Need Category
Adaptive Sports and Recreation
The Carolina Fury
Website
COMMUNITY RESOURCES FOR HEALTHCARE NEED
Contact
Summary
Email:
[email protected];Phone:( North Carolina Electric Wheelchair Hockey Association for all
http://ncpowerhockey.com 919)-394-0700;PO Box 384 Pikeville, ages/genders. Practices at Charles B. Aycock High School near
/carolina_fury
NC 27863
Goldsboro,NC.
Phone:(919)719-7662; Headquarters Provides opportunity for children and adults with intellectual
Office: 2200 Gateway Centre Blvd.,
disabilities to participate in year-around sports training and
Ste.201 Morrisville, NC
athletic competition
Special Olympics
http://sonc.net/
Bridge2Sports
Sports for Special Kids
Email: [email protected];
http://www.bridge2sports. Phone: (866) 880-2742; 4122 Bennett
Memorial Rd. Suite 105 Durham NC
org/
http://www.sportsforspecia submit an inquiry on the website
Nonprofit that provides opportunitites for adults and children
with physical disabilities to participate in team and individual
sports
Provides resources for organizations to provide physical
Provides equine-assisted activities and therapies for children
and adults with physical, emotional, mental and social
challenges
Email:[email protected]; Phone:
(919)304-1009; 4705 Nicks Rd.
NC Therapeutic Riding Center
http://www.nctrcriders.org/ Mebane NC
Phone:(919) 354-2710 or (919)560http://durhamnc.gov/ich/o 4296; Walltown Park Recreation
Durham Inclusion and Mature Adult p/prd/Pages/Mature-Adult- Center 1308 West Club Blvd. Durham
Program
Programs.aspx
NC
Programs and activities for persons 55 or better
Durham Parks and Recreation
Special Populations/Inclusion and http://durhamnc.gov/ich/o Rhonda Parker; Phone: (919)560Mature Adults Programs
p/prd/Pages/Home.aspx
4355
Programs are designed for participants with disabilities
http://www.nchpad.org/Dir
Program offers therapeutic recreation, leisure education,
Raleigh Parks and Recreation
ectories/Programs/8605/Sp
sports programs, day trips, and camps to participants who
Specialized Recreation Services
ecial~Populations~Program
have disabilities
http://www.actorsfund.org/ Email: [email protected];
Provides emotional, educational, and emergency financial
Phone: 212-221-7300 ext 117
support to professional dancers that have been injured
The Dancer's Resource
services-andEmail: [email protected]; Phone: Nonprofit organization that is dedicated to creating mobility
1-800-838-1845
and independence to people with disabilities
AMBUCS
http://www.ambucs.org/
How iRoll Sports
http://www.howiroll.com/ Email: [email protected]
Informational resource for paraplegics about life in a
Challenged Athletes FoundationCatch A Rising Star
Advocacy
Alliance of Disability Advocates
Disability Rights NC
The Arc of NC
Aging
North Carolina Division of Aging
and Adult Services
Alzheimer's Association
Traingle J Area Agency on Aging
County Offices for Aging
Community & Senior Services of
Johnston County/ Alzheimer's
Organizations
Amputation
Amputee Coalition of America
http://www.challengedathl
etes.org/site/c.4nJHJQPqEiK Email: [email protected];
UE/b.6449457/k.F5E1/Catc Phone: (858)866-0959
Conducts clinics to teach individuals with physical challenges
how to use adaptive sports equipment (based in CA)
Email: [email protected]; 1012
http://www.alliancecil.org/ Oberlin Rd. Suite 300 Raleigh NC; 919- Advocate for all ages and abilities to advance civil rights of
aboutus.htm
833117
equal acces and participation in society
Email: [email protected];
http://www.disabilityrights 3724 National Drive, Suite 100
nc.org/
Raleigh NC; 919-856-2195
Email: [email protected]; 343 E Six
Forks Rd. Raleigh NC; Phone:
http://www.arcnc.org/
(919)782-4632
http://www.ncdhhs.gov/agi Phone: (919)855-3400 Fax: (919)733ng/services/svclist.htm
0443
Email: [email protected]; 24/7 Helpline
phone: 1-800-272-3900
http://www.alz.org/
4307 Emperor Boulevard Durham,
http://www.tjaaa.org/progr NC; Phone: 919-558-2711-Program
ams-services.aspx
Associate
http://www.econline.net/Community/Neig
hborhood/nc.htm
Advocates for the rights and legal entitlements of disabled
individuals in NC
Affiliated chapter of The Arc of the US that helps people with
