A Publication of the Northwest Parkinson’s Foundation | Register for the WALK IN THE PARK Today! (see page 3) INSIDE Move. Connect. Engage. 2 A Soft Voice in a Noisy World 3 LIVING with Parkinson’s Registration (see page 4) PD Link Northwest 4 A Conversation with my Dad 5 Tribute Gifts 6 Our mission is to establish an optimal quality of life for the Northwest Parkinson’s community through awareness, education, advocacy and care. nwpf.org Before There Was H.O.P.E., He Found Hope. BY SCOTT JOHNSON NWPF Contributor Ask Hal Newsom about the source of his inspiration when diagnosed with Parkinson’s Disease nearly 20 years ago, and the 84-year-old Seattle resident will silently raise one finger on his right hand and point it toward the woman seated nearby. Peggy Newsom, his wife of more than 60 years, simply stares back at him with smiling eyes. When Newsom first heard the words “Parkinson’s Disease” during a 1994 doctor’s visit in search of an explanation for his stiff right hand, he felt angry and confused but never alone. He knew Peggy would be there to provide help and her ever-flowing optimism, and little did he know at the time that those features would leave him halfway to H.O.P.E. Newsom, a longtime board director for the Northwest Parkinson’s Foundation, is well-known for his 2006 book “H.O.P.E.,” which outlines four key factors in living with Parkinson’s: Help, Optimism, Physician and Exercise. The book was such an unexpected success that the first 10,000 copies were snapped up quickly, creating the need for a second printing of 5,000 more. Eight years later, Newsom’s message of H.O.P.E. still rings true. SPRING 2014 “People say: ‘It changed my life. Thank you for writing it,’” Newsom said. The genesis of “H.O.P.E.” came from a 1998 seminar at Swedish Medical Center, where a speaker covered everything from insomnia to diarrhea to sexual dysfunction. At one point during the morbid presentation, Newsom raised his hand in hopes of asking the speaker what kind of hope he could provide. Newsom was never called upon, and so he went home and began crafting a book that might give what he calls “Parkinson’s People” an encouraging message. Newsom has since written two more books – a memoir and a work of fiction – and recently developed an app that helps people with Parkinson’s with speech development. The app, which was designed by his son David’s web development firm, includes a “Talking Dog” function that allows the user to have his or her words recorded and repeated back as well as a “kabobulator” that is designed to give users a voice target level as they speak. Newsom was also instrumental in starting the HOPE Conference, an annual event in Seattle that brings together medical professionals, caregivers and specialists to discuss the advancements in Parkinson’s treatment and therapy. “Hal has continued to come up with the big ideas, the socalled skyrocket ideas,” said Dick Hadley, a fellow board member on the Northwest Parkinson’s Foundation who also used to work with Newsom at Cole Weber United advertising agency. “He’s always looking for something above everything else.” Hadley said Newsom’s former profession has a lot to do with the way he’s come up with ways to cope with Parkinson’s. “From an advertising standpoint, it’s Hal’s ability to take big risks for big gains,” Hadley said. “That pushes him harder. He’s always looking to make a big splash – much like dealing with an advertising executive.” Newsom has always listed his No. 1 goal in life to Continued on page 2 The Parkinson’s Post is published by the Northwest Parkinson’s Foundation, a 501(c)(3) charitable organization. © Northwest Parkinson’s Foundation 2014. Permission for use of most material presented here is available by contacting us. We welcome your comments on all our activities. Call 877.980.7500 or visit us at nwpf.org. Board of Directors Elizabeth Bacher Steve Boone Holly Chaimov Amy Cole, RN Dave Covey Farrokh Farrokhi, MD Monique L. Giroux, MD Karen A. Hadley Richard Hadley Move. Connect. Engage. STEVE WRIGHT Okay, I admit - it started as a marketing slogan. But, you know, it’s