Every Move Counts, Clicks and Chats Jane Korsten www.everymovecounts.net [email protected] Everyone communicates in some way. It is our challenge to recognize that communication and respond to it! Every Move Counts is the result of a three year innovative research grant funded through the National Institute for the Neurologically and Communicatively Disordered. (NIH) It represents a synthesis of the research in the areas of: Communication Learning theory Sensory integration Vision Every Move Counts was ‘no tech’. Every Move Counts, Clicks and Chats is an expansion of the original work and addresses switch use and voice output. It includes: Relevant research Assessment strategies Implementation strategies Flow charts to support implementation Goals and objectives Evaluation of effectiveness formats Positioning suggestions Parent guide - English and Spanish versions Glossary of terms Resource list Relevant Research “Sometimes the problem ain’t so much what we don’t know as what we know that just ain’t so” Will Rogers Piaget’s Sensory Motor Stages Parallel development Significance of behaviors primary circular reactions - finger flicking secondary circular reactions - banging, shaking, hitting objects tertiary circular reactions - dropping objects Piaget continued: Communication begins to emerge around stage 4 Meaningful expressive language occurs in stage 6 VanDijk & Sternberg communication vs. language “Communication” is the message. “Language” is the symbol system used to communicate the message. Language prerequisites: Eye contact Attention to task Receptive vocabulary Musselwhite & St.Louis Communication prerequisites: Able to: separate self from the environment understand that there is something to do to exchange information with someone Communication prerequisites continued: understand that there are things about which to communicate understand that there are people with whom to communicate Contingency Intervention Project infants quickly lose interest in an environment they can never hope to control maternal stimulation is un-related to IQ; responsiveness is significantly related Contingency Intervention continued: Co-occurrence is essential in developing the concept that the world is controllable; those with physical/ sensory/motor differences seldom, if ever, experience cooccurrences; 100,000 co-occurrences need to be detected, associated and remembered Contingency Intervention continued: Infants under 4 months of age learn to associate their movements with a consequent even A delay of more than 2 seconds between movement and consequence and infants as old as 9 months do not learn 3 month old infants remember response consequence associations for at least 1 week and learning can be reactivated for up to 3 weeks Baby Brains Baby brains get bored too! Infants learned switch use by exploration and then quit using the switch when they got tired of the consequence. Changing the consequence resulted in renewed switch use. Sensory Integration Improvement in MLU and receptive vocabulary have been documented as a result of vestibular stimulation Sensory Integration continued: Reduction in self-stimulatory and self-injurious behaviors have been documented as a result of vestibular and tactile stimulation Behavior modification programs often result in a high rate of replacement behavior and a high rate of recidivism Sensory Integration continued: Less than 1% of seizure prone individuals are adversely affected by vestibular stimulation Vestibular stimulation is the kind of stimulation that kids enjoy Assessment inherent weaknesses of formal assessment for the target population language based commensurate scores don’t reflect commensurate abilities identify disabilities rather than abilities focus on “typical” development result in teaching to test do not detect small increments of growth are static Every Move Counts, Clicks and Chats Assessment: communication based not developmental identifies abilities rather than disabilities focuses on skills relevant to building a functional communication system motivating targets current communication appropriate symbol system response modes detects small increments of growth is dynamic and ongoing Every Move Counts, Clicks and Chats Assessment includes: Sensory Assessment on-going probes Communication Survey Clicks / switch use evaluation Chats / voice output strategies Imagine Sensory Assessment continued: scoring and interpretation sensory preferences motor abilities current communication General guidelines: Two can play Play the table as it’s laid Video if possible No talking, just the facts No arguing, just problem solving We tend to be uncomfortable with silence. We are a culture of clutter and clatter. If the television is not on, we are lonely. If the other person is not talking, he or she must not like us. If the radio goes silent for more than ten seconds, we are convinced that it’s gone dead. Silence is a decision to keep one’s mouth shut and to listen with the heart. Ron Wooten Green Sensory Assessment steady state no social interaction scoring 0 = no response 1 = reactive / reflex 2 = proactive / purposeful age-appropriate? - customized Sensory Assessment continued: Items: vestibular proprioceptive tactile visual olfactory gustatory auditory Insert 3 tastes of one gustatory item when the symbol (spoon) appears. Enter score on #7. 