Thursday 21 June
12.30
Registration
13.00 – 16.30
Symposia
Oncology
Facilitated by Drs Esther Meijer (NL),
Dr Alice Martell (UK) and others
Appearance-related issues
Facilitated by Dr Helen Care (UK) & Dr Liesbeth Utens (NL)
Pain
Facilitated by Dr Hannah Connell (UK)
& Drs Elske Ensink (NL)
Gastroenterology
Facilitated by Dr Clarissa Martin (UK)
Adherence
Facilitated by Dr Chris Verhaak (NL) & Dr Alistair Duff (UK)
Outcome and PROMS
Facilitated by Dr Lotte Haverman (NL) & Dr Sue Dolby (UK)
(14.30 – 15.00
Coffee / tea break)
16.45 – 17.45
Keynote speech
Chair: Drs Chris Verhaak, St Radboud, Nijmegen University
Hospital and Chair of the Dutch PPN
The need for innovative (neuro)psychological interventions in
paediatrics
Professor Dr Martha Grootenhuis, University of Amsterdam
17.45 – 18.00
The Radcliffe Paediatric Psychology Writing Award
18.00 – 18.15
PPN-UK: Judith Houghton Award
18.15 – 18.45
PPN-UK: Annual General Meeting
Dr Sue Dolby, Chair PPN-UK
18.15 – 18.45
PPN-NL: Annual General Meeting
Dr Chris Verhaak, Chair PPN-NL
Evening
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19.00 – 20.00
Drinks and canapé reception
20.15
Three-course conference dinner at Brasserie Blanc
Friday 22 June
08.30
Registration
Morning:
‘Treatment in paediatric psychology and e-health’
Chair: Dr Konrad Jacobs, Children’s Hospital, Oxford
09.00
An integrative approach to adherence in a Belgian sample:
a marriage between Family Therapy and Cognitive Behaviour
Therapy with specific attention to executive functioning
Dr Eveline Goethals, University Hospital, Leuven, Belgium
09.30
A new systemic intervention conducted with siblings and parents
to promote psychological adjustment in siblings of children
with cancer: a pilot evaluation through case series design
Dr Chiara Besani, Royal Belfast Hospital for Sick Children
10.00
Alcohol intoxication among youngsters admitted to hospital:
results of a Prevention Intervention Programme
Drs Mireille Visser and Dr Eva van Zanten, Reinier de Graaf
Hospital, Delft, Netherlands
10.30
Coffee / tea break
E-Health:
11.00
Development, content and first evaluation of an online group
intervention for adolescents treated for cancer
Dr Linde Scholten, Emma Children’s Hospital, Amsterdam
11.30
Teaming up: Feasibility of an online treatment environment for
adolescents with Type 1 Diabetes Mellitus
Dr Chris Verhaak, St Radboud, Nijmegen University Hospital
12.00 – 13.00
Buffet lunch & Poster session
Afternoon:
Workshops
13.00
Session 1
14.00
Coffee / tea
14.30
Session 2
Chair: Dr Karen Steinhardt; Children’s Hospital, Oxford
15.30
Presentation of winners of the poster competition
15.35 – 16.30
Keynote speech
Working with parents and children in the context of long-term
illness
Professor Rachel Calam, University of Manchester
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Workshops
Workshops 13.00 – 15.00 (with break at 14.00)
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1.
Medically unexplained symptoms in young people: Challenges and
opportunities for paediatric psychology
Dr Anna Hutchinson & Dr Katy Phillips (Great Ormond Street Hospital, London)
2.
Post-traumatic stress disorder (PTSD) in children after paediatric
intensive care treatment and the development of the medical traumatic
stress toolkit
Dr Lotte Haverman (Emma’s Children’s Hospital, Amsterdam)
3.
My hospital passport
Dr Janie Donnon (Royal Hospital for Sick Children, Yorkhill, Glasgow)
4.
Children with ambiguous genitalia: Accepting a distressing condition
Drs Arianne Dessens (Erasmus Medical Centre, Rotterdam)
5.
Staff support: An Olympic challenge?
Dr Vicky Kelly; Sarah Scott; Claire Coakes; Sara O’Curry
(Great Ormond Street Hospital, London)
6.
