Helping your child mix with others Intervening As a parent you may be worried that your deaf child will have difficulty mixing with other children, and that they might be isolated as a result. Other parents have stressed the importance of outside school activities, hobbies and socialising with other children in the family. It is important that your child can mix with both deaf and hearing children. In this section, parents of deaf children talk about how they helped their child mix with others, both children and adults. hua to mix “I am persevering with getting Jos child. I have in small groups or with one other ing with to spend more time than usual sitt the floor him and the children (I get down on with them) to aid communication.” Amanda, mother of Joshua (age 6) “I have always encourag ed friends to come to our house, which now is more like a youth club! So Liam has alway s had a sociable and communicative nature.” Jane and Ged, parents of Harriet (age 7) to your child and not “Get other people to talk only uses sign just you, even if the child and oral. This makes language or is using sign al, equal and involved.” the child feel more norm an Jacqueline, mother of Se 18 ne with her “I have found it very difficult to interve nger I social situations. When she was you she’s would ask other children to play, now ’s feeling, older I try to talk to her about how she tions.” what she wants, and make sugges Jane, mother of Rebecca (age 12) “With mixing I used to jus t go out and stand at the front of the house, en couraging Helen to get to know the other children on the road. Now they just come and call for her; it’s great to see her mixing well. It took a lot of encouragement at the beginning and I had to teach social skills, bu t it has been worth it in the end.” Dina, mother of Helen an d Faye (aged 7 and 4) nds’ “We have allowed him to go to frie ourage houses from an early stage to enc social skills. independence and to improve his inviting his We have also put a lot of effort in has friends round to our house which boosted his confidence.” Jeanette, mother of Fintan (age 6) “Joshua is very good at mixing, but we still put a lot of effort in. We ha ve to drive to the village school and bring many hearing children to our home for tea and play. If your child doesn’t ge t invited back, don’t take it personally, just keep inviting children back an d try and chat to the parents when dropping off their child.” Neil and Debbie, parent s of Joshua (age 8) spoken ix with others I have m n ya R g in lp he “In Brigade ol and at his Boys’ to children at scho d own’s Syndrome an D t ou ab d ne ai pl and ex them akaton and taught M em th n ow sh have doing and all the children love ch hi w s gn si e m so yan.” try them out on R Ryan (age 8) Susan, mother of 19 Helping your child mix with others s Sport clubs and from home, out an hour’s drive away ab is ich wh ol ho sc a “Jessica goes to the people who usly she doesn’t know vio ob So s. bu ol ho sc she gets the of all, it’s really o things from that. First tw nd fou we d an a ren are live in the schools so that the child al loc e th th wi ks lin e ak important important that you m found that it was really we ly, nd co se t, bu , ica the links with can play with Jess unity. On the one hand, m m co al loc e th in th wi just weren’t to make links rents in the first instance pa e th at th nd fou we sn’t at the the school, uld be because she wa co at th t gh ou th e W . t, we also inviting Jessica back ol gates to greet her. Bu ho sc e th at ’t ren we we t work with a school every day, on, how does the paren ati pid tre of bit le litt a s found there wa rk on breaking d to do was a lot of wo ha we at wh So af? de child who’s down the barriers. th Jessica, so d so many sleepovers wi ha we d, un ro ts ren pa e her We invited th fact that once she took e Th s. wa ica ss Je w ho er the that the girls could see ht, so she couldn’t whisp nig at ar he n’t uld co e her hand, hearing aids out sh at sleepovers. On the ot do ey th e lik ls gir r he ot the links. She same as all the just wasn’t building up ica ss Je , ity un m m co al . My within the loc tting back until 4.30pm ge ’t sn wa en th d an up those was going out at 7.45am s so important to build wa it at th on rly ea lly rea s and husband and I felt ned things like Brownie joi we s wa did we at local links. So wh nt to ballet and activities we we d an ing m im sw r he eet Rainbows, and we took n walk down the high str ca e sh w, no en dd su a to build like that. So that all of ows, that’s so important kn e sh at th le op pe to and she can wave e future.” up her confidence in th (age 10) Denise, mother of Jessica 20 l’ activities “Try to encourage as many ‘norma ivities are as possible. Practical and visual act uts, especially good; for example, sco and football swimming lessons, play schemes al except camps, as then the boys were equ . As for their communication difficulties liaise with parents you need to support and how to best the leaders of these groups as to handle your child.” ie Sandra, mother of Matthew and Jam (aged 17 and 13) “Harriet always had the same opp ortunities as her hearing sister. She goes to parties, swimming lessons, Gymbobs (Tumb letots), dancing lessons, school trips. We also worked hard with our own families to assist Harriet in mixing, arranged sleepov ers, trips out, visits to the park, theatre, con certs for kids anywhere where Harriet could meet and mix with other children.” Jane and Ged, parents of Harriet (ag e 7) group