Still Talking Dedicated to the welfare of Laryngectomees and those with similar vocal disorders. ALL CORRESPONDENCE : The Secretary, The Laryngectomee Association of NSW, 65/9 Col Drewe Dr, STH Bowenfels, NSW, 2790. Email: [email protected]. Issue No. 279 The Laryngectomee Association of NSW© February 2017 OFFICE BEARERS 2016 ACCOMMODATION ASSISTANCE WHEN NEEDED PRESIDENT: Les Byrnes, 82/79-87 Boyce Road, MAROUBRA, 2035. PH. (02) 9344 0445 OUT-PATIENT TREATMENT AWAY FROM HOME: VICE PRESIDENT & WEBSITE ADMIN: Greg Joss 61 Morrice Street, LANE COVE 2066 (02) 9427 0509 Cancer Council NSW, 153 Dowling St, WOOLLOOMOOLOO, 2011 (PO Box 572, Kings Cross, 1340), Phone: 13 11 20. (Information & Support) Or contact Social Worker at hospital you will be attending. VICE PRESIDENT: Peter Tierney, 11 Berrico Place, BANGOR, 2234. Ph. (02) 9543 0478 www.cancercouncil.com.au SECRETARY/TREASURER: Raymond Chappelow, Villa 65/9 Col Drewe Dr, STH BOWENFELS, 2790 Ph. (02) 6352 5826 [email protected] WHO TO CONTACT SPEECH AIDS, BATTERIES, ADVICE ON REPAIRS: John Chaloner, PO Box 31, SUMMER HILL, 2130 - Ph. (02) 9560 2852 WELFARE OFFICER: Cathy Edwards PO Box 54, ALLAWAH, 2218. Ph. (02) 9587 9636 SHOWER SHIELD, STOMA COVER MATERIAL & WELFARE MATTERS: SPEECH AIDS COORDINATOR: John Chaloner, PO Box 31, SUMMER HILL, 2130. Ph. (02) 9560 2852 Cathy Edwards, PO Box 54, ALLAWAH, 2218. Ph. (02) 9587 9636 EDITOR: George Southgate, [email protected] Ph. 04176 79651 [email protected] ASSOCIATION WEBPAGE: www.stilltalking.org NEXT MEETING INTERNATIONAL ASSOCIATION OF 15th February 2017 at the LARYNGECTOMEES: Sydney Mechanics Institute, 280 Pitt St, SYDNEY at 11 am. The meeting will be followed by light refreshments. Laryngectomees, Friends, Families, www.theial.com/ial WEB WHISPERS: www.webwhispers.org Professionals all WELCOME. Regional Meetings Pg. 2 Pg 1 1 Regional Meetings Centre, Liverpool Hospital. Contact Hei Lan Byun 0477 330 719 or Joanne Bartley 0439 813 807 NSW Association: 3rd Wednesday of month (February - November) Sydney Mechanics Institute, 280 Pitt St, SYDNEY, 2000 at11am. MID NORTH COAST: Port Macquarie Community Health Centre. Last Wed of March. June. September. & 1st Wednesday December. Contact Jodie Bowles (02) 65801828 NEW ENGLAND: Meets 2pm 1st Wed December Conference Room, Rehab Unit, Tamworth Base Hosp.(02) 6767 8369 [email protected] NEWCASTLE: 3rd Tuesday. Monthly Mayfield Bowling Cub, Ingall St, Mayfield. Contact John Lovett (02) 4954 8308 CENTRAL COAST: 3rd Thursday of the month, Cancer Council Community Hub, The Hive, Erina Fair 10am - 12 noon. Head and neck cancer nurse (02) 4320 9823 Cancer Council 4336 4500 Facilitator 0418 254014 NORTHERN RIVERS: 4 times annually in Lismore. Contact Speech Pathologist Allison Grady (02) 6629 4523 or (02) 6620 2157 COFFS / CLARENCE: Shearwater Lodge, Coffs Health Campus. 2pm every 3rd Thursday, Bi-monthly Contact: Melissa Parish (02) 6656 7606 ALBURY: Meets alternate months from February. Contact Norma Teasdale (02) 6021 1749 WOLLONGONG Hospital Block C level 8: 11am -12.30 Tri-monthly 22/1/16, 23/4/16, 23/7/16 Lisa Le Cussan (02) 4253 4500 SOUTHERN DISTRICTS: Last Wednesday of month 10am. Thomas Rachael Moore Education Letters to the Editor After our last edition in November, I received a correspondence from Kent, in England. It was from a member named Len Hynds A.K.A (The speechless poet) http://www.thespeechlesspoet.co.uk/stories_lary_index.php He has offered to let us use some of his short stories and poetry, which I will do at times, in the newsletter. I also sent an email back, asking him to tell our readers a bit about himself, I thought it was quite interesting and so have printed his reply. You can also access his web-site at the above address George Hello George, I will make this as brief as possible. The youngest of seven children, I was aged 9 when the 2nd world war started. Went to five schools as each was bombed and demolished in London We lost three homes, I was buried way down in the basement in the last one for four hours, with my head firmly fixed by masonry, until I was dug out by rescuers, I was twelve then., All my siblings were in the forces and as there was no school available I put my age up to 15. I enrolled in the Cadet company, of the Royal Artillery regiments Heavy Anti-Aircraft unit. After training I was the signals runner for one, each night we went onto to the streets of London, firing constantly at the swarm of enemy bombers hurling death and destruction down upon us. On getting