intellectual and developmental disabilities realize their goals
Promotes independence and enhances the dignitiy of NC's
older adults, persons with disabilities, and their families
Volunatry health organization in Alzheimer's care, support,
and research
Provides aging services to seven NC counties: Chatham,
Durham, Johnston, Lee, Moore, Orange, and Wake
Website that provides links and contact information for NC
County Offices for Aging
http://www.cssjohnston.or
g/senior-services#!__senior- Email: [email protected]; Phone: Provides housing, transportation, services and opportunitites
services/nutritional-support (919)934-6066
for older adults to remain active
http://www.amputeecoalition.org/
Phone Toll-Free: 888-267-5669
Nonprofit organization that provides education, support, and
advocacy to people affected by limb loss
http://www.wakehealth.ed
u/Recreation-Therapy/ClubClub Independence
Independence.htm
http://www.traumasurvivor
Live Again: Amputee Supoort Group-snetwork.org/trauma_cente
Wake Forest Baptist Health
rs/23/events/41
Assistive Technology
Email: [email protected];
Phone:336-716-8007
Wake Forest Baptist Health interactive Recreation Therapy
program that provides education, recreation, and health and
wellness opportunties for individuals with disabling conditions
Email: [email protected]; Curt
Wilson 336-655-3742
A support group for amputees and family
North Carolina Assistive Technology
Program
http://www.ncatp.org/
Email: [email protected]
NC Assistive Technology Exchange http://www.ncexchangepos
Post
t.org/home.php
NC Statewide Independent Living
Council (NCSILC)
AbleData
Basic Needs
Habitat for Humanity of NC
North Carolina Division of Social
Services
Medicare.gov
Centers for Medicare & Medicaid
Services
NC Division of Medical Assistance
NC Medicaid
http://ncsilc.org/
505 Oberlin Rd. Raleigh NC; Phone:
(919)835-3636; Fax: (919)835-4749
Email: [email protected];
http://www.abledata.com/ Phone: 1-800-227-0216
Provides Assistive Technology services to people of all ages
and abilities; resource for professionals in disability related
fields and employers and employees
Website that facilatates AT equipment exchange between
individuals
federally-mandated, not-for-profit, Governor appointed
council that develops plans to adress statewide independent
living services and a statewide network of Center for
Independent Living
Resource that promotes awareness of assistive technology
options and programs available
Email: [email protected]; Phone: 336- Christian housing program that builds and repairs homes at no
profit to individuals
http://www.habitatnc.org/ 703-1999
http://www.ncdhhs.gov/dss
Protects the health and safety of all North Carolinians and
provides essential human services
/
Phone: 1-800-MEDICARE (1-800-6334227)
http://medicare.gov/
Official US Government site for Medicare
Federal government website that provides information about
Medicare & Medicaid services
http://www.cms.gov/
Sector of NC Department of Health and Human Services; use
http://www.ncdhhs.gov/dm Director Dave Richard Phone:
the resources and partnerships of Medicaid to improve NC
a/
(919)855-4100
health care
http://www.ncdhhs.gov/dm
Service provided by DMA; website that provides information
about Medicaid
a/medicaid/
NC Health Choice
Medicare/Medicaid
The Salvation Army
Catholic Charities-USA
Catholic Charities-Raleigh
Baptists on Mission
Advocacy and Customer Service
Children with Special Health Care
Needs Help Line
Communication
http://www.ncdhhs.gov/dm
a/healthchoice/
Service provided by DMA; comprehensive health coverage
program for low-income children
http://www.ncdhhs.gov/dm
a/medicaid/medicare.htm
https://www.salvationarmy
carolinas.org/
Service provided by DMA; website that provides information
about Medicaid for Medicare recipients
International charitable organization that feeds, clothes,
comforts and cares for individuals in need
http://catholiccharitiesusa.
org/
http://www.catholiccharitie
sraleigh.org/
http://baptistsonmission.or
g/missions
Email: [email protected];
Phone: 703-549-1390
National office for Catholic Charities
http://www.ncdhhs.gov/M
HDDSAS/services/advocacy
andcustomerservice/index.