1. vestibular – Provide movement for the time indicated for the activity and then pause for 5 seconds. Record response. Note: Disconti nue if blanching, gagging or seizure activity is observed. position:______ ________ _____ stimulus side to side (10 seconds) front to ba ck (10 seconds) rota ry (5 seconds) up and down (5 seconds) pre-task condition: _____________ ________ __ response levels trial 0 1 2 response description 1 2 3 1 2 3 1 2 3 1 2 3 score: _____ of _____ = _____% 2. proprioceptive Ğ provide stimulus for 10 seconds and then pause for 5 seconds. Record response. position:______ ________ _____ pre-task condition: ________________ response levels stimulus trial 0 1 2 response description 1 2 3 1 2 3 score: _____ of _____ = _____% 3. tactile ĞProvide stimulus for 10 seconds and then pause for 5 seconds. Record response. Note: Do not apply stimulus to skin with a bruise, wound or rash. position:______ ________ _____ pre-task condition: _____________ ___ response levels stimulus trial 0 1 2 response description 1 2 3 1 2 3 score: _____ of _____ = _____% 4. visual ĞMove stimulus through central visual field and all four quadrants (2-3 seconds per quadrant) and then withdraw from sight for 5 seconds. Record response and describe any differences across visual field quadrants under the corresponding column. Note: It is impo rtant that sound not accompany the visual presentation. Do not use stro be or flashing lights. position:______ ________ _____ response levels stimulus pre-task condition: _____________ ___ quadrants trial 0 1 2 UL UR LL LR C 1 2 3 1 2 3 score: _____ of _____ = _____% response description 5. auditory ĞDuring each trial , present sound at midline, behind and slightly above the head. Allow 10 seconds for music and 3 seconds for noise makers. Pause for 5 seconds. Note: It is impo rtant that movement within the visual field not accompany the sound. position:______ ________ _____ pre-task condition: _____________ ___ response levels stimulus trial 0 1 2 response description 1 2 3 1 2 3 score: _____ of _____ = _____% 6. olfactory ĞTo differentiate between reflexive and purposeful responses, pass an unscented item under the nose for 3 seconds. If response to scented and unscented items is the same, the response is most likely reflexive (level 1). Score response made within 3 seconds of presentation or removal while allowing 20 seconds between presentations. Note: Consider allergies and fragrance sensitivity. position:______ ________ _____ pre-task condition: _____________ ___ response levels stimulus famili ar novel trial 0 1 2 response description 1 2 3 1 2 3 score: _____ of _____ = _____% 7. gustatory – Provide taste of food. Score response made within 5 seconds and then allow additional time necessary for food to be consumed. Note: This item should not be admin istered if individual is NPO (nothing by mouth). Consider suckers for individuals who can taste but do not have the oral motor c ontro l needed to eat. Allow self-feeders to set own interval. Do not force consumption of food that is rejected. position:______ ________ _____ pre-task condition: _____________ ___ response levels stimulus sweet sour salty bitter pungent astringent trial 0 1 2 response description 1 2 3 1 2 3 1 2 3 1 2 3 1 2 3 1 2 3 score: _____ of _____ = _____% Summary: Sensory: Enter the % of points scored in each category and indicate whether ‘2’ responses communicated pleasure (+) or displeasure (-). Modality Subscore vestibular tactile proprioceptive visual olfactory auditory gustatory Preferences: Enter the most preferred sensory and most non-preferred sensory categories and corresponding physical responses: preferred sensory 1 2 3 A (voice, affect, eye gaze) B (head) C (extremities) D (mobility) non-preferred sensory 1 2 3 A B C D (voice, affect, eye gaze) (head) (extremities) (mobility) questions What does she like? What was the ‘AHA!’? How did she communicate that? What was the motor ability she demonstrated in the context of her favorite activity? What are your questions? What don’t you like? What differences of opinion do you have? probes gather more information answer questions settle disagreements Probes: date: _____ stimulus comments: position:____________ ____ response levels trial 0 1 2 1 2 3 4 5 pretask condition: _________ _______ response description Communication assessment EVERYONE communicates in some way. Recognize how the individual communicates NOW in order to respond to, expand and refine the current system! name: _________________________ date:_____________ completed by: _____________ relationship to individual: _________ Directions: This checklist may be completed based on the examiner’s knowledge of the communicator or by interviewing the parent or primary care giver. Circle the number that best describes the means by which the individual communicated. Give examples of gestures, signs, symbols or words under ‘comments’. 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 1. protests through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 2. demonstrates disco mfort or pain throug h: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words 4. spontaneous use of any of the above comme nts: 8 13 18 6 5 12 16 4 2 10 15 2 never rarely sometimes almost always 3. indicates hunger or thirst throug h: 0 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 4. responds to removal of reinforcer throu gh: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 5. indicates desire for more through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 6. indicates wants and needs (other than those listed above) through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 7. indicates “yes” a nd “no” through: 0 0 0 sometimes rarely never with sha ping or physical prompting when presente d verbally and accompanied by a sign or gesture 3. when presente d verbally only with no repeti tion comme nts: 1. 2. 