recommended by UNAIDS in preference to others of a similar nature that are not mentioned. Errors and omissions excepted, the names of products are distinguished by initial capital letters. www.unaidscaribbean.org Disclaimer Photographs in this report do not necessarily represent the situation, opinions, or beliefs of the persons depicted, and in no way imply their HIV status. UNAIDS Caribbean Regional Support Team 3A Chancery Lane, UN House PO Box 812, Port of Spain The Republic of Trinidad & Tobago Dedication This publication is dedicated to Dr. Robert Carr Robert, a son of the Caribbean, was an activist, a scholar, a social worker, a social networker and a family man and was a bright and visionary soldier for human rights. He demanded that we respect the rights of every person, whatever their sexual, social, political or economic background, and if not, we were abdicating our responsibility to respect and uphold the human rights of all people. The death of this Caribbean champion reminds us of others like Godfrey Sealy and Geoffrey Stanforde (Trinidad and Tobago), Salomon Wellington Adderley (The Bahamas), Kerwin Jarvis (Antigua and Barbuda), Michael Fox (Bermuda), Keith Andre Sobryan (Guyana), Joseph Robinson (Jamaica), Juanita Altenberg (Suriname), Emilie Damier and Eddy Génecé (Haiti) and Barrington Wint and Dorothy Blake (Jamaica). They have left us but will not be forgotten. Ernest Massiah Director UNAIDS Caribbean Regional Support Team Port of Spain, Trinidad and Tobago, WI www.unaidscaribbean.org | KS III | 1 List of Abbreviations AIDS Acquired Immune Deficiency Syndrome LGBT Lesbian, Gay, Bisexual and Transgender ANT Antigua and Barbuda MARPs Most-at-Risk Populations ART Antiretroviral Treatment M&E Monitoring and Evaluation BDO Barbados MSM Men who have Sex with Men BEL Belize MSW Male Sex Workers BHA The Bahamas NASA National AIDS Spending Assessment CAISO Coalition Advocating for Inclusion of Sexual Orientation NSP National Strategic Plan CAREC Caribbean Epidemiology Centre OECS Organisation of Eastern Caribbean States CARICOM Caribbean Community PAHO Pan American Health Organization CDARI Caribbean Drug and Alcohol Research Institute PANCAP Pan Caribbean Partnership Against HIV/AIDS CDC Centers for Disease Control and Prevention PCR Polymerase Chain Reaction CD4 Cluster of Differentiation 4 PEPFAR US Presidential Emergency Plan for AIDS Relief COPRESIDA Consejo Presidencial del Sida PLHIV People Living with HIV CRN+ Caribbean Regional Network of People Living with HIV PMTCT Prevention of Mother-to-Child Transmission CRTA Caribbean Regional Trans in Action PNLS Programme National de Lutte contre le SIDA CSWC Caribbean Sex Worker Coalition SKN St. Kitts and Nevis CUB Cuba SLC St. Lucia CVC Caribbean Vulnerable Communities Coalition SVG St. Vincent and the Grenadines DHS Demographic and Health Surveys SUR Suriname DNA Deoxyribonucleic Acid SW Sex Workers DOM Dominica TB Tuberculosis DOR The Dominican Republic TNT Trinidad and Tobago FSW Female Sex Workers UNDP United Nations Development Programme GFATM Global Fund for AIDS, Tuberculosis and Malaria UNESCO United Nations Educational, Scientific and Cultural GHESKIO Groupe Haïtien d’Etudes du Sarcome de Kaposi et des Organization Infections Opportunistes UNFPA United Nations Population Fund GRE Grenada UNGASS United Nations General Assembly Special Session GUY Guyana UNICEF United Nations Children’s Fund HAI Haiti UNHCR United Nations High Commissioner for Refugees HIV Human Immunodeficiency Virus USD United States Dollar IASC Inter-Agency Standing Committee USAID United States Agency for International Development ILO International Labour Organization UWI University of the West Indies JAM Jamaica WHO World Health Organization 2 | KS III | www.unaidscaribbean.org 4 Foreword 5 Fast Facts (SpaniSh, EngliSh, and FrEnch) 7 Key Recommendations 16 Where Are We in the Epidemic? 25 The Caribbean Scorecard 37 Country Scorecard 86 What Do You Say? 87 A Human Rights Activist’s Report 88 Reporting without Prejudice and Sensationalism in the Caribbean Media (SpaniSh, EngliSh, and FrEnch) The Voice of The cAribbeAn PeoPLe CONTENTS 105 The Voice of the Pan Caribbean Partnership (PANCAP) on HIV/AIDS 106 A Regional Manager’s Feedback 107 The Voice of Academia 108 The Voice of Bilateral Agencies 109 Role of Caribbean Business in the HIV Response 110 The Voice of the UnaidS co-Sponsors What are the challenges? 89 From Carol Elizabeth Jacobs 90 The Voice of a Middle Class Gay Man in Kingston, Jamaica 91 gay and living with hiV 112 92 a gay leader Speaks-Out From paramaribo 113 93 life of a gay Man in a Small Eastern caribbean Setting human rights: caribbean constitutional Standards and the Rights of Sexual Minorities 115 gender: rethinking gender in the caribbean 94 The Voice of a gay Man living in guyana 116 95 la Vie d’un gay en haiti (life of a gay Man in haiti) Transgender: looking Back and Thinking about Tomorrow 96 living with hiV in the caribbean 119 la Vie d’une personne Transgenre en haiti (life of a Transgender in Haïti) 97 living with hiV in the dominican republic: Testimonio (Testimony) 120 Addressing HIV in Humanitarian Settings 98 Sex Work and HIV in the Caribbean 122 la Situation après le Séisme en haïti vue par Jean Pape 99 A Male Sex Worker in a Small Caribbean Setting 124 Improving Strategic Information on HIV 100 HIV and the Drug Use Situation in the Caribbean 126 Sustainability of AIDS Programmes 102 living with hiV and Being on drugs 103 Young and living in a World of aidS 104 Faith and HIV Response in the Caribbean 127 From Wendy Fitzwilliam Former Miss Universe and UN Goodwill Ambassador for HIV/AIDS www.unaidscaribbean.org | KS III | 3 FOREWORD This publication, Keeping Score III, presents strong evidence of progress in the Caribbean in responding to HIV, and it also makes clear how much work remains to be done. during the period under review (20082009), national authorities have worked to keep HIV high on national agendas and mobilise domestic and international resources to scale-up access to HIV prevention, treatment, care and support. This has been done in collaboration with the Pan caribbean partnership/caricOM, civil society, international partners such as UnaidS and its co-sponsors (UnicEF, pahO/WhO, Unhcr, UnFpa, ilO, World Bank, Undp, UnEScO, WFp and UnOdc) and donors e.g. pEpFar, GFATM, KfW and DFID. One of the key accomplishments was in the area of prevention of mother-to-child transmission of hiV to such an extent that the prospect of eliminating new HIV infections among children has become a real possibility in the Caribbean. Four countries have reduced their new HIV infections by 25% between 2001 and 2009. In addition, improved access to antiretroviral treatment has contributed to a 43% decline in the number of aidS-related deaths. Since 2008, the region has been grappling with the consequences of the global financial crisis coupled with competing public health priorities. To ensure sustainability and make new gains, Caribbean authorities must address: the high level of new infections; predominantly vertical interventions; the heavy dependence of the HIV response on external funding; stigma and discrimination against key populations; issues around gender; vulnerability of women and girls; and building an enabling environment to broaden access to HIV services by the key populations. As young people play a key role in the social transformation process, we need to nurture youth leadership to guide the future response to HIV. New leadership at all levels, more voices and new faces are necessary for the social movement for change to address the HIV epidemic in a comprehensive manner. We, the UN family and the PANCAP/ caricOM support this new orientation. We are confident that our renewed commitment and our joint and coordinated support to Caribbean countries will result in the necessary change to break the back of the HIV epidemic. Dr Ernest Massiah Director UNAIDS Caribbean Regional Support Team Port of Spain Trinidad and Tobago Ms Myrna Bernard Officer-in-charge directorate of human & Social development caricOM Secretariat Georgetown, Guyana Brent Aasen Regional Director UNICEF Panama Pedro Medrano regional director for latin america & the caribbean World Food Programme Panama Dr Kwame Boafo director and representative Kingston cluster Office for the caribbean Kingston Jamaica Ana Teresa Romero, Ph.D Director international labour Organisation Port of Spain Trinidad and Tobago Heraldo Munoz regional director of rBalc UNDP panama-city Panama Dr Hernando Agudelo Deputy Director United nations population Fund Kingston Jamaica Dr Mirta Roses Periago Director pahO/WhO Washington D.C. USA D David Wilson Program Director Global HIV/AIDS Program The World Bank Washington D.C. USA Marta Juarez Director Bureau for the Americas, Geneva UNHCR Jose Vila del Castillo Regional Advisor Costa Rica UnOdc project Office San Jose 4 | KS III | www.unaidscaribbean.org Since its inception in 1981, the HIV epidemic has affected all the Caribbean people, especially men who have sex with men, sex workers, crack cocaine users and prisoners; and it has also become an issue among Caribbean women. However, there are differences between countries in the sense that there are countries where women are more affected than men; these include The Bahamas, Belize, the Dominican Republic and Haiti. In Guyana, HIV affects men and women equally, but in countries like Barbados, Jamaica, Trinidad and Tobago, Cuba and Suriname there are more men than women living with HIV. The adult HIV prevalence varies between countries from 0.1% in Cuba the lowest, to the Bahamas with 3.1%, the highest. Again, data show that there are three categories of countries. Guyana, Haiti and Jamaica have seen declining HIV prevalence from 2001 to 2009; in the Bahamas, Dominican Republic and Suriname there is a stable trend; and in Barbados, Belize, Cuba, and Trinidad and Tobago there is an increasing trend. Regarding HIV incidence in 2009, Belize, the Dominican Republic, Jamaica and Suriname have reduced their cases by 25% while a stable trend was observed in haiti. Overall, the caribbean has reduced its number of new hiV infections by 14%. For UNGASS reporting, the Caribbean was the first region in the world to submit all national reports on time. However, only 38% of countries reported on more than 50% of the relevant UNGASS indicators, compared with 81% in the previous reporting period. Six countries are without updated National Strategic Plans or a Monitoring and Evaluation framework. Of concern is that the vast majority of indicators for which information is not available are related to MSM, SW, orphans and vulnerable children, and HIV knowledge, behaviours and practices among general population groups. This situation needs improvement as it is established that the epidemic is disproportionately affecting men who have sex with men, sex workers, crack cocaine users and prisoners, and reaching the general population as well. FAST FACTS In 1981, thirty years ago, the Caribbean was confronted by a new epidemic when its first cases of AIDS were recorded in Haiti. This is one of the oldest HIV epidemics in the world and it is still growing. Data show that from 2001 to 2009, the number of people living with hiV (plhiV) increased by 10,000 to 260,000 in the wider caribbean. The 1% adult HIV prevalence in the Caribbean is the second highest in the world, and the highest in the americas. in 2009, there was a 43% decline in aidS-related deaths but hiV remains the leading cause of death among people 20-59 years old, with 33 deaths on a daily basis. Also, during that year, there werean estimated 50 new HIV infections occurring every day and the total number of orphans due to AIDS was 140, 000. in total, 12 of 16 countries reported on their aidS spending for 2008-2009. USd 497 million was spent on AIDS with the majority of resources i.e. 64% coming from external sources. Only 32% went to prevention in a region where the reduction of new HIV infections remains a serious challenge. According to the National Composite Policy Index report, while the majority of countries have developed HIV policies, in some cases they have not been www.unaidscaribbean.org | KS III | 5 approved and in others, they have not been implemented. Generally the involvement of civil society in the national HIV response is limited, if not poor. In the area of blood safety, with the exception of the Dominican Republic, all countries screen 100% of donated blood units. The region has achieved a 48% coverage for ART, with 29% among children. For prevention of motherto-child transmission of hiV, eleven countries reported that more than 90% of the annual cohorts of pregnant women are tested for HIV; there was a 59% coverage for PMTCT in 2009. The caribbean needs to see a rapid scaleup of ART and PMTCT. The screening and management of TB/ hiV co-infection is low in countries with serious co-infection issues such as the Dominican Republic, Haiti, and Trinidad and Tobago, and this situation needs immediate improvement. life-skills hiV education is a good tool to prepare young people to protect themselves against HIV. Unfortunately there are seven countries (Belize, Dominican Republic, Haiti, Jamaica, St. Kitts and Nevis, Suriname and Trinidad and Tobago) where the percentage of schools offering HIV 6 | KS III | www.unaidscaribbean.org education varied from 0% to less than 45%. This situation must be addressed as among young people, early initiation of sexual activity remains high in the majority of countries and this is not generally accompanied by consistent use of condoms. Also, the level of condom use and HIV testing behaviour is low in the general population. This needs to be remedied in the short term. Among MSM and sex workers, it is essential to make HIV testing services, condoms and other commodities available and accessible as essential components of the response to HIV. But the majority of countries do not report on these indicators. Challenges identified in national UNGASS reports, and the feedback from National AIDS programme managers, other leaders and cosponsors include limited availability and use of strategic information for planning, lack of understanding of gender issues, sustainability of AIDS programmes and human rights issues including stigma and discrimination. To respond effectively to all these issues, national leadership at all levels should work together to promote and implement the following key recommendations. Key recommendationS 1 NEW HIV INfEcTIoNs AMoNg cARIBBEAN cHIlDREN cAN BE ElIMINATED By 2015 2 NEW HIV INfEcTIoNs sloWINg BuT slIgHTly ouTPAcE TREATMENT succEss 3 TreaTmenT musT improVe, be less expensiVe and sCaled-up 4 aids-relaTed deaThs need furTher deCline 5 A loT of TAlK ARouND HuMAN RIgHTs BuT VERy lIT TlE cHANgE oN THE gRouND 6 gENDER IssuEs NEED REVIsITINg IN THE cARIBBEAN 7 sTRATEgIEs To ENsuRE susTAINABIlITy IN TIMEs of scARcITy ARE PARAMouNT In 2009, 4,400 pregnant women living with HIV benefitted from interventions to prevent HIV transmission to their babies. This represents 59% coverage from 22% in 2005. The impact of these programmes is that fewer children are born with HIV in the Caribbean. By adopting a faster pace and using efficacious drug regimens, it is possible to reach out to the 41% who did not get access to these interventions and eliminate HIV among children by 2015. For every five persons put on ART in 2009 there were seven new HIV infections. For every 1,000 people who died of an aidS-related illness there were 1,500 new hiV infections. Therefore while scaling-up treatment, more resources should be allocated to ensuring sustainable prevention programmes to invest in evidencebased interventions firstly among most at-risk populations, young people and then the general population. in 2009, 110,000 plhiV needed treatment, but only 52,400 received it, which represents a 48% coverage. This has resulted in a 43% reduction in deaths due to aidS-related illnesses. Still 52% i.e. 57,600 people who need treatment are not accessing it. Concerning ART, only 38% of countries achieved a 90% survival rate of plhiV at 12 months after initiation of therapy. The number of deaths due to aidS-related illnesses declined from 21,000 in 2001 to 12,000. This is a direct benefit from treatment programmes whose coverage went from 1% in 2004 to 48% in 2009. However, there is still a need to scale-up treatment, as every day 33 people have died of aidS-related illnesses in 2009. All countries have integrated some elements of human rights in their national response to HIV, however in many instances new policies were not approved or implemented. Eleven out of the 16 Caribbean states have laws that criminalise consensual same sex sexual encounters and two states have restrictions on travel for plhiV. Stigma and discrimination remain a challenge and need to be addressed at all levels to support the scale-up towards universal access. gay men, transgender people, sex workers, plhiV and crack cocaine users all confront stigma and discrimination on a daily basis. Involvement of civil society in the national HIV response should be greater and strengthened at all levels. HIV affects women and girls and is disproportionately affecting transgender persons as well, therefore, gender issues cannot be limited to the role or place defined for men and women in society. Discussions around gender must be reopened to achieve a clear understanding of how many genders exist in the Caribbean and what role sexual orientation plays in the redefinition of gender. Issues confronting gay, transgender or transsexuals should be taken into consideration in this debate. Serious consideration should also be given to issues around gender-based violence and hiV and the monitoring of this dimension within the hiV epidemic. The Caribbean regional response relies heavily on external resources. During the past two years, 64% of all resources spent on AIDS were from external sources. This needs to be changed and national authorities must commit national resources to respond to HIV if gains are to be sustained and expanded. Sustainability could be achieved by using new approaches such as achieving true multi-sectoral involvement, investing in strengthening health systems, integration of HIV interventions, decentralisation of services including HIV in humanitarian settings, new approaches to collect strategic information such as internet-based surveys, and use of evidence to guide planning to focus national attention and allocate resources for interventions among population groups where new HIV infections are occurring the most. www.unaidscaribbean.org | KS III | 7 AVANT-PROPOS Cette édition, « Keeping score III », atteste des nets progrès de la réponse au VIH dans la Caraïbe, et montre aussi la quantité de travail qui reste à faire. pendant la période revue (2008-2009), les autorités nationales ont gardé le VIH à un niveau élevé dans les programmes de développement et ont mobilisé des ressources nationales et internationales pour améliorer l’accès à la prévention du VIH, au traitement, aux soins et soutien. ce progrès a été réalisé en collaboration avec le partenariat pan-caribéen de lutte contre le Sida/caricOM, la société civile, les partenaires internationaux tels que l’OnUSida et ses organisations co-parrainantes (UnicEF, OpS/OMS, hcr, UnFpa, OiT, la Banque Mondiale, pnUd, UnEScO, paM et OnUdc) et les donateurs, essentiellement PEPFAR, Fonds Mondial, KfW et DFID. Une des réalisations clé a été faite dans le domaine de la prévention de 8 | KS III | www.unaidscaribbean.org la transmission mère-enfant du Vih, au point que la perspective d’éliminer le VIH chez les enfants est devenue une réalité potentielle dans la Caraïbe. Quatre pays ont réduit le nombre de leurs nouvelles infections VIH de 25% entre 2001 et 2009. l’accès amélioré aux traitements antirétroviraux a contribué à une diminution de 43% du nombre de décès liés au sida. Depuis 2008, la région affronte les conséquences de la crise financière mondiale, mais aussi d’autres priorités de santé publique devenues compétitives. Pour garantir la pérennité et obtenir de nouveaux gains, les autorités caribéennes doivent agir contre le niveau élevé de nouvelles infections; les interventions qui sont essentiellement verticales; la dépendance lourde de la réponse au VIH aux subventions externes; la stigmatisation et la discrimination contre les populations clés; le genre; la vulnérabilité des femmes et des jeunes filles; et pour la construction d’un environnement favorable pour améliorer l’accès aux services par les populations clés. les jeunes jouent un rôle clé dans le processus de transformation sociale, il faut susciter un leadership de la jeunesse pour l’avenir de la réponse au VIH. Mais aussi un leadership renouvelé à tous les niveaux, un plus grand nombre de voix et de nouveaux visages sont nécessaires pour le changement social qui répond a l’épidémie de VIH de manière exhaustive. Nous, la famille des Nations unies avec pancap/caricOM, soutenons cette orientation nouvelle. Nous sommes confiants que notre engagement renouvelé et notre soutien conjoint et coordonné aux pays des Caraïbes apporteront le changement nécessaire pour changer le cours de l’épidémie de VIH. la prévalence de 1% du Vih dans la population adulte de la caraïbe est la seconde plus élevée au monde, et la plus élevée du continent américain. En 2009, il y a eu une diminution de 43% des décès liés au sida, mais la maladie reste la première cause de décès dans la population âgée de 20 à 59 ans, avec 33 morts par jour. au cours de cette même année, on estime à 50 le nombre de nouvelles infections pa jour et le nombre total d’orphelins dus au sida est de 140 000. De son début a maintenant, l’épidémie de VIH a affecté l’ensemble de la population caribéenne, en particulier les hommes qui ont des rapports sexuels avec les hommes (HSH), les personnes impliquées dans le travail du sexe, les utilisateurs de crack, et les prisonniers. Elle est devenue un problème grave pour les femmes avec des différences d’intensité selon les pays au sens qu’il y a des pays où les femmes sont plus affectées que les hommes, comme les Bahamas, le Belize, la République Dominicaine et Haïti. Au Guyana, le VIH affecte autant les hommes que les femmes, mais dans des pays comme la Barbade, la Jamaïque, Trinité et Tobago, Cuba et le Surinam il y a plus d’hommes que de femmes qui vivent avec VIH. la prévalence du Vih dans la population adulte varie selon les pays de 0,1% à cuba, la plus basse, à 3,1% aux Bahamas. les données montrent aussi qu’il y a trois catégories de pays. le guyana, haïti et la Jamaïque ont vu une diminution de la prévalence du VIH de 2001 à 2009 ; aux Bahamas, en République dominicaine et au Suriname la tendance est à la stabilité ; à la Barbade, au Belize, à Cuba, et à Trinité et Tobago il y a une tendance à l’augmentation. Quant à l’incidence du VIH en 2009, le Belize, la République Dominicaine, la Jamaïque et le Surinam ont réduit le nombre de leurs nouveau cas de 25% alors qu’une tendance stable a été observée à en Haïti. En général les pays Caribéens ont réduit le nombre de nouvelles infections au VIH de 14%. En ce qui concerne le rapport de l’UngaSS, la caraïbe était la première région au monde à soumettre tous les rapports nationaux dans les délais. Toutefois, seulement 38% des pays ont soumis un rapport sur plus de 50% des indicateurs d’UNGASS, comparé à 81% dans la période précédente. Six pays n’ont pas de plan stratégique on de cadre de suivi et évaluation. Aussi, la grande majorité des indicateurs pour lesquels les informations ne sont pas disponibles sont ceux lies aux HSH, le travail du sexe, les orphelins et enfants vulnérables et sur la connaissance du VIH, les comportements et les pratiques parmi les groupes clés et la population générale. Cette situation doit être améliorée puisque l’épidémie affecte d’une façon disproportionnée les HSH, les milieux du travail du sexe, les utilisateurs de crack et les prisonniers et atteint aussi la population générale. au total, 12 des 16 pays ont soumis un rapport sur leurs dépenses en matière de sida pour 2008-2009. 497 millions de dollars américains ont été dépensé sur le sida avec la majorité des ressources (64%) provenant de l’extérieur et seulement 32% alloués à la prévention, dans une région où la réduction des nouvelles infections de L E S FA I T S E N B R E F En 1981, il y a trente ans, la Caraïbe a été confrontées à une nouvelle épidémie quand les premiers cas de sida ont été enregistrés en Haïti. Il s’agit d’une des plus anciennes épidémies de Vih dans le monde qui continue de s’accroitre. les données montrent que de 2001 à 2009 le nombre de personnes vivant avec VIH (PVVIH) a augmenté de 10 000 pour atteindre 260 000. www.unaidscaribbean.org | KS III | 9 le dépistage et la prise en charge de la coïnfection tuberculose/VIH sont insuffisants dans la plupart des pays avec des pourcentages élevés de coïnfection dans des pays comme la République Dominicaine, Haïti, et Trinité et Tobago, cette situation doit faire l’objet d’une amélioration immédiate. VIH reste un défi majeur. Selon le rapport de l’indice composé sur les politiques nationales, on note que la majorité de pays a développé des politiques VIH, mais dans certains cas elles n’ont pas été approuvées et dans d’autres, elles n’ont pas été mises en œuvre. d’une manière générale, l’engagement de la société civile dans la réponse nationale au VIH est limité, voire très faible. Dans le secteur de la sécurité transfusionnelle, à l’exception de la République Dominicaine, tous les pays testent 100% des dons de sang. la région atteint 48% de taux de couverture pour le traitement antirétroviral, avec 29% chez les enfants. Pour la prévention de transmission mère-enfant du Vih, onze pays ont rapporté que plus de 90% des cohortes annuelles de femmes enceintes sont testées pour le VIH ; il y avait 59% de taux de couverture pour la pTME en 2009. la caraïbe doit accroitre rapidement les traitements et la PTME. 1 l’éducation pour la compétence au Vih représente un bon outil pour préparer les jeunes à se protéger vis-à-vis du VIH. Malheureusement dans sept pays (Belize, République dominicaine, Haïti, Jamaïque, St Kits et Nevis, Surinam et Trinité et Tobago), le pourcentage d’écoles qui proposent une éducation pour le VIH varie de 0% à moins de 45%. Cette situation doit changer sachant que chez les jeunes, l’initiation précoce de l’activité sexuelle reste élevée dans la majorité de pays et ceci n’est généralement pas accompagné d’un usage régulier de préservatifs. Enfin, le niveau d’utilisation de préservatif et les habitudes en matière de dépistage au Vih sont insatisfaisants dans la population générale. On doit remédier à cela sur le court terme. En ce qui concerne les HSH, et les personnes impliquées dans le travail de sexe, il est impératif de rendre les services de dépistage au VIH, les préservatifs et les autres services disponibles et accessibles et d’en faire des composantes essentielles de la réponse au VIH. Mais la majorité de pays n’ont pas produit de rapports sur ces indicateurs. les défis identifiés dans les rapports nationaux de l’UngaSS, les réactions des directeurs de programmes nationaux, d’autres leaders et partenaires comprennent la limitation de la disponibilité et de l’usage de l’information stratégique pour la planification, le manque de compréhension des problèmes liés au sexe et au genre, la pérennité des programmes sida et les problèmes de droits humains. pour répondre efficacement à tous ces problèmes, les décideurs nationaux à tous les niveaux doivent travailler ensemble pour promouvoir et exécuter les recommandations suivantes. lEs NouVEllEs INfEcTIoNs Au VIH PEuVENT êTRE élIMINéEs cHEz lEs ENfANTs EN 2015 En 2009, 4 400 femmes enceintes vivant avec le VIH ont bénéficié d’interventions pour prévenir la transmission de Vih à leurs bébés. ceci représente 59% de taux de couverture, alors que ce taux était de 22% en 2005. l’impact de ces programmes est que moins d’enfants sont nés avec le VIH dans les Caraïbes. En adoptant un rythme plus rapide et utilisant les régimes de drogue efficaces, il est possible d’atteindre les 41% qui n’a pas eu accès à ces interventions et éliminer le VIH chez les enfants en 2015. 10 | KS III | www.unaidscaribbean.org 2 lE NoMBRE DE NouVEllEs INfEcTIoNs VIH RAlENTIT MAIs DIsTANcE lEs succès Du TRAITEMENT 3 lE TRAITEMENT DoIT s’AMélIoRER, êTRE MoINs cHER AVEc uNE couVERTuRE Plus lARgE 4 lEs Décès lIés Au sIDA DoIVENT DIMINuER DAVANTAgE 5 BEAucouP DE DIscouRs suR lEs DRoITs HuMAINs MAIs TRès PEu cHANgEMENT suR lE TERRAIN 6 lE gENRE DoIT êTRE REVIsITé DANs lA cARAïBE 7 lEs sTRATégIEs PouR gARANTIR lA PéRENNITé EN PéRIoDEs DE RARéfAcTIoN DEs REssouRcEs soNT EssENTIEllEs Pour cinq personnes mises sous antirétroviraux en 2009, il y avait sept nouvelles infections à VIH. Pour 1 000 personnes décédées de maladies liées au sida, il y a eu 1 500 nouvelles infections à VIH. Ainsi, tandis qu’on améliore l’accès au traitement, plus de ressources doivent être allouées à la pérennité des programmes de prévention pour investir dans des interventions basées sur la science, tout d’abord pour les populations les plus à risque, les jeunes et ensuite la population générale. En 2009 110 000 PVVIH ont eu besoin du traitement, mais seulement 52 400 en ont reçu, ce qui représente 48% de taux de couverture. ceci a eu pour résultat une réduction de 43% des décès en raison de maladies liées au sida. Cependant, 52% (57 600) des personnes qui ont besoin de traitement ne peuvent y accéder. Seulement 38% des pays a atteint un taux de 90% de survie de pVVih à 12 mois après l’initiation de la thérapie. le nombre de décès en raison de maladies liées au sida a chuté de 21 000 à 12 000 depuis 2001. ceci est un bénéfice direct des programmes de traitement dont le taux de couverture est passé de 1% en 2004 à 48% en 2009. Toutefois, il y a encore un besoin d’élargir l’accès au traitement, puisque tous les jours 33 personnes sont décédées de maladies liées au sida en 2009. Zéro décès liés au sida n’est pas hors de portée. Tous les pays ont intégré des éléments de droits humains dans leur réponse nationale au VIH, cependant dans beaucoup cas les nouvelles politiques n’ont pas été approuvées ou mises en œuvre. Onze des 16 états de la caraïbe ont des lois qui criminalisent les rapports sexuels consensuels de même sexe et deux états ont des restrictions sur la circulation des pVVih. la stigmatisation et la discrimination restent un défi et doivent être prises en compte à tous les niveaux pour soutenir la marche vers l’accès universel. les homosexuels masculins, les personnes transgenre, les personnes faisant commerce du sexe, les PVVIH et les utilisateurs de crack, sont tous confrontés quotidiennement à la stigmatisation et la discrimination. l’engagement de société civile dans la réponse nationale au VIH doit être renforcé à tous les niveaux. le Vih affecte les femmes et les filles et aussi de façon disproportionnée les personnes transgenre, ainsi les problèmes de genre ne peuvent se limiter au rôle défini pour les hommes et les femmes dans la société. les discussions sur le genre doivent être rouvertes pour avoir une compréhension claire sur combien de genres existent dans la caraïbe et quel est le rôle joue l’orientation sexuelle dans la redéfinition du genre. les problèmes qu’affrontent les homosexuels, les transgenres ou les transsexuels doivent être pris en considération dans ce débat. Une sérieuse attention doit aussi être portée aux problèmes de violence liée au genre et Vih et au suivi de sa dimension dans l’épidémie de VIH. la réponse régionale dans la caraïbe dépend largement des ressources extérieures. au cours des deux dernières années, 64% de toutes les ressources dépensées sur le sida ont été des sources externes. Cela doit changer et les autorités nationales doivent engager des ressources nationales pour répondre au VIH si on veut maintenir et élargir les résultats obtenus. la pérennité peut être assurée par l’utilisation nouvelles approches, comme un vrai engagement multisectoriel, un investissement dans le renforcement des systèmes de santé, l’intégration des interventions sur VIH, la décentralisation de services, y compris le VIH en contexte humanitaire, les nouvelles approches pour recueillir l’information stratégique comme les enquêtes en ligne et l’utilisation de données pour la planification pour recentrer l’attention nationale et allouer les ressources pour les interventions parmi les groupes de population où les nouvelles infections à VIH se produisent le plus. www.unaidscaribbean.org | KS III | 11 PREFACIO Esta edición de “Keeping Score III” presenta evidencias del progreso en la respuesta al VIH en el Caribe y, al mismo tiempo, permite observar cuánto trabajo queda por hacer. Durante el periodo considerado en la publicación (2008-2009), las autoridades nacionales han trabajado para mantener el tema de la epidemia de VIH en la agenda nacional y para movilizar recursos nacionales e internacionales que permitan ampliar el acceso a la prevención, tratamiento, cuidado y apoyo. Esto ha sido logrado en colaboración con PANCAP/ caricOM, la sociedad civil, los socios internacionales como OnUSida y sus co-auspiciadores (UnicEF, OpS/OMS, acnUr, FnUap, OiT, Banco Mundial, pnUd, UnEScO, pMa y UnOdc) y donantes como PEPFAR, FMSTM, KfW y DFID. Uno de los logros más importantes se obtuvo en el área de la prevención de 12 | KS III | www.unaidscaribbean.org la transmisión del VIH de madre a hijo. Actualmente, el objetivo de eliminar el VIH entre los niños es una posibilidad bastante realista en el Caribe. Por otra parte, entre el 2001 y el 2009, cuatro países han logrado reducir las nuevas infecciones por VIH en 25%. Asimismo, la mejora en el acceso al tratamiento antirretroviral ha contribuido a reducir en 43% el número de muertes relacionadas con el SIDA. Desde el 2008, la región ha estado lidiando con las consecuencias de la crisis financiera mundial a la que se suma la competencia por recursos entre prioridades de salud pública concurrentes. Para asegurar la sostenibilidad y alcanzar nuevos logros, las autoridades del Caribe deben enfrentar el alto nivel de nuevas