ETHOS Project Final report May 2005 Table of Contents Foreword 3 Executive Summary 4 Introduction 6 Objectives 6 Method 7 Input 7 Observations 8 Recommendations 10 Conclusion 15 Appendices 1. NHS Lanarkshire - “Picture of Health” Consultation 17 2. Steering committee 18 3. Project flow chart 19 4. Competencies 20 5. Framework of reflection 21 6. Patient and carer form 22 7. Student feedback 24 2 Foreword Mrs. Marianne Rowan, Lanarkshire Stroke MCN, Patient & Carer Group “I first heard of the ‘ETHOS’ Project when I attended a Spiritual Care Stakeholders meeting about 2 years after I suffered a stroke. When the presenter Bob Devenny spoke of the ‘sacred losses’ that can accompany a stroke, his words spoke directly to me. For I had been in the middle of a masters degree in Community Education when it happened. I had a sudden flashback to the traumatic time when, bewildered and frightened, I wondered if this new place I had come to inhabit – a stroke patient in a busy general hospital ward – could ever be made comprehensible never mind bearable. My grief for the life that I knew and what it might become was profound. My medical and physical needs were being attended to in an extremely professional – even clinical way. But the part of me that encompassed my deepest fears, strung out emotions, frustrations and desires, not to mention mere likes and dislikes, were not being addressed in any meaningful fashion. I was becoming just another case, I felt, who would journey through the system leaving not a trace of the individual person that was’ ME’. The danger inherent in this approach, I feel, was that the part of me which was essential to my recovery – my spirit – could be blunted in a depersonalisation process. This allowed me a minimal role in the sort of change and adaptation needed to take control and restore a feeling of well being and quality of life. However, I was lucky in that my stroke happened at a time of recognition of a need to change the approach to the recovery process for stroke patients within the health care profession. I was transferred to a dedicated stroke unit at Coathill Hospital where the team of professionals adopted a more holistic approach to their delivery of care. My family was involved in the rehabilitation process through family meetings with staff, which allowed them to discuss their concerns and distress and were a great reassurance for all of us. The therapeutic value of the environment also helped in my recovery. From the feeling of isolation in the clinical atmosphere of a ward that was 4 floors up with no view of the outside world, to the informal ambience of the bungalow type ward that opened out on to a garden, that the stroke unit provided, was the difference between two worlds. I got dressed; I sat outside on my own or with my family and became part of the real world again. I had space to think, to heal, to regain my spirit. I was still ‘ME’, with another set of priorities, but I was still same old ‘ME’”. Marianne Rowan 3 1. Executive Summary 1.1 This report covers work completed and recommendations made from a short-term project carried out within the Lanarkshire Managed Clinical Network for Stroke in 2004/2005. The goal of the project was to incorporate into service development, some of the findings from research carried out on behalf of the Scottish Executive, which examined spiritual issues associated with the sudden onset of stroke from the patient and carer perspective. These spiritual issues were in connection with finding meaning and purpose in life, in the face of sudden illness and were not necessarily held within a religious framework. Bob Devenny, who carried out the original research, acted as project manager for the project on a half time basis over a six-month period. 1.2 The project was based at Hairmyres, with some outreach and general training in other locations. The approach to the project was: To develop and deliver specialised training programmes to meet identified competencies, which would aid in the delivery of the goals of the project. To pilot an in depth training module over an eight week period, with participants coming from different disciplines and from primary and secondary care and from the voluntary sector. To listen to staff, patients and carers and with their input, suggest ways of creating a service environment which would enhance the rehabilitation process and minimise the spiritual distress of those dealing with the sudden onset of stroke. 1.3 The ETHoS approach was well received by staff. The in-depth pilot course was very well received and created a strong sense of teamwork across traditional organisational boundaries as well as teaching new skills and approaches to patient care, including supporting patient self-management. 1.4 The report recommends: That the training programme be rolled out to the stroke service across Lanarkshire and consideration should be given to its application across other long term conditions. Training should be given at a general level to all staff and in-depth training should be given to key staff across the service. The role of discharge liaison and early support should be reviewed. Adoption across the MCN of a Patient and Carer Form, designed with the help of the Patient and Carers Group of the Managed Clinical Network, to help to personalise care, identify support networks and involve patients and carers in the care plan. That the Multi-disciplinary Education, Research & Development Group of the Managed Clinical Network investigate the development and use of self help resources so that patients could work on certain aspects of rehabilitation on their own initiative, while in hospital and at home. Changes to the physical environment of the stroke unit at Hairmyres, to create some less clinical spaces to aid patients and carers in coming to terms with the impact of the stroke and to facilitate and encourage selfmanagement. 