Maternal and Child Health Advisory Task Force Friday, June 7, 2013 Meeting Summary Members Present: Ken Bence Joan Brandt Carol Grady Stephanie Graves Tanya Hagre Joel Hetler Julie Jagim Susan Morris Michelle O’Brien Martha Overby Deb Purfeerst Kristin Teipel Angela Watts Members Absent: Carolyn Allshouse Mary Braddock Wendy Hellerstedt John Hoffman Neal Holtan Nancy Jost Daphne Lundstrom Rosemond Owens Wendy Ringer Melissa Winger Guests: Tricia Brisbine Chelsea Magadance MDH Staff: Jeanne Ayers Jeanne Carls Susan Castellano Matthew Collie Maggie Diebel Kim Edelman Ed Ehlinger DeeAnn Finley Sara Hollie Candy Kragthorpe Melanie PetersenHickey Dave Orren Megan Waltz Kathy Wick INTRODUCTIONS AND CHAIR’S REMARKS Julie Jagim welcomed members. Introductions were made around the room. Julie welcomed Susan Morris, Isanti County Commissioner, as a new member representing the State CHS Advisory Committee. Julie Jagim made a motion to approve the March Task Force meeting minutes. Joan Brandt seconded the motion. Motion carried. COMMISSIONER’S REMARKS Commissioner of Health Ed Ehlinger welcomed the Task Force members and introductions were made around the room. Following is a summary of his remarks. The state is poised to act on interest to address infant mortality rates in Minnesota. One important initiative is the HRSA-sponsored Collaborative Improvement & Innovation Network (CoIIN). Minnesota is involved in the HRSA Region 5 CoIIN. The purpose of CoIIN is to bring together representatives from Region 5 and determine priorities and initiatives to work on as a region. The Commissioner noted that infant mortality disparities in Region 5 are the greatest in the country. More information on the CoIIN is available on the HRSA website at: http://mchb.hrsa.gov/infantmortality/coiin/index.html# There are several other initiatives that address the health of children. The Healthy Minnesota 2020 plan includes a section on a Healthy Start for All. The state is developing a prenatal to three plan to address “building power for babies.” The Governor’s Children’s Cabinet is also coming together to address a number of children’s issues. The Minnesota legislature was very open to MCH issues this year. Matthew Collie will discuss these later in the meeting. Following is listing of items address by the legislature specific to children: • $40 million was awarded for early childhood education scholarships. • Legislation to support all-day kindergarten. • Rental assistance for low income families. • Changes to the Minnesota Family Investment Program (MFIP) to pilot test the role of family home visitors in MFIP. 1 • Safe Harbor legislation to protect sexually exploited youth. A position to coordinate this work will be housed at MDH. More generally, there were a number of successful initiatives that have an impact on children. This includes the increase in tobacco tax. An additional $1.60/pack will go into the state general fund. This increase will have an impact on youth smoking. Commissioner Ehlinger sent a letter to all Minnesota physicians regarding the tax and what they, as providers, can do to support people in quitting. A second successful legislation was the increase in funding to the State Health Improvement Partnership (SHIP). The increase in funding will allow funding to all counties to reestablish policy, systems and environmental approaches to health improvement. Following is a summary of the discussion with Commissioner Ehlinger: • Melvin Carter has been named the new head of the Minnesota Department of Education Office of Early Learning. Mr. Carter will be replacing Karen Cadigan. • Michelle O’Brian stressed the need for Medicaid coverage of doula services. • Angela Watts noted that she is excited about how Minnesota is working on efforts to engage fathers and how to engage more men in public health and MCH. • Commissioner Ehlinger commented on how to engage pediatricians. He has met with pediatricians and they are interested in newborn screenings. He added that professional groups can be powerful in moving legislation forward. • Maggie Diebel commented on Minnesota’s State Innovation Models (SIM) Initiative. The SIM is a $45 million grant is an opportunity to change the health care system and how we integrate medical care and social services. Part of this initiative is how we put the needs of mothers and children front and center. • The SIM Initiative will be integrated with some of the SHIP activities. The SIM grant will have a number of advisory groups which will be announced soon. Meetings will be open to input. • Ken Bence commented that it is important the MCH issues are considered. There are many stakeholders will want their issues considered. • A kick-off for the SIM grant will be held on July 19th. NOTE: Ellen Benavides has been invited to the September MCH Advisory Task Force meeting to discuss the SIM grant and implementation of the health insurance exchange (MNSURE) in Minnesota. MDH UPDATE Jeanne Ayers, MDH Assistant Commissioner, introduced Megan Waltz, Parental to Three Planner, to provide an update on the Prenatal to Three planning