Manual and Automatic Annotation of Patients’ Values and Preferences Using Seton HCAHPS Survey Data Ken Fleischmann Bo Xie David Inouye Byron Wallace “The only“The thingonly thatthing I was on “The hospital doctors talking would haveGood liked,Friday sleep is we could didn't askdirectly to me. My sister went “More information to “Rooms are too cold, if “Keeping“The my husband more informed information between very important atchoice night of fish have a or down the hall to talk to were the the people who patients want a warmer room. Being when a extreme emergency happened. doctors and nurses, they say and some nursesI were “Before left, I would have salmon or egg salad. I doctor and gave wrong medical taking care of me. warm is important for someone who isdifferent. everybodyand give The “Make Anesthesiologist the adoctor sensitive to this and things I asked doctor liked to know how many don't eat meat on that information. The doctor When my family asked trying to stay away from pneumonia. the whole towould listen toto meinformation andeach my statements. • Patient dissatisfaction tied insensitivity to something, one tell some different were not.” bills to expect. I day, being Catholic was should've asked my permission how I was doing one ofif Someone needs to look at the policy the patient.” Respiratory arrested becauseLack theyof me something different. keep getting bills and it patient’s values and information preferences important to me.”and it was okay talk tohad her.toShe's the to doctors go to closely.very Under four blankets still didn't listen. I haveI an allergy communication. need to know would have been much less not one of my directives.” the computer and find shivering, something wrong.” howreaction.” toout care forI myself.” scary to know what services why was even I would be getting billed for.” there and that is not good.” Findings Implications • Because hospital care is typically a short-term, intermittent experience, there is little opportunity for health care providers to get to know what information patients want and what they consider important in life. • HCAHPS reveals great insights about patients’ information preferences & values (too late) • Hospitals should proactively ask patients about their information preferences & values Future • Field research (e.g., interviews, focus groups) with patients to design questions about patients’ information preferences and values to ensure that we provide value-based care • Experimental testing to evaluate the effectiveness of information preference and value questions for improving outcomes • Broad implementation of these questions as a way to help achieve Humancare Acknowledgements Ken Fleischmann: [email protected] Bo Xie: [email protected] David Inouye: [email protected] Byron Wallace: [email protected]
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