A synthesis of six related TEACCH-based outcome studies for Autism Spectrum Disorders (ASD) Paul Probst, Department of Psychology, University of Hamburg Symposium paper presented at the XXX International Congress of Psychology, Capetown, South-Africa, 22-27 July, 2012 [Symposium Symposium "Evidenced-based "Evidenced-based interventions interventions for for Autism Autism Spectrum Spectrum Disorders Disorders (ASD): (ASD): International International concepts concepts and and outcomes", outcomes (Convener: Convener: Paul Paul Probst) Probst] update: 28.11.2012, [email protected] , Homepage: http://www1.unihamburg.de/Paul.Probst/ Email: [email protected] THEORETICAL BACKGROUND 1. State-of-the-art autism concept Autism-Spectrum Disorders (DSM 5/ ICD-11-Draft, 2010) Deficits in Social Communication and Interaction Restricted Patterns of Behavior, Interests, and Activities Onset in early childhood (1-3 yr.) Etiology: Neurodevelopmental disorder with strong genetic influencing early brain development; component Prevalence: total: 0.4 % [conservative estimation] Tertiary prevention: i. e. preventing disability progression and associated suffering by alleviating behavioral symptoms and strengthening compensatory abilities; 2. Caregiver-Stress-Coping- Tertiary Prevention Model (adapted from Pakenham et al., 2005; Antonovsky, 1993: "Sense of Coherence"/ SOC) INDIVIDUAL with ASD: TERTIARY INTERVENTION: * Enhancing abilities Individual (ASD)-Focused (Need for SOC) * Reducing obstruct. deficits Caregiver-Focused (Need for SOC ) DEMANDS & STRESSORS Caregiver Adaptive RESSOURCES APPRAISAL of Stressors Caregiver COPING: Problem-/ EmotionFocused Family/ Classroom/ Group home/ Workshop/ FUNCTIONING 3. CONCEPT of TEACCH Structured Teaching, & Educational Guiding Visually structuring (e. g. visual schedules, choice boards) Clear verbal and nonverbal directions/ instructions Prompting and behavior shaping Consequence-based interventions (natural reinforcements, mild punishments, such as strict "No") Social-communicative, self-management and daily living skills training Professional-Caregiver Cooperation International Program Dissemination professional training; AIMS OF THE SYNOPSIS STUDY: Can key components of the TEACCH program be generalized to the situation of individuals with ASD in German-speaking countries in terms of effectiveness and social acceptance METHODS Participants: children, adolescents and adults with ASD; parents teachers and educators als cargivers Instruments: behavioral observation, questionnaires, interviews Data analysis : quantitative and qualitative procedures RESULTS: Study 1 - Topic - Design Single subject social communication training study in a residential home. - Pre (baseline)-Post-design, Participants - 7-yr-old girl (L) with ASD and severe intellectual disability, averbal, self-injuring behaviors (PICA); - TEACCH-trained therapist (master's student) (1) Enhancement of social communication; (2) Reduction of challenging behavior; (3) teaching a valid autism disability concept to caregivers (1) 12-session-communication training using structured teaching methods (schedule, choice-board management; (2) oral discussions with caregivers (1) video-based systematic behavior observation; (2) Behavior Problems Inventory (BPI); (3) qualitative interview data analysis Aims of intervention Intervention methods Outcome measurement Study 1-Figure 1 Pictorial Schedule for L 1= Foto & Name-Card for L 2= Go-to-your-WorkPlace-Card 3= Recreation-Card= "Go to your Choice-Board!" Study 1-Figure 2 Two ElementPictorial Schedule for L [see bottom line] * Listening-to-Favourite-Music-Card; * Flapping-Glove-Card (favourite activity) RESULTS: Study 1-continued: OUTCOMES Communication training Improved autonomous and spontaneous management of picture schedule and choiceboard, compared with baseline Challenging behaviors (PrePost) (1) Reduced problems in BPI-Full-Scale (2) Reduction in BPI-item "Pica" from "daily" to " monthly "; (3) Reduction in BPI-Item "Biting/ Cruel" from "weekly" to "monthly" Positive evaluation of the 12-session training intervention as helpful and relieving: (a) child less aggressive, more predictable