my first stripe, still at that young age, I guided parties of servicemen between main line railway stations when raids were on, and all public transport had stopped. I then went to Pg 2 2 two infantry cadet units, obtaining the coveted red star, meaning I had attended all sorts of weapons training courses, commando tactics etc. In 1944, I was a Sergeant Cadet in the Buffs, still only 14, but everybody thought I was 17, and due for the army soon. I was attached to 3 Bofors Guns on the cliffs at Ramsgate, and several times fired the twin Vickers machine gun at German planes coming in at sea level to avoid radar. Then at the true age of 17 and a half I was called into the army proper and finished up in the Royal Military Police. I was involved in the first Israeli War, when we had to get between two opposing armies. I have lots if stories about the desert. Returning to England I joined the Metropolitan Police and became a London Bobby, eventually transferring to the "Sweeney", I was on the Flying Squad engaged with the Great Train Robbery. After leaving the police, I became the Head of Insurance Investigations, for an insurance company. I decided to retire, but soon started my own security company, this I sold to a TV security company and retired again. Retirement didn’t last long I went to work for an International Store as Group Security Manager, then the biggest retailer in the UK. I retired again, but in 1994, at 64, went down with heart problems. I had open heart surgery at Guys, had metallic heart valves installed, plus a by-pass, plus a pacemaker. Recovered then started another company selling car parts to the repair industry, ten years later had to give it up as I had cancer of the throat and could only communicate at first by writing, so I went to adult education classes to speed up that writing. I was told I had a gift for writing stories and poetry and was urged to go on to university. A daunting prospect as my education had stopped at the age of 12. But I was accepted speechless. I graduated at age 78 and was able to talk again. I graduated in Creative Writing, Poetry and Writing for Stage and Screen. So you are never too old to learn, I shall be 87 next March, and have never been so busy. Enough of my nonsense George. Sorry this has been so long winded. Keep well Len ASK THE DOC Why does my nose run all the time after my laryngectomy? Is it a cold or sinus infection? Answer: Your nose runs after a laryngectomy because you no longer breathe through your nose but through your stoma. Because there is no longer any air flowing through your nose the tissues lining the nasal cavities become engorged with blood and do what they are supposed to do - make mucous. This is a self-limited process and requires several weeks for the body to get adjusted before the condition improves, You should avoid taking any anti-histamine medications, particularly if you have had radiation, as this can make the dryness from the radiation even worse. Glenn E. Peters, M.D. Pg 3 3 1) On average, half of all false teeth have some form of radioactivity. 2) Hot water is heavier than cold. 3) Plutonium - first weighed on August 20th, 1942, by University of Chicago scientists Glenn Seaborg and his colleagues - was the first man-made element. 4) If you went out into space, you would explode before you suffocated because there's no air pressure. 5) The radioactive substance, Americanium - 241 is used in many smoke detectors. 6) Sound travels 15 times faster through steel than through the air. 7) Every year about 98% of atoms in your body are replaced. 8) Only one satellite has been ever been destroyed by a meteor: the European Space Agency's Olympus in 1993. 9) Starch is used as a binder in the production of paper. It is the use of a starch coating that controls ink penetration when printing. Cheaper papers do not use as much starch, and this is why your elbows get black when you are leaning over your morning paper. 10) A ball of glass will bounce higher than a ball of rubber. A ball of solid steel will bounce higher than one made entirely of glass. 