1 Quick Summary of the Child and Adolescent Health Measurement Initiative Act nd ea nd na op vel De • Promote Child Health and System Excellence cer • Dis • Transformative Goals for Child Health ova t • -Family-centered & datadriven Integrated measures and methods at the national, state & local levels -Tools to inform and activate families as improvement partners Stakeholder facilitation to inspire transformation -Advance new areas of research and policy aligned with life course and wellbeing model of health and health care Inn • Actionable Data & Data-Driven Tools Transfomational Partnerships Inspire and Inform www.nhiscamdata.org Health Care Quality Summary Measure (All Children) DATA SOURCE: 2011/12 National Survey of Children’s Health Nationwide: 39.0% Health Care Quality: • Adequate Health Insurance • Preventive Medical Visit in Past Year • Has a Medical Home Persistent gaps in health care quality and system capacity for CSHCN Proportion of CSHCN Meeting MCHB CSHCN Systems of Care Quality Indicators, Nationwide (2009/10 NS-CSHCN) CSHCN 12-17 Years Old 60% 50% 38.4% 40% 30% 26.5% 21.4% 20% CSHCN 0-11 Years Old 13.6% 10% 60% 48.5% 50% 0% 0-2 Achieved 3-4 Achieved 5 Achieved 40% -10% 31.4% 30% 20.1% 20% 10% 0% 0-2 Achieved 3-4 Achieved All 5 Achieved All 6 Achieved Examples of Data Use www.childhealthdata. org Engaging Parents as Improvement Partners, October, 2013 | Pre-Visit Well Visit Planner (WVP) The Well-Visit Planner Website: Three Steps Parents of young children visit the Well-Visit PlannerTM website and complete the following steps before their child’s age-specific well visit: Public use site available www. wellvisitplanner.org Site specific/branded option with parent visit guide transfer into EMR: Beta testing at PPOC in Boston Full EMR integration: Beta testing in FQHC’s and community pediatrics now. Spanish language version nearing completion Building and Translating Social Determinants of Health Knowledge into Policy and Practice The Science of Linked Lives and Life Course Health: Safety, Connection, Attachment, Stress and Health 12 13 “You can not go to good places with your mind if you can’t go good places with your body. “ Stephen Porges, PhD Professor Emeritus, University of Illinois at Chicago. Director, Brain Body Center in the Department of Psychiatry. Author: The Polyvagal Theory 14 Adverse Child Experiences Included National Prevalence State Range Child had one or more Adverse Child or Family Experiences 47.9% 40.6% (CT) - 57.5% (AZ) Child had two or more Adverse Child or Family Experiences 22.6% 16.3% (NJ) - 32.9% (OK) Socioeconomic hardship 25.7% 20.1% MD – 34.3% (AZ) Divorce/separation of parent 20.1% 15.2% (DC) – 29.5 (OK) Death of parent 3.1% 1.4% (CT) – 7.1% (DC) Parent served time in jail 6.9% 3.2% (NJ) – 13.2% (KY) Witness to domestic violence 7.3% 5.0% (CT) – 11.1% (OK) Victim or witness of neighborhood violence 8.6% 5.2% (NJ) – 16.6% (DC) Lived with someone who was mentally ill or suicidal 8.6% 5.4% (CA) – 14.1% (MT) Lived with someone with alcohol/drug problem 10.7% 6.4% (NY) – 18.5% (MT) Treated or judged unfairly due to race/ethnicity 15 4.1% 1.8% (VT) – 6.5% (AZ) Adverse Childhood Experiences National and State Data on Adverse Childhood Experiences and Resilience FOR CHILDREN (2011-12 NSCH (HRSA/MCHB/CDC) 47.9% of US Children 1+ (of 9) ACEs Age 0-17 years No adverse family experiences 22.6 25.3 52.1 One adverse family experience Two or more adverse family experiences State Variation In Prevalence of 2+ (of 9) ACES 16.3% (UT) – 32.9% (OK) across states. 16 18 Organization and Financing of Health Services Health Professions Work Force Capacity, Training and Support Access to Services & Resources Seven HSR/P Agenda Domains Informatics and Clinical Decision Making Practitioner, patient and consumer behavior Clinical Evaluation and Outcomes Research Quality of services and resources A Conclusion A Full Spectrum Needed for WHOLE Population Effect Data Collection and Analysis Adjustments and Spread to Scale & Public Acceptance Research, Interpretation And Dissemination Training, dialogue, tools, techniques 1. Population Effect Tools, Trainings, Curriculum Consulting, Strategy, Collective Impact Field Trials: Trauma Informed Communities and Care Field Trial Evaluation And Learning New and Emergently Needed Knowledge Space for ACO’s, States, Community, Population and Individuals’ Free Our Brilliance Take on Transparency Brave Being Six wishes for Maternal, Child and Family Health in the US Take on Trauma Become “We Ninjas” Prioritize Possibility There is no greater agony than bearing an untold story inside you Maya Angelou
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