Western Panhandle News Fall 2016 As your Family Resource Specialist (FRS), I have served with the Early Steps Program for twenty three years and know the importance of family involvement in the development and care of your child. I have experienced the joys and concerns that go with caring for a child with special needs. I am here to provide you with information and opportunities for you and your child. I can also provide you with community resources, support groups, steps for transition to Pre-K and assist with understanding Early Steps services. Please call or email for any assistance. I am here for you at your request. Your Contact for Resources, Support or to RSVP for Events: Irma Cofield Family Resource Specialist Phone: 850-416-6789 Email: [email protected] Early Steps Success Story...22 years later. Thursday’s child has far to go…. On Thursday, Oct. 14, 1993, my water This is bittersweet for son my was famibroke.August On Thursday, Dec 2, our born. His due date was supposed to be ly as we conclude our services with the Thursday, March 3, 1994.I reflect He was back born at Early Steps Program. 27 weeks, 2lbs,locate 1.3 oz.this (and yes, and regretweighing that I didn't prowhen your babyearlier. is this tiny, the 1.3 oz. gram months My toddler Sumreally matters!) He hadwas incredibly mer's improvement so greatweak that I lungs even by preemie standards, due the cannot imagine the progression if Itohad lack of amniotic fluid. He also had a rather the opportunity to contact them soonsignificant brain lostvolumes one kidney er. This, in fact,bleed, speaks ondue the to a blood clot, and a list of other concerns importance of early intervention. 6 that was ago, overwhelming. course, months my familyOf was lost, he worryspent his first weeks in ICN. (Back ing about Summer's development.then Herit was “Intensive Care Nursery”, instead speech issues were severe, the melt-of NICU). Afterfrequent, thirteen weeks downs were she he was released to go home. True form was a was unnaturally clumsy, to and heritsensoThursday, March 10th. He came home on a ry issues affected her life. I dreaded heart monitor that went off constantly. taking her anywhere in public; every Many were false alarms, but there were also day was unpredictable. After her pediasome close calls. The second night he was trician's referral to a speech therapist home, he quit breathing while I was feeding wasn't covered by our insurance, I him. As a preemie, he struggled with the found the Early Steps Program by re“suck, swallow, breathe” sequence that searching developmental delays comes naturally for most babies, which online. Much to my relief, II was discovered resulted in repeated choking. so that the Early Steps Program panicked that I didn’t think to lieassesses him flat behavioral sensory issues and open hisand airway. By the timein theaddition. EMT’s arrived, I had figured it out but was Itotally had early suspicions traumatized! Howthat wasSummer I going tohad an uncommon speech disorder known take care of this tiny, beautiful baby boy? many hours in our home working with my son and myself. By this time, trying to feed him was a traumatic experience, which few months of close observation andI dreaded and often cried through. Eleanor testing, Mary Lou, Summer's speech was a life-line! Besides with his therapist through Earlyworking Steps, concognitive and physical development, shea firmed my suspicions. Summer has helped me mix cereal with the milk until we long journey ahead with CAS, but early found a consistency that he was able to intervention is crucial for a good progswallow most Lou of the(speech), time. SheBridgette also coached nosis. Mary me on feeding techniques. Most all, she (developmental teacher), Sabreof(PT), gave me confidence. I learned to relax and and Elizabeth (OT) have made an imenjoy this beautiful experience! As the pact in her life...and mine. With their months went on, Brandon was evaluated on intervention, Summer has gone from a regular basis. In a very short time, his babbling to speaking 2 to 3 words at a delays were overcome and to everyone’s time. Her meltdowns decreased signifisurprise, he was in fact, excelling! I cantly as her eye contact and communiremember Eleanor saying she would cation through signs and clearer words probably have to dismiss him soon because came forth. It's been hardthat work for her she couldn’t show a deficit needed Summer but she enjoys her therapy seshelp. While this was, of course, amazing sions and loves the carnews, I just wanted to tell her she couldn’t ing she works with. go!!professionals How could I do this without her?We True hope to see additionto form, she restored my confidence and al improvement with Summer wewe soon we were on our own. Since as then, begin a new chapter Pre-KD have been