A cognitive behavioural group intervention for children with chronic illness
and their parents: background, content and research
Dr Linde Scholten1; Dr Heleen Maurice-Stam1; Prof Dr Bob Last1; De Gee2;
Conijn2; van der Anden2; Prof Dr Martha Grootenhuis1
1
Emma’s Children’s Hospital/Academic Medical Centre, Psychosocial department,
Amsterdam; 2 Trimbos Institute, Utrecht, Netherlands
Symposium
Pain Symposium
Dr Hannah Connell; Drs Elske Ensink; Dr Rachel Harman
13.00
Introductions
13.05
Setting the scene
13.20
Inpatient work; Assessing and managing pain on the paediatric
wards
14.05
Outpatient work; CBT for medically unexplained pain
14.30
Coffee / tea break
15.00
Outpatient work; CBT for medically unexplained pain contd
15.20
ACT for complex chronic pain
16.05
Discussion time
16.25
Closing remarks
16.30
Finish
Outcome and PROMS Symposium
Facilitated by Dr Lotte Haverman (NL) & Dr Sue Dolby (UK)
Chair: Prof Dr Martha Grootenhuis (NL)
13.00
Introduction (Prof Drs Martha Grootenhuis)
13.05
The use of patient reported outcomes in paediatric clinical
practice (Drs Lotte Haverman)
14.00
The development and validation of a new screening tool for
parents of chronically ill children (Drs Hedy van Oers)
14.30
Coffee / tea break
15.00
Anxiety and depression in parents of chronically ill children
(Drs Hedy van Oers)
15.30 – 16.30
Outcome measures: the start of a national discussion (Dr Sue Dolby)
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Adherence to Treatment Symposium
Chairs: Dr Chris Verhaak and Dr Alistair Duff
13.00
Introduction and welcome
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Adherence in pediatric care (Chris Verhaak)
13.50
Team approaches to addressing adherence (Alistair Duff)
14.30
Coffee / tea break
15.00
Personalised medicine and adherence (Anneloes van Staa)
15.30
Motivational interviewing for adherence problems (Alistair Duff)
16.00 – 16.30
Moving forward with adherence (TBC)
Gastroenterology Symposium
1.
The brain-gut interaction
Dr Shomik Ghosal
Consultant Paediatric Gastroenterologist, Mid Staffs NHS Foundation Trust
Abstract: The intestines are regulated by a complex interaction between the
brain and the gut which involves both neural and humoral components. The
afferent nerves from the gut provide information on local gut events such as
presence of food which are processed and acted upon through the nervous
system. The resulting action may be nerve/smooth muscle mediated such as
peristalsis or humoral release of peptides which may then influence gut
function. If any part of this complex pathway is affected by disease, there will
be disturbances of gut function. During the course of this presentation the
following topics will be discussed: Neuroenteral development and normal
physiology; pathological states affecting the oesophagus stomach and
intestine; and pharmacotherapy of alterations in brain-gut interaction.
2.
Paediatric functional gastrointestinal disorders (FGIDs): the tip of the iceberg
Ms Clarissa Martin
Consultant Paediatric Clinical Psychologist, Staffordshire General Hospital
Abstract: Functional gastrointestinal disorders are of high prevalence at
paediatric clinics. The main presenting problems are a combination of
recurrent or chronic gastrointestinal symptoms where only physiological
functions are altered. In 1999 the paediatric medical criteria for FGIDs was
achieved by consensus and based on clinical experience. But what do we,
paediatric clinical psychologists working in the gastroenterology speciality,
really know about the so-called ROME criteria? In this presentation I will revisit
basic concepts such as definition, prevalence and impact of these disorders. I
also will highlight how we can make a positive impact not only on these
children and young people QoL but on the figures of health care costs.
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3.
‘Knowing’ it will work: Assessment and elimination of problem behaviours
in tube weaning
Dr Terence M. Dovey
Lecturer in Centre for Research into Eating Disorders, Loughborough University
Abstract: Often the involvement of the psychologist within a tube-weaning
team is ambiguous. Other professionals within the process appear to have
very specific deliverables to perform, leaving the psychologist’s role
perceived as superfluous or peripheral. The belief is somewhat ironic.
Irrespective of the different approaches taken within tube weaning, one
overt role that the psychologist can take ownership of is that of assessing,
reporting and eradicating problematic behaviours that will compete with
instilling a programme towards oral feeding. This presentation highlights
three such problematic behaviours that were identified in 2012 in three
separate children who were selected for tube weaning. Understanding and
habitual assessment of minimal behaviours required to transition from tube
dependency to oral feeding will be highlighted and where each case was
identified within our evaluation process will be discussed. The conclusions
drawn should inform best practice within a multi-disciplinary team and
remove the ambiguity of the psychologists primary role in this process.
This role is defined as ‘knowing’ the intervention will work before it has
even been attempted.
4.
‘The biggest difference: working with the family system’
Ms Angela Southall
Consultant Clinical Psychologist & Family Therapist, Midlands Psychology CIC
Abstract: This presentation explores how we as clinicians can make the biggest
difference of all by thinking about how we position ourselves in relation to
the family, and, in doing so, change not only our formulation of the problem
but also our methodology for assessment, intervention and after-care.