infecciones, la predominancia de intervenciones verticales, la dependencia de fondos externos para la respuesta al VIH, el estigma y la discriminación contra poblaciones claves, asuntos relacionados con el género, la vulnerabilidad de las mujeres y las jóvenes, y la necesidad de construir un ambiente propicio para aumentar el acceso de las poblaciones claves a los servicios de VIH. Necesitamos responder al rol clave que los jóvenes juegan en el proceso de transformación social fortaleciendo su liderazgo para guiar la futura respuesta al VIH. Un nuevo liderazgo a todo nivel, más voces y nuevos rostros son necesarios para que el movimiento social para el cambio enfrente la epidemia de VIH de una manera integral. Nosotros, la familia de Naciones Unidas, y pancap/caricOM apoyamos esta nueva orientación. Tenemos confianza en que nuestro renovado compromiso y nuestro apoyo coordinado a los países del Caribe lograrán los cambios necesarios para detener el avance de la epidemia. Desde su inicio en 1981, la epidemia del VIH ha afectado a toda la población del Caribe, especialmente a hombres que tienen sexo con hombres, trabajadores sexuales, usuarios de crack de cocaína, y prisioneros. También se ha convertido en un tema importante entre las mujeres del Caribe. Sin embargo, hay diferencias entre los países. En algunos, las mujeres son más afectadas que los hombres. Esta situación se presenta en las Bahamas, Belize, la Republica Dominicana y Haití. En Guyana, el VIH afecta a hombres y mujeres por igual, pero en países como Barbados, Jamaica, Trinidad y Tobago, Cuba y Suriname hay más hombres que mujeres viviendo con VIH. la prevalencia adulta de Vih varía entre países. desde la mas baja (0.1%) en cuba, hasta la más alta en las Bahamas (3.1%). Nuevamente, los datos muestran que hay tres categorías de países. Guyana, Haití y Jamaica han visto una reducción en la epidemia de VIH entre el 2001 y el 2009. En las Bahamas, la Republica Dominicana, Jamaica y Suriname la tendencia es estable. En Barbados, Belize, Cuba y Trinidad y Tobago la tendencia es creciente. Con relación a la incidencia en el 2009, Belize, la Republica Dominicana, Jamaica y Suriname han reducido sus casos en 25%. Una tendencia estable se ha observado en Haití. En general, el Caribe ha reducido el número de nuevas infecciones por VIH en 14%. En lo que se refiere a la notificación para UNGASS, el Caribe fue la primera región en el mundo en enviar todos los reportes nacionales a tiempo. Sin embargo, solo 38% de los países reportaron sobre 50% o mas de los indicadores de UNGASS, comparado con 81% en el periodo previo. Seis países carecen de Planes Nacionales Estratégicos o de un marco de Monitoreo y Evaluación. Es preocupante constatar que la gran cantidad de indicadores que carecen de información son los relacionados con hombres que tienen sexo con hombres, trabajadores sexuales, huérfanos y niños vulnerables, y con conocimiento, actitudes y practicas relacionadas con el VIH en la población general. Esta situación necesita mejorarse ya que la epidemia afecta desproporcionadamente a los hombres que tienen sexo con hombres, trabajadores sexuales, usuarios de crack de cocaína, prisioneros y también está alcanzando a la población general. En total, 12 a 16 países reportaron sus gastos en SIDA para el periodo 2008 – 2009. Se gasto USD 497 millones con la mayoría de los recursos viniendo de fuentes extranjeras. Solo 32% fue a prevención en una región donde la reducción de nuevas ASUNTOS CLAVE Hace treinta anos en 1981, el Caribe fue confrontado por una nueva epidemia cuando sus primeros casos se reportaron en Haití. Esta es una de las epidemias de VIH más antiguas en el mundo y aún sigue creciendo. los datos muestran que desde el 2001 al 2009 se registraron 10,000 casos más de personas viviendo con VIH (PVVIH) llegando a un total de 260,000 casos en todo el caribe. la prevalencia de Vih entre adultos en el Caribe es de 1%, la segunda más alta en el mundo y la más alta en las Américas. En el 2009 hubo una reducción del 43% en muertes relacionadas con el SIDA. Sin embargo, el SIDA sigue siendo la causa principal de muerte entre personas de 20 a 59 años, con un promedio de 33 muertes por día. También durante ese año hubo un estimado de 50 nuevas infecciones por día y el número total de huérfanos debido al SIDA se elevó a 140,000. www.unaidscaribbean.org | KS III | 13 infecciones es un reto muy grande. De acuerdo al informe del Indice Compuesto de Política Nacional, la mayoría de países han desarrollado políticas de VIH, pero en algunos casos éstas no han sido aprobadas o implementadas. En general, el involucramiento de la sociedad civil en la respuesta nacional contra el VIH ha sido limitado, sino pobre. En el área de Seguridad de la Sangre, con la excepción de la República Dominicana, todos los países tamizan el 100% de las unidades de sangre donada. la región ha logrado una tasa de cobertura de antiretrovirales de 48%. Esta tasa es de 29% entre los niños. En cuanto a la prevención de la transmisión de VIH de la madre al hijo, 11 países reportaron que más del 90% de las cohortes anuales de mujeres embarazadas reciben las pruebas del VIH. Había una tasa de cobertura de prevención de la transmisión de la madre al hijo de 59% en el 2009. El Caribe necesita un rápido aumento en la cobertura de antiretrovirales y de prevención de la transmisión de la madre al hijo. las pruebas y el manejo de la coinfección TB/Vih son bajos en países con serios problemas de coinfección como la Republica Dominicana, Haití y Trinidad y Tobago. Esta situación necesita una mejora inmediata. la educación en habilidades para la vida es un buen instrumento para ayudar a la gente joven a protegerse ellos mismos contra el Vih. lamentablemente, hay siete países 1 (Belize, Republica Dominicana, Haití, Jamaica, St. Kitts y Nevis, Surinam, y Trinidad y Tobago) donde el porcentaje de colegios que ofrecen educación sobre VIH varia de 0% a menos de 45%. Esta situación debe ser corregida ya que la iniciación sexual temprana entre los jóvenes se mantiene alta en la mayoría de los países y no es acompañada generalmente por un uso regular de condones. Además, el nivel de uso de condones y la toma de pruebas VIH es bajo en la población en general. Esto necesita remediarse en el corto plazo. Es esencial asegurar la disponibilidad y accesibilidad a las pruebas de VIH y a los condones entre hombres que tienen sexo con hombres, y entre trabajadores sexuales. Aunque esto es un componente clave de la respuesta al VIH, la mayoría de los países no reportan sobre estos indicadores. los retos identificados en los informes nacionales UngaSS, y la retroalimentacion proporcionada por los gerentes de los programas nacionales de Sida y otros líderes y coauspiciadores indican una disponibilidad limitada y un uso limitado de información estratégica para la planificación; y falta de comprensión de los asuntos de género, de la sostenibilidad de los programas de SIDA, y de los derechos humanos incluyendo estigma y discriminación. Para responder de manera eficaz a todos estos temas, los líderes nacionales a todo nivel deben trabajar juntos para promover e implementar las siguientes recomendaciones: lAs NuEVAs INfEccIoNEs PoR VIH ENTRE los NIños DEl cARIBE PuEDE sER ElIMINADo EN El 2015 En el 2009, 4,400 mujeres embarazadas viviendo con VIH se beneficiaron de intervenciones para prevenir la transmisión del VIH a sus bebés. Esto representa una tasa de cobertura del 59%, la misma que era del 22% en el 2005. El impacto de estos programas es que menos niños nacen con VIH en el Caribe. Adoptando un paso más rápido y usando regímenes de medicamentos más eficaces es posible llegar al 41% de los niños que no tuvieron acceso a estas intervenciones y eliminar el VIH entre los niños en el 2015. 14 | KS III | www.unaidscaribbean.org 2 lAs NuEVAs INfEccIoNEs PoR VIH DIsMINuyEN, PERo ToDAVíA suPERAN los éxITos DEl TRATAMIENTo 3 El TRATAMIENTo DEBE MEJoRAR, DIsMINuIR EN cosTo y AuMENTAR EN coBERTuRA 4 sE NEcEsITA uNA MAyoR REDuccIóN DE lAs MuERTEs RElAcIoNADAs coN El sIDA 5 sE HABlA MucHo soBRE DEREcHos HuMANos, PERo Muy Poco HA cAMBIADo EN El TERRENo 6 sE NEcEsITA REVIsAR los TEMAs DE géNERo EN El cARIBE 7 lAs EsTRATEgIAs PARA AsEguRAR lA sosTENIBIlIDAD EN TIEMPos DE EscAsEz soN PRIMoRDIAlEs Por cada cinco personas puestas en tratamiento antirretroviral en el 2009, hubo siete nuevas infecciones por VIH. Por cada mil personas que murieron por una enfermedad relacionada con el SIDA, hubo 1,500 nuevas infecciones. Asi, mientras se expande la cobertura del tratamiento, se debe poner más recursos en los programas sostenibles de prevención con intervenciones basadas en evidencia y, en particular, en aquellos dirigidos a poblaciones de mayor riesgo, gente joven y luego la población en general. En el 2009, 110,000 PVVIH necesitaban tratamiento, pero solo 52,400 lo recibieron. Esto representa una cobertura de 48%. Esto ha resultado en una reducción del 43% en las muertes relacionadas con el SIDA. Sin embargo, todavía 52% (57,600 personas que necesitan tratamiento) no tienen acceso a él. Con relación a la terapia con antiretrovirales, solo 38% de los países lograron una tasa de sobrevivencia de 90% de PVVIH después de 12 meses de iniciada la terapia. El número de muertes relacionadas con el SIDA disminuyó de 21,000 en el 2001 a 12,000. Este es un beneficio directo de los programas de tratamiento cuya tasa de cobertura fué de 1% en el 2004 a 48% en el 2009. Sin embargo, todavía hay necesidad de aumentar la cobertura de tratamiento ya que cada día 33 personas murieron por causas relacionadas con el SIDA en el 2009. Todos los países han integrado algunos elementos de los derechos humanos en sus respuestas nacionales al Vih. Sin embargo, en muchas instancias, no se adoptaron o se aprobaron nuevas políticas. Once de 16 países del Caribe tienen leyes que criminalizan el contacto sexual consentido entre personas del mismo género y dos países tienen restricciones sobre viajes de PVVIH. El estigma y la discriminación continúan siendo un reto que necesita ser enfrentado en todos los niveles para lograr el acceso universal. los hombres que tienen sexo con hombres, las personas transgénero, trabajadores sexuales, PVVIH, y usuarios de crack de cocaína, todos confrontan el estigma y la discriminación cada día. El involucramiento de la sociedad civil en la respuesta nacional contra el VIH debe ser mayor y reforzado a todo nivel. El Vih afecta mujeres y jóvenes y afecta desproporcionadamente personas transgénero. los asuntos de género no pueden limitarse al rol o lugar definido por hombres y mujeres en la sociedad. las discusiones sobre género deben ser reabiertas para lograr un claro entendimiento sobre cuántos géneros existen en el Caribe y cuál es el rol que la orientación sexual juega en la redefinición de género. los temas que confrontan los hombres que tienen sexo con hombres, las personas transgénero o transexuales deben ser tomados en consideración en este debate. El tema de la violencia de género y el VIH debe ser también tomado en consideración y monitoreado como una dimensión de la epidemia de VIH. la respuesta regional del caribe está sostenida por recursos externos. durante los dos años pasados, el 64% de todos los recursos gastados en SIDA fueron de fuentes externas. Esto necesita ser cambiado y las autoridades nacionales deben dedicar recursos nacionales a la respuesta contra el VIH si se desea mantener y expandir lo ganado hasta el momento. la sostenibilidad debe ser lograda usando nuevos enfoques tales como el de un verdadero involucramiento multisectorial, invertir en sistemas de salud, integración de las intervenciones contra el VIH, descentralización de servicios (incluyendo aquellos servicios de VIH en situaciones humanitarias), nuevos enfoques para recolectar información estratégica tales como encuestas por Internet, y el uso de evidencias para guiar la planificación y la distribución de recursos en intervenciones destinadas a grupos poblacionales donde la incidencia de infecciones por VIH es mayor. www.unaidscaribbean.org | KS III | 15 16 | KS III | www.unaidscaribbean.org Where are we in the HIV EPIDEMIC? Based on UNAIDS/WHO Estimates Number of People Living with HIV Number of New HIV Infections Number of AIDS-Related Deaths Adult HIV Prevalence in 2009 HIV Prevalence Among Young People Percentge of Females Living with HIV 2009 2001 2009 Per Day 2009 Per Day Lowest Highest Lowest Highest Lowest Highest 260,000 18,000 12,000 0.1% Cuba 0.1% Cuba 21% Cuba and suriname 250,000 50 33 3% the bahamas 2% the bahamas 60% the bahamas *Percentage of females living with HIV refers to the total of all PLHIV The Caribbean 1 is The region mosT affeCTed by hiV in The ameriCas In comparison with the rest of the regions of the Americas, as demonstrated in Figure 1, the 1% (0.9%-1.1%) adult 2 HIV prevalence in the Caribbean was double that of North America and Central and South America in 2009 3. Belize has the highest adult HIV prevalence among Central American countries and the same situation is observed in Guyana and Suriname in South America 4. 1 2 3 4 The Bahamas, Barbados, Belize, Cuba, Dominican Republic, Guyana, Haiti, Jamaica, Suriname and Trinidad and Tobago Adult refers to persons 15-49 years old UNAIDS. Global Report on AIDS.2010 UNAIDS Global Report on AIDS. 2010 www.unaidscaribbean.org | KS III | 17 figure 1: adulT hiV PreValenCe in The Three regions of The ameriCas. unaids/Who 2010 Adult HIV Prevalence in 2009. Three Regions of the Americas. UNAIDS/WHO.2010 1% 0.5% Caribbean Central and south ameriCa 0.5% north ameriCa and mexiCo Source: UNAIDS Global Report on AIDS 2010 As demonstrated below, the Caribbean is the second most affected region in the world after sub-Saharan Africa. Table 1: adulT hiV PreValenCe by region and ranking. unaids 2010 REGIONS OF THE WORLD ADULT HIV PREVALENCE RANkING Africa 5.00% (4.7-5.2) 1 Caribbean 1.00% (0.9-1.1) 2 Eastern Europe & Central Asia 0.80% (0.7-0.9) 3 Central & South America 0.50% (0.4-0.6) 4 North America 0.50% (0.4-0.7) 4 South & South East Asia 0.30% (0.3-0.3) 6 Oceania 0.30% (0.2-0.3) 6 Western & Central Europe 0.20% (0.2-0.2) 8 Middle East & North Africa 0.20% (0.2-0.3) 8 East Asia 0.10% (0.1-0.1) 10 Source: UNAIDS Global Report on AIDS. 2010 The Caribbean aids ePidemiC is one of The oldesT 5 in The World and is sTill groWing It began in 1981 when the first cases were recorded in Haiti 6 and since then the epidemic has continued its devastating evolvement 7. Despite national and regional efforts to respond to the epidemic, 260,000 (230,000-290,000) Caribbean people were living with HIV in 2009. Between 2001 and 2009, there was a 4% increase in the total number of PLHIV in the region, moving from 250,000 to 260,000. Table 2: Number of PLHIV, New HIV INfectIoNs aNd aIds-reLated deatHs IN 2001 aNd 2009 Year No of PLHIV No of New HIV INfectIoNs No of aIds-reLated deatHs 2001 250,000 21,000 21,000 2009 260,000 18,000 12,000 status +10,000 -3,000 -9,000 Source: UNAIDS Global Report on AIDS 2010 5 6 7 Jean William Pape. AIDS in Haiti, 1980-1996. The University of the West Indies Press. The Caribbean AIDS Epidemic, 1999, pp-226-42. ISBN 976-640-088-1 M. Thomas P. Gilbert, Andrew Rambaut, Gabriela Wlasiuk, et al. The emergence of HIV/AIDS in the Americas and beyond. www.pnas.org/13-07a Caribbean Epidemiology Centre. Status and Trends. Analysis of the Caribbean HIV/AIDS Epidemic.1982-2002. ISBN 976-8114-23-1.2004 18 | KS III | www.unaidscaribbean.org differenT dynamiCs regarding The number of PlhiV by CounTry Between 2001 and 2009, in Haiti and Guyana the number of PLHIV declined; it remained the same in Jamaica, but increased in the rest of the seven larger Caribbean countries i.e. the Bahamas, Barbados, Belize, Cuba, the Dominican Republic, Suriname and Trinidad and Tobago. figure 2: number of PlhiV by CounTry unaids/Who.2010 Source: UNAIDS Global Report on AIDS 2010 many Caribbean CounTries haVe an adulT hiV PreValenCe aboVe 1% In 2009, between 230,000 and 290,000 people were living with HIV in the Caribbean, with 68% of them on the Hispaniola Island of the Dominican Republic and Haiti. In that same year, countries with the highest adult HIV prevalence were the Bahamas (3.1%), Belize (2.3%), Haiti (1.9%), Jamaica (1.7%) and Trinidad and Tobago (1.5%). Table 3: number of PlhiV and adulT hiV PreValenCe by CounTry. unaids/Who.2010 CounTry no of PlhiV in 2009 adulT hiV PreValenCe in 2009 The Bahamas 6,600 (2,600-11,000) 3.1% (1.2-5.4) Barbados 2,100 (1,800-2,500) 1.4% (1.2-1.6) Belize 4,880 (4,000-5,700) 2.3% (2.0-2.8) Cuba 7,100 (5,700-8,900) 0.1% (<0.1-0.1) The Dominican Republic 57,000 (49,000-66,000) 0.9% (0.7-1.0) Guyana 5,900 (2,700-8,800) 1.2% (0.5-1.9) Haiti 120,000 (110,000-140,000) 1.9% (1.7-2.2) Jamaica 32,000 (21,000-45,000) 1.7% (1.1-2.5) Suriname 3,700 (2,700-5,300) 1.0% (0.7-1.4) Trinidad and Tobago 15,000 (11,000-19,000) 1.5% (1.1-2.0) Source: UNAIDS Global Report on AIDS 2010 Varying dynamiCs beTWeen CounTries regarding adulT hiV PreValenCe In four out of the 10 larger Caribbean countries adult HIV prevalence has increased between 2001 and 2009 9. In three of the countries declining adult HIV prevalence was observed 8, with stable adult HIV prevalence in three of the remaining countries 10. 8 9 10 Barbados, Belize, Cuba and Trinidad and Tobago Guyana, Haiti and Jamaica The Bahamas, The Dominican Republic and Suriname www.unaidscaribbean.org | KS III | 19 Table 4: aduLt HIV PreVaLeNce 2001-2009. teN carIbbeaN couNtrIes unaids/Who.2010 CounTry PreValenCe in 2001 PreValenCe in 2009 sTaTus The Bahamas 3.10% 3.10% (1.2-5.4) Stable Barbados 0.50% 1.40% (1.2-1.6) Increased Belize 2.20% 2.30% (2.0-2.8) Increased Cuba <0.10% 0.10% (<0.1-0.1) Increased The Dominican Republic 0.90% 0.90% (0.7-1.0) Stable Guyana 1.40% 1.20% (0.5-1.9) Declined Haiti 2.60% 1.90% (1.7-2.2) Declined Jamaica 1.90% 1.70% (1.1-2.5) Declined Suriname 1.00% 1.00% (0.7-1.4) Stable Trinidad and Tobago 1.20% 1.50% (1.1-2.0) Increased Source: UNAIDS Global Report on AIDS 2010 aids remains a leading rePorTed Cause of deaTh in The Caribbean. HIV/AIDS 11 is the leading reported cause of death among men and women aged 20-59 at 15.7% and 14.5% of deaths, respectively. Among males of this group, HIV/AIDS is followed by ischemic heart disease (10.2%), homicide (6.2%), diabetes (6.2%) and suicide (5.9%); among females, by diabetes (10.9%), ischemic heart disease (7.9%), cerebrovascular disease (6.7%) and malignant neoplasm of the breast (5%). Overall and irrespective of age, AIDS-related illnesses were the fourth leading cause of death among Caribbean women and the fifth leading cause among Caribbean men (Caribbean Epidemiology Centre, 2007). desPIte tHIs obserVatIoN, estImated aIds-reLated deatHs decLINed IN 2009. During the period 2001-2009, due to increasing coverage of antiretroviral treatment in the Caribbean, there was an overall 43% decline in deaths from AIDS-related illnesses. In larger Caribbean countries such as Haiti and the Dominican Republic, the reduction was 41%; meanwhile it was 56% in Jamaica. In absolute numbers, the decline in AIDS-related deaths between 2001 and 2009 was from 21,000 to 12,000 in the wider Caribbean and for specific countries e.g. from 12,000 to 7,100 in Haiti, from 3,900 to 2,300 in the Dominican Republic and from 2,700 to 1,200 in Jamaica. figure 3: estImated Number of aIds-reLated deatHs IN tHree carIbbeaN couNtrIes, 2001-2009. uNaIds/wHo.2010 reduction in aids related deaths in Three Caribbean Countries 2001-2009. unaids/Who.2010 Source: UNAIDS Global Report on AIDS 2010 11 PAHO/WHO Health Conditions and Trends. 2007. Based on 2002 mortality data 20 | KS III | www.unaidscaribbean.org furTher reduCTion in neW hiV infeCTions is needed Compared to 2001, the overall reduction in new HIV infections in 2009 was 14.3% i.e. new HIV infections dropped from 21,000 to 18,000. In the Dominican Republic and Jamaica, the number of new HIV infections went down by 25%. Belize and Suriname experienced a similar level and in Haiti it went down by 12%. Unfortunately, there was no change in the HIV incidence in Trinidad and Tobago during the same period. Table 5: estImated aNNuaL New HIV INfectIoNs IN four carIbbeaN couNtrIes, 2001-2009. unaids/Who.2010 CounTry neW hiV infeCTions 2001 neW hiV infeCTions 2009 sTaTus PerCenTage The Dominican Republic 4,800 3,600 DECLINED 25% Jamaica 2,800 2,100 DECLINED 25% Haiti 10,000 8,800 DECLINED 12% Trinidad and Tobago 1,200 1,200 NO CHANGE 0% Source: UNAIDS Global Report on AIDS 2010 dIffereNt maLe-to-femaLe sex ratIos Fifty-three percent of PLHIV were women and 47% men i.e. HIV affects more women than men. However, this situation is very much skewed by data from Haiti and the Dominican Republic where 68% of Caribbean PLHIV live and where more women are living with HIV than men. Country-by-country information shows that in 40% of the countries 12, more females are living with HIV than males; but in 50% of them 13 the reverse trend is seen. Guyana is the only country where there is a one to one ratio of men to women living with HIV. This is the individual country epidemiological picture which should guide national planning and decision making. figure 4: PerceNtage of PLHIV bY sex aNd bY couNtrY IN 2009, unaids/Who.2010 Source: UNAIDS Global Report on AIDS 2010 12 13 The Bahamas, Belize, The Dominican Republic and Haiti Barbados, Cuba, Jamaica, Suriname and Trinidad and Tobago www.unaidscaribbean.org | KS III | 21 aids affeCTs young PeoPle Too figure 5: hiV PreValenCe among Caribbean young PeoPle in 2009. unaids/Who.2010 With HIV prevalence below only Sub-Saharan Africa’s, young people in the Caribbean are the second most affected in the world. HIV prevalence varied between 0.1% in Cuba, the lowest, to 2% in the Bahamas, the highest. Variations exist between countries; in 6 14 out of 10 countries, HIV affects young females 1.2 to 3 times more than young males. But in three other countries 15 the reverse is seen but to a lower degree. In Cuba, HIV affects young females and males equally. This epidemiological information must be used to plan for interventions among young people in each country. Part of this observation could be explained by early sex initiation and age mixing among young people especially females 16. PreValenCe of hiV remains high among Caribbean men Who haVe sex wItH meN aNd femaLe sex Workers In the Caribbean, the HIV epidemic continues to affect disproportionately men who have sex with men and female sex workers. During the period 2005-2009, HIV seroprevalence surveys have shown that among MSM, prevalence varied from 6.7% in Suriname to 32% in Jamaica and among FSW from 4.8% in the Dominican Republic to 24.1% in Suriname. Among crack cocaine users, another marginalised group, in 2007 the prevalence of HIV was 5% in Jamaica and 7% in St. Lucia. Use of crack cocaine results in impairment of judgement and creates dependency and both could result in increased risky sexual behaviours among drug users 17. 14 15 16 17 Source: UNAIDS Global Report on AIDS. 2011 Table 6: PreValenCe of hiV among msm and fsW in The carIbbeaN. 2005-2009. Country hiV Prevalence among fsW The Bahamas 8.2% NA The Dominican Republic 11%* 4.8% Guyana 19.4% 17% Haiti NA 5% Jamaica 32% 5% Suriname 6.7% 24% Trinidad and Tobago 20% NA *: Survey conducted among Gay, Transgender and other MSM (GTMSM) 2008. The Bahamas, Barbados, Belize, The Dominican Republic, Guyana and Haiti Jamaica, Suriname and Trinidad and Tobago CAREC/PAHO/WHO. Behavioural Surveillance Surveys in Six OECS 2005-2006. UNAIDS. The Status of HIV in the Caribbean. 2010 22 | KS III | www.unaidscaribbean.org hiV Prevalence among msm Source: UNAIDS. The Status of HIV in the Caribbean. 2010 NA: Not Available Incarcerated people have not received enough attention in terms of access to public health programmes and services in the Caribbean. During the period 2005-2008, the HIV prevalence in male prisoners varied between 2% in the Bahamas and St. Lucia, the lowest, and 5.24% in Guyana, the highest 18. figure 6: hiV PreValenCe among male Prisoners in Ten Caribbean CounTries 2005 -2009 broad aNd oNgoINg sexuaL coNNectIoNs exIst betweeN carIbbeaN meN wHo HaVe sex WiTh men, drug users, Prison PoPulaTions aNd sex workers oN tHe oNe HaNd, aNd tHe general PoPulaTion on The oTher. The important issue here is the sexual dynamics among men who have sex with men and sex workers and the general population. For example, the majority of MSM in the Dominican Republic (76%) have reported having had sex with women 19. In Guyana, the mean number of female sex partners among MSM in the past 6 months before the 2009 survey ranged from 0 to 8 with 67% reporting having ever had sex with women 20. In Trinidad and Tobago 25% of MSM surveyed were married 21 and in Jamaica 34% reported having had more than two female partners in the past 12 months before the 2008 survey 22. Clients of female sex workers are from the general population, sexual partners of drug users are from the general population and the vast majority of the prison population returns to the general population. Although not quantified, there are observations of sexual interactions between these vulnerable populations and the general population e.g. male sex workers have both MSM and female clients; among the female clients are drug users who sell sex to males and females alike to sustain their drug habit. Taking this reality into consideration, we can conclude that sexual activities among vulnerable populations and between vulnerable populations and the general population are shaping and sustaining the HIV epidemic in the Caribbean 23. Therefore, to respond to the HIV epidemic effectively in this region, national authorities and decision makers should focus their attention on the vulnerable populations by providing them with a high coverage of effective HIV prevention programmes, and high quality health care including sexual reproductive health services within an enabling environment. 18 19 20 21 22 23 Source: Caribbean Epidemiology Centre. 2006 and The Status of HIV in the Caribbean. UNAIDS.2010 EV Boisson, C. Trotman. HIV Seroprevalence among Male Prison Inmates in the Six Countries of the Organisation of Eastern Caribbean States in the Caribbean (OECS). West Indian Med J 2009; 58 (2): 106 Jose Tor-Alfonso, Nelson Varas-Diaz. Pna. Resumen Ejecutivo. Enero 2005 Ministry of Health Guyana and USAID/FHI. Behavioural Surveillance Surveys among MSM in Guyana. 2009 Rk Lee, C. Poon king et al. Risk behaviours for HIV among men who have sex with men in Trinidad and Tobago. XVI International AIDS Conference. Abstract CDD 0366. 2006 Sharon S Weir, Carol Jones Cooper et al. Results of Men’s Health Survey in Jamaica. 2008 Daniel T. Halperin, E. Antonio de Moya, Eddy Perrez-The, Gregory Pappas, Jesus M. Garcia Calleja. Understanding the HIV Epidemic in the Dominican Republic: A Prevention Success in the Caribbean. JAIDS. April 2009 www.unaidscaribbean.org | KS III | 23 Table 7: lisT of ungass indiCaTors exPeNdIture Indicator 1 Domestic and international AIDS spending by categories and financing sources. PoliCy deVeloPmenT and imPlemenTaTion sTaTus Indicator 2 National Composite Policy Index (NCPI) (areas covered: prevention, treatment, care and support, human rights, civil society involvement, gender, workplace programmes, stigma and discrimination, and monitoring and evaluation). naTional Programmes Indicator 3 Percentage of donated blood units screened for HIV in a quality assured manner. Indicator 4 Percentage of adults and children with advanced HIV infection receiving antiretroviral therapy. Indicator 5 Percentage of HIV-positive pregnant women who receive antiretroviral medicines to reduce the risk of mother-to-child transmission. Indicator 6 Percentage of estimated HIV-positive incident TB cases who received treatment for TB and HIV. Indicator 7 Percentage of women and men aged 15-49 who received an HIV test in the last 12 months and who know the results. Indicator 8 Percentage of most-at-risk populations that have received an HIV test in the last 12 months and who know the results. Indicator 9 Percentage of most-at-risk populations reached with prevention programmes. Indicator10 Percentage of orphaned and vulnerable children aged 0-17 whose household received free basic external support in caring for the child. Indicator11 Percentage of schools that provided life-skills HIV education in the last academic year. Indicator12 Current school attendance among orphans and non-orphans aged 10-14. knoWledge and behaViours Indicator13 Percentage of young people aged 15-24 who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV transmission. Indicator14 Percentage of most-at-risk populations who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV transmission. Indicator15 Percentage of young women and men aged 15-24 who have had sexual intercourse before the age of 15 Indicator16 Percentage of women and men aged 15-49 who had more than one sexual partner in the past 12 months. Indicator17 Percentage of women and men aged 15-49 who had more than one sexual partner in the past 12 months reporting the use of a condom during their last intercourse. Indicator18 Percentage of female and male sex workers reporting the use of a condom with their most recent client. Indicator19 Percentage of men reporting the use of a condom the last time they had anal sex with a male partner. Indicator20 Percentage of injecting drug users who reported using sterile injecting equipment the last time they injected (Not relevant for the Caribbean). Indicator21 Percentage of injecting drug users who reported the use of a condom at last sexual intercourse (Not relevant for the Caribbean). imPaCT Indicator22 Indicator23 Indicator24 Indicator 25 Percentage of young women and men aged 15-24 who are HIV-infected. Percentage of most-at-risk populations who are HIV-infected. Percentage of adults and children with HIV known to be on treatment 12 months after initiation of antiretroviral therapy. Percentage of infants born to HIV-infected mothers who are infected. Source: UNAIDS. Guidelines on Construction of Core Indicators. 2010 Reporting on UNGASS. 2009 24 | KS III | www.unaidscaribbean.org www.unaidscaribbean.org | KS III | 25 The Caribbean SCoreCard Some Key ReSultS 2009 *Coverage rate refers to ART and PMTCT coverage. The Caribbean leads The World All 16 Caribbean member states 24 of the United Nations have submitted their 2010 UNGASS reports in a timely manner and in conformity with the Declaration of Commitment signed off during the UNGASS on HIV/AIDS in 2001. For the two consecutive rounds of reporting so far, the Joint United Nations Programme on HIV/AIDS (UNAIDS) has recognised the Caribbean as the leading region in the world for submission of national UNGASS reports 25. This in itself is a success story for the region. It has proven that decision makers and programme implementers at the country level understand and adhere to the concept of commitment, that they have embraced monitoring and evaluation of HIV programmes and that they have accepted the notion of measuring progress and identifying challenges to ensure future success in responding to HIV. 24 25 26 seTbaCks on reporTing on relevanT Ungass indiCaTors Comparing the completeness of reporting in the 20062007 and 2008-2009 periods, it is observed that with the exception of Cuba which kept its 100% reporting on all 23 relevant indicators, and some progress in the Bahamas and Belize, the remaining 13 Caribbean countries have reported on fewer indicators in the 2008-2009 period. Only 38% of the countries 26 have reported on more than 50% of indicators relevant to the Caribbean. This level of reporting was 81% in 2006-2007; therefore it needs improvement if decision makers are to have a comprehensive knowledge of all aspects of the HIV epidemic. A closer analysis of indicators missing in the national UNGASS reports brings us to the conclusion that these are very often related to MARPs, orphans and vulnerable children. Antigua and Barbuda, the Bahamas, Barbados, Belize, Cuba, Dominica, The Dominican Republic, Grenada, Guyana, Haiti, Jamaica, St. Kitts and Nevis, St. Lucia, St. Vincent and the Grenadines, Suriname and Trinidad and Tobago. UNAIDS. Global Report on AIDS.2010 The Bahamas, Barbados, Belize, Cuba, Dominican Republic, Guyana, Jamaica, and St. Lucia. 26 | KS III | www.unaidscaribbean.org figure 7: perCenTage of CompleTeness of reporTing on relevanT Ungass indiCaTors, 2006-2007 and 2008-2009 sTaTUs of The naTional sTraTegiC plans. In Source: UNAIDS Global Report on AIDS.2010 and 2010 UNGASS Reports. each of the 16 Caribbean countries there is a well-defined national structure leading the national response, but unfortunately in six of these countries (38%), there is no updated National AIDS Strategic Plan and no Monitoring and Evaluation Framework. This situation is being monitored at the regional level 27. Table 8: sTaTUs of naTional sTraTegiC and moniToring and evalUaTion plans in 2010 Country National AIDS Strategic Plan National Strategic Plan with a Budget National M&E Plan Antigua and Barbuda Draft No No The Bahamas Draft No No Barbados Yes Yes Yes Belize Yes No Yes Cuba Yes Yes Yes Dominica Draft No No The Dominican Republic Yes Yes Yes Grenada Draft No No Guyana Yes No Yes Haiti Yes No Yes Jamaica Yes No Yes St. Kitts & Nevis Yes Yes Draft St. Lucia Draft No Draft St. Vincent and the Grenadines Yes Yes No Suriname Yes Yes Yes Trinidad and Tobago Draft No Draft The Bahamas has developed a Roadmap for 2006-2010. Source: UNAIDS Global Report on AIDS.2010 PANCAP-Annual General Meeting. St Maarten.2010. 27 PANCAP-AGM Report. St. Maarten. 2010 www.unaidscaribbean.org | KS III | 27 aids spending is exTernally dependenT. During 2008-2009, 12 countries reported their information on national AIDS spending and four i.e. Guyana, Jamaica, St. Lucia and Suriname did not. In total, USD 497 million was spent in the region to respond to HIV. USD 155 million came from domestic sources, representing 31% of the total expenditure; 64% (USD 315 million) came from bilateral donors e.g. PEPFAR and the GFATM, USD 18 million from United Nations agencies, and the remaining USD 8 million from other external sources 28. Figure 8: naTional aids spending by soUrCes in The Caribbean. 