actually quite appropriate for the commitment NWPF has made to the Parkinson’s community. Move, Connect, Engage are three words that may well summarize the difference between a high quality of life and a low quality of life, respective to one’s Parkinson’s disease. Sheryl Harmon Kerry Hovenkotter Marty Hovenkotter Larry Jacobson David Newsom Clare Nordquist Mark Palek Matt Ramerman Judi Sloan William Wurts Directors Emeritus Move. Very clearly, movement is a key component to minimizing PD symptoms - plenty of peer reviewed studies have indicated such. So, what can NWPF do to help you move? By providing classes and encouraging the expansion of movement opportunities. Today, we offer Dance for PD classes in four locales and expect to grow to two new sites before summer is out. Or, perhaps joining a yoga class, such as our new offering at the Northshore Senior Center. Or, joining Team Parkinson’s and taking a 2-mile Walk in the Park or riding your bicycle to Portland… or, the tandem bike program/study at Magnusson Park... If it’s your voice you want to move, join one of our new choirs just forming—The Tremolos. Regardless of the activity you choose - MOVE. Connect. There are others living with Parkinson’s today. By connecting with others, you may learn new techniques in overcoming some difficulties associated with your disease. Connect with those around you. Connect with your carepartners, family, friends and physicians. You are not alone. Perhaps sharing your experiences with another young onset individual may provide hope amid despair. NWPF has specifically developed PD Link, a one-on-one network, to assist during particularly difficult times. A hand to help you walk over that steep hill. Continued on page 8 Gov. Daniel J. Evans Nancy Evans Continued from page 1 Gov. Booth Gardner make people laugh – and the 84-year-old can still do just that, despite his wheelchair and slurring speech – but it’s his ability to provide hope to thousands that will be most remembered when he’s gone. Recently, Newsom said the most important piece of advice he can offer to a new “Parkinson’s Person” is to let people in. “Be open about it,” he said from a wheelchair in his home 24 floors high in downtown Seattle. “You can be. Don’t go in the closet. You’d be surprised how much help you can get.” As his own way of coping with the 1994 news that he’d been diagnosed with Parkinson’s, Newsom took being open about it to a whole new level. He wrote a no-holds-barred account of his own struggle to cope with the reality of his situation and eventually found some therapy through disclosure. Through his 20-year journey with Parkinson’s, Newsom has made activity a priority in his life. He maintained a strenuous running schedule throughout the end of the 20th Century. In 2004, at the age of 74, Newsom participated in the 206-mile Seattle-To-Portland bike ride. As of four years ago, he was still able to “shuffle-jog,” as he calls it, on the sidewalks surrounding the high-rise facility he calls home. And even now, despite being bound to a wheelchair, he participates in seated activity three times a week. “He’s always been big on: Move it or lose it,” Hadley said. “That ‘get up, get dressed and get (deceased) Hal Newsom Priscilla Tanase Executive Director Steve Wright, MPA Medical Director Monique Giroux, MD Finance Director Virgil Sweeney Development Director Anne Alkema Program Director Melissa Tribelhorn, MPA Social Services Manager Maria Cole, MSW, LSWAA Communications & Marketing Manager Rebecca Mauldin, MPA | SPRING 2014 | page 2 going’ attitude.” Newsom has also kept busy as a leading member of the NWPF’s board of trustees and an avid writer who doesn’t let a day go by without putting something of note onto his computer screen. For Newsom, being able to cope with Parkinson’s all goes back to the day in 1994 when he walked alone along the beach near his Vashon Island cabin and made up a plan for how he was going to deal with the news. Said Peggy Newsom: “He doesn’t get depressed, and depression’s a big deal for a lot of people [with Parkinson’s].” Hal Newsom, who turns 85 in June, said