DOWN SYNDROME PCHR insert for babies born with Down syndrome (Third Edition, June 2011) © Down Syndrome Medical Interest Group (2011) The Children’s Centre, City Hospital Campus, Hucknall Road, Nottingham NG5 1PB Tel: 0115 8831158 Fax: 0115 8831146 Email: [email protected] http://www.dsmig.org.uk Down Syndrome Medical Interest Group All rights are reserved. No part of this insert may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electronic, electrostatic, magnetic tape, mechanical photocopying, recording or otherwise without permission in writing from the copyright owner. All enquiries should be addressed to the publishers Printed and Supplied by: Harlow Printing Limited Maxwell Street ● South Shields Tyne & Wear ● N33 4PU Tel: 0191 455 4286 Email: [email protected] 1 INTRODUCTION DOWN SYNDROME The following pages are extra pages for your baby’s Personal Child Health Record Book (PCHR) which is issued to all new babies in the UK. These extra pages have been produced by the UK Down Syndrome Medical Interest Group (DSMIG UK). They are for babies who are born with Down syndrome. They give additional information which will help you maintain the health and well being of your child. They include special growth charts for boys and girls with Down syndrome. Babies and young children with Down syndrome have just the same needs as any child. You should take your baby for routine child health checks and immunisations in the usual way. (see main PCHR). It is not possible in this small booklet to cover all topics relevant to your child’s health and well being. Your local healthcare team, or one of the agencies listed at the end of this insert will be able to provide more information. You will also find more detailed information written specifically for parents in the Department for Education Early Support materials. Information on how to access this can be found under “Early Support”, in the Sources of Help and Advice section on page 14. A wide range of information for healthcare professionals can be found on the DSMIG website. (www.dsmig.org.uk) 2 Down syndrome insert © DSMIG 2011 DOWN SYNDROME – CHILD DEVELOPMENT There is no such thing as a typical child with Down syndrome. Children with the syndrome are as different from each other as are all children. However, by and large, their development is slower than that of most children. The charts which follow give the usual developmental progress of children with the syndrome. By understanding what is usual for a child with Down syndrome you will be able to recognise any additional problems at an early stage. Down syndrome insert © DSMIG 2011 DOWN SYNDROME Many parents like to record developmental ‘firsts’ on the pages provided in the main PCHR. You may also like to use the Early Support Programme Developmental Journal for Babies and Children with Down Syndrome. Information on how to access this can be found under “Early Support”, in the Sources of Help and Advice section on page 14. You can download this publication or order it free of charge. 3 DOWN SYNDROME – DEVELOPMENTAL MILESTONES Finding out about moving DOWN SYNDROME Activity Children with Down syndrome Typical Children Average age Range Average age Range Holds head steady when sitting 5 months 3-5 months 3 months 1-4 months Rolls over 8 months 4-12 months 5 months 2-10 months Sits alone 9 months 6-16 months 7 months 5-9 months Stands alone 18 months 12-38 months 11 months 9-16 months Walks alone 23 months 13-48 months 12 months 9-17 months Adapted with permission from Cunningham. Down Syndrome: An Introduction for Parents and Carers (3rd Edition). 