FALL 2016
ACCESS
A PUBLICATION OF COMMUNIT Y RESEARCH INITIATIVE OF NEW ENGL AND
A New Prevention Initiative to Help in the
Fight Against HIV
Providing Access to HIV Prevention for Thousands
For nearly 30 years, CRI has worked tirelessly towards an end to the HIV
epidemic. The clinical HIV research that you support continues to help
test and discover new treatments that improve the lives of people living
with HIV across the world. Our partnership with the Massachusetts
Department of Public Health (DPH) to manage the HIV Drug Assistance
Program (HDAP) helps thousands of HIV-positive individuals living in
Massachusetts access the life-saving medications that they need every
year. The BRIDGE team’s outreach and education initiatives ensure that
providers, case managers, and consumers have the most up-to-date
health insurance and benefits information necessary to provide access
to the best HIV care and treatment to clients across the state.
Our staff is prepared to help those who
need PrEP
INSIDE ACCESS
In Memoriam p 2
Remembering the Electric John
Michael Gray
Research Update p 3
Dr. Olivet’s Top Takeaways from
Durban
News and Events p 4-5
Dining Out For Life Restaurants
Announced!
Your Critical Support p 6-7
Thank You for Supporting
Research that Saves Lives
CRI is now proud to partner with the Massachusetts DPH on a new
HIV-prevention initiative, the Pre-Exposure Prophylaxis Drug Assistance
Program (PrEP DAP). This pilot program, recently spotlighted in The
Boston Globe, will help HIV negative individuals living in Massachusetts
who need assistance paying for PrEP medication. PrEP DAP will cover
any required prescription copays and deductibles for PrEP medication
for eligible Massachusetts residents.
PrEP is a successful HIV prevention method that can help reduce the
risk of contracting the disease for HIV-negative individuals. The CDC
reports that when taken correctly, PrEP reduces the risk of HIV infection
in people who are at a high risk by up to 92%. Truvada, an HIV
antiretroviral medication produced by Gilead, is currently the only FDAapproved PrEP treatment. People currently looking for PrEP assistance
are directed to Gilead’s Patient Assistance Program.
At a September 30 meeting, the Department of Public Health’s Office
of HIV/AIDS rolled out the pilot PrEP program to staff from twelve
participating agencies. Based on results from these pilot sites, Office of
HIV/AIDS officials hope to expand PrEP DAP to additional health care
sites throughout Massachusetts.
CRI is excited and well-positioned to take on this new role as
Massachusetts further integrates HIV prevention and care. We are
dedicated to ensuring that all who need access to medication are able
to obtain it, and this program allows us to help the Department of
Public Health focus on HIV prevention measures. Access to preventative
medication will help decrease the number of new HIV infections and
bring us one step closer to ending the HIV epidemic.
HIV IN BLACK & BROWN AMERICA
National and Local Perspectives on Action to End the Epidemic
OCTOBER 29 | 10:00 am - 1:00 pm
Whittier Street Health Center
1290 Tremont Street | Roxbury, MA
Featuring national activist Phill Wilson in conversation with
Amir Dixon, Connected Boston and Romina Chorres, Casa
Esperanza. Moderated by Ben Klein, GLBTQ Legal Advocates
& Defenders (GLAD).
Free Event | Brunch Provided | RSVP at GLAD.org/events
Spanish Interpretation Available
Co-Sponsored by Community Research Initiative,
Boston Living Center, TransCEND, and Inquilinos
Boricuas en Accion (in formation)
First-in-Nation Law Ensures Insurance Coverage for Treatment of Lipodystrophy
Thank You for Standing Up and Making a Difference!
On August 10, Governor Charlie Baker signed a law making Massachusetts the first state in the country to require
insurance companies to cover treatment for HIV-related lipodystrophy. This law will ensure some of the longestterm survivors of the HIV epidemic will finally have access to effective treatment and the critical health care they
need and deserve.
CRI’s BRIDGE Team Project Manager George Hastie serves as
Co-Chair of the Treat Lipodystrophy Coalition (TLC), and CRI
is proud to have worked alongside the legislators, physicians,
community leaders, organizations, and supporters who
have worked diligently over the past several years to
make coverage a reality. The passing of this monumental
legislation would not be possible without your help – thank
you for standing up, speaking out, and making sure people
living with HIV are able to receive the treatment they need!