he probably couldn’t have done it without his most important source of hope. “She’s upbeat too,” he said of wife Peggy. “She’s a really good partner.” A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease PD University: Book Review BY NAN LITTLE, Ph. D., PwP “For some of us, being ill is a full-time job.” -Karl RobbDiagnosed with Parkinson’s at age 23, after having experienced symptoms since age 17, Karl Robb has lived more of his life with Parkinson’s than without it. Rather than despairing about what he cannot do, Robb makes his full-time job, his life work, helping others with Parkinson’s and their caregivers. Through speaking and writing, he communicates his experiences with Parkinson’s, describing what works for him and encouraging others to be proactive in managing their own disease. In his blog and his book he shares his positive outlook. This book is highly acclaimed by readers, likely because of Robb’s candid, positive approach to many challenges he faces with the disease. Because his initial experiences with the medical community were often frustrating and negative, Robb sought resources that were meaningful to him, particularly nontraditional forms of healing such as Reiki, meditation, yoga and touch. He believes these alternative approaches give him power based in his personal self rather than centered in the medical community that, for him, all too often relies on pharmaceuticals and surgery rather than self-efficacy. He frequently reiterates, “You are in control of your own health.” Much of the book is dedicated to perceived benefits of nontraditional medicines, particularly Reiki, a “complementary therapy that incorporates the use of universal energy. A trained Reiki practitioner is able to transfer universal energy through his or her hands and allows that energy to help assist the recipient.” Robb states that through Reiki he has been able to control his disease and lower his medications for many years. He strongly encourages patients to suspend their disbelief and give it a try. On the one hand, Robb acknowledges the value of Western medicine and the doctors who practice it. On the other hand, he abhors what he considers unjustified negativism. “The medical community in general seems to think that people with Parkinson’s will only get worse, period. They provide little hope for improving our condition and typically add to their prognostications that this illness is both chronic and degenerative. I have yet to hear of a doctor who prescribes hope and positive thinking to his patients.” He cau- tions against DBS surgery because we do not know why it works. Although the same criticism can be made of Reiki, or all Parkinson’s therapies, Robb rightfully notes that Reiki is not surgery and therefore there is no risk from trying it. Robb’s sincerity and good heart are unquestioned. Simple, straightforward language makes this book easy to read. Advice often comes in lists and mantras. Because content is based on his blogs, there is much repetition. For those of us with Parkinson’s, repetition is often a good thing. For the newly diagnosed who are generally suffering from anxiety, disbelief and despair, this book offers positive, straightforward advice, though often delivered in platitudes and truisms, such as: “What works for some, may not work for others. We are all unique and different. Keep an open mind.” Perhaps platitudes and truisms are just what the doctor ordered. The views and opinions expressed in this article are those of the author and do not necessarily reflect the position of NWPF. A WALK IN THE PARK July 26, 2014 9:30 a.m. fun - family oriented - dog friendly A two-mile walking course through the beautiful lakeside shores of Magnuson Park offering individuals a chance to exercise, raise awareness, build community, and raise fund all at the same time. Also offering a short loop for anyone with mobility challenges. There is no registration fee for the Walk. Sign up today! MUSIC, BOUNCY SLIDE, PRIZES and MORE! - Team Parkinson’s t-shirt: raise $100 - Team Parkinson’s hat: raise $250 - Team Parkinson’s hoodie: raise $500 Register