5.
‘Psychogenic vomiting and rumination syndrome: Better out than in?’
Dr Sally Benson
Lead Consultant Clinical Psychologist, Addenbrooke's Hospital; Cambridge
Abstract: The role of the psychologist in the management and the
understanding of vomiting and regurgitation within the paediatric
gastroenterology setting will be visited. Regurgitation and vomiting can be
incapacitating and result in considerable functional impairment. The focus
of the presentation is on how we work with and make sense of children and
young people presenting with symptoms of vomiting and regurgitation
where there is no evidence of medical disease. A number of cases will be
presented alongside an overview of the current literature.
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6.
Psychosomatic approaches to GI Disorders
Ms Kate Blakeley
Consultant Paediatric Clinical Psychologist; Great Ormond Street Hospital; London
Abstract: As a clinical psychologist a frequent reason for referral is
questioning the psychosomatic or functional nature of a child’s physical
symptoms. In this presentation I will discuss relevant features and risk
factors for psychosomatic disorders will be presented and how these
children and their families experience diagnosis as well as the role of the
clinical psychologist in managing these children within a multi-disciplinary
paediatric setting.
Appearance Related Psychology Symposium
1.
Appearance concerns as the ‘norm’ in the general population: risk factors
and prevention programmes
Nicole Paraskeva
Nicole Paraskeva completed her MSc in Health Psychology at the University
of Bath in 2010 and is now studying for a Professional Doctorate in Health
Psychology at the University of the West of England. Nicole currently works
as a Research Associate at the Centre for Appearance Research. Her
research focuses on developing, implementing and evaluating eating
disorder and negative body image prevention programs within educational
settings. Nicole is particularly interested in identifying risk factors for body
dissatisfaction in children.
Abstract: Body dissatisfaction and appearance concerns have become the
‘norm’ for many young people in today’s society. Research shows that body
dissatisfaction causes distress and plays a significant role in the development
of low self-esteem, depressive symptoms and eating disorders. This
presentation aims to give an outline of some of the issues surrounding
appearance concerns in young children and adolescents in the general
population. Risk factors for body dissatisfaction and appearance concerns
will be described and the development and implementation of prevention
programs that aim to promote positive body image and prevent eating
disorders will be addressed.
2.
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Adaptation of (parents of) children with different types of visible
disfigurement
W.H. Leemreis MSc
Willem Leemreis is a psychologist and PhD student at the department of
Child and Adolescent Psychiatry and Psychology of the Erasmus Medical
Centre in Rotterdam. He is studying for a PhD focusing on stress among
parents with a child with dermatological (e.g. haemangioma) or craniofacial
(cleft lip and/or palate) malformations. In addition, he is involved in
diagnostics and treatment of children with anxiety disorders and
developmental disorders.
J.M.E. Okkerse PhD
Jolanda Okkerse is a clinical psychologist who works at the department of
Child and Adolescent Psychiatry and Psychology of the Erasmus Medical
Centre in Rotterdam. For the past 20 years she has been working with
children, adolescents and young adults with cleft lip and palate and
(syndromic) craniosynostosis. Treatment of appearance-related problems in
these patients has been one of her main topics of interest. Furthermore, she
has been executing and supervising PhD-studies into psychosocial
functioning in children and adolescents with cleft lip and palate and
(syndromic) craniosynostosis and their parents.
Abstract: It is well known that psychosocial adaptation to chronic physical
disorders, including visible malformations, is not without obstacles.
Although the adjustment of children with physical disorders and their
parents has well been documented, few quantitative studies have been
performed among parents of children with visible malformations.
Furthermore, parental stress varies a lot between those studies. The variety
in research findings might be influenced by the type of disability. In the first
part of the lecture, a group of parents of children with a haemangioma will
be compared to a group of parents with children with oral clefts, based on
the levels of experienced stress. The second part of the lecture consists of the
psychological treatment possibilities for adolescents with visible
malformations. A case-report will be presented.
3.
Impact of scarring on self-esteem and psychopathology in two patients
groups: children having survived meningococcal septic shock and young
adults with congenital heart disease
Elisabeth Utens PhD
Drs Elisabeth Utens, clinical/child psychologist, is research coordinator for
Paediatric Psychology and Associate Professor at the Department of Child
and Adolescent Psychiatry, Erasmus Medical Centre Rotterdam.
She has been executing and supervising multidisciplinary cohort PhD studies
for more than 20 years, exploring the psychosocial functioning and quality
of life in children, adolescents and (young) adults and their parents with
paediatric diseases such as congenital heart disease, meningococcal septic
shock, cystic fibrosis, children undergoing paediatric anaesthesia and
children with psychiatric anxiety disorders. She is a member of the steering
committee of the Psychosocial Working Group of the European Association
Paediatric Cardiology, member of the International Society Adult Congenital
Heart Disease and advisory board member of CORIENCE , a newly
established European communication platform on congenital heart disease.