htm
http://www.ncdhhs.gov/dp
h/wch/families/helplines.ht
m
Email: dmh.advocacy.dhhs.nc.gov;
Phone: (919) 715-3197; Toll Free: 1855-262-1946; Spanish: 1-800-6627030
Email:
[email protected];
Phone: 1-800-737-3028
Phone: (919)821-9750
Phone: (800) 395-5102 ext.5599
http://www.nuance.com/dr
Nuance Dragon Naturally Speaking agon/index.htm
Phone: 781-565-5000
Durable Medical Equipment
Email:
http://www.firsthandfound [email protected];
First Hand Foundation
ation.org/
Phone: (816)-201-1569
US Variety- The Children's Charity
of the US National Mobility
Program
http://www.usvariety.org/
Charitable outreach arm of the Diocese of Raleigh
Local, state and international mission projects through faithbased organization, North Carolina Baptist Men
Supports consumer choice and ensures rights are protected
Information and referral Help Line for those living with, caring
for and concerned about a child with special health care needs
PC or Mac program that enables you to create and edit
documents or email without typing
Public charity that provides funding for individual children
with health needs when insurance and other financial
resources have been exhausted
Children's charity chapters that help children in need
Email: [email protected]; Charitable organization that provides medical grants to help
Phone: 1-855-MY-UHCCF (1-855-698- children gain access to health-related services not covered by
The UnitedHealthcare Children’s
Foundation
http://www.uhccf.org/
4223)
insurance
Roberts-Miller Children's FundFund to provide assistance to NC children under the age of 18
Community Foundation of Gaston http://www.cfgaston.org/H Phone: 704-864-0927; 1201 E.
with serious medical/dental or related needs that cannot
County
ome.aspx
Garrison Blvd. Gastonia, NC
afford the service
http://www.trianglecf.org/g
rants_support/grants_for_i Email: [email protected]; 324
Durham Cerbral Palsy Fund Triangle ndividuals/Durham_CP_Fun Blackwell St. Suite 1220 Durham NC; Provides financial assistance to children ages birth through 18
Community Foundation
d/
Fax: 919-941-9208
years with cerebral palsy living in NC
Nonprofit humanitarian organization committed to serving
Email: [email protected];
the indigent and oppressed childred and their families
Disabled Children's Fund
http://disabled-child.org/
Phone: (301)-261-3211
worldwide
Email:
Nonprofit organizataion that advocates for the physically
http://www.wheelchairfoun [email protected];
diabled and provides wheelchairs to individuals around the
Wheechair Foundation
dation.org/
Phone (Toll-Free): 877-378-3839
world who cannot afford them.
O'Berry Center Foundation
Wheels for the World
Handi-Clean Family Foundation
NC Lions Club
Rotary Clubs/Rotary International
Early Intervention Services
Email:
http://www.oberrycenterfo kimberly.jansen@oberrycenterfound A state run residential facility with the purpose of serving the
undation.org/
ation.org; Phone: 919-581-4187
developmentally disabled population located in Goldsboro,NC
http://www.joniandfriends.