and communicative; (b) better understanding of functional aspects of challenging behaviors Social acceptance by caregivers RESULTS: Study 2 -Topic - Design Participants Aims of intervention Intervention methods Outcome measurement Outcomes of a 3 -year TEACCH-based intervention in a residentialvocational setting Pre-Post [retrospective]-design - Three male adults with ADS and intellectual disability; - TEACCH-trained staff supervisor and educators (1) Reduction of disruptive behaviors and enhancement of social communication abilities; (2); social acceptance of the TEACCH approach by residential-vocational staff (1) Implementation of TEACCH components (e. g. schedules, work systems) for individals with ASD; (2) Education, training & supervision of staff members (1) Matson Evaluation of Social Skills [...] (MESSIER) (2) Developmental Behaviour Checklist f. Adults (DBC-A (3) BPI, (4) TEACCH evaluation caregiver interview Study 2: Figure 1: Individualized Work system for person T: T follows a Left-to-Right Routine: (1) Taking working materials from the shell on the left (organized in a TopDown-Order); (2) carrying out the task (e. g. matching picture cards) on the desk; (3) putting the completed task to the box to his right Study 2: Figure 2: Typical matching task for T RESULTS: Study 2-continued: OUTCOMES Disruptive and Challenging behaviors (PrePost) (1) DBC-A-Disruptive: significant decrease for all three individuals: M-RCI (Reliable Change Index) = 2.43; (p <0.05) Evaluation by caregivers Overall, positive evaluation: (a) report enhanced communication between caregivers and clients with ASD; (b) more independence and autonomy of clients; (c) less aggressive beahviors in T. (d) criticism: possibility of reduced flexibility (2) DBC-A-Total-Problem-Behavior: significant decrease (MRCI= 2,55); RESULTS: Study 3 - Topic - Design Outcomes of education and skills group parent training for ASD Pre-3-mo-Follow-up-design Participants (1) 24 parents (83% mothers) of 23 children with ASD (M-age= 8.9); trainer and assistant trainer with TEACCH /ABA expertise Aims of intervention (1) Teaching an adequate concept of ASD ; (2) Enhancing parents' emotional and social experiences by parent-to-parent communication; (3) Teaching structured educational strategies & skills Intervention methods (1) 3-session small group training (in total 24 h); teaching methods included lectures, group discussion, video and in-vivo modelling; role play, assignment of homework; Outcome measures (1) 23-item-Parent Evaluation of Training Effects on Daily Family Life Questionnaire; (2) Home Diary Experience Questionnaire (Follow-up) RESULTS: Study 3-continued-a: Figure 1 Results of the follow-up "Parent Evaluation of Training Effects on Daily Family Life Questionnaire" 100% 97% 90% 86% 84% 80% 76% 74% 68% 72% 70% 60% 50% 40% 30% 20% 10% 0% m ea tt ul or lpf pp he su rs to he fu l er ac elp sf te h an as l ng Tr s ni l pfu nt ai e re tr e th Pa cal at ep ti nc cli m ac co Pr y l th i m al m is fa he ut A n t ill s ed e ov ar sk P pr al Im nt ed ov are p pr Im ed ov pr Im Effects of parent group training on family life Note: The y-coordinate describes the percentage of parents evaluating the effects of the parent group training as "moderately" or "strongly positive" (with scores of 2 or 3 on the 3-point Likert scale); the xcoordinate includes seven categories of reported effects on daily family life RESULTS: Study 3-continued-b: OUTCOMES Parent Evaluation of Traing Effects Questionnaire Home Diary Experience Questionnaire The great majority of parents (about 70-90%) report improved parental skills in daily family life improved mental health of parents improved family climate positive effects of exchanging experiences with other parents (parents-as-teachers concept) experienced helpfullness of both theoretical (autism disability concept) and practical parent training components beneficial transfer of training elements to child support team 12 of 16 responding parents (75%) reported one or more implementation of structured teaching methods ( picture schedules, physical structure, task organization) RESULTS: Study 4 - Topic - Design -Outcomes of a