WINTER2017 2015 february You Have my To Stand Up For Yourself Finding Independence What does it mean to be a therapist suggested she contact “Myperson first connection with e young with Stargardt e Carroll Center. Carroll Center for the Blind was so disease? Just ask Elana R., successful because I was really currently an eighth grader in a She is like many other Carroll ready for it, ” said Maura Mazzocca. local middle will tell I Center clients who have lost their “I went into itschool. with anShe open mind. vision later in life due to macular you like thataher vision is “blurry in was sponge—ready to absorb degeneration, glaucoma, or other the center,”they which everything sentimpacts my way.her ” ability to read, recognize people at conditions. “Losing your sight isn’t easy. You have to learn new ways to Maura knows first-hand what a distance, and watch TV. But for do things you’ve previously taken it’s like to adjust to a loss of sight. Elana, it’s more about what she for granted,” she said. “But fighting She lost hers when she was 28 due can do, than worrying about what change makes it all the harder—on to diabetic retinopathy. She was she can’t. to adjust, when her attendedelse. the” Carroll youElana and everyone struggling Stargardt is inherited, and it Teens summer camp for the last causes progressive damage to the two years, and currently macula, a small area in the center participates in the Center’s of the retina. Elana was diagnosed Technology for Life program on with Stargardt disease when she Saturdays, where she learns more was in the 6th grade. Since then about using assistive technologies. Elana has been learning braille, She has made good friends in learning to use a long white cane, both programs, all of whom have and learning other specialized vision problems. With her friends skills so that she can do the same she has gone kayaking, sailing, things her sighted friends can. hiking, and explored careers at She is invested in maintaining her the zoo and in small businesses, independence, and works with a among other activities. “I love the Certified Orientation and Mobility Carroll Center. I’ve met lots of kids Specialist to learn travel skills like with eye problems and now we taking the train into Boston, or the are good friends. It’s nice to be bus into Worcester. She doesn’t with kids who understand.” know how quickly her vision will Elana isand onegoofafter three students “The Carroll Center taught me that if I stay focused what I want, but it,”Maura she is preparing fora Nursing it in her middle school (her younger Ichange, can achieve said, now Home Transition Advocate for now. the Boston Center for Independent Living. brother also has Stardardt’s) who are legally blind. She is a straight-A She credits e Carroll Center’s student, takes honors classes, and expert staff for showing her the loves history and science. She is way—people like Workforce also very involved in drama and Development Specialist, Marianne acting, andwho runswas alongside Gilmore, recentlyher friends in gym class, and honored for her work byschool the events. She acknowledges some University of Massachusetts things sheSchool. doesn’t do well, like play Medical video games, but she focuses on “e taught and is veryCarroll proud Center of those thingsme that if I stay focused and go aer she does particularly well, like what I want, I can achieve it,” excel at school and being theabest Maura said. She was offered job she can be. She advises anyone as the center’s receptionist, which who challenges “You was isa facing stepping-stone to that, additional have to stand up and employment. “Itfor wasyourself, a great boost push beyond your ”comfort to my confidence, she said.zone.” Elana has developed a set of years and several jobsand rulesMany that are important to her, later, Maura credits e Carroll help her manage her life. “First, Center for changing her life. She’s be respectful of everyone; second, been a successful professional, pick your stuff; and third, do a wife,upand mother, and has lived what you gotta do.” full and independent life. Now Hercontinuing mother Sara says,it“Elana’s she’s to “pay forward” my hero. I see her determination by helping others in her new job as every day. She doesn’t look to a Nursing Home Transition Advocate for the Centerlet for make excuses, andBoston she doesn’t Independent Living. anything stop her forward motion. I have no doubts at all “I know from my own for her future.” experience at e Carroll Center, Elana echoes sentiment that a kind word,that a little laughter, and says quite firmly, “I’ll never give up.” (continued on page 3) 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org UPCOMING EVENTS MESSAGE FROM THE PRESIDENT As I look back on the year, Please accept my best wishes forpast a happy I am grateful for the thousands of and healthy New Year. In 2016, over 5000 friends whoservices have supported us, people received from the Carroll Center for the it Blind. Seniors and whether was sending in achildren, teenagers and adults, were all on provided