2006. Souvenir Press 4 Down syndrome insert © DSMIG 2011 DOWN SYNDROME – DEVELOPMENTAL MILESTONES Finding out about hands Follows objects with eyes Reaches out and grasps objects Passes objects hand to hand Builds a tower of 2 cubes Copies a circle Children with Down syndrome Typical Children Average age Range Average age Range 3 months 1.5-6 months 1.5 months 1-3 months 6 months 4-11 months 4 months 2-6 months 8 months 6-12 months 5.5 months 4-8 months 30 months 14-32 months 15 months 10-19 months 48 months 36-60 months+ 30 months 24-40 months DOWN SYNDROME Activity Adapted with permission from Cunningham. Down Syndrome: An Introduction for Parents and Carers (3rd Edition). 2006. Souvenir Press Down syndrome insert © DSMIG 2011 5 DOWN SYNDROME – DEVELOPMENTAL MILESTONES Finding out about words DOWN SYNDROME Activity Responds to sounds Babbles “Da-da” and “Ma-ma” Responds to simple instructions First words spoken with meaning 2-word phrases Children with Down syndrome Typical Children Average age Range Average age Range 1 month 0.5-1.5 months 0 month 0-1 month 7 months 4-8 months 4 months 2-6 months 16 months 12-24 months 10 months 6-14 months 18 months 13-36 months 14 months 10-23 months 30 months 18-60 months+ 20 months 15-30 months Adapted with permission from Cunningham. Down Syndrome: An Introduction for Parents and Carers (3rd Edition). 2006. Souvenir Press 6 Down syndrome insert © DSMIG 2011 DOWN SYNDROME – DEVELOPMENTAL MILESTONES Finding out about people Children with Down syndrome Typical Children Average age Range Average age Range 2 months 1.5-4 months 1 months 1-2 months 11 months 9-16 months 8 months 5-13 months 20 months 12-30 months 12 months 9-17 months Dry by day 36 months 18-50 months+ 24 months 14-36 months Bowel control 36 months 20-60 months+ 24 months 16-48 months Smiles when talked to Plays pat-a-cake or peek-a-boo Drinks from an ordinary cup DOWN SYNDROME Activity Adapted with permission from Cunningham. Down Syndrome: An Introduction for Parents and Carers (3rd Edition). 2006. Souvenir Press Down syndrome insert © DSMIG 2011 7 DOWN SYNDROME - HEALTH PROBLEMS DOWN SYNDROME Children with Down syndrome do not on the whole have health problems which are different from those which can affect any child. Some have very good health whilst some seem to have more than their fair share of illness. Because some problems occur more often among those with the syndrome all should have some extra health checks (see next section) so that if there is a problem it can be identified and treated as quickly as possible. Heart problems About half of all children with Down syndrome are born with some sort of heart problem but less than one in five have a serious problem. It is important however to identify any serious problems in the first 2 months because early treatment may be needed. If the checks we recommend are carried out nearly all serious problems can be identified before a child is six weeks old. If these checks are done and your child is given a clean bill of health then he/she is very unlikely to develop a heart problem during childhood. Vision and hearing problems Children with Down syndrome are particularly likely to develop hearing problems and long or short sight. It is very important to identify these early on because they can easily be treated. If not treated they can affect your child’s developmental progress. Thyroid problems The thyroid gland is more often underactive in children with Down syndrome than in other children. If this happens your child’s development will slow down unless treatment is given. Treatment is simple and effective. Regular blood tests need to be done to see if this sort of problem is developing. Constipation Constipation is a common problem in children with Down syndrome. In most cases it is not due to any underlying bowel problem and can be managed as it would be in any child. If it has been a problem since birth, is severe and persists despite simple measures, then other causes such as Hirschsprung’s disease or an under active thyroid should be considered and discussed with your Doctor or health visitor. 