John Michael Gray: In Memoriam
We are sad to say goodbye to John Michael Gray, one half of the beloved Hat
Sisters and an advocate for the LGBTQ community for 30 years. Like so many, we
were lucky to have known John, experience his generosity, and to have called him
a friend. Our deepest condolences go out to his family, friends, and loved ones.
CRI is Moving!
On December 5th, find us at:
Schraffts City Center
529 Main Street
Boston, MA 02129
CRI ACCESS
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CRI will still be working tirelessly on our clinical HIV research and making
sure that everyone who needs help accessing life-saving medication is
able to—we’re just at a new address!
If you have any questions about our change in address, please email us at
[email protected] or call us at 617.502.1700.
RESEARCH UPDATE
R
C
o m m u n i t y
e s e a rc h
of
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n i t i a t i v e
new england
Board of Directors
CRI is currently working on several open and ongoing clinical trials at our research
facility in Boston. If you are interested in learning more about enrolling in CRI’s
research studies or have questions about our ongoing studies that are not
currently enrolling, visit www.crine.org and click the Join a Clinical Trial
button at the top of the homepage or call a Research Study Coordinator
at 617.502.1707.
Sharing Knowledge to Fight HIV
Dr. Hannah Olivet’s Top Takeaways from
the International AIDS Conference
Hannah Bouldin Olivet, MD, CRI’s Associate Research Director and Principal
Investigator of HIV Studies, attended this year’s 21st International AIDS
Conference in Durban, South Africa. Over 18,000 health care providers, scientists,
policy-makers, and advocates from around the world gathered at the conference
to share science and knowledge to help build an evidence-based response in
addressing HIV/AIDS throughout the world.
We asked Dr. Olivet about her experiences in Durban, and she’s provided us with
her top three takeaways from the conference:
The diversity of representation at this conference provides a profound realization
for all involved that HIV has a very different face, depending on where in the
world one finds oneself. Despite these differences, there were core themes that
we must focus on, whether we are in the US or another part of the world.
1
Access. In order to find an end to HIV/AIDS, we must focus on providing equal
access and treatment to everyone­—men, women, youth, the LGBTQ community,
those who find themselves threatened by stigma, and those struggling with
their rights to live as healthy and accepted members of the global community
2
More effective prevention and treatment methods. Global research
and important clinical trials make single-tablet regimens, long-acting injectable
therapy, and an HIV vaccine possible. The search for treatment and prevention
options (PrEP) for those at risk will only continue with increased advocacy and
strengthened support.
3
Youth. Since today’s youth serve as the face of this epidemic and as the
future in providing the end of HIV/AIDS, they are demanding to be heard, and
their voices are profound, encouraging, and helpful. We must find new ways to
reach youth and promote awareness, testing, treatment, and PrEP!
Scott Sylvia, OD, MBA
President
John W. Devlin, PharmD
Vice President
Jonathan B. Goode
Treasurer
Paul Moreno
Clerk
Mark Giese
Leadership Council
Jon Appelbaum, MD
Robert Beck
Donald Butterfield, MD
Ronald Chapman
Mark Christofi
Calvin Cohen, MD, MSc,
Founding Research Director
Carolyn Crowley
Jonathan Crutchley
Glenn Daidone
Victor DePoalo
Richard Dickinson
Douglas Dolezal
Dixie-Lee Esseltine, MD
Kenn Freed, CPA
Jane Garb
Clive Godwin
Joel Goldstein, PhD
Roger Hanzes
Sheila Hussey
Larry Hyer
Lenore Jackson-Pope, RN, ACRN
Bobby Kelley
Ian Lekus, PhD
Tim Martinez, DMD
John Mazzullo, MD
Ellen Morris McCann
Crane McCune
Michael McGuill, DVM, MPH
Jim Morgrage
Frank Ribaudo
Paul Ross, EdD
Harry Schrager, MD
Sandy Sheble-Hall, RN, ACRN
Gregory Welch
Executive Director
Julie K. Marston, MPH
Deputy Executive Director/HDAP
Program Director
Craig R. Wells, MSL
Research Director/Principal Investigator
of Hepatitis C Studies
Amy Colson, MD, MPH
Associate Research Director/Principal
Investigator of HIV Studies
Hannah Bouldin Olivet, MD
Research Operations Director
Julia Green, MS, NP-C, CCRP
You can connect your community to
research, treatment, and education.
