Contents Introduction 3 Required knowledge and skills 4 Section One: Knowledge and skills for all nurses and care staff 6 Section Two: Knowledge and skills for registered and enrolled nurses 12 Section Three: Quiz 18 Introduction The weight loss framework consists of the following components: • • • • • • guidelines; flowchart; pamphlet; food & fluid intake form; weight loss & BMI chart; supporting information. Listed below are the knowledge and skills you should expect your nurses and care staff to have to enable them to provide effective care for residents with advanced dementia at risk of weight loss, and suggestions for training if an individual is not competent to provide care. Timely assessment and management of symptoms is a major component of a palliative approach to dementia care. All nurses and care staff have a responsibility to ensure they are able to assess and manage weight loss problems experienced by residents, within their scope of practice. This manual is to be used in conjunction with the ‘Weight loss decision-making framework for nurses and care staff caring for people with advanced dementia’, ‘Guidelines’ and ‘Supporting Information’. It is recommended that training be offered regularly, so that all nurses and care staff are able to master the required knowledge and skills within three months of commencing employment in the facility. Palliative Care Australia resources Palliative Care Australia have developed a number of resources to assist with training in a palliative approach to care. Use the resources (available from www.pallcare.org.au) to supplement this training package. We recommend that as many staff as possible complete the two competency-based modules in a palliative approach to care: • • CHCPA01A: Deliver care services using a palliative approach; CHCPA02A: Plan for and provide care services using a palliative approach. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 3 of 22 Required knowledge and skills All nurses and care staff • • • • • • • • • • • • • • • • have a basic understanding of the physiological changes that occur due to ageing that can affect appetite and eating; have a basic understanding of the causes of weight loss among older people, including depression, pain, dysphagia and using therapeutic diets; have a basic understanding of what a BMI measurement is; know some of the causes of undernutrition and the adverse effects on an undernourished person; understand what the common causes of undernutrition among residents in aged care facilities are; have a basic understanding of the weight loss that occurs throughout the dementia trajectory, and the effects of the weight loss on mortality and morbidity; have a basic understanding of the reversible causes of weight loss among residents; understand that weight loss due to metabolic disturbance (cachexia) in advanced disease is irreversible despite excellent care; know that aversive feeding behaviours commonly occur in residents in the final stages of dementia, and be able to complete an EdFED-Q scale for aversive feeding behaviour; know the signs and symptoms associated with dysphagia, and how and to whom to report swallowing problems; understand that aspiration of food & fluids commonly occurs during the final stages of dementia; know the correct procedures for feeding a resident, and be able to accurately complete a food intake chart; know how much fluid a resident needs to drink each day to prevent dehydration, and be able to accurately complete a fluid intake chart; understand the benefits and burdens associated with using dietary supplements for residents; know how to weigh a resident and accurately record the weight, and how to estimate the BMI from a table and accurately record the BMI; have sufficient knowledge to be able to identify when environmental and social factors are limiting the food consumed by a resident, and be able to participate in discussions related to resolving the issues. Enrolled nurses and registered nurses * NB a care staff member (eg Assistant in Nursing) may have sufficient knowledge and skills to undertake some of the tasks associated with weight loss assessment and management within this section. All of the above knowledge and skills, and: • be competent in completing a history of eating, swallowing and weight loss; and develop a nutrition care plan based on the resident’s history, cultural needs and preferences; Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 4 of 22 • • • • • • • • • • • • • • • • understand the consequences of undernutrition, describe what a healthy BMI is for an older person, and why a low BMI is dangerous; and complete a Mini Nutritional Assessment form; have sufficient clinical reasoning skills to be able to calculate the height of a resident who is unable to stand; be able to calculate the BMI of a resident; state the 4 criteria for weight loss that when found should trigger further assessment of the causes of weight loss; know the side effects of medications that might affect oral intake; understand the uses of therapeutic diets and the benefits and burdens to resident’s with advanced dementia; have sufficient clinical reasoning skills to know when an assessment for possible dehydration is needed; know the reversible causes of weight loss due to medical conditions, and have sufficient clinical reasoning skills to implement initial assessment for the conditions before seeking advice from the general