from “My children went to deaf toddler h the local a young age and did activities wit mix.” NDCS branch which helped them Rebecca, mother of Hannah and Ben (aged 16 and 10) “It was trial and error fin ding the right activities for Thomas to get involv ed in. Boys’ Brigade was good as there were many sit down and discuss activities. Swim ming didn’t work as he couldn’t understand ins tructions without aids. Football was also prob lematic as when he ran around condensation wo uld form in hearing aids. You just have to ke ep trying until you find something that works.” Alison, mother of Thomas (age 7) “Encourage yo ur child to have friends who are both heari ng and hearin g impaired as will be best to this help them fit in . With other hearing impair ed children he kept in contac via minicom a t nd now by mo bile phone.” Margarita, mot her of Sean (a ge 19) 21 Helping your child mix with others Mixing with deaf and hearing children a l unit within ra o n a to s d “Mahad goe re are aroun e th d n a l o scho e mainstream is school. H h in n re ild h af c f 55 to 60 de with his dea e m ti is h f o us st ery conscio spends mo v a e d a m I have ring friends. But ing with hea ix m e b ld u n e sho . I have take g in n effort that h in g e b the very ring children a e children from h t a th s and e activitie usic groups him to all th m e lik , to o ually g nd normally us ’s theatres a n re ild h c ther and d n ps a “I started taking Sam to a local mo ied to make tr e v dance grou a h I e s re at, becau group and we went to that, and the and r dle g tod in th y n things like th a do in ence. that he can is nothing in the area where I live, e his confid him believe v ro p im to -school, r pre orde Lancashire, for deaf children - no cure to be e s d n everything in a fe a I had h he feels s no mother and toddler groups. But at the same t u b So, althoug , n re ild ld, through ren r deaf ch heard from a mother of a deaf chi hearing child around othe y b d te a id f ot intim fident that NDCS, that there had been a dea n the o c ls e time he is n fe e e there y dults. And h playgroup but it had stopped becaus d everybod n a y or hearing a d o b y n the name of go up to a weren’t enough children. So I got .” he can just m e th h it ) the Head of Service and I rang her up, and nicate w ahad (age 9 and commu M f o r e h t o there Zobia, m she said ‘Yes it’s stopped because “Well how aren’t enough children’ and I said that sign” many do you need? I’ve got three now sort and they started it up again. So Sam was tiny, of splits his time, or did do when he dler group between the local mother and tod sees other and the deaf playgroup where he ts and children with hearing aids in, implan and children who sign. There is a real mix y natural.” that’s good for him and it feels ver e 7) Jane and Ged, parents of Harriet (ag 22 “One of the things that helps, I thin k, is meeting other deaf children. If they’re workin g in a group with other deaf children, where they are all equal, then they can have a better part in the group and they can build their confidence and independence as a person with in that group, a lot better than they can wh ere they are the only deaf child in a group of hearing people. So once again, I think it’s so important to meet deaf peers in whatever wa y possible.” Helen, mother of Patrick (age 10) “We found tha t he wasn’t be ing invited to birthday partie s or anything like that, so w really made a e n effort to have a birthday part and invite nea y rly the whole class, the boys and the girls, and then, afte r we did that, started getting he invited to one or two. So the the next year n we did a big p arty again, an now he is fully d accepted and he gets invited to the parties even if they are swimming parties, where obviously he c an’t wear his implant or anyt hing.” Neil and Debb ie, parents of Jo shua (age 8) 23 Helping your child mix with others “When Katie was two and a half, she attended her first playgroup and she was a very frightened little girl, and she use d to cry when I used to leave for quite a lon g time. The playgroup staff learnt sign lan guage and I encouraged them to do that, and so did Katie’s teacher of the deaf, and the y did and they were very good and they sig ned, got the children to learn nursery rhymes, made sure that they were BSL signs that the y were using, and gradually her confidence built. By the time she went to nursery she was very happy there, but she was with all hearing children. I think it’s important for her to be with hearing children, but much mo re important to be with deaf children and so she goes to the deaf youth club. It is so much more relaxing for her because the y all sign and she doesn’t feel isolated at all.” Judi, mother of Katie (age 7) “A turning point for Conor is when we realised he needed to be with his deaf peers, so he went to boarding school. He began to develop firm friendships which he had struggled to do in an integrated set ting.” Tina, mother of Conor (age 21) r was around othe am Li at th t an rt po “It was im end We had a Deaf fri h. rt bi m fro le op deaf pe came his childcare and be d di , at -s by ba who him to a other’. She took ed surrogate ‘grandm ed and non-disabl bl sa di r fo p ou gr local play her deaf friends so ot ve ha so al I n. childre .” nd sign-language ou ar n te of as w Liam am (age 16) Anne, mother of Li 24 l Genera tips “Asher went to a language suppor t group from one to two years old. Here he was mixing mostly with other deaf childre n. Then onto