2010 Ungass reporTs To further illustrate this ineffective way of allocating resources, in the Bahamas USD 9 million was spent on AIDS but only 11% on prevention. In Trinidad and Tobago, USD 28.5 million was spent on AIDS in 2008-2009 with 42% on prevention, of which 95% went to programmes for the general population and only 5% on men who have sex with men, female sex workers, crack cocaine users and prisoners. This occurred in a country where one in every five MSM is living with HIV and where there was an estimated 1,200 new HIV infections every year for the last eight years. This high HIV incidence could be explained by the sharp decrease (88%) in the number of prevention interventions in Trinidad and by 50% in Tobago between 2006 and 2010 (see graphs below). Source: National Prevention Mapping. UNAIDS/NACC - Trinidad and Tobago. 2010. figure 10: nUmber of hiv prevenTion inTervenTions exeCUTed in Trinidad: 2004 To 2010 Source: UNAIDS Global Report on AIDS.2010 and 2010 UNGASS Reports prevenTion does noT geT a fair share of aids spending. The distribution of funds by strategy shows that USD 160 million or 32% was spent on prevention, USD 182,142,000 or 37% on treatment, USD 100,668,000 (20%) on programme management (personnel and salaries) and the remaining 11% (USD 53 million) on other components of the national response i.e. advocacy, social protection, human rights, research, care for orphans, etc. Source: UNAIDS-NACC. The Prevention Mapping in Trinidad and Tobago. 2011 figure 11: nUmber of hiv prevenTion inTervenTions exeCUTed in Tobago: 2004 To 2010 Figure 9: Ungass: aids spending in The Caribbean by STraTegy: 2008-2009 Source: UNAIDS-NACC. The Prevention Mapping in Trinidad and Tobago. 2011 Source: UNGASS Reports.2010 28 UNAIDS Global Report on AIDS.2010 28 | KS III | www.unaidscaribbean.org In the Dominican Republic, between 18% and 29% of all resources spent on AIDS went to HIV prevention with 52% allocated to interventions among the general population (see table 8). Overall there is almost a 50% decline in spending on prevention between 2007 and 2009, equivalent to 38% of the total spending on AIDS. Table 9: hiv prevenTion: disTribUTion of fUnding by popUlaTion groUps in The dominiCan republiC. 2007-2009. CopreSida preliminary daTa. 2010 populaTion/Spending/year 2007 2008 2009 CumulaTive perCenTage Adolescents/Youths 1,452,053 1,099,390 1,307,459 3,857,902 17.00% General Population 5,707,335 3,527,889 2,591,239 11,826,462 52.00% FSW/Clients/Intermediaries 513,280 332,111 632,648 1,478,040 7.00% Gays, Trans and MSM 177,031 228,102 324,354 729,486 3.00% Other Priority Populations 1,661,400 0 0 1,661,400 7.00% Residents of Bateyes 613,093 538,826 329,874 1,481,766 7.00% Women 789,091 746,151 258,612 1,820,854 8.00% Total prevention 10,913,283 6,471,468 5,471,160 22,855,911 29% 27% 18% percentage Total spending on aidS Source COPRESIDA and UNAIDS. 2011 If greater emphasis is put on evidence-informed, sustainable and cost effective prevention interventions, this should result in lower costs to the national economy for HIV treatment and care. Furthermore, by focusing on prevention and building life-skills among men who have sex with men, sex workers, crack cocaine users, prisoners, women and youth, this should help to prevent the further spread of HIV. making The laW Work for The hiv response in The Caribbean. Below is a summary of protective and punitive laws as they apply in the 16 Caribbean Countries. This is a snapshot of selected laws that either support or block universal access to HIV prevention, treatment, care and support. removal of pUniTive laWs is a mUsT. Caribbean authorities have the opportunity to reinforce the supportive and protective laws which create an enabling environment for men who have sex with men, sex workers, drug users, young people and people living with HIV to protect themselves against stigma and discrimination and adopt protective practices against the transmission of HIV. Leaders in the government and civil society must work together to remove punitive laws (see Box below) which are disempowering individuals and hindering progress towards universal access to HIV prevention, care, treatment and support. Caribbean states cannot afford to continue discriminatory practices against citizens because of their sexual orientation, profession or health status. 1 box a SnapShoT oF The hiv-relaTed legal environmenT in The Caribbean.2010 • 56%ofcountriesreportnolegalprotectionagainstHIV-relateddiscrimination • 75%ofcountriesreportlawsandregulationsthatpresentobstaclestoHIVservicesforvulnerable population groups • 69%ofcountriescriminalisesamesexactivitiesamongconsentingadults.TheseincludeAntigua and Barbuda, Barbados, Belize, Dominica, Grenada, Guyana, Jamaica, St. Kitts and Nevis, St. Lucia, St. Vincent and the Grenadines, and Trinidad and Tobago • 81%ofcountriescriminalisesomeaspectsofsexwork • 19%ofcountrieshaveHIV-relatedtravelrestrictions • 19%ofcountrieshaveHIV-specificlawsthatcriminaliseHIVtransmission www.unaidscaribbean.org | KS III | 29 making The laW Work for The hiv response a snapshoT of seleCTed laWs ThaT sUpporT or bloCk Universal aCCess To hiv prevenTion, TreaTmenT, Care and SupporT (Caribbean - July 2010) NO THE BAHAMAS YES YES YES BARBADOS NO NO YES BELIzE NO YES CUBA YES DOMINICA NO G YES YES YES NO YES NO YES YES YES YES YES YES YES NO YES NO YES NO NO NO YES NO YES NO YES YES THE DOMINICAN REPUBLIC YES YES YES YES NO NO GRENADA YES NO YES NO YES YES GUYANA NO NO YES NO YES YES HAITI NO NO NO NO NO NO YES JAMAICA NO NO YES NO NO YES YES SAINT KIT TS AND NEVIS NO NO YES NO YES YES SAINT LUCIA YES YES YES NO YES YES SAINT VINCENT AND THE GRENADINES NO NO NO YES YES SURINAME YES NO YES CONTRADICTORY NO YES TRINIDAD AND TOBAGO NO YES YES CONTRADICTORY YES YES NO Punitive law or lack of protective law Protective law or lack of punitive law Information not available Death penalty as sanctioned under punitive law laCk of poliCy developmenT and implemenTaTion among men Who have sex WiTh men, sex Workers, CraCk CoCaine Users, prisoners and yoUng people. In all 16 Caribbean States reporting, national authorities and leaders of the civil society agree that HIV policies are developed and implemented in the area of prevention and treatment. However, detailed analysis of the scorecard on this area shows that the two sides disagreed that policies are in place for risk reduction for men who have sex with men and sex workers. This disagreement between national authorities and civil society was reported in nine of the 16 i.e. in Belize, Dominican Republic, Grenada, Haiti, Jamaica, St. Kitts and Nevis, St. Lucia, Suriname and Trinidad and Tobago. It becomes a very serious cause for concern when programmes are not in place for these two mostat-risk populations in a scenario of mixed or concentrated epidemics, because this lack of attention would certainly lead to an ongoing spread of HIV. 30 | KS III | www.unaidscaribbean.org limiTed involvemenT H COMPULSORY TREATMENT FOR PEOPLE WHO USE DRUGS AND/ OR DEATH PENALTY FOR DRUG OFFENCES NO F DEEM SEx WORK (prosTITuTIon)TobeIllegAl NO territories and entities E crImInAlIsesAme-sex SExUAL ACTIVITIES BETWEEN CONSENTING ADULTS ANTIGUA AND BARBUDA Countries, D SPECIFICALLY CRIMINALISE HIV TRANSMISSION OR ExPOSURE PRESENT OBSTACLES TO ACCESS TO HIV SERVICES FOR VULNERABLE POPULATIONS C SPECIFY PROTECTIONS FOR VULNERABLE SUBPOPULATIONS B PROTECT PEOPLE LIVING WITH HIV AGAINST DISCRIMINATION A PUNITIVE LAWS HIV-specIfIcresTrIcTIonson ENTRY, STAY OR RESIDENCE PROTECTIVE LAWS DEATH PENALTY Contradictory information of Civil soCieTy. Among the 16 Caribbean States, the scorecard regarding involvement of civil society in the national HIV response has shown that 13 Caribbean countries scored slightly above average. However, three countries namely Barbados, Suriname and Trinidad and Tobago have performed poorly in this area. This situation needs to be addressed urgently, because the role of civil society in the scale-up of the HIV response is crucial, especially when it comes to the mostat-risk populations. 29 blood safeTy is assUred in The Caribbean. The first regional effort to reduce HIV transmission was to secure blood transfusions. In comparing data for 20082009, the majority of countries have screened all units of donated blood in a quality assured manner, with the exception of the Dominican Republic. Antigua and Barbuda 29 UNAIDS Global Report on AIDS.2010 and Grenada have moved quickly to ensure 100% screening of all donated units of blood. Unfortunately, the Dominican Republic experienced a setback, with only 85% of units screened. Decision makers need to pay urgent attention to this situation. perCenTage figure 12: perCenTage of donaTed blood UniTs sCreened for hiv in a qUaliTy assUred manner in The Caribbean Below is a summary for the PMTCT coverage in the 10 larger Caribbean countries in 2009, showing that the Bahamas, Barbados, Cuba, Guyana, Jamaica and Suriname have achieved a high PMTCT coverage, whereas Belize, the Dominican Republic, Haiti and Trinidad and Tobago need a rapid scale-up to achieve universal access. Table 10: pmTCT Coverage in 10 larger Caribbean CoUnTries. 2009. unaidS/who. 2010 Country Coverage in 2009 Towards Universal Access The Bahamas* 95% Achieved** Barbados* 95% Achieved** Belize (22-61) Needs Rapid Scale-up Cuba 95% Achieved** The Dominican Republic (32-95) Needs Rapid Scale-up Guyana 95% Achieved** Haiti 60% Needs Rapid Scale-up Jamaica 83%*** (46-95) Achieved** Suriname 83%*** (82-95) Achieved** Trinidad & Tobago* 55%*** Needs Rapid Scale-up CoUnTry Source: UNAIDS Global Report on AIDS.2010 and 2010 UNGASS Reports. ForTy-one perCenT oF pregnanT women living WiTh hiv did noT reCeive mediCines To redUCe The Transmission of hiv To Their babies. In 2009 a total number of 7,400 pregnant women living with HIV needed ART to prevent mother-tochild transmission, but only 4,400 received the treatment, resulting in a coverage of 59%. 30 The PMTCT coverage increased from 22% in 2005 to 52% in 2008 to 59% in 2009. Source: UNAIDS Global Report on AIDS.2010, * WHO High Income Countries Data. 2010 ** Universal Access is achieved when the coverage is above 80%. ***2010 UNGASS Reports figure 13: pmTCT regional Coverage: 2005-2010 in The Caribbean Source: WHO/UNAIDS/UNICEF. Towards Universal Access. Progress Report 2010 30 UNAIDS Global Report on AIDS.2010 www.unaidscaribbean.org | KS III | 31 very limiTed aCCess To prevenTion programmes by men Who have sex WiTh men, sex Workers, CraCk CoCaine Users and prisoners. In the previous reporting period 2006-2007, only three Caribbean countries out of the 16 had reported on this indicator (Bahamas, Cuba and Guyana). During the current reporting period 2008-2009, Cuba is the only country that has done so, reporting that as much as 92% of its MSM population is reached by prevention programmes. The progress accomplished in this one country shows up a serious lack of information and the absence of prevention programmes for Caribbean MSM during the last four consecutive years. This situation needs to be addressed if universal access to HIV prevention is to be achieved in this region and among all population groups. figure 14: perCenTage of msm reaChed by prevenTion programmes in Three Caribbean CoUnTries 2007 2009 Source: UNAIDS Global Report on AIDS. 2010 A similar situation is seen among female sex workers whereas from three countries reporting in the previous cycle, there are only two this time around. In Cuba more than 97% of FSW were reached by prevention programmes while in Guyana the percentage was 61%. The Dominican Republic reported that 44% of sex workers were reached by prevention programmes without disaggregation by sex. Figure 15: perCenTage of fsW reaChed by prevenTion programmes in Three Caribbean CoUnTries Source: UNAIDS Global Report on AIDS. 2010 Analysis of epidemiological and behavioural data shows that turning the tide of the HIV epidemic in this region calls for investment in and programming for men who have sex with men, male and female sex workers and drug users who are disproportionately affected by HIV. Unfortunately, UNGASS reports for the past four years have demonstrated that only Cuba has consistently reported on this indicator. 32 | KS III | www.unaidscaribbean.org The remaining 15 countries have not been able to reach out to these populations with prevention programmes. Without addressing this clear weakness in their national response, these 15 Caribbean countries will not be in a position to stop the spread of HIV nor reverse its trend by the end of 2015. 2 box a prevenTion revolUTion is needed There are six key features to achieving a prevention revolution using the combination prevention approach: • Acombinationofbiomedical,behaviouralandstructuralelements-toreduceboththeimmediate risks and the underlying vulnerabilities. • Ameaningfulengagementofaffectedcommunities,promotinghumanrightsandgenderissues. • operating synergistically, consistently over time, on multiple levels - individual, family and society. • Investingindecentralisedandcommunityresponsesandenhancedcoordinationandmanagement. • flexible and continuous learning will allow for adaptation to changing epidemic patterns and rapid adjustment and deployment of new tools and innovations. • Tailoringtheprocesstonationalandlocalneedsandcontexts. Source: UNAIDS OUTLOOK REPORT.2010 Fifty-two percent of PLHIV who needed treatment did not get it. In 2009, 52,400 of the 110,000 PLHIV needing ART were receiving it. This was a 31.3% increase from 2008 (39,900). Using the new WHO standards, the ART coverage increased from 37% to 48% (starting ART at <350CD4 count). However, when applying the old WHO standards (starting ART at <200 CD4 count), the ART coverage increased from 1% in 2004 to 67% in 2009. ART coverage was 55% for males and 45% for females. figure 16: arT Coverage 2004-2009 in The Caribbean Source: UNAIDS Global Report ON aids.2010. WHO/UNAIDS/UNICEF. Towards Universal Access. Progress Report 2010 www.unaidscaribbean.org | KS III | 33 TreaTmenT is noT reaChing The Caribbean Children. From 2005 to 2009, the treatment coverage increased from 5% in 2005 to 24% in 2008 and 29% in 2009. In 2009, there were 2,400 children receiving ART while 8,100 needed it. figure 17: arT Coverage among Caribbean Children 2005-2009 Source: WHO/UNAIDS/UNICEF. Towards Universal Access. Progress Report 2010 The following summary of the ART coverage demonstrates that in the majority of the countries there is a need to rapidly scale-up programmes to achieve universal access to antiretroviral treatment in the Caribbean. Only three countries have achieved high ART coverage (Barbados, Cuba and Guyana) i.e. above 80%. Table 11: arT Coverage in The Ten larger Caribbean CounTrieS. 2009 Unaids/Who. 2010 Country ART Coverage in 2009 Towards Universal Access The Bahamas 52%** Needs Rapid Scale-up Barbados 89%** Belize 40% Cuba 95% The Dominican Republic 47% Guyana 95% Haiti 43% Needs Rapid Scale-up Jamaica 46% Needs Rapid Scale-up Suriname 53% Needs Rapid Scale-up Trinidad & Tobago 41%** Needs Rapid Scale-up Achieved* Needs Rapid Scale-up Achieved* Needs Rapid Scale-up Achieved* Source: UNAIDS Global Report on AIDS.2010 * Achieved when coverage is above 80%, ** WHO. High Income Countries Data.2010. 34 | KS III | www.unaidscaribbean.org The figure below shows that 50% of the ten larger Caribbean countries, where 88% of all Caribbean people living with HIV are located, have their national ART coverage below 50% (Belize, Trinidad and Tobago, Haiti, Jamaica and the Dominican Republic) and two have ART coverage between 50% and 60% (Bahamas, and Suriname). figure 18: arT Coverage in The Ten larger Caribbean CoUnTries. Unaids/Who. 2010 figure 19: perCenTage oF adulTS and Children WiTh hiv knoWn To be on arT 12 monThs afTer iniTiaTion of anTireTroviral Therapy. 2007-2009 120% 2007 2009 100% 80% 60% 40% Source: UNAIDS Global Report on AIDS.2010. WHO High Income Countries Data. 2010 20% 31 32 33 34 SKN SLC CUB DOM JAM BDO HAI SVG DOR BEL TNT GUY SUR BHA GRE 0% ANT qUaliTy of Care needs improvemenT. In 2009, only six of the 16 Caribbean States reported a survival rate above 90% 12 months after PLHIV were put on ART. Compared with 2007, only four countries have made progress in this area. In six countries, less than 10% of PLHIV have died or have been lost to follow-up within 12 months of starting ART for the period 2006-2009. As seen in figure 19, in comparing the previous reporting period with the current one, setbacks were observed in five countries regarding quality of care of PLHIV. The observation is that people are not willing to come forward early to get medical attention because of stigma and discrimination attached to HIV. This situation must be addressed if the number of premature deaths among PLHIV is to be reduced, as it is well established that the sooner the treatment starts, if indicated, the better it is. Source: UNAIDS Global Report on AIDS. 2010 Overall, PLHIV are facing serious challenges with late presentation for treatment and adherence issues. According to 2010 UNGASS reports, an emergent issue is a rapid increasing trend of patients moving quickly from first to second line treatment, and the somewhat frequent use of protease inhibitors in the first line. Although there is an absence of accurate or comprehensive data in many instances, this apparent trend is becoming a serious challenge because of the increased cost of these treatment regimens 34. Barbados, Dominica, Cuba, Jamaica, St. Kitts and Nevis and St. Lucia. Jamaica, St. Lucia, St. Vincent and the Grenadines and Trinidad and Tobago. Antigua and Barbuda, Dominican Republic, Grenada, Guyana and Suriname. WHO, UNAIDS, UNICEF. Towards Universal Access. Progress Report 2010. www.unaidscaribbean.org | KS III | 35 finally, neW hiv infeCTions are oUTpaCing TreaTmenT in The Caribbean. in 2009, For every 50 people sTarTing arT, There Were 70 neW hiv infeCTions. To address these issues and scale-up treatment, UNAIDS recommends that Caribbean countries adopt the principles of Treatment 2.0 summarised below. box 3 TreaTmenT 2.0 is The ansWer for The Caribbean Treatment 2.0 is designated to maximise the efficiency and effectiveness of HIV treatment through focus on five priorities: • optimisingdrugregimens, • Advancingpoint-of-careandothersimplifiedplatformsandmonitoring, • reducingcost, • Adaptingdeliverysystems,and • mobilisingcommunity. Progress has been made, but there is still a long way to go. In addition to a reduction of AIDS-related deaths by 43%, there was a 14.3% drop in new HIV infections in the past decade. Overall, the Caribbean made some progress in responding to the HIV epidemic; however there is a need for more reduction in the HIV incidence if this region is to turn the tide of the epidemic. As shown below, Belize, the Dominican Republic, Jamaica and Suriname have reduced their incidence of HIV by 25% in 2009. Haiti reduced its HIV incidence by 12%. Table 12: ChangeS in The hiv inCidenCe raTeS during 2001-2009 Source: UNAIDS Global Report on AIDS. 2010 To the five countries which reduced HIV incidence, it is also important to add the success in reduction of the number of PLHIV in Guyana, Haiti and Jamaica which resulted in a decline in adult HIV prevalence. Three countries 35 have achieved a very high level of treatment coverage and six for PMTCT coverage 36. The region should learn from the experience of these countries 37 and use effective approaches to respond to HIV and break the back of the HIV epidemic. 35 36 37 The Caribbean decision makers must pay serious attention to the production and use of strategic information on HIV. New data on knowledge, attitudes, practices and beliefs are needed to understand the dynamics of the HIV epidemic in communities and among different population groups. Evidence to guide action is paramount. Barbados, Cuba and Guyana. The Bahamas, Barbados, Cuba, Guyana, Jamaica and Suriname. The Bahamas, Barbados, Belize, Cuba, the Dominican Republic, Guyana, Haiti, Jamaica and Suriname. 36 | KS III | www.unaidscaribbean.org www.unaidscaribbean.org | KS III | 37 AntiguA & BArBudA Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy The National AIDS Programme reported on seven out of 23 relevant UNGASS indicators i.e. 30% completeness. Noticeably, the National Strategic Plan is outdated and new data on knowledge, behaviours and orphans and vulnerable children are lacking. Their national AIDS spending report showed that USD 184,000 was spent on AIDS with 71.4% from an external source i.e. the Global Fund. This poses a problem of sustainability. There is a lack of basic policies to deal with discrimination and to protect PLHIV and to support the national HIV response. Progress was accomplished in blood safety with the percentage of donated blood units tested moving from 31.9% in 2007 to 100% in 2009. All schools provided Life-Skills HIV education and the needs of orphans and vulnerable children were addressed. In 2009, 98 PLHIV were on ART; all pregnant women seen at antenatal clinics were tested and only one was found HIV positive. No TB/HIV co-infection was reported. There is an 87% Health and Family Life Education coverage in schools. Reported cases of HIV among young people have shown that from 10 in 2006-2007, 30 cases were diagnosed during the period 2008-2009. This is a three-fold increase during the past four years. Regarding quality of care, 53.3% of PLHIV put on ART were alive 12 months after they started therapy, which is far below the 90% recommended WHO standard. 38 | KS III | www.unaidscaribbean.org •Develop a National Strategic Plan and M&E framework to guide the HIV response. •Focus on population groups such as young people to improve their knowledge and skills to increase the age at first sexual intercourse and decrease age mixing behaviours among young females. •Pay attention to female sex workers in brothels in the tourism sector to increase their knowledge and skills. •Promotea100%condomuseamong sex workers and men who have sex with men by increasing their knowledge and skills to protect them against HIV transmission. •Put efforts into the rapid improvement of the quality of life of PLHIV by removing all barriers to access to treatment, including stigma and discrimination. •Remove punitive laws regarding same sex acts and sex work to support the roll-out of universal access to HIV prevention, care, treatment and support. delcora Williams AIDS PROGRAMME MANAGER ANTIGUA AND BARBUDA WhAt Is the AIds sItuAtIon In youR countRy? In Antigua and Barbuda, since the first case of HIV was diagnosed in 1985 and up to the end of September 2010, the total number of persons who tested positive for HIV was 867, with a male to female ratio of 1:1. The major mode of HIV transmission is through heterosexual contact, and the economically active population, which consists of persons in the reproductive age group, is most affected. A review of the HIV notification by age indicates that HIV is concentrated within the age group 15-49 years. HIV-related illnesses are among the eight leading causes of death in the age group 20-59 years. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? Our biggest achievement to date is our HIV Outreach Programme, which takes all HIV prevention and other services directly into the communities, thereby facilitating easy access to HIV testing with same-day results, and information, education and communication activities targeting males. WhAt ARe the successes In RespondIng to AIds In youR countRy? The country successes to date are the synergy between us and our partners where we are able to maximise service provision to the general population and the MARPs (SWs and MSM) and youth. There is an HIV Patient Monitoring System and strong PLHIV support groups which offer supportive and palliative care services and assist PLHIV with remedying human rights and stigma and discrimination violations. The National HIV programme provides support to a number of young persons orphaned by HIV. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? Sex workers, men who have sex with men, and youth will be the key populations for targeted HIV prevention and education interventions particularly. www.unaidscaribbean.org | KS III | 39 AntiguA & BArBudA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 33% ART 88 PLHIV 98 PLHIV NA NA HIV/TB NA NA HIV Test in GP 25% NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education 13% 100% School for OVC NA 1.00 NA NA NA NA NA NA 55% NA NA NA Condom Use in SW NA NA Condom Use in MSM NA NA NA NA HIV in MSM/SW NA NA 12 months on ART 55% 53% PMTCT 83% Knowledge YP 48% Knowledge MSM/SW Sex<15 years in YP 25% Xsex Partners in GP Condom Use in GP HIV in YP 87% F 0.08% 100% 100% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 40 | KS III | www.unaidscaribbean.org thE BAhAmAS Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy The adult HIV prevalence in the Bahamas is 3.1%, the highest in the region. There were 6,600 people living with HIV, and there were, for every 100 males, 150 females living with HIV in 2009. For the past four years, national authorities have been working from a roadmap which ended in 2010. Overall, the country reported on 13 out of the 23 relevant UNGASS indicators i.e. 57% completeness. NASA reports show that USD 9 million was spent on AIDS with 90% of these resources coming from the domestic side. In terms of strategy, 67% of these resources were spent on treatment, only 11% on prevention and 22% on management, advocacy, research and monitoring and evaluation. Using the new WHO standards, the ART coverage rate (1506/2900) was 52% in 2009, the PMTCT coverage rate was 90% and treatment of TB/HIV coinfection was 100%. Only 2% of the general population was tested for HIV in 2009, 71% of MSM were reached by prevention programmes and among them 69% reported having used a condom at last anal intercourse but only 36% of MSM have comprehensive knowledge on modes of transmission of HIV. Seventy-eight percent of schools are providing life-skills HIV education, but a staggering 58% of young people have had sex before age 15. Quality of care needs improvement because only 70% of PLHIV who started ART were still alive 12 months later. •Develop a National Strategic Plan with an M&E framework to guide the national response to HIV. •Strengthen national hiv prevention programmes by introducing new and effective behavioural modification programmes and allocating for them more resources to decrease the number of new infections. This will subsequently reduce the high adult HIV prevalence observed in the past decade. •Focus attention on young people because the majority of them had initiated sex before age 15, with a consequential 3% HIV prevalence among young females. •Strengthen interventions among men who have sex with men, sex workers, and migrant populations from Haiti, the Dominican Republic and the rest of the Caribbean to ensure that prevention, care, treatment and support programmes reach them. •Scale-uptreatmentprogrammesand sustain the high level coverage of PMTCT and treatment of TB/HIV coinfections. www.unaidscaribbean.org | KS III | 41 dR. peRRy gomez NATIONAL AIDS PROGRAMME COORDINATOR THE BAHAMAS WhAt Is the AIds sItuAtIon In youR countRy? The Bahamas is facing a generalised HIV epidemic. As of December 31, 2009 there have been a cumulative total of 11,803 HIV infections, 6,241 cases of AIDS and 5,545 cases of HIV; 67% of the cases of AIDS have died. In 2008, the ratio of males to females infected with HIV was 1.3:1 and antenatal HIV prevalence was 2%. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? The PMTCT programme remains a best practice for the Bahamas. All attending women are offered VCT, employing the opt-out strategy. Coverage is estimated at a consistent 97% for clinic attendees. Our PMTCT services also include the general antenatal package inclusive of STI screening. In 2007, a second screening for HIV at 32 weeks gestation was added to the protocol to pick-up late HIV infections. WhAt ARe the successes In RespondIng to AIds In youR countRy? The successive Bahamas governments have directed important resources to respond to the HIV epidemic. Successes achieved include the decline in newly reported HIV and AIDS cases, a drop in reported AIDS-related deaths, a drastic decline in HIV transmission from mother to child from 30% in 1995 to <2% in 2006, and a seven-fold increase of PLHIV on treatment i.e. from 300 in 2002 to 2,152 at the end of 2009. The focus on youth has enjoyed significant success in the primary and secondary schools. The National HIV Reference laboratory continues to expand with plans underway to begin in-country DNA PCR and Resistance Testing. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The focus will be on adolescents, young adults, undocumented immigrants (Haitian nationals), men who have sex with men, persons above 50 years of age and sex workers. 42 | KS III | www.unaidscaribbean.org thE BAhAmAS ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% 100% 100% ART 43% No 1,244 1508/2900= 52% PMTCT >95% >95% HIV/TB 81% 81% 100% HIV Test in GP NA NA TOTAL 2% M 1 F 4% HIV Test in MSM/SW MSM 61% NA Prevention in MSM/SW MSM 48% MSM 71%* NA NA 72% 78% Support to OVC NA HIV Education School for OVC NA NA NA Knowledge YP NA NA NA Knowledge MSM/SW MSM 45% MSM 36% Sex<15 years in YP NA M 70% Xsex Partners in GP NA NA Condom Use in GP NA NA Condom Use in SW NA NA Condom Use in MSM 69% NA NA 1% HIV in MSM/SW MSM 8.18% NA 12 months on ART 70% 70% HIV in YP F 1.26% F 41% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 43 BArBAdOS Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy In 2009, a total number of 2,100 people were living with HIV in Barbados and the adult HIV prevalence was 1.4%. UNAIDS estimated that there were for every 170 males, 100 females living with HIV. The country reported on 12 out of the 23 relevant UNGASS indicators which represents 52% completeness. The NASA submission shows that in 2008, USD 11 million was spent on AIDS with 63% of this amount coming from domestic sources but no distribution of funds by strategy was reported. In terms of policy, issues remain with laws prohibiting same sex relations and solicitation. Based on new WHO standards, the ART coverage (804/903) is 89% and TB/HIV cases are 100% treated. The PMTCT coverage rate is above 95% and care for orphans is 100% secured and all attend school. Life-skills HIV education is provided in 85% of the schools. Only 50% of young people know the sexual transmission prevention means and reject misconceptions, and 20% of them have had sex before the age of 15. Quality of care is high with 94% of PLHIV on ART 12 months after initiation of therapy. There is a serious lack of behavioural information among MARPs in Barbados. This shortcoming is not helping with the use of evidence to make decisions. 44 | KS III | www.unaidscaribbean.org •Sustain blood safety measures, provision of quality ART and PMTCT services. •Focus national attention on the generation, analysis and use of strategic information among men who have sex with men and sex workers. There is a lack of strategic information among these vulnerable populations which needs urgent correction. •include key populations in the development, implementation and evaluation of interventions i.e. men who have sex with men, male and female sex workers and young people. •Remove discriminatory and punitive laws regarding same sex relationships and sex work. •Strengthen and expand national prevention programmes to reach out to the most vulnerable populations. henRIcK ellIs CHAIR, NATIONAL HIV/AIDS COMMISSION BARBADOS In the past few years, our country has produced some notable successes with our HIV programmes. Our treatment access numbers have set a strong example for other countries throughout the Caribbean and the world. But there is a long way to go if we are to meet the critical Millennium Development Goals set by the United Nations— all eight of which are affected by the prevalence of HIV in our community. The deadline to reach those goals is 2015. To meet it, we must both focus on the populations in Barbados who are most at risk, and we must eradicate the stigma of AIDS that is so detrimental, yet so unfortunately prevalent, in our culture. Although some work is ongoing in these areas, much more still needs to be done to reach our goals. First, HIV infection rates in our country continue to climb at an unacceptable rate. Before this trend spins out of control, we must focus on the groups who are most-at-risk of contracting HIV as we develop policies and funding for our AIDS programmes in collaboration with our partners. To halt the spread of HIV, we must focus on those groups which are most-at-risk to make our programmes as effective as they must be. Second, we must eradicate the discrimination and stigma of being HIV positive. As there is a central AIDS treatment site in Barbados, many who have HIV are reluctant to seek treatment, for fear of being recognised and discriminated against. This means risky behaviour often continues, perhaps spreads, and that those who require help do not receive it merely because they are too afraid to seek it out. Leaders in the community, including those in the faith-based community, should re-double their efforts to help our society eliminate discriminatory thoughts and feelings about those living with HIV and most-at-risk populations. Our leaders must continue their role modelling. But now, we must also ask them to step in with a bolder message of acceptance and understanding of HIV as it exists in Barbados. It is spreading into more and more of our communities. This means that we must make greater efforts and use more effective strategies very quickly if we are to stop its momentum. And putting an end to intolerance by educating our communities about the realities of HIV is a necessary start. If the government and people of Barbados work together in these ways to both focus on and eradicate AIDS, we can make the necessary changes to meet our deadline for the MDGs, and to make Barbados a stronger and healthier place to live. www.unaidscaribbean.org | KS III | 45 BArBAdOS ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% 100% 100% ART 73% No 719 804/903=89% PMTCT [73 - >95%] HIV/TB 100% >95% 100% >95% 0 cases HIV Test in GP TOTAL 99%* NA HIV Test in MSM/SW MSM 85% Prevention in MSM/SW NA NA Support to OVC NA 100% HIV Education TOTAL 41% 85% School for OVC NA 1.00% Knowledge YP NA M 52% Knowledge MSM/SW FSW 37% NA Sex<15 years in YP NA M 22% Xsex Partners in GP NA NA Condom Use in GP NA NA Condom Use in SW FSW 80% NA Condom Use in MSM NA NA HIV in YP F 0.6% NA HIV in MSM/SW NA NA 12 months on ART 95% 94% FSW 73% NA F 49% F 16% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 46 | KS III | www.unaidscaribbean.org BElizE Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy The adult prevalence rate is 2.3% and a total of 4,800 people were living with HIV in 2009 in Belize. There were for every 100 males, 130 females living with HIV. A 52% completeness rate was observed in Belize during this reporting period. Data on NASA show that USD 2 million was spent on AIDS with 32% from domestic sources. In terms of policy and laws, collaboration with Civil Society Organisations is limited and punitive laws exist against same sex relationships and sex work and there are travel restrictions for PLHIV. Blood safety is ensured, the ART coverage rate is 40%, the PMTCT coverage varies between 22%-61% and 37% of the general population have been tested for HIV in 2009. Only 38% of schools offered life-skills HIV education in 2009 and no information exists regarding orphans and other vulnerable children in terms of support and access to school. Half of young people have comprehensive knowledge about HIV and 8% of young people have had sex before the age of 15 while 9.4% of the general population have had more than one sexual partner in the past 12 months and 63.1% of them have used a condom during their last sexual intercourse. HIV prevalence among young females was 1.01% in 2009 and 76% of PLHIV were still on ART 12 months after initiation of therapy. Belize is among the four Caribbean countries which have reduced HIV incidence by 25% in 2009. •Remove discriminatory laws against same sex relationships, sex work and travel restrictions for PLHIV, which is crucial to the respect for human rights and to the enabling environment in support of universal access. •empower men who have sex with men, sex workers, transgender and PLHIV by way of a primary focus by national authorities. •target priority groups such as female sex workers, MSM, migrant populations and the Garifuna population 35. •Generate, analyse and use strategic information to plan for interventions among these vulnerable groups. This is essential for further successes in Belize. Justin Buszin, Benjamin Nieto-Andrade, Jorge Rivas, Kim Longfield. Multiple Partnerships and HIV among the Garifuna Minority Population in Belize. Population Services International. 