RESEARCH FOUNDATION YEAR IN REVIEW 2016 ABOUT US HISTORY OF THE HCF RESEARCH FOUNDATION The HCF Research Foundation, now in its 16th year, was established in 2000 as The HCF Health and Medical Research Foundation to fund health and medical research for the benefit of all Australians. In 2008, its focus shifted to health services research, an area of research that does not receive large funding dollars from other sources. In 2013, the name was simplified to the HCF Research Foundation. The HCF Research Foundation was originally established with a donation from The Hospitals Contribution Fund of Australia Limited (HCF). While HCF has continued to donate money, the HCF Research Foundation operates independently and with specific focus on funding health services research that can benefit all 24 million Australians. HEALTH SERVICES RESEARCH Health services research examines how people access health care, how much health care costs, and what happens to patients as a result of this care. OUR MISSION The HCF Research Foundation’s mission is to encourage the examination and improvement of the provision, administration and delivery of health services to effect positive changes to the health of all Australians. This is achieved by funding research projects that consider the most effective ways to organise, manage, finance and deliver high-quality care; reduce the number of errors; and improve patient safety. OUR VISION •T o be known as an independent funder of high-quality research, demonstrating that investment in research can help to improve the health of Australians. •T o be easy to deal with so that researchers are not subject to onerous requirements with regards to applications and reporting, but instead can focus on research. •T o be an organisation that helps to build the capacity of health services research by encouraging new researchers and service providers to partner with career researchers and develop sound project plans. The HCF Research Foundation funds research and study proposals that use and enhance current knowledge to improve health and health services; and improve the quality, efficiency, access to and equity of provision of health services. The HCF Research Foundation’s research program addresses the main dimensions of the health system that are of concern to HCF, the HCF Research Foundation and the community at large: achieving better health outcomes and access to affordable, high-quality health care, when and where needed. 2 HCF Research Foundation ABN 40 577 146 605 MESSAGE FROM THE CHAIR Lisa M. McIntyre Chair, HCF Research Foundation 2016 has been an exciting year for the HCF Research Foundation, with the announcement of a new international strategic alliance to develop standardised healthcare outcome measures. The aim of this partnership is to drive improvements in health outcomes for all Australians. The HCF Research Foundation has partnered with the International Consortium for Health Outcomes Measurement (ICHOM). ICHOM is an organisation that brings together experts from around the world to work together to define global standards that incorporate the patient’s perspective on treatment outcomes for common and debilitating health care conditions. The HCF Research Foundation is working with ICHOM to develop two new health outcome measures: - Pregnancy and Childbirth: to focus on achieving the best outcome at childbirth for both the mother and her newborn - Oral Health Care: our future focus to support overall health and wellbeing. There is growing evidence that poor oral health can result in poor general health and even increase the chance of chronic illness. We are also funding implementation research to drive improvements for people with osteoarthritis of the hip and knee, using ICHOM-developed tools. On top of this exciting partnership, in FY2016 we continued our successful partnerships with: - The Royal Australian College of General Practitioners - The Australian Prevention Partnership Centre - The George Institute for Global Health - Professor Adam Elshaug, HCF Research Foundation Principal Research Fellow and international expert in identifying and reducing low-value health care. While we have many research projects in progress, this year we managed to fund a further 10 teams to undertake health services research. The most recent grant recipients hail from around the nation and their projects have the potential to positively impact Australians of all ages and life stages. Projects include a low-cost accessible online program aimed at improving the mental wellbeing of women experiencing depression or anxiety during the perinatal period, through to research that addresses variations in cardiac pacemaker and defibrillator implantation complications in Australian hospitals. 