8 Down syndrome insert © DSMIG 2011 Breathing Children with Down syndrome may be more susceptible to respiratory infections for a variety of reasons including reduced immunity, feeding difficulties, gastro-oesophageal reflux and heart or airway problems. Treatment will focus on tackling these causes, often in combination. Some children also develop irregular breathing and poor quality sleep due to sleep related breathing difficulties. This may need to be checked with sleep studies. DOWN SYNDROME Teeth Teeth do not necessarily come at the same time or in the same order as other children. As with all children dental hygiene is important and children should visit their dentist regularly. Blood disorders Children with Down syndrome should have their blood count checked at birth as many children will have differences in the make up of their blood, and a few may need treatment. Neck problems You may hear mention of children with Down syndrome having neck problems. This is very rare and does not require routine screening. However if there are symptoms suggestive of a problem, these may need investigation and treatment. Possible warning signs are pain behind the ear or in the neck, or holding the head and neck in an odd position. Other conditions It is not possible in this small booklet to cover all the conditions which may occur more frequently in children with Down syndrome. Those discussed above are some of the most common. Any concerns you may have about your child’s health should be discussed with your local health professionals. But remember, although a few children seem to have more than their fair share of health problems others enjoy good health. Down syndrome insert © DSMIG 2011 9 FEEDING Many babies with Down syndrome feed just as well as other babies but there are also quite a few who have difficulties, particularly in the first few weeks. DOWN SYNDROME The most common problems are: - your baby falls asleep soon after starting feeding so doesn’t take enough. - your baby may have a weak suck. - that the coordination of sucking, breathing and swallowing has not yet matured so your baby gets tired and distressed and again he/she ends up not getting enough milk. These problems usually get better after the first few weeks but can be very worrying for parents at the time. If your baby does have these problems you can help by feeding little and often until feeding settles down to normal. You may even need to wake your baby up at night to feed. If you had decided to breast feed your baby before he/she was born don’t change your mind just because he/she has Down syndrome. Most mothers who want to, do breast feed their babies successfully although efficient breast feeding may take longer to establish. Breast feeding support groups such as La Leche League and the National Childbirth Trust provide useful information, some of it specifically about feeding babies with Down syndrome. If your baby has the early feeding problems mentioned above you may find it helpful to express breast milk for a time and use this to feed your baby. You can then go back to breast feeding as soon as your baby is mature enough to cope. Similarly, if you are advised to give up breast feeding because of poor weight gain it may be worth expressing for a few weeks in case changing to formula makes no difference to weight gain. Your health visitor or breast feeding expert will be able to advise you about these issues. A few children with Down syndrome have difficulties with feeding at later stages of development - for instance when moving on to solids. If this happens your Health Visitor will be able to advise and you may need more specialist help from a Speech & Language Therapist. Remember though, many babies and children with Down syndrome feed just as well as other children. 