messages of hope VOL. 3 2012 Philadelphia Ronald McDonald House Serving Families for Over 38 Years The Philadelphia Ronald McDonald House supports families of seriously ill children by creating a community of comfort and hope. ® Feeling At Home 4,500 Miles From Their Own When Amie, Abigail, and Cecelia return home to Liberia, they will have more than just their memories of their first trip to the United States. They will have regained the ability to walk. who is also acting as Cecelia’s guardian while in the United States. “They take good care of us. I feel good living at the Ronald McDonald House with the kids.” The three teenagers traveled to Philadelphia earlier this year to begin intensive physical therapy at Shriners Hospital through a partnership with Global Medical Relief Fund. Amie, age 17, lost both of her legs last year after being hit by a car. Abigail, 15, and Cecelia, 13, each lost one leg when they were younger after infections in their feet went to the bone. While at Shriners, they are learning to use their new prosthetic legs. “We are trying to get better every day,” says Abigail. Amie, who is staying here with her mother Taywah, agrees. “I love everything about the Ronald McDonald House.” she says. She explains that the staff, especially Social Worker Tara Duffy, are key to her positive experience at the House. “Tara is so nice. She welcomed us. She said, ‘If you want anything, you come to the front desk. I will be there for you.’ I love her. Everybody loves Tara.” After hours of daily therapy, the girls return to the Philadelphia Ronald McDonald House at Front & Erie where they are staying for the duration of their treatment. The House has helped the girls and their families feel welcome and adjust to being in an unfamiliar place thousands of miles away from their home in West Africa. “When we came, the way people embraced us, we felt like this place was our home,” says Abigail’s aunt Joanna, Tara has also been a source of support to Joanna. “She encourages you,” she says. “She helps you feel relaxed and that there is a place for every one of us here.“ Joanna especially appreciates the little touches that make a big difference when you are so far from home, such as the princess-themed party Tara coordinated for Cecelia’s 13th birthday with the support of the Hope for Henry Foundation. “She did a great job getting a nice cake for her, getting her gifts,” says Joanna.“I am so thankful for her.” For more information, visit www.philarmh.org Each year, the Philadelphia Ronald McDonald House welcomes families from all around the world. So far this year, families from twelve countries, including Liberia, have stayed at our two Houses. Health-based non-profits such as Global Medical Relief Fund are instrumental in making sure international patients like Amie, Abigail, and Cecelia get necessary medical care, and we make sure they have a place to stay and the support they need. While the girls and their families have enjoyed their time in the United States, they are of course looking forward to returning home, especially with their newfound ability to walk on their own. However, they all know they will not forget their time at the House and the people they have met while in Philadelphia. “I will miss Ronald McDonald House when I go back,” says Amie. If you would like to support families traveling miles away from home for medical care, visit www.philarmh.org to learn how to get involved. Message from the President Making Friends at the Philadelphia Ronald McDonald House When Naomi, five, and Alina, two, wake up each morning, the first thing they do is ask for each other. “Every single day, the first thing Alina asks is ‘Where’s Naomi?’ Are we going to see her today?,’”says Alina’s mom Liz Bello. The two girls have quickly become the best of friends while staying at the Philadelphia Ronald McDonald House at Chestnut Street and are now nearly inseparable. “They don’t care what they’re doing as long as they are together,” says Natalie Gushlaw, Naomi’s mom. Dear Friends, As you know, paying for the day-to-day costs of living can be a struggle. The expenses of mortgage payments, utilities, gasoline, and so much more each month really add up. For families staying at the Philadelphia Ronald McDonald House, those bills can easily become impossible to afford. Marlene Weinberg, President of the Board Two-month-old Lilly Goss at St. Christopher's Hospital for Children. That’s why we have our donor-supported Family Emergency Fund. Thanks to our supporters like you, we do more than make sure families have a comfortable place to stay close to the hospital at little to no cost. We make sure that families struggling to make ends meet as a result of their child’s illness have the support they need when they just can’t do it anymore. Our social workers work directly with families with the most pressing financial challenges to help them cover non-medical expenses and maintain their households, no matter how far away they are from home. For some, that means help with rent after a father has had to quit work to be by his child’s side. For others, it means assistance with an emergency car repair and a complimentary gas card so that a mother can make it home after a child is discharged. In very sad cases, it means the payment of funeral expenses for a family already coping with a devastating loss. The Goss family knows all too well the difference our Family Emergency Fund can make. When baby Lilly was just seven hours old, doctors transferred her from the hospital in Allentown to St. Christopher’s Hospital for Children. Born with pulmonary hypertension as well as FreemanSheldon syndrome—a rare form of the congenital disorder arthrogryposis that causes multiple joint contractures—Lilly needed more intensive treatment than she could receive at home. For more than two months, her parents Tempestt and Daniel, along with her older sister Willow, have been by her side, spending their nights at the Philadelphia Ronald McDonald House. Such a long time away from home has taken a heavy financial toll on the family, especially because Daniel and Tempestt have not been able to return to work. Because of our donors, the Family Emergency Fund has helped the Gosses pay their electric bill and also provided them with assistance for other necessities such as Daniel’s medication and diapers and clothes for the children. Tempestt and Daniel are so grateful for the support from the Fund and don’t know what they would have done without it. “Having something like the Family Emergency Fund Together, Naomi, who has cancer, and Alina, who has liver disease, have gone to a Phillies game, the Philadelphia Zoo, the Adventure Aquarium, and the mall. While at the House, they spend most of their time in each other’s bedrooms or in the playrooms. Their bond is even more impressive considering not only their age difference but that they do not speak the same language. While Naomi and Natalie are from upstate New York, Liz and Alina traveled from Puerto Rico for Alina’s care. “Alina doesn’t know English, and Naomi doesn’t know Spanish, but they know what each other want and they understand each other,” explains Liz. “I don’t know how they do it, but they do it. It’s a beautiful thing.” The girls’ mothers have also become close during their stay, something that has made a challenging time more manageable, especially when the rest of their families remain at home. “It is easier when you have someone to talk to, when you are not isolated,” says Natalie. Liz thinks so, too. “The weight is not just on one person. The weight is easier when it is over a couple people,” she says. “It is good for the girls, too, to have someone to talk to, to have a constant.” The emotional support the families’ friendship offers is complemented by the other services the House provides. “You have everything you need. You have a gym, you have laundry, you have a play area for the kids. It is as convenient as it can be to not be home,” says Natalie. “You have people here that want to make life easier for you and it’s really nice.” Liz agrees. “It feels like home,” she says. “It just feels right.” takes a ton of weight off of your shoulders and makes you know people care,” Tempestt says. We hope you will return the enclosed envelope with a donation so that you can show struggling families you care when they need it most. You can also go to www.philarmh.org and make your gift online. We couldn’t meet the pressing needs of families like the Gosses without you and are so thankful for your ongoing support. To read more about how the Philadelphia