Like CRI on Facebook, follow us on
Twitter, check out our Instagram photos,
and watch our YouTube videos.
CRI’s Mission:
To lead the way in clinical HIV/AIDS and
hepatitis C research and to ensure access
to lifesaving drugs and health insurance
to those in need.
Director of Communications
and Development
Michael Corrente, MPA
ACCESS Editor
Marybeth McCabe
ACCESS Contributors
Alyssa Gocinski & Klint Kairanna
CRI ACCESS
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NEWS AND EVENTS
Dine Out & Save Lives with CRI on Wednesday, November 2nd
Join us for an exciting new event taking place across Boston!
nearly $4 million for local AIDS
How Can You Get Involved?
It’s easy to join CRI for Dining Out For Life!
service organizations across the US.
1. Dine Out. Gather up a big group of your friends or take your date out to
Each year, Dining Out For Life raises
And this year, CRI and Honorary
Chair Brian Piccini are bringing the
event back to Boston!
Sponsored By:
Media Sponsor:
enjoy dinner at one of the participating restaurants on Wednesday, November
2nd. All you have to do is eat out!
2. Be a Restaurant Ambassador. Do you love to entertain? This is the
perfect role for you! Invite everyone you know out to pack your restaurant
on Wednesday, November 2nd. It’s like hosting a dinner party without the
cleanup!
3. Spread the word. Do you work near one of the participating restaurants?
Do you belong to any clubs, teams, or groups? Tell them about Dining Out For
Life! We can send you posters, flyers, or digital promotional items to share!
2016 Participating Restaurants
Ashmont Grill - Bar Mezzana - Boston Chops - Club Café - dbar - Deuxave
- Friendly Toast – (Boston) - Friendly Toast – (Cambridge) - Orinoco - Post
390 - SideBar - South End Buttery - Tasca
Check www.DOFLBoston.org for more information!
Getting in the Saddle for HIV Research
Thank You for Being Part of Team CRI!
On September 17, hundreds of you rode from Boston to Provincetown for Harbor to the Bay Ride 14 to
support critical HIV/AIDS research, services, and care in Massachusetts. We are incredibly thankful to all of
the riders, crew members, volunteers, sponsors, and donors whose dedication and generosity helped Harbor
to the Bay raise over $430K! CRI riders pedaled over 2500 miles through Boston, down the South Shore, over
the Sagamore, & up the hills of Truro to Provincetown —
­ all to raise money that supports CRI’s life-saving HIV
clinical research, outreach, and treatment education!
Don’t miss your chance to win! When you donate $100+ to any CRI rider or crew member, Team CRI, or
CRI as a beneficiary by November 15th, you will be entered to win 2 roundtrip airline tickets to anywhere
in the contiguous US, Mexico, or the Caribbean from 5 Star Travel Services.
Donate at www.harbortothebay.org/profile/TeamCRI.
CRI ACCESS
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NEWS AND EVENTS
You Raised $65K+ for CRI’s HIV Research at Summer Party!
More than 250 friends, supporters, and volunteers gathered together to attend CRI’s 13th annual Summer Party
on Saturday, July 23 in Provincetown! This year, we came together to honor Frank Ribaudo with the Dr. Cal
Cohen Founder’s Award. Frank has been an incredible LGBTQ advocate, philanthropist, community member,
and long-term CRI Board and Leadership Council member. He has dedicated years of service and has tirelessly
supported CRI’s HIV/AIDS and hepatitis C clinical research and commitment to the community.
With your help, we raised more than $65K in support of CRI’s life-saving HIV clinical research, education, and
outreach. Your generous support enables CRI to continue to be a part of groundbreaking clinical studies that
change the lives of thousands affected by HIV and hepatitis C every year. Thank you for your commitment to
saving lives and finding safer, simpler treatment for everyone. Our sincere thanks to all those who made this
event possible – the Summer Party is a success because of your dedication and hard work!
