September 2013
Summary of 2011 National CDC EHDI Data
Data Source: 2011 CDC EHDI Hearing Screening & Follow-up Survey (HSFS)
Number of Respondents: 53* (48 states, 4 territories, and the District of Columbia)
AL, AK, American Samoa, AR, AZ, CNMI, CA, CO, CT, DC, DE, FL, Guam, HI, IA, ID, IL, IN, KS, KY, LA, MA, MD,
ME, MI, MN, MO, MS, MT, NC, ND, NE, NJ, NM, NV, NY, OH, OK, OR, PA, Republic of the Marshall Islands, RI, SC,
SD, TN, TX, UT, VA, VT, WA, WI, WV, W Y
2011 Documented EHDI Data Items
Total Occurrent Births (according to state & territorial EHDI programs)^
Documented Hearing Screening^
Percent Screened
o Percent Screened (excluding infant deaths & parental refusals)
o Percent Screened before 1 Month of Age
Percent Not Passing final / most recent screening
o Percent Not Passing Inpatient Screen and Not Receiving an Outpatient Screen
Documented Diagnosis*(based on 59,161 infants not passing)
Percent Diagnosed
o Percent with No Hearing Loss (i.e., no diagnosed hearing loss)
o Percent with Hearing Loss
o Percent Diagnosed (normal hearing + hearing loss) before 3 Months of Age
Prevalence of Hearing Loss
No Documented Diagnosis*
Percent w. No Documented Diagnosis (of those not passing):
o In Process
o Infant Died / Parents Declined
o Non-Resident / Moved
o Percent Loss to Follow-up (LFU) / Loss to Documentation (LTD) for Diagnosis
• LFU/LTD = # Parents/Family Contacted but Unresponsive (5,996) + # Unable to
Contact (5,154) + # Unknown (9,707)
o Percent LFU/LTD for Diagnosis excluding Infants Not Passing an Inpatient Screen and not
having a documented Outpatient Screen
Other Cases of Hearing Loss
Number of Additional Cases (e.g., late-onset hearing loss & infants not screened at birth)
Number of Cases of Non-Permanent / Transient Hearing Loss
Documented Referral to Early Intervention (EI)**(based on 5,170 infants w. hearing loss)
Percent Referred to Part C EI (of those with hearing loss)
o Percent Eligible for Part C EI (of those referred)
Percent Not Referred to Part C and Unknown (of those with hearing loss)
Documented Enrollment in EI**
Percent w. Hearing Loss Receiving EI (Part C & Non-Part C)
o Receiving EI = # in Part C EI (3,117) + # in Non-Part C EI (136)
o Percent Receiving EI before 6 Months of Age (Part C & Non-Part C)
No Documented Enrollment in EI**
Percent Receiving No EI Services (of those with hearing loss)
o Infant Died / Parents Declined (of those with hearing loss)
o Non-Resident / Moved (of those with hearing loss)
o Not Eligible for Part C EI
o Percent LFU / LTD for Intervention
• LFU/LTD = # Parents/Family Contacted but Unresponsive (106) + # Unable to
Contact (114) + # Unknown (1,126)
3,793,158
97.9% (n = 3,714,115)
98.4%
94.9% (n = 3,523,911)
1.8% (n = 65,041)
12.1% (n = 7,842)
56.9% (n = 33,663)
48.3% (n = 28,575)
8.6% (n = 5,088)
70.8% (n = 23,846)
1.5 per 1,000 screened
(Range 0.0 - 3.7 per 1,000)
43.1% (n = 25,498)
2.7% (n = 1,601)
3.4% (n = 2,020)
1.7% (n = 1,020)
35.3% (n = 20,857)
(Range 3.0 – 98.1%)
22.0% (n = 13,015)
n = 447
n = 1,055
86.2% (n = 4,457)
88.9% (n = 3,963)
13.8% (n = 713)
62.9% (n = 3,253)
(Range 0.0% - 100%)
67.6% (n = 2,200)
35.2% (n = 1,822)
5.2% (n = 270)
1.5% (n = 76)
2.5% (n = 130)
26.0% (n = 1,346)
(Range 0.0 % - 100%)
Notes*: Some jurisdictions only reported partial data (e.g., only hearing screening data) Number of Respondents: ^53 States &
Territories; * 50 States & Territories; ** 50 States & Territories (different than States & Territories reporting diagnostic data)
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September 2013
Summary of 2011 National CDC EHDI Data
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September 2013
Summary of 2011 National CDC EHDI Data
Data Notes
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HSFS data reflects information that states and territories have reportedly documented without estimation.
As a result, data reported by CDC EHDI may differ from other sources.
Some respondents only provided partial data (e.g. hearing screening data only). As a result the number of
reporting states and territories and denominators varies for some of the data sections.
This data is subject to change if additional states and/or territories report data for year 2011.
In Process: Respondents were advised that to be reported in this category each infant must have been
seen for diagnostic testing at least one time and have a follow-up appointment already scheduled.
LFU (Loss to Follow-up) / LTD (Loss to Documentation): Sub group of “No Documented Diagnosis /
Undetermined” and “No Intervention Services.” Includes instances where infant’s families were Unable to be
contacted or Unresponsive, and Unknown cases.