org/wheels-for-the-world/ Phone: 818-707-5664
http://www.guidestar.org/o
rganizations/566093209/handi-clean-familyfoundation.aspx
2302 Meadowlark Rd.High Point, NC
Phone: 1-828-478-2135 ext.223;
7050 Camp Dogwood R. Sherrills
http://nclionsinc.org/
Ford, NC
https://www.rotary.org/
Phone: (866)976-8279
Christian organization that provides free wheelchairs
worldwide to children and adults physically disabled
Charitable organization that aids physically handicapped
children and adults
Nonprofit that assists and empowers blind and visually
impaired NC residents
Organization that supports communities through different
service projects
Together We Grow
http://www.togetherwegro Phone: 858-751-0506; 5055
w.org/
Viewridge Avenue, San Diego CA
Exceptional Children's Assistance
Center
http://www.ecacEmail: [email protected]; Phone:
parentcenter.org/Default.as 704-892-1321; 907 Barra Row
px
Davidson, NC
Children's Developmental Services
Email: [email protected];
Agency
http://www.beearly.nc.gov/ Phone: 919-707-5520
http://www.beearly.nc.gov/
data/files/pdf/parenthandb
NC Infant Toddler Parent Handbook ook.pdf
NC Early Intervention and Early
Childhood Libraries
Education/Transition Services
Campbell Univeristy Disability
Services
Vocational Rehabilitation
CFNC College Guide for Students
with Disabilities
http://www.nceieclibrary.org/
Email: [email protected];
Phone: 1-800-962-6817 ext.13
http://www.campbell.edu/s
tudent-services/studentEmail:
support-services/disability- [email protected];
services/
Phone: (800)-334-4111, Ext. 4364
http://www.ncdhhs.gov/dvr
s/
Phone: 919-855-3579
https://www1.cfnc.org/ima
ges/transitions/pdf/transiti
ons.pdf
Phone: 866-866-CFNC
Center that offers opportunites for disabled children to
socially interact with other children and is composed of a staff
team of health care proffesionals
Private non-profit organization committed to improving the
lives and education of all children through a special emphasis
on children with disabilities
Helps families, caregivers, and professionals serve children
with special needs birth to three through the Infant Toddler
Program (NC ITP)
A parent handbook that explains the Infant-Toddler Program
(NC ITP) that is part of the NC Early Intervention Branch (NCEI)
A large collection of print and video materials that focus on
young children with special needs that are avaiable for loan to
professionals and parents in NC
The Office of Student Success administers disability services
for students at Campbell University.
Provides counseling, training, education, transportation, job
placement, assistive technology, and other supportive
services to individuals with disabilities
Topics that may be of interests to students with disabilitites
and their families
Association on Higher Education
And Disability (AHEAD)
Beyond Academics
Project STIR
NC Exceptional Children
Think College website
NC Postsecondary Alliance
North Carolina Postsecondary
Education Alliance
National Secondary Transition
Technical Assistance
Parent Advocacy Coalition for
Educational Rights (PACER) Center
End of Life
http://www.ahead.org/
Phone: (704)947-7779
A professional membership organization for individuals
involved in the development of policy and the provision of
quality services to meet the needs of persons with disabilitites
involved in all areas of higher education.
Email: [email protected];
Admissions Phone: (336)334-3905;
http://beyondacademics.un Administrative Phone: (336)-334Four year, post-secondary certification-based education
cg.edu/
3855
program for students with intellectual disabilities at UNCG
Program affiliated with the Carolina Institute for
Developmental Disabilities (CIDD) that provides services,
http://www.selfEmail: [email protected]; research, and training relevant to inviduals with
advocate.org/
Phone: (919)962-3603
developmental disabilitites and their families.
Contact the program director for
your specific county. Harnett County Affiliated with the NC Department of Public Instruction and
ensures that students with disabilitites develop intellectually,
http://ec.ncpublicschools.g Program Director: Kevin Allen;
ov/
Phone: (910)893-5816
physically, emotionally, and vocationally in public schools
http://www.thinkcollege.ne
Website that provides resources and displays college options
for people with intellectual disabilities
t/
Email: [email protected]
http://www.cidd.unc.edu/p
sea/
Group that focuses on expanding the options for
http://www.cidd.unc.edu/p Email: [email protected]; Phone:
postsecondary education for individuals with developmental
sea/
(919)966-5171
disabilitites in NC.