practitioner; understand that cachexia is an irreversible cause of weight loss in residents with advanced disease; and have sufficient knowledge and skills to be able to discuss cachexia with general practitioners, family members and care staff, and direct the care of a resident with cachexia; know the signs and symptoms of dysphagia, and be able to direct care staff to observe for and report the symptoms; have sufficient clinical reasoning skills to know when an assessment for dysphagia is needed, and be able to either assess, or refer to a speech pathologist, according to the facility policy; know the benefits and burdens of medical interventions to provide nutrition in end stage dementia; have sufficient knowledge and skills to be able to discuss tube feeding a resident with the family members; know the basic interventions that can be implemented to potentially increase the weight of a resident; be able to collaborate with the general practitioner, speech pathologist, dietitian and/or dentist to address issues related to eating and weight loss; understand the role of the nurse in family conferences and be able to participate in a multidisciplinary family conference for a resident receiving a palliative approach to care, including determining the goals of care for the resident. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 5 of 22 SECTION ONE: KNOWLEDGE and SKILLS All Nurses and Care Staff The basic knowledge and skills required to enable all nurses and care staff to understand the assessment and management of weight loss in residents with advanced dementia are listed below. A video ‘Alzheimer’s Disease: Natural Feeding Techniques’ 1 is useful to show to all staff as part of inservice education regarding feeding and weight loss. Organise inservice education as required. Suggested topics are listed below. Ensure all registered and enrolled nurses are aware of the correct reporting and recording requirements for weight monitoring within the facility, so they can adequately supervise the work of the care staff. Can every nurse and care staff member: Name up to 5 physiological changes due to ageing that affect appetite and eating? Yes Name up to 5 common causes of unintentional weight loss in older people? Say what a BMI measurement is, and why a low BMI is a cause for concern? Name up to 5 causes of undernutrition in older people, and say what the effects of undernutrition on an older person are? No If no, then: Refer to pages 6-7 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that changes to appetite, senses, gastric motility and oral health can impact on appetite and eating in older people. Refer to pages 8- 18 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that many medications; co-morbid conditions, pain, and even using therapeutic diets can cause unintentional weight loss in older people. Refer to pages 6 & 10 of the ‘Supporting Information’. Conduct a short inservice education session if required. Emphasise that as the BMI drops, the likelihood of the death of a resident rises. Refer to pages 11-12 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that multiple factors that affect the emotional, biological and social 1 Alzheimer’s Disease: Natural Feeding Techniques was produced by the US Department of Veterans Affairs. To order, visit the Training Health & Educational Media Pty Ltd website: http://www.themedia.com.au Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 6 of 22 Can every nurse and care staff member: Yes Name 5 causes of undernutrition among residents in aged care facilities. Discuss weight loss associated with dementia? Name 4 conditions that are reversible that are known to cause weight loss among residents? Understand what the term cachexia means, and what care a resident with cachexia requires? Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: domains, as well as medical conditions, can all cause undernutrition in an older person. The effects can include slower healing of wounds, less cognitive ability and death. Refer to pages 12-14 of the ‘Supporting Information’. Conduct a short inservice education session if required. Emphasise that not identifying swallowing problems and treating them; not identifying and treating oral health problems; using pureed food; not correctly positioning residents; and not providing food that the person likes all contribute to undernutrition and weight loss among residents. Refer to pages 21-22 of the ‘Supporting Information’. Conduct a short inservice education session if required. Emphasise that weight loss occurs throughout the dementia trajectory, and the causes are unclear, but having a diagnosis of dementia makes every resident at high risk of weight loss, and these residents require careful monitoring. Refer to page 32 of the ‘Supporting Information’, and pages 18-19 of the ‘Guidelines’. Conduct a short inservice education session if required. Stress that eating will be affected by pain, constipation, infections and depression, and these can be treated so that the resident eats more and maintains weight. Also making sure the resident drinks enough will assist with keeping weight stable. Refer to pages 19-20 of the ‘Supporting Information’; pages 28-29 of the ‘Guidelines’; and the pamphlet ‘Weight loss in advanced dementia’. Conduct a short inservice education session if required. Stress that residents with cachexia no longer need to have their weight monitored; they do not feel hungry; that care staff should continue to offer food & fluids of any type that the resident enjoys and can safely swallow, without forcing the resident to eat, or worrying about the nutritional balance of the diet. Feeding in this way will Page 7 of 22 Can every nurse and care staff member: Yes Describe 3 aversive feeding behaviours that are seen in advanced dementia? Demonstrate that they can complete an EdFED-Q scale of aversive feeding behaviours? List 5-7 signs and symptoms that may indicate a swallowing disorder? Know to whom and how to report signs and symptoms associated with swallowing disorders? Describe in his/her own words the consequences to a resident of aspirating food and fluids. