inspired by a miracle The lone survivor among premature triplets, Corey Epton defied the odds and thrived after five months in neonatal intensive care—inspiring her grateful family to give back. 10 – healing gifts – Fall 2014 W hen Betsy Epton was first pregnant in 1989, she and her husband were given a tour of the neonatal intensive care unit (NICU) at Advocate Lutheran General Hospital as part of their childbirth preparation classes. “Scott and I kept hearing all this weird beeping, and we thought, ‘We’re never going to be in here,’” says Betsy, even though she was expecting triplets at the time. “It was all so foreign.” Nurse Diane Patzer (right) shares photos she took of Corey as a newborn. But after Betsy went into labor at just 25 weeks’ gestation, the NICU became the couple’s home away from home, and its staff became their extended family. Doctors and nurses joined with Betsy and Scott’s parents and siblings to shepherd the couple on a journey that took them from excited anticipation to unspeakable grief, from renewed hope to a lifelong commitment to giving back to the hospital that saw them through the most sorrowful but ultimately joyful time of their lives. Tiny Alex Epton died when he was 14 hours old. Brother Brian followed him an hour later. But against all odds and weighing just 1 pound 7 ounces—about the size of a soda can—sister Corey managed to hang on. “Our lifeline and our saviors” The weeks and months following the babies’ births were physically and emotionally exhausting for Betsy and Scott, but they never felt alone. “I was still in the delivery room when [neonatologist] Dr. Mangurten introduced himself and told me, ‘I’m going to take care of you,’” Betsy says. “If there is a God on earth, it is Henry Mangurten. Dr. Sheftel, Dr. Benawra, Dr. Puppala—all of them were just wonderful, too.” Because Corey’s lungs were too undeveloped for her to breathe on her own, the newborn was hooked up to a ventilator for three and a half months. Betsy and Scott spent so much time at the hospital that, one Saturday night, several off-duty nurses and their husbands came looking for the couple and insisted they go out bowling with them. “The nurses were truly our lifeline and our saviors,” Betsy says. “I asked them, ‘Why do you want to spend time with me? I have two babies who died, and another who will probably die.’ And they said, ‘The day we stop caring is the day we should no longer be here.’” Besides parents, only grandparents are allowed to visit patients in the NICU, and “the hospital could not have been better in terms of their support,” remembers Betsy’s father, Harold Solochek, who with his late wife, Marsha, moved into an apartment several blocks from the hospital so they could be near their daughter and granddaughter. “Day and night, there wasn’t a nurse who didn’t offer encouragement, and Dr. Mangurten took on Corey almost like she was his own child.” As did the NICU nurses. When it was finally time for Corey to leave the hospital after five months, Susan Okuno-Jones spent the first night with the Epton family in their house in Northbrook, even though she had a baby of her own at home. Several other nurses, including Diane Patzer and Maggie Thomas, rearranged their work schedules so they could support Betsy at home, as well. “We call them A ̒ untie,” Betsy says. Fall 2014 – healing gifts – 11 Healing our littlest patients From left: Scott Epton, Susan Okuno-Jones, Corey Epton, Dr. Henry Mangurten, Betsy Epton The family gives back Now a young adult, Corey is the older sister of Casey and a special-services teacher to seven students at Anne Fox Elementary School in Hanover Park. Grateful for their beautiful, healthy girl—and the woman she’s become— the family has given back to Advocate Lutheran General Hospital and Advocate Children’s Hospital - Park Ridge in many ways over the years. Knowing firsthand the travails of having a baby in the NICU, Betsy has volunteered in the unit, cuddling fragile newborns and supporting their overwhelmed parents—and she now serves on the hospital’s Pediatric Council of Advisors. She and a friend also started PALS, a group to provide “fun stuff” for hospitalized children. When Corey was 7, her maternal grandparents made a generous gift to the hospital—recognized by naming the “Scott, Betsy, Corey and Casey Epton Neonatal Intensive Care Nurseries”—in the form of a charitable remainder annuity trust. This kind of philanthropic donation provides an annual income stream for the donors or others they designate during their lifetime. “Making that gift made Marsha and me feel very good,” Harold Solochek says. “It was a win-win for everyone.” Every year since Corey Epton was little, she and her family have celebrated her birthday by bringing cake for the patients in Advocate Children’s Hospital. This year marks a major milestone: Corey turns 25 years old on December 26. “When Corey was a newborn, we were told she might be blind and she might have cerebral palsy, but she has had absolutely no residual effects,” Betsy says. “There are no words for how our family feels about the NICU. What they did for Corey was a miracle.” ■ 12 – healing gifts – Fall 2014 When human life is at its most fragile state, Advocate's neonatal intensive care units are at their best, calling upon the advanced skills of our doctors and nurses, as well as state-of-the-art technology. Advocate provides exceptional care for high-risk neonates at four Level III nurseries— Advocate Christ Medical Center/Advocate Children’s Hospital - Oak Lawn, Advocate Good Samaritan Hospital, Advocate Illinois Masonic Medical Center and Advocate Lutheran General Hospital/Advocate Children’s Hospital - Park Ridge—all capable of caring for the smallest and sickest of newborn babies. Donors play a vital role in helping to improve our already-advanced neonatal care—for both patients and their families. Charitable gifts help afford essential resources needed for our NICUs to: • Purchase specialized equipment. Examples include Giraffe Omnibeds—versatile incubators that function as radiant warmers and monitor pulse, oxygen and weight. Funds were also used recently to buy an incubator for transporting babies from alternate sites to an Advocate NICU. • Offer comprehensive comfort and guidance for families. Because caring for a preemie or critically ill infant can be difficult and stressful, our NICUs provide parents with the support and education they need to feel prepared and confident. And for families who suffer the loss of a baby, bereavement services—ranging from keepsake items and cards to photography and memorials—are available. • Provide continuing education opportunities. Philanthropy allows doctors, nurses and caregivers to attend trainings and professional development conferences—where they learn about emerging research, review clinical and quality improvement topics, and share best practices in neonatal care. If you are interested in making a gift to support our neonatal intensive care units, please call 630.929.6900 or visit advocategiving.org.
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