online today! nwfp.org/participate or contact Anne Alkema [email protected] or 206.946.6518 Boise, ID Sept. 20, 2014 Register online at nwpf.org or call toll-free 1.877.980.7500 or complete and mail this portion of the page to: Northwest Parkinson’s Foundation, Attn: Conference Office 400 Mercer Street, Ste. 502, Seattle, WA 98109-4641 ATTENDEE INFORMATION Please supply the name of each attendee. This form may be copied for additional attendees. Attendee 1: I am a: Patient Attendee 2: I am a: Mr. Mr. Patient PD Link Northwest Northwest Parkinson’s Foundation launched its new program PD Link Northwest this spring. The successful program pairs volunteers who have “been there” with people who want to talk. PD Link is available to those affected by Parkinson’s disease, whether you’re newly diagnosed and struggling to make sense of things, experiencing a change in symptoms or a care partner who needs some care yourself. PD Link Northwest is here to help. Ms. Caregiver Family Friend Family Friend Ms. Caregiver Here is a little of what some volunteers and clients are saying about PD Link Northwest... Address City State Zip Telephone Email address (for your registration confirmation) LUNCHEON ENTRÉE SELECTION Attendee 1: Tarragon Chicken & Rosemary Mashed Potatoes Vegetarian Lasagna Attendee 2: Tarragon Chicken & Rosemary Mashed Potatoes Vegetarian Lasagna OTHER REQUESTS Escort at drop-off entrance Scholarships available upon approval “This was a very direct and simple way to get anwers to questions I had about DBS by hearing the volunteer’s personal experiences with the surgery... thank you for offering this great mentor program.” - Marsha, PD Link Client “Helping others to live with joy despite PD helps me to do the same.” - Tim, PD Link Volunteer Special dietary request: CONFERENCE FEE Before September 6: $20.00 | September 6 - September 20: $25.00 The conference fee includes admittance to speaker presentations, continental breakfast, lunch, afternoon snack and vendor exhibits. Please mail this completed registration form with your payment. If you are unable to attend, please consider making a gift to support a scholarship for a person in need. Enclosed is my check for $ Please bill my credit card “Talking with my buddy was the best thing that happened to me since I was diagnosed! She listened with her heart and truly knew how I felt. I finally felt heard. She was encouraging, uplifting and by the time we finished our talk I felt empowered and inspired... I hung up feeling embraced as well as knowing “I can do this.” Yes, I would recommend this service and thank you for making this happen!” Sue, PD Link Client (checks payable to NWPF) Master Card Card # Visa $ Exp. date (month/year) “I think my first connection went well and I think this is a great service for those who are diagnosed with PD. To be able to talk with someone else who has PD and hear their experiences is a great help, service and support. I wish I would have had that opportunity six years ago. Thank you for the opportunity to help someone else with PD.” - Sally, PD Link Volunteer “It’s nice to feel like I’m helping someone else with PD.” - Chris, PD Link Volunteer “I could tell I made an important difference. She felt comfortable calling me back.” - Nan, PD Link Volunteer Name on credit card (please print) Signature Address of cardholder: Same as attendee Interested in making a connection? Address City State Zip Volunteers needed: This conference relies on a team of volunteers who assist the event coordinator for all or part of the day. If you would like to participate in PD Link Northwest and benefit from the knowledge and support of our volunteers, or if you would like to offer wisdom and experience as a volunteer, please contact Maria Cole at Northwest Parkinson’s Foundation. [email protected] or 206.946.6517. A Conversation with my Dad BY BETTE JANE CAMP NWPF Program Leadership Intern My dad’s sense of humor can be seen from across the cafe as he opens the glass door and greets me with a half-smirk. There is always something to be snarky about. Diagnosed with Young Onset Parkinson’s