Chapter 7 Healthy Steps: The First Three Years 7. Healthy Steps Program Participation Healthy Steps Program Participation This chapter includes reports on families’ participation in the program and their views of the services they received. The reports from families support those of the sites. They indicate that Healthy Steps families participated to varying degrees in the full range of services provided under the program and that families were particularly pleased with services the HS Specialist provided. 7-1 Chapter 7 Healthy Steps: The First Three Years 7. PROGRAM PATICIPATION 7.1. Introduction The previous section described types of contacts between the Healthy Steps (HS) Specialist and families, topics they discussed, and patterns of contacts with families in relation to the goals of the HS program. This chapter includes reports on families’ participation in the program and their views of the services they received. The reports from families support those of the sites: They indicate that HS families participated to varying degrees in the full range of services provided under the program and that families were particularly pleased with services the HS Specialist provided. The HS program sought to offer a number of services to families and to tailor those services to families’ needs. Evidence from sites indicates that the full range of services was offered to families from the inception of the program. With time, experience, and feedback from the families, sites adapted some of these services. The mothers’ self-reports of services they received (as was true for family contacts and topics discussed that were documented by the HS Specialists) reflect the services the families chose to accept at any given time out of the full range of services offered by the sites. For example, families could decide to participate in parent groups or not, or to accept a home visit or not. Thus, a mother’s self-report captures not only whether the site offered the service but whether the family took advantage of that offer and remembered receiving the service. The self-reports also reflect the families’ length of stay in the HS practice and their availability to receive the services. 7.2. Receipt of Healthy Steps Services In their 30-33 month interviews, mothers reported their participation in a wide variety of services associated with the HS program. Among the 3737 mothers interviewed at 30-33 months were mothers still using the practice for their child as well as those who withdrew their child from care sometime between nine months of age and the time of their interview. (Mothers of children who left the practice prior to nine months were not asked to recall their receipt of services.) Of course, the longer the family continued at the practice, the more services they could be expected to receive. Mothers reported taking advantage of some program services more than others (Figure 7.1, Table 7.1). For example, more than 80% of mothers said they had received child development 7-2 Chapter 7 Healthy Steps: The First Three Years handouts, a telephone number to call with questions on development, books to read to their child, and developmental assessments. Smaller percentages reported receiving information on community resources and participating in parent groups offered by the practice. This variation in uptake of program services also was reflected in the HS Specialists’ records of contacts with families and reported by HS Specialists in their key informant interviews. The HS Specialists reported, for example, that despite considerable effort to make parent groups accessible by altering hours and topics offered, these activities tended to be popular primarily with a core group of families that found them very helpful. Similarly, not all families could be expected to need information on community resources. Contrary to office visits recorded by the HS Specialist in their logs, which showed at least one office visit with the HS Specialist for 97% of families, only 62.4% of mothers reported receiving an office visit with a developmental specialist. It is possible that the mother did not discern the HS Specialist as a “special person who Figure 7.1. Question: Some doctors’ offices give services to parents that help them take better care of their children. These services are in addition to check-ups and sick visits. Please tell me if you have received any of these services from [HS practice]. How useful was this [service]? Would you say very useful, somewhat useful, or not at all useful (n = 2021) % of Mothers who Received Service Child development handouts 89.4 Telephone number for development questions 89.3 Books to read 85.1 Developmental assessments 83.1 Letter before visits 78.8 Special booklet to track health 77.2 Home visits 76.5 Office visit with developmental specialist % who Found Service Useful (99.6%) (99.5%) (98.8%) (98.6%) (98.5%) (98.1%) (97.5%) (96.9%) (94.3%) (94.1%) 62.4 Information on community resources 