donation, volunteering a with committee, the skills necessary for them to providing an internship attaintoand maintain independence, and a client, or helping to make the self-sufficiency. I sincerely thank you for world more accessible to people. your We support, generosity, especially couldn’t do ourand important firstwhich connection ework your “My kindness enables with the Carroll without yourfor help! Carroll the Blind was so Center to Center provide these services. INFORMATION DAY APPLE MONDAY Today, more than 70% of working age blind or visually andimpaired old alike. Members of the adults across thestaff U.S.and are clients contributed their artistic talents and unemployed. Fortunately, advances created a wonderful float that was at the in adaptive technology are opening front of the parade. new doors for blind and visually Oneimpaired of the participants was Otoniel O. who individuals. Finding my Independence is profiled in this issue of Focus. He walked you struggling with vision 9:00 Are – 12:00 p.m. problems? Are you wondering what Learning how to use the IPAD (NEW!!) kind of services we offer? 1:00 – 4:00 p.m. Joinhow us attoInformation Day to Learning use the IPHONE takefora tour and findsessions out more. $20 fee one or both Friends and family are welcome. Please bring your personal devices with Information Days will be held on you. Devices will not be provided. WINTER 2015 ToMarch register1st forand a workshop April 5thplease (10-2pm). contact Maureen Foley at 617-969-6200 x225 or [email protected] FREE LOW VISION SEMINARS 15th ANNUAL NEW Do you ever wonder how you could Ashley are just with hisTim, entireMaura family and and he remarked that ENGLAND BRAILLE Shemore credits e Carroll Center’s therapist suggested shehundreds contact get out of your iPhone or it was a humbling and experience three examples ofpositive the of CHALLENGE expert e Carroll Center. staff for showing her the computer, or how proper lighting listening towho cheers from the many in clients have participated Saturday, March 7, 2015 successful because I was really way—people can improvelike yourWorkforce daily living and thousands of strangers who lined the st At e Carroll Center for the one of our job-training programs. – 3:00 p.m. 9:00 We are now in our 81 year as one of the She is like many other Carroll reading tasks? Sign up todayMarianne for FREE ready forour it,” said Maura Mazzocca. Development Specialist, route. Blind goal is to help our clients parade At e Carroll Center, The New England Regional Braille UPCO premiere national providers of services Center clients who have we lostpractice their seminars on low vision devices, “I went into it with an open mind. I Gilmore, who was recently Challenge, a national program of the regainwho theirareindependence – what we preach—more than 22% to persons blind and visually This issuelater of Focus profiles Elana R. vision in lifealso due to macular techniques, best practices with EV was like a sponge—ready to absorb honored forand her work by Institute of America, is athe braille reading ofEdaisha our employees blind or who Braille morning newspaper; impaired. Onethe of our key initiatives is to and L. Elana is are an 8th grader degeneration, glaucoma, or other Bob McGillivray, Certified Lowblind Vision reading and writing contest for and MO everything they sent way. ” using University of Massachusetts APPLE help people between themy ages of 18 and a receives visually impaired, including 40% traveling to school or work; services from The Carroll conditions. “Losing your sightCenter isn’t of visually Therapist. Dates impaired students inare: grades 19:00 – 12:00 p Medical School. 26 learn the necessary skills to become has management participated inteam. the Carroll Teens Learning how t our I ways computer to dofirst-hand homework or pay and through 12. It is hosted annually in early easy. You have to learn new to Maura knows what 1:00 – 4:00 p.m March 3: The Apple of Your Eyes – activebills members of the workforce and be program for the last two years. We can Today, more than 70% of As I look back on the past year, will say that these or adjust keep intotouch with friends; dowholeheartedly Learning how t spring by the Carroll Center, and is open things you’ve previously taken it’s like to a loss of sight. “e Carroll Center taught me working age blind or visually I am grateful for the thousands of Learn about low vision techniques competitive for available positions. $20 fee for one her positive, “takewho charge” to all braille students in the six New staff from members are among the best and cooking dinner for their family all learn impaired adults across the U.S. are friends have supported us, Please bring yo for granted, ” she said. “But fighting Shegoal lostishers when she was 28 that if of Iunemployed. stay focused and go aer getting most from states andthe New York. Our toareduce of due blind Her motto is “I’llI’ve never up.” in a England Fortunately, advances whether itgive was sending you. Devices w performing people ever are just few ofthe thenumber