Disease in 1998, Brian Camp remains to me a mobile and present Dad—a Dad with P.D., true, but a Dad much more than his stiff limbs, harrowed speech or stoic expression try to overwhelm. I considered this dynamic of patriarch amid Parkinson’s when my family and I watched the premiere of “The Michael J. Fox” show. Where does Parkinson’s end and Dad begin? Perhaps, I wondered, as with any evolution in our identities, there aren’t black-andwhite definitions of Parkinson’s person and Dad. But before my thoughts tangled up in philosophical obscurities, I asked my own father what his impression has been of “The Michael J. Fox Show”. We congregate at a cafe near my dad’s apartment; he waves at the cashier and has his order (double-tall vanilla soy latte) in the works before he sits down with me. “Hi, sis,” he says quietly beneath his small grin. “Hey, dad.” With his latte in hand (and fluorescent gloves removed), we discuss Michael J. Fox and the possible impact of his show. BC: “So, strictly in terms of what it means for a major source of media to center on Parkinson’s, do you think ‘The Michael J. Fox Show’ helps with awareness?” JC: “Yes. I am sure it’s led many people to google Parkinson’s and Michael J. Fox.” BC: “Do you feel it’s relatable to you, the depiction of Parkinson’s?” JC: He shakes his head. “Most people are very stiff and sore with little energy or stamina—[Michael J. Fox] has so much energy on the show. He works when he’s at high points, physically. When his medicine is on.” BC: “What do you think the effect of that is? Since Michael J. Fox’s show is highlighting Parkinson’s?” JC: “Well, he just got nominated for an Emmy [for his show]. I think that that is excellent. It’s exposure you can’t buy. And you have to give the audience credit.” BC: “But even if they don’t know very much about Parkinson’s?” JC: He nods. “That’s what awareness is all about. At least, it is better that [the audience] knows the disease a little bit rather than not knowing at all.” BJC: “Michael J. Fox is a stay-at-home dad on the show. What do you think about that and his T.V. family? Being a dad with Parkinson’s?” JC: “I think it is great. I enjoy that part the most as I can relate to it. After all, I’m a single parent, a single father!” “The Michael J. Fox Show” may not have resonated within my dad in the style of deep inspiration. But the very presence of Parkinson’s in the media is, to him, more than just another branch of network television. Dads, Parkinson’s and non-Parkinson’s people: the awareness of this disease streams through its darkness, even if it is only a small strand of enlightenment trickling out of TVs. My dad and I hope for more light, more awareness, more knowledge, in all institutions of information. And if there’s one neurodegenerative disease brimming with hope, it is undoubtedly in the half-smirks and dancing shuffles of Parkinson’s. The Legacy Circle NWPF’S PLANNED GIVING PROGRAM Estate planning is an effective way to take care of yourself, the people you love and the charities that are important to you. Northwest Parkinson’s Foundation would like to help you leave a legacy after you are gone. By joining the Legacy Circle and including a gift to NWPF in your overall estate and financial plans, you can provide your estate with considerable tax benefits and help families with Parkinson’s live well for years to come. For more information on including NWPF in your estate and financial plans, please visit our website: http://nwpf.org/give/ planned-giving/ or contact Anne Alkema at 206-946-6518 or [email protected]. | SPRING 2014 | page 5 T RIBU TE GI FTS Gifts to Northwest Parkinson’s Foundation support educational publications and self-care tools, including this newsletter, weekly email news updates, web site, patient education programs and annual HOPE & LIVING conferences. We are honored and privileged that so many in the community support our mission by giving generously throughout the year. To make a donation or for more information contact Anne Alkema at [email protected]. Gifts listed here are from Sept. 1, 2013 through April 30, 2014 IN HONOR