mainstream nursery where he was supported by a de af adult. We belie ve it is very important to always be in cont act with other deaf people .” Michael, father of Asher (age 14) r deaf to be around othe ild ch af de a s lp “It he in a n be very isolated ca ey Th n. re ild s ch have learnt that it’ e W t. en nm ro vi hearing en d tion of hearing an na bi m co a ve ha best to ssible.” deaf friends, if po had (age 9) Zobia, mother of Ma “Time with other children on a oneto-one basis helps with the overall interact ion in larger group situat ions.” Neil and Samanth a, parents of Beth (age 5) up I could “Robert attended every toddler gro ed with lots lay my hands on so he has socialis young an of different people. Mixing from as fidence.” age as possible leads to greater con Jane, mother of Robert (age 5) to take dn’t use LEA taxi “We specifically di was a the end of school as , ol ho sc to Joshua By going eet other parents. m d ul co e w e tim rt of the lf you become pa into school yourse lf not isolate yourse do e; in ut ro nd playgrou ay, even ild) by staying aw ch ur yo rn tu in (and You from the school. ce an st di a e liv u if yo yourself!” some friends for might even make ge 8) rents of Joshua (a Neil and Debbie, pa 25 Dealing with emotions Emotionarl y vocabula It is important that your child can communicate their emotions to you. Barriers to communication often prevent this taking place effectively. Parents of deaf children stress the importance of finding some way in which to discuss emotions, even at young ages. In this section our parents suggest a variety of strategies, including connecting with emotions through stories and books; the using facial expressions and gestures; and making sure you include emotional vocabulary when developing language. 26 is giving the child the “The most important thing lves emotionally. It words to express themse with the literal helps enormously to deal y deaf children have, comprehension so man rstand expressions and where they do not unde double meanings.” (age 14) Judith, mother of Jamie “A lot of the focus with deaf kids is on their education and how well they’re spe aking, or not speaking, or signing, or not sig ning. I think sometimes the focus can be taken off the emotional health of the child and that is the most important part really. And I think that deaf kids go through a rough time when they realise that they’re deaf. It happen s in early teens, and can happen later in tee ns as well, when they suddenly realise they’re deaf. I think the important thing that we found was that we had a lot of key words in place like ‘I’m upset’, ‘I’m sad’, ‘I’m happy’ , ‘I’m not happy’, whatever. So we have wa ys to communicate his feelings and wh at was going on. You know, I think we can get so excited ‘oh, they said a word, the y said two words’ but, you know, if they’re mis erable what’s the point? So I really think the focus on emotions is extremely importa nt.” Tina, mother of Conor (age 21) . We to deal with g in th rd a h as a t her “Emotion w to talk abou le b a e b to a nie ded to get e wanted Jen e n e w ly s lots obviou So we used feelings and t. a th o d to over vocabulary of the whole d n a r e h f o phs and of photogra o sad faces d ld u o w e would w family, and nd Grandpa a y n n ra G s, and basic happy face ot over the g it o S ll. e lise that do it as w uld then rea o c ie n n e J nd you are emotions a nd laughing a g n ili m s re tions when you a ifferent situa d in it o d would table. Real happy. We e th d n u ro , a just take photos ld u o as well, not w e w e we could because sh t situations, if a th d e lik icularly ple, but she part nd with peo a lf e rs e h h fy wit her.” could identi it home for t h g u ro b lly e 11) and that rea of Jennie (ag r e h t o m y, d Wen “Used pictures, signs and picture boo ks to try to explain which emotions she was exp ressing. Reassurance and constant repetition of relevant words, actions and signs.” Jane and Ged, parents of Harriet (ag e 7) ished “When handling emotions we establ himself, basic keywords for him to express to discuss then gave him the space and time ial these feelings. We used a lot of fac expressions to try and explain.” Tina, mother of Conor (age 21) “We started talking and signing abo ut emotions, again, very early in Sam ’s life. Probably from sort of three month s old, so if we were looking at a story on a vid eo or signing a book I would introduce emotion, expressions. You know, ‘is the ted dy bear happy?’, ‘is the teddy bear sad?’. Or you know, ‘why is the teddy bear sad ?’. So Sam now at least has a real range of em otions and emotion is part of his vocabulary, and he will try and experiment with his cross voice and his angry voice, and he will sign tha t at the same time. So, I really feel that he can express his emotions.” Jane, mother of Sam (age 4) 27 Dealing with emotions al t n e r a P support “We talk about her day when she gets home how she feels ; about it, what happened etc. have found we I need to focus on specific eve to talk about fe nts elings.” Judi, mother of Katie (age 7) rs are “Emotions around the teenage yea to be the most difficult to cope with. Trying g’. Being same as a peer group is a ‘big thin onditionally ready to listen and supporting unc abeth if has helped, but also respecting Eliz ” she doesn’t want to share things. Anne, mother of Elizabeth (age 17) “Whilst being sens itive to any distre ss, do not encourage self-pi ty. Try to positivel y ‘re-frame’ any difficulty with a ‘can-do’ attitud e.” Rae, mother of Za ch (age 14) “We give our daughter lot of space, . You sympathise and talk things through h your should be supportive and agree wit ll as child to validate their feelings as we child will sharing your own feelings so your follow your example.” e 10) Sally-Anne, mother of Bengi-Sue (ag “Though emotio nal distress is ra re with our daughter we tr ied to pre-emp t any distressin situations, for e g xample, by alw ays having spa batteries for he re r hearing aids. She relies on th 100% so havin em g them not fun ctioning can ca her great distre use ss and panic.” Sue, mother of Eirian (age 15) “When Poppy became angry or ups et, we would try to help her reflect afterwa rds. ‘Why were you angry?’ ‘Are you still sad ?’.” Emma and Phil, parents of Poppy (ag e 6) “Acknowledging his feelin gs and letting him d te c a tr is d know that they are norm d un n e p s to g t in al n helps when he’s th a “It is import discuss any to em r oti e on al. th Als e g o simply cuddles and tellin me to n you g him dedicated ti r child. The u ho o w y m uc g h he in is y lov rr ed o .” w re e fo b e y ings b that ma to discuss th e c n Audrey, mother of Michae a h c e have th l (age 6) sues.” is r jo a m ) e 8 m e g o c (a e b a they of Joshu bie, parents b e D d n a il e N d each other an h it w n e p o re ua as “Make sure yo u. Often she w yo f o ll a n e e from have trust betw ld contact us u o w d n a s m uss having proble we would disc d n a r ve re e h ly. It is school or w out immediate m le b ro p e th and sort ttle things up.” o b to t o n t n a import Katie (age 25) of r e th fa r, te Pe 28 29 Dealing with emotions ng i d n a t s s s r e e n Unddeaf et about his “Thomas still sometimes gets ups ldren ask hearing aids, especially if other chi other child him about them. We simply tell the so wears that Thomas can’t hear very well dy, hearing aids, just like mummy, dad ause they grandma etc who wear glasses bec a simple can’t see very well. This has been this issue as and effective way of dealing with ily who everyone has someone in their fam wears glasses.” Alison, mother of Thomas (age 7) “Show your child pictures and book s about other deaf childre n to help show th at they are not ‘the only one’ .” Alison, mother of T homas (age 7) 30 “At times over the years , Conor has been very upset about his deafnes s. I think it is important for parents to allow these feelings without getting caught in trying to ‘fix it’ or indeed make compensations.” Tina, mother of Conor (a ge 21) “It’s a very difficult time for the family when you find out that your child is deaf. There are various emotional and practical problems that you have to deal with, but from Mahad’s experience we have learnt that the sooner you accept the problem, the earlier you can do something about it, and the better you can deal with the situation. I remember when Mahad was diagnosed, we were in Pakistan and I remember that I didn’t like to take him with his hearing aids to social gatherings because people would ask me what he was wearing and why he was wearing it. I found it very, very difficult to deal with that situation, but luckily we soon realised that as soon as we had overcome that fear of the problem, the better we would be able to deal with it. So we started soon to tell people that these are his hearing aids and I used to take him everywhere with his hearing aids, and I used to take him anywhere and everywhere and we have come a very long way. Now Mahad is so proud of his cochlear implant himself, that he likes to change the colours of his cochlear implant every day and show it off with various stickers, gluing things on them and he himself goes and tells people what it is and why he is wearing it. He’s not ashamed of it at all. We have accepted that he is deaf and he’s different, that’s all, he’s no less than any other child, he’s just different.” Zobia, mother of Mahad (age 9) Deaf nd adults aen childr “One of the things that helps is meeting other deaf children. If they’re working in a group with other deaf children, where they are all equal, then they can have a better part in the group and they can build their confidence and independence as a person within that group, a lot better than they can where they are the only deaf child in a group of hearing people. Another piece of advice we were given shortly after Aaron was diagnosed was if you are prepared to let them be deaf then there is a whole world out there for them and that is certainly true. We have met a number of deaf people. We have gone out of our way to meet deaf people in different situations. And yes, there are deaf doctors, there are deaf hairdressers, there’s you name it and there is somebody deaf doing that job. There is a whole world out there for them and they are not going to be left behind. Deaf people grow up, they get married, they have houses, they drive cars, have mortgages, exactly the same as anyone else and being deaf doesn’t stop them from doing that. If they are deaf, the only thing they can’t do is hear, at the end of the day.” Paul and Tina, parents of Aaron (age 7) 31 Managing frustration n o i t ica n u m Com Some deaf children experience high levels of frustration, which may be related to a lack of communication and information, anger at being seen as different or not being able to express emotions. There are also the usual frustrations experienced by all children, particularly in the teenage years. In this section parents share their experiences, explaining why their children became