Am J Clin Dermatol 2009; 10 (5): Supplementary Material
ORIGINAL RESEARCH ARTICLE
1175-0561/09/005-0001/$49.95/0
© 2009 Adis Data Information BV. All rights reserved.
Perception of Disease and Doctor-Patient
Relationship Experienced by Patients with
Psoriasis
A Questionnaire-Based Study
Dennis Linder,1 Elena Dall’Olio,2 Paolo Gisondi,2 Enzo Berardesca,3 Emilia De Gennaro,4 Angelo R.
Pennella,5 Alberto Giannetti,6 Andrea Peserico1 and Giampiero Girolomoni2
1
Section of Dermatology, University of Padua, Padua, Italy
2
Section of Dermatology, University of Verona, Verona, Italy
3
Istituto Dermatologico San Gallicano, IRCCS, Rome, Italy
4
Department of Geo-economics and Statistical Studies, University of Rome “La Sapienza”, Rome, Italy
5
Faculty of Psychology I, University of Rome “La Sapienza”, Rome, Italy
6
Section of Dermatology, University of Modena, Modena, Italy
Supplementary Material
This supplementary material contains the patient questionnaire referred to in the full version
of this article, which can be found at http://adisonline.com/dermatology
1
PATIENT QUESTIONNAIRE
SECTION 1 – REFERENCE STRUCTURE
City
Psocare Center
SECTION 2 – PERSONAL DATA
Sex
M
F
Age
Academic
qualification
Residence municipality
Primary school
Secondary school
High school
Technical school
Bachelor
Other (specify)
Working activity
Laborer
Craftsman
Trader
Clerk
Teacher
Freelance
Entrepreneur
Housewife
Pensioner
Other (specify)
SECTION 3 – GENERAL INFORMATION ABOUT DISEASE
1.0
How long have you had psoriasis?
1
2
3
4
5
6
7
8
9
10
11
12
Less than six months
From six months to one year
From one to two years
From two to three years
From three to four years
From four to five years
From five to six years
From six to seven years
From seven to eight years
From eight to nine years
From nine to ten years
More than ten years
2
2.0
Who diagnosed your psoriasis initially?
1
2
3
General practitioner
Private dermatologist
Hospital dermatologist
3.0
Did the physician assess other diseases to explain your symptoms, before reaching the diagnosis of
psoriasis?
YES
NO
3.1
(ONLY IF YOU ANSWER YES TO 3.0) What other diseases were diagnosed before psoriasis?
Dermatitis
Allergy
Mycosis
Seborrheic dermatitis
Contact dermatitis
4.0
1
2
3
4
5
How severely does your dermatologist classify your psoriasis?
1
2
3
4
Mild
Moderate
Moderate-severe
Severe
5.0
Have you developed articular pains since you have had psoriasis?
YES
NO
6.0
Have you observed articular deformations (i.e. hands), since you have had
psoriasis?
YES
NO
6.1
(ONLY IF YOU ANSWER YES TO 6.0) How long ago?
7.0
Are you receiving therapy for psoriasis?
YES
NO
7.1
(ONLY IF YOU ANSWER YES TO 7.0) Which of the following drugs?
1
2
3
4
5
6
7
8
9
10
11
12
ELOCON lotion
VELLUTAN ointment
TICLAPSOR ointment
ADVANTAN cream
LOCOIDON lotion
NEOTIGASON pills
SANDIMMUN or NEORAL pills
METHOTREXATE pills or injection
HUMIRA injection
RAPTIVA injection
ENBREL injection
REMICADE injection
Other (specify)
3
8.0
Regarding the results obtained from your present therapy, you are...
1
2
3
4
Very satisfied
Quite satisfied
Slightly satisfied
Not at all satisfied
9.0
9.1
At present are you receiving pharmacological therapies for other chronic systemic diseases?
YES
NO
(ONLY IF YOU ANSWER YES TO 9.0) Which?
10.0 In the past have you undergone other pharmacological therapies for psoriasis?
YES
NO
10.1 (ONLY IF YOU ANSWER YES TO 10.0) How many therapies have you received during the last 10
years?
Two
From two to five
From six to ten
More than ten
10.2
11.0
(ONLY IF YOU ANSWER YES TO 10.0) Who prescribed your previous therapies?