10 Down syndrome insert © DSMIG 2011 DOWN SYNDROME - IMMUNISATIONS AND CHILD HEALTH CHECKS Immunisations Children with Down syndrome may be particularly susceptible to infections therefore it is very important they have the same immunisations as everyone else (see immunisation section in the main PCHR). For some children, particularly those with heart problems, additional immunisations may be recommended, for instance to protect against seasonal flu and bronchiolitis.You can discuss this with your GP, Paediatrician, Health Visitor or Practice Nurse. DOWN SYNDROME Child health checks You will find information about routine child health checks in the main part of your PCHR. Your child should be included in just the same way as other children in your area. It is also advisable for children with Down syndrome to have a few extra tests or checks. The next page tells you in the first column what sort of extra health checks (thyroid, eyes, hearing, growth, heart, breathing, blood) are needed. The other four columns tell you at what age these should be carried out. Details are given about the actual tests or procedures advised. Your GP or Health Visitor will be able to explain these to you. Different areas organise their child health services in different ways so the schedule will not always be followed precisely. However if you think that your child has missed out on one of these checks take this book along to your GP or Health Visitor or Paediatrician and ask if you can have the checks carried out. Down syndrome insert © DSMIG 2011 11 DOWN SYNDROME - SUGGESTED SCHEDULE OF HEALTH CHECKS The following are suggested ages for health checks. Check at any other time if there are parental or other concerns. Birth - 6 weeks Thyroid blood tests DOWN SYNDROME Eye checks Hearing checks Growth monitoring Heart checks Breathing checks Blood checks Special checks under 2 years Preschool checks School age Newborn routine heel prick - blood spot test From age 1 year thyroid function should be discussed annually using results of either ● Annual fingerprick TSH test OR ● 2 yearly thyroid blood tests, including thyroid antibodies Newborn routine check Age 18-24 months: Age 4 years: Repeat vision test every including congenital Formal eye and vision Formal eye and vision 2 years, or more cataract check examination including examination including frequently if check for squint, and check for squint. recommended by refraction for long or Refraction and optometrist or or short sight assessment of near and ophthalmologist distant vision and visual acuity Visual behaviour to be monitored at every review particularly in first year Universal newborn Full audiological review Annual audiological 2 yearly audiological hearing screen by 10 months including review as before review or more frequently hearing test and if recommended impedance check Length, weight and head circumference should be Height and weight should be checked and plotted checked frequently and plotted on Down syndrome on Down syndrome growth charts at least annually growth charts while growing. (BMI checked if concern regarding overweight) By age 6 weeks, formal At all ages low threshold for reviewing heart status if From adolescence heart assessment including signs or symptoms develop onwards as part of routine Echocardiogram health checks listen to heart for signs of acquired heart disease Enquire at every review for uneven breathing during sleep and poor quality sleep. Low threshold for further testing using sleep studies Newborn blood test to check for abnormal blood film If blood film is abnormal in first 6 weeks, follow up or repeat blood testing may be necessary until age 5 Detailed recommendations for Medical Surveillance Essentials for children with Down syndrome can be found at www.dsmig.org.uk 12 Down syndrome insert © DSMIG 2011 DOWN SYNDROME - RECORD OF HEALTH CHECKS Please ask you Doctor and /or Health Visitor to