daily tasks that attitude. change makes all thedonation, harder—on to diabetic retinopathy. She was what I inwant, Itechnology can and achieve it,” To register for a adaptive areiPad; opening volunteering your people whoself-confidence are unemployed.and Right now motto is,itand “There’s always a all light on a Participation isiPhone limited contact Mauree worked with, I encourage build lead to Edaisha’s new doors for blindso andplease visually committee, providing an internship x225 or Maure youaand everyone else.to” a client, or helping to makeapply struggling to adjust, when her Maura said. She was offered a job that figure stands at a whopping 70%, after dark tunnel.” early! impaired individuals. the employers to consider hiring independence. April 7: The Importance of 15th ANNU world more accessible to people. which is totally unacceptable. We can as register the center’s receptionist, which please contact SueareMalone To Tim, Maura and Ashley just and How to Use It – ENGLAND a visual impairment We someone will never with give up andWe will do all couldn’t dothat our important work Lighting at 617-969-9200 x204 or three examples of the hundreds of and will do with help. is was a stepping-stone to additional CHALLENG emore goal—for ouryour children without your help! Learn how lighting we in canthe with our program and coming year. outreach clients whoproper have participated in can Saturday, [email protected] The Carroll Center is committed to this “It was aprograms. great success in school, while the goal for outstanding services for all consumers. At e Carroll Center foremployment. the one of ouryour job-training 9:00 – 3:00 improve use of vision.boost mission. We are proud to have a diverse Blind our goal is to help our clients At e Carroll Center, we practice The New Engla TRAINING FOR LEADERS senior citizens is to be safe and ankisyou forand your help and to my confidence, ” she said. Your support critical greatly Challenge, a na regain their independence – Seminars whatbegin we preach—more than 22% staff,happy 20% ofin which are persons with at 10:30 am and are Braille Institute OF LOW their home and the commitment, and warm fornewspaper; readingwishes of ourVISION employees areSUPPORT blind or the morning appreciated. and wr vision impairments. followed by Q&A. Visit the Carroll years and several jobs visually impaired, including 40% of reading traveling to school or work; using aMany GROUPS visually impaire community. For our adults, the a happy 2015. our management team. I out some computer to do homework or pay through 12. It is Store afterward and try later, Maura credits e Carroll Friday, March 27, 2015 This past moretothan staff,world. wholeheartedly will say that these bills or keep in touch with friends; goalOctober, is returning the50 work spring by the C adaptive devices. to all braille stu staff members are among the best and cooking dinner for their9:30 family Sincerely, Center for changing her life. She’s – 2:30 p.m. with optional sightedclients, service dogs, members of the Sincerely, Not only does employment provide England states performing people I’ve ever are just a few of the daily tasks that guide training at 9:00 or 2:00 been a worked successful Boardfinancial and Trustees walked twobut miles Participation is with, andprofessional, Ia.m. encourage all p.m. build self-confidence and lead to independence, also a To make your reservation for apply early! Low vision specialists will explain what employers to consider hiring independence. through the Town of Woburn, wife, and mother, and has lived Toa register plea sense of self-worth and self-respect. someone with a visual impairment Information Day orexam, Low Vision in a low vision both at 617-969-920 e goal for our childrenhappens is participating in the Woburn Host Lions the coming year. fullSeminars andin independent life. Now clinical There willFoley be sue.malone@ca success in school, while the goal for and functional. contact Maureen Joe Abely, President Club Halloween Parade. We were greeted Greg she’s continuing to “pay it forward” senior citizens is to be safe and ank you for your help and Donnelly information some of the atabout 617-969-6200 or new TRAINING happy in their home and the commitment, and warm wishes for OF LOW VI with enthusiastic shouts of support, about treatments available, discussion in her new job as President and CEO GROUPS [email protected] community. For our adults, by the helping a happyothers 2015. heartfelt clapping, and smiles from young ank you for supporting living aids, and time to share ideas Friday, Ma goal is returning to the workdaily aworld. Nursing Home Transition Sincerely, 9:30 – 2:30 p.m Not only does employment provide about coordinating support groups. A e Carroll Center. guide training a Advocate for thePlease Boston Center for financial independence, but full also aday is planned. bring lunch. vision spec For for more about our and self-respect. Thank you for supporting Low The 5th Annual Carroll Center theinformation Blind senseall of self-worth happens in a