Heart of NEWSLETTER Sharing our work with you – work that wouldn’t be possible without your supporT WHAT’S INSIDE A Word from the Chair Community Roundup Exercise your Free Will SEPTEMBER 2016 When your world changes Upcoming Events Waiting for a Miracle Although Grant Crocome never received the miracle cure he was waiting for, he and his family did experience a miracle of another, far reaching kind. “ After being diagnosed with advanced bowel cancer in 2014, Grant was The miracle came near the very end of convinced for the next year and a Grant’s life, when his wife Robyn believes half, he was going to beat and he finally became the person he was survive his disease. Wife Robyn always meant to be… cared for Grant at home, which she found increasingly difficult as time went on. “It was physically demanding and meant I was pretty much housebound; I felt alone and that I was carrying all the responsibility of looking after Grant on my shoulders.” Friends insisted she should contact Hospice, but Grant wouldn’t contemplate it. Out of sheer desperation Robyn did eventually made the call for help. “I was beside myself but instantly I felt reassured & knew I wasn’t alone in this after all.” At this stage Grant was still fiercely independent and a very private man, who was reliant on Robyn and their children. He finally agreed to go into Hibiscus Hospice for a week’s respite, but only in order to give Robyn the break she needed. “He was like a schoolboy being sent off to camp – he didn’t want to go, refused to let me pack for him and ended up taking just a few things in an old bag!” Grant and youngest daughter Amy “Once he got to Hospice however, everything changed. Grant walked into his room at the In Patient Unit (IPU) where the surroundings and the welcome he received from the nurses made him feel right at home.” “The IPU was ideal for him and for me” Robyn remembers. She spent the time in Cambridge, her home town, which enabled her to find herself and her inner strength again, ready to return to the caregiver’s role. “I realised I’d lost track of who I was outside of Grant’s illness – I had become totally overtaken by it” TELEPHONE 09 421 9180 www.hibiscushospice.org.nz facebook.com/hibiscushospice hospice was prior to my experience was so limited that I imagined a horrible, scary and sad place that would make anyone stay away. It translated to death - and frightful death. Now when I think of it I think of the joy and pleasure it was to be gifted that environment. In-between stints of chemotherapy and radiation treatments, Grant stayed at the Hibiscus Hospice IPU three times during his illness, each time a little more ill, but Robyn says “he loved the attention, fantastic food and charming the nurses!” “Hospice became like family” and gradually, with the help of Hospice Spiritual Coordinator Vincent Maire, Grant began to come to terms with the reality of his situation and accept at his own pace, that he was dying. With this acceptance came great sorrow; and for a man who had always buried his feelings deep inside, this was hard to reconcile. Regret set in and this is when the miracle unfurled. After a lifetime of being ‘staunch’, with work as his main priority, Grant suddenly saw how he had missed out on so much and had for a good part of his life pushed his loved ones away. He immediately set about apologising and trying to make good in the time he had left. Each of his children and grandchildren were given a greenstone pounamu to honour them and remember him by. He gave Robyn one too, which Grant told her “symbolises a paddle in our life and now I know you were the one in our family doing the paddling.” He rediscovered his long lost love of sketching and poetry and wrote some wonderfully inspirational messages, which his daughter-in-law Kirstin had published into a book for Grant and the family. In Grant’s final week, which Robyn describes as “strangely and gloriously wonderful”, Robyn never left Grant’s side and slept at his bedside in the 2 TELEPHONE 09 421 9180 Hibiscus Hospice In Patient Unit. One morning she awoke to find him stroking her hair and face, while declaring his deep love for her. Robyn refers to this moment as ‘her greatest gift.’ For so many years Robyn had longed for such sensitivity from the man she loved; such tender touch and completely heartfelt words. “In a place where dying is acceptable, Grant felt free enough to say and do so much of what he had never been able to before. On his last day, with the whole family assembled around him, Grant had been silent until suddenly, from deep inside he proclaimed “I love you – I love you all” and within the hour, was gone. Of the Hospice, Robyn says “Nowhere have I seen such warmth, compassion and caring – yet Grant, like so many others, was initially fearful of going there. I want people to know there is absolutely nothing to fear and our youngest daughter Amy probably wrapped it up best when she said… “All I can think when I think of hospice now is thank you. When the word Hospice was first uttered it was fear. The lack of understanding surrounding what www.hibiscushospice.org.nz Hospital with dad was scary. It was noisy, cluttered, busy