Generous Sponsors:
Gilead Sciences, Inc.; Eastern Bank; Janssen Biotech, Inc.; The Red Inn; Freed Investment Group, LLC; Larry Hyer;
Kenneth Freed & Co. – Alan Murray, Wendy Nasser, Charlie Hubert, John Stanton; marc hall design/marc hall
objekt; Ken Lima & Mark Sacco; Beachfront Realty; Calvin Cohen, MD; ARCO Security; Rob Caro; John Devlin
& Marc Hall; Sean McConnell; Dr. Scott Sylvia; Dickinson Lab; AbbVie; Genesis HR Solutions; City Wine Tours;
Boston Harbor Cruises; Chandon; KetelOne Vodka
Gracious Hosts:
The Red Inn; Scott Sylvia; Jon Goode & Cary Raymond; Doug Dolezal & Greg Welch; Peter Portney; Sean
McConnell; Victor DePoalo & Brian McKenna
Dedicated Host Committee:
Guy Backlund; Mitch Baker & Thom Egan; Sean Burke; Rob Caro; Marc Croteau; Ron Chapman & Crane McCune;
Jamie Curtis; John Devlin & Marc Hall; David DiCicco; Bill Farmer & Jack Hudson; Kenn Freed; Roger Hanzes;
Larry Hyer; John Keith & Terry Lighte; Ken Lima & Marc Sacco; Phillip Mossy & Tiago Pegorim; Michael O’Hagan
& Mark Gallant; Frank Ribardo & Joe Posa; Bobby Kelly; Paul Rodrigues & Matthew Trento; David Silva; Courtney
Spitz & Miriam Gallardo; Jim Young & Scott Walker; Paul Ross
CRI ACCESS
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YOUR CRITICAL SUPPORT
You Make Lives Better!
Thank you to our leadership donors, who go above and beyond to support research that improves lives around the world.
Below is a list of the leadership donors who contribute to our important efforts.
CRI’s Research Circle honors all
of you who take a leadership role
in supporting CRI with an annual
donation of $5,000 or more:
The Dr. Cal Cohen Fund honors
all of you who support CRI’s
efforts with an annual donation
of $2,500 or more:
CRI’s 1500 Fund is the sustaining
gift program for annual donors of
$1,500 or more:
Mitchell Baker & Thom Egan
5 Star Travel Services
BNY Mellon Community Partnership
Robert R. Beck
American Tower Corporation
Anne Covert
Ronald Chapman & Crane McCune
ARTCO/Jim Viola
Doug Dolezal & Greg Welch
Victor DePoalo
Donald E. Butterfield, MD
John Devlin & Marc Hall
Rob Caro
Kia R. Earp
in honor of all those before me
Discovery Communications
Calvin Cohen, MD
Eastern Bank
Community Health Charities of New England
Dixie-Lee Esseltine, MD & Debbie Taylor
in memory of Jane & Phil Esseltine
Dickinson Lab/Richard Dickinson
Gilead Sciences
Harbor to the Bay
H. Scott Huizenga
Janssen Biotech, Inc.
Marcus Builders LLC
Sean McConnell
Paul Moreno & Stephen Barlow
Kenneth Freed, CPA/Kenneth Freed &
Company/Freed Investment Group LLC
Jonathan Goode & Cary Raymond
in honor of Doug Dolezal & Greg Welch
Seth Grosshandler & Kim Wainwright
Roger M. Hanzes
Robert Kelley
Rufus Gifford & Stephen DeVincent/Gifford
Family Foundation of the Bank of America
Charitable Gift Fund
in honor of Cal Cohen, MD, MSc
Ken J. Lima & Mark Sacco
Lisbeth & Lyle G. Hall
in honor of Sandy Sheble-Hall
Jacob Murray, III, DMD
Online Buddies Inc.