Ronald McDonald House supports families, visit www.philarmh.org/familystories Regards, Daniel and Tempestt Goss with their two-year-old daughter Willow. We are very excited to be a part of Philadelphia magazine’s 11th Annual Design Home, and would like to invite you to join us! In partnership with Bentley Homes, this year’s project will showcase a “right-sized” home. The cleverly designed 6,000 square foot estate home will marry classic elegance and highly functional living space. This year’s home is located in Newtown Square, PA and is a must see! Welcome to Our New House Manager The Design Home will be open for public tours September 14–October 14. Tickets are now on sale and are $20 each. All proceeds benefit the families we serve at the Philadelphia Ronald McDonald House. We would like to extend a warm welcome to Patty Vesper, the new House Manager of the Chestnut Street House. Patty comes to us with a 14 year background in non-profit administration. Most recently, she was employed at Council for Relationships as the Director of Administration and Human Resources. Patty will be responsible for daily operations and activities at the Chestnut Street House. Visit www.philarmh.org/DesignHome2012 for information on tour hours and to purchase your tickets in advance. TICKETS NOW ON SALE! Patty Vesper, House Manager For more information, visit www.philarmh.org 2 For more information, visit www.philarmh.org 3 Donations from the Heart, 4/1/2012–6/30/2012 Volunteer Appreciation 2012 On April 25, over 200 House volunteers gathered at The Inn at Penn for the annual volunteer appreciation celebration. The festive evening included cocktails, dinner, dancing, and friendly gaming as volunteers cashed in their Ronald McDonald Bucks for chips and enjoyed the Las Vegas style atmosphere. Thank you to The Inn at Penn and its Blue Energy Team for hosting, staffing, and providing the delicious food for the evening's festivities. Many thanks to all of the other donors who helped make the evening so special for our dedicated volunteers. Our volunteers truly are the heart of the organization, serving in so many ways to help make our Houses, Family Rooms, and Camp comfortable and supportive places for sick children and their families. For that, we cannot thank them enough! If you are interested in learning more about volunteer opportunities with the House, visit www.philarmh.org/volunteer. $25,000 and above The Children's Hospital of Philadelphia Mr. and Mrs. Ronald A. Krancer $10,000 to $24,999 CSL Behring LLC United Way of Southeastern Pennsylvania $5,000 to $9,999 Bob Palmer Memorial Fund Mr. Dries Darius Ellie Koerner Leukemia Foundation Garbose Family Foundation Mr. and Mrs. Gary Lassin Mr. and Mrs. Ronald Lassin Mr. and Mrs. Stephen Mickelberg Mr. and Mrs. James R. Sutow $2,500 to $4,999 Photos courtesy of a fresh focus photography. Be an Ambassador for the House Announcing a new approach to community outreach and fundraising! We hope you will consider joining our expanded Friends group—a network of individuals who will help organize and volunteer at special events, assist with special projects, and speak in the community on behalf of the House. There will be no membership fees or scheduled monthly meetings for members of the new Friends group. General meetings will be scheduled as needed, and leadership and coordination will be a team effort of PRMH special events staff and volunteer committee chairs. If you are an energetic and enthusiastic individual committed to the mission of the Philadelphia Ronald McDonald House, contact us today. For more information visit www.philarmh.org/Friends or contact [email protected]. $1,000 to 2,499 Aberdeen Asset Management, Inc. Abington Senior High School The Addis Group Sue Andreades Memorial Mr. and Mrs. Michael Anton Mr. and Mrs. Bruce Baron Mr. John Benbrook Coca-Cola USA Mr. Mark Washington Mrs. Marlene Weinberg The Weiser Philanthropic Fund Mr. Lee Weiss Jamil White Celebration of Life Mr. and Mrs. Sydney G. Willson III ZBI Employee Allocated Gift Fund $500-$999 The A.H. & Helen L. Weiss Foundation America's Charities Asher & Company Mrs. Regina Avallone Mr. and Mrs. Louis Barson Biolumina Blank Rome, LLP Brandywine Social Club CBS Television Stations Chabaa Thai Bistro Mr. and Mrs. Win Churchill