with ills, busy with confusion, rushed in and out in the times appropriate. They didn’t know my dad and they were unable to provide the attention that we all desperately knew he needed. The time in hospice created a safe haven for us to say goodbye. From the first respite to his last days, the quiet, calm, presence of staff who you knew should anything go wrong would be there in an instant were incredible. A wee knowing smile in the hallways as you passed could be enough to muster up that extra strength you needed to make it upstairs to make a cup of coffee before returning to the reality of the situation - Dad was dying. The last few days were hard. Soul wearyingly hard. But to be allowed to grieve and say goodbye and love and care in such a space as hospice was a gift that can never be repaid. I will always be thankful for the privacy to work through issues, say goodbyes, play music, have space to breathe in the lounge upstairs, to make a cuppa and carry on, and ultimately to bid farewell.” Robyn has and still is, finding comfort in attending Hospice support groups; the Caregivers Group during Grant’s illness and the Stepping Out bereavement group after his death. “I refer to both of these groups as ‘compassionate melting pots’ because you are meeting with other people who are in the same situation as yourself – and you are free to express how you are feeling, to laugh or cry, be angry or frustrated – there’s nothing that’s out of bounds.” Maybe that freedom and finding of self is something that both Robyn and Grant found at Hospice. facebook.com/hibiscushospice Upcoming Events The Noel Crawley Memorial Jazz / Swing Concert This very popular annual jazz/swing concert returns to the Centrestage Theatre on Wednesday 12th October. This year’s line-up includes jazz vocalist Jane Horder, Gypsy and Latin Jazz band Voxnova and guitarist Sam Swindells . The legendary Ray Woolf MC’s and performs along with all-time favourites The Mike Walker Trio and The Orewa College Jazz Band. $40 per person, includes pre-show canapēs and a light supper at interval. Tickets are available now from Hibiscus Hospice 2a John Dee Crescent Red Beach, Hospice shops in Orewa (41 Florence Ave) or Whangaparaoa (65 Karepiro Drive) or online at www.hibiscushospice.org.nz Book Lovers Afternoon Tea Sunday 13th November from 2.00-5.00pm at Whangaparaoa College auditorium. Join us to hear a group of celebrated New Zealand authors share stories, read passages from their books, talk about their writing, or share the excitement of their first publication. This will be an entertaining afternoon filled with lively speakers covering a wide spectrum of books, exciting door prizes, book sales (signed by the authors) and a sumptuous afternoon tea. Whether you are a fervent reader, someone who dips in and out of a book or you’re already thinking about the perfect Christmas gifts, there will be something for everyone. Please pop the date in your calendar now, tickets are $40 and will be on sale from Hibiscus Hospice in October. Second Legendary Event Results After a successful introduction last year, the second in a series of ‘Legends’ tribute shows was well received on Saturday 30th July at the Orewa Arts and Events Centre. Guests enjoyed a fabulous live show, a glass of bubbles and nibbles on arrival followed by a buffet dinner and dancing until midnight. This year themed in celebration of the Motown musical era, the show put together by Stage 51 Entertainment included performances from The Temptations, Aretha Franklin, Michael Jackson and The Supremes tribute artists. Organised this year by the Hibiscus Hospice Women’s Committee, the event raised just under $19,000 net for Hibiscus Hospice. We’d like to thank the organising team led by Yvonne Payne and our sponsors, The Plaza Whangaparaoa, Faithfull Funeral Services, New World Orewa and Whangapararaoa, Harcourts Cooper and Co; our media sponsor, More FM 88.9 Rodney and of course Gary Brown of Stage 51 for providing the entertainment. We’d also like to gratefully acknowledge support received from Auckland Council’s Hibiscus and Bays Local Board, by way of a community grant. TELEPHONE 09 421 9180 www.hibiscushospice.org.nz facebook.com/hibiscushospice 3 A Word from our Chairman Bill Grieve Potential Alliance between Hibiscus Hospice and Hospice North Shore As valued supporters of our Hospice, I wanted to let you know that we have recently reached an agreement in principle, to form a strategic alliance between Hibiscus Hospice and Hospice North Shore. Currently an exercise involving Board of Trustees members from each organisation is underway, whereby the mechanics and feasibility of such an arrangement is being worked through. A combination of high population growth, the rapid projected increase in demand for palliative care, and the continuing constraints on both public and private sector funding are the drivers for this initiative. The overriding objective for both Hospices is to achieve the same or higher levels of patient and family care at lower overall costs, whilst maintaining the strong connections and relationships each has within their own local community. It is also