FAMILY FUNDS Alvord Medical Director Fund in Memory of Roger Evans Mel Bacher Family Fund Harvey & Phyllis Ceaser Jacob & Gale Chapman Larry & Nancy Crevin Robert C. Hammond Sidney & Barbara Meyers Dave Askew Mr. & Mrs. Dave R. Askew Mary A. Mitchell Memorial Fund Margaret (Martie) Philbrick Family Fund Ms. Katherine B. Philbrick Tina Bell Torrance Family Fund Mr. Jack Harvey Chris Adams Mr. & Mrs. Paul McTaggart Mr. & Mrs. Michael Nelson Ms. Wendy Piecka Mr. Bruce Schatzman Mr. & Mrs. Bruce Severson Ms. Karina Sinclair Barb Bahner Mr. Donald Priebe Darrell Baker Mr. & Mrs. Charles A. Turkr George Beare Mr. Michael Beare David Blakemore Ms. Rosemary Blakemore Darlene Cain Sally Norby Richard E. Carlson Ms. Marcia Carlson George Caton Ms. Pamela Mull Barney Chui Mr. & Mrs. Robert Gilman | SPRING 2014 | page 6 Dave Covey Mrs. Janet V. Detering Eldon Meyer Ms. Judy Davis Christine Thorson Mr. & Mrs. Duane S. Thorson Allen Craft Ms. Caryl Parrish S. Karl Moldrem Ms. Lisa A. Moldrem Teddy E. Turner Mr. & Mrs. Teddy E. Turner John DeBroeck Mr. & Mrs. Brian R. Joubert Mary Monroe Mr. & Mrs. Douglas C. Hammond Jack Tsuchiya Mr. & Mrs. Robert S. Tanaka Robert Dixon Mr. & Mrs. Kerry M. Schierman Hal Newsom Robert Condon Mr. & Mrs. Arthus F. Gollofon Mrs. Delores Groth Ms. Carolyn Martin Mr. & Mrs. Robert S. Tanaka Dr. Joe Tyler Ms. Elizabeth Norton Donna Dueker Mr. & Mrs. Kenneth J. Dueker Tom Dunn Mrs. Betty Jane Dunn Jim Elmer Joel Elmer Evergreen Mens Support Group Mr. & Mrs. Ross Webb Nancy Nyce Mr. & Mrs. John R. Nyce Cathy Oas Mr. Richard G. Matthews Gary Raymond Mr. & Mrs. David G. Kachel Ed Ewell Mr. & Mrs. Ed Ewell, R.Ph. Larry Riegert Ms. Alice A. Litton Tony Faber Ms. Caroline Rose Gwen Ross Mr. Brett Ross Robert Ferguson Ms. Holli Templeton John Saylor Ms. Gretchen Black Laurine Fillo Mr. & Mrs. David Fillo Jerry Schatz Ms. Susan K. Baxter Lana Gillis Ms. Malinda M. Cox Julie Schoenfeld Mr. & Mrs. Joel Altshule Sherry Goldberg Cigar PEG, Inc. Larry G. Scott Mr. & Mrs. Larry Scott Eva Gruelich Mr. & Mrs. James Sheldrup Marcie Sewell Ms. M. Laverne Sewell Wendy Holman Ms. Sue Siegenthaler Tom Sexton Ms. M. Laverne Sewell Martin Hovenkotter Dr. & Mrs. Russell E. Sawyer, Jr. Maria Shaffer Anna Shaffer John Rolfe YMCA Staff Mr. & Mrs. John S. Oehler Juanita H. Sigmon Mr. C. Miller Sigmon John F. Kelly, Jr. Mr. & Mrs. John F. Kelly Roger Sims Mr. & Mrs. Roger Sims Ivan King Ms. Karen L. King Sam Siva Ms. Nithya Siva Ken Kisch Ms. Beverly Kisch Recycled Cycles Paul Slotboom Mr. & Mrs. David Slotboom Richard Kratz Mr. & Mrs. Gregory D. Sawyer Lyle Landsiedel Ms. Kathy Pfeifer Robin Levin Mr. William Hesse Wendy Slotboom Mr. & Mrs. David Slotboom Ann Smith Mr. & Mrs. Joseph Powers James Ray Smith Mr. & Mrs. Larry Mackey Patty Unruh Mary Jo Davis Vickie & Chuck Lowen Keith Unruh Jackie Vhugen Mr. & Mrs. Harold Vhugen The Wiggintons Mr. Dustin Kelley Robert Wilder Mr. & Mrs. Alan R. Hornish Elisabeth Wold Rev. & Mrs. David C. Wold Yuiko Yampolsky Ms. Helene Yampolsky IN MEMORY Evelyn Aarons Duane & Debbie Snapp Carl Abrahamser Ms. Carla A. Folkins Mary Acker Lincicome Mr. & Mrs. Brian Kremen Kevin Adamson Mr. & Mrs. Gergory M. Jones Barbara Addis Mr. & Mrs. Bettie L. Hanning Kathi Nakata Margaret Schmidt Domenico Addona Ms. Catherine Addona-Pena Alex Aidekman Mr. & Mrs. Kenneth Aidekman Marita V. Albert Mr. &. Mrs. Ron Burger Mr. &. Mrs. Russell B. Davidson Mr. &. Mrs. Claude J. Denson Mr. &. Mrs. Dennis Thornton Mr. &. Mrs. Hal Williams Diane Allen Mr. John H. Allen Renie Levine Mr. & Mrs. Alan Levine Speak Up for Parkinson’s AnJeL Advised Fund of RSF Social Finance John Little Mr. & Mrs. Jay Kirk Diane Spinrad Mr. Andrew R. Cohen Carolyn Lorang Ms. Susan K. Baxter Dennis Spirek Ms. Mary Spirek Walt Lyons Mr. & Mrs. Tom Dos Remedios Col. Joe Stewart USMC Col. & Mrs. Joe Stewart, USMC (Ret) Zelma Baldridge Ms. Mary Christner John Sumich Mr. & Mrs. Jerry Brodigan Beverly Baldwin Mr. &. Mrs. Michael Baldwin June Swaim Toni Miller James R. Ball Ms. Tiffany K. Lindbloom Alice H. Sweigert Mrs. Alice Sweigert Helen A. Bell Mr. Robert D. Bell Kim Mason Ms. Kathy Christensen