Video-mediated Communication in Hospice Interdisciplinary Team Meetings: Examining Technical Quality and Content George Demiris PhDa, Debra Parker Oliver PhDb, MSW, Elaine Wittenberg-Lyles PhDc, Karla Washington PhDd a University of Washington, Seattle, WA b University of Missouri, Columbia, MO c University of North Texas, Denton, TX d University of Louisville, Louisville, KY ABSTRACT This study aims to determine how videoconferencing quality impacts the style and content of communication between members of hospice interdisciplinary teams and patients and their families. We videotaped video-calls between hospice teams and family caregivers based on the use of lowcost videophones. We assessed their audio and video quality using both a form that was filled out on site and a protocol for retrospective analysis. The tapes were transcribed and a content analysis was performed to assess the themes of interaction. A total of 70 video-calls were analyzed. The time spent on general informal talk was significantly correlated to the video and audio quality of the session (r=0.43 and 0.41 respectively, p<0.001). The time spent addressing psychosocial issues and on caregiver education correlated significantly to video and audio quality. This study demonstrates the potential of video-mediated communication that supports shared decision making in hospice. INTRODUCTION Hospice care services are provided to over 1.3 million Americans each year, mostly delivered in patients’ homes with the help of informal caregivers, namely family members, friends or others who assume an unpaid caregiving role1. The hospice philosophy is founded on the principle that both the patient and the informal caregiver comprise the unit of care promoting self determination and their active participation in the decision making process. In addition to the emotional, physical and financial burden associated with the disease of their loved one, informal caregivers are expected to manage all aspects of patient care often without formal education, with minimal or no relief, leaving them anxious and exhausted2. More than one-third of hospice families have concerns about the amount of information they receive regarding what to expect when the patient is dying3 and identify gaps in their communication with hospice providers. Hospice agencies hold regular staff meetings that involve members from different disciplines including medicine, nursing, social work and spiritual care. The goal of these interdisciplinary team (IDT) meetings is to develop and coordinate plans of care for hospice patients and their families. Medicare Conditions of Participation mandate hospice agencies to hold IDT meetings and prescribe their frequency and the composition of teams. While in theory these meetings are open to patients and caregivers to attend, due to geographic distance, the frail condition of the patient and caregiving demands, hospice patients and their caregivers are mostly absent from these meetings4. Technology has the potential to bridge geographic distance and allow caregivers and patients to “virtually” participate in IDT meetings. While participation may be possible with a regular telephone, the visual contact present with a video component has been found to be important to communication. The transmission of video can assist by providing 1) cognitive cues used to determine understanding5, 2) turn-taking cues afforded by head turning, posture and eye gaze6 and 3) social or affective cues that reveal the participants’ emotional state or interpersonal attitudes which are manifested in facial express, posture or eye gaze7,8. Furthermore, the visual feedback is needed in group communication to identify all participants and the size of the group as well as the person taking turns to speak. Thus, the video component improves the flow of the conversation as speakers do not have to introduce themselves every time they speak. Given the need for a video-conferencing platform that would be applicable and relevant to both rural and urban settings and would not require upgrading the residential infrastructure or train families in its use, low-cost commercially available videophones that operate over regular phone lines, are the most appropriate tool. AMIA 2009 Symposium Proceedings Page - 135 This study explores the use of commercially available videophones as a tool to overcome existing barriers and bring caregivers of hospice patients into the hospice interdisciplinary team meetings. It aims to detect whether the video-mediated communication facilitates or impedes the communication between teams and caregivers. Specifically, the study explores how videoconferencing quality impacts the style and content of communication in team meetings and whether there is a correlation between the overall audio- and video-quality of video-calls and the themes of communication during these meetings. The theoretical model underlying the development of this intervention is modified from Saltz and Schaefer’s framework9 for family participation on health care teams. This