SO U N D MAT T E R S 2015 • ISSUE 2 Audiology Newsletter of the Minnesota Early Hearing Detection & Intervention Program • • • Hearing Screening to Diagnosis • • Minnesota’s EHDI System - Progress & Needs Minnesota continues to make progress toward providing all babies with access to newborn hearing screening and timely follow-up. As of December 31, 2014, a snapshot of our Minnesota EHDI system looks like this: INITIAL HEARING SCREENING • REFER rate at hospital discharge = 4.2% [Goal <4%] • Total infants screened = 98.9% [Goal = 100%] • Missed / undocumented screens = 0.9% [Goal = 0%] »» Often due to NICU transfer (49%) and Out-ofHospital births (27%) OUTPATIENT RESCREENING by 1 month • Only 61.1% of those (>1800 grams) who receive outpatient rescreen accomplish that by 1 month [Goal = 100%] DIAGNOSIS by 3 months • Only 58% of those (>1800 grams) with reported diagnosis complete the process by 3 months [Goal = 100%] • Minnesota data indicates a 30-50% chance of some type/degree of confirmed hearing loss in infants if they do not pass the first outpatient rescreen. Therefore, 50-80+ infants who were lost to follow-up in 2014 may have undiagnosed hearing loss. MDH quality improvement efforts to target areas of greatest need in 2015 include: • Work to close the gap on undocumented hearing screens following NICU transfers • Improve hospital scheduling of initial follow-up visit (ideally 1-2 weeks post discharge) after REFER result at birth • Increase prompt scheduling of diagnostic ABR after first outpatient REFER • Ongoing collaboration/data sharing with midwifery, primary care, audiology, and otolaryngology communities regarding EHDI best practices and local needs LOST TO FOLLOW-UP/DOCUMENTATION • 37% (175/474) of those who continue to REFER after discharge [Goal = 0%] Audiologists can continue to support these efforts locally by: 1) Ensuring that schedules can accommodate outpatient rescreen within 1-2 weeks after hospital discharge, 2) Immediately schedule diagnostic ABR if baby does not pass the first outpatient rescreen. did you know? ECHO Early Childhood Hearing Outreach The Early Childhood Hearing Outreach (ECHO) initiative is an extension of the National Center for Hearing Assessment and Management (NCHAM). This national project focuses on extending periodic hearing screening of young children through age 3, using OAE technology primarily in Early Head Start Programs. Trained regional staff is available to support local school districts and Early Head Start programs plan and implement appropriate OAE hearing screening practices and follow-up for this age group. For more information, please contact [email protected] Tune IN! Trends in Audiology • • • • • 2015 Parent Hearing Aid Management Survey Results When it comes to hearing aids, parents want your help! NCHAM surveyed Minnesota parents and identified information, skills, and training they would like their audiologist to provide for them at orientation and on an ongoing basis. View NCHAM’s entire report here! Here are a few of their most pressing questions. 1. What can my child hear with and without the hearing aids, and what does my child NOT hear? 2. When should hearing aid settings be checked? 3. How can I help my child hear in background noise? 4. How can I get loaner hearing aids? 5. How can I do a Ling 6 sound check? 6. How do I perform hearing aid maintenance? 7. How can I keep hearing aids on when my child resists? Parents’ three greatest challenges to hearing aid use included activities (riding in car, playing outside), child not wanting to wear aids, and fear of losing or damaging hearing aids. Q&A • • • • • Q A What services do Local Public Health nurses provide for children in Minnesota with suspected or confirmed hearing loss? LPH nurses make calls to families, medical providers, and audiologists, helping connect families with follow-up appointments. Sometimes they ask providers for reports. They connect families with local resources and transportation, and identify eligibility for medical assistance. By the Numbers • • • • • In 2014, Local Public Health (LPH) Staff in Minnesota: Assisted 17 children who were considered “lost” complete diagnosis of their hearing loss • Made initial referrals to Early Intervention for 42 children who had not been referred by their audiologist • Provided 66 families with needed referrals or information on insurance and financial resources LPH staff receives yearly updates and training regarding EHDI best practices. Audiologists are encouraged to contact Local Public Health staff in their counties for added support in removing barriers for their patients. LPH staff can assist families in scheduling follow-up appointments, address transportation needs, and answer questions related to available financial resources. Find your county’s LPH EHDI contact here: http://www. improveehdi.org/mn/library/files/countykeycontacts.pdf STAT • • • • • In 2014, MDH notified Local Public Health (LPH) agencies of 442 children lost to follow-up after newborn hearing screening and of 243 children with confirmed hearing loss. Since 2009, MDH partnership with LPH has contributed to significant improvements in loss to follow-up (20% in 2009 to 6% in 2014) and to large increases in knowledge of Part C Early Intervention enrollment (22% in 2009 to 76% in 2013) once permanent hearing loss is confirmed. Have You Heard? • • • • • Ongoing EHDI Collaboration with ENT Otolaryngologists’ role in delivering a consistent message to families regarding newborn hearing follow-up is very important. MDH Newborn Screening Program recognizes this, and has continued to promote EHDI to ENT providers throughout the state. With support of the Newborn Hearing Screening Advisory Committee representatives (otolaryngologists Dr. Tina Huang, M.D., Dr. Geoffrey Service, M.D., and ad hoc member Dr. Abby Meyer, M.D.), EHDI collaboration with ENT over the last two years has included: • Development and distribution of EHDI Guidelines for Otolaryngologists • Development of a quick reference flow chart, ENT Guide to the Newborn Hearing Diagnostic Process • EHDI exhibit table at the annual Minnesota Academy of Otolaryngology (MAO) meeting and inclusion of above ENT Guide in attendee packets • Distribution of MAO member newsletter highlighting key EHDI priorities Audiologists can help promote these documents in their local communities to reach providers who may not be involved with MAO. Last Words from the Advisory Committee • • • • • Meeting highlights... • Specialized psychological evaluations for deaf, hard of hearing, or deaf-blind children are available • Discussion of cCMV (congenital cytomegalovirus) and emerging screening practices in the U.S. • New advances in genetic testing for hearing loss • Updated Guidelines for Universal Newborn Hearing Screening Programs in the NICU were approved Next meeting: May 27, 2015 1:00 – 4:00 p.m. Wilder Foundation 451 Lexington Parkway North St. Paul, MN 55104 Contact Us: Newborn Screening Program 601 Robert St N, St Paul, MN 55155 Phone: (800) 664-7772 or (651) 201-5466 Fax: (651) 215-6285 Email: [email protected] Web: www.health.state.mn.us/newbornscreening EHDI Website: www.improveehdi.org/mn
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