2009 35 www.unaidscaribbean.org | KS III | 47 mARvIn mAnzAneRo NATIONAL AIDS PROGRAMME BELIzE WhAt Is the AIds sItuAtIon In youR countRy? The HIV situation showed a plateau in the total number of cases up until 2009 and as of last year, a gradual decrease in the HIV incidence is being documented along with an increasing number of patients being put on treatment. Increasing evidence is suggesting that there may be concentrated pockets of certain populations that may have a higher prevalence than the overall reported prevalence in pregnant women. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? In particular, the increasing integration of HIV services into the overall health system; high coverage of prevention of mother-to-child transmission programmes, expansion of testing to rural health facilities and the gradual increase of the Belize Health Information System for patient monitoring. WhAt ARe the successes In RespondIng to AIds In youR countRy? Strong commitment of the Ministry of Health to the National Response; gradual incorporation of other ministries into the national response and increasing interest in integrating HIV as a chronic disease and thus incorporation into the health system. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The focus of the programme will be on men who have sex with men, female sex workers, incarcerated populations and the mobile-migrant population. 48 | KS III | www.unaidscaribbean.org BElizE ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% 100% 100% ART 49% 40% PMTCT [24 - 64%] [22% - 61%] HIV/TB 69% HIV Test in GP M 10% HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education NA 38% School for OVC NA NA NA M 47% NA NA NA M 11% F 8% M 15% F 5% Knowledge YP M 26% F 26% Knowledge MSM/SW Sex<15 years in YP M 11% F 6% F 20% F 4% M 30% Xsex Partners in GP M 13% Condom Use in GP NA 63.1% Condom Use in SW NA NA Condom Use in MSM NA NA HIV in YP F 0.83% F 1.01% HIV in MSM/SW NA NA 12 months on ART NA 76% F 42% F 53% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 49 CuBA FIndIngs oF ungAss IndIcAtoRs: A summARy In 2009, with 0.1% adult HIV prevalence, Cuba had the lowest prevalence in the Caribbean and it is the only country in the region to achieve 100% completeness in reporting on all 23 relevant UNGASS indicators. There were 7,100 people living with HIV in this country. The NASA report indicates that a total of USD 123,700,000 was spent on AIDS during 2008-2009 and the majority of funds (i.e. 81%) came from national sources. The distribution of resources by strategy shows that 35% of the budget was spent on treatment, 20% on prevention and research and 45% on programme management and support. In terms of policy, Cuba has travel restrictions on people living with HIV and these are a hindrance to human rights. Cuba has achieved universal access in the areas of blood safety (100%), ART coverage (>95%), treatment of HIV and TB/HIV co-infection (>95%), PMTCT coverage rate (>95%), support for orphans and life-skills HIV education (100%). When it comes to survival at 12 months after initiation of ART, Cuba has sustained quality treatment for PLHIV and the country kept its HIV prevalence at 0.1% in the general population during the past decade with low levels of HIV prevalence among MSM (0.7%), MSW (0.38%), FSW (0.13%) and young people (0.02%). There were for every 220 males, 100 females living with HIV. The HIV epidemic is disproportionately affecting the MSM population. progress Accomplished Among most-at-Risk populations Cuba is the only Caribbean country which has consistently reported data among MARPs; results of its national programmes during the past four years are summarised on the following page. 50 | KS III | www.unaidscaribbean.org Key Issues RequIRIng Focus •Sustainhigh-levelcoverageforblood safety, ART, PMTCT and prevention programmes among vulnerable groups. •keep the focus of the interventions on men who have sex with men, and male and female sex workers. •Strengthen hiv prevention programmes among young people. •Remove punitive travel restrictions for PLHIV and sex workers. •Revisitlawsthatreinforcemandatory treatment for PLHIV in Cuba. The percentage of MSM and SW tested for HIV during the past four years remained at the same level i.e. between 32% and 35%. This intervention needs a scale-up since diagnosing HIV positive cases among vulnerable groups is a very cost-effective public health approach to reduce the spread of HIV (Table 9). Table 16: peRcentAge oF msm, FsW And msW tested FoR hIv PoPulAtioN MSM FSW MSW 2006-2007 33% 32% 33% 2008-2009 32% 35% 32% Source: 2010 UNGASS Report. Cuba. The percentage of vulnerable groups reached by prevention programmes has increased very quickly between 2007 and 2009. Among MSM the percentage having access to prevention programmes increased by 73%, among FSW by 51% and MSW by 56%. Figure 20: peRcentAge oF mARps ReAched by pReventIon pRogRAmmes In cubA The percentage of sex workers reporting use of a condom during their last sexual intercourse with the most recent client has remained stable and above 50% during the past four years. But a 100% condom use among sex workers must be the target for Cuba. Table 18: peRcentAge oF mAle And FemAle sex WoRKeRs RepoRtIng use oF A condom WIth lAst clIent PoPulAtioN FSW MSW 2006-2007 56% 63% 2008-2009 53% 63% Source: 2010 UNGASS Report. Cuba. The percentage of men reporting the use of a condom the last time they had anal sex with a male sex partner has been stable during the past four years and remained above 50% in Cuba. Policies need to be put in place to achieve 100% condom use among MSM. Source: 2010 UNGASS Report. Cuba. Among vulnerable groups, the level of knowledge of prevention of sexual transmission of HIV and rejection of misconceptions has increased among MSM and MSW but remained almost the same among FSW, but among all three groups it is above 50%. Table 17: peRcentAge oF vulneRAble gRoups WIth coRRect KnoWledge And RejectIon oF mIsconceptIons PoPulAtioN MSM FSW MSW 2006-2007 54% 61% 49% 2008-2009 59% 56% 60% Source: 2010 UNGASS Report. Cuba. Table 19: peRcentAge oF men RepoRtIng the use oF A condom the lAst tIme they hAd AnAl sex WIth A mAle sex pARtneR PoPulAtioN MSM 2006-2007 55% 2008-2009 52% Source: 2010 UNGASS Report. Cuba. During the past four years national efforts have resulted in stable levels in HIV testing and use of condoms among FSW, MSW and MSM and in increased knowledge and access to prevention programmes. Overall, this sustained effort and high coverage for HIV prevention, treatment, care and support could explain Cuba’s low-level HIV prevalence among the general population and vulnerable groups. www.unaidscaribbean.org | KS III | 51 CuBA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending Yes Yes National Policy Yes Yes Blood Safety 100% 100% 100% 100% ART >95% >95% PMTCT [>95%] 39% - >95% HIV/TB 90% 97% HIV Test in GP M 28% F 32% M 26% F 32% HIV Test in MSM/SW MSM 33% MSW 38% MSM 32% MSW 35% FSW 32% Prevention in MSM/SW Support to OVC FSW 35% TOTAL 60% MSW 59% TOTAL 97% MSW 96% FSW 65% MSM 56% FSW 98% MSM 92% NR 100% HIV Education TOTAL 71% School for OVC 1% Knowledge YP M 55% 94% 1.00 F 61% Total 58% M 57.6% F 60% Knowledge MSM/SW MSM 54% MSW 49% FSW 61% Sex<15 years in YP TOTAL 24% MSM 59% FSW 56% M 33% TOTAL 24% F 15% Xsex Partners in GP TOTAL 23% M 35% TOTAL 39% M 41% M 32% F 15% Total 23% F 10% Condom Use in GP MSW 60% M 34% F 12% M 48% F 38% TOTAL 56% MSW 53% F 33% Condom Use in SW TOTAL 61% MSW 63% FSW 56% FSW 63% Condom Use in MSM 55% 52% HIV in YP DHS M&F 0.05% M&F 0.02% HIV in MSM/SW MSM 0.86% SW 0.12% MSM 0.71% MSW 0.13% FSW 0.12% MSW 0.38% FSW 0.13% 12 months on ART TOTAL 96% M 96% >95% F 96% WITH 100% IN <15 YRS & 96% IN >15 YRS NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 52 | KS III | www.unaidscaribbean.org dOminiCA Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy The National Strategic Plan has expired and a new one is being developed. The NASA report has shown that during 2008-2009 a total of USD 356,000 was spent on AIDS with only 17% coming from internal sources. The epidemic is heavily affecting men and there are no national policies in place to address the needs of men and especially men who have sex with men. The country has reported on eight out of 23 relevant UNGASS indicators i.e. 35% completeness. Blood safety is ensured with 100% of donated blood units being tested for HIV antibodies. There were 38 persons on ART. All pregnant women were tested for HIV, four were found HIV positive and all received the full course of treatment for PMTCT. The two cases of TB/HIV co-infection were evaluated and one was found eligible for ART. New data on knowledge and behaviours among the general population and most-at-risk populations are lacking. One hundred percent of schools are providing life skills-based HIV education. In terms of quality of care, all patients on ART were alive after 12 months of initiation of treatment and all children born to HIV positive mothers tested HIV negative. •Develop a new National Strategic Plan and an M&E framework urgently to guide an effective national response to HIV. •Remove punitive laws and adopt protective laws and policies for PLHIV and sexual minorities. •Mobilise more internal resources to sustain and expand the national response to HIV, while providing services to PLHIV and to pregnant women to prevent mother-to-child transmission of HIV. •Focus the national hiv response on prevention interventions on men (especially men who have sex with men), female sex workers and young people, especially young women to address age mixing at first sexual intercourse issue. www.unaidscaribbean.org | KS III | 53 julIe FRAmpton NATIONAL AIDS PROGRAMME COORDINATOR COMMONWEALTH OF DOMINICA WhAt Is the AIds sItuAtIon In youR countRy? From 1987 to 2009, the cumulative number stood at 350 confirmed cases of HIV. In 2009 there were eight cases. There continues to be higher prevalence among males, who account for over 70% of the total number of reported cases. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? In terms of successes, there are a few to make mention of: scaled-up antiretroviral treatment with monitoring of HIV drug resistance, a decreased number of AIDS-related deaths and no seroconversion of infants of HIV positive mothers for ten years now. WhAt ARe the successes In RespondIng to AIds In youR countRy? An HIV Workplace programme was implemented in 27 organisations in Dominica. These workplaces have adopted the PANCAP Workplace Policy. We have also mainstreamed gender into HIV services as well as in the Education Sector. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? We will continue to partner with all stakeholders including line ministries to reach out to men who have sex with men, sex workers and also young people and workplaces. 54 | KS III | www.unaidscaribbean.org dOminiCA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% 100% ART NA 39 PLHIV* 38 PLHIV PMTCT >95%* NA 2 HIV+ HIV/TB 100% 67% HIV Test in GP NA NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education 100% 100% School for OVC NA NA Knowledge YP NA NA Knowledge MSM/SW NA NA Sex<15 years in YP NA NA Xsex Partners in GP NA NA Condom Use in GP NA NA Condom Use in SW NA NA Condom Use in MSM NA NA HIV in YP NA NA HIV in MSM/SW NA NA 12 months on ART 95% 100% 100% 100% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 55 thE dOminiCAn rEPuBliC FIndIngs oF ungAss IndIcAtoRs: A summARy In 2009 a total of 57,000 people were living with HIV in the Dominican Republic, with an adult HIV prevalence of 0.9%. There were for every 100 males, 138 females living with HIV. Information was provided on 16 out of 23 relevant indicators i.e. a 70% completeness rate. The NASA report for 2008 has shown that USD 23.4 million was spent on AIDS with 35% coming from domestic sources and 26% spent on prevention, 31% on treatment, 38% on programme management and administrative strengthening, and the remaining 5% spent on other strategies such as advocacy, research, etc. The greater involvement of civil society organisations is limited and the laws regarding travel restrictions remain. There is an 85% blood screening in place, ART coverage is 47% and PMTCT coverage is between 39-95% i.e. 67% on average, and 42% of TB/HIV co-infections were treated. Among vulnerable groups, 33% of MSM and 67% of FSW were tested for HIV and know their result and 44% of SW have been reached by prevention programmes. Thirty-seven percent of orphans and vulnerable children have received basic external support and only 6.16% of schools provide life-skills HIV education with a ratio of 0.7 of orphans and non-orphans attending school. Seventy-three percent of FSW and 73% of MSM have comprehensive knowledge about HIV prevention; 97% of FSW have used a condom during their last sexual intercourse with a client, reflecting a consistently high percentage of condom use among FSW since 2005. Sixty-six percent of MSM reported use of a condom at last anal sex with a male partner; this is a decline from 79% in 2007. HIV prevalence among MSM remains at 11% between 2005 and 2009 and among female sex workers it was 4.8%. The quality of care declined with a drop in the percentage of PLHIV on ART after 12 months of initiation of therapy from 90% in 2007 to 83% in 2009. The Dominican Republic is among countries which have reduced their HIV incidence by 25% between 2001 and 2009. HIV prevalence among the Bateyes population has declined from 5% in 2002 to 3.2% in 2007, as well as among young people from 0.6% to 0.30%. HIV INCIDENCE ESTIMATES. The Mode of Transmission survey conducted in the Dominican Republic has shown that 33.26% of new HIV infections in 2010 would occur among GTMSM, 31.87 among low-risk heterosexuals, 9.07% among the populations living in the Bateyes, 8.31% among people practicing casual heterosexual sex, 5.68% among clients of sex workers, 3.69% among partners of casual heterosexuals, 2.79% among female partners of GTMSM, 1.89% among partners of sex workers’ clients, etc. This demonstrates that GTMSM, low risk heterosexuals, people living in the Bateyes and people engaging in casual heterosexual sex are the priority populations which deserve focus with comprehensive prevention programmes and HIV services. The relatively low levels of new infections among sex workers and their clients could be explained by the high level of condom use among the sex worker population. 56 | KS III | www.unaidscaribbean.org Key Issues RequIRIng Focus •Sustain the focus of the national response on MSM, transgender, sex workers and the Bateyes population. •RemovetravelrestrictionsonPlhiv. •improve quality of care for Plhiv and people infected by TB and HIV •100% hiv screening in donated blood is a must. •Scale-up ARt and PMtCt programmes. •Addressgenderissues. •increase social support to orphans and vulnerable children and the number of schools offering life-skills HIV education to children. •Achieve a greater and more meaningful involvement of civil society in the national HIV response. •Mobilise more domestic resources to ensure sustainability of HIV programmes and services. Figure 21: estImAtIng hIv IncIdence RAtes by populAtIon gRoups In the domInIcAn RepublIc. unAIds/copResIdA.2011 Source: UNAIDS and COPRESIDA. 2011 InequIdAd de gÉneRo con RelAcIÓn Al vIh A pesar de que las mujeres y niñas y la transversalización del género forman parte de las estrategias y los grupos priorizados, en el actual Plan Estratégico Nacional, las respuestas frente al tema han sido escasas y los económicos dirigidos al tema son deficientes. Por ejemplo, el programa de reducción de la transmisión vertical, dirigido a las mujeres embarazadas viviendo con el VIH sigue teniendo importante deficiencias y la violencia contra la mujer, elemento nodal y que coloca a riesgo frente al VIH, sigue en aumento. Tampoco se dispone de campañas en medios masivos dirigidos a las inequidades de género. En el caso de las mujeres viviendo con VIH, los servicios de atención no están dirigidos de manera específica a sus necesidades, en algunos casos, no se da respuesta a las especificidades de mujeres que adquirieron el virus a temprana edad y ya van a cumplir sus 50 años con casi 10 años en TAR, tampoco a aquellas mujeres adultas jóvenes que nacieron con el virus. Felipa García. Directora ejecutiva, ASOLSIDA El país puede mostrar avances en el área, pero los mismos son poco perceptibles ya que el problema es amplio. Como COPRESIDA, estamos apoyando el fortalecimiento de las capacidades de organizaciones gubernamentales y de la sociedad civil en materia de equidad de género. Por ejemplo, con el Ministerio de la Mujer se desarrolla un proyecto para la prevención del VIH y la violencia contra la mujer a nivel nacional, también se apoyan las unidades de violencia de las Fiscalías. Organizaciones de mujeres, como la Colectiva Mujer y Salud y Mujeres en Desarrollo desarrollan acciones en las zonas más pobres del país y con mujeres rurales. Paula Disla. COPRESIDA www.unaidscaribbean.org | KS III | 57 dOminiCAn rEPuBliC ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% ART 85% 38% 47% PMTCT [36 - 65%] [32% - >95%] HIV/TB 115% 42% HIV Test in GP M 19% HIV Test in MSM/SW FSW 64% MSM 33% Prevention in MSM/SW NA FSW 44% Support to OVC 4%* 37% HIV Education TOTA L 1% 6% School for OVC NA 0.71 Knowledge YP M 34% Knowledge MSM/SW NA Sex<15 years in YP M 24% F 15% NA Xsex Partners in GP M 30% F 4% NA Condom Use in GP M 42% F 33% NA Condom Use in SW TOTAL 96% FSW 81% 79% 66% DHS TOTAL 0.30% NA Condom Use in MSM 24% 100% 79% (data F 21% F 41% NA FSW 67% NA FSW 73% MSM 73% collected before 2005) HIV in YP M 0.2% HIV in MSM/SW F 0.4% MSM 11% 12 months on ART MSM 11% 90% FSW 4.8% 83% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 58 | KS III | www.unaidscaribbean.org grEnAdA Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy Since the beginning of the epidemic in 1984, a cumulative total of 403 cases were confirmed with 56 cases of HIV in 2009 alone. In recent years there has been an increasing trend in HIV prevalence among pregnant women (0.4% in 2004 to 0.7% in 2007). Grenada reported on only 30% of the 23 relevant UNGASS indicators. New behavioural and knowledge data are lacking. It is reported that for the past two years, USD 674,000 was spent on AIDS with 100% coming from national sources. In total, 54 persons were on ART and six HIV positive pregnant women received ART to reduce mother-to-child transmission of HIV. But the survival rate at 12 months for new persons on ART is only 60%. There is no updated National Strategic Plan and the national policy environment for protection of PLHIV and other vulnerable groups is not enabling. •Develop a new national Strategic Plan with a budget and a monitoring and evaluation framework, as a matter of urgency, to guide the national response to HIV. •improve the legal and policy environment by removing punitive laws as an urgent and necessary means to achieving universal access to HIV prevention, care, treatment and support. •Focus prevention interventions on priority groups such as female sex workers, women, girls and men who have sex with men. •improvethequalityofantiretroviral treatment to increase life expectancy of PLHIV. www.unaidscaribbean.org | KS III | 59 box 3 A conceRn FoR gRenAdIAn heAlth AuthoRItIes National health authorities have identified young women as a priority group for attention, based on information cited below from the behavioural survey which CAREC/PAHO/WHO conducted in Grenada in 2005. the level oF Age mIxIng At FIRst sexuAl InteRcouRse Is hIgh. One of the challenges in responding to HIV in the Caribbean is the fact that older men are having sex with younger women and Grenada is no exception 36. Thirty-three percent of females 15-24 years old had a sex partner at first sexual encounter that was five to nine years older and an additional 5% had a sex partner who was 10 years older at first encounter. This was the highest rate in the six Eastern Caribbean States surveyed. Figure 22: Age mIxIng At FIRst sexuAl InteRcouRse. young FemAles. eAsteRn cARIbbeAn stAtes. 2005 Source: Keeping Score II. CAREC-SPSTI: BSS Report. 2006 37 hAvIng multIple sex pARtneRs Is A common pRActIce. Among 15-24 year-old females 30% had between two and six multiple non-commercial sex partners and an additional 3% had multiple commercial sex partners. level oF condom use Is loW. Among 15-24 year-old females who had multiple noncommercial sex partners, 78% did not consistently use a condom during sexual intercourse. Among the young women with commercial sex partners, 44% did not use a condom at their last sexual encounter and 94% of young females did not consistently use a condom with commercial sex partners. The immediate consequence of the low percentage of condom use is the high incidence of self-reported genital ulcer disease among young females, i.e. 3%, the highest among young women in the six Eastern Caribbean States. ___________________________________________________________________________________ Overall, this situation should be a concern for all national health authorities in the six Eastern Caribbean States where age mixing at first sexual intercourse among young people is high and varied from 22% (the lowest) in Dominica to 38% (the highest) in Grenada. Targeted interventions should be put in place to improve this situation. 36 37 Keeping Score II. A consolidated Regional Analysis of Reports submitted to the United Nations General Assembly Special Session on HIV/AIDS.2008. ISBN 978 92 9 173726 0 ANT: Antigua and Barbuda, DOM: Dominica, GRE: Grenada, SKN: St. Kitts and Nevis, SLC: St. Lucia, SVG: St. Vincent and the Grenadines 60 | KS III | www.unaidscaribbean.org grEnAdA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 91% 91% ART NA 47% PLHIV* 91%* PMTCT 50%* NA NA 0 cases 100% NA NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education 0% 94% School for OVC NA NA NA NA NA NA NA NA NA NA NA NA Condom Use in SW NA NA Condom Use in MSM NA NA HIV in YP NA NA HIV in MSM/SW NA NA HIV/TB HIV Test in GP TOTAL 10% M 6% Knowledge YP F 40% Knowledge MSM/SW Sex<15 years in YP TOTAL 25% M 32% Xsex Partners in GP Condom Use in GP 12 months on ART 100% F 13% TOTAL 41% M 43% 100% F 20% TOTAL 21% M 30% F 13% M 68% F 52% TOTAL 88% TOTA 60% M 83% M 56% F 100% F 67% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 61 guyAnA FIndIngs oF ungAss IndIcAtoRs: A summARy In 2009, the adult HIV prevalence was 1.2% in Guyana. The country reported on 18 out of the 23 relevant UNGASS indicators, a rate of 78% completeness. Between 2001 and 2009, there was a 24% reduction in the number of PLHIV (from 7,800 in 2001 to 5,900 in 2009) and a 14% reduction in adult HIV prevalence (from 1.4% to 1.2%). New HIV infections and AIDS related deaths were kept below 500 during that period. There were for every 100 males, 100 females living with HIV. There was no NASA report and in the area of policy, there are laws against same sex relationships and sex work. The collaboration with civil society organisations needs strengthening and protective laws are needed for PLHIV and sexual minorities. Guyana achieved successes in sustained 100% blood screening and in the provision of ART where more than 95% of PLHIV who needed treatment were on it. For PMTCT, the coverage rate was between 88% and more than 95%. In the area of TB/HIV co-infection, 94% received treatment for both. In the general population, 22% of males and 27% of females received an HIV test and know their result while this was 88% among FSW and 87% among MSM in 2009. Information on social support for orphans and vulnerable children is missing and 62% of schools provided life-skills HIV education to children. Only 46% of young people have comprehensive knowledge about HIV transmission, compared with 35% for FSW and 47% for MSM. Among young people, 19% of males and 10% of females have had sex before the age of 15; this represents a slight increase compared to 2006-2007 (males: 13% and females: 9%). The percentage of adults having multiple sex partners remains the same; 10% for males and 1% for females. And the level of condom use among adults was 65% for males and 48% for females. The level of condom use among female sex workers has declined from 81% in 2007 to 61% in 2009 but slightly increased among MSM from 81% in 2007 to 84% in 2009. HIV prevalence among young females remained the same 1% in 2007 and 1.11% in 2009. The proportion of PLHIV on ART 12 months after initiation was 72%, which is below the WHO standards and needs improvement. 62 | KS III | www.unaidscaribbean.org Key Issues RequIRIng Focus •Sustain gains made in the area of blood safety, antiretroviral treatment and PMTCT. •improvethequalityofcareofPlhiv as a matter of urgency. •Focus national attention on issues facing men who have sex with men, female sex workers, and also young people and the mining population. •Address issues relating to women and girls, and gender in general. •Remove punitive laws against same sex relationships and sex work. shanti singh-Anthony MANAGER, NATIONAL AIDS PROGRAMME SECRETARIAT, GUYANA WhAt Is the AIds sItuAtIon In youR countRy? In 1987 the first HIV case was diagnosed. Guyana’s response at that time was a medical one. This however quickly grew into a multi-sectoral response to HIV led by the Presidential Commission on HIV and AIDS. The country reported higher adult prevalence in the early 2000’s, but there has been a reversal of that trend, with antenatal prevalence dropping from 5.6% in 2000 to 1.55% in 2006. A similar picture is found with PMTCT where HIV prevalence of 3.1% in 2003 dropped to 1.1% in 2009. Prevalence is also down among FSW from 45% to, 26% to 16.6% in 1997, 2004 and 2009 respectively; MSM from 21.1% to 19.4% in 2004 and 2009 respectively, and miners from 6.5% to 3.9% from 2000 to 2004. Guyana reported an adult prevalence of 1.2% at the end of 2009. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? Our prevention of mother-to-child transmission programme stands out as a significant achievement in the HIV response with rapid growth from the inception in the early 2000’s to 157 PMTCT sites across all ten administrative regions of Guyana at the end of 2009. There is an 89.8% HIV testing acceptance rate and 95.8% of HIV positive women are receiving a complete course of ARVs for the PMTCT. WhAt ARe the successes In RespondIng to AIds In youR countRy? Our ART programme that was initiated in 2002 was providing treatment at the end of 2009 to 83.5% of adults and children with advanced HIV infection; it expanded from one treatment site in 2002 to 16 across all 10 administrative regions. There is a National Public Health Reference Laboratory with state-of-the art diagnostic capabilities that provides CD4 count and viral load testing for all HIV patients. The supply chain management system has been modernised with a state-of-the art warehouse management system. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? Guyana will continue to work with the general population and with groups such as: men who have sex with men, female sex workers, youth (in and out of school), women, prisoners and the mobile population. www.unaidscaribbean.org | KS III | 63 guyAnA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2005 2006 2007 2008 2009 AIDS Spending NA NA National Policy NA Yes Blood Safety 100% 100% ART 37% 45% >95% PMTCT [29% - >95%] NA [88% - >95%] NA 94% HIV/TB 100% HIV Test in GP TOTAL 11% M 10% HIV Test in MSM/SW FSW 64% FSW 64% FSW 88% MSM 44% MSM 44% MSM 87% FSW 28% FSW 28% MSM 17% MSM 17% Prevention in MSM/SW F 11% 100% M 22% F 27% NA Support to OVC NA NA HIV Education NA 62% School for OVC 2005 - 0.95% NA NA Knowledge YP M 34% NA TOTAL 46% Knowledge MSM/SW MSM 67% MSW & FSW 63% FSW 35% FSW 63% MSM 67% MSM 47% F 44% Sex<15 years in YP M 13% F 9% NA M 19% F 10% Xsex Partners in GP M 9% F 1% NA M 10% F 1% Condom Use in GP M 53% F 56% NA M 65% F 48% Condom Use in SW FSW 89% FSW 89% FSW 61% Condom Use in MSM 81% 81% 84% HIV in YP HIV in MSM/SW F 1% FSW 26.6% F 1.11% NA MSM 21.25% 12 months on ART FSW 17% MSM 19% 75% NA 72% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 64 | KS III | www.unaidscaribbean.org hAiti FIndIngs oF ungAss IndIcAtoRs: A summARy Haiti reached only a 39% completeness rate on relevant UNGASS indicators during this 2008-2009 reporting period. There are 120,000 people living with HIV in Haiti with an adult HIV prevalence of 1.9%. There were for every 100 males, 140 females living with HIV. The 2010 NASA report shows that a total of USD 289 million was spent on AIDS in Haiti. This represents 58% of the total amount spent on AIDS in the entire Caribbean. The majority of these resources (99%) came from international and bilateral donors. This very heavy dependence on external resources remains a serious challenge for Haiti’s national response to HIV. In terms of distribution of funding between strategies during the past two years, prevention interventions received 41%, while 40% was spent on treatment. The greater involvement of PLHIV is still limited and very few policies are in place to protect the rights of PLHIV and sexual minorities. Blood safety is quality assured with 100% of donated blood screened for HIV. National ART coverage is estimated at 43% and PMTCT at 60%. Treatment of TB/HIV is low with only a 24% coverage rate. New HIV infections have declined by 12% and AIDS-related deaths by 41%. No new data are available regarding knowledge, beliefs, practices and attitudes of the general population or MARPs or the coverage of MARPs by prevention programmes. It is reported that the ratio of orphans and non-orphans attending school is 0.8. An HIV prevalence survey among pregnant women has shown that 2.1% of pregnant women aged 15-24 are infected with HIV. And the survival rate after 12 months on ART has remained the same at 84%, which is below the WHO standards. In 2009, Haiti was among countries with a stable HIV incidence rate. However, this could dramatically change when one takes into account the consequences of the devastating earthquake of January 2010, which have impacted negatively on the national environment in social, economic and developmental terms. The earthquake has killed 250,000 people and has sent 1.5 million people into shelters and camps and displaced another quarter million people. The economic loss was estimated at USD 8 billion for the country. Also, the earthquake which occurred in areas where 68,000 PLHIV were residing has had a serious impact on both the health infrastructure and the national infrastructure in general. Preliminary data collected from the populations living in camps and shelters have shown that there is widespread stigma, discrimination and violence against sexual minorities and sex workers, and the incidence of gender-based violence and unwanted pregnancies has seriously increased. During the next UNGASS reporting period (2010-2011), the real impact of this disaster on the national response to HIV could be accurately measured. Key Issues RequIRIng Focus •Scale-up and improve the quality of treatment and PMTCT programmes and issues surrounding HIV/TB coinfections. •Mobilise more national resources to ensure sustainability of the HIV response. •engageinthecollectionandanalysis of new data to understand an evolving HIV epidemic especially after the earthquake. •Focus the national response on priority population groups i.e. young people, women, men who have sex with men, transgender and female sex workers. •Addresstheimpactoftheearthquake i.e. rebuilding health infrastructure and providing HIV programmes and services to displaced populations in camps and shelters. www.unaidscaribbean.org | KS III | 65 Joëlle Deas-van onacker COORDINATRICE DU PROGRAMME DE LUTTE CONTRE LE SIDA HAïTI quelle est lA sItuAtIon de l’ÉpIdÉmIe du sIdA en hAïtI? En Haïti, malgré les efforts déployés, l’épidémie est toujours a un stade généralisé de 2.2% de prévalence du VIH chez les adultes et 120,000 personnes vivant avec le VIH selon l’ONUSIDA. Nous avons pu infléchir la courbe et atteindre la stabilisation de l’épidémie. Dites-nous le plus granD succès De votre programme De lut te contre le sIdA? Notre plus important accomplissement est dans le domaine des soins et traitement, nous avons aujourd’hui 27,904 personnes vivant avec le VIH qui reçoivent la trithérapie. Et nous avons au minimum 2 centres par départements qui offrent les services de dispensation des Antirétroviraux. Quels sont les autres succès en Haïti? Nos succès, nous avons eu du succès, tant au niveau des soins et traitement que dans le domaine de la prévention. 