3 6 2 4 1 2 0 0 11 9 7 0 almost always 8. responds to requests through: 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 9. demonstrates attention to people throu gh: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 10. demonstrates attention to activity through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 11. responds to social interaction through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 12. initiates social interaction through: 0 0 0 1. change in affect, vocalizations or eye gaze 2. gestures 3. symbols, signs or words comme nts: 8 13 18 5 12 16 2 10 15 never rarely sometimes almost always 13. seeks attention through: 0 0 0 Enter sum using only the highest score on items 1,2, and 4-13 (item #3 may have two scores) Communication summar y: Refer to each item and indicate below with a tally the means by which the individual communi cated on each item. affect vocal motor Comm unication Method(s) gesture sign word symbol other Level I Moto r Response Level II Asso ciation Level III Anticipation Level IV Choice Level V Expansion Level Comm unication Levels 1. inconsisten t motor responses; 2. rarely appears to respond to anything in the environment; 3. may respond to things that are invasive/come in contact with the body; generally scores 5 or below on most, or all, ite ms consiste nt motor responses; rarely appears to respond to anything in the environment; may respond to things that are invasive/come in contact with the body; generally scores 5 or below on most, or all, ite ms appears to anti cipate familiar activities or events indicate d by changes in responses; generally scores 8 -12 on most, or all, items with co ntextual cues, uses symbol to: request mor e of pleasurable activities; initiate familiar activities; and decline non-pleasurable activities; generally scores 13-15 on most, or all, ite ms witho ut conte xtual cues, , uses symbol to: request more of pleasurable activiti es; initiate familiar activiti es; and decline nonpleasurable activiti es; generally scores 16 or above on mo st, or all, items Select a communic ation level based on the information gathered: ______ symbols symbol thought process What if…? One is not better than another. The one that works is the best. Symbol considerations: Motor abilities Environmental awareness Vision Hearing Symbol hierarchy object - exact duplicate object - tangible activity remnant object - miniature photograph line drawing (color vs. black & white) gestures (touch cue) sign printed word spoken word symbol assessment Vision concerns: yes / no Hearing concerns: yes / no spoken word touch cue sign printed word line drawing With which symbol(s) did individual demo nstrate : no response symbol awareness anticipation of the activity initiation of the activity object Activity 1: _______ ________ ____ photograph symbol assessment (continued) spoken word touch cue sign printed word line drawing photograph With which symbol(s) did individual demo nstrate : no response symbol awareness anticipation of the activity initiation of the activity object Symbol summary: Transfer tally marks from all three activities to this grid. Symbol system to which individual was most responsive: _______________ message Consider: How communication partners will perceive the interaction Print rich environment Verbal message assessment summary How can assessment information be reported in such a way that it guides educational decisions? what’s so vs. so what! 21 Gun Salute! The Assessment Summary is intended to guide organization of information gathered during assessment so that it can be reported in a manner that supports development of an appropriate individualized implementation program. It is designed to be a ‘worksheet’ or working document completed by a ‘team’. Use results of assessment strategies combined with team input to complete items. counts 1. Indicate below preferred (+) and non-preferred (-) sensory modalities and regularly occurri ng activities involving that sensory modality: modality vestibular +/proprioceptive +/tactile +/visual +/olfactory +/auditory +/gustatory +/- possible related activiti es (refer to modality charts) comme nts 2. Indicate below what was communi cated and how: MESSAGE: like MANNER: eyes affect voice head extremi ty mo bility do not like stop more comme nts 3. Circle and describe motor abilities observed: motor ability observed eye gaze affect voice head position trunk extremi ty mo bility description 4. Circle symbol system(s) t o be used and why: symbol(s) objects photogr aph line drawing printe d word sign spoken word why 5. What are the opportunities for choice within daily activities? activity choices 6. Refer to Communication Summary. Select COUNTS level and describe below the strategy to be used: Levels: Methods: A (voice, affect, eye gaze) B (head) C (extremtites) D (mobili ty) I Motor Response Level II Associ ation Level III Anti cipation Level IV Choice Level V Expansion Level 7. Select the goal(s) that best address the student’s needs: Establish a consistent moto r pattern Develop an association between a symbol and event Request more of a preferred activity Decline a non-preferred activity Communicate to control activities / make a choice from a field of 2 / choose between symbol for preferred and symbol for stop Communicate wants / needs from a field of ___ comme nts: 8. How will progress be documented? What cha nge is expected ? identified motor patt erns will become consiste nt and predictable when the activity is starte d or interrupted consiste nt and predictable anticipatory behavior will be demonstrated when symbol is presented symbol will be accessed consisten tly and predictably to initiate the activity symbol will not be accessed consisten tly and predictably to decline the activity foil will be accessed consisten tly and predictably to decline the activity wants and needs will be commu nicated consisten tly and predictably from a field of _ othe r – describe: 9. Who will implement and when ? activity person responsible when When the information for