write down the result of thyroid, eye, hearing, growth, heart, breathing and blood checks on this page. Age Type of Test By whom or where Result (please enter actual figures where possible) DOWN SYNDROME Date Down syndrome insert © DSMIG 2011 13 SOURCES OF HELP AND ADVICE (In case of difficulty contacting the organisations listed below, please check the Links page at www.dsmig.org.uk for updated information). DOWN SYNDROME Down Syndrome Association (DSA) Langdon Down Centre, 2a Langdon Park, Teddington TW11 9PS. Tel: 0845 230 0372 (Mon – Fri 10am – 4pm) Fax: 0845 230 0373 Email: [email protected] http://www.downs-syndrome.org.uk (Regional offices in Wales and Northern Ireland) Down Syndrome Scotland 158/160 Balgreen Road, Edinburgh EH11 3AU. Tel: 0131 313 4225 Fax: 0131 313 4285 Email: [email protected] http://www.dsscotland.org.uk Down Syndrome Ireland Citylink Business Park, Old Naas Road, Dublin 12. Tel: (00353) 1 426 6500 Fax:(00353) 1 426 6501 Email: [email protected] http://www.downsyndrome.ie Down Heart Group Advice and support for families with children with heart problems. PO Box 4260, Dunstable, Beds. LU6 2ZT. Tel: 0844 288 4800 Fax: 0844 288 4808 Email: [email protected] http://www.dhg.org.uk Down Syndrome Education International (DSE) Advancing the development of children with Down syndrome worldwide. The Sarah Duffen Centre, Belmont Street, Southsea. PO5 1NA. Tel: 023 92 85 5330 Fax: 023 92 85 5320 Email: [email protected] http://www.dseinternational.org/en/gb/ 14 Down Syndrome Medical Interest Group (DSMIG) A network of doctors and nurses with a specialist interest in Down syndrome. Information Service, The Children’s Centre, City Hospital Campus, Hucknall Road, Nottingham NG5 1PB. Tel: 0115 8831158 Fax: 0115 8831146 Email: [email protected] http://www.dsmig.org.uk Contact a Family 209-211 City Road London EC1V 1JN Tel: 020 7608 8700 Fax: 020 7608 8701 Helpline 0808 808 3555 for parents and families (Mon-Fri 9.30 am– 5.00pm) Email: [email protected] http://www.cafamily.org.uk (Local and regional offices, family workers and volunteer parent representatives throughout the UK.) Early Support Free information resources for families in England, who have a disabled child under 5 years of age. There are two publications about Down syndrome, specifically, • Information for Parents: Down Syndrome • Developmental Journal for Babies and Children with Down Syndrome These can be located by entering “Down Syndrome” in the search box at: http://publications.education.gov.uk/. Both publications can be downloaded. Alternatively if you register with the website, http://www.education.gov.uk/publications. or telephone 0845 60 222 60, they can be ordered free of charge. MENCAP Supporting people with a learning disability and their families and carers. Offices in Wales and Northern Ireland. 123 Golden Lane, London EC1Y 0RT. Helpline: 0808 808 1111 Tel: 020 7454 0454 Fax: 020 7608 3254 Email: [email protected] http://www.mencap.org.uk ENABLE Scotland Support for people with learning disabilities in Scotland. 2nd Floor, 146 Argyle Street, Glasgow G2 8BL. Tel: 0141 226 4541 Fax: 0141 204 4398 Email: [email protected] http://www.enable.org.uk Local services: There may be a local group of the DSA in your area. DSA head office will provide information. Child health care is provided in most areas through the community paediatric services and child development centres (CDCs). Your GP and/or health visitor will be able to tell you how to get in touch. Your local social services department will also be able to give information about local provision. You will find their number in the phone book. For information about obtaining further copies of this insert contact: Harlow Printing Limited, Maxwell Street, South Shields, Tyne & Wear NE33 4PU. Tel: 0191 455 4286 Fax: 0191 427 0195 Email: [email protected] http://www.harlowprinting.co.uk