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: continue until a family conference results in a decision to stop all feeding, or until the resident becomes comatose. Refer to pages 23-24, & 36-37 of the ‘Supporting Information’, and page 37 of the ‘Guidelines’. Conduct a short inservice education session if required. Emphasise that aversive feeding behaviours are cumulative, and once a resident is displaying a behaviour on the EdFED-Q scale, he or she will also display all the behaviours before it (eg if displaying no 6, will also be displaying no’s 1-5). This scale can be used to assess feeding problems and track changes in feeding, and will be useful when discussing feeding problems with family members and the general practitioner. Have the staff members complete an EdFED-Q scale on one resident, and verify its accuracy. Refer to pages 24, 25 & 39 of the ‘Supporting Information’, and page 33 of the ‘Guidelines’. Conduct a short inservice education session if required. Emphasise that residents with swallowing disorders are at risk of aspiration and repeated chest infections and death; that swallowing disorders generally occur late in the dementia trajectory; and that referral to a speech pathologist is required to determine the best feeding position for the resident, and consistency of food and fluids. Refer to pages 24-27 & 39-42 of the ‘Supporting Information’. Conduct a short inservice education session if required. Emphasise that aspiration may be ‘silent’ and that staff feeding residents must be vigilant for signs of aspiration such as coughing or moist-sounding breath. Discuss with the nurses and care staff that in some residents aspiration is unavoidable, and that in these cases a family conference to consider whether to keep feeding, and whether to transfer the resident to hospital for intravenous antibiotics, is necessary. Further emphasise that if feeding is discontinued, then the resident’s goals of care are end of life (terminal) care and that mouth Page 8 of 22 Can every nurse and care staff member: Yes Describe in his/her own words the correct procedures for feeding a resident with advanced dementia and feeding problems; OR Demonstrate the correct procedures for feeding a resident with advanced dementia and feeding problems? Accurately complete a food intake chart? Accurately complete a fluid intake chart? Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: care should be attended very regularly. Conduct a short inservice education session if required, based on pages 34-40 of the ‘Supporting Information’. Show the video ‘Alzheimer’s Disease: Natural Feeding Techniques’ if available. Stress to the nurses and care staff that they need to make sure the resident is comfortable, correctly positioned, has his/her dentures, spectacles and hearing aide in place, and that the care staff member sits facing the resident, within eye contact, to undertake the feed. Position the resident so he/she does not choke. If the speech pathologist has recommended a particular position for feeding to avoid choking and aspiration then it MUST be followed at every meal and when fluids are given. Conduct a short inservice education session if required, based on page 29 of the ‘Supporting Information’. 1. Use a plate of food served to residents and vary the quantity of food on it. Have the nurses and care staff estimate how much has been ‘eaten’. A series of photographs could also be used for this exercise. OR 2. Have participants complete a food chart on one resident after a meal. An example is on page 36 of the ‘Guidelines’. Verify its accuracy by having a second person complete a chart on the same resident at the same meal. Compare the two completed charts. If the charts are very different, check the food remaining on the plate. Provide additional education to the nurses and care staff until their estimations are accurate. Ensure they know when to report uneaten meals (any time that >50% of food has been left) and how to report the uneaten meals. Conduct a short inservice education session if required. Bring the usual glasses, cups and mugs that residents use in the facility, and a jug for measuring liquids. Measure how much Page 9 of 22 Can every nurse and care staff member: Yes Understand and discuss the importance of resident’s drinking adequate amounts of fluids each day to prevent dehydration? Understand the benefits and burdens associated with using dietary supplements for residents Accurately record a resident’s weight on a weight & BMI chart? Accurately record BMI on the weight & BMI chart? Name five environmental and social factors that could limit the amount of food eaten by a resident that leads to weight loss? Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: fluid each container holds when full, using any fluid such as water, cordial or cold tea. Take a varying amount of fluid out, to simulate when a resident does not drink a full cup or glass of fluid, and have the participants estimate how much fluid has been ‘drunk’ by the resident. Measure the amount remaining and verify the accuracy of participants’ estimations. Discuss accurately filling in a fluid intake chart with the nurses and care staff. Have them practice estimating the amount of fluid consumed by part-filling the containers, until they are accurate with their estimations. Make a chart to display on the wall showing the capacity of cups and glasses used in the facility, as a reminder to the care staff. Have the care staff Conduct a short inservice education session, based on page 32 of the ‘Guidelines’. Stress the importance of the care staff regularly offering residents fluids throughout the day, unless medically contraindicated. Refer to pages 37 & 38 of the ‘Supporting Information’, and information about fluid supplements from the ‘Guidelines’ (3rd and 4th line interventions). Conduct a short inservice education session if required. Emphasise that the burdens associated with supplements, that is, reducing the appetite, not being liked by residents, the costliness of supplements, may be outweighed by the benefit to the resident, particularly for residents with cachexia. Refer to page 30-31, 35, & 33-34 of the ‘Guidelines’. Conduct a short inservice education session if required. Ask the participants to complete the charts based on the results from one resident. Check the accuracy of the entries on the Weight & BMI chart. Refer to page 34 of the ‘Supporting Information’. Conduct a short inservice education session if required. Emphasise that providing a pleasant environment for eating can be difficult in Page 10 of 22 Can every nurse and care staff member: Yes Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: an institution, but that a relaxed atmosphere, using quiet music, and having residents eat together can improve appetite and the amount of food eaten. Page 11 of 22 SECTION TWO: KNOWLEDGE and SKILLS Registered and Enrolled Nurses All registered and enrolled nurses are expected to have knowledge and skills as outlined in Section One. In addition, they should demonstrate more comprehensive knowledge and skills relating to weight loss assessment and management as outlined in this section. Organise inservice education as required. NB a care staff member (eg Assistant in Nursing) may have sufficient knowledge and skills to undertake some of the tasks associated with weight loss assessment and management within this section. 9 To assess knowledge, ask every registered nurse and enrolled nurse to complete all 20 questions of the Quiz (page 22 of this document) to provide a baseline measure before undertaking education relating to weight loss; 9 correct the quiz questions, and provide a short inservice education session relating to any topic that a number of nurses found difficult, or responded to incorrectly; 9 for an individual nurse having difficulty with a specific topic area, discuss the problem with him/her and refer to the relevant sections of the ‘Guidelines’ and ‘Supporting Information’ for review. Advise the staff member that he/she will be asked to repeat the Quiz in one month; 9 repeat the Quiz questions with the individual nurse. If the nurse still cannot correctly respond to a question(s), review the problem topic again with him/her. Discuss the issue with facility management if there is a likelihood that the knowledge deficit will impact negatively on the care of the residents, so the nurse’s performance can be monitored appropriately. Can every registered nurse (RN) and enrolled nurse (EN): • Undertake and record a history of eating, swallowing and weight loss for a new admission, or a review of a resident? • Describe where to record the history? • Develop a nutrition care plan based on the resident’s history, cultural need and Yes Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: Refer the nurse to pages 28 & 29 of the ‘Supporting Information’; and pages 6-8 of the ‘Guidelines’. Use the facility nutrition management record form and care plan. Conduct an education session if necessary. Stress the importance of regularly updating the care plan to reflect the goals of care relating to nutrition and weight loss. Page 12 of 22 Can every registered nurse (RN) and enrolled nurse (EN): preferences? • • • • Yes List 5 adverse effects of undernutrition; Describe what a healthy BMI is for an older person, and why a low BMI is dangerous; Complete a Mini Nutritional Assessment form; Answer questions 8,10,13, 14, & 19 correctly? Calculate the height of a resident unable to stand? Provide the RN/EN with a calculator and tape measure, and have him/her calculate the height of one resident in the facility who is unable to stand to be measured. The formula for calculating height is on page 30-31 of the ‘Supporting Information’; or page 30 of the ‘Guidelines’. • Calculate the BMI of a resident, and correctly document it? Provide the RN/EN with a calculator, and have him/her calculate the BMI of one resident in the facility. The formula for calculating BMI is on page 31 of the ‘Supporting Information’; or page 31 of the ‘Guidelines’. The BMI can also be calculated via the internet, or using the calculator table provided on pages 43-44 of the ‘Guidelines’ to estimate the BMI. . Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: Refer the RN/EN to pages 6, 10-14, &31 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that undernutrition, (not eating enough protein and energy), affects at least 1 in 5 residents with dementia in aged care facilities, with another 1 in 2 being at risk; that undernutrition increases the risk of dying; makes cognitive function worse; makes healing of wounds slower; and that undernutrition can be prevented by paying careful attention to feeding of residents. Once residents become cachectic however, weight loss will occur despite providing enough food & fluids. Stress that if using the MNA all residents with advanced dementia will screen as being at high risk of weight loss. Conduct a short inservice education session if required. Provide the RN/EN with other examples to practice, using the formula on 30-31 of the ‘Supporting Information’; or page 30 of the ‘Guidelines’. Stress that the height is needed to calculate the BMI, and that people shrink after age 30 so memory cannot be relied on. Conduct a short inservice education session if required. Provide the RN/EN with other examples to practice calculating the BMI, using either the formula, internet or table provided. Refer to the weight loss flowchart for information relating to interventions. Stress that the BMI is a measure of body fat that is useful when deciding if a resident is underweight. A slow decline in the BMI requires assessment to locate the cause. Page 13 of 22 Can every registered nurse (RN) and enrolled nurse (EN): • Describe what action to take if a BMI is not within an acceptable range for an older person. • List the 4 criteria for weight loss that when found should trigger further assessment; • State when the assessment should commence; • State how often residents with advanced dementia should be weighed and their BMI calculated. • • • • • • Yes List 5 side effects of medications that might affect oral intake; Answer questions 1, 3, & 9 of the Quiz correctly? Describe the benefits and burdens associated with the use of therapeutic diets for residents with advanced dementia.; Answer question 5 of the Quiz correctly? Describe the amount of fluids a resident needs to drink daily to prevent dehydration? List 4 signs of dehydration? Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: Refer the RN/EN to page 33 of the ‘Supporting Information’, or page 9 of the ‘Guidelines’, and the weight loss flowchart. Conduct a short inservice education session if required. Stress that constant monitoring, with weighing and BMI calculation monthly, is required for all residents with advanced dementia due to their high risk of undernutrition. If one of the criterion is met then that should trigger an assessment within 3 days. Weighing and BMI calculation should continue until the goals of care state otherwise. Refer the RN/EN to pages 8, 15-16 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that many medications have side effects that may affect oral intake and thus weight loss, and these medications should be avoided or or the use of them minimized whenever possible. Refer the RN/EN to page 16 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress that therapeutic diets are frequently tasteless and not pleasurable for the resident, and contribute to weight loss because the resident will not happily eat them. The resident is unlikely to benefit from being maintained on many types of therapeutic diet. The RN/EN should discuss these diets with the general practitioner, and have the GP document the reason for the diet if it is to be continued. This should be reviewed when the goals of care are discussed Refer the nurse to pages 16- 17 of the ‘Supporting Information’. Conduct a short inservice education session if required. Stress the importance of supervising and Page 14 of 22 Can every registered nurse (RN) and enrolled nurse (EN): • Answer questions 4 & 5 of the Quiz correctly? • • • • • • • • Yes List 5 causes of weight loss that are potentially reversible; State what assessments can be undertaken prior to contacting the general practitioner to assess further for these conditions; Answer questions 4 & 6 of the Quiz correctly. List 5 signs and symptoms of cachexia; Describe under what circumstances the general practitioner should be consulted to diagnose cachexia; Describe how family members of residents with cachexia can be supported; Describe what instructions they would expect care staff to adhere to if feeding a cachectic resident; Answer question 7 of the Quiz correctly? Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: encouraging the care staff to offer sufficient fluids each day, to prevent dehydration and associated conditions such as constipation, fluid and electrolyte imbalance, and urinary tract infections. Refer the RN/EN to page 32 of the ‘Supporting Information’, and pages 17-19 of the ‘Guidelines’. Conduct a short inservice education session if required. Stress that pain, constipation, fluid and electrolyte imbalance, depression, chronic infections, metabolic disorders are all potentially treatable, and if treated may stop further weight loss. Treatment will depend on the goals of care for the resident. Excellent feeding techniques are also required. Refer to pages 19-20 of the ‘Supporting Information’; pages 28-29 of the ‘Guidelines’; and the pamphlet ‘Weight loss in advanced dementia’. Conduct a short inservice