Manual and Automatic Annotation of Patients* Values and

Manual and Automatic Annotation of
Patients’ Values and Preferences Using
Seton HCAHPS Survey Data
Ken Fleischmann
Bo Xie
David Inouye
Byron Wallace
“The only“The
thingonly
thatthing
I was on “The hospital doctors talking
would haveGood
liked,Friday
sleep is
we could
didn't askdirectly
to
me. My
sister went
“More
information
to
“Rooms
are
too
cold,
if
“Keeping“The
my husband
more
informed
information
between
very important
atchoice
night of fish
have
a
or
down
the
hall
to
talk
to were
the
the
people
who
patients
want
a
warmer
room.
Being
when
a extreme
emergency
happened.
doctors
and
nurses,
they
say
and some
nursesI were
“Before
left,
I would
have
salmon
or
egg
salad.
I
doctor
and
gave
wrong
medical
taking
care
of
me.
warm is important
for someone
who isdifferent.
everybodyand
give
The “Make
Anesthesiologist
the adoctor
sensitive
to
this
and
things
I
asked
doctor
liked
to
know
how
many
don't
eat
meat
on
that
information.
The
doctor
When
my
family
asked
trying
to
stay
away from pneumonia.
the
whole
towould
listen
toto
meinformation
andeach
my statements.
• Patient
dissatisfaction
tied
insensitivity
to
something,
one
tell
some different
were
not.”
bills
to
expect.
I
day,
being
Catholic
was
should've
asked
my
permission
how
I
was
doing
one
ofif
Someone needs to look at the
policy
the
patient.”
Respiratory
arrested
becauseLack
theyof
me
something
different.
keep
getting
bills
and
it
patient’s
values
and
information
preferences
important
to me.”and
it was
okay
talk tohad
her.toShe's
the to
doctors
go to
closely.very
Under
four blankets
still
didn't
listen. I haveI an
allergy
communication.
need
to know
would have been much less
not
one
of
my
directives.”
the
computer
and
find
shivering, something wrong.” howreaction.”
toout
care
forI myself.”
scary to know what services
why
was even
I would be getting billed for.”
there and that is not
good.”
Findings
Implications
• Because hospital care is typically a short-term,
intermittent experience, there is little
opportunity for health care providers to get to
know what information patients want and
what they consider important in life.
• HCAHPS reveals great insights about patients’
information preferences & values (too late)
• Hospitals should proactively ask patients
about their information preferences & values
Future
• Field research (e.g., interviews, focus groups)
with patients to design questions about
patients’ information preferences and values
to ensure that we provide value-based care
• Experimental testing to evaluate the
effectiveness of information preference and
value questions for improving outcomes
• Broad implementation of these questions as a
way to help achieve Humancare
Acknowledgements
Ken Fleischmann: [email protected]
Bo Xie: [email protected]
David Inouye: [email protected]
Byron Wallace: [email protected]