Mr. George Davis Mr. Ted W. Deisenroth and Ms. Tracy A. Baldwin Delptron Corporation Mr. and Mrs. Joseph N. DiBello Jr. Doubletree Valley Forge Drexel University Eisner Amper, LLP Alfreda J. Fee Memorial Mr. and Mrs. Thomas P. Fee Jr. Ms. Elizabeth Field Dr. and Mrs. Robert Fox Feinberg Family Foundation Ms. Bettyanne Geikler Mr. Charles Gendron Mr. and Mrs. Ron Gentile Mr. Mark Gilbert Mr. David Goldstein Mr. and Mrs. Samuel M. Goldstein Goldsteins' Rosenberg's Raphael-Sacks, Inc. In Honor of Matthew, Jason and Adam Graubs Graduations Ms. Mabel Graf Ms. Elizabeth F. Griesser Mr. Peter Gvazdauskas Hard Rock Café Philadelphia IBM Employee Services Center Mr. and Mrs. Richard Jacoby The Jon & Mindy Gray Family Foundation Ms. Ilona Kane Mr. and Mrs. Nicholas Karamatsoukas Mr. and Mrs. Martin Kreithen, Esq. Alisha C. Levin Memorial Fund The Levinson Family Charitable Fund Mr. and Mrs. Richard A. Looker Wayne R. Looker Memorial Ms. Susan Lou Mr. and Mrs. Jon Lundy Mr. Jon Mandelbaum Mr. and Mrs. Thomas Mann Mr. and Mrs. Anthony J. Marsala Mary Mother of the Redeemer Beta Club Mid-Atlantic Family Restaurants, Inc. Nazareth Area School District Casual Day Mr. and Mrs. Bernie Nelson New Eagle Elementary School Ms. Debbie Noone Olney High School 80th Birthday Celebration Overbrook High School - 1962 Reunion In Honor of Marlene Weinberg Parec-Cyma Group ParenteBeard, LLC Parish of St. Basil the Great Philadelphia Insurance Companies Eunice Polansky Memorial Fund Dr. Andrew N. Pollack and Ms. Patricia A. Scanlon Katie Quinn Memorial Fund Miss Jaime Rigopoulos Mr. and Mrs. Christopher Roak Savran Benson, LLP Ms. Anne Scardino ScienceFirst LLC Mr. and Mrs. Dan Schwartz Haddie Slusher Memorial Springfield Lioness Club SRM Entertainment, Ltd. Mr. and Mrs. Dave Stringer Mr. Clark D. Stull Jr. Mr. and Mrs. Mark Stutman Tohickon Middle School - PI Day Mr. Michael Tornvall United Way of Delaware USTA Middle States Mr. and Mrs. Thomas Verdino Verizon Foundation Mr. and Mrs. Gene Waldman Mr. and Mrs. John C. Weisel Weixler Peterson Luzi Interior Design Wells Fargos Advisors, LLC Wilson Area School District - Key Club Mr. and Mrs. Richard Woehr Wollard, Krajnik, Masciangelo, LLP Mr. Martin Wong Haojie Yuan and Ge Yang Due to space limitations, we are unable to list donations of less than $500. All donations are sincerely appreciated. Guest Chef Groups Serve the Family Rooms Our 2011 Annual Report is now available online. Visit www.philarmh.org/AR2011 to download the 2011 Annual Report today. Philadelphia Ronald McDonald House ® For more information, visit www.philarmh.org Mr. and Mrs. Leonard Abramson Audi Willow Grove Dr. and Mrs. John J. Baldwin Mr. and Mrs. Richard Berman Delmac Dolfinger-McMahon Foundation Drexel E-Learning, Inc. Enterprise Holdings Foundation Fox Rothschild Attorneys at Law Goodman Properties Mr. and Mrs. Harvey Hoffman Mr. and Mrs. Dean Kanefsky Mr. and Mrs. Robert E. Keith Mr. and Mrs. Robert Lewis Gary Lukasiewicz Memorial Marsh Mr. and Mrs. Michael McAleer Merck Employee Giving Campaign Morphotek, Inc. Northwestern University School of Police Staff and Command Class #326 Psi Upsilon Union College Ronald Cup Mr. and Mrs. Brad Rude Heather Sartori Memorial United Way of Portland UPS Foundation, Inc Katherine "Katey" Wolgin Memorial Dorothy Coccaro Memorial Mr. and Mrs. Bob Chambers Brandon Crosby Memorial The Dale L Reese Foundation Mr. and Mrs. Bill C. Damron D'Lauro & Rodgers, Inc. Mr. and Mrs. Michael J. Emmi Employees Community Fund of The Boeing Company Mrs. Paula Epstein Mr. and Mrs. Michael L. Feinman Mr. and Mrs. Mike Ferro Mr. and Mrs. Daniel B. Forman Mr. and Mrs. Peter S. Friedman Friedman Schuman Law Office In Honor of Madeline A. Gall's First Birthday Mr. and Mrs. Michael Gall Mr. and Mrs. Morey Goldberg Mr. and Mrs. Andrew A. Goldman Mr. and Mrs. Bruce Goodman Ms. Asia Griffin Mr. and Mrs. David Horowitz ING Giving Station Keenan Auto Body KPMG Mr. Kevin Lafferty Marian Family Enterprises, LLC Marple Newtown Senior High School 2012 Walk A Thon McDonald's of Bristol Pike Mercedes-Benz of Fort Washington Milton Hershey Alumni Association Philly Chapter Monroe Township Cheerleaders Mr. and Mrs. David Montgomery The Nail Parlour National Time Systems Nolan Brothers of Texas, Inc. North Penn School District Key Club Mr. and