48.2 22 Parent groups 0 20 40 7-3 60 80 100 Books to read to child Office visit with developmental specialist Developmental assessment Child development handouts Letter before visits Parent Groups Telephone number for development questions Home visit since 6 months of age Special booklet to track health Information on community resources Chapter 7 Healthy Steps: The First Three Years Table 7.1. Percentage of Intervention Mothers Who Received Services, and Received Information On or Discussed Topics Considered Part of the Healthy Steps Program 2-4 Months N = 2631 % N 30-33 Months N=2021 % N 71.0 87.4 88.8 65.6 48.1 1868 2286 2318 1714 1258 77.0 89.4 77.2 78.8 62.4 1397 1647 1401 1439 1133 94.3 2425 89.3 1609 6.2 NA NA NA 163 NA NA NA 22.0 85.1 48.2 83.1 406 1568 835 1464 65.4 1714 76.5 1403 78.1 15.5 3.8 2.7 1337 265 65 46 26.8 31.1 21.0 21.2 375 436 294 297 84.2 1438 NA NA 95.3 83.9 41.4 1627 1424 707 NA NA NA NA NA NA 53.6 91.3 913 1559 NA NA NA NA NA NA NA NA NA NA NA NA NA NA 96.9 93.4 91.9 72.7 36.7 1357 1305 1285 1012 132 49.0 66.5 87.3 91.8 68.4 72.2 NA NA NA NA NA NA NA NA NA 1275 1734 2284 2394 1788 1878 NA NA NA NA NA NA NA NA NA NA NA NA NA NA 83.3 70.8 82.7 82.3 76.7 57.2 90.5 91.7 77.0 83.3 NA NA NA NA NA 1504 1278 1515 1501 1404 1027 1662 1688 1404 1519 HS services (excluding home visits) 4 or more HS services Handouts about Baby’s Development Special Booklet to Keep track of Child’s Health Information Letter Before Well Child Visits Office Visit with Special Person who Teaches Parents about Child’s Development Telephone number to call with questions about child’s development Parent group Books to read to your child Information on community cervices Developmental assessment by someone in practice Home visits Home Visits (% any from practice) within first 2-4 months and since 6 months of age (measured at 30-33 months) Number of Home Visits from Practice 1 2 3 4 or more Services Provided at Home Visits Show you activities that you could do with baby to help her/him grow and learn Check the progress of the baby Provide emotional support or help you cope with stress Show you how to take care of the baby, like how to bathe him/her Show you how to make your house safe Tell you about the kinds of things baby will be doing in the next few weeks Help you with understanding child’s development Help with child’s behavior Help with safety in the home Help with family issues or concerns Offered any home visit that decided not to take HS topics discussed or given information on by anyone in the practice How to bathe baby (2-4 months only) How to calm baby (2-4 months only) Sleep positions for baby (2-4 months only) Always using an infant car seat (2-4 months only) When to give solid foods (2-4 months only) Importance of regular routines (2-4 months/30-33 months) Sleep problems (30-33 months) Discipline (30-33 months) Language development (30-33 months) Toilet training (30-33 months) Sibling rivalry (30-33 months) Home safety (30-33 months) Child’s development (30-33 months) Child’s temperament (30-33 months) Ways of helping child learn (30-33 months) 7-4 Chapter 7 Healthy Steps: The First Three Years teaches about development” but viewed the HS Specialist in broader terms or thought of the HS Specialist simply as one of her child’s providers. At 30-33 months, the majority of mothers (76.5%) reported receiving a home visit in the time since their child was six months old. Of those who received a home visit, 73.3% received two or more visits. The topics most frequently discussed during home visits were help with understanding their child’s development (96.9%), their child’s behavior (93.4%), and safety in the home (91.9%). Family issues and concerns (72.7%) were raised as well. Slightly more than one-third of mothers (36.7%) had been offered a home visit that they declined to take. The reasons mothers most often cited for declining the home visit were inconvenience (22.0%), didn’t need the visit (18.9%), preferred to go to the office or did not want anyone to come to their home (11.4%), could not take time off from school or work (9.9%), and miscellaneous other reasons (37.8%) such as marital problems, illness, being busy, living far away, and scheduling problems. During the course of their participation, mothers reported receiving information or discussing a wide range of topics considered part of the HS program. The two topics reported most often were the child’s development (91.7%) and home safety (90.5%). These were followed by the importance of routines (83.3%), ways of helping their child learn (83.3%), discipline (82.7%), and language development (82.3%). Their child’s temperament (77.0%), toilet training (76.7%), and sleep problems (70.8%) were next, followed by sibling rivalry (57.2%). This latter topic would likely not be of concern to all families as about half of the children in this sample had no siblings at baseline. 