Down syndrome insert © DSMIG 2011 9.5 6 7 8 9 10 1 8.5 2 3 12 13 14 15 16 17 3 18 19 20 21 4 22 23 24 25 5 9.5 th 99.6 Age in weeks/ months Weight (kg) 0–6 months 9 11 2 9 4 98th 8 8.5 8 91st 7.5 7.5 75th 7 6.5 Some degree of weight loss is common after birth, see instructions. Weight (kg) 6 e w 5.5 h .6t 99 5 h 98t 99.6th 98th 4.5 t 91s 4 50th 6.5 25th 6 5.5 9th 5 2nd 4.5 0.4th 4 75th 91st 75th t h ig 7 50th 3.5 3.5 25th 50th 3 9th 2nd 2.5 2.5 0.4th 2nd 0.4th 3 9th 25th 2 2 1.5 1.5 Age in weeks/ months 1 1 0 1 2 3 4 2 5 6 7 8 3 9 10 11 12 13 4 14 15 16 17 1 5 18 19 20 21 22 23 24 25 DOWN SYNDROME GROWTH CHARTS 5 Boys Down syndrome 5 Boys Down syndrome 72 6 7 8 9 10 1 68 2 3 12 13 14 15 16 17 3 18 19 20 21 4 22 23 24 25 5 72 th 99.6 Age in weeks/ months Length (cm) 0–6 months 70 11 2 70 98th 4 68 91st 66 75th 64 64 50th 62 58 6th 99. 56 h 98t 54 62 h t g n le 60 Length (cn) DOWN SYNDROME GROWTH CHARTS 66 25th 60 9th 58 2nd 56 0.4th 54 t 91s 52 52 h 75t h 50t 50 50 h 25t 48 48 9th 46 46 2nd 44 44 h 0.4t Age in weeks/ months 42 1 0 1 2 3 4 2 5 6 7 8 3 9 10 11 12 13 4 14 15 16 17 42 5 18 19 20 21 22 23 24 25 48 16 18 22 24 5 26 28 6 30 32 34 7 36 38 8 40 42 9 44 46 10 48 50 11 52 49 99.6th 48 98th 47 91st 46 45 75th 45 44 50th 44 25th 43 9th 42 2nd 41 Age in weeks/ months Head Circumference (cm) 0–1 year 47 2 46 4 6 8 10 12 d a e h 43 42 41 Head Circumference (cm) 20 4 40 39 0.4th 40 39 th .6 99 38 38 th 98 37 37 st 91 36 36 th 75 35 35 th 50 34 34 th 25 33 33 h 9t 32 d 2n 32 31 h 4t 0. 31 30 30 Age in weeks/ months 29 1 0 2 4 2 6 8 3 10 12 4 14 16 5 18 20 22 6 24 26 7 28 30 8 32 34 9 36 38 10 40 42 44 11 46 48 50 29 52 DOWN SYNDROME GROWTH CHARTS 14 Boys Down syndrome 49 16 17 Boys Down syndrome 24 23 22 Weight (kg) 6 months to 4 years 21 7 8 19 20 21 22 23 11/2 25 26 27 28 29 31 32 33 34 35 21/2 2 37 38 39 40 41 43 44 45 46 47 31/2 3 23 Age in months/ years 22 9 10 11 12 13 14 15 th 99.6 20 19 98th 21 20 19 18 18 91st 17 16 75th t h g i e w 15 14 Weight (kg) DOWN SYNDROME GROWTH CHARTS 24 th 99.6 13 98th 12 t 91s 11 75th 10 50th 9 25th 50th 15 13 9th 12 2nd 11 0.4th 10 9 8 2nd 7 16 14 25th 9th 8 17 7 0.4th 6 6 5 5 4 4 3 3 Age in months/ years 2 1 1 /2 1 1 6 7 8 9 10 11 13 14 15 16 17 2 /2 2 19 20 21 22 23 2 1 25 26 27 28 29 3 /2 1 3 31 32 33 34 35 37 38 39 40 41 43 44 45 46 47 1 16 17 100 Length/Height (cm) 6 months to 4 years 7 8 9 10 11 96 19 20 21 22 23 11/2 25 26 27 28 29 37 38 39 40 41 43 44 45 46 47 31/2 3 th 99.6 Age in months/ years 98th 13 14 15 1 75th 88 6th 99. 84 h 98t t 91s 80 h 75t h 50t 76 104 100 91st 92 Height (cm) 31 32 33 34 35 21/2 2 g n e l t h g i e h / h t 50th 25th 96 92 88 9th 2nd 0.4th 84 80 76 h 25t 72 72 9th 2nd 68 68 h 0.4t 64 64 60 60 56 56 52 52 Age in months/ years 48 1 /2 1 1 6 7 8 9 10 11 13 14 15 16 17 21/2 2 19 20 21 22 23 25 26 27 28 29 31 32 33 34 35 48 31/2 3 37 38 39 40 41 43 44 45 46 47 DOWN SYNDROME GROWTH CHARTS 104 Boys Down syndrome 100 95 7 8 9 10 11 12 13 14 15 16 17 Age in years h 99.6t Weight (kg) 4-18 years 5 100 95 90 6 98th 85 85 80 80 91st 75 70 75 70 75th 65 60 50 45 40 th 98 35 st 91 30 h 75t 50th t h g i e w 55 99 .6 th Weight (kg) DOWN SYNDROME GROWTH CHARTS 90 Boys Down syndrome h 25t 9th 2nd h 0.4t 7 8 40 15 Age in years 6 45 20 10 5 50 25 9th 2nd 0.4th 15 55 30 25th 20 60 35 h 50t 25 65 9 10 11 10 12 13 14 15 16 17 18 170 7 8 9 10 11 5 16 17 99.6th 175 98th 170 75th 150 145 140 h h .6t 99 135 Hiehgt (cm) 15 6 155 th 98 130 st 91 125 t h g i e 155 9th 2nd 0.4th 145 140 130 125 120 115 9th 110 d 2n 105 150 135 th 25 110 160 25th th 50 115 165 50th th 75 120 DOWNSINSERT 14 91st 160 June 11 13 Height (cm) 4-18 years 165 Manufacture 1 12 Age in years 105 th 0.4 100 100 95 95 90 90 85 85 Age in years 80 4 5 6 7 8 9 10 11 12 13 14 15 16 17 80 18 DOWN SYNDROME GROWTH CHARTS Boys Down syndrome 175 5 Girls Down syndrome 7 8 9 10 1 8.5 2 13 12 14 15 16 17 3 18 19 20 21 4 22 23 24 25 5 9.5 Age in weeks/ months Weight (kg) 0–6 months 9 11 2 th 99.6 3 4 9 8.5 98th 8 7.5 8 7.5 91st 7 7 75th Some degree of weight loss is common after birth, see instructions. 