education session if required. Conduct a short inservice education session if required. Provide information about cachexia, and the opportunity for participants to role-play discussing difficult topics such as prognosis and death from cachexia/dehydration. Have available a copy of the communication best practice guidelines (see Annotated Bibliography entry page 62 of the ‘Supporting Information’). Stress that between 1 in 2 or 1 in 3 residents with advanced dementia will die of cachexia; that residents with cachexia do not feel hungry; that care staff should continue to offer food & fluids of any type that the resident enjoys and can swallow, without forcing the resident to eat, or worrying about the nutritional balance of the diet. Feeding in this way should continue until a family conference results in a decision to stop all feeding, or until the resident becomes comatose; that the GP should be consulted to confirm the diagnosis of cachexia if Page 15 of 22 Can every registered nurse (RN) and enrolled nurse (EN): • • • • • • • Yes List 5-7 signs and symptoms that may indicate a swallowing disorder? Describe when to seek referral to a Speech Pathologist; Describe how the recommendations from the Speech Pathologist are relayed to the care staff and food service staff, so that the correct food & fluids, and best practice feeding techniques, are employed; Answer questions 2 & 18 of the Quiz correctly? List the benefits and burdens of medical interventions to provide nutrition in end stage dementia; State what action the nurse would take if a family member wished to discuss tube feeding a resident; Answer question 17 on the Quiz correctly. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: the person responsible is insistent that this occurs; and that the family members will need constant reassurance that everything possible is being done to provide food in this final stage of life. If the RN/EN is uncomfortable talking about issues relating to death with the family members, consider providing additional training in communication skills, or approaching a social worker, pastoral care worker, or counselor to provide additional training and support. Refer the RN/EN to pages 24-26 & 39-42 of the ‘Supporting Information’, and page 33 of the ‘Guidelines’. Conduct a short inservice education session if required. Stress that approximately 93% of residents with dementia will develop swallowing problems, and as a ‘rule of thumb’ once swallowing problems start the resident probably has a prognosis of 6 months or so. Stress that a system should be used in the facility to make sure that all care and kitchen staff know the correct consistency of food & fluids, and correct feeding technique needed for an individual resident to limit the chance of aspiration. Refer the RN/EN to pages 24-27 & 40-42 of the ‘Supporting Information’. Have a copy of the booklet ‘Making Choices’ available (see the Annotated Bibliography, page 62 of the ‘Supporting Information’ for access information). Conduct a short inservice education session if required. Stress that in almost every case, the burdens associated with tube feeding in advanced dementia outweigh the benefits. A family conference to discuss feeding issues is of benefit if tube feeding is being considered, and the general practitioner needs to be invited to participate. Note that emotional support of staff may be required when feeding issues are being discussed; and communication skills training to assist staff discuss difficult Page 16 of 22 Can every registered nurse (RN) and enrolled nurse (EN): • • Yes List 5-7 basic interventions that can be implemented to potentially increase the weight of a resident; Answer questions 11, 15 & 20 of the Quiz correctly. Describe the 3 categories of ‘goals of care’ that could apply to any resident. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual No If no, then: issues would be beneficial. Refer the RN/EN to the flowchart and sections of the ‘Guidelines’ relating to interventions. Conduct a short inservice education session if required. Stress that interventions include addressing environmental and social factors; providing enough time & assistance for the resident to eat; feeding the resident when he/she is most alert; offering food and fluids that take into consideration the individual preferences and needs of the resident; using the correct feeding techniques; and addressing medically reversible conditions that cause weight loss. Refer the nurse to page 6 of the ‘Guidelines’ for information relating to goals of care. Conduct a short inservice education session if required. Page 17 of 22 SECTION THREE: QUIZ QUIZ ANSWERS For questions 1 – 4 please circle the correct response: 1. Which of the following are causes of weight loss in older people?: a) depression; b) dental problems; c) multiple medications; d) wandering and other dementia-related behaviours; e) all of the above. See page 8 of the “Supporting Information’ 2. Which of the following is NOT a sign of swallowing difficulties?: a) coughing; b) clearing the throat; c) leaning into the table; d) protruding tongue movements. See page 25 of the “Supporting Information’ 3. In residential aged care facilities, which of the following factors diminish residents’ food intake?: a) pureed food; b) incorrect positioning; c) not enough trained staff; d) b and c; e) a,b and c. See page 12 of the “Supporting Information’ 4. Reversible causes of weight loss include: a) depression; b) chronic infections; c) metabolic disorders; d) fluid and electrolyte imbalance; e) all of the above; f) none of the above. See page 32 of the “Supporting Information’ Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 18 of 22 For questions 5 – 20 please place a tick in the box to indicate whether the statement is true or false. True False 5 Residents with dementia and co-morbid False. See conditions should be maintained on therapeutic p. 16 of the diets for as long as possible. ‘Supporting Information’ 6 Pain and constipation are common causes of lack True. See p. of appetite in residents. 