Explanation of 2011 Calculations
Documented Hearing Screening (based on data from 53 States & Territories)
Percent Screened
3,714,115 (# screened) / 3,793,158 (occurrent births reported by EHDI programs) x 100 = 97.9%
Percent Screened (excluding infant deaths & parental refusals)
3,714,115 (# screened) / 3,773,918 (occurrent births excluding infant deaths & parental refusals)
x 100 = 98.4%
Percent Screened Before 1 Month of Age
3,523,911 (# Pass and # Not Pass before 1 Month of Age) / 3,714,115 (# Pass + # Not Pass) x 100 = 94.9%
Percent Not Passing final / most recent hearing screening
65,041 (# not pass) / 3,714,115 (# screened) x 100 = 1.8%
Percent Not Passing Inpatient (IP) Screen and Not Receiving an Outpatient (OP) Screen
7,842 (# not passing IP screen and not receiving an OP screen) / 65,041 (# not pass) x 100 = 12.1%
Documented Diagnosis (based on 59,161 infants not passing / data from 50 States & Territories)
Percent Diagnosed
28,575 (# w. no hearing loss) + 5,088 (# with diagnosed permanent hearing loss)
/ 59,161 (# not pass) x 100 = 56.9%
Percent with No Hearing Loss (i.e., no diagnosed hearing loss)
28,575 (# w. no hearing loss) / 59,161 (# not pass) x 100 = 48.3%
Percent Hearing Loss
5,088 (# with diagnosed permanent hearing loss) / 59,161 (# not pass) x 100 = 8.6%
Percent Diagnosed before 3 Months of Age
23,846 (# diagnosed with no hearing loss + # with permanent hearing loss before 3 Months) /
33,663 (# diagnosed with no hearing loss + # with permanent hearing loss) x 100 = 70.8%
Prevalence of Hearing Loss
5,088 (# with diagnosed permanent hearing loss) / 3,416,209 (# screened) x 1,000 = 1.5 per 1,000 screened
No Documented Diagnosis (based on 59,161 infants not passing / data from 50 States & Territories)
Percent with No Documented Diagnosis (of those Not Passing)
25,498 (# with no documented diagnosis) / 59,161 (# not pass) x 100 = 43.1%
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September 2013
Summary of 2011 National CDC EHDI Data
Percent In Process
1,601 (# in process) / 59,161 (# not pass) x 100 = 2.7%
Percent Infant Died / Parents Declined Services
2,020 (# infant died / parents declined services) / 59,161 (# not pass) x 100 = 3.4%
Percent Non-resident or Moved Out of Jurisdiction
1,020 (# non-resident or moved out of jurisdiction) /59,161 (# not pass) x 100 = 1.7%
Percent LFU / LTD (i.e., Unable to Contact / Unresponsive / Unknown)
20,857 (# unable to contact / unresponsive / unknown) / 59,161 (# not pass) x 100 = 35.3%
Percent LFU/LTD for Diagnosis excluding Infants Not Passing an Inpatient Screen and not having a documented
Outpatient Screen
20,857 (# unable to contact / unresponsive / unknown) - 7,842 (# not passing IP screen and not receiving an
OP screen) = 13,015
13,015 (# unable to contact / unresponsive / unknown - # Infants Not Passing Inpatient Screen and Not
Receiving an Outpatient Screen) / 59,161 (# not pass) x 100 = 22.0%
Documented Referral to EI (based on 5,170 infants w. hearing loss / 50 States & Territories)
Percent Referred to Part C EI (of those with hearing loss)
4,457 (# referred to Part C EI) / 5,170 (# w. permanent hearing loss) x 100 = 86.2%
Percent Eligible for Part C EI (of those referred)
3,963 (# eligible for Part C) / 4,457 (# referred to Part C) x 100 =88.9%
Percent Not Referred to Part C and Unknown (of those with hearing loss)
713 (# not referred to Part C and unknown) / 5,170 (# w. permanent hearing loss) x 100 = 13.8%
Documented Enrollment in EI (based on 5,170 infants w. hearing loss / 50 States & Territories)
Percent w. Hearing Loss Receiving EI (Part C & Non-Part C)
3,253 (# w. hearing loss receiving Part C & non-Part C EI) / 5,170 (# w. permanent hearing loss) x 100 = 62.9%
Percent Receiving EI before 6 Months of Age (Part C & Non-Part C)
2,200 (# receiving Part C EI before 6 months + # receiving Non-Part C EI before 6 Months) /
3,253 (# receiving Part C EI + # receiving Non-Part C EI) x 100 = 67.6.0%
No Documented Enrollment in EI (based on 5,170 infants w. hearing loss / 50 States & Territories)
Percent Receiving No EI Services (of those with hearing loss)
1,822 (# not receiving any EI services) / 5,170 (# w. permanent hearing loss) x 100 = 35.2%
Percent Infant Died / Parents Declined (of those with hearing loss)
270 (# infant died / parents declined services) / 5,170 (# w. permanent hearing loss) x 100 = 5.2%
Percent Non-Resident / Moved (of those with hearing loss)
76 (# non-resident or moved out of jurisdiction) / 5,170 (# w. permanent hearing loss) x 100 = 1.5%
Percent Not Eligible for Part C Intervention
143 (# not eligible for Part C Intervention) / 5,170 (# w. permanent hearing loss) x 100 = 2.8%
Percent LFU / LTD for Intervention
1,346 (# unable to contact / unresponsive / unknown) / 5,170 (# w. permanent hearing loss) x 100 = 26.0%
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