activities. Following is a summary of Megan’s remarks: • The MDH recently cohosted an event (Building Power for Babies) with the Science Museum of Minnesota and U of M CEED. Presenters included Terri Rose and representatives from Washington State. The purpose of the event was to kick-off “Phase 2” of the prenatal to three planning process. This phase has two goals: o To develop set of policy recommendations o Start to build public will around babies and the kind of environments they need • A team of five traveled to Vermont (supported with national Zero to Three funding) to explore what other states were doing to build public will, messaging advise, Medicaid funding for family home visiting, etc. related to prenatal to three planning. • Starting in July, Megan will be hosting meeting around the state to identify recommendations for the plan. A larger group will be convened in October to prioritize those recommendations. Jeanne provided an update on MDH activities. Following is a summary of her remarks: 2 • • • • A team of people from Minnesota attended a “Building Health Equity” meeting in Denver. This was a chance for the team to strategize about how to increase awareness of issues around in Minnesota. Angela Watts attended as part of the team and noted that the meeting provided access to key leaders and information on what is happening at the national level. A key component was the involvement of pediatricians. The meeting provided an opportunity to work on a health equity framework for Minnesota and determine who needs to be involved. MDH continues work on ACES. Staff are continuing to share information about ACES and Minnesota data and inviting people to become involved. Work is being done on how this information will inform our work. There is a companion initiative (SCHSAC work group) around mental health and examining primary prevention around mental health. MDH has organized a state team to go to Washington to spend time examining what is happening there. Tanya Hagre asked if Washington State is really doing any better work than Minnesota. Have we examined if that state’s outcomes are really better than Minnesota. Jeanne responded that this is just an opportunity to see what is happening there and how we might make it a community-driven process. A Tribal health symposium will be held at the end of July in Grand Portage. The symposium will be co-hosted by the American Indian Cancer Society with the support of the Blandin Foundation. The symposium will provide data on tobacco use and start a process to facilitate what health data is available, what it means and how to use it to address health issues. COMMUNITY & FAMILY HEALTH DIVISION UPDATE Maggie Diebel, CFH Division Director, provided an update on CFH Division activities. Following is a summary of her comments: • The division is waiting to hear from different funding streams on the impact of sequestration on federal grants and how to deal with the impact of these reductions. The reductions have been factored into the most of the new funding being distributed. • The Minnesota WIC Program recently contracted with the Wilder Foundation to conduct a study on how WIC can better reach out to eligible individuals that are not participating in the program. Focus Groups and interviews were held with 80 individuals, including former participants, throughout the state on awareness, experience and access to the WIC Program and also ways to reach out to eligible individuals. WIC received some great and helpful feedback on what people appreciate and like about the program. The study also identified opportunities and ways to improve awareness of WIC, experiences and access to the program, and also suggestions on ways to market the program to eligible individuals. A work group including state staff and local agency staff will be forming to work on next steps and responding to the opportunities identified in the report. Once next steps are identified and prioritized, WIC will be working at all levels to respond to the opportunities identified. The Executive Summary and Final Report are available on the WIC website: http://www.health.state.mn.us/divs/fh/wic/whatsnew.html Maggie also provided an update on Children and Youth with Special Health Needs (CYSHN) Section activities. Following is a summary of her remarks: • The CYSHN Strategic Plan developed by the CYSHN Work Group has been accepted by the Commissioner. A final version will be distributed soon. CYSHN Section staff met recently to examine the action plan outlined in the strategic plan and put these actions in to a Results Based Accountability framework. This is one of the next steps to move the plan forward. • The CYSHN Section is submitting a federal grant application to improve access to comprehensive, coordinated health care and related services for children and youth with autism spectrum disorder (ASD) and other developmental disabilities (DD). Funding will support improved state systems of care and activities focused on improving early and continuous screening, coordination of family-centered services through a medical