Dave McCann Mr. & Mrs. Mherling I. Luce Fred McMullin Mary McMullin Trish Merritt Mr. & Mrs. Robert Kellogg Georgie Allwine Mr. Bob Allwine Adrian Arnold Mrs. Anne. A. Moldrem John Austin Mrs. Karen Austin Lois Benton Storm King Post 171 American Legion Jim & Angela Benton John & Joyce Crooks O.E.S. Faith Chapter #255 Berta K. Bernard Mr. Ralph Bernard Alan Berry Ms. Carol Berry Arthur Britton Mrs. Louise Britton William Bumpus Mr. & Mrs. Theodore Tanase Bob Carlson Mr. & Mrs. Richard J. Plaisance Mike Carlson Ms. Beverly A. Wagener Robert Carlson Mr. & Mrs. John A. McPherson Robert Harry Carlson Mrs. Mary Kay Friend Mr. & Mrs. Jay Smithman Prem Prakash Chandna Vonita Singh Margaret Clift Mr. James P. Clift Steve Cohn Michael Meisel Doris & Annie Connelly Mr. & Mrs. Mark C. Brainard Duane Costa Mr. & Mrs. James. U. Cloutier Mr. & Mrs. Gordon Fullerton Chris & Michelle Neely Gerald Post Gail & Michelle Neely Gerald Post Gail & Kathie Sanders Mr. & Mrs. John Schenk James & Terri Stoner URISA Ed & Annette Wilder Mr. W. Thomas Wischmeyer Robert Hoag Mr. & Mrs. Thomas William Varney Gene Martens Ms. Lia Bruner Ms. Marie Sweeney Mr. Timothy Murphy Marie O’Brien Barbara Shenton Mary Hoisington Mr. & Mrs.Jim Bresnahan Ms. Lesley Culley Delores Martinis Mr. & Mrs. Gergory M. Jones David Russell Mr. Steven W. Russell Jim Ryan Mr. & Mrs. James Collier Marvin Durning Mr. Charles Ehlert Lyman W. Hull Mr. & Mrs. Thomas W. Hull Seattle Foundation Delores Mazza Mr. G.W. Bischoff Carr Butterfield, LLC Ms. Donna Dalisky Ms. Jane Lee Hansen Mr. James A. Ofelt Phyllis C. Eiselt Mr. Raymond W. Eiselt Raymond Evans Mrs. Bernadette Evans Bennetta A. Fjardo Mr. Fernando V. Fajardo Ellene Fancher Mr. & Mrs. Lowell Pederson Rosemary Ford Dr. & Mrs. William Ritchie LeRoy Foster Co-operative Supply, Inc. Booth Gardner Mr. Billie Christiansen Ms. Kathy S. Cooper Ms. Patricia Flynn Kenet Frodie Ms. Maryanne McGillivray Ms. K. Wendy Holden Laird Norton Company LLC John Nettleton Karen Gardner Ms. Kayla J. Schuler Dee Hooper Capital Lakefair Larry Humphrey Stacia & Robert Cammarano Dave Covey Mary Floyd Mrs. Natalie Humphrey Elizabeth H. Rand, MD Douglas & Susan Sparks Dr. & Mrs. Gail Strait Sallie & Herb Zimmer James McArdle Mrs. Ellen McArdel Dr. J. Oppie McCall Ms. Patricia Mack William M. McCord II Mr. & Mrs. Timothy Larson Don McNally Mr. Kenneth Stobart Carol T. Isaacson Rawn Ms. Ruth Rankin Dolsen Ms. Mari Stamper Wyman Youth Trust Edward Alden “Snoop” Mikkelsen Mr. & Mrs. Cliff Foreman Mary Jetter Mr. & Mrs. Marvin Coe Albert Mindell Ms. Maxine C. Mindel Victor Kaloper Mr. Peter Antovich Mr. & Mrs. Bradley Kaloper Mrs. Danica Kaloper Napoleon C. Montecillo Mrs. Aida Montecillo Jerome Katz Mrs. Rita Katz Jeannie Kelly Mr. John A. Kelly George Moore Mrs. Winnie Lee Moore Mitsuko Morishita Ms. Joni Morishita Richard Morris Ms. Janet B. Zema Eldon Schroeder Mrs. Ramona J. Schroeder Elva Mae Sehmel Smith Marissa Dogeagle Smith Steve Simpson Mrs. Dorothy Simpson Hubert V. Smith Mr. & Mrs. Canfield F. Smith James “Ray” Smith, Jr. Ms. Ericka Field Ms. Melissa Fontes Dr. Dorothy Hazama Stephen & Pauline Jaouen Ms. Joy O. Lind Mr. & Mrs. Mike Noyes Ms. Gail Petagno Mrs. Dorothy Smith Mr. & Mrs. Benjamin D. Taylor Mr. William T. Vaughn Quentin Smith Roger & Pam Bauman Lucia Beach James Snyder Mr. & Mrs. Larry Schetzle Rich Stephens Mr. & Mrs. Robert M. Long Richard Stimom Mr. & Mrs. David W. Baker Hugh Givens Mr. & Mrs. Tom Cohen James Kenyon Parkinson’s Support Group in Boise Beverly Cranston Ms. Cheryl Semmens Ida Griffith Mr. & Mrs. Dave Miller Alice King Kenet Frodle Robert Creso Mr. Robert A. Roegner Timothy Gross Mr. Michael Gross Seattle Foundation Mr. Chester Thomas Mr. & Mrs. Rens Verburg W.G. King III Mrs. Charlotte K. Myers John Gunlogson Ms. Rosie Gunlogson Mr. Arthur Gunlogson Henry L. Krapf Mr. & Mrs. John S. Harrison Patricia O’Rourke Mrs. Bernice Kent Mr. Kevin O’Rourke Wayne Uht Mr. & Mrs. Michael Hibbard Gisela Kriebaum Mr. & Mrs. Robert P. Mearls Paul Palmer Mr. & Mrs. Jack Coddington Fred Van Ieperen Peggy A. Van Ieperen Ms. Helen I. Kassner Ives Robert Krussel