1) Nous avons eu beaucoup de succès dans la prise en charge cible des jeune. Nous avons pu mettre sur pied des activités de prévention, nous avons ouvert plusieurs maisons de jeune aussi bien que des cliniques pour jeunes. 2) Nous avons pu mobiliser la communauté pour faire face a la féminisation du SIDA, la Coalition Haïtienne sur les Femmes et le SIDA est implanté maintenant dans les 10 départements du pays. 3) Nous avons fait beaucoup d’effort pour que les services puissent atteindre les populations migrantes ainsi que les populations déplacées. 4) Un autre succès est que suite au tremblement de terre, les services de prise en charge et de soin n’ont pas été discontinués après le tremblement de terre du 12 janvier 2010. quels sont les FutuRes populAtIons cIbles pouR votRe pRogRAmme? Nous continuerons à cibler les jeunes et les femmes. 66 | KS III | www.unaidscaribbean.org hAiti ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% ART 26% 41% 43% PMTCT 20% 22% 60% HIV/TB 5% 24% HIV Test in GP M 5% F 8% NA HIV Test in MSM/SW FSW 71% MSM 48% NA Prevention in MSM/SW NA NA Support to OVC 5% NA HIV Education 13% NA 86% 0.86 NA School for OVC 87% Knowledge YP M 40% F 32% NA Knowledge MSM/SW MSM 36% FSW 6% NA Sex<15 years in YP M 43% F 15% NA Xsex Partners in GP M 23% F 1% NA Condom Use in GP M 34% F 21% NA 100% Condom Use in SW FSW 90% Condom Use in MSM 73% HIV in YP DHS TOTAL 1.0% M 0.5% HIV in MSM/SW FSW 5.23% 12 months on ART 84% 100% F 2.1% F 1.5% 84% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 67 jAmAiCA FIndIngs oF ungAss IndIcAtoRs: A summARy Key Issues RequIRIng Focus The adult HIV prevalence is 1.7% and there were 32,000 PLHIV in 2009 in Jamaica. There were for every 190 males, 100 females living with HIV. Among the 23 relevant indicators there was 70% completeness in reporting. No information was submitted regarding NASA. The policy report suggests limited involvement of civil society organisations and the existence of punitive laws on same sex relationships and solicitation. Blood safety is secured, ART coverage is 46% and the PMTCT coverage is between 46% and 95%. It is estimated that 20% of adult males and 35% of adult females have been tested and know their results. This is an increase from 12% and 19% respectively in 2007. It is reported that 73% of FSW and 53% of MSM are tested for HIV. In Jamaica, 44% of schools provide life-skills HIV education. Among young people, 38% of males and 43% of females have comprehensive knowledge of HIV prevention and 57% of males and 16% of females have initiated sex before age 15. This latter is a 19% increase among males when compared to 2007 when the percentage was at 48%. Among adult males 62% and 17% of adult females reported having had more than one sex partner in the past 12 months; this is an increase among both sexes when compared to 2007 (48% males and 11% females). Condom use for these adults was 65% among males and 52% for females. Among female sex workers, 97% reported use of a condom during last sexual intercourse with a client while among MSM this was 73% during their last anal intercourse with a male partner. The HIV prevalence among young females declined slightly from 1.3% in 2007 to 1.0% in 2009. Among female sex workers, the HIV prevalence was 5.5% in 2009. The proportion of PLHIV on ART after 12 months of initiation of therapy was 92%, an improvement compared to 88% in 2007. Jamaica is among the countries around the world which have reduced their HIV incidence by 25% in 2009. •Prioritise interventions based on epidemiological data on the following key population groups: men who have sex with men, female sex workers, young people (essentially males), populations living in depressed areas and crack cocaine users. •Scale-up treatment services and consolidate PMTCT programmes. •Address cross-cutting issues such as gender and the removal of punitive laws against same sex relationships and solicitation. •Address issues surrounding poverty and inequitable distribution of wealth. •Develop strategies to achieve sustainability of the national HIV response including mobilisation of internal resources and implementation of policies to support decentralised and integrated HIV services. 68 | KS III | www.unaidscaribbean.org Kevin harvey NATIONAL AIDS PROGRAMME MANAGER JAMAICA WhAt Is the AIds sItuAtIon In youR countRy? It is estimated that in 2009, 1.7% of the Jamaican adult population was HIV infected, with no significant change over the last decade. There are, however, features of concentrated pockets of higher prevalence among most-at-risk populations where the HIV prevalence for men who have sex with men is 32%; for female sex workers it is 5% and for crack cocaine users 3.3%. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? Testing programmes resulted in 95% coverage among pregnant women in 2009. The provision of ART reduced mother-to-child transmission of HIV to below 5% in 2009 from 25% in 2002. There was also a 19% decline in paediatric AIDS between 2008 and 2009 with 32 cases reported in 2008 compared to 26 cases in 2009. WhAt ARe the successes In RespondIng to AIds In youR countRy? An 18% decline in HIV/AIDS cases was reported annually between 2006 and 2009. Reported cases peaked in 2006 at 2121 compared to 1738 cases in 2009. In 2009, about 378 AIDS deaths were reported, accounting for a 43 % decline when compared to 665 persons who died in 2004 (first year of public access to antiretroviral treatment). WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The focus will be maintained on the most-at-risk populations including the following: heterosexual males with multiple partners, men who have sex with men, STI clinic attendees, sex workers and their clients, in and out-of-school youths between the ages of 10-19, prison inmates, crack-cocaine users and homeless persons, persons living with HIV, residents of high-risk/high-prevalence communities and tourism workers. www.unaidscaribbean.org | KS III | 69 jAmAiCA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2004 2005 2006 2007 2008 2009 AIDS Spending NA NA National Policy NA Yes Blood Safety 100% ART 20% 33% 100% 100% 43% 46% PMTCT [45 - >95%] 46% - >95% HIV/TB 72% NA HIV Test in GP M 12% HIV Test in MSM/SW FSW 43% F 19% M 20% F 35% FSW 73% MSM 53% Prevention in MSM/SW FSW 60% NA Support to OVC NA NA HIV Education TOTAL 24% 44% School for OVC NA NA NA TOTAL 40% Knowledge YP FSW 60% M 23% F 47% M 38% Knowledge MSM/SW FSW 26% Sex<15 years in YP NA TOTAL 36% M 57% Xsex Partners in GP M 48% NA F 11% Condom Use in GP M 67% F 43% F 16% M 62% F 17% NA F 54% M 65% F 52% Condom Use in SW FSW 84% FSW 97% Condom Use in MSM NA 73% HIV in YP F 1.30% F 1% HIV in MSM/SW MSM 32% Crack FSW 5% Cocaine users 5% 12 months on ART 88% 91% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 70 | KS III | www.unaidscaribbean.org St Kit tS And nEviS Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy Only eight out of the 23 relevant UNGASS indicators were reported on in 2010; this represents 35% completeness. Among reported cases of AIDS, the male-to-female sex ratio is 2:1 with a cumulative total of 310 cases of HIV. The NASA report shows that USD 2.6 million was spent on AIDS during 2008-2009 and 91% was from domestic sources. The majority of resources went to programme management (85%) and the remaining 15% to prevention (5%) and treatment (10%). Blood safety is secured but laws and policy issues regarding prohibition of same sex acts and sex work exist. HIV prevalence among females 15-24 years old is 0.55%. Only 45% of schools are providing life-skills HIV education. No new population based data exist on MARPs and the general population. One hundred percent of PLHIV were still on ART 12 months after initiation of therapy. •Focus national attention on the removal of punitive and discriminatory laws. •Reach out with quality services and programmes for key population groups such as men and especially men who have sex with men, female sex workers in the tourism sector and young people. •Mobilise national efforts towards collection, analysis and use of new data on knowledge, behaviours, practices and beliefs to guide interventions among men who have sex with men, female sex workers, young people and the general population. •Allocate more hiv resources for prevention, advocacy and research. www.unaidscaribbean.org | KS III | 71 garDenia Destang-ricHarDson NATIONAL AIDS PROGRAMME COORDINATOR ST. KITTS AND NEVIS WhAt Is the AIds sItuAtIon In youR countRy? Since the epidemic was first identified in 1984, a cumulative total of 310 cases were reported to the Ministry of Health. Of this number, there were 143 males, 112 females and 55 whose sex was not recorded. The majority of cases occur in the 20 – 49 age group, although all age groups are affected. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? A key achievement has been the increased number of persons who present themselves for voluntary counselling and testing at community outreach sessions. Prior to the advent of outreach testing, uptake was barely over 200. However, there has been a drastic increase with 1,577 persons accepting services in 2009. WhAt ARe the successes In RespondIng to AIds In youR countRy? Programme successes include the provision of first line and, to a limited extent, second line treatment for persons living with HIV. Additionally, the integration of HIV programming into primary health care has increased access and decreased stigma as persons are free to access health services without their HIV status being known to others. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The key target populations under consideration for the future are women in vulnerable situations such as in gender unequal relationships, and low socio-economic situations. Youths are also considered as they are seen to be influential to work with their peers. These are in addition to those already identified, such as men who have sex with men and sex workers. 72 | KS III | www.unaidscaribbean.org St. Kit tS And nEviS ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety 100% 100% 100% ART NA 53 PLHIV* PMTCT >95%* 100% 37 PLHIV 3PW HIV/TB 100% NA HIV Test in GP TOTAL 10%* NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education NA 45% School for OVC NA NA Knowledge YP TOTAL 52% NA Knowledge MSM/SW NA NA NA NA NA NA NA NA Condom Use in SW NA NA Condom Use in MSM NA NA HIV in YP NA F 0.55% HIV in MSM/SW NA NA Sex<15 years in YP F&M 22% Xsex Partners in GP M 53% Condom Use in GP TOTAL 67% 12 months on ART F 19% 100% NA 100% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 73 St. luCiA FIndIngs oF ungAss IndIcAtoRs: A summARy Key Issues RequIRIng Focus Ten out of the 23 relevant UNGASS indicators were reported on, representing 43% completeness. A cumulative number of 760 HIV cases were reported since the inception of the epidemic. The 2009 HIV data show that the maleto-female sex ratio is 1.4:1. There was no NASA data, and in terms of policy, work has been done to improve the workplace environment, but laws exist which prohibit and discriminate against same sex relationships and sex work. Overall blood safety is secured and from 78 PLHIV on ART in 2007, there were 124 in 2009 (a 59% increase). All TB/HIV co-infections were treated and 100% of PLHIV were on ART 12 months after initiation of therapy. Eighty-three percent of orphans and vulnerable children received care and 100% of them attended school. Unfortunately there was a drop in the number of schools which provide life-skills HIV education from 93% in 2007 to 59% in 2009. PMTCT screening has helped identify eight HIV positive pregnant women who were put on ART to reduce mother-to-child transmission. Data on MARPs were not collected under UNAIDS standards, were not representative and therefore cannot be used. •Give priority attention to the collection, analysis and use of strategic information among the general population and vulnerable groups. This shortcoming needs urgent attention. •Focus the national response on men who have sex with men, male and female sex workers and crack cocaine users. •Focus attention on young people because data from 2005 surveys show they should be targeted by the national response to increase the age of first sexual intercourse. •Develop urgently a new National Strategic Plan and M&E framework to guide the national response. •Mobilise more national resources to respond to HIV and ensure sustainability. 74 | KS III | www.unaidscaribbean.org nahum jean baptiste NATIONAL AIDS PROGRAMME COORDINATOR ST. LUCIA WhAt Is the AIds sItuAtIon In youR countRy? The first case of AIDS was reported in 1985 and since then, to the end of June 2010, a cumulative total of 760 cases were reported; of these 312 have died. Among people living with HIV in 2009, for every 108 men there were 100 women. Regarding age distribution, 8% of PLHIV were under age 15, 12% were aged 15 to 24 and 80% of cases older than 25 years. Fifty percent of HIV cases have no clear reported route of transmission. Progress was accomplished in the area of treatment and prevention of mother-to-child transmission. A total number of 239 people living with HIV are registered into care, among them 95 are on ART with 12 on second line treatment. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? Reduction in deaths from AIDS-related illnesses in the past five years due to broader access to antiretroviral treatment. WhAt ARe the successes In RespondIng to AIds In youR countRy? Since 2006 there have been no recorded cases of MTCT among registered clients. There is an increase in the enrolment of HIV positive clients into care and treatment programmes because of scaling-up of HIV testing and clinic access in six sites, and there is a greater involvement of Civil Society Organisations. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? Specifically the focus will be on MARPs i.e. sex workers, men who have sex with men and crack cocaine users. www.unaidscaribbean.org | KS III | 75 St. luCiA ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending Yes NA National Policy Yes Yes Blood Safety 100% ART NA PMTCT 64% 100% 78 PLHIV* 100% 124 PLHIV 8 cases HIV/TB 50% 100% HIV Test in GP TOTAL 36%* NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support to OVC 69%* 83% HIV Education TOTAL 91% 59% School for OVC Orphans 1.7 Knowledge YP M 61% 1.38 F 57% NA Knowledge MSM/SW NA NA Sex<15 years in YP M 32% F 20% NA Xsex Partners in GP M 42% F 25% NA Condom Use in GP M 48% F 39% NA Condom Use in SW NA NA Condom Use in MSM 74% 63% HIV in YP F 0.51% NA HIV in MSM/SW Crack Cocaine Users NA TOTAL 7.50% M 6.80% 12 months on ART F 11.1% 98% 100% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 76 | KS III | www.unaidscaribbean.org St. vinCEnt And thE grEnAdinES FIndIngs oF ungAss IndIcAtoRs: A summARy During the last UNGASS reporting period, the male to female ratio was 1.2:1 but this has increased during this reporting period to 1.6:1, with more males having access to VCT as is the case with women through the PMTCT programmes. The country reported on 10 UNGASS indicators among the 23 relevant ones; this represents 43% completeness. The 2010 NASA information indicates that USD 4.2 million was spent on AIDS with only 10% coming from national resources. There was no breakdown of spending by strategy. Overall, there is a push to improve workplace policies and promote more inclusive testing policies. However, as in other small settings, laws exist that are discriminatory towards same sex relationships and sex work. Blood safety is secured and there were 162 PLHIV on ART, and 14 HIV-positive pregnant women received a full course of ART to reduce MTCT transmission of HIV. However, there was a decline in treatment of TB/HIV co-infection from 100% in 2007 to 27% in 2009. All schools are providing life-skills HIV education and all orphans are attending school. There is a high HIV prevalence of 2.5% among young people; this needs urgent attention. The quality of care has improved but further improvement is needed. In 2007, only 62% of PLHIV were still on ART after 12 months and now this has increased to 86%. There is a need for new data about knowledge, behaviours, practices and beliefs among the general population and vulnerable groups. Key Issues RequIRIng Focus •Focus national effort on men, especially men who have sex with men, sex workers, young people and women and girls. •Gather and use updated strategic information to guide the national response to HIV (epidemiological and behavioural). •improve quality of care of Plhiv, especially the treatment of TB/HIV co-infections. •Mobilise more national resources to respond to HIV and ensure sustainability. •Remove discriminatory laws against same sex relationships and sex work. www.unaidscaribbean.org | KS III | 77 del hAmIlton NATIONAL AIDS PROGRAMME COORDINATOR ST. VINCENT AND THE GRENADINES WhAt Is the AIds sItuAtIon In youR countRy? Twenty-four years after the first case of HIV was diagnosed in St. Vincent and the Grenadines, the HIV prevalence among women attending antennal clinics is over 1%. There has been a 37% decrease in reported HIV cases between 2004 and 2008 and a 40% decrease in AIDS-related deaths during the same period. The male to female ratio of HIV has, over the past 20 years, been decreasing from a high of 4.5:1 in 1987 to 1.4:1 in 2008. The majority of male HIV cases have occurred within the ages of 20-49 years while female cases have occurred within the ages of 20-39 years. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? Over the past five years, the following have been the most outstanding achievements: voluntary counselling and testing through HIV rapid testing; PMTCT whereas in 2009, 98% of all pregnant women were tested for HIV, within the past two years there have been no cases of children infected; and care and treatment where over 300 PLHIV are enrolled, with 177 on ART. WhAt ARe the successes In RespondIng to AIds In youR countRy? The national response is led by a National AIDS Council and its Secretariat, co-chaired by the Prime Minister and the Minister of Health and the Environment, resulting in the establishment of focal points in nine non-health line ministries with work plans and a number of CSOs actively contributing to the national response. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? Three population groups are to be the focus: youth, men who have sex with men and young adults in the low economic bracket. 78 | KS III | www.unaidscaribbean.org St. vinCEnt And thE grEnAdinES ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending NA Yes National Policy NA Yes Blood Safety ART PMTCT 100% 100% NA 104 PLHIV* 100% 168PLHIV 85% 14 Cases HIV/TB HIV Test in GP 100% 100% 15-24: 9% M 8% 27% F 12% NA 25-49: 11% HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support for OVC NA NA HIV Education TOTAL 87% 100% School for OVC NA 1.00 Knowledge YP M 59% F 40% Knowledge MSM/SW NA NA NA Sex<15 years in YP M 31% F 14% NA Xsex Partners in GP M 25% F 10% NA Condom Use in GP M 62% F 52% NA Condom Use in SW NA NA Condom Use in MSM NA NA F 1.36% F 2.5% NA NA HIV in YP HIV in MSM/SW 12 months on ART M 43% F 80% M 90% F 82% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 79 SurinAmE Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy Suriname is one of the four Caribbean countries which have reduced their HIV incidence by 25% in 2009. There were 3,700 people living with HIV with an adult HIV prevalence of 1.0%. There were for every 220 males, 100 females living with HIV. Out of the relevant 23 indicators for the country, 13 indicators have been reported on, resulting in 57% completeness. Key indicators related to the National AIDS Spending Assessment, young people, coverage of orphans and vulnerable children with support programmes or access to school and coverage of MARPs by prevention programmes are not reported on. In the area of policy, the involvement of civil society is limited. Blood safety is ensured. In the programmatic area, ART coverage rate is 53% and 83% for PMTCT but only 60% of TB/HIV co-infections are taken care of. The 2009 survey data show that 59% MSW and 64% FSW have been tested for HIV but only 33% of them have the correct knowledge about HIV. Also a high level of condom use was reported among sex workers i.e. 98.4% during vaginal sex, 87% during anal sex and 94% during oral sex. Data indicate that no schools in Suriname have life-skills HIV education on their curriculum. The HIV prevalence among young people has remained at 1% and the percentage of PLHIV on ART 12 months after initiation of therapy is 62%, which is below the WHO recommended 90% standard. 80 | KS III | www.unaidscaribbean.org •Scale-up antiretroviral treatment and PMTCT programmes. •Sustainthehighlevelofcondomuse among male and female sex workers. •increase knowledge about hiv transmission among MARPs. •increase life-skills hiv education among young people in school. •Focus attention on men who have sex with men to document their access to prevention programmes. •involve the mining industry in the national response, and the mining population should benefit from prevention programmes as well as comprehensive workplace policies and programmes. •improve rapidly the quality of care for PLHIV to increase their life expectancy. FIRoz Abdoel WAhId FOCAL POINT TECHNICAL UNIT, NATIONAL AIDS PROGRAMME SURINAME WhAt Is the AIds sItuAtIon In youR countRy? Suriname has a generalised epidemic with an estimated adult HIV prevalence of 1.1% (UNAIDS 2009). The average prevalence of HIV among pregnant women over the last five years is 1%, whereas the prevalence in the MARPs is significantly higher than the general adult population i.e. 6.7% among MSM in 2004, 7.2% among sex workers in brothels and 15.7% among street workers in 2009 (2010 UNGASS Report). Since 2007, there has been a steady decline in the number of newly registered HIV cases. According to the national surveillance reports, hospitalisation and mortality rates have been slightly decreasing since 2006. This is due to the increased access to antiretroviral treatment introduced in 2005. tell us WhAt Is the bIggest AchIevement oF youR AIds pRogRAmme? The biggest achievement is the successful scale-up of people on HAART; three-fold since 2005 resulting in reduced AIDS-related deaths. WhAt ARe the successes In RespondIng to AIds In youR countRy? We have strengthened coordination through the establishment of a national multisectoral HIV board in 2009, with its Technical Working Groups on Prevention, Treatment and Care and Monitoring and Evaluation working from a National Strategic Plan and an M&E plan. We have seen an increased governmental budget for the response to HIV with the establishment of the Center of Excellence on treatment and care in 2010 with access to early infant diagnosis; all treatment protocols were revised. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The focus will be on men who have sex with men, male and female sex workers, young people, women, and people living in the interior and in the gold-mining areas. www.unaidscaribbean.org | KS III | 81 SurinAmE ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2005 2006 2007 2008 2009 AIDS Spending NA NA National Policy NA Yes Blood Safety 100% 100% ART 35% 46% 53% PMTCT [18 - 57%] 82% - >95% HIV/TB NA 60% HIV Test in GP F 30% F 30% FSW 59% FSW 59% SW 64% MSW 75% MSW 75% MSM 59% Prevention in MSM/SW NA NA Support to OVC NA NA HIV Education NA 0% School for OVC NA NA HIV Test in MSM/SW Knowledge YP F 41% Knowledge MSM/SW Sex<15 years in YP MSW 75% TOTA L FSW 79% FSW 33% NA NA Condom Use in GP 100% NA F&M 8% Xsex Partners in GP Condom Use in SW 100% TOTAL 49% NA NA MSW 79% FSW 68% FSW 68% MSW 79% Condom Use in MSM 89% 89% HIV in YP F 1.10% HIV in MSM/SW MSW 36.2% TOTAL 98% 87% F 1% NA NA FSW 21.1% MSM 6.7% 12 months on ART 80% 53% NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN 82 | KS III | www.unaidscaribbean.org trinidAd And tOBAgO Key Issues RequIRIng Focus FIndIngs oF ungAss IndIcAtoRs: A summARy There were 15,000 PLHIV in Trinidad and Tobago and the adult HIV prevalence was 1.5% in 2009. There were for every 200 males, 100 females living with HIV. During this reporting period, Trinidad and Tobago reported on only eight out of 23 relevant indicators resulting in a 35% completeness rate. The NASA report indicates that USD 28.5 million was spent on AIDS with 42% on prevention, 40% on treatment and the remaining on management, advocacy and research. It is important to note that 95% of the expenditure on prevention went to interventions among the general population (1.5% HIV prevalence) and only 5% was spent on interventions among MARPs. This distribution of resources needs more careful thinking, as it has been established that one in every five MSM in the country is infected with HIV (20% HIV prevalence among MSM). The PMTCT coverage rate is 56% and for ART it is 44% using the new WHO standards (2839/6400). In 2009, it is reported that only 6% of people infected with TB and HIV were treated despite the fact that there was a 29.3% increase of new TB/HIV co-infections (95 cases) among the 324 cases of TB reported then. Based on epidemiological data reported by the Ministry of Health, the case fatality rate of TB/HIV is as high as 23.2% (22/95) and the number of cases rose from 48 in 2005 to 95 in 2009 - a 98% increase. During that period a cumulative total of 1,338 cases of TB were reported with 367 cases of TB/HIV co-infections representing on average a TB/HIV incidence rate of 27%. The proportion of PLHIV on ART 12 months after initiation of therapy was 77%, which is lower than the 90% recommended by UNAIDS/WHO. No current behavioural data exist for the general population, orphans and vulnerable children, young people and MARPs. In Trinidad and Tobago, UNAIDS/WHO estimates that there were 1,200 new HIV infections every year between 2001 and 2009. •Develop a new National Strategic Plan and a Monitoring and Evaluation framework. •Scale-up ARt, treatment of tb/ HIV co-infections and PMTCT programmes rapidly. •improvethequalityofcareofPlhiv to avoid premature AIDS-related deaths. •Focus national efforts on using evidence-based interventions among men who have sex with men, male and female sex workers, transgender persons, women and girls and young males. •Scale-uphivpreventionprogrammes to reduce the very high HIV incidence observed during the past ten years. •introduce and expand life-skills hiv education in schools throughout the entire twin-island nation. •Direct national hiv resources to population groups most affected to ensure high quality care and greater access to prevention and support programmes and protection of their human rights. •Remove punitive laws against same sex relationships and sex work to create an enabling environment to facilitate progress towards universal access to HIV prevention, care, treatment and support. www.unaidscaribbean.org | KS III | 83 honourable dr. glen Ramadharsingh MINISTER OF THE PEOPLE AND SOCIAL DEVELOPMENT TRINIDAD AND TOBAGO 38 WhAt Is the AIds sItuAtIon In youR countRy? From 1983 to 2009, there was a cumulative total of 21,639 confirmed cases of HIV, 6,306 cases of AIDS and 3,892 AIDS-related deaths. The decade 1992-2002 saw the most drastic increase in the number of HIV and AIDS cases with a reported five-fold increase in the number of HIV cases (from 2,246 cases in 1992 to 11,341 in 2002) and a reported four-fold increase in the number of AIDS cases (from 1,156 in 1992 to 4,711 in 2002). A look at the reported cases of HIV shows that the gender gap is narrowing. WhAt Is the bIggest AchIevement oF the nAtIonAl AIds pRogRAmme? There has been a 69% reduction in reported AIDS-related deaths between 2004 and 2009 (246 vs. 77) due to the provision of antiretroviral treatment. WhAt ARe the successes In RespondIng to AIds In youR countRy? A multisectoral response is established among state agencies; civil society, and persons living with HIV; expansion of same-day HIV testing and counselling sites; 95% HIV testing among pregnant women since 2007 resulting in a decline in HIV-infected infants; an increase in HIV testing and treatment sites; a review of the laws of Trinidad and Tobago and how they impact upon people living with HIV and MARPS has been undertaken; a National Workplace Policy on HIV/AIDS has been implemented and it prohibits HIV testing for purposes of employment. We work with CSOs including Faith Based Organisations in undertaking education and counselling interventions in community settings and providing care for PLHIV. Also a computer-based HIV and AIDS surveillance system is established at eight HIV treatment and surveillance sites to allow real-time reporting of HIV cases. WhIch Key populAtIon gRoups WIll you Keep the Focus on In the FutuRe? The focus of the National Strategic HIV and AIDS Plan 2011-2016 is on five priority areas: prevention; treatment, care and support; advocacy and human rights; strategic information; and policy and programme management. The Ministry of the People and Social Development’s HIV Workplace Policy is crafted to effectively provide a framework to address not only HIV issues in the workplace, but also the vulnerable groups in our society who are invariably the Ministry’s clients, namely the poor, the indigent, the marginalised, the disabled, the elderly and street children. It is expected that the Ministry’s HIV and AIDS Workplace Policy (crafted within the context of the National HIV Workplace Policy) will ensure that the legal framework for dealing with HIV and AIDS is adhered to and mechanisms are in place to protect staff from stigma and discrimination. As such, the Workplace Policy clearly signals the Ministry’s commitment to provide a sustainable platform for action to address and enhance the national HIV and AIDS response. 38 The Honourable Dr. Glen Ramadharsingh, Minister of the People and Social Development. Trinidad and Tobago. Presentation for the Regional Consultation for the Caribbean Universal Access to HIV Prevention, Treatment, Care and Support. HIV IN THE CARIBBEAN: SUCCESS, CHALLENGES & NEW DIRECTIONS. March 23 rd 2011, Hyatt Regency, Port-of-Spain. 