home, and increasing ASD/DD awareness. The funding will enhance work related to ensuring that infants and toddlers 3 • • are screened early for developmental delays and disabilities, with a goal of ensuring that children access the services they need as early as possible, in turn ensuring the best developmental outcomes for success in school and life. The MDH is awaiting word on if the application will be funded. If funded, this work will also support work in the Autism State Plan. The plan is available on the Minnesota Legislature’s Autism Spectrum Disorder website at: http://www.lcc.leg.mn/asd/. There has been updated information on newborn screening and long term follow-up regarding the impact of legislation and legal issues related to destruction of data. Dave Orren will provide more information on this later in the agenda. Susan Castellano, MCH Section Manager, provided an overview of MCH Section activities. Following is a summary of her remarks: • Commissioner Ehlinger approved and accepted the Final Report and Recommendations from the Family Home Visiting Subcommittee and the Task Force. The report is available on the MCH Advisory Task Force website: http://www.health.state.mn.us/divs/fh/mchatf/FamilyHomeVisitingCommittee.html. The Commissioner was impressed the group was able to take such a complex issues and identify a roadmap for future activities. He was also impressed with the commitment of so many partners to participate in the work group. It shows the strong partnership to family home visiting in Minnesota. • Candy Kragthorpe, FHV Unit Supervisor, provided additional information on FHV activities. An action plan is being drafted. Karen Adamson, co-chair of the committee, has volunteered to draft the action plan as a starting point for moving the recommendations in the report forward. The action plan will attempt to align the recommendations in the report with all of the other planning activities going taking place. The action plan will outline the role of MDH and other stakeholders. • Sara Hollie, MDH Adolescent Health Consultant, provided an update on adolescent health activities. MDH is reconvening the MDH Adolescent Health Collaborative. This is an internal MDH meeting of 20 staff that will meet quarterly to discuss adolescent health activities and share internal priorities. Sara will be working on updating the adolescent health website. A planning committee (under the direction of the MCH Advisory Task Force) will be convened to create the initial outline of a plan for adolescent health. The intent is for this initial group to conduct a needs assessment and help craft how a larger work group might develop a more comprehensive strategic plan to address adolescent health in Minnesota. • The Task Force is convening a Preconception Health Work Group to identify preconception health issues impacting women and infants in the state. The goal of the group is to develop a strategic plan that identifies priorities, strategies, action steps and communication strategies that the state, health care providers, health systems and other stakeholders could take to improve preconception health. • The MDH will be hosting an Infant Mortality Reduction Stakeholders Summit/Work Group on July 22 to start the development of an action plan to reduce infant mortality in Minnesota. The purpose of the work group is: To develop and implement recommended action steps expected to have the greatest impact on reducing infant mortality in Minnesota with particular attention to reducing disparities. The work group will: o Work with partners and stakeholders to identify topics and action steps that are reasonable and feasible for implementation. o Consider priority intervention points across the lifespan, including preconception, interconnection, prenatal, perinatal, and postnatal periods. o Closely examine the impact of social determinants of health on infant mortality and overall health across the lifespan. o Identify and implement specific work/activities that can be accomplished without additional funding and priorities to implement if additional funding is available. 4 Engage stakeholders in maintaining ongoing work to completion, monitor progress, and coordinate new and existing activities to avoid duplication and facilitate implementation. The MDH submitted a grant to HRSA for the Minnesota Early Childhood Comprehensive Systems (ECCS) grant. Minnesota will focus on coordination of the expansion of developmental screening activities. The grant funding will be used to hire a staff person who will coordinate cross-agency work. The MCH Advisory Task Force is accepting nominations for the 2013 Betty Hubbard MCH Leadership Awards. Solicitation information and the nomination form are available on the web at: http://www.health.state.mn.us/divs/fh/mchatf/bettyhubbard.html. o • • LOCAL PUBLIC HEALTH DEPARTMENT HEALTH EQUITY SURVEY Melanie Peterson-Hickey and Kim Edelman from the MDH Center for Health Statistics presented on the results of the health equity/social determinants of health survey completed by Minnesota’s local public health