framework identifies four components of an IDT model inclusive of family: context, structure, process and outcomes. The organization context influences team structure, which in turn impacts team processes, which ultimately determine how teams evaluate outcomes. Saltz and Schaefer suggest that family involvement may influence process elements of team functioning, especially assessment, care planning, and implementation of plans9. The Saltz and Schaefer model maintains that, when family input into problem-solving or decision making is lacking, care plans suffer due to incorrect assumptions about the patient/family perspectives that influence the process9. METHODS Data were collected from consenting hospice patients and caregivers in two rural hospice programs in the Midwest. All caregivers and patients had to be enrolled in hospice, without cognitive impairment, be consenting to participate, and over 18 years of age. The intervention enabled family members of hospice patients to participate in the team meeting, connecting them virtually using a plain old telephone system (POTS) based videophone called Beamer (Vialta Inc) to the hospice office. Following referral by hospice staff, a graduate research assistant (GRA) visited the family caregiver’s home for consent to participate in the study and installed a videophone. Family caregivers were provided a designated time and date to use the videophone to participate in the hospice team meetings. The videophone unit used in the hospice agency office was the Beamer TV model which was projected onto a large television screen for the view of the entire hospice team. This connection over the regular telephone allowed family members to have a visual image of the team as well as a twoway conversation with them. The video calls were videotaped by a video recorder connected to the Beamer TV to capture what participants saw at both ends. Additionally, a video camera was set up in the corner of the hospice office and used to also videotape the team meeting. The GRA provided a seating chart of the participants, identified only by their profession. While there are international standards for network and vendor interoperability, there are no widely accepted standards for performance evaluation of videoconferencing applications. In order to assess the audio-and video-quality of the team meetings we used assessment tools utilized by both participants on site and for retrospective analysis. For on-site assessment of the quality of the video calls we used a previously developed instrument for assessing the technical quality of a "virtual visit" in home care10, a video-based interaction between health care providers and patients or caregivers. The form includes identification of the caregiver, date, starting and ending time of the videocall. The main section of the form contains five items regarding the technical quality of the video-call. The first two items refer to the observations made by the GRA in regard the frequency of difficulties with audio and image at the team's site. The next two items address problems with video and sound at the caregiver's end, as reported to the team during the video-call. The last item addresses possible disconnection(s) and their frequency of occurrence. This section allows for the definition of a score for the overall technical quality of each video-call (ranging from 0 to 50). This instrument has been tested for reliability and validity and used to rate the technical quality of video-calls in home care settings10. The form was completed by the GRA who was present during the team meeting. For retrospective analysis of the videotaped meetings two raters were asked to review the tapes and provide quality scorings for a set of characteristics defined as essential for the quality of videoconferencing by industry standards11: • Video artifacts: Raters reviewed the tape to identify possible video artifacts around the subject's head and shoulders (e.g., blocks, image distortions, or out-of-focus areas). • Sharpness: Raters reviewed the tape to detect whether details and fine lines can be distinguished. • Contrast, brightness, and color saturation • Color depth: The raters looked for color banding in the backgrounds and on the subjects’ faces and compared to the video resolution test for color. • Stability: Raters evaluated whether images were stable with no motion in the background due to video artifacts, or video noise. • Background Clarity: Raters evaluated whether the background was out of focus, whether it was rich in color and texture. AMIA 2009 Symposium Proceedings Page - 136 • Audio Clarity: The raters evaluated how clear the audio was, and whether noise occurred. • Audio Stability: The raters evaluated whether the audio quality was consistent or whether interruptions or other audio degradation occurred. For each of the parameters above, the raters were asked to assign a score from 1 to 5 (1 being poor and 5 excellent quality). The form enabled the calculation of an overall score for video-quality and a total score for