84 | KS III | www.unaidscaribbean.org trinidAd And tOBAgO ungASS indiCAtOrS rEPOrt I n d I c Ato Rs 2006 2007 2008 2009 AIDS Spending Yes Yes National Policy Yes Yes Blood Safety 100% 100% 100% ART 53% 58% 3,172 PLHIV PMTCT [37 - 78%] 100% 2,639/6400=41% 55% HIV/TB NA HIV Test in GP NA HIV Test in MSM/SW NA NA Prevention in MSM/SW NA NA Support for OVC NA NA HIV Education NA NA School for OVC NA NA Knowledge YP 6% TOTAL 8%* TOTAL 56% Knowledge MSM/SW Sex<15 years in YP Xsex Partners in GP NA NA NA F&M 12% NA M 94% F 79% NA Condom Use in GP NA NA Condom Use in SW NA NA 47% NA Condom Use in MSM HIV in YP F 1.64% HIV in MSM/SW 20% 12 months on ART NA NA NA 72% 77% *DATA C O L L EC T I O N M E T H O D U S E D I S N OT U N A I D S S TA N DA R D NA-NotAvAilAble GP-GeNeRAlPoPulAtioN SW-SexWoRkeRS YP-YouNGPeoPle xSex-MultiPle ovC-oRPhANSANDvulNeRAbleChilDReN MSM-MeNWhohAveSexWithMeN PMtCt-PReveNtioNoFMotheR-to-ChilDtRANSMiSSioN www.unaidscaribbean.org | KS III | 85 86 | KS III | www.unaidscaribbean.org A HumAn RigHts Activist’s RepoRt Our biggest challenge is that the Caribbean has not moved beyond the colonial framework of stratification and class interests to the notion that all people are born with human rights, and that we are building truly democratic societies where people have equal citizenship. As a result, very little progress has been made in implementing the greater involvement of people with HIV and AIDS (GIPA); people living with HIV and communities most at risk are not at the center of our HIV response. COlIN RObINSON CAISO, Trinidad and Tobago csos responding to Hiv are not deeply rooted in local communities; and the ngos that are well-rooted have been slow to address Hiv as an issue. . Another huge challenge is that our interventions do not focus upstream of risk behaviour, at the core of what makes people vulnerable. We are also more prone to jargon than action when it comes to issues like stigma and discrimination and capacity-building. Our non-governmental organisation (NGO) infrastructure is weak. Funding and initiatives in the region to facilitate civil society responses by affected communities have mainly benefitted third party providers and have not built strong indigenous civil society organisations. CSOs responding to HIV are not deeply rooted in local communities; and the NGOs that are well-rooted have been slow to address HIV as an issue. Political leaders have shown extraordinary timidity in speaking out and standing up against discrimination related to HIV. In Trinidad and Tobago, leaders have tried to create distinctions between protecting people from stigma and discrimination based on having HIV, and stigma and discrimination related to being part of the social groups most vulnerable to HIV. We need to create more conversation about the humanity of people living with HIV and affected communities. To do so, people in these communities need to become more visible, and that requires creating a safe environment for them to do so. Finally, we have to convert resources into outcomes. We have had a lot of money invested in the region, but key barriers remain bureaucracy and under spending – so-called “absorptive capacity”. There is a need to foster more innovation, to get resources more quickly behind promising ideas and to be able to evaluate them. www.unaidscaribbean.org | KS III | 87 RepoRting witHout pRejudice And SenSationaliSm in tHe cARibbeAn mediA AllySON lEACOCk Executive Director Caribbean broadcast Media Partnership (CbMP) How can tHe media be more involved in tHe response to Hiv in tHe region? I think CbMP has a key role in guiding many technically experienced and sound organisations to avoid the trap of being incestuous. by this I mean having meetings and workshops only for people working in the field of HIV. Right now when I go on lIVE UP Roadshows, I visit our radio and TV stations with all their staff present but I always include the NAC, MOH, and PlHIV for the media to meet their local resource people so that a symbiotic relationship can be built. If more workshops were open to local media houses, beyond covering the Minister at an opening ceremony of speeches, but actually hearing the issues, I think it would be very helpful. This way, the media can be involved from the ground up; see the wider implications of why this work and their role as media is important and build local relationships which will help them see the human side of the HIV response while getting the allimportant story. How do we get tHe media to report witHout prejudice and sensationalism? This is an ongoing task because as you train one reporter they may be moved within the organisation or change jobs and then you have to start all over again. However, within the CbMP we have seen a marked growth and development amongst our membership. We have been approached by organisations that have been pleased that our members now call to verify certain facts or call for guidance on how to handle some delicate situations based on the sensitivity of the situation. The key is for the media not to feel that we are usurping their editorial authority. We cannot tell the media what to write. It is against the basic tenets of journalism but as we provide more open discussion on the facts and they begin to understand the implications of words and the treatment of people, the balance between a good story and respecting the rights of PlHIV is more easily attained. How could tHe media play a role in reducing stigma and discrimination and increasing respect of Human rigHts? As the media is more meaningfully engaged in our discussions and putting a human face to this epidemic, it will become more aware of blatant violations and report on them. As it is oriented to the legal implications of human rights in a way that is devoid of jargon but linked to everyday life, then it will be better able to challenge our policies and policymakers by highlighting the back story on key issues and asking the difficult questions. We have to always remind the media of its important role to be the voice for the voiceless. The challenge in the Caribbean has been the small size of our societies, and the tendency in some places for the media to be used as a political tool, in the unhealthy sense where our reporters may at times feel intimidated by the vitriol of a public official or political figure if the story does not present them in a positive light. but our media must develop a sense of fearlessness because if it has done its homework and upholds the principles of balanced reporting, then it has nothing to fear. 88 | KS III | www.unaidscaribbean.org It’s time to start broadcasting the whole picture of HIV in barbados. When we have turned on our televisions in the past several years, often the stories we’ve seen and heard about HIV were ones reporting on the success of our society working together in preventing and treating AIDS. barbados’ creation of an effective multi-sector HIV programme has been, to my mind, our most significant achievement so far. A lot of time and energy has been spent on a widespread campaign of sensitisation and engagement among our partners. This brought the various government areas and civil society together with established nongovernmental organisations (NGOs). We linked up with groups working in sexual and reproductive health (such as the barbados Family Planning Association). We linked up with groups working in the field of HIV (such as United Gays and lesbians against AIDS in barbados). We linked up with the business sector (AIDS Foundation), the Faith-based Community and with groups of People living with HIV (such as CARE barbados). barbados has succeeded as far as it has with this multi-sector engagement due to solid political leadership at the highest levels; this ensured sustainability of funding and advocacy from leaders across all sectors. And yet, our HIV infection rates continue to climb. To improve on our success against the ever-growing challenge of HIV, we must focus on preventing new infections. And if we are to confront the rising infection rate head on, we must focus on strategies to change collective behaviour towards HIV - to reduce the current stigma of being HIV positive, and to communicate that AIDS is a very real BRoadcaSting tHe wHole pictuRe of HiV in bARbAdos risk to people living in this region, no matter the community to which they belong. This is a huge challenge that we face. It will take a significant commitment to bring about a significant change in behaviour. It is possible. but to make it so, there must be a harmonisation of partners regionally and nationallythe UN has a critical role to play in this respect. NGOs must be strengthened and empowered with funding to provide the necessary sustainability. Also, we must engage the media and faith-based community in the area of stigma and discrimination. This is where the whole picture of HIV in barbados comes in. Many of the stories we see about HIV in the news are testaments to our success in fighting the disease thus far. And many more are sensationalist stories that shock and frighten the public: They are the kind of stories that only perpetuate the stigma and discrimination faced by those living with HIV, and often prevent them from seeking treatment, thus putting their communities at even greater risk. Our media must rise above this cycle of “nice” messages and sensational news. I believe we should instead commit our airwaves and newsprint to develop targeted messages based on research and evidence. We should be stimulating thought on the underlying issue and not merely eliciting knee jerk reactions. CAROl ElIzAbETH JACObS Chair, Caribbean broadcast Media Partnership against HIV/AIDS, and Former Chair, barbados National HIV/AIDS Commission and the Global Fund to fight AIDS, Tuberculosis and Malaria As the MDG deadlines set by the United Nations loom - they must be reached in the next five years - the natural and necessary progression of our media is to broaden its role in the national and regional AIDS response within that time. We know that the media is one of the most effective tools we have to educate the people of barbados and the region. And it is one of the most effective tools we have to allow people to think differently. let us come together to broadcast a new message about HIV— the full picture— both in the media and in our communities. www.unaidscaribbean.org | KS III | 89 tHe 3. I have lived in St. lucia, and visited St. Vincent and Saint Maarten and in my experience, Jamaica’s approach to sexuality is almost “Taliban-like” compared to those places. While violence against gays still exists in most parts of the world, the average Jamaican, even those who are educated and exposed to what happens in the rest of the world, feels compelled to register their disapproval at every opportunity. While gays are not necessarily embraced openly in the places I have named, violence is not the socially accepted response. 4. I would narrowly judge successful advocacy by the freedoms my peers and I feel at liberty to exercise. That being said, I do not feel that the situation has really advanced in a positive way for the regular folks who aren’t brave enough to risk their personal safety by openly challenging the status quo. We are no more confident today than we were 10 or even 15 years ago to reveal certain facts about ourselves. 5. The advocacy movement does not adequately address the issues of the people who do not feel brave enough to ‘come out’. While I don’t suggest that the movement is at fault for this, I do believe that there is still a gap there. After all, we can’t be helped if we don’t come forward enough to ask for help. 6. Nationally, the laws must change first. These issues will never be fully addressed in the absence of the right legal framework. Socially, straight Jamaicans need to be educated without the biases of religion and culture being given prominence in the discussion. On a community level, there are unfortunately the same social classes that exist in the wider society. Sexuality and its struggles, as real as they are, are apparently not as uniting as one might imagine. Until the very clear class barriers are addressed in the wider society, I fear they will remain even in the minority groups. 7. Again I would suggest trying to find ways of addressing class barriers. If the community is to move forward, the strength of its numbers would be a critical asset. Partnerships will either not be formed, or they will fail if the community does not see itself as a whole. 8. In Jamaica, I hold little hope of things changing legally in my lifetime. In most of the rest of the Caribbean, I think change might come within the next 10-15 years. 9. I don’t know much about HIV status in the Caribbean, but I know the HIV prevalence is pretty high in Jamaica. I believe that we will see control of the spread of HIV being directly linked to change in social attitudes toward tolerance of minorities. Critical education about prevention cannot be effectively disseminated in an atmosphere of intolerance. Voice of a middle clAss gay man in Kingston, JAmAicA 9 Key points summarising the challenges facing sexual minorities in Jamaica and future perspectives. 1. 2. Daily challenges include restricting seemingly ordinary conduct. Orientation and relationships, no matter how stable and supportive, must be kept secret. Sexual minorities are treated as less than second class citizens. If there is genuine support on a human rights level, I am not aware of it nor would I want to have to seek assistance of that nature. I believe doing so would be tantamount to committing social, if not literal suicide. 90 | KS III | www.unaidscaribbean.org wHat is it like being a gay man in your country? Interesting question! Honestly never thought about it. I see myself as a citizen first; one who contributes to the development of the country. It is my personal belief that my sexuality does not define my entire existence. I am not defined by it nor am I limited by it. I acknowledge it and affirm my sexuality but it’s just a component of my life, not the sum total of it. While I can come to this place of empowerment, I think of those who can not. I think of those gay men and women, who have deeply internalised feelings of fear, shame and scorn and believe that they are less because of their sexual orientation. G AY & Living with H I V I do recognise that in comparison to most of our Caribbean neighbours, we are more tolerant and accepting. However, homophobia is a challenge that we must confront. wHat support systems exist in your country for men wHo Have sex witH men? I would have to publicly commend Friends for life for their work in this area. This organisation, despite the odds and challenges, has become a second family to many gay men, including myself. I am truly grateful for their support in providing an environment that enabled me in very positive ways to understand my sense of self and learning how to cope in the midst of a homophobic culture. As well, the advent of Facebook and other social networking sites has created a safe and anonymous way for the “community” to interact and support each other. wHat is needed to Help msm in your country? Firstly, there needs to be a deeper understanding of the culture and complex identities that shape our existence. From a programming perspective, an MSM initiative is limiting, as it does not consider those who do not fall under this umbrella such as the identifiable gay man, the ‘down-low’ man, the bi-sexual, the transgender individual, etc. Programmes should then be created based on the understanding and dynamics of these sub-cultures. Programmes should not only be focused on HIV/AIDS prevention, but holistic in their approach – addressing the self-esteem of the individual whose life has been subjected to psychological abuse. It would call for a greater allocation of resources, not just financial but technical. it is my personal belief that my sexuality does not define my entire existence www.unaidscaribbean.org | KS III | 91 A gay leadeR SpeakS out fRom pARAmARibo kENNETH VAN EMDEN Director, Suriname Men United wHat is it like being a gay man in your country? being gay in Suriname is quite a normal thing. The level of acceptance is improving despite the fact that stigma and discrimination exist in every culture. Gay men still face a lot of problems when they realise that they feel attracted to the same sex and it is not an easy thing to disclose their sexual orientation to their parents. That is why a lot of men decide to keep it a secret and live a hidden life. Although stigma and discrimination exist, people tend to go about their daily lives. MSM just enjoy their lives but at the same time keep everything private. wHat are tHe support systems existing in your country for men wHo Have sex witH men? There is an organisation, Suriname Men United, which provides psycho-social care, distributes condoms and lubricants during outreach interventions, organises prevention activities, support group sessions and events, and also works on human rights issues. Another source of support is the Surinamese anti-discrimination law that forbids any kind of discrimination based on status. wHat is needed to Help msm in your country? What is needed is better policies from higher levels, better involvement of NGOs, more awareness that lGTb rights are human rights and financial support to implement interventions. 92 | KS III | www.unaidscaribbean.org bernie 42, wHat is it like being a gay man in your county? I am a trained assistant nurse, VCT provider, phlebotomist, and do outreach to young MSM. I am 29 years old and a native of St. lucia. being a gay man in my country is like staying in the closet, and keeping my lifestyle to me. wHat support systems exist in your country for gay men? Support systems exist in my country for men who have sex with men and they include: the CDARI which offers rehabilitation services, shelter and holistic care for HIV, MSM and MSM drug users. The “United and Strong” offers HIV education, with a focus on reducing stigma and discrimination. Clinical services are open to all, but MSM prefer going to their private doctors, because they are afraid of discrimination. There are Human Rights lawyers (who act as a body) that focus on justice for all. 42 life of A gay man in A smAll eAsteRn caRiBBean Setting wHat needs do gay men Have in your country? In my country gay men need help with human rights laws that would protect them, a special clinic where MSM could go without being stigmatised, a social atmosphere where gay men could go and fellowship with each other without being harassed or have any form of violence against them, more education, educational materials and support on HIV, men’s health and sexual diversity. in my country gay men need help with human rights laws that would protect them Pseudonym www.unaidscaribbean.org | KS III | 93 tHe Voice of a gay man living in guyAnA wHat is it like being a gay man in guyana? It is a fearful and frightening feeling to be gay in Guyana. This is because gays are still ostracised here even though it’s becoming more publicised that more men and women are coming out. In Guyana, as an MSM you are being teased, bullied and even beaten in some places. Many times MSM who are qualified with experience for a job do not get it; we don’t get invited to certain functions and we are also excluded from certain sections of society. As a MSM I have endured all of these things to the point where I feel hurt and sometimes wish I wasn’t gay. RyON RAWlINS wHat support systems exist in guyana for men wHo Have sex witH men? In Guyana there are two NGOs (SASOD & Guybo) working comprehensively to address all the needs of MSM and one specific NGO (Artistes in Direct Support) which provides primarily HIV/AIDS support for MSM. The above-mentioned NGOs provide a forum for MSM to meet and interact freely, counselling and testing, advice and support, capacity building and help with human rights to address discrimination issues; however these are confined and have certain limitations. Recently they have worked with the government to provide more support to train their health care workers on MSM issues. wHat is needed to Help msm in guyana? Stronger support groups that can cater for the suffering MSM are needed. It would be a blessed day when unemployed MSM can get a job through their support groups. Provide a temporary home for those who are having housing issues or even a drop-in centre where an MSM can have a hot meal and a warm bed and above all educating MSM on how to operate in society so that they can be respected. Also, there are many MSM that have dropped out of school, hence there should be programmes in place to assist MSM who would like to further their education. Government should provide equal opportunity policies for everyone, ensure the perpetrators of MSM violence are brought to justice and remove the buggery law which would help to reduce HIV transmission. 94 | KS III | www.unaidscaribbean.org la Vie d’un gay en Haiti Qu’est-ce Que représente d’être gay en Haïti? En Haïti, ce n’est pas facile d’être gay, car la société voit les gays comme des hommes ayant des rapports sexuels uniquement pour de l’argent ou que ceux sont des personnes qui ont été victimes de malfaisance. Chez nous, la religion joue un grand rôle dans notre société, et elle considère que l’homosexualité n’existe pas ou bien c’est l’œuvre du démon ou du diable. les parents qui ont un fils gay doivent le cacher dans leur église, de peur d’en être chasses. Alors qu’être gay, c’est exprimer ce que l’on ressent à l’intérieur, une attirance que l’on partage avec un être aimé. On nait homosexuel, on ne le devient pas. existe t-il de mécanismes de support pour les gay en Haïti? En ma connaissance, il y a seulement SEROVIE qui offre un bon système de support aux HARSH. A SEROVIE, on nous apprend à évoluer, on nous encadre pour nous permettre de mieux nous accepter, même lorsque la société nous repousse. En matière de VIH, ils font l’éducation, la distribution de condoms et autres types d’activité. Ils nous accompagnent aussi pour que nous trouvions du travail. Quels sont les besoins pour la population gay en Haïti? les cliniques spécialisées ou sensibles aux besoins des HARSH seront nécessaires pour réduire la discrimination dont face la communauté gay dans les hôpitaux ou autres cliniques. En matière de prévention, nous aimerions avoir accès aux lubrifiants en plus des préservatifs. Dans le temps cela ce faisait, mais c’était un projet de l’UNFPA mais est arrêté. Nous aimerions avoir accès aussi au support psychologique, pas seulement pour nous permettre de mieux vivre notre orientation sexuelle. les HARSH ont besoin d’un espace ou ils peuvent venir pour se détendre et être eux-mêmes. M. PAléMON NICkENSON, 25 ans chez nous, la religion joue un grand rôle dans notre société, et elle considère que l’homosexualité n’existe pas ou bien c’est l’œuvre du démon ou du diable www.unaidscaribbean.org | KS III | 95 liVing witH HiV in tHe cARibbeAn The Caribbean Regional Network of People living with HIV was established on 28 September 1996, and since then I have been at the helm of the organisation as the Executive Director. The organisation has between 1,200 and 1,500 registered members. but what is startling, is the bleeding of its membership due to deaths linked to adherence issues, signifying the continued need for attention to the pervading psychosocial factors that lead to this situation. I know of many CRN+ members who, despite being keenly involved in the AIDS response and having access to medication, had struggled with adherence, and this led to their demise. yOlANDA SIMON Executive Director Caribbean Regional Network of People living with HIV (CRN+) i lament though, that in the current scenario this may take another decade but cRn+, unlike many who have disappeared with the funding, will remain and continue to do its part. . 96 | KS III | www.unaidscaribbean.org Actually, CRN+, like other entities, has been affected by the financial crisis and by the premature end of its Global Fund grant in January of 2009. Other funding streams such as the World bank and UNAIDS grants ended in March 2010. This has impacted on staffing (which has been reduced from 16 to four persons) and implementation of its programmes. However, I am resolute that our focus remains on implementation and representation of our stakeholders, which has been the CRN+ flagship over the years. I think that by dint of ‘luck’ the PAHO/WHO Country Office is currently sharing office with CRN+, which has assisted with rental subsidisation and therefore the ongoing operation of the organisation. Global Fund Round 9 funding in the amount of US$1 million for the next five-year period is expected, contingent on CRN+ passing an assessment and meeting other conditionalities. CRN+ has also been the recipient of private sector funding from Johnson & Johnson Company limited in 2009 and the company has indicated an interest in continuing, given its successful partnership. In the future, CRN+ will be operationalising global products such as the GIPA, Positive Prevention and the Stigma and Discrimination Index. I stress that a key area for CRN+ would be for research on persons living with HIV as part of the vulnerable groups which need to self identify if we are to make any headway on reducing new HIV infections and positively impacting the lives of persons living with and affected by HIV. I lament though, that in the current scenario this may take another decade but CRN+, unlike many who have disappeared with the funding, will remain and continue to do its part. testimonio Fui adoptada, mi Papá me entregó a una señora, mi madre murió. A mi madre adoptiva le llamaba mamá, pero no le gustaba. Decía que delante de la gente no la llamara así porque ella no era madre de una negrita tan fea. yo era responsable de hacer todas las labores de la casa, y de estar ahí para lo que ella y mis hermanos necesitaran…nunca me compró un vestido nuevo. Mi mamá me golpeaba mucho. Cuando se enojaba conmigo amenazaba con matarme. En varias ocasiones, me tuvieron que llevar al médico por los golpes. Recuerdo cuando tenía 6 años, que uno de mis hermanos me manoseaba. Con 13 años, salí huyendo de la casa sin saber a donde ir. llevé mi ropa donde una amiga que no me recibió, pero como estaba decidida, fui a buscar a mi Papá. El me dijo que me quedara con él, pero tenia miedo de que me violara. le pedí $20 pesos y me fui. Duré 3 noches durmiendo en el parque. Nunca dejé de estudiar, a pesar de todo. lo que hice fue conseguir trabajo en una casa de familia y cambiar el horario de estudio para la noche. En esa época, un hombre ofreció ayudarme y prometió no abusar de mí. Era mentira. Cuando me acosté se abalanzó sobre mí, pero pude huir. Cuando tenía 14, un hombre que vivía cerca de la casa de mi papá, prometió ayudarme. Dijo que podíamos mudarnos juntos, y prometía que no me tocaría, y acepté. Al cabo de un tiempo, me declaró que estaba enamorado de mí. Por agradecimiento lo acepté como mi marido. Tuve mis dos primeros hijos pero a pesar de que era bueno, no estaba enamorada de él. Al final la relación terminó. luego me junté con otro hombre que lo buscó mi madre. le dijeron que era de buena posición y me dijo “si no te juntas con él, te desheredo”. yo acepté. Tuvimos 3 hijos, lo llegué a querer pero era mujeriego. Al cabo de un tiempo nos separamos pero vivíamos en la misma casa. Supe que él estaba teniendo problemas de salud. Con lo del SIDA, yo no tenía mucha preocupación, porque como un año antes cuando conseguí trabajo en un hotel me hicieron la prueba y salió negativa. Una noche, mi ex marido entró a mi habitación y me violó: me quitó la ropa, me lastimó… me penetró violentamente agarrándome la cara con fuerza… Cuando terminó, me dijo que creía que yo estaba enamorada de otro y se sentía mal porque yo estaba ganando más dinero que él y estaba estudiando. Producto de esa violación quedé embarazada. Me entere al cuarto mes al hacerme unos chequeos. Me dieron la noticia del embarazo y que tenía VIH… Mi ex marido murió. Hoy tengo una nueva pareja, nos cuidamos siempre, el es muy amoroso conmigo y yo con él. Este no lo eligió mi madre, ya ella no tiene la influencia que tenía en mi vida. ya yo la perdoné. mujer viviendo con viH 36 años. liVing witH HiV in tHe dominicAn Republic producto de esa violación quedé embarazada. me entere al cuarto mes al hacerme unos chequeos. me dieron la noticia del embarazo y que tenía viH… www.unaidscaribbean.org | KS III | 97 Sex woRk And in tHe cARibbeAn HiV wHat is tHe status of sex work and sex workers in tHe caribbean at large? As the leader of the Caribbean Sex Worker Coalition, I am in Grenada helping sex workers to form a national coalition to advocate for their rights and practise their profession under optimum conditions. Sex work is the oldest profession in the world. but there is no standard definition of sex work which makes it difficult to distinguish between sex work and transactional sex for example. In the Caribbean there are boys, girls and young adults entering the sex work market and mainly poverty is driving them into this. Married women are also involved in sex work to earn money to support their family. One key population group which is forgotten in the regional response to HIV is the HIVaffected children who are entering the sex work market because of the necessity to support their family when the bread winners are living with HIV or have died of an AIDS-related disease. Also, social networks which have previously existed in the Caribbean to keep communities together have become weak and that protection is no longer present, pushing people to choose sex work to survive. How is sex work organised? MIRIAM EDWARDS Chair of the Caribbean Sex Worker Coalition Guyana caribbean leadership should advocate for the decriminalisation of sex work in the region, the empowerment of sex workers, and the reduction of stigma and discrimination towards sex workers by health care and law enforcement professionals . 98 | KS III | www.unaidscaribbean.org The regional Coalition of Sex Workers is working with English, Dutch and Spanish speaking countries to build national coalitions of sex workers. Under the leadership of the Caribbean Vulnerable Communities Coalition, this effort is being financed by PANCAP, UNAIDS and UNFPA and already national sex worker coalitions exist in many Caribbean countries. These coalitions will work towards building sex workers’ skills in the area of protection against HIV and other Sexually Transmitted Infections, and negotiation with clients, law enforcement officers, gatekeepers and health care workers. This effort to organise sex workers will also include issues regarding mobility among sex workers and exchanges with latin America. wHat are tHe cHallenges facing sex workers? These are multiple and include stigma and discrimination in the health care systems and from law enforcement personnel (Police and Customs) accompanied by violence and abuse including sexual violence. The criminalisation of sex work is an important challenge because it leaves sex workers without any legal protection. One other area is the lack of meaningful involvement of sex workers in the development and implementation of programmes targeting them. messages for tHe caribbean leadersHip: Caribbean leadership should advocate for the decriminalisation of sex work in the region, the empowerment of sex workers, and the reduction of stigma and discrimination towards sex workers by health care and law enforcement professionals. Special attention should be paid to the provision of care and support to AIDS-affected children and economic opportunities should be made available to sex workers to get them off the streets. A male Sex woRkeR in A smAll cARibbeAn setting smokey 43, wHicH country are you from? I am a male aged 24 mulato (as they say in Martinique). I was born in Saint lucia and lived in Martinique for 10 years. I speak French, English and Creole. I left Martinique in 2008 to come back home after some bad business with St. lucian criminals. wHere do you work? My clients are mostly men from Martinique who come to see me in Saint lucia. They either come to where I live (i.e. a squat in the countryside with no toilet or water) or if they have money, we go to a guest house or hotel. They buy me stuff and take care of me and sometimes give me cash. I also 43 work as a tour guide and sometimes hook up with the older tourist women. I am available to women but they are not always interested. I only top men no bottoming and no affection - even with women its rough and hard sex. I have a local girl that I sex regularly when I have no visitors. wHat are tHe issues confronting sex workers every day? I cannot be honest about my sex life with anyone. I used to drink too much but now I only smoke cannabis. I have not had an HIV test since I left Martinique in 2008. There, they ask no questions, just test and go. I don’t want to talk about my sex partners. i am available to women but they are not always interested Pseudonym www.unaidscaribbean.org | KS III | 99 HiV And tHe dRug uSe Situation in tHe cARibbeAn MARCUS DAy Director Caribbean Drug and Alcohol Research Institute Recognise that legislatively induced harms of drug criminalisation cause more harm than the substances themselves. . 100 | KS III | www.unaidscaribbean.org wHat is tHe status of drug use in tHe caribbean? As in most places of the world, the use of illicit drugs is treated as a criminal justice issue and often leads to incarceration. The public health aspect is often neglected and even though the prime focus of the Single Convention on Narcotic Drugs, 1961 is protecting the public health, this has been interpreted to support prohibition over treatment. wHat types of drug use exist? The two main illicit substances used are cannabis and smokeable cocaine, usually referred to as “crack” cocaine. Alcohol is more widely used than both of these substances. The substance having the most impact on the HIV epidemic is crack cocaine with research showing the magnitude of HIV in crack smoking populations to be similar to that of injecting drug users. Sex work is a common form of income generation to support crack use, with poor and indigent females and males engaged in receptive sex for small amounts of money to afford the next rock. No links have been established between cannabis and HIV and only anecdotal links between alcohol and HIV. wHo are tHe people engaged in drug use? wHat are their demographic and socio-economic cHaracteristics? While it is difficult to estimate the number of users of various substances, certain indicators may be used to gauge community access. Crack is available for sale in most places in the Caribbean from urban areas to tiny hamlets. Cannabis, while much less problematic, is even more widely available and of course the ubiquitous rum shop found on every corner. The most visible crack smokers are those who have spiraled down to the point that they have lost all their material possessions and family links and live on the street in rags. To demonstrate the widespread availability of illicit substances all you need to do is ask a class of 14 year old students if they know where to buy cannabis (98%) or crack cocaine (65-70%). The cost of crack has not risen in the past 20 years, meaning that adjusted for inflation, it is cheaper now than ever despite years and millions of dollars spent on law enforcement and interdiction. There is no doubt that poverty compounds HIV vulnerability. Poor street-involved crack users fare much worse than middle class crack users with homes and safe spaces and regular incomes. wHat are tHe key cHallenges facing drug users in tHe caribbean? a) being named a population at higher risk for HIV: the crack using population, despite high levels of HIV, has not until recently, been seen as an HIV risk population. Despite the fact that UNGASS indicators refer to injecting drug use, the Caribbean has only now come to recognise crack cocaine as a contributor in the HIV epidemic, and research and actions are planned as part of the 9th Round Global Fund grant. b) Silo-ing Populations Ignore drug use: Recognition that crack use compounds HIV in populations already engaged in high risk behaviours. Sex workers and MSM who smoke crack compound the risk of acquiring HIV. In addition to the heightened risk, most interventions that target sex workers and MSM ignore their substance use and thus reduce their effectiveness in delivering a relevant prevention message. We must start to look at crack use as a cross-cutting issue that affects all populations and develop appropriate harm reduction messages for all populations. We need Caribbean-appropriate harm reduction strategies that go beyond opiate substitution therapy. How do we address tHese cHallenges in terms of policy cHange, legal approacHes and tHe social environment? 1. Develop and embrace a philosophy of harm reduction that accepts where people are at and what they do and work to mitigate the harm medical, social and economic. 