4 1.5 The project has raised awareness of the opportunities and advantages of developing a positive patient centred ethos within healthcare and has developed and delivered specialised training to support the ethos, enhance the rehabilitation process and improve patient and staff satisfaction. The implementation of the recommendations in this report will deliver significant improvements in the quality of stroke care within Lanarkshire. While this project focused on the acute phase of stroke care, it is felt that this programme will have a positive impact on the long-term holistic outcomes and selfmanagement of patients and carers. Training for community staff would be beneficial in maintaining this approach. It is important that medical staff be involved in the training and implementation of ETHoS because of the strong influence which they have on the overall environment of care. 1.6 Finally, while this project was undertaken within the MCN for Stroke it is suggested that a similar approach in other health areas would be beneficial. The next logical step would be to implement the ETHoS approach within the MCN for CHD. The in-depth training for the cardiac rehab team and liaison nurses would improve their active listening skills, which in turn, as with stroke, would be beneficial in supporting selfmanagement for patients and carers and reducing stress. Research to determine the impact of this approach on anxiety reduction, self-management and secondary prevention would provide hard evidence of its effectiveness. 5 2. Introduction 2.1 The general approach of the project comes from the findings of research into the spiritual issues associated with stroke. The definition of spirituality used in the research was the search for meaning and purpose in life through experience, in relation to self, others, the natural world and the transcendent. This definition identifies an intrinsic component of our humanity, which may or may not be framed within a religious context. The research identified a process of spiritual recovery after stroke, which involved transformational coping through the evolution of personal meaning in the face of sudden onset disability. This process was an important element for patients and carers in regaining their sense of well being in the context of dealing with the impact of stroke. The research also identified several themes such as the importance of the physical environment, what was labelled ‘sacred losses’, the importance of vocation and maintaining personhood and the impact on family systems. 2.2 The research used a qualitative methodology, which gave rise to a view of the stroke service from the patient and care perspective. A presentation of the research findings raised significant interest from staff as well as those who had experienced stroke personally. It was decided to initiate a project in Lanarkshire, which would incorporate some of the research findings into service development through the Managed Clinical Network (MCN) for stroke. 2.3 The findings from NHS Lanarkshire’s “Picture of Health” consultation with staff and the wider public (appendix 1), identified key areas for development which would be facilitated and strengthened by the adoption of the main principles within the ETHoS Programme. 3. Objectives 3.1 The main objective of the project was to look at ways of service development, which would enhance stroke patients’ and carers ability to undertake the kind of transformational coping identified in the research and to minimise the stress created by the impact of the stroke. The project was given the name ETHOS as the hope was to create an ethos within the stroke service, which would recognise and respond to the spiritual needs of patients and carers. Ethos stood for developing an Environment of care, which would facilitate Transformational coping, through the Holistic approach Of Service development and delivery. The environment of care was thought to be both physical and relational. This environment should help patients maintain and regain their sense of personhood, which can be affronted by the occurrence of stroke and should also help patients and carers to regain a sense of balance within their family systems. Physically this would mean minimising the effects of the institutional, clinical environment, which has a tendency to take a person’s sense of identity away. Relationally it would be important to create an environment of mutuality, which would respect the individual needs and gifts of all, including patients, carers and staff. It was felt that a cultural change within the healthcare system would be needed to include more emphasis on creating this environment of mutuality, health promotion, patient education and self-management along with the traditional emphasis on repairing deficits. This increased emphasis on health promotion would entail creating a healthy environment for staff so that patients and carers would be brought into a healthy community to be cared for. This approach 6 meant that the project would engage with all levels of staff from domestics to consultants as well as management. 3.2 Along with this general approach to the environment of care, an objective was to develop more in depth training for some staff to improve their skills in active listening and the facilitation of transformational coping. 4. Methods 4.1 A steering committee was set up to oversee the project (see appendix 2). The steering committee met regularly as per the flow chart in appendix 3. The steering committee not only oversaw the progress of the project but also contributed to its direction and development through their individual expertise and experience. Steering committee meetings began with a short time of quiet reflection and meditation and so the approach of the project was integrated into its management. 