Email: [email protected]; Phone:
NSTTAC is a national technical assistance and dissemination
(704)687-8853; David Test, Project
center funded by the US Department of Education's Office of
http://nsttac.org/
Co-Principle Investigator
Special Education Programs
http://www.pacer.org/
Email through the website; Phone:
(888)-248-0822
Focuses on expanding opportunities and enhance the quality
of life for children and young adults with disabilities
Association for Home & Hospice
Care of NC (AHHC)
Food Services
Meals on Wheels
Harnett County Elderly Nutrition
Program
Community & Senior Services of
Johnston County
Military
United States Service Organizations
of NC (USO-NC)
Veterans of Foreign Wars
Deparment of NC
http://www.homeandhospi
cecare.org/directory/index. Dr. Aldona Wos, Secretary; Phone:
html
(919)855-4800
http://www.mealsonwheels
america.org/
http://wakemow.org/conta
ct/
http://www.harnett.org/agi
ng/elderly-nutritionprogram.asp
1001 Blair Drive, Raleigh, NC 27603;
P.O. Box 37639, Raleigh, NC 276277639 ; Phone 919.833.1749;
Fax 919.833.2705
A resource guide to in-home health, hospice and communitybased care services in NC
Helps provide meals for seniors so they can live healthier and
more nourished lives in their own homes
Debby Vaughn; 910-893-7578 or 910814-6072; [email protected]
Provides meals 5 days per week at Harnett county sites
Contact desired center
http://www.cssjohnston.or
g/about-us#!__our-centers
Email: [email protected];
Phone: (919)840-3000
http://uso-nc.org/
Email: [email protected];
Phone: (910)393-7312
http://vfwnc.org/
http://www.militaryfamily.o Email: [email protected];
Phone: (703)931-6632
National Family Military Association rg/
Military and Veterans Resource
Coalition (MVRC)
http://mymvrc.org/
Email through the website
http://www.wakegov.com/
veterans/Pages/benefits.as
WakeGOV Veterans Services
px
Parent and Family Support
Family Support Network Affiliate
Find your local affiliate program on
programs
the website
http://www.fsnnc.org/
3 Dining Centers located in Kenly, Princeton, and Smithfield
Offers support services and programs to military servicemen
and women and their families in NC
Provides support and programs for veterans
Offers support services and programs to military servicemen
and women and their families nationwide
Provides resources for veterans, service members, and their
loved ones
website that provides benefits, services, and resources for
veterans
Local resources available to support families with special
needs children
Center for Parent Information and
Resources (CPIR)
Parents with Disabilities Online
First in Families of NC
Parent to Parent USA (P2P USA)
http://www.parentcenterhu
b.org/
Email: [email protected]
http://www.disabledparent
s.net/
Email through website
Email: [email protected]; 3109
University Dr. Durham NC; Phone:
http://www.fifnc.org/
(919) 251-8368
http://www.p2pusa.org/p2
pusa/SitePages/p2phome.aspx
http://www.ecacparentcenter.org/About-theNC Parent Training and Information PTI.aspx?sid=17&pid=3&red
Center (PTI)
=yes
Phone: (704)892-1321
Developmental Disabilities
http://www.ddrinc.org/inde Phone: (704)573-9777 or (980)444Resources
3084
x.php
Respite Care
The ARCH National Respite
Email: [email protected];
Network and Resource Center
Phone: (703)256-2084
http://archrespite.org/
http://northcarolinarespitec Email: [email protected]; Phone:
(828)586-1962, Ex.218
NC Respite Care Coalition
arecoalition.org/
Training for Caregivers in NC
http://www.ncdhhs.gov/do
cument/special-assistancehome-program-adults
Phone: (919)855-3400
http://www.nc211.org/
Dial 2-1-1 or 888-892-1162
http://www.fullcirclecare.or
g/nc/training.html
Care.com
https://www.care.com/
Special Assistance In-Home
Program
NC 2-1-1
Program for families of disabled children. Serves as a central
resource of information and products to the community of
Parent Training Information (PTI) Centers and the Community
Parent Resource Center (CPRCs)
Provides information, support, and resources to parents with
disabilities
Provides family support to people with developmental
disabilites and traumatic brain injuries
National non-profit organization committed to promoting
access, quality, and leadership in parent to parent support
Provides services to parents and families of children with
disabilities in NC at no cost
Provides options and opportunities for individuals with
intellectual and developmental disabilities
Assists and promotes the development of quality respite and
crisis care services
Promotes and supports a statewide quality intergenerational
respite care system
Assistance to help adults continue to live at home
A network of resources in NC
Website that provides resources for caregivers
Website that provides child, senior, and pet care, and
housekeeping
Sittercity.com
https://www.sittercity.com/
Sitter and nanny service based on family needs
Family Caregiver Alliance, National https://caregiver.org/nation
Center on Caregiving
al-center-caregiving
Phone: (800)445-8106
Summer Camps
http://www.veryspecialcam
ps.com/NorthCarolina/Special-NeedsSpecial Needs Summer Camps in NC Summer-Camps.shtml
American Camping Association
Disability Resources, Inc.