TEACCH-based teacher training program for ASD -- Pre-Post/ Follow-up design Participants - 10 special school teachers teaching students with intellectual disabilities and ASD in a contained classroom setting - 10 special school students with ASD, mean age = 10 yrs. Aims of intervention -Child-related effects: reduction of child behavioral symptoms in classroom - Teacher-related effects: (a) Reduction of teachers' stress level; (b) Implementing structured learning strategies in classroom Three half-day teacher group training plus individualized teacher support in classroom (average amount of support: 3h). Training was carried out within two small group settings - Classroom Child Behavioral Symptom Questionnaire; School Situation Q. Outcome measurement (Barkley, 1987); Classroom Teachers' Stress Reaction Q.; Implementing Structured Learning Strategies in Every School Life Q. Intervention RESULTS: Study 4 continued-a: Figure 1 48-Item-Classroom Child Behavioral Symptom Questionnaire: Pre-Post outcomes: mean overall score 106 105 104 103 102 101 100 99 98 97 Pre Post Classroom Child Behavioral Symptom Scale Pre-Post effect size d = 0.66 T- test for repeated measures, p<0.05 RESULTS: Study 4 continued-b: Table 1 48-Item-Classroom Child Behavioral Symptom Questionnaire: Pre-Post outcomes on item level Behavioral Symptoms Pre-Post effect sizes (d) [ttest] “Child does not do as he or she is told and does not accept rules and respect limits" 1.28 [p<0.01] “ ... has little motivation to find out or do something new " 0.69 [p<0.05] “ ... plays with light switches" 0.63 [p= 0.05] RESULTS: Study 4 continued-c: Figure 2 16-Item School Situation Questionnaire (SSQ, Barkley, 1987): Overall Intensity score [5-point Likert scales: 1= "situation (e.g., "group work", "gym" or "toilet")= not problematic", 5= "... is highly problematic"] Effect size d= 0.54, t-test: p= 0.10, (=5!) 3 2,5 2 Pre Post 1,5 1 0,5 0 School Situation Questionnaire RESULTS: Study 4 continued-d: Figure 3 48-Item-Classroom Teachers' Stress Reaction Questionnaire: Pre-Post-Outcomes: M-overallscore 98 96 94 92 90 Pre Post 88 86 84 82 Classroom Teachers' Stress Reaction Scale Pre-Post effect size d = 0.67 [ttest, p<0.05] RESULTS: Study 4 continued-e: Table 2 48-Item-Classroom Classroom Teachers' Stress Reaction Questionnaire: Pre-Post outcomes Teacher stress reactions related to behavioral symptoms Pre-Post effect sizes (d) [t-test] “Child does not do as he or she is told and does not accept rules and respect limits" 0.75 [p<0.05] “ ... requires a teacher only for him- or herself during 0.63 [p= 0.05] class" “ ... does not show any interest for the world around him or her" 0.63 [p= 0.05] RESULTS: Study 4 continued-f: Figure 4 Implementing Structured Learning Strategies in Everyday School Life Questionnaire: Outcomes Semi-structured questionnaire with open-ended response sections Results: 9 of 10 teachers applied ≥ 1 structured learning strategy [over period of > 2 months] M= 1.8 strategies [SD= 1.5] RESULTS: Study 5 - Topic - Design -Outcomes Participants - Aims of intervention Social- Comm. Intervention of a TEACCH-based social communication enhancement intervention for individuals with ASD -- Descriptive-observational study 3 individuals with ASD and Intellectual Disability (2 boys, both aged 12.; 1 woman, aged 25); - 3 student training facilitators (1 B.Sc.-level/Psychol., 2 BA-level/ Ed.); - 3 parents (mothers) ; - program supervisor (PP) -Enhancing social-communicative functioning during programmed play activities -- Social acceptance of the program's goals, methods and effects by parents Comprising 21 centre-based weekly one-hour sessions including both small group and one-to-one settings. : Component 1: Using Structured Teaching (e.g. visually structuring the individuals environment, such as delivering schedules) RESULTS: Study 5-continued-a SocialCommunicative Intervention Component 2: Using play activities including closed-ended functional play (e. g. puzzles); open-ended functional play (e.g. playing a rhythm instrument); closed-ended cooperative play (e.g. Picture Lotto) open-ended cooperative play (e.g. improvising in playing instrument) symbolic