Mrs. Harvey Ostroff Mr. Ted Pacitti Pennsylvania District Key Club International Mr. Charles Pitts PNC Financial Services Group Mr. Ross Rieder Mr. and Mrs. Jim Pogue Mr. Steven Ronson Mr. and Mrs. Marvin Rounick The Samuel D. Cozen Memorial Fund Mr. Thomas Schaible In Honor of Marylou Schmidt's Retirement Sigma Phi Epsilon Mr. Andrew Smith Dr. and Mrs. David B. Soll Toy Trains in Motion Fundraiser UBS Financial Services, Inc. United Natural Foods, Inc. 2011 Annual Report 4 Children on the Cardiac and Oncology Units are often inpatient for weeks to months at a time, and while the hospital provides food for the patients, the cost of food can get very expensive for the caregivers. Meal donations help ease this financial burden for families who choose not to leave their child’s side while in the hospital. We are so thankful for all of our Guest Chef groups who help provide meals and comfort to our families. To view a full list of all the groups and organizations that have contributed to our Guest Chef program, and to find out how you can support our meal programs at the Family Rooms please visit www.philarmh.org/GuestChef. For more information, visit www.philarmh.org For over four years, Louis and Danielle Barson of Hymie’s Deli have been generously donating plentiful breakfast trays for the families utilizing the Ronald McDonald Family Room in the Cardiac Unit of The Children’s Hospital of Philadelphia. 5 We're So Thankful For... 1 Bentley Homes "Back in Black" Event n April 19, Bentley Homes hosted an O evening of spirits, fine food, music, and good company at the Bentley residence in Newtown Square. This event previewed the Philadelphia magazine’s Design Home 2012 event, and all proceeds benefited the Philadelphia Ronald McDonald House. 2La-Z-Boy Thanks to a recent donation from La-Z-Boy, our living room at the Chestnut Street House and our lobby area at our Front & Erie House have been refreshed with the addition of new sofas and chairs. 1 3 Robert Palmer Foundation Golf Outing On May 19, the 2nd Annual Bob Palmer Golf 3 2 Outing took place at the Bensalem Country Club and raised $8,250 for the Philadelphia Ronald McDonald House. We would like to thank all of the golfers and everyone who put this amazing event together. 4th Annual Plane Pull® On Saturday, May 19, seventeen very enthusiastic teams assembled at Atlantic Aviation to participate in the 4th Annual Plane Pull® and tested their strength against a 74,000 pound private jet. Ronald McDonald started off the event by getting the pullers loose and limber with his warm-up routine, and as the morning went on, cheers from families and friends filled the tarmac. When it was all said and done, these amazing teams raised over $67,000 to support the families staying at the Philadelphia Ronald McDonald House. Thank you to the following teams for pulling for the House: Care for the Kids, Guava & Java, Marketplace Food & Shops at PHL, Morphotek MORAbs, Philly W.I.T, Pulling for PRMH, Reuters for Ronnie, Sunoco, Sunoco Logistics, Team Aberdeen, Team Permalith, Team REACH, Team Underdog, Team UPS, Team Zurich, TEAMPHLY, and Wild for RMC. Special thanks to Philly Jet Service and Atlantic Aviation for hosting the plane and venue, respectively. We also extend our appreciation to all of our in-kind donors for donating food and beverages, and special thanks to Taylor Rental Media/All Event Party Rental.com for sponsoring the event. And of course, many thanks to Sean Brace and 97.5 the Fanatic for promoting and emceeing the event. If you are interested in joining in the fun, sign up for next year’s Plane Pull to be held on Saturday, May 3 by contacting Chris Callanan at [email protected]. Don't forget to check out our video from the Plane Pull event at www.youtube.com/philarmh 14-year-old Randall Derrick, who was staying at the Front & Erie House while receiving treatment at Shriners Hospital, came to spend the day at the Plane Pull and helped select the winner of the costume contest. 4 Harley Davidson Support any thanks to our friends from the M Harley-Davidson of Long Branch for raffling off a brand new Harley Davidson to benefit Ronald McDonald Camp, and to Jersey Shore H.O.G. for supporting Camp by hosting multiple fundraisers throughout the year. 5 Tempur-Pedic 5 4 In June, Tempur-Pedic generously donated over 100 mattresses to replace all of the old mattresses in the rooms of the Chestnut Street and Front & Erie Houses. This generous donation will ensure our families have a comfortable bed waiting for them when they return from the hospital each night. 