Tammy Lynn Center
Muscular Dystrophy Association
Camp
http://www.acacamps.org/ Phone: (800)-428-2267
http://driabilene.org/
Email: [email protected]; Phone:
(325)677-6815
Summer camps located in NC for children with various
disabilities including ADHD,Autism,physically and visually
impaired,etc
Works to preserve, promote, and improve camp experiences
and accredits camps
Multi-purpose activity center in Texas that provides
exceptional care to intellectually challenged adults in a
Christian environment
http://www.tammylynncent Email: [email protected]; Empowers families and enriches the lives of children and
er.org/
Phone: (919)832-3909
adults through education, community, and support services
Summer camp for children with neuromuscular disease where
https://www.mda.org/sum Email: [email protected]; Phone:
they can meet other children with the same needs and
mer-camp
(800)572-1717
experiences
http://www.uncchildrens.or
g/uncmc/unc-childrens/caretreatment/therapy/hemiple
Helping Kids With Hemiplegia Camp gia-camp/
Victory Junction Gang Camps
http://victoryjunction.org/
YMCA Specialty Camps
http://www.ymca.net/
Camp Abilities at Camp Dogwood
for the Blind
Improves the quality of life for caregivers and those they care
for through information, services, and advocacy
Email: [email protected];
Phone: (336)498-9055
Phone: (800)872-9622
Susan King;Email:
http://nclionscampdogwoo [email protected];1-800-662d.org/
7401 ext 230; Sherrills Ford, NC
A therapeutic day camp for children ages 3-10 with motor
impairment on one side of their bodies led by a UNC
Children's occupational therapist. Application required.
A camp for children with serious illness at no cost to their
families
Camps that focus on particular programming for campers with
special needs
Vacation retreat for persons with blindness and visual
impairment
Camp United Brachial Plexus
Network (UBPN)
Transportation
http://www.ubpn.org/regist Email: [email protected]; Phone:
er-for-camp-ubpn-2015
(781)315-6161
Family camp for adults and children of all ages affected by
brachial plexus injuries
Site that helps connect individuals with resources within their
specific area.
Acess-Able Travel Source
http://www.carepathways.c
om/TRANSx.cfm
http://accessable.com/graphical_index.h
tml
Accessible Raleigh Transportation
(ART)
http://www.raleighnc.gov/h
ome/content/PWksTransit/
Articles/AccessibleRaleighTr
ansportation.html
Phone: (919)996-3459
City of Raleigh provides transportation services for people
with disabilities
http://www.ridefast.net/fas
ttrac
Phone: (910)433-1232
http://jlhcommunityaction.
org/
Phone: (919)934-2145
Fayetteville passengers who have challenges riding the fixed
route bus system can request accomodating transportation
Non-profit agency that provides resources to help
permanently improve the lives of the disadvantaged
http://www.plannedparent
hood.org/
Phone: (919)833-7534
Provides comprehensive reproductive and health care
services
Transportation Services
Fayetteville Area System Transit
Fast-TRAC
Johnston-Lee-Harnett Community
Action
Sexual Assault
Planned Parenthood
NC Coalition Against Sexual Assault http://www.nccasa.org/
Other Resources
Easter Seals
Shriner's Hospitals
Database that provides resources to travel for those who have
special needs
Phone: (919)871-1015
Provides information, referrals, and resources to individuals,
rape crisis programs, and other organizations
http://www.easterseals.co Email through website; Phone: 800m/
221-6827
Provides a variety of services to help people with disabilitites
address life's challenges and achieve personal goals
http://www.shrinershospita
lsforchildren.org/
Hospitals located throughout the nation that provide health
care to children regradless of the family's ability to pay for the
following specialties: orthopaedics, burn care, spinal cord
injury, and cleft lip and palate
NC Division of Blind Services
Beginnings (hearing impairment)
Diagnosis Specific
ALS Assocation (NC Chapter)
Brachial Plexus: United Brachial
Plexus Network
Brain Tumor (Pediatric): A Kid's
Brain Tumor Care
Brain Injury: Brain Injury
Association of America
Diabetes: American Diabetes
Association
http://www.ncdhhs.gov/div
isions/dsb
Phone: (919)733-9822
Provides services to people who are blind or visually impaired
to help them reach their goals of independence
http://ncbegin.org/
Offers emotional support and technical support to families
with deaf or hard of hearing children and deaf parents with
hearing children and professionals serving those families
