Conference Objectives
Explore the definition, conceptual grounding, and relationship to ethical
concepts of shared decision making, as well as its relationship to broader
issues of racial, socioeconomic and healthcare disparities and cultural
competence, in Baltimore, the US, and globally
Describe facilitators and barriers to shared decision making among patients,
families, and providers
Demonstrate the effect of innovative interventions to promote shared decision
making among patients, families, and providers.
Explore the experiences, unforeseen consequences and potential downsides of
shared decision making from the viewpoint of patients, families and providers.
The conference is free of charge and open to all. Patient participation will be
facilitated and encouraged.
Partnering with Patients in Decision Making at Johns Hopkins
Planning Committee (partial list)
Martha Abshire, Lisa Allen, Mary Catherine Beach, Kathleen Becker, Zackary Berger,
Emily Boss, John Bridges, Colleen Christmas, Patricia Davidson, Nick Dawson, Sydney
Dy, Michael Saheb Kashaf, Joy Lee, Harold Lehmann, Marie Nolan, Janet Record,
Debra Roter, Cynda Rushton, Andrea Schram, Monica Tung, Albert Wu
Sponsors
Johns Hopkins School of Medicine, Johns Hopkins School of Nursing, Johns Hopkins
Division of General Internal Medicine, Johns Hopkins School of Public Health, Johns
Hopkins Berman Institute of Bioethics, Johns Hopkins Primary Care Consortium, Patient
Experience Office of Johns Hopkins Hospital, The Patient – Patient-Centered Outcomes
Research, Sibley Innovation Hub
Keynote Speakers
Larry Allen, MD, is a cardiologist and heart failure specialist at the University of
Colorado, recently awarded a grant from PCORI for a multicenter trial of a shared
decision support intervention regarding therapy in end-stage heart failure.
D. Watkins is a columnist for Salon; his work has been published in the New York
Times, the Guardian, Rolling Stone and elsewhere. He is a professor of Creative Writing
at the University of Baltimore. Watkins grew up in and will never leave east Baltimore.
His memoir The Cook-Up will be released by Grand Central in May 2016.
Partnering with Patients in
Decision Making: Continuing the
Conversation at Johns Hopkins
Inaugural Conference, June 1, 2016, 8:30am-5:30pm
Owens Auditorium
Koch Cancer Research Building
Johns Hopkins Kimmel Cancer Center
1550 Orleans Street, Baltimore, MD 21231
Bioethicsinstitute.org/partnering
Preliminary Schedule
Wednesday, June 01, 2016
7:30 am to 8:00 am
8:30 am to 8:45 am
8:45 am to 9:45 am
10:00 am to 11:00 am
11:00 am to 11:30 am
11:30 am to 12:30 pm
12:30 pm to 1:30 pm
1:45 pm to 2:45 pm
2:45 pm to 3:00 pm
3:00 pm to 4:00 pm
4:00 pm to 5:00 pm
5:00 pm to 5:30 pm
Breakfast and Registration; Poster setup
Opening Remarks: Debra Roter, PhD
Keynote Speaker: D. Watkins
Panel: Conceptual and ethical foundations
of shared decision making
Morning break; Poster viewing
Panel: Partnering with patients in the
clinical context
Lunch; Poster viewing; Patient-led panel
Panel: Educating towards shared decision
making
Afternoon break; Poster viewing
Panel: Researching shared decision
making
Keynote Speaker: Larry Allen, MD
Awards, Closing Remarks, and Next Steps
We welcome submissions of abstracts to further the
conference objectives.
All submissions must be received by May 1, 2016. Notice of
acceptance will be sent by email by May 10, 2016. Abstracts
will also be selected for poster presentations. There will be
awards given for best abstract in several categories, including
student abstracts.
Abstracts will be reviewed by an interdisciplinary team
according to the following selection criteria:
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Involves a well-defined project related to shared
decision making in any one of the educational,
research, clinical, conceptual, or ethical realms
Addresses one of the conference objectives
Goals are clear and well defined
Addresses implications for policy, practice and
research
Projects presented should have evaluative
component where feasible and relevant
We encourage, and where possible will give priority
to, projects that include patients as co-authors
For more information:
Zackary Berger, MD, PhD, [email protected]