11) A chip of silicon a quarter-inch square has the capacity of the original 1949 ENIAC computer, which occupied a city block. Pg 4 4 Minutes October Email C Gardner Email from John Chaloner re the late John Bowman’s Cooper Rand device Outgoing 1 C Edwards to member D Webster 2 R Chappelow to H & N Coordinator, Central Coast 3 Letters of Welcome to new members Alexander Khlebakov, Leonard Deane & McIntyre Robert 4 Invitations to join (3) Matter arising Discussion around acquiring the Cooper Rand device of a deceased laryngectomee – decided not to acquire Late payment from ACT Health – recently received and receipt mailed Correspondence received on motion of C Gardner/A Krasnodebski Financial Report CBA balance as at 30 September, 2016 $2,170.69 Add Income October, 2016 Subscriptions $67.50 Patients’ Supplies $103.00 Interest $0.02 Sub total $2,881.21 Less Expenditure October, 2016 “Still Talking” Postage $397.75 Telecommunications $70.64 Printing $2593.00 Post $113.70 Lunch $40.00 Patients’ Supplies $1,248.70 Rent $36.00 Sundry $25.00 Sub total (2) $4,524.79 Balance (-) -$1,643.58 Add unpresented cheques #605 Telstra $70.64 Pg 5 7 Minutes October Laryngectomee Association of NSW Inc Minutes of meeting held 16 November, 2016. The Meeting commenced at 11.10am with the President, L Byrnes occupying the Chair. Attendance – Laryngectomee R Chappelow; R Gray; A Krasnodebski; J Pyle; B Bunker; F Campbell; L Byrnes; Attendance – Non-laryngectomees C Gardner Apologies P Tierney; G Tierney; C Edwards New members Robert McIntyre of Panania Alexander Khlebakov of Blacktown Leonard Deane of Elmore Vale Vale Robert Kidd of Tweed Heads South Jeffrey Watts of Grenfell Minutes of October Meeting Received motion C Gardner/A Krasnodebski Matters Arising Term Deposits Account 5207 reinvested for 2 years @ 2.75% Account 5194 reinvested for 6 months @ 2.3% Correspondence Incoming Coffs Coast Laryngectomee Group – Christmas Party Invitation 20 December Gary Mar (Central Coast H & N Cancer Support Group) – introducing himself & new role Lisa Shailer (Central Coast H & N Cancer Support Group) Nurse Coordinator Membership Applications via website for L Deane, A Khlebakov, A Canova, Miscellaneous emails from J Chaloner “The New Voice” from LA of Victoria Emails between Yulia ( A Khlebakov’s daughter) and R Chappelow re her father’s treatment LANSW – Hunter Valley Branch Christmas Party Invitation 13 December Pg 6 5 Minutes October #607 Master Instruments $225.35 #609 L Byrnes (Office Works Printing- YCSTA) $2,175.00 CBA Balance as at 31 October, 2016 $827.41 Report – Central Coast Visit, 21 October, 2016 This is a report of a non-meeting as the day of the week had been changed so I arrived a day too late. (Earlier in the week phone calls were made to confirm a meeting but I failed to get advice of the change) Nevertheless, next time I will be travelling there by public transport thereby reducing the cost to LANSW. There is a bus from Gosford rail to the venue and an economical, well situated hotel has been found. Also, I learnt that Head & Neck Cancer Group is the best attended at the Cancer Council’s Hub. So, some good may come of my misadventure in 2017. I look forward to meeting our people of the area. Reports received on the motion of F Campbell/C Gardner Claims for payment Previously Authorised R Chappelow $780 (Coffs Trip) Already Paid Cheque #607 Master Instruments $225.35 #608 $150.24 Unpaid SMSA - rent - $36 #610 R Chappelow - Postal $24.35 Drinks for Xmas Raffle $35 Central Coast Trip - 446klm x $0.66 = $294.36 Accommodation $128 Total = $481.71 + previously = $1261.71 (Cheque #611) Resolved that the claims be paid on the motion of F Campbell/C Gardner Pg 7 6 Minutes October General Business F Campbell reported on a meeting with a Mr Azzapardi who socialised with the late Bruce Hodges. Advised that Bruce is much missed at his preferred watering hole. The Secretary undertook to resend our Christmas Invitation by email. The Meeting closed at 12 noon. The Scorpions of the Desert They have no fear in the shade so still, their only object is that to kill, with their venomous tail to stab if they can, any animal, or a careless man. Their tail arched over, above their head, Ready to strike and make you dead. It takes an hour for a man to die, poor camels, so much longer lie. But the thing they fear, is a soldier from Britain, who for a hundred years many were bitten. Petrol is poured in a circle around, the flames drove them mad the soldiers found. They sting their own neck in a moment of madness. Death is instant to the soldiers gladness. That desert alas, is two thousand miles wide, With plenty of places for those scorpions to hide. ( Courtesy of Len Hynds) Pg 8 8 Christmas Party 2016 Pg 99 9 Laryngectomee Association of NSW Inc. Report of Christmas Luncheon by R Chappelow For 2016 we had attempted to have our Luncheon a week earlier to avoid conflicting with other events but were