important to note that funds raised within each area will continue to be applied in that area. We believe such an alliance will better position both Hospices to meet the challenges faced by all Hospices over the next decade and beyond. North Shore and Hibiscus Hospices will maintain their separate Trusts and governance, however the sharing of some services and a Chief Executive are likely. The Waitemata District Health Board, community stakeholders, key supporters and staff are all being consulted during this process and we hope to be able to make a formal announcement within the next 3 months. If you would like to provide any feedback please address this to me and send via email to: [email protected] In the meantime I can assure you, our local Hospice will continue with its own unique identity and the team here at Hibiscus Hospice remains committed as always, to providing the best possible palliative care for our community. When your world changes For many of us it’s unthinkable that we could ever lose the ones who are closest to us. Hibiscus Hospice Counsellor Barbara Deane works every day with people who have lost a husband or wife, parent, sibling or child; people who are grieving. Their world has changed and will never be the same again. Most initially experience shock (even if the death was anticipated) and life feels strangely surreal as they go about making the necessary arrangements. At this stage says Barbara, “it’s okay to feel vulnerable and actually accepting that can bring about a strength of its own. I ask them to look at how they’ve coped with life’s challenges in the past and draw on those experiences, which helps bring their resilience to the fore.” 4 TELEPHONE 09 421 9180 “Realising that you are not going to fall to pieces and that this is not a permanent state is important” All sorts of emotion including hopelessness, anger, anxiety and regret can be experienced at this time, and Barbara sees her role as “being a container or vessel who is able to hold all the really deep feelings, emotions and fears that might seem unbearable. These are often not shared with loved ones because everyone feels a need to protect each other and remain strong, so expressing it in the privacy and safety of a counselling environment is really beneficial. Sometimes a person’s very identity is questioned – who am I without my wife or husband? What do I want out www.hibiscushospice.org.nz Barbara Deane Counsellor of my life now? Where do I go from here? Over time, (the period varies for each person), the answers begin to appear as reconnections with other people, past times, hobbies and future plans are made. Bereavement counselling and support helps people to find their way forward without feeling judged, advised or ‘fixed’. “Grief is something we move through, but bonds with the one you’ve lost are never broken; that person is a part of you and you will always have that relationship.” facebook.com/hibiscushospice Patient Kitchen gets a Makeover The Hibiscus Hospice patient kitchen has received a much needed makeover thanks to the generous support of several charitable trusts. of more than 1200 patients. During this period our kitchen had become tired; appliances were on their last legs and the area was often crowded with two cooks and volunteer helpers competing for space. The frequent cleaning required for infection control had resulted in much of the cabinetry, flooring and walls swelling from increased moisture levels. The makeover has upgraded the kitchen to a commercial standard utilising stainless steel throughout, meaning it will be far more durable and last longer. All benchtops, appliances and some cabinetry have been replaced and the overall area increased in size to incorporate more storage as well as designated entry and exit doorways. The current Hibiscus Hospice building was completed in 2007, with the 6-bed 24/7 In Patient Unit (IPU) opening 18 months later in September 2009. At the time of construction our kitchen facility did comply with the necessary health regulations, infection control, food handling and storage requirements, however we reached a point where a larger, commercial grade kitchen was required to improve durability and meet new health and safety and food practice standards. The IPU has been operational for over 6 years with total admissions In an IPU environment patients are often unable to eat heartily, however the enjoyment and comfort gained from enjoying beautifully presented, appetising meals becomes all the more important. In fact mealtime is looked forward to as a highlight of the day and our hospitality team put a lot of effort into making this special for each and every patient. The larger, upgraded kitchen is expected to vastly improve the ability of our paid and voluntary hospitality team to produce personalised, appetising meals three times a day (or more depending on dietary needs) for our IPU admitted patients – and also cater for our clinics, patient and family support groups – providing for the next ten years or more. Work on the kitchen has just been completed.Thank you to the Ralph & Eve Seelye Trust, Lion Foundation, Louisa & Patrick Emmett Murphy