6 CSL Behring We would like to recognize CSL Behring for their efforts in fundraising for the House by hosting "Jeans for Genes" days at their office, and for choosing PRMH as the beneficiary of their company's holiday party raffle. Pictured here is Patrick Collins, Director of Public Affairs, North America, presenting a $10,000 check to the Philadelphia Ronald McDonald House. 7 The Ronald Cup On Sunday, May 20, the McDonald’s Women’s 6 7 Leadership Network of the Philadelphia Region hosted their 2nd Annual Ronald Cup. This great event brought in over $7,500 for the House. 8 Main Line Today’s Wilkie Lexus Raffle As part of the Main Line Today’s annual Best of the Main Line & Western Suburbs summer party, Wilkie Lexus donated a two-year lease on a brand new Lexus for a raffle benefiting the Philadelphia Ronald McDonald House & Little Smiles Philadelphia. The raffle winner was drawn at the summer party on July 19. Aberdeen Wealth Management team took home first prize in the costume contest with their Scottish kilt and hat outfit. Team Philly W.I.T. (Whatever It Takes) from Keenan Auto Body took home the top prize as the fastest pulling team with an amazing 11.5 second pull. Team Underdog, a group of Philadelphia Ronald McDonald House volunteers, was the highest fundraising team and brought in over $8,584. Jacobs Music Performathon 12th Annual Hit ‘Em for the House Immaculata University was the site for Jacob’s Music Third Annual Performathon, benefiting the Philadelphia Ronald McDonald House. From June 5 through June 7 over 20 piano studios from across the area came together to share their musical talents and raised over $20,000 for the families staying at the Philadelphia Ronald McDonald House. One of the special participants included Christina Ackerman, a nine-year- old from Medford, New Jersey. On the day of the recital, Christina played a beautiful rendition of the Gershwin Medley. We appreciate Christina’s support as well as all of the other students who collected donations for the families staying at the Philadelphia Ronald McDonald House. On June 4, supporters gathered at the Philadelphia Country Club in Gladwyne for a day of golf, card games, cocktails, and dinner. The support continued on June 6, as tennis players gathered at the Philadelphia Cricket Club for a mixed doubles round robin event. This annual event brought in over $177,000 for the families of the Philadelphia Ronald McDonald House. Evie and Ron Krancer, whose commitment to the friends dates back to the inception of this event in 2001, served as this year’s presenting sponsors. New in 2012, a partnership with Don Rosen’s Audi Willow Grove enabled golf participants to compete in the Audi quattro® Cup. The winning twosome received an all-expense paid trip to Pebble Beach Golf Resort to compete in the US Final. We would like to thank Don Rosen’s Audi Willow Grove for this opportunity. We would also like to extend our thanks to all of the supporters who made this year’s event so successful. To view a full list of our 2012 sponsors and in-kind donors, please visit www.philarmh.org/HEFTHSponsors. 9 SPSC Graduation Fundraiser 8 For more information, visit www.philarmh.org 8 9 We would like to thank Wendell Reed and his classmates of Northwestern University School of Police Staff and Command Class #326 for raising $3,600 and donating clothing items for our families. (No photo included.) 6 Photos courtesy of Marc David Photography. For more information, visit www.philarmh.org 7 Non-Profit Org. U.S. Postage ® Philadelphia Ronald McDonald House 3925 Chestnut Street, Philadelphia, PA 19104 215.387.8406 www.philarmh.org PAID Philadelphia, PA Permit #1891 Address Service Requested * If you would prefer to receive our quarterly newsletter electronically, please email [email protected] and let us know! “When we came, the way people embraced us, we felt like this place was our home.” continue reading on front cover For more information, visit www.philarmh.org 8
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