Preferential Access to Care: Ethical Considerations and Policy Development for SickKids Jonathan Hellmann, MBBCh, FRCPC, MHSc, Senior Medical Bioethics Associate, Randi Zlotnik Shaul, JD LLM, PhD, Director, Bioethics Department Background The Canadian health care system is premised on the ideal of equitable access to medically-necessary hospital services Aims to ensure patients with same medical conditions have reasonable access to equivalent services Equity implies access based on medical need alone and absence of avoidable health disparities between groups. Equity may be in relation to access, utilization or quality of health care Risks of Preferential Access (PA) Conflict of interest for health care professionals (HCPs) Moral uncertainty and/or moral distress for HCP Contravention of commitment to Future of Medicare Act which states that •no person shall pay or confer a benefit upon any person or entity in exchange for conferring upon an insured person a preference in obtaining access to an insured service; •or accept payment or a benefit for conferring upon an insured person a preference in obtaining access to an insured service Erosion of societal trust that care premised on equitable access Alberta Inquiry Report Concern in Alberta following number of incidents that faster access for reasons other than medical need had occurred led to Alberta Health Services Preferential Access Inquiry 2013 •uncovered instances of improper PA •did not find evidence anyone medically harmed as a result •concerns largely proved unfounded BUT raised larger issue: Does improper PA cause harm to the principles underlying publically funded health care? The SickKids Statement Alberta Inquiry Recommendations Strengthen queue jumping provisions of Health Care Protection Act Expand whistle blower protection Clarify scope and application of professional courtesy Develop and implement wait list management strategies Develop standardized referral procedures Consider creating position/office of Health Advocate Develop policy on courtesy calls Develop policy on special accommodation during pandemic Develop policy on preferential access Professional Courtesy Produces a form of preferential access Seeing a colleague or family member more quickly Only acceptable for essential HCP to carry out duties Is There Tolerance for Certain Types of PA? Sports stars, Olympians, leaders of government, celebrities? Those in research protocols? Individual’s social utility e.g. police, fire fighters, HCP in front line of pandemic? BUT public needs to be involved in determining what is tolerable At SickKids Bioethics Department asked to lead development of hospital preferential access statement 11 person stakeholder working group Numerous revisions with feedback from MAC The Hospital is a public hospital, operating in accordance with Ontario’s Public Hospitals Act and the Commitment to the Future of Medicare Act. The organization is committed to the provision of equitable access to paediatric care. As is the case with all public hospitals working within finite resources, SickKids staff must prioritize the order in which patients receive access to care. Maintenance of trust in how access is prioritized at SickKids requires transparency and accountability, through adherence to relevant Ontario legislation and hospital polices Factors to be Considered: Severity of illness or condition Urgency of illness or condition Potential impact on the patient: physical and psychosocial Potential impact on other patients Potential impact on the healthcare team Potential impact on families Conflict of interest: actual or perceived Fairness: must be applied even when conditions not urgent Availability of alternative: ie likely to achieve a comparable standard of care as temporary or alternative measure in situations of limited supply Current Application: 1. Consequences of violation same as for violation of any hospital policy 2. Guideline a reminder to staff of Hospital and Canadian values 3. Provides grounds for discussion amongst staff Next Steps Imbed in Hospital’s Conflict of Interest policy? Post on Bioethics Department website? Include in donation agreements? Post on external website? Include in Family guide book?
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