Lawrence R. Hyer/Lawrence R. Hyer Fund
a Fidelity Charitable Donor-Advised Fund
The Red Inn
Wendy Marston
Peter Tenggren
Millennium Matching Gift Program
Ann Webster, PhD
Novartis U.S. Foundation
Victor’s
Hannah & Jeffrey Olivet
Scott Popkowski & Joseph Smith
Popkowski Smith Family Foundation of the Bank of America Charitable Gift Fund
Bryan Rafanelli & Mark Walsh
Gary Reinhardt
Edward Moore & Shawn Brooks
Moore Family Fund, a Fidelity Charitable
Donor-Advised Fund
Michael Stone, DMD
in honor of Ann Webster, PhD
Daniel Sullivan
Donald E. Vaughan & Lee Ridgway
Every effort has been made to
ensure the accuracy of these lists. We
apologize for any errors and ask that
you call our Development Office at
617.502.1726 or email corrections to
[email protected].
Join Us for the Boston Home Décor Show Gala Preview
CRI is proud to partner with the Design Industries Foundation Fighting AIDS as one of the
beneficiaries of the Boston Home Décor Show Gala on Thursday, November 17th!
Enjoy fine food, wine, and the chance to be among the first to select from an array of
historic, modern, and contemporary home furnishings, fine art, decorative arts, and home
décor featured at the Boston Home Décor Show.
Purchase your tickets today at www.bostonhomedecorshow.splashthat.com
For more information, visit www.crine.org/events/boston-home-decor-show-gala
CRI ACCESS
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YOUR CRITICAL SUPPORT
Friends of CRI
Your generous support makes CRI’s life-changing HIV and HCV treatment research possible! The following donors contributed
to our important efforts between May 1, 2016, and September 30, 2016:
Herbert Acevedo
Scott Allegretti, DDS
Jay Anderson
Jon Appelbaum, MD &
William Morowski
Guy Backlund
Mitchell Baker & Thom Egan
Michael Barnum
Javier Barrientos
Robert Beck
David Beraducci
Gregory Bowe
Michael Burke
in memory of Nick Houpis
Donald Butterfield, MD
Roberto Caldera
Robert Caro
Roger Carter
Christopher Casale
Ronald Chapman & Crane McCune
Dominic Cioffoletti &
Christopher Scinto
John Clark
Calvin Cohen, MD
Harry Collings & Daniel Moon
Anne Covert
Peter Cromarty
Ward Cromer
Peter Crosby
Marc Croteau
Lisa Cruz
in honor of CRI & HDAP
David Datz & Jim Mauro
Richard Davies
Joseph DeMartino
John Devlin, PharmD & Marc Hall
Marco Di Pietro
David DiCicco
David DiRocco
Patrick Dolan
in honor of Tim Riordan
David Dolbashian
Harold Dolden
Doug Dolezal & Greg Welch
Scott Dolny
Tim Dudley
Alan Duggan
Jerry Ecklund
Peter Epstein, Esq
Dixie-Lee Esseltine, MD &
Deb Taylor
in memory of Phil &
Jane Esseltine
Thomas Evans
William Farmer
Michael Fernon
Scott Forbes
David O’Brien
Kenneth Freed
Tim O’Connor & John Michael Gray
David Garten
Michael O’Hagan & Mark Gallant
Mark Giese
Richard Parritz/The Parritz Foundation,
Martha Gladue & Margaret Valenti
a Fidelity Charitable Donor-Advised fund
Ronald Goldstein
in memory of Harold Parritz
Ana Gomes
Andrew Parthum
Mark Gonthier
Michael Peregon
in memory of David Austin
Matthew Perlman & William Hurlman
in honor of Andres Branger
in memory of Dr. Ron Gelb
Robert Greene
Peter Portney
Ellen Grubert & Janis Lippman
Gary Reinhardt
in memory of Howard Lippman
in honor of Tom & Paul Maar Rogers
Michael Hall
Frank Ribaudo & Joe Posa
in honor of John Devlin
Michael Richards
Lisbeth & Lyle Hall
Glenn Rigoff
in honor of Sandy Sheble-Hall
Michael Roberts
Danny Hamilton & Paul Hilliard
Nirka Rosa
Roger Hanzes
Paul Ross, EdD
Don Harpin
in honor of Frank Ribaudo
Howard Heller, MD
Jonathan Runge
Jeremy Holman & Marcus Matic
Michael Schutes
Derek Howe
Bradley Seeman
Jack Hudson
James Seligman, DMD & Joe Castellana
Scott Huizenga
Edward Smith
Lawrence Hyer/Lawrence R. Hyer Fund,
Richard Smith/Give with Liberty Employee