blessed withwith manythe amazing program, in caregivers, which Early teachers and butSteps Early has Stepsguided us to. headed us down the path. It's crucial for parents to understand if My has gone He theyThursday’s have any child concerns withfar. their graduated from the University of Florida child's development, don't delay. No this a degree Cognitive and childspring is toowith young to beinhelped! My Behavioral Neuroscience. He is working on as Childhood Apraxia of Speech (CAS) family will be forever touched by Early a grant with the National Institute for Enter Early Steps. Of course, after hours of research. CASmy is son, a very Steps. Because of them, I felt compelled up for Grad by School. Brandon, had and already been identified as an Health challenging complicated speech to givewhile backhe to saves my community orHe is happy, healthy, and loving. at risk baby, but I had that no idea how itmuch disorder in children makes diffi- ganizing the first Walk for Childhood comfort the programtowould bring toproduce me and Apraxia of Speech in the Panhandle. cult or impossible accurately There is no telling how far he’ll go… my family. We had already been assessed sounds, syllaThis walk will by Lane blesMs. and/or raise funds for the and others, and words despite we werea good having Thanks assigned to Ms. understanding for the Eleanor. She of langreat came once a guage. After a week and spent NICU To Grad School…. start, Early Steps!!! Childhood Apraxia Escambia Join in our Playgroups and Workshops on various subjects: Please Call or Email Irma to RSVP for your place & childcare. Childcare is provided in playgroup setting during the learning session. Potty Training Organization Workshop Let’s Begin! It may take Time! Getting organized is the best way Signs of Readiness to be prepared in the decision making for Overcoming Difficulties Training Chart your child’s future needs! Join in to receive instructions and a notebook to get your child’s developmental and Instructions for Success! medical records organized. Presenter: Elaine Shamloo, Presented by Irma Cofield, Infant Toddler Developmental Specialist Family Resource Specialist Friday, Oct.14th 10:00 -11:00am Pearl Nelson Center 916 E. Fairfield Dr. Pensacola Playgroup at the Imagination Station Oct.4, Nov.1, Dec.6 9:30 to 11:30am: 351 Cedar St. Pensacola Located at the Blue Wahoo Stadium-Maritime Park We have reserved the center for Early Steps families only! The Imagination Station contains books, educational toys, touch screen technology and a chance for children and adults to enjoy playing and learning together. This activity center is like no other in this region and is unique to the Public Broadcast Service system nationwide. Friday, Nov. 4th 10:00-11:00am Pearl Nelson Center 916 E. Fairfield Dr. Pensacola Transition to Pre-K Come to receive step by step instructions for the Exceptional Student Education (ESE) Pre-K enrollment process. This workshop is great for parents of children that are getting ready for Pre-K transition. There will be a time for your questions and answers about the transition from Early Steps to Pre-K. Presented by Marlene McCulley, Social Worker and Angela Barnes, ESE Pre-K Coordinator for Escambia County School System Friday, Dec. 2nd 10:00 - 11:00AM Pearl Nelson Center 916 E. Fairfield Dr. Pensacola Santa Rosa & Okaloosa & Walton Please Call or Email Irma to RSVP for your place & childcare. Dates may change due to attendance! Behavior Workshop Join in to review and learn some new strategies for helping your child with challenging behavior. If a child doesn’t know how to read, we teach. If a child doesn’t know how to multiply, we teach. If a child doesn’t know how to drive, we teach. If a child doesn’t know how to behave, We…teach? We…punish? Why can’t we finish this sentence as easily as we did the others? Written by Tom Herner Play Group Opportunities at the Ace of Fort Walton Beach Join in for a fun and safe in-door play time for your child and for you to meet other parents. There are all kinds of bouncing areas, climbing spots, places to run, and jump with toddler sized gymnastic equipment. Please RSVP to Irma for your place! Entry fee will be paid by Family Involvement Funds. Presenter: Jan Young, Former ESE Pre-K Teacher and Child Find Specialist Thursday, October 20th 6:00 - 7:30PM Children’s Center 343 Holmes Blvd. NW, FWB Tuesday, Oct. 11th Tuesday, Nov. 15th Tuesday, Dec. 13th 10:30 – 11:30am 33 Tupelo Ave. SE Ft. Walton, FL 32548 Santa Rosa—Play Group Opportunities at the Fun Plex Join in for a fun and safe in-door play time for your child and for you to meet other parents. There are all kinds of climbing spots, places to run, and jump with toddler sized gymnastic equipment. You must RSVP to Irma for your place! Entry fee will be paid by