General practitioner
Private dermatologist
Hospital dermatologist
1
2
3
4
1
2
3
If you have had other therapies for psoriasis in the past, which of the following drugs did you use?
1
ELOCON lotion
2
VELLUTAN ointment
3
TICLAPSOR ointment
4
ADVANTAN cream
5
LOCOIDON lotion
6
NEOTIGASON pills
7
SANDIMMUN or NEORAL pills
8
METHOTREXATE pills or injection
9
HUMIRA injection
10
RAPTIVA injection
11
ENBREL injection
12
REMICADE injection
Other (specify)
4
SECTION 4 – PERCEPTION OF DISEASE
12.0 If you had to describe the emotions that psoriasis rouses in you, which words would you use?
(MULTIPLE ANSWERS ARE POSSIBLE)
1
6
Irritation
Shame
2
7
Annoyance at the
Anxiety
inconvenience of the
disease
3
8
Anger
Acceptance
4
9
Disappointment
Challenge
5
10
Powerlessness
Submission
None of these
11
12.1 What other words could you use to describe your emotive reactions to psoriasis?
13.0 In your opinion, can people without psoriasis understand the life experience of psoriatic patients?
1
Very much
2
Enough
3
Little
4
Not at all
13.1 Why?
14.0 In what areas does psoriasis particularly limit your life? (MULTIPLE ANSWERS ARE POSSIBLE)
1
Diet
Work
2
Smoking
Social interactions
3
Clothing
Relationships with friends
4
Sports
Personal hygiene
5
Sentimental (loving)
Family relationships
relationship
No activity or social interactions are limited by psoriasis
6
7
8
9
10
11
5
SECTION 5 – PHYSICIAN-PATIENT RELATIONSHIP
15.0 How many dermatologists have you consulted since you have had psoriasis?
1
2
3
4
One
Two
From three to five
More than five
15.1
(ONLY IF YOU CHOOSE 2, 3 AND 4 IN 15.0) Why did you consult more than one dermatologist?
Previous dermatologist sent me to a colleague
Pharmacological therapies did not satisfy me
The dermatologist had a cool and detached attitude
The waiting list was too long
Appointments were difficult to book
1
2
3
4
5
Other (specify)
16.0
If you had to weigh up your dermatologist’s approach, how would you assess it?
(MULTIPLE ANSWERS ARE POSSIBLE)
Friendly
Impersonal
Welcoming
Detached
Sympathetic
Hurried
1
2
3
4
5
6
Other (specify)
17.0
What information did the physician give you the first time he/she diagnosed your psoriasis?
(MULTIPLE ANSWERS ARE POSSIBLE)
1 Localization of symptoms
Names and how to use drugs
2 Information about etiology
Incurability of disease
18.0 Did the physician give you other information?
18.1
3
4
YES
NO
(ONLY IF YOU ANSWER YES TO 18.0) What?
19.0 Regarding your present experience, how do you assess the information about your disease that you
received during the first diagnosis?
1
Very exhaustive
2
Quite exhaustive
3
Slightly exhaustive
4
Not at all exhaustive
6
20.0
Regarding your present experience, what kind of information should the physician have given you?
21.0
Do you think your present dermatologist is able to understand the psychological problems of a
patient with psoriasis?
1
Very much
2
Enough
3
Little
4
Not at all
22.0
If you had to describe ‘the ideal dermatologist’, what characteristics would he/she have?
(PUT THE PROPOSED ALTERNATIVES IN ORDER OF IMPORTANCE [1 = MOST IMPORTANT])
To use simple/everyday language
To pay attention to patients’ words
To inform patients about a correct lifestyle
To explain the pros and cons of the different therapeutic options
To reassure patients when they are very discouraged
To be sympathetic about patients’ ‘transgressions’
To accept a patient’s request to change therapy
1
2
3
4
5
6
7
Other (specify)
23.0
In your opinion, what should dermatologists know in order to improve their relationship with
psoriatic patients?
(PUT THE PROPOSED ALTERNATIVES IN ORDER OF IMPORTANCE [1 = MOST IMPORTANT])
1
Interpersonal communication techniques
2
Psychology of patients with psoriasis
3
Non-pharmacological therapies as additions or alternatives to drugs
Other (specify)
7