departments. The slides from their presentation are available on the MCH Advisory Task Force web site here: http://www.health.state.mn.us/divs/fh/mchatf/meetings.html. In 2011, the Center for Health Statistics (MCHS) and the Office of Performance Improvement (OPI) received a grant from the Robert Wood Johnson Foundation Administrative Supplements in Diversity. The primary aims of the project were to examine the extent to which local health departments (LHDs) were engaging in activities to reduce health inequities and to identify the characteristics of LPH systems that facilitate and impede these activities. MCHS worked closely with representatives of the Minnesota Practice Based Research Network (PBRN) Research to Action Network (RAN), the State Community Health Services Advisory Committee (SCHSAC), and the Minnesota Local Public Health Association (LPHA) along with local agencies and communities to conduct this study. Specific research questions for the project include the following: • To what extent are health inequities being addressed through local health department services and activities with other departments and organizations? • To what extent do LHDs collect, store, analyze, report data relating to health inequity including health status disparities, racial/ethnic disparities, and social determinants of health? • To what extent are LHDs engaged in policy and design and implementation of programs from a health inequities perspective (i.e. “upstream” efforts that focus on avoidable group health differences resulting from unequal social positions caused by policy decisions and societal arrangements taken up and implemented by governments (Andress, 2009). • How does the variation in health inequity efforts as a priority vary by LHD structure, governance, and funding? To answer these questions, staff conducted a document review, conducted key informant interviews, and developed and administered a Health Inequity Survey to LDHs in Minnesota. The health equity themes and survey focus areas included understanding and use of health equity terminology, prioritization of health equity in LHDs, collecting and utilizing health equity data, building community partnerships and power, and efforts of LHDs in moving policy and directing resources to health equity efforts. MCHS staff in now in the process of analyzing the data and planning to disseminate the results of the project findings to LPH leaders, practitioners and other key stakeholders. MEMBER NEWS AND ISSUES Ken Bence: The 2013 Community Health Conference is scheduled for September 25-27, 2013 at Cragun's Conference Center, Brainerd, MN. The conference is sponsored by the State Community Health Services Advisory Committee (SCHSAC) and the MDH Office of Performance Improvement. The theme of this year’s conference is Working Together: Attaining Health Equity in Minnesota Communities. Information is available at: http://www.health.state.mn.us/divs/opi/pm/conf/. 5 The Minnesota Public Health Association (MPHA) is holding an annual meeting June 13 and 14. The theme is “Health in All Policies.” Commissioner Ehlinger will be presenting. More information is available on the MPHA website: http://www.mpha.net/Default.aspx?pageId=1526635 The Minnesota Department of Human Services is in the process of rebidding agreements with health plans for Medicaid services in 27 non-Metro counties. This is a competitive bid process similar to what was done in the Metro in 2011. Counties that are part of metropolitan statistical areas (MSAs) will likely have two plans, while non-MSA counties will have one. None of the counties in this bid process currently has only one plan, and most have at least three. This is concerning because having a limited number of health plans reduces the choices for mothers and infants. DHS may feel it will reduce the administrative burden. However, we will need to see how this will impact families. Medica has hired Amy Burt, a pediatrician, as Medical Director for government programs. She will work half time with a focus on pediatric issues, while another half-time medical director is primarily focused on seniors and people with disabilities. She has served on the Governor’s Health Care Reform Task Force. Michelle O’Brian: Michelle took a position at a Health Partners clinic and will continue to work on MCH issues in that new role. Angela Watts: Angela participated with other Minnesota representatives in the health equity conference in Denver that Jeanne Ayers mentioned earlier. She will also be travel to Washington State to look at best practices on the public health role in mental health. Twin Cities Healthy Start and Minneapolis will be bringing someone from Alameda County to Minneapolis in August. Alameda County has trained 80% of their providers through an effort to reduce the stigma of mental health in Alameda County. Martha Overby: Martha will be co-chairing the MCH Advisory Task Force Preconception Health Work Group. There are a number of groups addressing similar issues that need to be coordinated. This includes this group, the Prematurity Task Force, Low Birth weight