frustrated and the steps they took to manage their frustration. ation i t o g e N and ions s discus he doesn’t understand “He gets frustrated when t s. For example, he is no why he cannot do thing eet as he can’t hear allowed to play on the str coming from. The only which direction cars are let him know where he thing to do is negotiate; can play safely.” (age 7) Alison, mother of Thomas “We had a time-chart that enable d us to negotiate and explain what needed to be done by when. We found this avo ided unnecessary frustration when the time came to do something.” Wendy, mother of Jennie (age 11) 32 you can playing games “Spend as much time as communication, but as not only can this help as patience, fair play, can also teach traits such turn, which may sharing and waiting your future.” alleviate frustration in the w (age 11) Jane, mother of Matthe “Our daughter gets annoyed when hearing aids interfere; especially at school . We encourage her to be open and hon est and say when hearing aids are an issu e rather than just ‘making do’.” Sally-Anne, mother of Bengi-Sue (ag e 10) nship, close relatio a in n e v e ant, ary, “It is import hen necess w d n u ro g r uld u conflict sho to stand yo le ib s s o p r eneve a good although wh to maintain s a o s , tiate d e be avoid tter to nego e b s y a lw a . It’s relationship 16) than argue.” f Alex (age o r e h t o m , Tricia “One of the issues we found in Jes sica getting frustrated is when she mis interprets what we say. If we’re not careful, the expressions on our face show wh at we’re talking about. If we don’t get that right she can get really frustrated, so for exa mple, we could say ‘we’re angry with you Jes sica’ or we could shout at her and it doesn’ t look as if we’re angry or, conversely, we mig ht not be shouting at her and we might be angry. What we always do is to preface whate ver we’re feeling with what we are feeling, so for example, we might say ‘Jessica, we ’re angry because of this’ or ‘Jessica, we’re really happy with you because of this’ and we find that this tends to reduce her frustrat ion, or at least she can understand where we ’re coming from.” Denise, mother of Jessica (age 10) n. If she racts frustratio te n u o c n tio a ic er down, “Commun ld try to calm h u o w I t se p u at I got very n and stop wh tio a tu si e th m time.” remove her fro bout giving her a ll a lly a re is It ge 5) was doing. nts of Beth (a re pa , a h nt a m Neil and Sa “As parents we try to stay calm and walk away from the situation, telling him we won’t cuddle or communicate with him until he has calmed down. Then we ask him que stions about his frustration and how he would like to behave and be treated.” Audrey, mother of Michael (age 6) 33 Managing frustration tion a r a p Pre and ntion preve “When Conor was frustrated we fou nd it important to acknowledge this. If he had a tantrum in public, we would remove him from the situation and let his tantrum run out. It took a lot of time to work out what had failed and why he was frustrated, either he or I would draw pictures to try and exp lain.” Tina, mother of Conor (age 21) “To pacify fr ustration on e must be a and commu s patient nicative as possible an ‘talk things d always through’ if p ossible. Dea not an excu fn ess is se for bad b ehaviour so punish him we would as with a he aring child, discuss the then problem at a later date calm. This c w hen an be difficu lt with minim language b a l ut does get easier and p ay off.” Trish, mothe r of Alex (ag e 13) 34 whether “All children suffer from frustration they are deaf or hearing. One of the frustration. disadvantages deafness causes is nication This can be due to lack of commu ere you and it’s eliminating that, which is wh type of can get a language no matter what guage as language even if it’s only a family lan uce early as possible then that helps red n you know communication frustration. So the ion is due when they get older, that the frustrat haven’t to their age not the fact that they trying to actually understood what you are of the convey to them or vice versa. One en Aaron pieces of advice we were given wh a was first diagnosed was to get him sn’t language as soon as possible. It doe or a matter whether it’s spoken or signed even have hybrid between the two. You don’t got to use proper BSL signs. If you’ve can something that you and your child municate, understand that enables you to com ate the and as soon as you can communic lly. I think frustration tails off, quite dramatica ation.” the key to frustration is communic e 7) Paul and Tina, parents of Aaron (ag “Sean had problems vis iting large, busy places and would become aggr essive and upset. At first I would take him to a large supermarket and only buy a few items, the n gradually built it up to a full shop. Try to involve the child in what you are doing, for example, with small children give them pictures of what yo u need and ask them to find it; with older child ren let them decide and find what they would like to eat.” Jacqueline, mother of Se an (age 8) daughter and do for our y tr e w g in th ay “The main hatever she m w r fo e c n va d in a in is prepare her been invaluable s a h h c a ro p p a in trying be doing. This at are new and th s n tio a tu si . dealing with efore they arise b s m le b ro p te to anticipa everything.” (age 5) Preparation is parents of Beth , a h nt a m a S Neil and “With Amy’s disabilities, frustration is quite a big thing of her trying to communic ate to you what it is she actually wants. So