Foundation, Pelorus Trust, Dragon Community Trust and The Orewa Bridge Club for making this upgrade possible. Recent grants gratefully received from: • Pub Charity • Lion Foundation • Support for Volunteering Fund • Ralph & Eve Seelye Trust • Constellation Trust • Maurice Paykel Charitable Trust • Catholic Caring Foundation • Auckland Council Hibiscus and Bays Local Board • Reed Charitable Trust • NZCT • North Shore Presbyterian Hospital Trust Local Company Giving Back Econowaste is a 100% Kiwi owned and operated waste and recycling company that is giving back to the community, by generously donating 25c from every 5 pack of rubbish bags sold within participating supermarkets to the North Shore, West Auckland and Hibiscus Hospice’s. If last year’s bag sales within these supermarkets are anything to go by, Econowaste estimates it will donate upwards of $25,000 to these Hospices by August 2017. TELEPHONE 09 421 9180 Karl Dean, Branch Manager of Econowaste, says the decision to sponsor the local Hospice’s is a great example of a local company giving back; “As Kiwi’s we are passionate about helping others in their time of need, and thus are delighted to be able to donate proceeds from our bag sales to such a worthy organisation.” Look for the Econowaste stands at New World WGP, Countdown WGP and Silverdale. www.hibiscushospice.org.nz Sam Bisset, Karl Dean, Ryan Heighway and Dean Prime from Econowaste pictured with Dyan Cann Dyan Cann from Hospice facebook.com/hibiscushospice 5 Exercise Your Free Will Making a Will allows you to make your wishes known and gives clear instruction of what you want to happen in the event of your death. It can be a very simple exercise yet the impact of not having one can add significantly to the distress of a bereaved family. At Hibiscus Hospice, one of the services we offer is helping families to get through their bereavement, with grief counselling and support groups. We also believe good estate planning reduces anxiety for those left behind by protecting the family and avoiding costly legal bills. In a campaign called “Exercise your Free Will” Hibiscus Hospice and solicitor Nola McGowan of Vlatkovich and McGowan are making it easier for you to set up a new Will; with just an inclusion of a gift to Hibiscus Hospice in your Will you will be able to get drawn up free of charge, a simple Will or amendments made to an existing one, or a Memorandum of Wishes (in the case of a Family Trust) Nola McGowan is a well-known and extraordinary local - not only has she left a gift in her own Will to Hibiscus Hospice, she has acted as honarary solicitor for the Hibiscus Hospice Charitable Trust since its inception in 1992, volunteering her time and services. At the time of writing this article with Nola, it was the anniversary of her father’s passing which brought back many memories for her. She says “I really encourage the community to support the ‘Exercise Your Free Will’ campaign. If you have ever been in the position where you needed Hospice help for your own family then you will know what a truly worthy organisation they are. For myself, when Dad was dying the Hospice was my godsend. I applaud the Hospice, they make such a difference. I remember one night a Hospice person came to sit with Dad through the night so I could get some sleep. Now I believe that we as a community need to make sure the future of our Hospice is going to be protected.” Anyone can make a Gift in Will; it is not only for the wealthy – gifts come in all shapes and sizes from a few hundred dollars, to a specific item or a percentage of the estate after the family have been looked after. Allie Downing, Planned Giving Coordinator says “currently the government funds less than half of our annual running costs; the remainder comes from our shops and fundraising activities. “People leaving a gift in Will to Hibiscus Hospice are in fact, the ‘guardians’ of our future” If you’d like to make sure your wishes are carried out in the event of your death and at the same time help preserve local Hospice services then contact Allie Downing, Planned Giving Coordinator on 09 421 9180 or email [email protected] before 31st October 2016 to receive a voucher for your Free Will. Just like the beginning of life when preparing for the arrival of a baby, the end of life also requires some careful thought and preparation: How will you protect your loved ones? How will you ensure your wishes are met? What legacy will you leave for generations of your family to come? 6 TELEPHONE 09 421 9180 www.hibiscushospice.org.nz facebook.com/hibiscushospice Community Roundup Tractor Trek blazes a trail In one of the longest duration and most unusual of fundraisers ever run for the benefit of Hospice, retired farmer Phil Aish organised and lead a cavalcade of vintage tractors, jeeps and trucks over 26 days, trekking 2600km from The Bluff to Cape Reinga. When Phil’s wife Janice had to go into Hospice care for her last days, the couple and their family were impressed with the compassionate care and support they received, which meant that all of Janice’s needs were met by the staff and volunteers - so the family was able to just ‘be there’ for Janice. Knowing that Hospice is only partially funded by Government, Phil and Janice set about finding some way of repaying the kindness and service given to them. So the idea of a tractor trek was born! After 18 months of planning and preparation, nine tractors departed from Bluff. The drivers involved were urged to raise as much sponsorship as they could beforehand and money was also raised during their journey. $100,000 The Tractor Trek ended at Cape for Hospices Reinga and to date has raised nationwide over $100,000 for Hospices around the country Phil sees the trek both as the fulfillment of a promise to his beloved wife and her legacy to those who cared for her. “The level of genuine kindness, understanding and unstinting patience from Hospice staff and volunteers never for one moment diminished despite the unpleasantness of some of their tasks. Janice was never made to feel embarrassed or uncomfortable and was always treated as if nothing was too much trouble. Without question, each and every person we came into contact with at Hospice was exceptional and they were equally caring of me and our family.” Donations can still be made at https://givealittle.co.nz/ org/tractortrek SMALL HOUSE raises Big Dollars Recently, local Harcourt’s Tandem Realty offices each built a children’s playhouse, which they auctioned for charity. Competition among the offices was fierce and each team devoted a significant amount of time and energy to building, decorating, marketing and selling their wooden playhouse and other donated items. In particular the Silverdale office ran a series of sausage sizzles, competitions and ‘open homes’ for theirs, culminating in the auction of the playhouse and a number of other items on July 15th, where they raised a total of $4,865 for Hibiscus Hospice. We couldn’t be more grateful for everything the team did to support our Hospice. Rec $1,4eived 06 Win TELEPHONE 09 421 9180 Tractor Trek raises over d aNd raiSE TEd dONa 5 $4,86 Harcourts Silverdale present a cheque to Hibiscus Hospice Thank you to everyone who voted for Hibiscus Hospice in May’s Good in the Hood competition at Z station Whangaparaoa - we’re thrilled that we won first place and received $1,406 as a direct result of your votes! Fundraising and Marketing Manager Clare Bridle is pictured third from the left with Z station and other participating charity representatives. www.hibiscushospice.org.nz facebook.com/hibiscushospice 7 Best in Show ABSOLUTELY FABULOUS The 11th annual Hibiscus Hospice Art Exhibition and Sale was the largest to date with over 400 works for sale or auction, more than 90 artists exhibiting - and a record amount of $30,119 raised. DARLING Local women flocked to seeThe Helping Hands for Hospice preview screening of the new ‘Ab Fab’ movie on August 11th. Two hundred and six seats were sold, filling 2 theatres at Hoyts’ Hibiscus Coast Cinema. After enjoying a glass of wine, everyone had a fun time and a net amount of $2,533 was raised for Hibiscus Hospice. Held over Queen’s Birthday weekend, the exhibition featured a vast array of works; oils, acrylics and watercolours on paper, canvas and board, works on oars, zincalume and steel and ceramics, prints, photography, glassware and jewellery. Through the sterling work of organiser Vicki Lambert from the Hibiscus Hospice Women’s Committee, this exhibition is unsurpassed in the district and continues to outdo itself year after year, building on its excellent reputation for outstanding artwork and curation. One of Sharon the organise rs M as you artin dressed know w ho… We’d like to thank Vicki, her team and the team at Estuary Arts Centre for their passion, commitment and the fabulous job they do. Thank you to the Helping Hands team and everyone who attended! More than Fair d aNd ra i The Orewa Book Fair run by Hibiscus Hospice in SE conjunction with the Orewa Rotary Satellite Group was an outstanding success. Hundreds of people attended the event held in July. Thousands of books, CDs and DVDs were sold with overall E sales totaling $13, 765 and exceeding all expectations. dO NaT Hospice Communications Manager Dyan Cann says “This phenomenal result wouldn’t have been possible without the efforts of the organising team Trish and Frank Francis-Stead, Graeme Howard and Graeme Newton and the many other volunteers who gave their time to help with book sorting and/or manning the Fair – all of whom we can’t thank enough." 5 6 3,7 d $1 Yes, I want to support the work Hibiscus Hospice does # I wish to make a donation of $ I enclose cash/cheque payable to Hibiscus Hospice OR Expiry date: / debit my credit card Visa/Mastercard Card holders name: Signature: I would like to create an automatic payment. Please contact me. My details: Title: First Name: Surname: Organisation (if gift is from an organisation): Address: Suburb: City/region: Phone: Postcode: Email: Please send to Hibiscus Hospice (details below) Mailing address: PO Box 66 Whangaparaoa 0943. 2a John Dee Crescent, Red Beach, Whangaparaoa 0932 Email: [email protected] 8 TELEPHONE 09 421 9180 www.hibiscushospice.org.nz facebook.com/hibiscushospice
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