32 of the ‘Supporting Information’ 7 Offering small, frequent high protein meals and False. See fluids can reverse weight loss due to cachexia. p. 19 of the ‘Supporting Information’ 8 A resident who develops pressure ulcers may be True. See p. undernourished. 12 of the ‘Supporting Information’ 9 Residents being given anti-psychotic medication True. See p. are likely to lose weight. 15-16 of the ‘Supporting Information’ 10 A resident with a body mass index of 27 is False. See p. overweight. 6 of the ‘Supporting Information’ 11 Family members think the first line intervention True. See p. for weight loss should be to improve the quality of 34 of the food offered. ‘Supporting Information’ 12 An older person has the same senses of taste and False. See p. smell as a younger person. 7 of the ‘Supporting Information’ 13 Residents who are undernourished will lose fatty True. See p. tissue before they lose muscle tissue. 11 of the ‘Supporting Information’ 14 Residents with dementia due to Alzheimer’s True. See p. disease are more likely to be undernourished than 12 of the residents with vascular dementia. ‘Supporting Information’ 15 Using soothing music in the dining room can help True. See p. residents to eat more. 34 of the ‘Supporting Information’ 16 Residents with a urine specific gravity of less than False. See p. 1.020 are dehydrated. 17 of the ‘Supporting Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 19 of 22 17 Residents with advanced dementia who have feeding tubes (eg PEG tube) are less likely to aspirate. 18 A resident with dysphagia who develops a fever may have ‘silent’ aspiration. 19 A resident with advanced dementia and a low BMI is more likely to benefit from nutrition supplements than a resident with a higher BMI. 20 Residents being given antipsychotic medication need extra sauces and gravies to moisten their foods. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Information’ False. See p. 41 of the ‘Supporting Information’ True. See p. 26 of the ‘Supporting Information’ False. See p. 38 of the ‘Supporting Information’ True. See p. 36 of the ‘Supporting Information’ Page 20 of 22 WEIGHT LOSS QUIZ For questions 1 – 4 please circle the correct response: 1. Which of the following are causes of weight loss in older people?: c) d) c) d) e) depression; dental problems; multiple medications; wandering and other dementia-related behaviours; all of the above. 2. Which of the following is NOT a sign of swallowing difficulties?: a) b) c) d) coughing; clearing the throat; leaning into the table; protruding tongue movements. 3. In residential aged care facilities, which of the following factors diminish residents’ food intake?: a) b) c) d) e) pureed food; incorrect positioning; not enough trained staff; b and c; a,b and c. 4. Reversible causes of weight loss include: a) b) c) d) e) f) depression; chronic infections; metabolic disorders; fluid and electrolyte imbalance; all of the above; none of the above. For questions 5 – 20 please place a tick in the box to indicate whether the statement is true or false. True False 5 Residents with dementia and co-morbid conditions should be maintained on therapeutic diets for as long as possible. 6 Pain and constipation are common causes of lack of appetite in residents. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual Page 21 of 22 True 7 Offering small, frequent high protein meals and fluids can reverse weight loss due to cachexia. 8 A resident who develops pressure ulcers may be undernourished. 9 Residents being given anti-psychotic medication are likely to lose weight. 10 A resident with a body mass index of 27 is overweight. 11 Family members think the first line intervention for weight loss should be to improve the quality of food offered. 12 An older person has the same senses of taste and smell as a younger person. 13 Residents who are undernourished will lose fatty tissue before they lose muscle tissue. 14 Residents with dementia due to Alzheimer’s disease are more likely to be undernourished than residents with vascular dementia. 15 Using soothing music in the dining room can help residents to eat more. 16 Residents with a urine specific gravity of less than 1.020 are dehydrated. 17 Residents with advanced dementia who have feeding tubes (eg PEG tube) are less likely to aspirate. 18 A resident with dysphagia who develops a fever may have ‘silent’ aspiration. 19 A resident with advanced dementia and a low BMI is more likely to benefit from nutrition supplements than a resident with a higher BMI. 20 Residents being given antipsychotic medication need extra sauces and gravies to moisten their foods. Decision-making frameworks in advanced dementia: Links to improved care project Weight Loss Framework Train the Trainer Manual False Page 22 of 22
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