Family Involvement Funds. Oct.19th, Nov.16th, Dec.14th, 10:30 – 11:30am 3123 Gulf Breeze Pkwy. Gulf Breeze, FL 32563 Support Connections ESCAMBIA & SANTA ROSA COUNTIES Apraxia Support: Jennifer Boswell 850-398-6758 or [email protected] Autism Pensacola Inc.: 850-434-7171 Website: www.autismpensacola.org Email: [email protected] 22Q.11Deletion and other syndromes linked to 22Q: Angela Helvey 520-444-9498 or [email protected] Down Syndrome Society of NW Florida: Amy 850-292-4796 [email protected], Penny 850-276-9990 [email protected] or Melissa 850-390-5786 https://www.facebook.com/pages/Down-Syndrome-Society-of-West-Florida Emerald Coast Hands and Voices: Parents of children that are deaf or hard of hearing Kay Wise [email protected] Epilepsy Parent Support Group: 850-433-1395 Website: www.efof.org Facing Forward: Parents of children with facial abnormalities; Frances Shell 850-476-2701 Pensacola Grandparents Raising Grandchildren and other Relatives: Call 850-432-1475 to confirm meeting date & location, child care provided, Reservations requested! Mended Little Hearts / Hearts of Hope: Parents of children with heart conditions: Heather [email protected] or (850) 972-8160. Pensacola Exceptional Parents Connection: Parents of Children with various exceptionalities: including Down Syndrome, Cerebral Palsy, Autism, Spina Bifida and intellectual and developmental disabilities. Angela [email protected] or 384-7330 or Amy [email protected] or 393-8808 Pensacola Parents of Multiples: Parents of twins, triplets and multiple births: [email protected] or 850-449-4208 Face-book at https://www.facebook.com/pensacolamultiples Preemies of Pensacola on Facebook: Facebook.com/Groups/PreemiesOfPensacola To connect with other families from the NICU at Children’s Hospital-Sacred Heart OKALOOSA & WALTON COUNTIES Apraxia Support: Contact Jennifer Boswell 850-398-6758 [email protected] Autism Society of the Emerald Coast: Executive Director, Brad Burnette (850) 496-3062 or [email protected] Website: www.ASECFL.com 22Q.11Deletion and other syndromes linked to 22Q: Contact Angela Helvey 520-444-9498 or [email protected] Epilepsy Parent Support Group: 850-433-1395 Website: www.efof.org If you are unable to make connection with group contact, call Irma, your Family Resource Specialist, for assistance at 850-416-6789 or [email protected] Early Steps serving Escambia, Santa Rosa, Okaloosa and Walton Counties 5150 Bayou Blvd. POB Suite 1-N, Pensacola, FL 32503 Contact information: Family Resource Specialist, Irma Cofield # 850-416-6789 [email protected] Program Manager, Debbie Goldberg # 850-416-6476 [email protected] NEW SUPPORT GROUP : PENSACOLA EXCEPTIONAL PARENT CONNECNTION (PEPC) Open to Parents of Children with varying exceptionalities including Down Syndrome, Cerebral Palsy, Autism, Spina Bifida and intellectual disabilities. Our mission is to enhance the lives of children with varying exceptionalities by providing resources, education and emotional support to families. Join in for positive support and information sharing… Meetings are the last Thursday of end month, 6:00-7:30PM ARC–Gateway-Pollak Training Center 1000 East Fairfield Dr. Pensacola, FL 32503 Contact Amy [email protected] 393-8808 or Angela [email protected] 384-7330 RESOURCES & WEBSITES: http://www.floridadisaster.org/citizen_emergency_info.htm http://www.floridahealth.gov/AlternateSites/CMS-Kids/families/early_steps/ http://www.zerotothree.org/military http://www.elcescambia.org/ParentResources.aspx http://www.elcsantarosa.com/ccrrform.htm - Childcare Services for Santa Rosa County http://kidshealth.org/parent/ http://www.zerotothree.org/child-development/ http://www.zerotothree.org/child-development/play/tips-and-tools-play.html http://www.floridadisaster.org/citizen_emergency_info.htm http://www.fdlrswestgate.org - Florida Diagnostic & Learning Resource System http://www.211nwfl.org Community Resources or Call 2-1-1 http://www.pamf.org/children/common/development/ http://www.pamfblog.org/2012/05/tips-for-successful-potty-training/ http://www.pamfblog.org/2013/11/toddler-tantrums/ http://www.pamfblog.org/2015/04/early-child-development/ http://www.pamfblog.org/2014/12/child-speech-development/ http://www.playingwithwords365.com/how-to-help-your-child-talk-the-ebook/ http://www.dsdiagnosisnetwork.org/ CIL Disability Resource Center- FAAST– Florida Alliance Assistive Services Technology: Assistive Technology is any equipment or service used to increase, maintain or improve your child’s capability to participate actively in play/work, recreation or daily living. Call or Visit the center to check out the available toys, devices and equipment. Contact FAAST for more information at 850-595-5566; [email protected] webpage www.cil-drc.org
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