wh at we try and do is keep our facial expressio n the same and not to raise our voice or look angry, because if we lose our tem per and she loses her temper she won’t get wh at she wants so it’s been a waste of time. Also there are times when the process of elimination may take a little bit lon ger. For example, we may put her to bed at night and she’s restless and we can’t think why, and it will be something simple like we’ve left one hearing aid in. We’ve gone outsid e the bedroom, realised we’ve only got one in our hand because we always take the m out last thing at night and have to go bac k in again, take the other one out and she’s fine. It’s just a simple thing.” Michael, father of Amy 35 Managing frustration d. I ild was very frustrate ch r ou g, un yo n he “W dler Taming’ by found the book ‘Tod valuable. It is an Christopher Green in e and very practical. W extremely funny book niques on Simon as used many of its tech g children.” well as on our hearin n (age 14) Kath, mother of Simo tion Distradc an cy n e t s i s n co “When Poppy was frustrated or ang ry, one of the things we found worked quite well was distracting her from the situation, for example, offering drinks or snacks , playing silly games, pointing something else out. Occasionally we resorted to countin g 1, 2, 3, which seemed to calm her.” Emma and Phil, parents of Poppy (ag e 6) “When managing frustration, I find the best method is to dist ract my son from what is frustrating him an d engage him in another activity.” Susan, mother of Ryan (age 8) ess herself, but she “Allowed Harriet to expr ms, mostly around had some terrible tantru s. Sometimes we just communication problem staying around to let her burn herself out, fe, trying very hard to make sure she was sa g. After a tantrum we be calm and reassurin ion and hugs. It is would give lots of attent ur guns if you’ve said important to stick to yo compromise or ‘no’ but try to reach a nally give in alternative. Very occasio be somewhere!” especially if you have to of Harriet (age 7) Jane and Ged, parents we house so when e th in s n o llo a ld stop “I always had b ctivity, we wou a n a g rin u d d k to where got frustrate ht then go bac fig n o llo a b a and have ge 8) we were.” her of Sean (a Jacqueline, mot 36 “Go for a walk so mewhere quiet w hen frustrations arise, so that no comm unication is necessary.” Allyson, mother of Connor bad help to deal with ra xt e f o ts lo “Needed The key is lt of frustration. su re a s a r u of o behavi d lots and lots n a se n o sp re f n be tiring consistency o viour which ca a h e b d o o g r attention fo but worth it.” Oliver (age 6) Carol, mother of “Consistency betw een carers is the key to reducing frustratio n, and instilling ca lmness!” Jane and Ged, pa rents of Harriet (a ge 7) (age 15) 37 Managing frustration ut Time o wards and re “If Poppy got frust rated, or had a ta ntrum, we would try to find some space for he r, away from other people ’s attention, to ca lm down at her own pace.” Emma and Phil, pa rents of Poppy (age 6) erable nced consid e ri e . We p x e s a ks, pinches ic “Faye h k , s e it b , She hits ok of frustration. memade bo o h a d e c u urs to have introd ese behavio th g in w timer o h s pictures e also use a W . is th o d ee t to o she can s s highlight no ir a h c a n or it Faye o until it rings clock; we s it s to s a h d she sign the the clock an s to say or a h e h s n e Th reaches ‘0’. ’.” 7 and 4) word ‘sorry Faye (aged d n a n le e H r of Dina, mothe “We have a star ch art at home to re ward her good behaviour an d the threat of no t having a star generally st ops her in her trac ks if she’s about to throw a tantrum! After co llecting the stars she is allow ed to choose a tre at, for example, a new ga me, book, trip to the cinema or a McD onald’s.” Wendy, mother of Jennie (age 11) 38 “Do not let the child dic tate to you but don’t turn it the other way ar ound and make the situation more difficult. Learn to compromise; let them know you are the adult but not the ‘boss’.” Jacqueline, mother of Se an (age 8) Hearings aid we discovered that “One of the things that strated, probably the makes her incredibly fru aids do break down, only thing, is when the bcause you tend not to or there is a problem, aring aids, although I be issued with spare he is issued. So we do hang on to whatever r those feelings of have to learn to allow he r and not introduce too frustration, comfort he and alternatives to try, many different options gravate the situation. because that will just ag is always something And reflective listening e so that she knows that is really useful to us ging the stress that that we are acknowled she’s going through” ged 11) Helen, mother of Zoe (a “One of the things we did when Ma tthew was first diagnosed, and he really didn’t like the feel of his hearing aids being put in. Dis traction was a method that we used, quite well probably. One of the things we did was put him in his swing, which he loved, and then pus h him, and as he was swinging gently we would put one hearing aid in and keep pushing the swing so he was hanging on to the swing and didn’t have hands free to fiddle with his hea ring aids, or pull them out or throw them. Tha t worked quite well because he was distracted . And another thing we did was for indoor distraction, was put cut-up Dolly mixtures, so he didn’t have enormous amounts of sweets , but a few cut-up dolly mixtures in a little screw -top jar so that he had to concentrate on unscre wing the jar to get to