a Fidelity Charitable Donor-Advised fund
Donation Program
Jay Jakubowski, DVM &
John Spagnoletti
Shawn Nightingale
in memory of Mark Douville
John Keith & Terry Lighte
Joe Spinale
Robert Kelley
William Sullivan
Eugene Kelly, Esq
Jeff Swanson
Jeffrey Klenz
Peter Tenggren & Warren Mitchell
Andrew Lantz
John Todd II & Jeffrey Klenz
Marijean Lauzier & Jane Hiscock
David Tougas
Kenneth Lawton
Elizabeth Warner
Timothy Leahy
James Watkins
Laurie Leibowitz
Businesses, Organizations,
Ross Leimberg
and Foundations
Mark Lessinger & Michael O’Connor
AARP Matching Gift
Catherine Lewis & Angela Bonazinga
Abbvie
Ken Lima & Mark Sacco
AmazonSmile
Edmund Luciano
BNY Mellon Community Partnership
Matthew MacDonald
Community Health Charities of New England
Matt Marcotte & Mario Pinho
Discovery Communications
Julie Marston
Eastern Bank
Thomas Martin
Gilead Sciences
Dennis McAvoy & Bruce Poduska
Janssen Biotech, Inc.
Sean McConnell
Kenneth Freed & Company
Michael McGuill, DVM, MPH & Jonathan Scott
Liberty Mutual/Give With Liberty Employee Jean McGuire & Barbara Herbert
Donation Program
David McMahon & John Erdman
Macdonald Design Associates
Samuel Moniri
Merck & Company, Inc.
Edward Moore & Shawn Brooks/
State Street Foundation
Moore Family Fund, a Fidelity Charitable
Donor-Advised fund
Steve Nason
CRI ACCESS
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You Make Lives Better—You Can Contribute to CRI in Many Ways
· DIRECT, UNRESTRICTED DONATIONS Place your gift in the general fund and support the day-to-day activities of
CRI. Your gifts of cash, stocks, or securities help CRI conduct research that makes lives better.
· MATCHING GIFTS You can maximize your gift if you (or a member of your family) qualify for corporate matching
funds. Please check with your company to see if they participate in a matching funds program, and include a matching
gift form to double the impact of your gift to CRI.
· GIFTS IN HONOR OR GIFTS IN MEMORY You can make a gift in honor of an individual, to celebrate a special
occasion, or in memory of a deceased friend or family member. CRI will notify whomever the donor designates.
· BEQUESTS OR PLANNED GIVING CRI is grateful for your bequest gifts via wills and planned giving arrangements.
Please consider naming CRI as the beneficiary of your IRA, retirement fund, SEP, or insurance policy. We encourage you
to discuss your giving options with your lawyer or financial representative to determine how you can provide for the
future growth of CRI while maximizing your tax benefits.
· GIFTS TO TEAM CRI THROUGH THE HARBOR TO THE BAY (H2B) HIV/AIDS BIKE RIDE You can support CRI’s H2B
efforts by riding or crewing with Team CRI next year, donating to your favorite Team CRI participant, or helping recruit
sponsors. Visit www.crine.org/h2b to learn more.
A donation envelope is enclosed for your convenience.
For more information, please contact Michael Corrente at 617.502.1710 or [email protected].
DONATE ONLINE Just go to www.crine.org and click
DONATE
“There certainly are a bunch of good
causes, but I ride for CRI because the
work they do has a global impact that is
unique in the research community.”
- Mark Giese, Veteran H2B rider and CRI Board Member
Ride Day may have passed, but you can still be help CRI meet our goal at
www.harbortothebay.org/profile/TeamCRI!
o m m u n i t y
R
e s e a rc h
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n i t i a t i v e
CRI
HDAP
38 Chauncy Street
Suite 500
Boston, MA 02111-2301
tel: 617.502.1700
fax administration: 617.502.1701
fax research: 617.502.1702
toll free: 888.253.2712
tel: 800.228.2714
fax: 617.502.1703
of New England
email: [email protected]
www.crine.org
DESIGN:
C