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Abstract: Altered physical appearance can threaten various aspect of one’s
life such as body-image, self-esteem and behavioural/emotional functioning.
Children with meningococcal septic shock (MSS), with petechia and/or
purpuric rash, are among the most severely ill and unstable groups of
children admitted to a PICU. MSS may result in somatic sequelae such as
scars and amputation(s) of digit(s) or limb(s) as a result of skin necrosis.
In a long-term follow-up, 29 MSS children (8–11 yrs) with and without scars,
showed comparable outcomes on several self-esteem domains. In 36 MSS
adolescents (12–17 years), scarring was associated with lower global selfworth. The worse the children rated their scars, the worse their scores on
social acceptance. In adolescents worse evaluations of scars were related to
worse outcomes on close friendships, but remarkably also to better
outcomes on social acceptance and behavioural conduct. Psychological
explanations will be discussed.
In a cohort of young adults with congenital heart disease (N=362, age
20–46 yrs) subjective experience of restrictions caused by surgical scars
formed a significant predictor for long-term psychopathology. For young
female patients, surgical scars may result in feelings of uncertainty,
unattractiveness and fear of rejection.
4.
The development YP Face It: an online support programme for young
people aged 13–17 with a visible difference
Catrin Griffiths
Catrin Griffiths is a Trainee Health Psychologist and a Research Associate at
the Centre for Appearance Research (CAR) in the University of the West of
England. She has a special interest in conducting research which explores
the impact of having a condition that affects appearance on young people.
This also includes exploring the impact on romantic experiences. Catrin is
working on a project which involves developing an online support
programme called YP Face It for young people aged 13–17 who have a
condition that affects appearance. The programme is currently being tested
by young people.
Abstract: There is a lack of evidence-based psychological interventions and
limited support resources to address the psychosocial difficulties
experienced by young people with disfigurement (visible difference)
resulting from traumatic injury, congenital or skin conditions and surgical
or medical treatments. We have therefore developed an innovative and
interactive seven-week, online support programme called YP-Face It that
requires minimal supervision from health professionals (HP). YP- Face It
addresses key concerns of YP with visible difference including low selfesteem, depression, social and appearance-related anxiety. It provides selfmanagement skills via social skills training and CBT techniques. The
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development process of designing YP Face It and an outline of
the programme will be discussed.
Oncology Symposium: Cancer in children, teens and young adults
•
•
1. Development (13.30–14.10) In this part of the symposium, Esther Meijer,
a clinical psychologist with long experience as psychologist on the pediatric
oncology department, will provide a bird’s eye view of how cancer interferes
with normal development. The child, teenager or young adult, as well as
parents, peers and treatment team all play their roles in dealing with this life
threatening disease: what can they do, when and how?
Esther Meijer: Cancer from a developmental perspective: How, about
what, when and with whom?
2. Screening (14.10–14.50) The second part of the symposium focuses on
specific needs of children, teenagers and young adults during and after their
cancer treatment. Colleagues from the UK will introduce the audience into
their need assessment. In addition, Dutch psychologists will present the
implementation of the PAT screening, developed in CHOP, in the
Netherlands.
Alice Martell & Martha Deiros-Collado: ‘I’m not crazy, I need support
but I’m not crazy.’ Involving teenagers and young adults in shaping
cancer services: A needs assessment at Guy’s & St Thomas’ Hospital
2.50 – 3.20
•
•
Coffee / tea break
Simone Sint Nicolaas: (15.20 – 15.55) Screening in paediatric oncology:
families at risk of psychosocial problems.
3. Patient reported outcomes (15.55 – 16.30) In the third part of the
symposium, Sasja Schepers will introduce you into the ins and outs of a Dutch
electronic programme ‘KLIK’ to monitor quality of life in patients with cancer
during their treatment in the hospital. How do we implement monitoring in
daily practice and how do we assess the merits of this practice?
Sasja Schepers: Implementing ePROs in clinical oncology practice:
what works and what challenges remain along the road?
General Discussion (16.30 – 16.45) During the final part of the symposium,
we would like to invite the audience to discuss what recommendations should be
done with regard to realising the ideal psychosocial care for children with cancer
and their families. What obstacles need to be tackled? What collaborations need
to be put forward? And which concrete steps need to be taken? Helen Griffiths
will give an introduction to this discussion with a short presentation around
the ideas of younger children and parents as to what ‘ideal psychosocial care’
would look like.