Mr. & Mrs. James E. Krussel Ruth Pasternack Mr. & Mrs. Eric S. Pasternack Paul A. Kryska Mrs. Eva A. Kryska Ward “Terry” Pearl Ms. Lenora F. Pearl Lyle Landsiedel Mr. & Mrs. Walter W. Shields Shirley Pepper Mr. John Pepper Ella Larson Mr. & Mrs. Ted E. Oien Kebel Perine Mr. & Mrs. Carl M. Klug Bert J. Lillian Mr. & Mrs. Allen J. McCall Dorothy Pinard Mr. Bruce L. Hayes Edwin London Ms. Antonia Blume Dr. Edward A. Pintavalle Fourth District Dental Soceity Albert Ludwick Ms. Nora Cromley Peter Piper, MD Mrs. Patti B. Piper Nancy Lynch Mr. & Mrs. James C. Haslam Betty Pohlmann Mr. & Mrs. David E. Lammert Calrrence “Els” Lyons Ms. Loreice Lehmann Dr. Wayne Ramerman Mr. & Mrs. Craig G. Marocco Enling Madsen Mrs. Adella C. Madsen Charles Rush Mrs. Laurel Holmes Jeff Kuhns Maschmedt & Associates, Inc. Melodie Maxwell Karola Moore Edmond Daigneault Mrs. Janet Daigneault Melvin De Mond Mrs. Ellomae H. De Mond Caroline Detting Mr. & Mrs. Lee B. Baerny M. Lucille Christianson Chuckanut Valley Veterinary Clinic Robert & Janice Cunningham Robert & Betsy Gottwald Ms. Shirley Heathers Ms. Peggy Kaelin Anna King Marlen Knutson Mr. & Mrs. Ted E. Oien Tamara Whiton Neil Dickinsen Mrs. Doris A. Dickinsen Ron Doman Mr. C. Miller Sigmon Michael Dueker Steve Alder Bill Anderson Callie Black Jacqueline Blair Jack Butler Mr. William Craig Riccardo DeCecio Robert Dittmar Tracie & Matt Douglas Darrell Eyman Roger & Carolyn Knutson Robert & Sandra Lemcke D. Anne Lemcke Alan Lomax Michael & Darlene McNulty Carol Hansen Mr. & Mrs. John W. Crim Norm Hascall Mr. & Mrs. Michael P. Hascall Margaret Louise Haughey Mr. Clarence Haughey Dar Haworth Mr. Ken L. Haworth Les Hayden Mr. & Mrs. Ernest N. Hayden Alfred C. Hayes, Jr. Mr. & Mrs. Daniel L. King Karen Hermann Mr. Sigwulf Hermann Howard R. Herrigel Mrs. Judith Herrigel David Herting Mrs. Ericka C. Herting Clark Hiatt Mr. & Mrs. Richard Hiatt Alvin Hildebrandt Gloria Koenig John Hinckle Mrs. Frances Hinkle John Koski Mr. & Mrs. Douglas Johnson Eldon Mann Mr. & Mrs. Randall E. Mann Edward Mulvihill Ms. Deborah Magallanes Ms. Kristie Simard Kathlee Myhre Mr. Glenn M. Myhre John Edward O’Heron Ms. Deborah M. Drllevich Mrs. Nancy O’Heron Ann Strand Ms. Karin Strand Michael Thornton Daniel Thornton Stanley Tomich Ms. Mary K. Mauceri Hildegard E. Wachob Ms. Charlotte Kingsley Mr. James R. Wachob Bernice Williams Ms. Diane R. Shearer Jim Williams Ms. Barbara Baugh John P. Willman Ms. Dorothy Bartlett Bob Winton Mr. & Mrs. Thomas J. Hoeppner Carol A. Wurts Mr. & Mrs. Richard P. Hollyer Mr. William W. Wurts Mark Youtsler Mr. & Mrs. Earl H. Larson Jean Zint Mr. & Mrs. William H. Stempson Jill & Steven Beth, Jon & Caroline Ott Nancy Ms. Bari J. Dorward | SPRING 2014 | page 7 NONPROFIT ORG. U.S. POSTAGE PAID SEATTLE, WA PERMIT NO. 02443 400 Mercer Street, Suite 502 Seattle, WA 98109-4611 877 980 7500 nwpf.org Please contact us if you do not wish to receive the Parkinson’s Post Continued from page 2 Regardless of the medium you choose - CONNECT. Engage. Engage in your life and you will find meaning. Engage in those around you and you will find love. Engagement is what makes us human. I encourage you (whether you have PD or not) to engage in every conversation, every activity, every thought. One important engagement with PD is to educate yourself and take ownership. NWPF.org is an amazing resource for education—through Dr. Giroux and other expert blog postings, Wellness Center articles and live webinars. Engage in your disease by attending the HOPE Conference in the fall or, if you live in Boise, the Living with Parkinson’s Conference in September. Regardless of your interests, concerns, or thoughts --- ENGAGE. Save the Date! Northwest Parkinson’s Foundation and American Parkinson’s Disease Association, WA Chapter present Join us November 1, 2014! An engaging educational symposium focused on HOPE for patients, family, friends and caregivers. More details to come this summer! pdhope.org or 206.748.9481 or 206.277.5516 Meydenbauer Center 11100 NE 6th Street Bellevue, WA 98004 | SPRING 2014 | page 8
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