SO U N D MAT T E R S 2015 • ISSUE 3 Audiology Newsletter of the Minnesota Early Hearing Detection & Intervention Program • • • • • Enhancing Connections to Pediatric Audiologists Online Audiology Provider Database Options As existing healthcare networks continue to merge and re-align, their referral patterns for EHDI related audiology may shift as well. In Minnesota, there are currently two web-based EHDI resources that can help primary care providers and families locate audiology facilities that serve infants and children. EHDI PALS, or Pediatric Links to Service, is a national database which (to date) includes more than 1000 audiologic facilities nationwide that provide services to children 0–5 years of age. Users can compare services provided between locations such as testing with sedation, tele-audiology, amplification, cochlear implant services, availability of other on-site or in-system care (like loaner hearing aids, ENT care), insurance accepted, and more. As of October 2014, Minnesota had twenty pediatric sites registered on EHDI PALS according to the American Speech-Language Hearing Association (ASHA) Audiology Connections publication (page 13). EHDI PALS is actively being promoted as a tool at the national level by the American Academy of Pediatrics. Audiologists interested in including their clinic information on the EHDI PALS site did you know? will need to create a facility profile by completing a 10-15 minute survey, and will be asked to verify/update their information annually. More information about the survey can be found on the EHDI PALS FAQ page. Minnesota EHDI–Provider Search enables the user to locate audiologists (including adjoining states within a user specified radius) who provide follow-up hearing screening services for young pediatric patients (Level 1), and those who provide comprehensive diagnostic care for pediatrics (Level 2). Providers who wish to add their information to this website can complete an online questionnaire to submit the necessary information. Providers currently listed who wish to update their status or available services can click the same link above, or reply to this e-mail to request MDH assistance. Audiologists are encouraged to register their facility on one or both sites. In both the EHDI PALS and Minnesota EHDI-Provider Search databases, the services offered are referenced by facility name (rather than an individual audiologist). Therefore, only one audiologist per location should complete a site profile. Tracking EHDI Program Effectiveness Every year, MDH asks audiologists for data related to children with confirmed permanent hearing loss. Amplification fitting dates are just one of the follow-up measures that are collected. MDH uses this information to look at statewide trends in timely fitting of amplification to identify any gaps or barriers for children receiving early care, and to track state EHDI program effectiveness. Thank you for your continued collaboration in these important efforts! Have You Heard? • • • • • (Congenital Cytomegalovirus) cCMV Congenital cytomegalovirus (cCMV) infection in the United States is the leading infectious cause of disability in newborns. The single most common consequence of cCMV is sensorineural hearing loss. As new screening and treatment options for cCMV are being developed, CMV is gaining attention in State Early Hearing Detection & Intervention (EHDI) programs. New mandates for cCMV education, newborn screening, and follow-up have been closely tied to newborn hearing screening programs around the nation. The Minnesota Newborn Screening & EHDI Program is actively monitoring current legislation and research in this area. Timing of CMV testing is critical since determination of congenital versus acquired CMV cannot be made unless the virus is detected with dianostic testing by 21 days of life. Early CMV diagnosis can: • aid in determining etiology of hearing loss • prompt discussion about emerging antiviral treatment to lessen hearing loss and improve neurodevelopmental outcomes • enable active monitoring for delayed onset hearing loss or progression Last Words from the Advisory Committee • • • • • Meeting highlights... • Update on the Minnesota Collaborative Plan for Maximizing and Monitoring Learner Progress for Children who are Deaf, Deaf Blind, and Hard of Hearing • Revision of the Minnesota Guidelines for Infant Audiologic Assessment and Guidelines for Medical Providers is underway Next meeting: A more detailed summary of other current information related to cCMV can be found on the CDC website. Contact Us: Newborn Screening Program 601 Robert St N, St Paul, MN 55155 Phone: (800) 664-7772 or (651) 201-5466 Fax: (651) 215-6285 Email: [email protected] Web: www.health.state.mn.us/newbornscreening EHDI Website: www.improveehdi.org/mn August 12, 2015 1:00 – 4:00 p.m. Wilder Foundation 451 Lexington Parkway North St. Paul, MN 55104
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