4.2 Although the hope was that the project would have influence across Lanarkshire, it was decided to concentrate efforts at Hairmyres in the first instance. The project manager was employed on a half time basis over a six-month period and joined the team at Hairmyres stroke unit. The approach to the project came from a spiritual care model, which emphasises active listening and being with people in order to support and facilitate change. The project manager began by meeting with small groups of staff on the stroke unit to inform them about the project and to get their feedback. 5. Inputs 5.1 Involvement on the ward The project manager participated in the weekly multi-disciplinary meetings, which helped staff to get to know him and provided the opportunity to raise issues and offer input from an ETHOS perspective. Staff began to refer patients to the project manager for support, which provided the opportunity to work with different members of staff on specific cases and for staff to gain a sense of the practical application of integrated spiritual care. The project manager was restricted in how much patient support could be undertaken because of being available on a part time basis and other priorities within the project. 5.2 Training Spiritual care competencies were identified and these were integrated into the overall core competencies for stroke in Lanarkshire (see appendix 4). A training programme was then developed to meet some of these competencies. 5.2.1 Training took place on two levels: ¾ The project manager held some general training sessions at the three stroke unit locations, which provided the opportunity to spread the project out beyond Hairmyres. These were well received and requests for more and individual training were received. ¾ An in depth pilot course was run at Hairmyers with three nurses from the stroke unit, a CHSS liaison nurse and a community based physiotherapist and physiotherapy assistant from the early supported discharge team participating. This course ran for one morning per week over eight weeks. 7 5.2.2 The in depth pilot course took a reflective practice approach with a framework for reflection being developed for the course (see appendix 5). Each student presented three reflections to the group over the length of the course. Along with the reflective practice, didactic sessions were given and two guest speakers were invited to present. These were Teresa MacIntosh, from the Department of Nursing at Bell College, who presented her MSc research on the psychological issues faced by young stoke survivors and Hina Sheikh, diversity and equality coordinator for NHS Lanarkshire, who talked to the group about diversity and minority ethnic considerations. On another occasion, a young stroke patient from the ward joined the group to give them her personal feelings at that time. In a later session, when it was reported that this patient was going through a rough time, one of the students offered to lead the group in a prayer for the patient, which the group felt was appropriate and felt comfortable with. 5.3 Management The project manager, the stroke unit sister, the manager of the stroke MCN, the clinical director and the service manager met to discuss ideas from the project about making alterations to the physical environment of the ward. The ideas from this meeting were tabled at the next meeting of the Hospital Management Committee meeting. The project manager was invited to address a meeting of the Local Area Group (discharge planning). He was asked to open the meeting with a short time of meditation and then invited to present the background and approach of the ETHOS project. This committee really engaged with ideas of the project and offered some worthwhile feedback. 5.4 Patient/carer form Through the steering committee the idea of developing a patient and carer form arose and was pursued with the help of the patient and carer group of the MCN. The idea of the form is to facilitate self management and personalised care. This form is being piloted at Wishaw and Hairmyres (see appendix 6). 6. Observations 6.1 Physical environment Hairmyres is a fairly new hospital built in 2001 under the private funding initiative. The stroke unit is a 24 bed unit with a 6 bed mixed sex acute receiving room, three four bed rooms which are managed as single sex rooms and 6 single side rooms. The unit is efficient for bed management but there is a lack of facilities for staff and for patients and carers, separate from the clinical environment. There is a day room which also serves the adjoining ward and there is a room at the opposite end of the ward which was designed as a bathing room but which is currently being used for storage. The day room is being used part of the time for occupational therapy sessions and is also used for staff meetings including the weekly multi-disciplinary meeting. There is a room for physiotherapy on the ward but patients are often brought down two levels, to the rehab unit for various types of assessment and therapy. Occupational Therapy offer relaxation therapy and hand massage in a small room in the rehab centre. This service is appreciated by patients, but the room is quite confined and a long distance from the ward. 8 6.2 Relational environment The stroke unit at Hairmyres benefits from a very competent and dedicated team. They welcomed the project manager into their midst and showed a genuine interest in the project. As they got to know the project manager they began to refer patients to him for added support. The referrals came from the different disciplines including consultants. The pressures of healthcare in Scotland today were palpable on the ward with bed occupancy and delayed discharge, causing stress for the multi-disciplinary team as they sought to fulfil their remit to the best of their abilities. 6.3 Training The presentations, which the project manager has given in various locations across Lanarkshire, have been very well received. Articulating the deeper emotions of stroke patients and their carers and placing this within a health care framework seems to touch a chord with stroke survivors and staff. The general reaction from staff has been an expressed desire to learn how to integrate spiritual care into their practice. Because of shift work, rotation of staff and the time limits of the project, a significant number of staff have not received this training. 