Care Better Community Guidelines
We’re a space that exists just for you!
In order to maintain a safe and caring community we have a few simple rules. There is light
moderation since we rely on you to be respectful members of the community.
First & last: Be Respectful
There is another human being who is likely experiencing some pain on the other end of the
app. We are here to support each other, not make caregiving harder. You can make your point
without being rude. We value your experience but provide EXPERTS for professional advice.
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No flaming. It is unacceptable to call people names, threaten people, or impersonate someone else.
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No trolling. It is unacceptable to post off-topic or controversial things simply to rile people up.
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No spamming. Recommending a product or service when it’s relevant is a great help to the
community. Randomly posting about your product or service is not.
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Don’t share your own or anyone else’s personal information, online. Registered users have
private messaging and chats, where you can connect with other members privately. When posting
about patients, be aware of HIPAA (the Health Insurance Portability and Accountability Act,
Federal legislation enacted in 1996, and in force since 2003). There are great resources for new
caregivers on line, like the slide below or via the Government web postings.
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HIPAA Basics from Karna *
ASK questions.
Care Better is here so caregivers do not feel alone. Ask about your friends’ experience. Each
caregiver is caring or who have cared for someone with Alzheimer’s and Dementia. Avoid lecturing
or preaching by asking about them and sticking to your experience.
We each have our own experiences
Your experiences may be dramatically different than someone else’s. We encourage you to
share your experience without judging others. Please don’t be antagonistic or be sarcastic to those
whose experiences have been different than yours. No one came here to be lectured or told they’re
wrong.
“My experience has been very different from yours. When that happened to me…”
Spam & inappropriate posts
If you feel a chat is inappropriate or are unsure, you can email us and let us know.
Be honest, be yourself
Honesty is one of our core values. There is a tangible relief that comes from vulnerability and
honesty. What’s more, you’ll likely find others who feel the exact same way. Hearing “me too” after
being honest and raw is a remarkable and powerful way to heal and deal.
We each have our own opinions and beliefs
Please refrain from debating or arguing member opinions, beliefs, or values that don’t align with your
own. You can always agree to disagree!
“I feel very differently about that – work is such a big part of my identity…”
Religion and spirituality are an important part of many caregivers’ lives. Please remember that this
site is for everyone. If faith is a part of your life, we love for you to share that. However, this is not the
space to find new converts or make people feel unwelcome for believing something different. It is
entirely unacceptable to say anything that is hateful toward any religion or group of people.
“God is where I find my strength…”
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Assume goodwill
We’re all here to be part of a supportive community. If you’re not sure of what someone’s saying, ask
them to explain.
“Joe, can you clarify? I’m not sure if you’re saying…”
Keep posts clean
Please do not say obscenity or vulgar language. In general, we all know it when we see it.
Reach out if you feel alone or suicidal
If you are having suicidal thoughts, please do not try to handle them alone. Feel free to talk about
depression and let our community here encourage you and help you discover solutions to problems.
Our community is not an appropriate place to say that you want to die or for discussing suicidal
thoughts, hurting others or hurting yourself.
If you see a chat expressing a suicide ideation, please urge the member to get professional help.
If you are thinking of hurting yourself or others please call or visit Befrienders Worldwide, which
maintains helplines in over 40 countries.
If there is an emergency, immediately call 911.