lo Independent Living. Beverages will be provided. clinical and func programs for the visually impaired or to Walk for INDEPENDENCE The Carroll Joe Abely,Center President for the Blind.information abo donate treatments avai ~ featuring the popular 1-mile dogvisit walkus~at www.carroll.org. To register please contact Debby King know from myabout own ank you for supporting For“Imore information all our daily living aids at 617-972-7376 or about coordina e at Carroll Center. Save the date - May 21 - for this year’sAbig event. of experience e Carroll Center, publication programs for the visually impaired orday is plann full For more information about all our [email protected] Beverages will b that a kind word, littleorlaughter, at www.carroll.org latestCenter details. Thethe Carroll for the Blind “TheCheck Carrollback Center taught me that if I for stay focused and go after what I want, to programs donate visit us at aimpaired www.carroll.org. for the visually to donate visit us at www.carroll.org. To register plea I can achieve Walk it,”Maura a Nursing Transition Advocate for withsaid, yournow dogs, friends,Home family at 617-972-737 publication AApublication of of Debby.King@P the Boston for Independent Living. 770Center Centre Street • CCB Newton, MAand 02458-2597 • 800-852-3131 or 617-969-6200 (P) (continued • www.carroll.org on page 3) and walk with clients staff! The Carroll Center for the Blind The Carroll Center for the Blind 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org Edaisha L. wrote this essay in 2016 when she was a senior at Common Ground High School in Connecticut. She is currently a client at The Carroll Center (CCB), learning independent living skills, taking computer training classes, and living with other blind and visually impaired clients. “I am less alone at The Carroll Center and I’ve learned to open up more. Since being at CCB, I am less worried about what other people say.” This essay was part of Edaisha’s senior leadership portfolio. It is reprinted with her permission. At the age of 12, I was diagnosed with Keratoconus. Keratoconus is a condition in which the clear tissue on the front of the eye (cornea) bulges outward. This condition causes you to rapidly lose your vision. It“My wasn’t I wrotewith my first first until connection e senior writing essay when I so Carroll Center for the Blind was successful because accepted that itI iswas notreally a disease, ready it,” said Maura Mazzocca. it’s for a condition. I started to gain “I went into it with an open mind. ownership of my condition. I I wasstarted like a sponge—ready to absorb to gain ownership of my everything they sent my way. ” disability. My whole freshman year andknows part of my sophomore Maura first-hand what my to condition it’s year, like toI hid adjust a loss offrom sight. family because Sheeveryone lost hers besides when she was 28 due to diabetic retinopathy. She wasat I was terrified to be looked struggling to adjust, when her differently. It didn’t take a genius to notice that my vision was bad. I just didn’t want people to know how severe it was. What I’ve learned from this is that I never gave myself the credit that I deserved. I kept my struggles with my poor vision to myself instead of seeking help. But now I believe in myself. I constantly remind myself that there is asuggested light at the of my therapist sheend contact darkCarroll tunnel. e Center. Although my eye condition She is like many other Carroll was hard to write about and Center clients who have lost their embrace, I did it. I demonstrated vision later in life due to macular commitmentglaucoma, and responsibility degeneration, or other by taking action in my life and conditions. “Losing your sight isn’t realizing that if I kept hiding myto easy. You have to learn new ways condition, I wouldn’t get taken do things you’ve previously anywhere. for granted,” she said. “But fighting change it all thehow harder—on I’mmakes still learning to avoid you and everyone else.”when it shutting people out comes to my condition since I’m just now accepting and acknowledging that I have one. WINTER 2015 Finding my Independence “The Carroll Center taught me that if I stay focused and go after what I want, I can achieve it,”Maura said, now a Nursing Home Transition Advocate for the Boston Center for Independent Living. She credits e Carroll Center’s expert staff for showing her the way—people like Workforce Development Specialist, Marianne Gilmore, who was recently honored for her work by the University of Massachusetts Medical School. “e Carroll Center taught me that ifI learned I stay focused go aer What aboutand myself is what I want, I can achieve it, ” that I was just afraid. I was afraid Maura said. She was offered a job that I would be judged the way as the center’s receptionist, which I judged myself about my was a stepping-stone to additional condition. Now am starting to employment. “ItI was a great boost tell people about my condition. to my confidence, ” she said. They support me, not out of pity Many but out of years love. and