too late. So, we settled once again with the first Saturday in December. I was allowed the enjoyable task of purchasing our alcohol raffle prizes for the second time It may have been an error not to include an invitation with our November newsletter as I failed to remind our editor. Whatever the reason, attendance was down on previous years. Regarding the alcohol purchases, I approached Lithgow Workies Club for support which resulted in a significant donation of wines. As for myself, I purchased wines of the Central-West eg. Mudgee & Orange which I thought would be a novelty. The other prizes were bought by Glenda & Peter Tierney making the total cost of raffle prizes in excess of $1,100. Needless to say, the display that welcomed our members & guests was impressive John Lovett of our Hunter Branch was M.C. and was again at his best but had me a bit nervous with his jokes about “The Greens” political party. Fortunately, there was no backlash. A sad absence on the day was Carol Gardner who needed to stay home with a sick relative so Les Byrnes sold raffle tickets in her stead. The catering was superb and even I was able to swallow sufficient food for once! Pg 10 10 Having missed out on our preferred day for 2016, I booked for next year’s soon after so the 2017 Christmas Luncheon will be on the 25 November, 2017. See you there! Mystery Payments Can you help with these, who deposited the following into our account? 21 Jan 2016 Cash The Entrance $10.00 12 Feb 2016 Cash Grafton $10.00 8 Dec 2016 Cash St Ives $10.00 Thanks Raymond Chappelow Pg 11 11 Speech Aids Coordinator’s Report Atos Medical P/L are the Australian agent for the Nu-Vois speech aid and for the Provox voice prosthesis and hands-free system and HME. They are in the process of moving from Ultimo to North Sydney. From 01 February their new address will be Suite 4, Level 12, 100 Walker St, North Sydney. Their postal address will be P.O. Box 1142, North Sydney NSW 2059. Their phone number is changing too, and from 01 Feb the only number to call is 1800-286.728 (a ‘free call’ number). Their email address remains the same – [email protected]. The net cost to the Association of the Varta batteries we supply to members for Servox and Romet speech aids has increased slightly, from $22.30 to $22.75 each – this is what we charge members for them. The postage & packaging has also increased slightly from $8.50 to $8.65 per small padded bag & stamps – but your Association continues to absorb this cost, and any GST. Atos Dear Valued Customer, Due to our rapid expansion, we will be moving our office location to North Sydney. Our last day of operations at our current premise will be the 31st of January 2017. To allow for a seamless transition and to ensure there is no business interruption, please note our new free call phone number is now active: FREE CALL PHONE NUMBER: 1800 ATOS AU (1800 286 728) As of the 1st of February we will no longer be contactable on any other land line office numbers. Please find attached formal notification and our new address details. Dear Valued Customer, RE: NOTICE OF BUSINESS RELOCATION & NEW NUMBER Due to our rapid expansion, we will be moving our office location to North Sydney. Our last day of operations at our current premise will be the 31st of January 2017. To allow for a seamless transition and to ensure there is no business interruption, please note our new free call phone number is now active: 1800 ATOS AU (1800 28 67 28). As of the 1st of February, we will no longer be contactable on any other numbers. Provided below is our new office details, however, our email address will remain [email protected]. Please forward this information to any relevant parties in your organisation: FROM THE 1 FEBRUARY 2017 Physical Address Atos Medical Level 12, Suite 4 100 Walker Street North Sydney NSW 2060 Phone: 1800 ATOS AU (1800 286 728) Fax: (02) 8404 4155 Continued Next page Pg 12 12 Postal Address: Atos Medical PO Box 1142 North Sydney NSW 2059 We appreciate your business and we are looking forward to our ongoing partnership in our new .location. On behalf of the Atos Team, we wish you a safe and happy new year. Rachel Mineo and Farah Vayani from ATOS MEDICAL will be at February meeting with some "exciting products" for 2017. Communication Breakdown. As a laryngectomee since October, 2006 I have had my share of communication breakdowns. Even with my best voicing, issues may occur, particularly with telephone conversations & more so when these are with an overseas call