the sweets. By which tim e we’d managed to get the hearing aids in, and as you get more adept at getting the hearing aids in yourself, it becomes a much quicke r process and as long as he was distracted he didn’t seem to mind too much.” Jane, mother of Matthew (age 11) 39 Raising confidence Many parents of deaf children say that it is important to resist the urge to be overprotective. Deaf children need to develop their independence in the same ways hearing children do. Success in different activities will increase your child’s self-esteem and confidence. A confident child is a happy child. In this section parent’s talk about the variety of ways in which they made sure their child built up confidence and developed independence. “One thing we tried to do to make sure of was giving her the indep endence and the confidence, and not to us e her deafness as an excuse but treat it as somebody who wears glasses will treat that iss ue. And she’s always seems to have been very confident and has never found wearing her hair in a ponytail and exposing her hearing aid as a problem. In fact, to the extent when she got her waterproof hearing aids and she ha d brightly coloured ones , and a young child at scho ol said to her, ‘What are those in your ears?’ and she said ‘A fashion accessory!’” Sue, mother of Eirian (a ge 15) extra“We encourage her to take part in g, curricular activities such as dancin become swimming, Brownies and she has fident as more independent and socially con in and time has gone on. She loves joining and we taking part in whatever is going on .” encourage this as much as we can Wendy, mother of Jennie (age 11) “I encouraged him to join as many cl ubs as possible: hockey, football, rugby, cr icket, swimming, dram a, Boys’ Brigade an d now he’s learning the trumpet. All these were with hearing people. H is confidence and independence ar e good as a resu lt and he goes into shops and cafes and as ks for things himself.” Ceiri, mother of Ma rk (age 10) Clubs d an sports were sporting activities that se oo ch to d trie we e, nc sports so we “To build Josh’s confide at he can’t do contact th d se ali re e W . nt pla fell in love with most suited to his im an early age, in case he m fro e os th e ag ur is, co didn’t want to en contact sports like tenn nno e os ch we , So . rry on quite a them and wanted to ca ual thing. He has got to vis a ite qu it’s r: he ac te e is good at, where he can watch th ing him in things that he ag ur co en t jus So w. good level on that no able to do in the future.” be ll wi he at th w no s do thing and trying to get him to s of Joshua (age 8) Neil and Debbie, parent 40 41 Raising confidence children “I would advise parents to give their p their every opportunity possible to develo e sort of physical abilities and to give them som d for their physical challenge. It is very, very goo ir social co-ordination, also very good for the other skills. They learn lots of things about lities are. people, as well as what their own abi Matthew Swimming, I think, is very important. nths old. was swimming when he was six mo n, because Especially important for deaf childre ter they if ever they do get into trouble in wa cuers that don’t have the hearing cues from res is important hearing children would have. So it out of water that they can make their own way a fantastic or into safety themselves. Also, it is ter. So I sport, they can always join in in wa good would suggest you look for a really ck out the swimming club, make sure you che is very instructor, make sure that he or she probably not visual, very clear. Deaf children are pools at a great disadvantage at swimming poor because the acoustics are usually so look for a anyway, but it is important that you make the really good teacher who is willing to r.” extra effort to make instructions clea Jane, mother of Matthew (age 11) l Approva ise and pra “The best thing a parent can do is be lieve in themselves and th eir deaf child, and remember they know their ch ild better than anyo ne.” Nicola, mother of Ruaridh and Erika (ages 13 and 11) from minor from feeling good “Confidence came d were recognised an successes which ts.” celebrated by adul sef (age 22) David, father of Jo courage confidence. “Give lots of praise to en ortive of things they are Encourage and be supp vironments where they good at. Actively seek en is less of a barrier.” can shine and language ge 13) Trish, mother of Alex (a nt gether is paramou to e tim ity al qu g “Spendin sitive ilding. Lots of po to confidence bu t cially when it’s no pe es t en em ag ur enco expected.” Michael (age 6) Audrey, mother of “Give as much praise as possible for what they are good at.” Jill, mother of Amy (age 7) “In building confidence it is importa recognise y nt you our child’s p ositive skills was good a . Our son t golf and n ow plays fo r Ireland.” Tina, mothe r of Conor (a ge 21) urage m an early stage to enco fro es us ho s’ nd frie to go effort in “We have allowed him to We have also put a lot of . ills sk l cia so his e ov pr nce” independence and to im has boosted his confide ich wh e us ho r ou to d un (age 6) inviting his friends ro Jenette, ,other of Fintan 42 43 Raising confidence g Lettin en speak childr o) for (and delves thems r her to talk s felt it important fo s. ay e w al lv e ve s ha “I m e p for th ck from ever to speak u and I have held ba to ts ul ild s ad h a c to w a t n e , on her a “Encourag ns posed by adults und import tio it fo es r qu e e g w in th er e s h sw g an thin ople w r One