audio-quality. The maximum total score is 40 (30 for the video subscale and 10 for the audio-scale). If there were disagreements between the raters, these were discussed until consensus was reached. In order to study the content and style of communication, the video recordings were coded by two coders in order to measure reliability in coding decisions. The “utterance” (e.g., a simple sentence, an independent clause, nonrestrictive dependent clause, multiple predicate) served as the unit of analysis for coding. The coding procedure referred to a content analysis of the verbal communication between patients and providers. The protocol used for the content analysis was based on a previously developed and tested protocol used for the study of virtual visits in home care12 and modified for the hospice context. This protocol includes the following themes: • General informal talk • Discussing patient’s clinical status • Addressing pain medication issues • Addressing technical issues • Addressing psychosocial issues • Caregiver education • Addressing administrative issues For each of the protocol items, five elements were provided: a label, a definition of the theme, indicators on how to flag the theme, description of qualifications or exclusions and examples. Inter-rater reliability for the coding of utterances between the two coders was addressed by calculating Cohen’s Kappa. In addition the videotaped segments were timed and the duration of each segment and theme was recorded. RESULTS Participants in this study consisted of 30 family caregivers of hospice patients and three hospice interdisciplinary teams, comprised primarily of nurses, chaplains, social workers, and medical directors. Hospice staff consisted of a total of 43 hospice interdisciplinary team members, 36 females and seven males. There were 17 nurses, three social workers, three chaplains, two medical directors, and 18 other members such as volunteer coordinators and medical students. A total of 86 video-call attempts were documented. Of these, 70 (81.4%) were established and 16 (18.6%) were cases in which a call was not established (e.g., a connection could not be established leading to a second attempt, the caregiver did not answer the call). The average technical quality of the established calls was 45.78 (91.56%) with the lowest score being 30 (60% of the highest possible score) and the highest 50 (100%) and a standard deviation of 4.97. The average video call duration was 7 minutes (with the shortest lasting 1 minute and the longest 15 minutes). Once the call was established, the connection was not lost in any of the cases. More technical problems pertained to audio than video, and of these, most problems were reported pertaining to audio at the caregiver’s end. When asked if there were questions that the team did not ask that they would have asked if they were meeting in person, the GRA reported three cases (4.2% of all conducted video-calls) in which that was the case, and all other cases (95.8%) where this did not apply. The GRA rated the overall technical quality in average as very good (on a scale from 1 to 5 average score was 4.14, SD 0.82, Min 2, Max 5. Overall usefulness of the video calls was rated in average 4.20 (SD 0.78, Min 2, Max 5). When reviewing the videotaped sessions, the two raters indicated overall good audio and video quality. Table 1 lists the mean scores for all parameters of video and audio quality. The inter-rater reliability for the coding of utterances was high. Cohen’s kappa for agreement between the two coders was 0.92. Table 1: Evaluation of the video-call quality (n=70 videocalls) Mean (SD) Video Quality 1=Bad; 2=Poor; 3=Fair; 4=Good; 5=Excellent Video artifacts 4.04 (0.87) Sharpness 4.11 (0.77) Contrast, brightness, saturation 4.03 (0.74) Color depth 4.12 (0.76) Stability 4.29 (0.79) Background Clarity 4.08 (0.76) Total Score for Video Quality 24.67 (4.09) Subscale (6-30) Audio Quality 1=Unacceptable; 2=Problematic; 3=Neutral; 4=Acceptable; 5=Excellent Audio Clarity 4.26 (0.70) Audio Stability 4.29 (0.67) Total Score for Audio Quality 8.54 (1.36) Subscale (2-10) AMIA 2009 Symposium Proceedings Page - 137 Table 2 displays the categories of communication and the time spent in average on each of these categories. The greatest amount of time during a video-call was spent on discussing the patient’s clinical status. Caregiver education, issues of pain management and the discussion of administrative issues were not addressed in all visits. Time spent addressing technical issues involved camera readjustment, adjusting the volume, change of seating arrangements of participants (e.g., move closer or further away from the camera). Table 2: Time spent on communication themes (70 video-call sessions) Average Min. Max. Duration Time Time (in min.) Spent Spent (in (in min.) min.) General informal 1.4 1.1 5.4 talk (SD 0.92) Discussing 3.90 6.8 8.7 patient’s clinical (SD 0.07) status Addressing pain 1.41 0 5.4 medication (SD 0.14) issues Addressing 0.77 0 1.9 technical issues (SD 0.07) Addressing 2.41 1.2 4.3 