Stated-Preference Methods
Quarterly Newsletter
Issue 2, October 2014
The project “Advancing stated-preference methods for measuring the
preferences of patients with type 2 diabetes” was funded by PCORI (grant
number 5946). It aims to address gaps in the understanding and applications
of methods to conduct patient centered outcomes research (PCOR) and is
focused on advancing methods for engaging patients and community
stakeholders. The project addresses several key methodological questions
pertaining to the use of stated-preference methods, using type 2 diabetes as a
case study. The research team, led by John F. P. Bridges, is assisted by the
Diabetes Action Board (DAB), a community advisory board of national and
local stakeholders
Community Engagement
On September 23, Dr. Bridges participated as a panelist in the Faster Cure Benefit-Risk Boot Camp. At the boot camp, Dr.
Bridges gave a presentation on methods for eliciting patient preference and incorporating it into product development and
decision-making. In addition, he discussed his involvement in study of priorities and preferences of caregivers of children
with Duchene Muscular Dystrophy and the experience of writing and submitting the first ever patient-advocacy-initiated
guidelines to the FDA. More information on Faster Cures can be found at http://www.fastercures.org/.
The Community Research Advisory Board (C-RAC) and Dr. Bridges again in September. Dr. Bridges presented a case
study to demonstrate how researchers/patients/and advocacy groups can collaborate to determine patient preferences. A
fruitful discussion on the meaning of engagement, expectation from the research team and the C-RAC and future
involvement followed
Diabetes
The research team will conduct focus groups with patients with diabetes 2 in October and early November. The objective is
to solicit patient priorities and preferences topics to help guide the development of the national survey that will be
conducted next year. A lay language report on the qualitative research will be developed and distributed to the various
community groups and other stakeholders, as well as posted on the stated-preferences website. The November PCORI
progress report will also include an update on this qualitative work.
Questions? Comments?
Visit our website:
Contact us at the stated preference hotline:
http://www.jhsph.edu/research/affiliated-
(410) 287-1779
programs/stated-preferences/
or email Ellen Janssen:
Join our mailing list:
[email protected]
[email protected]
Newsletter 2, October 2014 Stated-Preference Methods
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