6.3.1 The participants in the in depth pilot course, engaged in the course fully and found it to be very worthwhile (see appendix 7 for comments). There was a noticeable shift in how participants related to those in their care as was demonstrated through the reflective practice presentations. A significant change was that participants learned to stop trying to fix or brush over the deep feelings of patients and carers and learned the art of active listening and just being with people and offering them genuine compassion. The compassion was already present in the students, it was a case of allowing it to be offered in a way that was helpful to those in their care and learning to listen to their own deeper feelings for their own care. This new way of relating to patients lead to enabling patients and carers to better self-manage their situation and to set more personalised and meaningful goals in their rehabilitation programme. Another important aspect of this pilot course was that it created a very strong sense of teamwork, which cut across professional and primary/secondary care boundaries. Because of the timeframe of the project the pilot course ran for 8 weeks only. It was felt by participants that they could have used more time and it is recommended that any future courses be 12 weeks in duration. Participants were keen to get more of this kind of training and it would be possible to develop more advanced training in the future. One idea would be to include chaplains in this multi-disciplinary training. 9 7. Recommendations 1. Training: Incorporate the general ETHOS training into overall training and induction programmes for stroke. Offer in-depth training courses to selected staff in all locations. Recommendation Rationale Actions Outcomes 1.1 Rollout general training programmes developed under the project to other locations and integrate this training into professional development through the core competency framework. This training will raise awareness of spiritual issues associated with stroke and help staff at all levels to integrate a sense of mutuality into their caring relationships. Training for stroke awareness coordinator Increased awareness of the spiritual dimension of health Improved patient satisfaction Improved ethos of the service. 1.2 In-depth training should be delivered to a cross section of staff within the stroke service and developed for other services such as CHD The pilot course was very well received by the participants (see appendix 7) and proved successful in not only developing active listening skills but also proved to be an excellent vehicle for building good team relationships across professional and primary /secondary care boundaries. The skills learned in this course demonstrated the ability of staff to improve their ability to provide selfmanagement support to patients and carers. The course also provided participants with the opportunity to examine and build on their own spiritual strengths and so is a useful tool for selfdevelopment. Allocate resources for in-depth training programme New competencies in spiritual and holistic care Set up 12 week modules and release the appropriate staff Improved job satisfaction for staff Improved patient self-management support Improved patient satisfaction Deeper understanding and appreciation of the roles of other staff members Improved working relationships 10 2. Discharge Liaison & Support: Review the discharge liaison and support process in light of the other recommendations including the in-dept training. Rationale Actions Outcomes Recommendations of Chair of the Local this project will help Area Group in the preparation and ETHoS team. support of patients and carers as they are discharged out of the hospital environment, back into the community. Discharge liaison and early support in the community are crucial to this transition. The CHSS liaison nurse and two members of the early supported discharge team took part in the in-depth training course and found that this benefited their practice. It is felt that a review of how the training and other recommendations could impact on discharge planning and early support would be beneficial. It was not possible within the scope of this project to properly investigate the opportunities. Intentional integration of ETHoS into discharge planning and early support 11 3. Patient & Carer Form: Implement the use of a patient & carer form across Lanarkshire through a randomised control trial. Rationale Actions Outcomes This form will facilitate a more personalised care plan and help identify support networks. It will help the healthcare system to take the more holistic approach to patient care that it is striving for and help to create an environment of mutuality between staff and those in their care. It will allow patients and carers to take a more active role in care and discharge planning. Introduce in three locations, through nursing, as a RCT research project. Improved patient satisfaction. Personalised care planning. Improved staff/patient/carer relationships. 4. Personalised Self-Management Resources: Develop personalised self-management resources, through the multi-disciplinary protocol group of the MCN, to be used by patients on the ward and to be taken home. Rationale Actions Outcomes Patients are often keen to work on their rehabilitation as much as possible and can feel restricted by the lack of healthcare resources. Computer based programmes such as those which help to regain communication skills, would allow patients to work on their rehab on their own initiative and during times when staff are unavailable. Multi-disciplinary protocol group Introduced in three locations by AHPs as a RCT research project Encouraged and supported selfmanagement Improved rehabilitation progress Improved patient satisfaction 12 5. Physical Environment: Make Improvements to the physical environment, which will enhance recovery. 