2. Accept that drug use is a public health issue and transit from the existing punitive, criminal justice approach. 3. Recognise that legislatively induced harms of drug criminalisation cause more harm than the substances themselves. laws designed to protect society actually compound the problems associated with drug use. Further, these anti-drug laws impact more heavily on the poor and marginalised, and really serve as a mechanism of social control. 4. Drug prevention messages based on facts not fiction: We need to change the way we teach about drugs. Fear-based messages inflate the harms of cannabis while they dilute the real harms associated with crack cocaine. Time and time again, evidence has shown that fear-based prevention messages in whatever sphere have proven ineffective. We need an evidencedbased drug policy free of morality and ideology. www.unaidscaribbean.org | KS III | 101 living witH And HiV being on dRugS wHat are tHe tHree main issues facing drug users wHo are Hiv positive? i don’t have enough food to eat and since hurricane tomas there has not been even clean water to drink. . 102 | KS III | www.unaidscaribbean.org HIV is the least of my problems. I have no place to sleep, I live under the steps in the CDC (public housing) - I used to live in CDARI’s shelter but left there when I went back to smoking. They did not throw me out; I just left after stealing some stuff and went back on the street. life on the street sucks but at least no one tells me what to do. I would like to stop smoking crack and just smoke cannabis but it is hard because most weed dealers also sell crack and I get sucked into it again and again. I stopped taking my meds when I left the shelter because I lost them and when I went to the clinic for more I had to wait a long time and the nurse gave me a hard time for leaving the shelter. She knew I left and that I took things; I don’t think they should have told her that. Today, I don’t have enough food to eat and since hurricane Tomas there has not been even clean water to drink. young And liVing in A woRld witH aidS do you know of a successful young people’s programme in tHe caribbean? please, describe it. The CARICOM youth Ambassadors Programme (CyAP), an initiative of CARICOM Heads of Governments, is aimed specifically at promoting youth participation in regional integration and the social and economic development processes. The CyAP also aims to equip young people with the knowledge, skills, attitudes and resources to: • Advocateonbehalfoftheirpeersin national and regional policy forums • Educate their peers on CARICOM issues • Develop and implement integrated youth projects and programmes in collaboration with national and regional youth organisations and Non-Governmental Organisations. wHat are tHe two ma jor cHallenges facing young people in tHe response to aids in tHe caribbean? a. Many parents and guardians throughout the Caribbean are still reluctant to talk with their children about “SEX” and help them to dispel the myths that surround some sexually transmitted infections/ diseases. b. young people have a wealth of creative and innovative ideas to help in getting the information out to their peers. Oftentimes they are unable to get adequate funding to properly execute these ideas, which leaves them to either implement a “watered down” version or to scrap the idea altogether. DWAyNE GUTzMER CARICOM youth Ambassador, kingston, Jamaica How can young people be more involved in tHe response to aids in tHe caribbean? Firstly, there needs to be some organised training for young people where they are able to garner the knowledge necessary to be able to communicate effectively with their peers. Secondly, foster a more inclusive environment through which young people can be involved in the development and execution of HIV/AIDS messages, making them “Edutaining” and “youth Friendly.” in my country there needs to be some organised training for young people where they are able to garner the knowledge necessary to be able to communicate effectively with their peers. www.unaidscaribbean.org | KS III | 103 We have long known that the faith-based community is a key force in the response to HIV in the Caribbean. but as we continue to see HIV infection rates rise, and spread into more and younger groups and among the vulnerable groups in our region, we recognise that now is the time for us to step faitH And HiV ReSponSe in tHe cARibbeAn NIGEl TAylOR President barbados Evangelical Association we have long known that the faith-based community is a key force in the response to Hiv in the caribbean. . 104 | KS III | www.unaidscaribbean.org up with a bold, new, faith-based response. For several years, the Faith-based Organisations (FbOs) of barbados have worked together with the government and the people of the island to address HIV. The FbOs have been a proud and important part of our nation’s multi-sector approach to the prevention and support to persons with HIV. We have served as role models. We have spread awareness about AIDS, equipping friends and neighbours with information. We have provided support to PlHIV and even though we have achieved much progress, the HIV infection rates in barbados continue to climb and spread into the lives of more and more groups in our community, especially those of our young women. This stark reality calls for a new AIDS approach from our FbOs in the Caribbean. We must address two main obstacles to AIDS awareness and prevention if we are to mount an effective challenge to HIV before it extends its grasp even further. Clearly, these are obstacles which we can overcome together. First, we must address the traditional church culture’s fears about HIV. Though many of our members have received the message that HIV is affecting many kinds of people from many walks of life, there are still pockets in our congregations who resist the facts. We must find a way to help them rise above the myths and fears of AIDS, and truly reach all our constituents and leaders with accurate information about the wide-ranging nature of HIV in the Caribbean. Second, we must get rid of the stigma and discrimination of HIV held by far too many members of our community. For this, we need support from the government and organisations such as UNAIDS with whom we have collaborated successfully over the years. but we must also commit to eliminating the stigma of HIV as a community. It is an issue too often pushed underground. We must now address these challenges head on, with maturity and pragmatism, in order to be effective in our service to mankind. To achieve this, there must be more advocacy, education and sensitisation about the reality of HIV provided at the FbO and AIDS programme levels. There must be the availability of more literature and more interventions like those barbados has undertaken in the past. but we also require a community commitment—a pledge to approach HIV with maturity, respect and an open mind. I am speaking of one of the most basic of Church practices that we must now value more than ever: We must rise above discrimination and truly be our brothers’ keepers. We did not turn our back on leprosy. So why should we turn our back on HIV? I believe that when the FbOs, governments and people work together, we can overcome these obstacles. In the past we have proved to be a strong team: When the FbOs in barbados found that the infection rate of girls between 14 and 18 was rising, we reached out to other countries, and asked them to join in our educational efforts. by working as a team, our sensitisation programmes reached even further throughout our region. let us build anew on these successful partnerships to catch up with, and stop AIDS in our region. With a fresh approach to the FbOs’ role in HIV, together we can one day make the spread of HIV in the Caribbean a thing of the past. tHe voice of tHe pan caRiBBean paRtneRSHip (pAncAp) on Hiv/Aids CARl F. bROWNE Director, CARICOM/PANCAP wHat success stories is tHe caribbean most proud of? The Caribbean has made much progress in scaling-up HIV prevention, treatment, care and support services. In very large measure, this success has been catalysed by the strategic vision and collaborative action generated through the mechanism of the PanCaribbean Partnership against HIV and AIDS (PANCAP). The development and application of the Caribbean Regional Strategic Framework on HIV and AIDS and National Strategic Plans on HIV and AIDS lie at the heart of the success of the regional response. how strong is the multisectoral involvement in tHe aids response in tHe caribbean? The Caribbean regional response to AIDS has been built around partnerships and multi-sectoral collaboration. Indeed, PANCAP functions as an amalgam of governments, regional institutions, civil society organisations, private sector, bilateral and multilateral organisations and international development agencies working closely with shared values and combined resources. wHat is tHe biggest cHallenge facing tHe regional Hiv response? The biggest challenge facing the regional HIV response is in the area of prevention. Although the number of new HIV infections in the Caribbean has declined by 14% over the past decade, it is below the global average decline of 17%. A major thrust in the area of prevention is therefore required with special focus on the most-at-risk population sub-groups. How do you tHink tHe region could sustain its aids response wHen external funding dries up? Sustaining the AIDS response in the future will require three fundamental inter-related initiatives i.e. cost containment by delivering services in the most efficient and integrated manner, mobilising resources from non-traditional donors and with specific reference to the private sector, and increased government contribution. www.unaidscaribbean.org | KS III | 105 A RegionAl mAnAgeR’s feedbAcK JAMES ST. CATHERINE HIV/AIDS Project Unit Organisation of Eastern Caribbean States (OECS) do we Have tHe true picture of tHe Hiv epidemic? At best, our data is questionable and reflects our limited knowledge. As a result, we are only ‘programming’ for those who we know and this has created an unsettling feeling about our ability to bring this epidemic under control. wHat is your biggest impact? Organising country programmes to achieve results. before, people wanted to respond without establishing measurable results that will bring about the desired impact. Now guided by scientific evidence, people agree about common sets of priorities, increased technical assistance among the countries and better appropriation of responsibilities among the different interest groups to facilitate positive collaboration. We have also contributed to increasing access and putting people who are HIV positive on treatment in larger numbers. the single mother who is unemployed is a potential “soft target” . 106 | KS III | www.unaidscaribbean.org How empowered are plHiv? One aspect of this empowerment is that they have an assured package of services, which no one can deny them. because of the concentrated nature of our epidemic, our focus must be on MSM and SW and other MARPs to minimise the level of risk at their interface/links with the general population to prevent spread. How vulnerable are women in tHe caribbean? The single mother who is unemployed is a potential “soft target’; this particularly increased because of the financial situation, moreover if she is pregnant and has to depend on ‘benefits’ from relationships with male companions then “crapaud smoke she pipe”. This is so, because women who are pregnant and unemployed are seen as easy targets for sex, because she is ‘already in it’, she has to ‘earn her keep’ and there is no chance that she can get pregnant now. To deal with this ‘single mother’ situation, there is a lot of work to be done to improve their decision making power in terms of condom use and to reduce their level of unemployment. In the current and foreseeable challenging financial situation, we will pay a high price if these women are ignored and denied employment. wHat success stories is tHe caribbean most proud of? At best, the successes that we should celebrate most have to do with positive trends, i.e. a reduction in HIV incidence rates in some countries, an improved access to antiretroviral medication resulting in a better life for PlHIV, the consistent improvement in blood safety and the marked reduction in mother-to-child transmission of HIV in many Caribbean countries. The mobilisation of a regional response to HIV is of note and should be celebrated. PANCAP is a unique structure inclusive of representatives from governments, the private sector, UN, academia, CRN+, CCNAPC, and bilateral and multilateral donors. These organisations helped build important bridges between countries and created synergies that have augmented individual national responses. how strong is the multi-sectoral involvement in the aids response in the caribbean? Evidence of a vibrant multi-sectoral response is different in each Caribbean country. My direct observation is limited. However, it appears that those countries in which the HIV programmes are situated in the Office of the Prime Minister or President have been able to rally all relevant sectors to a greater degree than those in which the leadership resides in the Health Sector. This is not a statement about the relative effectiveness of the national responses in individual countries. wHat is tHe biggest cHallenge facing tHe regional Hiv response? The countries in this region are in danger of missing the main lessons from the HIV epidemic, which have a direct bearing on how the response should continue to be shaped. A number of factors combine to perpetuate the epidemic; these factors are personal, socio-cultural and ‘structural.’ Our children must be prepared for the world, including the sexual world. The responsibility to educate, orientate and train the younger generation must be shared by parents and teachers in every environment (including, but not confined to our schools and the mass media), bearing in mind that behaviour is more often “caught” than “taught.” The practical implication of accepting the multi-factor causes of the epidemic is that policies and programmes should ideally be determined and pursued by a multi-disciplinary group derived from many sectors. How do you tHink tHe region could sustain its aids response wHen external funding dries up? HIV prevention, care and support should be factored into national budgets and the budgets of regional organisations that share programmatic responsibility. Medium and long-term investments should be made in order to sustain relevant programmes. Efforts to train professionals in areas relevant to HIV will bear fruit as individuals make their long-term career choices. This implies that incentives (salaries and healthy working conditions) should be maintained in order to keep trained persons in the Caribbean. tHe voice of AcAdemiA bRENDON bAIN HIV/AIDS Project Unit Head of the Community Health Department, University of the West Indies, Mona, Jamaica the mobilisation of a regional response to Hiv is of note and should be celebrated. www.unaidscaribbean.org | KS III | 107 tHe Voice of BilateRal agencieS WIllIAM J. CONN PEPFAR Coordinator Caribbean Regional Framework COllEEN CONNEll Regional Director lAC for the Clinton Health Access Initiative wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? First, gaining private sector involvement and support in helping to strengthen health systems to provide better services, to collect critical data for making informed decisions that lead to effective targeted programmes. Second, addressing stigma and discrimination primarily facing the most-at-risk populations in the region, by addressing policy and legislation, education and behaviour change, and overcoming barriers to access services for all who seek those services. wHat is tHe status of national responses to Hiv? The Caribbean programmes have made tremendous progress but I do not see that we have achieved financial sustainment while maintaining the progress. wHat is tHe future content? A lot of work which has been done to date has been with the passion and goodwill of the people involved. but now we need to institutionalise in order to maintain the programme and the progress. wHat sHould be tHe future focus of national responses to Hiv? To develop robust management capacity so that programme managers and directors have programme, monitoring, evaluation and financial management skills. We need to make sure we maximise every dollar spent, because we have limited resources. Getting to universal access through the reinvestment of maximised dollars is paramount. 108 | KS III | www.unaidscaribbean.org Role of cARibbeAn business in tHe Hiv Response SUzANNE A. FRENCH Executive Director Guyana business Coalition on HIV/AIDS (GbCHA) the private sector remains committed to the fight against Hiv . wHat Have been tHe biggest cHallenges for tHe private sector in responding to Hiv? The private sector remains committed to the fight against HIV. However, the lack of enhanced coordination at the national level hinders the level of participation of the private sector. Another challenge to a more vigorous response is the strategic involvement of Executive Officers to help realise policies against stigma and discrimination. How can we increase tHe private sector’s role in Hiv? The private sector’s role can be increased if the current work done by this sector is marketed more and the other competencies provided such as products, services and human resources are recognised as key contributions in the fight against HIV. Enhanced coordination at the national level would maximise the efforts of this sector and facilitate the efficient use of the resources supplied by the private sector, showing the businesses value for their investment. www.unaidscaribbean.org | KS III | 109 tHe Voice of tHe kWAME bOAFO Director and Representative of the UNESCO kingston Cluster Office for the Caribbean wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? The first major challenge is the persistent one of cultural traditions and gender norms that are often barriers to prevention interventions. Caribbean masculinities, power relations between men and women, accepted gender roles and identities, and the influence of popular culture and spiritual practices not only fuel stigma and discrimination towards vulnerable and marginalised populations that prevent them accessing services. They also entrench those behaviours around sexual decision making that increases individual vulnerability to contracting HIV. These drivers of the epidemic have long been recognised. However, the challenge remains as to how we apply the existing research and expertise in these areas to the design of targeted messages and programmes for behaviour change among the various most-at-risk populations (MARPs). In parallel, there must be continued advocacy and institutional and structural reform including national policy and regulatory frameworks for an enabling environment that facilitates access to and better serving of MARPs. There is a need for strengthened coordination among implementing partners operating at regional, sub-regional and national levels. This is increasingly urgent in the face of dwindling grant resources for HIV programmes and the middle income status of most Caribbean countries. MARk CONNOlly Senior Advisor, HIV/AIDS UNICEF Regional Office for latin America and the Caribbean 110 | KS III | www.unaidscaribbean.org wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? Primary prevention of HIV among young people remains the greatest challenge, as each year brings new cohorts of adolescents into vulnerable situations, in which they need to be protected and to be able to protect themselves and their friends. The relatively low investments in prevention with adolescents over the past 20 years are a fundamental reason why we have not seen major decreases in HIV incidence. The second huge challenge is the elimination of Motherto-Child Transmission of HIV - the Caribbean can be one of the first regions in the world to tackle this, but not when only 71% of children who need ART received it. Children and young people must become higher priorities in national responses. unaidS co-SponSoRS GIOVANNI DI COlA Deputy Director International labour Organization (IlO) Caribbean Office DAVID RUIz VIllAFRANCA HIV Regional Advisor United Nations Development Programme (UNDP) FEDERICO DUARTE Regional HIV/AIDS & Reproductive Health Coordinator Deputy Director’s Office for the Americas for UNHCR wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? The lack of sufficient programmes and policies to address discrimination at the workplace is the major challenge, because the workplace is where the impact of HIV/AIDS prevention can be better assessed than anywhere else. wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? To protect and promote rights in order to create a human rights environment, especially for those groups most-at-risk (MSM, gay men, trans people, sex workers) as well as for those people living with or affected by HIV. It includes actions against stigma and discrimination, awareness, working with parliamentarians, removing punitive laws and strengthening CSOs, among other actions. There is a need to reinforce alliances and strengthen partnerships to halt new infections, especially among youth, women and girls, and these key actors should be involved in planning processes. besides that, the region needs a strategic approach to achieve effective prevention programmes. Also, to increase access to ARV for those in need, ensure quality of antiretroviral medicine and an affordable quality care and support. wHat are tHe two ma jor cHallenges facing tHe region in responding to Hiv? Protection of basic human rights principles should guide the development of programmes through the involvement of refugees, asylum seekers, internally displaced persons and stateless persons into HIV policies and responses. Specific attention should be paid to the needs of women and girls including gender-based violence in the humanitarian settings and disaster response in the region. www.unaidscaribbean.org | KS III | 111 112 | KS III | www.unaidscaribbean.org Human RigHts: Caribbean Constitutional standards and tHe rights of sexual Minorities Tracy robinson senior Lecturer, Faculty of Law, University of the West indies, cave Hill campus, barbados The pillars of the caribbean’s fundamental and highest law, the constitutions, are respect for human dignity and human rights. Many constitutions describe all persons as being ‘endowed equally by God with inalienable rights and dignity’ and declare ‘faith in fundamental human rights and freedoms’. The chapters in caribbean constitutions protecting fundamental rights and freedoms, using different language, establish the norms for a just society that respects human rights and create an accountability mechanism. if anyone’s fundamental rights and freedoms are infringed by a law or governmental action, they are entitled to challenge same. The starting point for this action for redress is the need to ensure an avenue for access to justice for minorities who are discriminated against and stigmatised or have had their rights abridged. built into caribbean constitutional design, therefore, is the acknowledgment that minorities may need judicial protection of their rights where there is hostility, violence and breaches of their rights by the majority. Laws in the commonwealth caribbean that criminalise sexual activity between adults of the same sex fall afoul of fundamental values and norms expressed in caribbean constitutions, especially the core principle of respect for human dignity. although these laws focus on certain sexual acts, like anal sex, and not homosexuality per se, they disproportionately and negatively impact on the lives of gay men, lesbians, bisexuals and transgender persons. Human dignity demands, as the south african constitutional court put it, that we recognise ‘the worth of all members of our society.’ Dignity is at the heart of the right to privacy which is protected by caribbean constitutions. Properly understood, privacy includes a person’s freedom to have human and intimate relationships without undue interference by the state and others. by making certain sexual forms of sexual expression between consenting adults a crime, the law degrades sexual minorities and their dignity. While it is not clear that the right to privacy can be enforced under the redress provisions of all caribbean constitutions, it certainly can in some like Trinidad and Tobago and belize’s, and arguably antigua and barbuda and st. Kitts-nevis’. Moreover, quite apart from the question of enforcement, the right is plainly guaranteed as a general right almost everywhere in the caribbean. These general declarations of rights in caribbean constitutions, such as the right to privacy were designed, according to the eminent constitutional jurist, Professor stanley de smith, to bring “out the general purport of the guarantees, lifting them above the austerity of tabulated legalism.” no caribbean constitution explicitly www.unaidscaribbean.org | KS III | 113 provides protection against sexual orientation discrimination, but the court of appeal of Trinidad and Tobago explained that the categories of discrimination were not closed. adopting an approach used by other commonwealth courts, the Trinidad and Tobago judges treated sexual orientation as analogous to some other prohibited grounds of discrimination. in their view, it was not appropriate for an anti-discrimination statute to explicitly deny the possibility of sexual orientation being a prohibited ground of discrimination. The Privy council, that country’s final court of appeal, appears to have taken a different view, but provided no explanation for repudiating the sensible conclusion of that country’s judges. The upshot is that caribbean judges, especially in Trinidad and Tobago, Guyana and belize, where general equality rights are guaranteed, will have to grapple with the equality rights of a range of persons not originally contemplated at the founding of caribbean constitutions. The approach of the court of appeal of Trinidad and 114 | KS III | www.unaidscaribbean.org Tobago indicates an open mind about the crucial question of what equality means in the caribbean today. a concern is always the impact of ‘savings law clauses’ on the ability of citizens to insist that their fundamental rights and freedoms be respected. These clauses might entirely shut out judicial review of laws which were in existence prior to the constitutions on the ground that they infringe fundamental rights. The restrictions of these clauses in caribbean constitutions should not be overstated. They are impediments to judicial review in a material way only in Jamaica, Trinidad and Tobago, Guyana, the bahamas and barbados. but even in those countries, some of the questionable laws criminalising certain forms of sexual expression were enacted in the last twenty years, long after independence. The savings law clauses do not stand in the way of a challenge of these. Even where formal legal challenges face hurdles like savings law clauses, the broad purport and meaning of caribbean constitutions remain clear. it was always intended that the constitutional commitment to respecting the human dignity and equality of everyone in the caribbean would sometimes take place in the courts, but would always also take place within caribbean communities (newspapers, talk shows, demonstrations, community organising etc) using the constitutional standards as a bulwark against injustice. Litigation is an important tool for vindicating rights and communicating the value of fundamental rights to the entire society. it will not always be available or evenly so across the caribbean when constitutional norms are breached. nevertheless, caribbean constitutions establish the benchmarks for ensuring that caribbean people can, according to the Guyanese constitution, “live in a safe society which respects their dignity, protects their rights, recognises their potential, [and] listens to their voices…” gender RetHinking gendeR in tHe CaRibbean The caribbean ideologies of masculinity center on sexual prowess and deter condom use, while motherhood continues to enhance femininity and both contribute to an increased vulnerability of women and girls to HiV infection 45. These ideologies manifest themselves in the Dutch, English, French and spanish-speaking caribbean. For example, in countries like the bahamas, belize, the Dominican republic and Haiti, the estimated number of females living with HiV surpasses the number of males, and also young women are two to three times more affected by HiV than males in the same age group. yet few resources and little attention are dedicated to addressing the particular needs of women and girls. also, the increasing number of young women who are living with HiV is evidence not only of physiological vulnerability, but also of both their powerlessness to negotiate safer sexual practices and the early initiation of sexual activities e.g. 22% of young females in st. Kitts and nevis have had sexual intercourse before age 15. of particular concern in this regard are the relationships between young girls and older men, where recent surveys have shown that 25% of older men report sexual partners at least 10 years younger. 4 Box Women and Girls 46 The vulnerability of women and girls to HiV is sometimes acknowledged in national strategies, but, as in many caribbean countries, remains inadequately addressed by HiV programming. Most programmes directed at women and girls focus on female sex workers, on pregnant women for prevention of vertical transmission, and on youth broadly. Despite the widespread impression that participation in the education sector and the labour market is an indication that women do not experience inequality in caribbean societies, that is wrong. Women remain at risk and vulnerable because power inequalities within relationships compromise their ability to engage in condom use and other risk reduction strategies. To address this issue, the caribbean coalition on Women and aiDs has been established as a multi-sectoral group to address the vulnerability of women and girls to HiV. its membership includes crn+, cVc, the gender desk at caricoM, PancaP, UWi, the caribbean association for Feminist research and action (caFra), UnaiDs and UniFEM caribbean. The latter currently hosts the coalition’s secretariat. its focus includes research on the linkages between gender-based violence and HiV in the caribbean, addressing the significant gap in HiV programming for women and girls, and advocacy on reducing women’s vulnerability to HiV. youth subcultures are increasingly centred on sexuality with hyperheterosexuality often with strong homophobic overtones found in music, language and the media. a new culture of materialism has emerged, influencing transactional sex whereby young women engage in sexual relations in exchange for “brand-name” items, cellular phones and other symbols of modern day “success”. 47 Programmes should be implemented to change gender norms that condone violence against women including rape and domestic violence and coercive sex, and also address the needs of men in that context of gender 48, because the major challenge in the caribbean is that gender issues have been subsumed 45 46 47 48 49 under women’s issues and the feminist movement concentrated its efforts on women’s issues and has not embraced gender issues confronting men and boys in caribbean societies 49. Furthermore, gender itself is not well defined in this region. How many genders exist in the caribbean is a question worth asking. also, can sexual orientation be part of discussions around gender in the caribbean? The answers to these questions will help the caribbean decision makers to deal with the HiV epidemic effectively. in the meanwhile, in discussions around gender it would be worthwhile to consider transgender issues as discussed below by the transgender population itself. report of the caribbean Technical Expert Group Meeting on HiV Prevention and Gender. Jamaica. 2004 Dr robert carr, former Technical Director cVc, Personal communication report of the caribbean Technical Expert Group Meeting on HiV Prevention and Gender. Jamaica. 2004 UnaiDs. The status of HiV in the caribbean. 2010 Prendergast Patrick and Grace Hylton. bringing the male voice to the gender agenda: The task of male organisations in the caribbean. UWi.2006 www.unaidscaribbean.org | KS III | 115 tRansgendeR Looking baCk and tHinking about tomoRRow Ashily, Carmen, Suzy Q and Tanoa are great friends and have come together to discuss the past, the present and the future of the transgender population in Trinidad and Tobago and the Caribbean. ashily: i came out some 20 years ago as a transgender person, not knowing what or who i was because of the lack of information back then on gender identities. i struggled to find my place. i first thought or rather was told all my life that i was gay and that’s what i thought it was, so i started to wonder why i did not fit in with gays. We were similar but at the same time, distinctly Box different, so i gravitated to the group that most closely related to me which was the cross dressers. some were drag queens, some trans, but we all had things in common: we needed to live, and sex work was our only form of employment so we all tried to get along; but still i did not quite fit in either, at least not with the drag queens. Transgender people had to support each other. one of the greatest mistakes that we make, and it is an affront to transgender persons, is mis-identities or not knowing the differences between transgender, transsexuals, transvestites, drag queens and gays. My wish is to quickly give you a bit of a gender identity lesson. 