center. The best thing is for people to “pull you up” have you repeat! Or have an interpreter/translator! Our Welfare Officer, Cathy Edwards has had trouble when playing recorded phone messages from both laryngectomees & their family members. One such occasion this message was played –“My father wants 5 Stoma covers”. Now how do you dispatch & invoice such an order? And there have been others just as bad! Also, with many messages Cathy was unable to understand laryngectomees so their orders could not be acted on. So, may I make a suggestion? Put your orders in writing – via Australia Post, email, sms. And keep a record yourself. Remember, all Committee members are volunteers & have other obligations so keep messages concise and simple. Laryngectomee’s Billing & Delivery Address Date Description 0f Goods Laryngectomee’s Signature: Date: Mr J. Challoner For speech aids: P. O. Box 31 Summer Hill NSW 2130 Mrs C Edwards For other supplies: P. O. Box 54 Allawah NSW 2218 Mr Raymond Chappelow Annual membership & Matters concerning Sec/ Treasurer Pg 13 13 Humour A burglar broke into a home. He heard a soft voice say, "Jesus is watching you." Thinking it was his imagination, he continued his search. Again, he hears: "Jesus is watching you." Principal: " What is 3 x 3?" Johnny: "9." Principal: " 6 x 6?" Johnny: " 36." So, it went on like this. The principal asked him every question a third grader should know. Finally, after about an hour, he told the teacher, "I see no reason why Johnny can't go to the third grade, he answered all of my questions right." He turned his flashlight around and saw a parrot in a cage. He asked the parrot if he was the one talking. The parrot said, "Yes." So he asked the parrot his name, and the parrot replied, "Moses." The teacher asked if she could ask him some questions. The principal and Johnny agreed. Teacher: "What does a cow have 4 of that I only have 2 of?" Johnny: " Legs." Teacher: " What do you have in your pants that I don't have?" The principal gasped, but before he could stop him from answering, Johnny answered. Johnny: " Pockets." Teacher: " What does a dog do that a man steps into?" Johnny: " Pants." Teacher: What starts with F and ends with K and means a lot of excitement?" Johnny: " Firetruck." The principal breathed a big sigh of relief and said: "Put Johnny in the fifth grade, I got the last 4 questions wrong myself." The burglar asked, "What kind of people would name a parrot Moses?" The parrot replied, "The same kind of people who would name their pit bull, Jesus." A Game Warden is walking along a beach one morning when he spots a man with a bucket of lobsters. The Warden walks up to the man, flashes his badge and says, "You're in big trouble, buddy. Poaching lobsters is a serious offense." The man answers, "You've got it all wrong, these lobsters are my pets! Every morning I take them out for some exercise. I let them swim around in the ocean for a few minutes and then whistle them back in." The Warden looks at the man sceptically and says, "Okay then, prove it." The man proceeds to throw the lobsters into the ocean and both he and the Warden stand there waiting. After a couple minutes the Warden looks at the man and says, "That's long enough, now whistle your lobsters back in." The man turns to the Warden and says "Lobsters? What lobsters?" An engineer, a priest, and a doctor are trying to enjoying a round of golf. Ahead of them is a group playing so slowly and inexpertly that in frustration the three ask the greenkeeper for an explanation. "That's a group of blind firefighters," they are told. "They lost their sight saving our clubhouse last year, so we let them play for free." The priest says, "I will say a prayer for them tonight." The doctor says, "Let me ask my ophthalmologist colleagues if anything can be done for them." And the engineer says, "Why can't they play at night?" A second grade teacher was having trouble with one of her students. One day she asked Johnny what his problem was, and he replied, "I'm too smart for the second grade, my sister is in the third grade and I'm smarter than her too." The teacher took him to the principal's office and explained the situation to him. The principal told her that he would give Johnny a test, and if he failed to answer one question, he would go back to the second grade and be quiet.. The teacher and Johnny both agreed. “The worst time to have a heart attack is during a game of charades” Pg 14 14
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