5.1 Change the bathroom into home-style kitchen area. 5.2 Create computer-based resource centre in day room. 5.3 Create relaxation area in day room. Rationale Actions Outcomes 5.1 Change the bathroom, which is being used for storage into a home-style kitchen area. 5.2 Create computer-based resource centre in day room. This space will help to offset the clinical, institutional environment of the ward. It will provide an area where patients and carers can be together in privacy, to support each other and begin to work on how they will deal with the affects of the stroke. It could also be used for O.T. assessment and training by dietetics. Approval of hospital management team. More control for patients and carers. Patients spend considerable time waiting in between appointments with rehab staff and it could be possible to develop resources so that they could work on some aspects of their rehabilitation on their own initiative. An example of such a resource is computerbased programmes for relearning communication skills. Access to the internet would also allow patients to access information on stroke and would allow them to perform tasks such as internet banking. Approval of hospital management committee Encouragement and support of selfmanagement IT department input Improved rehabilitation Fundraising by stroke Facilitate family unit staff. systems adjustments to new situation post stroke. Easier transition from hospital to home. 13 5.3 Create relaxation area in day room. Occupational Therapy offer relaxation therapy, which is appreciated by patients and helps them to deal with the emotional upheaval associated with stroke. At present this is offered in a small room down in the rehabilitation centre, which is not as conducive for this type of therapy as it could be. With some minor adjustments the day room could accommodate this type of therapy, with the added benefit of being on the ward and would allow patients to access this kind of resource on their own initiative Approval of hospital management Occupational Therapy Department Reduction in emotional stress of patients Improved patient satisfaction 14 8. Conclusions 8.1 The qualitative, person centred research into spiritual issues associated with stroke, articulated the deep human reaction to the sudden onset of stroke and the struggle to regain personhood and a feeling of well-being in the face of disabilities. The ETHOS project sought to facilitate change in the stroke service, to better support families dealing with the impact of stroke from a spiritual care perspective. Spiritual care has a strong health promotion component to it and this project followed the principles set out in the Ottawa Charter for Health Promotion 1 , which defines health promotion as “the process of enabling people to increase control over, and to improve, their health”. Spiritual care supports people who are undergoing spiritual distress by offering companionship, mutuality and compassion. In order to be most effective in offering this kind of support it is important that the environment which staff work in is conducive to their own spiritual well being, so that those who have to use the service come into a healthy caring environment. Spiritual care then links together the working conditions of staff and promoting their own health with the effective clinical care of patients. 8.2 The work completed in the ETHOS project and the recommendations made in this report will facilitate the cultural changes required to create a healthier environment for patients, carers and staff. There is a danger with this kind of project that once it has finished, any gains made will be lost through the inertia of the large health care system. It is felt that the training will have longevity, especially with those who participated in the in depth course. If the recommendations for the changes to the physical environment are carried out and if the patient and carer form becomes embedded into practice then these changes will not only have an immediate positive return but will also facilitate the deeper cultural shift, which the project seeks. The long term results will lead to a more cost effective, person centred service with improved outcomes and satisfaction. It is hoped that a further small project using case studies to bring staff together from different professional perspectives and at different points on the patient journey, will help to round off the project. 8.3 The final recommendation of this report is that this successful project should be built on, and expanded, within the stroke service through implementing the recommendations specific to Hairmyres, incorporating the ETHoS approach in the other locations and by setting up a training programme throughout the service. It is recommended that as specific changes are made that a research approach should be taken to the implementation, to assess impact and provide hard evidence to support the changes. It is the vision of this project, that through the writing up of the research, that the advances made in stroke rehabilitation in Lanarkshire will be recognised and adopted by the wider stroke care community. The National Framework Long Term Conditions Action group has highlighted the need for improved interdisciplinary training for collaborative patient centred care to support self management. The ETHoS approach is transferable to other long term conditions and could prove an important tool for Community Health Partnerships delivering chronic illness care. 1 World Health Organization. Ottawa Charter for Health Promotion (http://www.who.int/hpr/NHP/docs/ottawa_charter_hp.pdf). Ottawa, WHO, 1986 15 APPENDICES 16 Appendix 1. NHS Lanarkshire, Picture of Health and Public Values Consultation – Issues in Keeping with ETHoS Project Principles. ISSUE DETAIL Better cooperation