several jobs later, credits to ethe Carroll MyMaura contribution Center for changing life. She’s community was givingher others with been a successful professional, disabilities a voice. Some people wife, and mother, and has lived a embrace their disabilities, some full and independent life. Now deny sometoare comfortable she’s them, continuing “pay it forward” talking about it and some arejob as by helping others in her new embarrassed by it. Being a Nursing Home Transition someone wasBoston embarrassed Advocatewho for the Center for by their condition, overcoming Independent Living. that embarrassment and speaking “I itknow frompeople my own about can give experience at e Carroll Center, motivation, strength and courage. that a kind word, a little laughter, (continued on page 3) 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org I Really Enjoy Helping My Community Anyone who calls the Metrowest Transit Authority in Framingham to schedule a ride will likely be greeted by Otoniel O. (OT). With his deep voice and professional manner, OT makes sure that the caller is picked up and taken to their destination in the safest, most efficient way possible. “I want to provide the best customer service I can to those “My first connection with e who call and rely on Metrowest Carroll thewhere Blind was TransitCenter to get for them theyso successful because I was really need to go. I might take a call ready it,” saidwho Maura Mazzocca. fromfor a person requires “Idialysis went into it with an open or from someone mind. who I was like a sponge—ready to absorb must see a loved one in the everything they sent my way.” hospital. My work is important to what meMaura and I knows want tofirst-hand do the best job it’s like to adjust to a loss of sight. She lost hers when she was 28 due to diabetic retinopathy. She was struggling to adjust, when her I can each and every day. I really enjoy helping my community.” Whatever the need, OT is ready, willing and able to help people get to where they need to go. Both OT and his older sister suffer from a form of blindness called Albinism. His other two sisters are not affected by the disease. OT’s mother first noticed his eye problem when he began therapistOTsuggested shehis contact school. recalls that Dad e Carroll Center. and left it to OT gave him a bicycle, to figure ride.Carroll After a She isout like how manytoother few surprise a tree Center clientsmeetings who havewith lost their and bumpy the bicycle vision later insidewalk, life due to macular was mastered.glaucoma, “Neither or of other my degeneration, parents put“Losing any limits onsight me.isn’t conditions. your easy. You have to learnme newfrom ways to They didn’t dissuade do things you’ve previously taken trying anything.” for granted,OT ” she said. his “Butsister fighting credits for changeencouraging makes it all the harder—on him to go to you and everyone else.” college. He attended Salter College in West Boylston and received a Certificate in Culinary Arts. He still cooks as a hobby, but feels his real calling is to help others. “I just wanted to be like everyone else. It is a process. It took seven years for me to come to terms with my disability. WINTER 2015 Finding my Independence She credits e Carroll Center’s expert staff for showing her the way—people like Workforce Development Specialist, Marianne Gilmore, who was recently Ithonored is a fightfor within. Attending her work by the The Carroll Center for the Blind was University of Massachusetts aMedical necessity for me to help me School. break out of my preconceived “eofCarroll taught me notions what ICenter could and that ifnot I stay and gothe aer could do.focused I just needed what I want, I can achieve it,” opportunity.” Maura said. She was offered a job “The Carrollreceptionist, Center helped as the center’s which me myself fortothe wasprepare a stepping-stone additional business world, employment. “It“he wassaid. a great boost “Itolearned how to network, my confidence,” she said. interview, meet with employers, years and several and Many perfect my skill set. Youjobs later, the Maura credits eneed Carroll need tools and you to Center for changing her life. She’s master technology. The Carroll been a successful professional, Center helped me and withhas all lived of a wife, and mother, this.” full and independent life. Now she’s continuing to “pay it forward” by helping others in her new job as a Nursing Home Transition • Help a blind personAdvocate become active for more the Boston Center for Independent Living. • Receive a tax-deduction DONATE • We do all the work “I know from my own YOUR experience at e Carroll Center, • Simple that anda kind Easyword, a little laughter, “The Carroll Center taught me that if I stay focused and go after what I want, VEHICLE ! Home Transition Advocate I can achieve it,”Maura said, now a Nursing for Call 617-969-6200 today the Boston Center for Independent Living. (continued on page 3) 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org
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