5 some definitions • TransGEnDEr: a person whose gender identity and biological gender do not match up. This is noT purely an emotional thing it is also physical and biological because it has a lot to do with your hormones. it is important to note that trans persons are not gay; they can be identified as straight, bisexual, gay, or trans, hence the offence when this trans population is classified as Men who have sex with Men. • TranssExUaLs: a transsexual person understands that their gender identity and biological gender do not match and they have accepted it; they do not need to have gender reassignment surgery. • TransVEsTiTEs: are heterosexual men who so love women that they cross dress to feel closer to females. • DraG QUEEns: are gay men who cross dress for entertainment purposes (cabaret, sex work etc.). • Gay MEn: are men that like men, men that are comfortable in identifying as men (whether they are effeminate or not); they identify themselves as men who like men. 116 | KS III | www.unaidscaribbean.org continues even today. We do not wish to see our issues confused with those of gay or men who have sex with men, because we are different and would always want to see that difference respected. in those early days, it appeared easier because there was only one principal activity for transgender people: sex work, so it got us together. also, in the transgender community there was great awareness of organisation. There was a hierarchy and security enforcement services respected us because we were disciplined; there were issues between transgender and the drags; although it was difficult to tell the difference out there, but we knew the difference. in those days, we were divided into three classes: the higher, the middle and the lower class. and there was a clear respect of these three classes by all members. in those days, there had been some animosity between the transgender and gay populations. it has since changed and we have come from not being welcomed to any of their parties to now being the ViPs in that community and also i think a bridge between the gay and heterosexual community. We had a close relationship with the heterosexual female community also and that reality Things changed when the structure and hierarchy collapsed. This happened because of competition between members for some sort of acknowledgement and notoriety. The struggle for clients did not help any, and because of this the police intervened, which resulted in closing down of the areas where the transgender population was both “liming “and operating as sex workers. The pimp system has appeared and has created mistrust among members and resulted in the appearance of the so called “many leaders but no followers” and the lack of mutual respect. This whole scenario means that today, members of the transgender community have returned to survival mode and the solidarity between them has disappeared completely. it is my strong belief that instead of progressing, the transgender community has regressed in many ways during the last five to ten years. and lucky are the transgender people who have completed primary school. With this big handicap in terms of education, there are few employment opportunities for the transgender population. so we fall easily into sex work or lower level professional categories, hard labour and lower paid jobs such as hairdressing. it is our best estimate when we say that less than 1% of transgender people are educated to secondary level and less than 1% are in decent jobs. When we have a job we are generally discriminated against in the workplace or we become the jesters if we can make everyone laugh then we can crawl by with little or no self-respect. since sex work is criminalised in many of our countries and transgender does not exist in the laws, police abuse is disproportionately high among us because we depend very much on sex work to survive. our daily life is monotonous and boring; it is not easy to face such a hard life when you have to run away from yourself every day. We communicate among ourselves but not very often and our communication with transgender people in other suzy Q and tanoa: Today we are facing real social challenges, because it is very difficult for a transgender to live a proper life; in many instances, we hide our lifestyle. it is very difficult for a family or a community to accept transgender people. Many families throw their transgender children on the street without any options for survival except to become another sex worker. in the area of education, we are less educated because early on, stigma and discrimination prevented us from continuing our studies; the school drop-out level is very high among us www.unaidscaribbean.org | KS III | 117 b) countries is very limited. contacts are used for learning purposes to see how experiences or achievements from other countries can be implemented in Trinidad and Tobago. younger transgender generations face hardship because there are no counselling or guidance systems in place to help them and many times they are misused by pimps and they cannot request redress from the law. “Falling between a rock and a hard place” summarises their daily life. beyond the social rejection and the abuse by law enforcement agencies, there are two other major areas of stigma and discrimination against us, the transgender population: a) in the health care system. This is a major of concern for us because many health professionals are not educated on gender issues and the transgender population is stigmatised and discriminated against in the health system on a daily basis and no special attention is given to us because of our special situation of being a transgender. When we are sick, and need to be hospitalised, there are no clear policies and procedures regarding whether we should be placed in the men’s or women’s ward. no 118 | KS III | www.unaidscaribbean.org specific health standards exist for us. Therefore the majority of the transgender population avoid health institutions and will be hospitalised at a late stage, and generally that is true for transgender persons living with HiV. in the prison system. This is also a source of discrimination and stigma against the transgender population, and the prison service appears to have made a policy decision to place us in the male prison. and members of the transgender community often report rape and other sexual abuses during jail time. also there is a lack of health standards for the transgender population within the prison system. because of their specific activities, members of the transgender population are often arrested and put in jail without respect for their individual human rights. Carmen: My focus will be on the future since we have already discussed the past and present. i will summarise these in five areas: • DEVELoP a naTionaL nETWorK. it is important for us to reorganise and rebuild ourselves into a national network with a common purpose: the well-being of the transgender population. We should make efforts to establish a network which can mobilise resources and build a strong support system which will empower its membership to improve their lives and working conditions. • EDUcaTE. This should be comprehensive education at all levels in society: family, to understand the transgender population; at school, to tolerate transgender people; at the level of the law, to understand that transgender people exist; law enforcement officers to be educated on how to deal with abuse against transgender people; health care workers to handle transgender health issues under optimum standards; and prison officers should be educated about dealing with the transgender population. • rEsPEcT oUr HUMan riGHTs. This should happen at all levels; laws should be in place that acknowledge the existence of and protect the rights of transgender people. • EsTabLisH a sociaL sUPPorT sysTEM. it is important for us to have a HoME or a half-way house where transgender people could meet, organise themselves and be guided, counselled and well taken care of by well-trained health professionals who understand their specific needs. • crEaTE EconoMic oPPorTUniTiEs. opportunities should be created for the transgender population to be re-educated and equipped with skills which will help them access the workplace and employment opportunities. i invite all transgender populations to work together on these five recommendations for improvement of our well-being and working conditions, to educate the society at large to understand gender and respect our fundamental human rights. nathalie Cameau legros 22 ans La Vie d’une PeRsonne tRansgenRe en Haïti QuelS SonT leS problèmeS Que ConfronTenT leS TrAnSgenreS en HAïTi? en Haïti, le terme « transgenre » n’est même pas connu . r. En Haïti, le terme « transgenre » n’est même pas connu. La vie d’une personne transgenre n’est pas facile en Haïti. La société haïtienne ne nous traite pas comme des êtres humains. nous subissons beaucoup de discrimination de la part de nos parents d’abord, de nos entourages et des gens dans la rue. notre vie est constamment marquée par la peur, la misère et la crainte et nous sommes victimes de viol, les couts et les injures. nos parents sont victimes de discrimination et de stigmatisation de tous genres, et c’est une des raisons qui fait qu’en retour, ils nous discriminent car ils ne veulent pas être associés avec leur enfant transgenre. Pour se faire soigner nous préférons traverser en république voisine, ou nous avons accès à de meilleurs services médicaux et recevons un meilleur support, c’est mieux accepter le transgenre là-bas. si tu n’as pas de passeport pour te permettre de voyager, en tant que transgenre tu es condamnée. si tu es agressée par d’autres et tu appelles la police, une fois qu’elle te voit, elle ne te protège pas de la violence des autres. En tant que transgenre, tu as des problèmes partout même quand tu dois présenter une pièce d’identification a la banque, a l’immigration, etc. CommenT lA populATion TrAnSgenre S’eST orgAniSée pour fAire fACe Aux diffiCulTéS? r. En Haïti, les transgenres restent dans leur petit coin, comme je disais, elles vivent dans la peur, se cachent et ne se déclarent pas et se font passer pour des femmes. Elles changent de quartier souvent et ne se fixent nulle part. Un transgenre est généralement abandonner par sa famille, elle est un être rejeté qui se retrouve seul. En Haïti, a part sEroViE qui nous apporte du support, il n’y a rien autre comme système d’organisation. www.unaidscaribbean.org | KS III | 119 addRessing HiV in HumanitaRian settings at the global level, conflicts, disasters or displacements affect 1.8 million PLHiV i.e. 5.4% of all PLHiV. among these are 930,000 women and 150,000 children under 15 years living with HiV and affected by humanitarian emergencies. 50 The caribbean is a disaster-prone region regularly subject to hurricanes, floods, volcanoes and earthquakes. in 2010 alone the devastating earthquake in Haiti which killed a quarter million people and displaced 1.5 million people to camps and shelters has also caused UsD 8 billion damage to the economy. Hurricane Tomas has created damage in the Eastern caribbean i.e. st. Lucia, st. Vincent and the Grenadines as well as in Haiti. as demonstrated in the map below, the caribbean must be ready on an ongoing basis to respond to tropical storms and hurricanes. The consequences of these natural disasters include also the destruction of health infrastructure, stocks of medicines and pharmaceuticals, food, water and sanitation, roads and other utility services. Their negative impacts on people’s health including people living with chronic conditions such as HiV is important and exacerbate issues such as the easy spread of Tuberculosis in shelters or the spread of malaria in flooding situations in endemic malaria areas, etc. The United nations inter-agency standing committee (iasc) Task Force on HiV has developed guidelines to support the response to HiV before and after humanitarian crises. sectors and action items to be considered are summarised in Table 32. 50 Lowicki-Zucca M, spiegel Pb, Kelly s, Dehne KL, Walker n, Ghys PD. Estimates of HiV burden in emergencies. sex Transm infect 2008: 84 suppl 1:i42-i48. 120 | KS III | www.unaidscaribbean.org table 32: hiV in humanitarian set tinGs: seCtor and aCtions seCtor HiV awareness raising and community support aCtions raise HiV awareness and Empower communities Health Prevent HiV transmission in health-care settings Provide access to good quality condoms Provide post-exposure prophylaxis Manage sexually Transmitted infections Prevent mother-to-child transmission of HiV Provide care for PLHiV Provide arT to whose PLHiV in need Provide basic health care and support to key populations at higher risk of exposure to HiV Protection Protect against HiV-related human rights violations Protect orphans and unaccompanied, separated and other vulnerable children and youth Protect the population from gender-based violence Food security, nutrition and Livelihood support Ensure food security, nutrition and livelihood Provide nutritional support to PLHiV Education Promote access to relevant and protective education for all children and young people shelter integrate HiV in shelter activities camp coordination and Management integrate HiV in camp coordination & management Water, sanitation and Hygiene integrate HiV in water, sanitation and hygiene programmes HiV and the work place implement HiV in workplace programmes & policies Source: Guidelines for Addressing HIV in Humanitarian Settings. UNAIDS.2010 www.unaidscaribbean.org | KS III | 121 la situation après le séisMe Quel est l’état des traitements antirétroViraux en haïti? il y a environ près de 30,000 patients recevant activement la trithérapie dont plus de 50% dans le réseau que nous avons aux centres GHEsKio avec le Ministère de la santé Publique et de la Population. nous avons conduit une étude pour déterminer a quel moment on doit placer les patients sous antirétroviraux en comparant les recommandations de l’oMs (cD4 < 200/mm3) a celles des pays développés (cD4< 350/mm3) 52. L’étude a montré qu’il y avait 75% de moins de décès et 50% de moins d’incidence de la tuberculose (Tb) chez les patients qui ont débuté leur traitement plus tôt. nous allons appliquer bientôt ces nouvelles normes de traitement en Haïti. Quelles sont les prinCipales sourCes de finanCement et leur impaCt? Le Fond Mondial (GFaTM) et PEPFar sont les principales sources de financement pour la lutte contre le siDa en Haïti. Les financements du Fond Mondial étaient parmi les plus performants au monde et ont sauvé beaucoup de vies, mais ont connue des difficultés énormes au cours de trois dernières années, ce qui a profondément affecté les sous récipiendaires qui sont restés a plusieurs reprises plus de 8 mois sans 51 52 53 financement. Jusqu’à cette date des sommes importantes qui nous sont dues depuis 2009 comme les frais de gestion n’ont pas été versées, ce qui a ralenti nos initiatives. Malgré cette situation désagréable et révoltante les programmes des sous récipiendaires ont eu une bonne performance. nous espérons que le nouveau récipiendaire principal sera plus performant que l’ancien et que la sérénité sera rétablie pour la poursuite des actions en faveur des plus démunis. PEPFar continue de supporter le pays et a des résultats très tangibles en sauvant des vies, en diminuant la transmission du ViH de la mère à l’enfant et l’information stratégique. Quel a été l’impaCt du séisme du 12 janVier 2010 sur le traitement en haïti? nous avons pu établir le contact avec tous nos patients des les 2 semaines qui ont suivi le séisme du 12 janvier. Le nombre de nouveaux patients mis sous traitement par mois est actuellement plus élevé maintenant qu’avant le séisme malgré que nos espaces de travail aient été en grande partie détruits. Tout comme notre peuple qui vit depuis trop longtemps dans des conditions difficiles, nous avons appris nous aussi à travailler dans les mêmes conditions et cette expérience nous a été utile. Le séisme a détruit 80% du bas de la ville de PaP forçant 1.3 millions de personnes à vivre dans 1321 camps de fortune. Deux conséquences immédiates: Les femmes vivant sous ces tentes sont plus exposées à la violence sexuelle et la grossesse non désirée. La Tb y trouve aussi un terrain favorable. En plus de nos multiples interventions sur le ViH et maladies associées, nous gérons un camp de plus de 7,000 personnes qui sont venues spontanément prendre refuge sur notre propriété en les prenant en charge. 53 nous avons une équipe de volontaires qui au lendemain du séisme enquête de façon journalière sur 4 manifestations cliniques: la toux, la fièvre, la diarrhée et les éruptions cutanées et qui réfère à une équipe médicale dédiée entièrement à cette population pour tout patient présentant l’un de ces signes. avec cette approche nous n’avons eu aucun décès. nous avons même ouvert une école maternelle et primaire et une école professionnelle pour les habitants de notre camp. La Tb demeure une préoccupation majeure pour les raisons suivantes: le département de l’ouest le plus affectée par le séisme compte a lui seul près de la moitié de tous les cas de Tb du pays, les 2 hôpitaux pour tuberculeux de ce département y compris le notre ont été détruits, les prisonniers du pénitencier national, les plus grand centre de détention du pays, se sont Jean William Pape. Directeur des centres GHEsKio. Port-au-Prince, Haiti. sévère P et al, Early versus standard antiretroviral Therapy for HiV-infected adults in Haiti, nEJM 363:3, 257-265, 2010). Pape JW et al; the Earthquake in Haiti — Dispatch from Port-au-Prince, new Engl J Med. 2010 10 (1056) 1-3; Pape JW et al; The GHEsKio refugee camp after the Earthquake in Haiti — Dispatch 2 from Port-au-Prince; new Engl J Med. 2010 10 (1056) 1-2; Pape, JW et al; The GHEsKio Field Hospital and clinics after the Earthquake in Haiti – Dispatch 3 from Port-au-Prince new Engl J Med. 2010 10. 10561001787) 122 | KS III | www.unaidscaribbean.org en haïti vue par Jean pape échappés de cet établissement après le tremblement de terre. Plus d’une centaine était en traitement par notre équipe pour le sida et la Tb mais ils ne sont pas manifestés pour prendre leurs médicaments et comme ils se cachent dans les camps des sans abris, ils peuvent disséminer cette maladie. Finalement les villes “tentes” sont parfaites pour répandre la Tb. nos labos effectuent plus de 200 tests de crachats par jour pour les patients des autres hôpitaux et camps de sans abris. Une fois le diagnostic établi ces patients sont traités dans notre hôpital de campagne pour la Tb. Dans notre labo P3 “rodolphe Mérieux” qui fort heureusement n’a pas été affecté par le tremblement de terre, nous faisons le diagnostic de 10 nouveaux cas de Tb multi résistante par mois. nous avons dépassé de loin notre quota de médicaments et bien que le « Green Light committee » ait approuvé notre demande pour une augmentation des médicaments de 2eme ligne, le financement pour ces médicaments n’est pas toujours pas disponible. En plus notre projet Tb avec le Fond Mondial a également des problèmes d’approbation et de financement. sans financement toutes ces interventions importantes vont s’arrêter et mettre ces populations encore plus a risque. Deux mesures mises en place dans notre camp ont pu empêcher la violence contre les femmes: la présence de 4 femmes dans le comité 54 55 qui dirige le camp et l’électricité la nuit fournie par des panneaux solaires. Le Ministère de la santé et ses partenaires nationaux et internationaux ont fait un travail considérable pour empêcher l’arrivée d’épidémie de toutes sortes. Les populations des camps de fortune présentent aussi des opportunités d’intervention si les moyens étaient disponibles. Quelles stratéGies sont ou deVraient être en plaCe pour Garantir la pérennité du traitement? Haïti est actuellement dans une situation extrêmement fragile ayant perdu avec le séisme 70% de son GDP. c’est une question qui doit être reposée au moment de la reconstruction. on devra repenser complètement le système de santé et être capable d’offrir une couverture d’assurance à la population. nous avons mémé 2 études sur les couts du traitement. Dans une première étude notre cout complet y compris les médicaments était autour de $1,000 par an 54. Une autre étude a montré que plusieurs tests de laboratoire pourraient être omis dans le bilan du patient et de ce fait réduire encore davantage les couts. 55 Une troisième étude sur les couts est en cours. c’est notre responsabilité de faire en sorte que chaque dollar compte et de réduire le cout des soins tout en gardant la qualité. 51 La tb demeure une préoccupation majeure . Quelles futures perspeCtiVes sur le traitement en haïti? Le traitement antirétroviral est offert partout en Haïti. nous avons 5 équipes mobiles multidisciplinaires (médecin, infirmière, laborantin) qui supervisent le traitement offert dans notre réseau. nous avons 2 grandes préoccupations: 1) maintenir l’adhérence au traitement. on doit pouvoir déceler le plus tôt possible les patients qui sont en échec thérapeutique. nous avons établi un profile assez précis de ces patients qui doivent être identifiés au plus vite. 2) Le second problème noté dans tous les pays particulièrement les pays a faibles ressources est la mortalité élevée en début de traitement. nous avons des études en cours pour trouver une solution à ces 2 problèmes. on devra en dernier lieu former des infirmières spécialisées capables de remplacer les médecins dans la grande majorité des cas. nous avons débuté au GHEsKio le premier programme de “nurse Practitioner” spécialisé dans le ViH/siDa et maladies associées. c’est grâce à ce personnel spécialisé que nous pourrons étendre davantage le traitement. Koenig s et al. The cost of antiretroviral therapy in Haiti. cost Effective resource allocation 6; 3; 2008 Koenig s et al clinical impact and cost of Monitoring for asymptomatic Laboratory abnormalities among Patients receiving antiretroviral Therapy in a resource-Poor setting, ciD 2010:51 (sept.1st), 600-610 www.unaidscaribbean.org | KS III | 123 iMproving STrATegiC infoRmation on HIV The modelling of HiV incidence is essential to understanding the sources of new HiV infections and to plan for interventions among the exposure groups where more infections are occurring. This kind of study, commonly called a mode-of-transmission (MoT) survey, will help decision makers to understand the sources of new HiV infections, the importance of each and to use the information for programme planning. Broad-Basedstrategici nformationi s nEEDED beyond data from monitoring and evaluation processes, data from ongoing national surveillance and from specific surveys such as behavioural surveillance surveys and Demographic and Health surveys, key tools and methods to support these surveys should be used by decision makers, especially the monitoring and evaluation units at country level to help them with planning for evidence-based interventions to achieve effectiveness of HiV programmes. MoVinG ToWarDs MEasUrEMEnT oF HiV inciDEncE is a MUsT The increased coverage of antiretroviral treatment and its positive impact in improving and prolonging the life of PLHiV, have limited the usefulness of measurement of HiV prevalence for monitoring the spread of HiV and the dynamics of the epidemic in general. Therefore, it is necessary to measure the incidence of HiV. 124 | KS III | www.unaidscaribbean.org Modelling the expected distribution of new HiV infections by exposure group uses four main modes of transmission by order of importance: sexual (men who have sex with men, commercial sex, casual sex and marital sex), injecting drug use, blood transmission and medical injections. Data needed include population sizes, HiV prevalence, sTi prevalence, number of sexual acts by exposure group, number of partners by exposure group, percent protection in each exposure group and transmission probability. Data are entered in the MoT software, which uses the current prevalence of HiV, numbers of individuals with particular exposures and rates of these exposures, to calculate the expected incidence of HiV infection over the coming year. This modelling software will help caribbean Monitoring and Evaluation officers to use the outcome of the MoT surveys to advise programme implementers to act on exposure groups where the highest numbers of new infections are likely to occur i.e. to act pre-emptively by putting in place interventions which will prevent new HiV infections. EsTiMaTinG THE nUMbEr oF MEn WHo HaVE sEx WiTH MEn, sEx WorKErs, anD cracK cocainE UsErs is ParaMoUnT Measuring the effects and scale of the HiV epidemic presents many challenges. Without accurate estimates of the size of most-at-risk populations, it is impossible for caribbean countries to carry out essential HiV programme activities, e.g. advocating for vulnerable groups, planning and implementing HiV prevention, care and treatment programmes, conducting HiV surveillance and evaluating the reach and impact of programmes. Most caribbean countries have developed national surveillance systems for tracking HiV infections, and behaviours and practices that spread HiV but many lack the capacity to estimate the size of the populations involved. Therefore it is essential that national professionals are trained to acquire the necessary skills to conduct size estimates among MarPs using methods such as census and enumeration, capture-recapture, nomination, and multiplier, etc. results of these surveys should be used to guide national planning and budgetary allocations for prevention activities and public health services for vulnerable groups and to assess their reach and impact. internet-Basedsurveyssavemoney anD iMProVE rEPrEsEnTaTiVEnEss are these surveys applicable in the caribbean? since the beginning of the epidemic, many attempts have been made to conduct surveys among MarPs 56. There has been some progress 57 in this area, but representativeness has always been a challenge. recently, a new method has been getting more and more attention: the use of the internet to conduct surveys among these populations. Web-based surveying (Wbs) is becoming widely used 58 in social sciences and research because it offers significant advantages including cost savings over more traditional survey techniques. 59 This method presents some methodological concerns about issues such as coverage bias, or lack of access to the internet by targeted populations, or some may choose not to use the internet. More learning is necessary on the most effective ways to conduct surveys over the internet. Especially for HiV programmes it will be useful to establish some parameters such as frequency of surveys and specific populations to be surveyed. some consideration should be given to the general population as well. Despite these issues, there are techniques to improve and increase the quality and responsiveness of internet-based surveys. There are a variety of software tools for conducting internet surveys and they are sophisticated but easy to use 60. To illustrate this progress, researchers in Estonia studied the efficacy of convenient sampling through internet versus respondent driven sampling (rDs) among MsM. They found a more representative, diverse sample in the Wbs compared with the rDs. The Wbs captured more MsM, who were older, bisexual, had female sex partners during the last six months, and were unlikely to have been tested for HiV. 61 Without replacing other survey methods, the Wbs can complement traditional methods by improving representativeness, thus the understanding about knowledge, beliefs, behaviours and practices among vulnerable groups. as a cost-saving method, the Wbs should be considered for the general population and young people. 56 57 58 59 60 61 The European MsM internet survey (EMis). community report 1. sigma. 2010 stuart Koe. Fridae. asia internet MsM sex survey 2010 preliminary report. cDc. Web-based HiV behavioural surveillance Protocol no 4719. cdc.gov,nchstp/od/hiv.plan/default.htm David J. solomon, conducting Web-based surveys. Michigan state University a. Mettey, r crosby etal. associations between internet sex seeking and sTi associated risk behaviours among men who have sex with men. sex Transm. infect 2003, 79:466-468 Lisa Grazilina Johnston et al. Efficacy of convenience sampling through the internet versus respondent driven sampling among males who have sex with males in Tallinn and Harju county, Estonia: challenges reaching a hidden population. aiDs care Vol. 21, no.9, september 2009, 1195-1202 www.unaidscaribbean.org | KS III | 125 sustainabiLity of aids PRogRammes recently many caribbean countries have been facing a lack of external funding to support their national HiV response and this trend will continue, since donor countries are facing a global financial crisis and the majority of caribbean countries are classified as high or middle income. To achieve sustainability of aiDs programmes and successes accomplished, caribbean decision makers should exercise leadership by: a. Modelling future demand and projecting the financial cost of multi-sectoral HiV programmes to be included in national annual budgets. b. improving efficiency in the use of existing resources, and mobilising more internal resources through greater involvement of the private sector in financing the HiV response, mobilising civil society and other social entities e.g. Fbos and international private companies operating at country level to get involved in and support the national response to HiV. c. improving cost-efficiency of interventions through integration and decentralisation of HiV programmes and services; strengthening human resources, reducing vertical programming, planning and implementation of HiV interventions. D. Mobilising the international community to review trade agreements to reduce treatment cost by allowing all caribbean countries to do bulk purchasing of generic antiretroviral drugs, medicines to treat opportunistic infections and laboratory reagents for diagnosis. This will also support treatment 2.0. E. creating an environment free of stigma and discrimination which is supportive of early diagnosis and adherence to treatment so that patients will not move quickly from the first line to the more expensive second line treatment. F. Ensuring that prevention programmes and other health services reach the most-at-risk populations and are achieving impact by reducing new HiV infections. G. reinforcing life-skills HiV education to ensure that young people will be part of the solution in the short and long term. Preparing caribbean children to understand and respect diversity and human rights is critical to the HiV response. increasing people’s acceptance and adherence to zero discrimination against PLHiV and sexual minorities and zero violence against women and girls will positively shape not only the future of the HiV epidemic but social relations in general. H. removing punitive laws will result in enabling and more supportive environments which will result in increased access to HiV prevention, care, treatment and support interventions among most-at-risk populations. i. Preparing for and addressing HiV in humanitarian settings because of the specific nature of the caribbean as a disaster-prone region. 126 | KS III | www.unaidscaribbean.org fRom Wendy FitzWilliaM Miss Universe 1998 and Former Un Goodwill ambassador on HiV/aiDs 2010 has been a year of triumphs and some disappointments in the caribbean response to HiV. our citizenry living with HiV are truly living with HiV. in many instances our mortality rate has dramatically decreased and many of the countries within the region have much to celebrate about reducing mother-to-child transmission of HiV. the same commitment in ensuring that he has a healthy understanding of his sexuality and sex as he grows. in his four years i have learnt so much through him (his questions and self-exploration) about my own quirks and discomfort in facing my own sexuality, much less discussing it intelligently and sensitively. We have fallen far short, yet again, in the areas of prevention and stigma. Like UnaiDs, i have been at this disease in the region for well over 10 years and i am convinced that our collective failure to effectively address the spread of HiV and aiDs and the stigma faced by PLHiV is because HiV in the caribbean is primarily a sexually transmitted disease. of the many cultures that i have been fortunate to experience and participate in beyond the superficial tourist experience, we are the most uncomfortable in embracing our sexuality. i am determined to raise a healthy, West indian male, steeped in our best traditions and deliberately void of the idiosyncrasies that stunt our growth. it started for me with baby steps e.g. simply referring always to his penis as a penis and not a “piggy” and my vagina as a vagina and not “a suzie”. seems simple enough but try it at home as you read this. it has also included answering his questions honestly about his birth in the most matter-of-fact manner. i answer his questions honestly and my own discomfort in doing so has gradually begun to dissipate. Four year olds are very smart. you should know; you were once four also. For us, sexuality and sexual relations in its many forms are at the core of this disease and until we all individually face our sexuality and sex head on, our progress in addressing the spread of HiV and the stigma associated with living with this disease will continue to be disappointing. My personal journey in living my sexuality out loud began with the birth of my son. in much the same way i have been determined to ensure he is a happy, well-adjusted and physically healthy human being (eating veggies myself to set that all important “good example”) i’ve taken on it is in the knowing, internalising and living that knowledge that the tremendous work of UnaiDs and so many other organisations will start to bear fruit in the region. as we start this second decade of the 21st century, let’s make the hard work of those who have gone before us count. Let’s make the lives of those we have lost to this disease count. Let’s make the hard work of those living with HiV or aiDs count for all of us. www.unaidscaribbean.org | KS III | 127 128 | KS III | www.unaidscaribbean.org www.unaidscaribbean.org
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