of the this will develop he to other pe el fe lk I ta As t lf. a to ha d be o im h confidence further.” his own fo d r an e encourage e dg rd le o ow , kn , ry language he ps, libra (age 15) things that was in sho a tr x e e, mother of Eirian r Su fo h k it s w a t , n ’s e e confid McDonald s he becam t a th . We alway o le s p , o d e p te t n a n w iffere f. ll sorts of d e was dea h t a th in talking to a la xp me “Don’t stop doing d him to e y ‘Excuse a s things or going pl to encourage im I h t a e g th aces ra o u s o be t c n ca n o us e fr e yo ld e u are worried how th to e We wou m o c yo I ur child or tastic other people will re lease can le were fan act. Ignore people p o I’m deaf, p e p t e s th o t who look and stare and try ed tha d’ and m to encourage your quite pleas can lip-rea lly a d n tu a c a lt ch u e ild to relax and enjoy th e ad hey’r emselves.” ther than th with that. T ra t u k o in it th I d , ointe arning Jacqueline, mothe child has p word of w e n O . g r of Sean (age 8) c in ti y e a th s a in p t m n y fide n o very s c e it u t’ q n the fro ecame Matthew b n I come to a c f, a e d the e I’m ids out of k r e th ‘Excuse m o g f, en musclin e was dea h d n a l ia c and was th spe n se he was ther childre o t a th t way becau n a rt e that’s impo put up if th s k c a and I think b ir e eir will have th much to th o very often to s p a ere g it, perh bit older th e tl lit a t child is usin e yg e . So as the this must b w o n k advantage u o say ‘Yes, y is a need to 11) priately’.” tthew (age a M used appro f o r e h Jane, mot 44 ion t a r a p e Pr and l a rehears “Discuss str ategies on h ow to deal things befo with re situations a rise; for exa ‘What are y mple, ou going to do when pe at you?’ Pre ople stare paration is th e key.” Sally-Anne, m other of Ben gi-Sue (age 10) “When I dro pped Joshu a off at nurs wouldn’t kn ery he ow that I wa s coming ba pick him up ck to later, so to h elp him sett nursery use le the d photograp hs of me. Th show him th ey would e photograp h and tell him ‘Mummy will be back late r’. Nearer th time, they w e home ould show h im the photogra say that in fi ph to ve minutes I’d be pickin and I think th g him up, at used to g ive him the reassurance . He seeme d settled wh showed him en they my photogra ph and we u do that at fr sed to iends’ hous es too.” Amanda, mot her of Joshua (age 6) me so they know ”Rehearse situations at ho then they can gain what to expect outside, re quickly.” more independence mo 14) Rae, mother of Zach (age 45 Your Feelings Further information Your ngs feeli “It is also important as a parent to be confident yourselves despite what you may be feeling as this will have an effect on your child.” Tina, mother of Conor (a ge 21) for family quite difficult it d n u fo ve a ight “We h stopher overn ri h C e k ta to and and friends e persevered w t u b , s d n e k im a few or at wee ther to take h o m y m d e g nce encoura p her confide u ilt u b d n a e nal hours at a tim aving occasio H . e n lo a im h ed us in caring for ildren has help h c e th t u o h it time out w r” to cope bette (aged 15) of Christopher r e th fa , on im S 46 af tective of a de ro rp ve o e b ourage “We tend to portant to enc im ry ve is it k ence. child. I thin w of independ o h s y n a rt o p and sup : going to the ys a w ll a m s in on Conor started d using trains n a e tr n e c g in local shopp y trips was after man his own. This elf, where is dad or mys h y b d ie n a p d accom n, dangers an o ti a rm fo in t u we pointed o the journey.” involved him in Conor (age 21) Tina, mother of The NDCS has a wide range of leaflets, factsheets and professional publications. Topics covered are educational provision, financial support, audiology and different aspects of technology. Most of the publications are now available on the website www.ndcs.org.uk and can be downloaded for free. Our Family Information Pack answers the initial questions that many parents may have. It is available free to any family with a child who has recently been identified as being deaf. For a full list of NDCS publications please contact the NDCS Freephone helpline: 0800 800 8880 (voice and text) or visit the NDCS website www.ndcs.org.uk. NDCS Scotland Office 187-189 Central Chambers 93 Hope Street Glasgow G2 6LD Tel: 0141 248 4457 (voice) 0141 222 4476 (text) Fax: 0141 248 2597 uk Email: [email protected]. NDCS Northern Ireland Office Wilton House, 5 College Square North Belfast BT1 6AR Tel: 028 9031 31 70 (voice) 028 9027 8177 (t ext) Fax: 028 9027 82 05 Email: nioffice@ ndcsni.co.uk Office NDCS Wales/Cymru Room 2, 1st floor 43 Charles Street Cardiff CF10 2GB oice and text) Tel: 029 2038 4277 (v Fax: 029 2037 3474 cs.org.uk Email: ndcswales@nd rents’ The pa eir own h t e r rily views a ecessa n t o n and by us. d e s r o end 47 NDCS iss the nationa n al charity ded dicated d to cre eating ut barriiers forr deaf childre en and d a world withou oung people. p . yo F hone Helpline H e: NDCS Freeph 808 80 00 8880 (voicce and text) 08 mail: helpline h [email protected] Em ww ww.nd dcs.org g.uk Published by the Nation nal Deaf Children’s Society S 15 Dufferin Street, S Lond don EC1Y 8UR 0 8656 (vo oice and texxt) Fax: 02 20 7251 50 020 Tell: 020 7490 ND DCS is a re egistered ch harity in En ngland and d Wales no o. 1016532 2 and in Scotland S no. SC0407 779. © NDC CS 2005 Thiis publicatiion can be requested d in large print, p in Bra aille and on n audio CD D.
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