Phone: (919)715-4092
http://webnc.alsa.org/site/
PageServer?pagename=NC_ Email: [email protected];
homepage
Phone: (919)755-9001
Email: [email protected]; Phone:
(781)315-6161
http://www.ubpn.org/
http://akidsbraintumorcure. Email:
org/
[email protected]
http://www.biausa.org/
Phone: (703)761-0750 Ex.620
http://www.diabetes.org/
Phone: 1-800-DIABETES
Diabetic Neuropathy: MD JunctionPeople Hearing People with
http://www.mdjunction.co
Diabetic Neuropathy
m/
Email through the website
Guillan Barre Syndrome
http://www.gbs-cidp.org/
Huntington's Disease: Huntington's
Disease Society of America
http://hdsa.org/
Phone: (610)667-0131
Email: [email protected]; Phone:
800-345-HDSA
NC ALS Jim "Catfish" Hunter Chapter; offers hope and
resources for those affected by ALS in research, patient and
community services, public education, and advocacy
Provides support services and resources for individuals and
families affected by brachial plexus
Advocates for research and provides resources and
information to individuals about the most common forms of
pediatric brain tumors
Nationwide brain injury advocacy organization
Deliver services and funds research to prevent, cure, and
manage diabetes
Online support group for people dealing with health
challenges
Global, non-profit organization supporting individuals and
their families affected by GBS, CIDP, and related symptoms
Nonprofit organization dedicated to improving the lives of
everyone affected by Huntington's disease by providing
community services and education
Multiple Sclerosis: MS Navigator
Myasthenia Gravis Association
Parkinson's Disease: Parkinson's
Disease Foundation
Spinal Cord Injury: Apparelyzed
Transverse Myelitis Association
http://www.nationalmssoci
ety.org/ResourcesSupport/Find-Support/Ask- Phone: 1-800-FIGHT-MS (1-800-344- Online community that can answer questions or provide
an-MS-Navigator
4867)
resources for individuals seeking information related to MS
Serves Myasthenia Gravis patients, their families and
http://www.myasthenia.org
caregivers through a network of chapters, support groups,
/
Phone: 1-800-541-5454
and programs
Provides resources and advocates for research and education
Email: [email protected]; Phone: (800)457- for individuals affected by Parkinsons Disease. Individuals can
6676
http://www.pdf.org/
call their National HelpLine for more information.
http://www.apparelyzed.co
Free spinal cord injury peer support website run by people
with SCI
m/
Email: [email protected]; Phone:
Supports and advocates for individuals and their families
(855)380-3330 or (614)317-4884
diagnosed with TM
http://myelitis.org/
Stroke Support Group
http://www.christopherree
ve.org/site/c.ddJFKRNoFiG/
b.4048063/k.67BA/The_Chr
istopher_amp_Dana_Reeve
_Foundation__Paralysis_am
p_Spinal_Cord_Injury.htm
http://www.cesassociation.
org.uk/
http://www.caudaequina.or
g/mission.html
http://www.stroke.org/stro
ke-resources/strokesupport-groups/join-ourstroke-support-groupregistry
United Cerebral Palsy Foundation
http://ucp.org/
Spinal Cord Injury: Christopher &
Dana Reeve Foundation
Cauda Equina Syndrome
Association
Cuada Equina Syndrome Support
Group
Email: [email protected];
Phone: 1-800-539-7309
Email: [email protected]
Email: [email protected];
Phone: 1-800-787-6537
Email through the website; Phone:
(800)872-5827
Funds research and improves the quality of life for people
living with paralysis through grants, information, and
advocacy
Promotes awareness and provides support for individuals with
CES
Provides information, support, and increases awareness of
Cauda Equina Syndrome
Support group with the National Stroke Association that
provides free resources for participants
Educates, advocates,and provides support services for people
with a spectrum of disabilities
The Autism Society
Spina Bifida Association
Cystic Fibrosis Foundation
http://www.autismsociety.org/
http://www.spinabifidaasso
ciation.org/site/c.evKRI7OXI
oJ8H/b.8028963/k.BE67/Ho
me.htm
http://www.cff.org/
Email: [email protected];
Phones: (301)657-0881
Email: [email protected]; Phone:
(202)944-3285
Email: [email protected] (see chapter
directory for local email address);
Phone: (301)951-4422
Provides resources, support, and education for individuals and
families affected by autism
Serves adults and children who live with Spina Bifida
Provides all people with the disease the opportunity to lead
full lives by funding research and drug development,
promoting individualized treatment, and ensuring access to
high-quality, specialized care