6.5 Weight (kg) 6 6.5 t h eig 5.5 h 99.6th 98t 4.5 t 91s 98th 4 6 25th w 6th 99. 5 50th 5.5 9th 5 2nd 4.5 0.4th 4 75th 91st 75th 50th 50th 3.5 3 2nd 2.5 2.5 0.4th 2nd 0.4th 3 9th 25th 9th 3.5 25th 2 2 1.5 1.5 Age in weeks/ months 1 1 0 1 2 3 4 2 5 6 7 8 3 9 10 11 12 13 4 14 15 16 17 1 5 18 19 20 21 22 23 24 25 DOWN SYNDROME GROWTH CHARTS 9.5 6 5 Girls Down syndrome 70 6 7 8 9 10 1 66 2 3 12 13 14 15 16 17 3 Length (cm) 0–6 months 68 11 2 18 19 20 21 4 22 23 24 25 5 70 th 99.6 Age in weeks/ months 68 98th 4 66 91st 64 75th 62 62 50th h t ng 60 58 56 h 98t 54 91st 52 60 25th le th 99.6 Length (cn) DOWN SYNDROME GROWTH CHARTS 64 58 9th 2nd 56 0.4th 54 52 h 75t 50th 50 50 25th 48 48 9th 46 46 2nd 0.4th 44 44 42 42 Age in weeks/ months 40 1 0 1 2 3 4 2 5 6 7 8 3 9 10 11 12 13 4 14 15 16 17 40 5 18 19 20 21 22 23 24 25 14 47 Girls Down syndrome 46 Head Circumference (cm) 0–1 year 45 2 4 6 18 16 20 4 8 10 22 24 5 26 28 6 30 32 34 7 36 38 8 40 42 9 44 46 10 48 50 47 98th 46 Age in weeks/ months 91st 12 45 75th 44 52 11 99.6th 44 43 d a e h 42 41 40 Head Circumference (cm) 43 39 38 42 9th 41 2nd 40 0.4th 39 th .6 38 th 37 st 36 99 37 25th 98 36 91 th 75 35 35 h 0t 5 34 34 h 5t 2 33 33 h 9t 32 32 d 2n 31 31 h 4t 0. 30 30 Age in weeks/ months 29 1 0 2 4 2 6 8 3 10 12 4 14 16 5 18 20 22 6 24 26 7 28 30 8 32 34 9 36 38 10 40 42 44 29 11 46 48 50 52 DOWN SYNDROME GROWTH CHARTS 50th 16 17 Girls Down syndrome 24 23 1 /2 22 Weight (kg) 6 months to 4 years 21 7 8 19 20 21 22 23 1 25 26 27 28 29 31 32 33 34 35 2 /2 1 2 37 38 39 40 41 43 44 45 46 47 23 Age in months/ years th 9.6 9 h 98t 19 20 19 18 91st 17 18 17 75th 16 15 t h g i e w th 99.6 14 Weight (kg) 22 21 9 10 11 12 13 14 15 20 DOWN SYNDROME GROWTH CHARTS 24 3 /2 1 3 13 98th 12 t 91s 11 75th 50th 16 15 14 25th 13 9th 12 2nd 11 0.4th 10 50th 10 9 25th 9 8 9th 8 2nd 7 7 0.4th 6 6 5 5 4 4 3 3 Age in months/ years 2 1 /2 1 1 1 6 7 8 9 10 11 13 14 15 16 17 19 20 21 22 23 2 21/2 2 25 26 27 28 29 31/2 3 31 32 33 34 35 37 38 39 40 41 1 43 44 45 46 47 16 17 104 Girls Down syndrome 100 Length/Height (cm) 6 months to 4 years 7 8 9 10 11 96 19 20 21 22 23 1 /2 1 25 26 27 28 29 31 32 33 34 35 2 /2 1 2 37 38 39 40 41 43 44 45 46 47 3 /2 1 3 104 th 99.6 Age in months/ years 98th 13 14 15 91st 1 100 96 92 88 th 84 .6 99 8th 9 Height (cm) 80 t 91s h 75t 76 h 50t g n le t h g i e h / h t 50th 25th 88 9th 84 2nd 0.4th 80 76 h 25t 72 92 72 9th 2nd 68 68 h 0.4t 64 64 60 60 56 56 52 52 Age in months/ years 48 1 /2 1 1 6 7 8 9 10 11 13 14 15 16 17 21/2 2 19 20 21 22 23 25 26 27 28 29 31 32 33 34 35 48 31/2 3 37 38 39 40 41 43 44 45 46 47 DOWN SYNDROME GROWTH CHARTS 75th 100 95 90 Girls Down syndrome 7 8 9 10 11 12 13 14 15 16 17 h 99.6t Age in years Weight (kg) 4-18 years 5 100 95 90 6 85 85 80 80 91st 75 70 75 70 75th 65 60 Weight (kg) DOWN SYNDROME GROWTH CHARTS 98th 50 th 6 9. 9 45 th 98 40 st 35 60 t h g i e w 55 91 50th 55 25th 50 45 9th 40 2nd 35 0.4th h 75t 30 65 30 h 50t 25 25 25th 9th 2nd 0.4th 20 20 15 15 Age in years 10 5 6 7 8 9 10 11 10 12 13 14 15 16 17 18 165 160 Height (cm) 4-18 years 155 5 7 8 9 10 11 12 13 14 15 16 17 Age in years 99.6th 98th 6 t h g i e h 150 145 140 th .6 135 99 th 98 130 t 165 160 91st 155 75th 150 50th 145 25th 140 9th 2nd 0.4th 135 130 s 91 Hiehgt (cm) 125 th 125 th 120 75 120 50 th 25 115 115 9th 110 th June 11 DOWNSINSERT 105 Manufacture 1 110 d 2n 105 0.4 100 100 95 95 90 90 85 85 80 80 Age in years 75 4 5 6 7 8 9 10 11 75 12 13 14 15 16 17 18 DOWN SYNDROME GROWTH CHARTS Girls Down syndrome MEASUREMENT RECORD DOWN SYNDROME GROWTH CHARTS Date Age Ht/Lth Wt H/C Signature Date Age Ht/Lth Wt H/C Signature
© Copyright 2026 Paperzz