between agencies and more coordinated care. There is existing good partnership working and effective partnerships. Need to develop courses and programmes to support new roles. Appropriate levels of well-qualified staff providing care and treatment in a caring way (mutual respect). Access to the right person with the qualifications to provide quicker treatments. Streamline services and link together to provide continuity of care including after care. Improved Services Improved provision of information Improved communications with patients and carers (clear, consistent, user friendly, at the right time and two way) Good communications between professionals and departments Delayed Discharge Improved communication with social work department Start planning discharges from early in admissions Value staff Address specialist shortages through improved terms and conditions and environment. Extend roles and development of centres of excellence. 17 Appendix 2. ` Steering Committee Members David Hume General Manager of Hairmyres with responsibility for MCN Anne Hendry Lead clinician for stroke Moira Forsyth Manager of Managed Clinical Network for Stroke Maureen Carroll Manager of Managed Clinical Network for CHD Bob Devenny ETHOS Project manager 18 Appendix 3. Project Flow Chart STEERING COMMITTEE HAIRMYRES LANARKSHIRE Initial meeting Assessment and introduction Progress report Planning meeting Meeting with main players Core competencies Training development Person centred care Role out to unit Documentation Progress report Planning meeting Adjustments Evaluation Progress report Final meeting Final report 19 Appendix 4. Spiritual Care Competencies Spiritual Care Core Competencies for Stroke Novice 2 3 4 Awareness of Sensitivity to Pt. vulnerability Carer anxiety Mutuality Self awareness Multifaith multicultural awareness Spiritual assessment Integration of personal spirituality into care approach spiritual issues 5 knowledge of Psychology 6 Delivery of symbolic experiential interventions to individuals, families, groups (as in religious practices) In depth spiritual assessment And specialist spiritual care 20 Appendix 5. Framework for Reflective Practice FRAMEWORK FOR REFLECTION Setting This section identifies where and when the interaction took place and who was present. Background This section is used to provide information about pt/carer situation, the relationship between self and participants to date and what was going on in your own life. Transcript This is a word for word transcription of the encounter as best as can be remembered. It is presented in the form of a play with the characters identified as they speak and also includes a note of things such as body language or external interruptions. Analysis of Transcript This section is used to go through the transcript line by line and analyse what was going on in the participants and in yourself. You look at what the participants said and how you responded. You suggest why you responded as you did and if there might have been a more helpful way to respond. Spiritual Insights This section provides the opportunity to examine and articulate some of the spiritual issues that might have been present for both the participants and yourself. It is used to identify themes that might come up again in other situations. It may be helpful to draw on other sources of literature to help to explain the themes. This will be helpful in identifying these kinds of themes when they arise in the future. Plan This section is used to formulate a plan for how you might help the pt/carer in the future and how you might address any concerns that surfaced within yourself. 21 Appendix 6. CONFIDENTIAL PERSONAL INFORMATION FORM We would be grateful if you could complete this questionnaire. This form can be filled out by yourself or a relative/friend. The information will provide relevant personal and family details that will be useful in their care. FULL NAME_____________________ PREFERRED NAME_______________ ADDRESS______________________ DATE OF BIRTH__________________ _______________________________ MARITAL STATUS_________________ PLEASE LIST BELOW CLOSE FAMILY AND FRIENDS (wife/husband/partner/children/grandchildren/friends/neighbours) NAME AGE RELATIONSHIP WHERE THEY LIVE… PLEASE GIVE DETAILS OF YOUR WORKING EXPERIENCES AND ANY INVOLVEMENT YOU HAVE IN THE COMMUNITY ______________________________________________________________________________ ______________________________________________________________________________ ______________________________________________________________________________ 22 HAVE YOU OR YOUR FAMILY FACED OTHER TIMES OF ILLNESS _______________________________________________________________________________ _______________________________________________________________________________ PERSONAL DETAILS/INTERESTS NEWSPAPERS SPORTS (including teams) READING HOBBIES TELEVISION HOLIDAYS MUSIC PETS ADDITIONAL INFORMATION PLEASE GIVE DETAILS OF ANY FURTHER INFORMATION YOU FEEL WOULD BE OF BENEFIT OR IMPORTANCE _______________________________________________________________________________________ _______________________________________________________________________________________ _______________________________________________________________________________________ _______________________________________________________________________________________ _______________________________________________________________________________________ _______________________________________________________________________________________ _______________________________________________________________________________________ 23 Appendix 7 Comments from ETHoS Training Participants ¾ Learning not to “fix it” (all participants) ¾ Enjoyable experience. ¾ Brilliant learning of each other’s role in health care. ¾ Emotional at times. ¾ Not “spiritual care” as we first thought. ¾ Improved my communication skills in my professional and private life. 24
© Copyright 2026 Paperzz