play (e.g. talking with toy animals) Parent-professional discussion group Comprising 3 two-hour sessions with parents, facilitators and program supervisor. Activities included Presentation of the program in terms of aims and methods; Exchange of autism-related information and experiences; Presentation of selected video sequences showing childrens' activities during program followed by discussion on practical applicability of Structured Teaching and some play activities RESULTS: Study 5-continued-b: Figure 1 Example of delivery of "visually structuring": picture schedule for S. [woman with ASD and severe intellectual disability, aged 25] Note: The picture schedule, attached in the small group room is to be followed vertically from top to bottom. The schedule includes: (1) name card and (2) photo indicating the participant S of this schedule; (3) a (coloured) card containing table and chair symbolizing a request for movement: "Go with your facilitator to the one-to-one-room"; (4), (5) and (6) three cards in the colours of red, green and blue (shown as grey/white, white, grey) indicating three different play activities to be performed together with her facilitator. S finds the play materials in three boxes on which corresponding and identical coloured symbol cards have been attached; (7) the next (yellow) card with the smiley symbol directs S to a box containing her favourite play activities from which she can select one; (8) the last card functions as a directive for movement ("transit card") and tells S to go to the small group room and participate in musical activities there (singing popular songs accompanied by guitar). The corresponding identical card is attached on the outside of the group room door. (9) The movable arrow indicates what play task (4 to 7) is now active.; RESULTS: Study 5-continued-d Outcome measures Systematic Child behavioral observations (based on videotaped therapy sessions; using "partial interval time-sampling method") for 4 variables: Cooperative Behavior (including, for example, behavioral criteria such as "Participant follows directions", "participates in social routines and games"; "acts together with another person with sharing common focus"); (2) Non-Cooperative Behavior (e.g. "shows challenging behavior"); (3) Spontaneous Communication ("initiates communicative situation by verbal expression or nonverbal expression, such as taking hands of facilitator); (4) Responsive Communication ("reacts to another person verbally or nonverbally") Parent Program Evaluation Questionnaire (adapted from Mattejat & Remschmidt, 1998): RESULTS: Study 5-continued-c: Figure 2 Mean percentage of Social-Communicative Behaviours 80,00% 70,00% 60,00% 50,00% 40,00% 30,00% 20,00% 10,00% 0,00% small group one-to-one R C om . om . m B p. . ns .C nt po es o Sp . eh oo B -C on p. oo N C m . Note: Percentage (%) of 15-second observation intervals in which participants showed (1) Cooperative, (2) NonCooperative Behaviours ; (3) Spontaneous (Verbal / V or Nonverbal/ NV) Communication ; (4) Responsive (V or NV ) Communication RESULTS: Study 5-continued-d: Table 1 Results of the 11-item Parent Program Evaluation Questionnaire [selected items], 4-point Likert scale [0= I strongly disagree, 4= I totally agree] Item M (SD) (1) Overall , the program was helpful for my child 2.7 (.58) (2) The facilitator who implemented the program expressed empathy for the problems of my daughter/ son and the resulting demands on the family (8) I felt sufficiently involved in the program 4.0 (.00) (10) I have got a deeper understanding of my child's abilities and deficits through contacts with the facilitatot by discussion and watching video samples of program sessions 2.7 (.58) (11) Overall, I am satisfied with the program 3.7 (.58) 4.0 (.00) RESULTS: Study 5-continued-e Child-related Outcomes Parent-related outcomes -Overall, the results (see Figure 2) suggest that beneficial settings were established in the social communication enhancement program which enabled the individuals with autism to show more social-cooperative and communicative behaviours than they usually show within the family, and thus substantially exceeding