7.3. Mothers’ Views of Healthy Steps Services They Received Mothers held very positive views of the HS program as reflected in their opinions of HS services and their appreciation of the care they received from the HS Specialist. Mothers participating in the 30-33 month interview were asked to rate the services they had received from their child’s practice. From 94.1% to 99.6% of mothers perceived the services as useful or very useful, depending on the service in question (Figure 7.1). Mothers reported being highly satisfied with the care provided by the HS Specialist. More than half of mothers (61.5%) reported that someone in the practice went out of the way to help them or their child; for the majority (65.5%) of these families, this person was 7-5 Chapter 7 Healthy Steps: The First Three Years the HS Specialist. Overall, 93% of mothers found the HS Specialist to be helpful or very helpful. Mothers were asked about twelve specific services that HS Specialists were expected to provide. These were combined into one scale representing overall receipt of HS services. Approximately 97% of mothers agreed or strongly agreed that they received the services (detailed in Fig. 7.2) from the HS Specialist. Mothers agreed most about receiving progress checks as well as counseling on learning activities for the child, expected behaviors, and safety proofing the house. They agreed least about receiving help with organizing daily routines, referrals for emotional problems, and help with making child care arrangements. Mothers were asked specifically about nine areas of care provided by the HS Specialists. These areas of care were combined into a composite scale representing mother’s satisfaction. On this scale, almost all mothers (99.3%) were satisfied or very satisfied with the care they received from the HS Specialist in the nine areas presented in Figure 7.3. Mothers’ willingness to pay for the kinds of services they received also reflected their satisfaction with the program. They were asked how much they would be willing to pay one time for a package of services offered at their child’s doctor’s office that included well child visits with a child development specialist, home visits with the HS Specialist, a telephone information line about child development, parent groups, brochures on child health and development, letters before well child visits about what to expect at the next visit, and a book designed to keep information about that child’s health care and development. Almost half of mothers (48.3%) were willing to make a one-time payment of $100 or more. 7-6 Willingness to Pay for Enhanced Services by Families in the Healthy Steps Program % N One-Time Amount 1774 Not Willing to Pay 2.2 40 $15 5.4 95 $25 12.9 229 $50 22.2 394 $75 9.0 160 $100 21.3 377 $125 or more 27.0 479 247 mothers did not report willingness to pay Chapter 7 Healthy Steps: The First Three Years Figure 7.2. Question: I would like you to tell me how strongly you agree or disagree that you received the following services from the HS Specialist? (N=2021) Strongly Agree (%) Showed you activities that you could do with child to help him/her grow and learn Agree (%) 44 52.4 Checked child's progress 42.2 55.6 Told you about the kinds of behaviors you can expect to see in child in the next few months 52.5 44.1 Told you about ways to make your house safe for child 53.2 44.2 Always followed through with what s/he said s/he would do 53.2 44.8 Never made you feel as if your feelings or concerns about child were wrong 40.2 Let you consider options for you and child that were best for both of you 37.2 49.3 60.3 Helped you know what to do when child upsets you or does something wrong 31.1 62.1 Helped you to understand child's temperament 32.8 61 Helped you organize the daily routines for child 26.4 Referred you for help with emotional problems 23.4 Helped you find good child care arrangements 44.9 40.1 16.9 0 52.8 20 Source: 30-33 Month Interview 7-7 40 60 80 100 Chapter 7 Healthy Steps: The First Three Years Figure 7.3. Question: Now I am going to ask you how satisfied you are with the care you receive from the HS Specialist. [Are you] very satisfied, satisfied, dissatisfied, very dissatisfied? (N=2021) Very Satisfied (%) Written information the HS Specialist gave you about the child's health and development Satisfied (%) 76.9 22.4 Friendliness and caring of the HS Specialist 86.3 13.3 Attention the HS Specialist paid to what you had to say 85.7 13.4 Opportunity you had to ask questions of the HS Specialist 82.4 16.7 Explanations the HS Specialist gave you about child's health and development 77.6 21.5 How capable the HS Specialist was in working with you to promote child's health and development 76.5 22.4 Support you received from the HS Specialist regarding your role as a parent 75.5 23.3 Amount of time the HS Specialist spent with you 75.2 23.3 Information from developmental assessments the HS Specialist did 69.9 0 20 Source: 30-33 Month Interview 7-8 40 28.6 60 80 100
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