COUNTS has been gathered, the summary items #1-9 have been completed, and an appropriate program to address functional communication has been developed, consider progressing on to CLICKS for switch use strategies. clicks What would it take to convince you that the individual has purposeful switch use? Refer to the Sensory Assessment and enter the most preferred sensory and most non-preferred sensory categories and describe corresponding physical responses below. sensory/motor grid preferred sensory 1 2 3 A (affect, vocalizations, eye gaze) B (head) C (extremity) D (mobility) non-preferred sensory 1 2 3 A (affect, vocalizations, eye gaze) B (head) C (extremity) D (mobility) 1. Select one preferr ed and one non-preferred sensory activity that can be provided thru s witch use. preferred: _______________ non-preferred: ________________ 2. Select one discreet mo vement that may be used to activate a switch. discreet mo vement: _______________________________________ A B C D affect, vocalizations, eye gaze Up, down, left, right Shoulder, arm , hand, finger, let, foot, toe mo bility 1. Select a s witch that can be activated by the discreet movement. (Consult the table belo w.) Switch: ______________________ eye * eyebrow * * * * * * tongue * * * * head * * * * * shoulder * * * * * arm * * * * * hand * * * * * finger * * * * * torso * * * * * leg * * * * * foot * * * * * toe * * * * * * * * other * * mo uth other * tongue * bite * pneumatic * voice voice biofeedback tilt infa-red twitch lever/leaf touch switch/motor grid: 4. Combine the preferr ed activity, the discreet movem ent and the switch to assess purpos eful switch use. (sensory) + (discreet movement) + (switch) = (purposeful switch use) Remember, this is an ‘assessment’ and not an ‘instructional’ activity therefore it is critical to present as follows: a. the switch and it’s activity be modeled and explained only once; b. there is no interaction after the explanation has been given; there is no verbal or physical prompting or shaping…ever! 5. Select one of the methods on the following pages to document purposeful switch use. (See Notes to You to determin e when use of these techniqu es is appropriate.) 1. Variance 2. Mohs system documentation method: ___ ________________ VARIANCE position: pre-task condition:_____________________ ____________________________________________ switch: _________________ location: ___________________________ discreet movemen t: NR = no observable response across conditions NC = no change in frequency of identified response across conditions C = change in frequency of identified response across conditions materials: activity: NR NC (switch and activities) disconnected switch preferred activity non-preferred activity comments C MOHS SYSTEM (timely activation) position: _________________ pre-task condition: ____________________ discreet movemen t: ___________________________________________ switch: ________________ location: _____________________ interrupted on Less than 5 seconds More th an 5 seconds 21 Gun Salute clicks Consider CLICKS after the information for COUNTS has been gathered, the summary items #1-9 have been completed, and an appropriate program to address functional communication has been developed. 10. Describe switch, switch location, manner of activation and consequence or activity used to determine CLICKS abili ty: switch Comments: switch location movement activity preferred: str ategy variance non-preferred: Mohs 11. Describe switch use patterns: random: control led: 12. Indicate switch goal(s) below: o will control a sensory event in the environment using a switch o will participate in general curriculum Comments: 13. Indicate environmental control opportu nities associated with switch use. sensory category environmental opportu nity (setting) event 14. How will effectiveness be evaluated ? 1. variance 5. Mohs 2. speed 3. frequency 4. late ncy 6. accuracy 7. spontaneity 8. duration 15. Who will implement and when: activity person responsible when chats When the information for COUNTS and CLICKS has been gathered, the summary items #1-15 have been completed, and an appropriate program to address functional communication and purposeful switch use has been developed, consider progressing on to CHATS to enhance COUNTS and CLICKS with voice output. 16. Indicate CHATS level below: c/e not documented c/e documented 0 symbols single symbols t a l k symbol & foil muli ti ple symbol array 2 symbol combi nations i n g 16. Indicate below the opportunities during the day to use voice output: opportunity Comments: message symbol 18. Select voice outp ut goal(s): will participate in a social event using a voca switch will demonstrate association between spoken symbol and corresponding event will participate in the general curriculum 19. Describe features of current communication system and then refer to product information to select device( s) that best match these features. commu nication system symbol system ability to device feature match features potential device matches symbol size number of symbols in array number of arrays (levels) manner of activation portability voice quality Voca selected to support light tech system: ________________________ 20. Select below the variable by which changes will be documented: speed frequency late ncy accuracy spontaneity duration 21. Who will implement and when ? activity person responsible when When the assessment process is complete, continue to gather information and modify the program through the use of probes and data. Consider the Activity Curriculum to further expand COUNTS, CLICKS AND CHATS in accordance with state and local guidelines test and tape EMC,C & C part two implementation January 23, 2006
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