the parent-reported informal baseline. - All three clients showed a wide range of social communicative behaviours, participating (a) in functional, social and symbolic play of different kind and level, and (b) in social routines of following schedules and visually structured learning system (cf. Figure 1). Parent-Professional Relationship quality was very positive, with a mean of 3.9, the Effectiveness of the program intervention was also evaluated positively, but to a lesser extent (M = 2.6). The Global evaluation of the program was clearly positive, with a mean of 2.9. The high program satisfaction is reflected by the mean rating of 3.7 (item 11). RESULTS: Study 6 - Topic - Design - Outcomes of a TEACCH-based child-parent in-home training - Descriptive Pre-Post-Follow-up single subject study Participants 5-yr-old boy with ASD, averbal, normal visuospatial intelligence Aims of intervention (1) Enhancement of functional communication; (2) Reduction of challenging behavior (aggression, temper tantrums; (3) Promotion of elementary verbal skills (naming); (4) parent education & training; (5) teacher support; (5) broad-spectrum parent support (1) 20 in-home child and parent sessions (à 3h= 60h) over 22 mo; (2) Broad-spectrum parent counselling (10h); (3) classroom visits (15h); (4) interactions with community agencies (10h, e. g. therapist expert reports); Video-based Behavioral observations; behavioral observation inventories, questionnaires, standardized tests (Peabody Picture Vocabulary Test) Multimodal interventions Outcome measurement RESULTS: Study 6-continued-a: OUTCOMES Child Parent Teacher (1) Improved functional communication (nonverbal and verbal, e.g. requesting, rejecting); (2) acquisition of low-level verbal abilities (e. g. naming, expression of 2-3-word phrases, enhanced verbal comprehension); (3) improved behavioral functioning (less aggressive, less vocal stereotypies, more on-task behavior in preacademic and play activities); (4) successful transition from preschool to primary school, attending an inclusive class with full-time aide; (1) Implementation of structured teaching in daily life; (2) enhanced quality of the parental autism disability concept; (3) positive evaluation of in-home training (1) Implementation of structured teaching in classroom; (2) enhanced quality of the teacher autism disability concept Community (1) Provision of social support (e. g. social welfare benefits); (2) assisting parents in school placement and transition issues; (3) allocation of classroom aide ; CONCLUSIONS Overall, the results of all six studies indicate evidence for positive outcomes of TEACCH-based interventions across multiple individuals, ages, settings and outcome measures Limitations: (1) threats to internal validity (sample size, lack of control groups); (2) threats to external validity (selective samples, single-study) Overall, TEACCH-based interventions: (1) lead to clinically and educationally relevant effects across different settings; (2) show sufficient social validity across different caregivers; (3) support the assumption that they are also practicable in German-speaking countries, and compatible with local health care interventions Further research is urgently needed, in particular for controlled replication studies Thank you for your attention! Acknowledgement to Collaborators: Tobias Leppert, Ph.D; M.S; Florian Jung, M.S; Jan Email: [email protected] Micheel, M.S; Iain Glen, M.S; Petra Steinborn, M.Ed. For related publications see: Petia Gewohn, M.S; Christoph Faecks, M.S; Stefanie Brakemeier, M.S; Marzena Radzij, M.S; Julia Spreitz, MS; Probst & Leppert (2008): Brief report: Outcomes of a teacher training program [...]. Journal of Autism & Dev.elopmental Disorders, 38, 1791-1796. Parents, teachers, and educators (participants) Children, adolescents and adults with ASD (participants) Probst, Jung, Micheel & Glen (2010). Tertiary prevention [...]. Life Span and Disability, 13 (2), 129-167 Probst & Glen (2011). TEACCH-based interventions for families [...]. Life Span & Disability, 14 (2), 111-138. See Homepage: http://www1.unihamburg.de/Paul.Probst/ for download
© Copyright 2026 Paperzz