Work Group. All of these groups are doing good work and each have their own momentum, but we need to assure they are coordinated and not duplicative. The Prematurity Task Force was extended an additional two years by the Minnesota legislature. Newborn screening added critical congenital heart disease (CCHD and severe combined immunodeficiency (SCID) newborn screening protocol. The March of Dimes has a subgroup that is developing guidelines on weight management during and between pregnancies. The group is trying to touch on different cultural differences. The March of Dimes will be hosting the fourth annual Nurse of the Year. Information is available on the MOD website here: http://www.marchofdimes.com/minnesota/ Susan Morris: Susan is an Isanti County Commissioner and will be representing the State Community Health Services Advisory Committee. She excited to be joining the Task Force and very privileged to be a part of SCHSAC. Joel Hetler: Joel is involved in a project at the U of M that is working on health disparities research. There is a growing awareness that people with severe mental illness are a unique health disparities group. Their health status is much worse than the general population and this need attention. He has also been involved in a research project on smoking in the severely mentally ill. Forty percent of cigarettes are sold to people with mental illness. The project is examining if there is an effective approach to smoking cessation in the mentally ill. Many with mental illness indicate that they know it is bad, and they want to quit. The U of M was approached because community organizations could not find a smoking cessation group that was willing to work with the mentally ill. 6 Martha Overby responded that more information emerging that smoking is self-medicating and that there is more smoking in some types of mental illness. Susan Castellano added that DHS has project around smoking and the mentally ill. Kristin Teipel: The Konopka Institute received a small grant for an adolescent health systems building project. The project involved bringing together six state teams to work on how to build a system around adolescent health. They will be examining is the collective impact model works in adolescent health. The project involves facilitation training and the teams working together collaboratively over the next year. Glennis Shay is working with chlamydia partnership and completed parent support project for middle school parents. The project involves developing text-based support parents text based to help them support their kids in healthy sexuality. Deb Purfeerst: Rice County has been work with a mental health collective group – three groups are working on prevention, promotion, and access. The project involves working in small groups to help people self-identity of wellness and their own mental health. The group is also working on communitywide messaging. The data on the project is looking positive. The project is funded through the Family Services Collaborative. Tanya Hagre: Tanya is involved in activities related to low birth weight reduction. She has also been involved in the Hennepin community health improvement process – specifically addressing screening and school readiness. She participated as a Family Planning Special Projects reviewer. It was a very interesting process. There have been a number of changes in eligibility in medical assistance. Eligibility has been separated from eligibility for WIC and Supplemental Nutrition Program. We will need to watch how this will impact families. As asset testing goes away will they still use the service. Joan Brandt: Joan has participated in a NACCHO Task Force on return on investment for early childhoods. The group has seen a preview of The Raising of America. St. Paul-Ramsey County is ready to launch “Club Mom.” Club Mom is a model out of Alameda County Healthy Start. It is an alternative to family home visiting in the African American community. The support is done in a group setting vs. one on one. Stephanie Graves: Minneapolis is working with Hennepin County on the MFIP innovations project. The city will receive support from DHS to work with MFIP teens that had chosen educational path. Hennepin County will move it county wide. The project involves case management and workforce development. The services will be wrapped into the work being done by MVNA Stephanie has hired an intern for the summer to keep kids connected over the summer with activities. They hope to learn from communities that have been successful in the same situation. Minneapolis is involved in the early childhood CHIP process through a pilot with ABCDIII. Minneapolis Public Schools have contracted with Tessa Wetjen to work with Hennepin County to close the loop on early childhood screening and connect with Help Me Grow. The project involves four schools and Bloomington Public Health. Julie Jagim: St. Louis County Public Health was able to continue SHIP with four month bridge funding from the MDH. The county has had a lot of staff turnover. This can be very difficult and overwhelming