psychosocial (SD 0.49) issues Caregiver 1.02 0 4.2 education (SD 0.07) Addressing 0.39 0 1.1 administrative (SD 0.14) issues The score resulting from the technical quality form assessed by the GRA on site correlated to both the sub-scale for the audio quality (r=0.74) and the sub-scale for the video quality (r=0.64) assessed by the two raters. Table 3 lists the correlations between the quality scores and time spent on the various themes of communication. The time spent on general informal talk (“small talk”) is significantly positively correlated to the video and audio quality of the videoconferencing session. The time spent addressing technical issues, as expected, is negatively linked to the video and audio quality (the better the overall quality is, the less time people spend trying to address technical issues). The time spent addressing psychosocial issues and caregiver education also correlates significantly to video and audio quality. Table 3: Correlation Matrix Total Total Videotechnical Quality quality Sub-score score (assessed (assessed by the two on site) raters) Time Spent On: General 0.63** 0.43** informal talk patient’s 0.11 0.16 clinical status pain medication issues technical issues Total AudioQuality Sub-score (assessed by the two raters) 0.41** 0.14 0.11 0.14 0.09 -0.31** -0.44** -0.38** psycho0.43* 0.28* social issues Caregiver 0.64* 0.57* education Addressing 0.13 0.12 admin. issues *p<0.05; **p<0.01; ***p<0.001 0.27* 0.62* 0.11 DISCUSSION In this intervention the videophone provides a context for participation of family caregivers, eliminating numerous logistical barriers. Principles inherent within hospice provide the team with a supportive structure that acknowledges patient/family feedback as valuable. In addition, the videophone provides opportunity for temporary team membership. Patients/families are viewed as “specialists,” with important information and knowledge required for assessment, care planning, and evaluation. The interdisciplinary process, as discussed by Bronstein13, outlines successful collaboration between hospice staff, patients, and families: The team will become interdependent with patient/family goals and will create new activities and roles for patients/families within the team, requiring flexibility among individual members’ role definitions. This study demonstrates that the level of audio and video quality of a videoconferencing session impacts the content of the session. This provides an AMIA 2009 Symposium Proceedings Page - 138 insight into the way health care team members handle audio and video degradation as they tend to shorten the time spent on several issues such as small talk or administrative issues but do not seem to compromise the amount of time required to discuss the clinical status of the patient. Psychosocial issues are an important component of an IDT meeting in hospice and were addressed in most sessions. Health care providers often focus on the patient’s or family member’s description about personal matters and use it as a framework to determine how to communicate at their level and express empathy14. Addressing psychosocial issues and conducting informal talk enables care providers to invite caregivers’ revelations about factors that influence their caregiving experience. Health care providers can reduce anxiety by displaying empathy and engaging caregivers in discussing matters of importance to them. Thus, the fact that time spent on this important component is related to the audiovisual quality indicates the challenge in balancing the need for high quality videoconferencing sessions that will not compromise the quality of the interaction between participants and the need to use low cost equipment that operates over regular phone lines and thus may be applicable to rural and underserved areas. This study also highlights the need for new tools that capture the quality of video-mediated communication among multiple stakeholders/ team members. Most assessment forms assume two stakeholders (the local and remote partner). The challenge of video-mediated team discussions is the fact that team members may have in addition to diverse professional backgrounds, different levels of familiarity with technology and personal preferences pertaining to audio and video-settings, making the subjective evaluation of a video-call by the entire team difficult to capture. 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Peer discussion on training physicians to be competent communicators: support for a multiple discourse approach. South Med J 1997;90: 709-19. ACKNOWLEDGMENT This project was funded by the NIH National Cancer Institute, grant R21CA120179 Patient and Family Participation in Hospice Interdisciplinary Teams (Parker Oliver, PI). REFERENCES [1] National Hospice and Palliative Care Organization. NHPCO 2008 Facts and Figures: Hospice Care in America. Journal. [updated 2008 Aug 23; cited 2009 March 12]. Available from http://www.nhpco.org . AMIA 2009 Symposium Proceedings Page - 139
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