due to the amount of time needed for training and orientation. The Attorney General is having a public hearing on synthetic drug use 7 LEGISLATIVE UPDATE Matthew Collie, MDH Legislative Coordinator, provided an overview of this year’s legislative session. Following is a brief listing of the items discussed. The full summary of the 2013 legislative session discussing issues related to public health can be found on the MDH website here: http://www.health.state.mn.us/divs/opa/2013session.html. This document provides a more comprehensive overview of the issues discussed. • Tobacco tax increase • Expansion of full day kindergarten • Scholarships for childcare. • Safe harbor for sexually exploited youth • Health equity report • “Back to Sleep” requirement in child care centers was returned • Increased reimbursement for family planning in Medicaid • Increase in SHIP funding • Genetic information authority (discussed below) REPORT ON GENETIC PRIVACY Dave Orren provided an update on MDH Genetic Privacy activities and related legislative session information and litigation information. Following is a summary of his remarks: • The Newborn Screening Program finds an average of 50 infants per year that, with no treatment, could suffer from severe disabilities or die. The purpose of the program is to identify the infant as early as possible. It is urgent that they be found as soon as possible. A delay until diagnosis could be too late and the child could already have suffered damage. • The Genetic Privacy Act passed in 2006. In 2006 this law was good at protecting genetic information, but needed more vetting. The language requires express authority to work with genetic information. The language needed to be clearer. • In 2009, the bloodspot collection component was sued, stating that it violated the infant’s genetic privacy. A district court agreed. This was appealed and the appellate court confirmed the decision of the district court. • In 2011, the Minnesota Supreme Court found the program was in violation of the law and that every step of the process needs express authority. • This has had a significant impact on Minnesota’s newborn screening program. Because express authority was required, the MDH lab did not have the authority to use blood samples to calibrate testing machines, improve tests, or develop new tests for other conditions. Additionally, blood spots would not be available to coroners if the infant died to determine if a condition was present. • Subsequently, the Supreme Court remanded the issues back to district court for remediation. In the meantime blood spots have been destroyed. This is still on ongoing with the courts in the discovery phase. They expect a summary judgment later this year and the ruling will probably be appealed. • This issue is fundamentally being driven by the concern that government is involved in people’s lives and a perceived potential that the government could use genetic information in some way. • In 2012, the MDH had a legislative directive, which required the Commissioner to submit proposed legislation by January 15, 2013, to authorize collection and use of genetic information for existing activities where express authorization was not provided by law. • As a result, in 2013 legislation passed (2013 Laws Ch. 82) that provides express authority for MDH to continue collecting, storing, using, and disseminating biological specimens and health data for health department program operations, public health practice, and public health oversight activities. MS 13.386 requires express authority for these activities; and this law provides that requirement. The law clarifies that MDH is expressly authorized to conduct its current activities; it does not expand any department activities or authority. In certain circumstances, data collected, 8 • • • used, disseminated and stored by local public health agencies is also authorized. The department is also required to develop and publish retention schedules for biological specimens. An annual inventory of biological specimens, registries, health data, and databases collected by the Commissioner of Health is required by the law. The retention schedules and inventory are to be posted on the department’s Web site and submitted to the legislature. (Source: MDH Legislative Summary) Currently, screenings testing positive are kept for 2 years, negative screenings are kept for 71 days. The MDH will need to start destroying negative tests in November. Parents still have the option to opt out of newborn screening of their infant. It is estimated that three percent (four to five babies) would opt out each year. There are still discussions regarding an “opt in” for retaining of blood spots. This has not yet been fully tested or implemented. The MDH was more successful this year because significant time was spent educating legislators and trying to be more proactive to make sure the correct information was presented. INTRODUCTION TO LAB TOUR Several Task Force members participated in a tour of the MDH Public Health Labs. 9
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