100% HEALTH SERVICES RESEARCH The HCF Research Foundation is proud to be the only research foundation that commits 100 per cent of its funding to health services research. Delivery of health services is an area for improvement that is often overlooked. The HCF Research Foundation is a corporate member of the Health Services Research Association of Australia and New Zealand (HSRAANZ), and is pleased to sponsor the HSRAANZ biennial conference. International research ranks Australia’s healthcare system as one of the best in the world, and yet more must be done to face the challenges ahead. It has been an interesting year indeed, and we are extremely proud of the relationships we have developed with the health services research community to support the vision of the HCF Research Foundation to deliver positive health outcomes for all Australians. 3 FINANCIAL SNAPSHOT FUNDS COMMITTED In FY2016, the HCF Research Foundation committed $2.2 million to health services research. This comprised funds for investigator-driven grants from our Expressions of Interest (EOI) program and Commissioned Research program. Since inception, the HCF Research Foundation has committed more than $16 million to universities, research institutes and hospitals throughout Australia. HCF CONTRIBUTION The corpus of the Foundation has been funded by donations from the net surplus of the health fund. Since the Foundation’s inception in 2000, HCF has made contributions of $50 million. •• RESEARCH GRANTS ADMINISTRATION EXPENSES $2,175,439 $131,036 STATEMENT OF FINANCIAL POSITION AS AT 30 JUNE 2016 2016 ($) 2015 ($) Assets Cash and cash equivalents Financial assets at fair value through profit or loss Other receivables 352,308 49,626,237 9,173 12,315 50,532,811 11,938 Total assets 49,987,718 50,557,064 Liabilities Research grants payable Other payables 2,878,989 9,530 2,240,316 Total liabilities 2,888,519 2,254,662 Net assets 47,099,199 48,302,402 Equity Trust capital Retained earnings 1,000 47,098,199 1,000 48,301,402 Total equity 47,099,199 48,302,402 The HCF Research Foundation’s annual statutory report can be found at hcf.com.au/foundation. 4 14,346 OUR PARTICIPATING INSTITUTIONS 5 THE INTERNATIONAL CONSORTIUM FOR HEALTH OUTCOMES MEASUREMENT The International Consortium for Health Outcomes Measurement (ICHOM) is an independent not-for-profit organisation co-founded by Michael E. Porter of the Harvard Business School, The Boston Consulting Group and the Karolinska Institutet. THE POTENTIAL OF VALUE BASED HEALTH CARE ICHOM’s mission is to unlock the potential of value-based health care by defining global Standard Sets of outcome measures that matter to patients and by driving the adoption and reporting of these measures worldwide. To date, it has established 21 Standard Sets for the most common medical conditions covering approximately one-third of the disease burden in high-income economies. Standard Sets established include those for Pregnancy and Childbirth, Depression and Anxiety, Stroke, Cleft Lip and Palate, Craniofacial Microsomia and several types of cancer. ICHOM is developing Standard Sets for conditions including HIV/AIDS, Oral Health, Facial Palsy and more. GROWING MOMENTUM FOR OUTCOMES MEASUREMENT Support for ICHOM is growing rapidly as momentum gathers to measure outcomes in a patient-centred and standardised way to drive better outcomes and value in health care. Today, ICHOM lists a wide range of organisations including funders, 6 providers, governments and patient advocacy groups among its many sponsoring and strategic partners from around the world. Similarly, the number of organisations adopting ICHOM Standard Sets continues to grow, with more than 400 around the world now implementing, or measuring according to, ICHOM standards. In May 2016, ICHOM held its fourth and most successful annual conference to date. A large number of Australians participated as delegates and presenters. Dr Shaun Larkin, Managing Director of HCF, delivered a memorable keynote address on the topic ‘Private Health Plans’ Role in Driving the Journey Towards Value’, serving as a voice and thought leader for the private funder community. At the conference, ICHOM took another step towards the worldwide adoption of outcomes measurement with the launch ICHOM AND HCF In 2016, HCF entered into a strategic alliance with ICHOM — the first (and only) private funder to do so. The three-year agreement was established to realise a shared vision for the future of health care in Australia (and globally). Under this vision, the delivery and financing of healthcare services are informed by a focus on outcomes achieved and value for the patient. More specifically, HCF and ICHOM have chosen to focus their efforts on two condition areas: oral health, and pregnancy and childbirth. HCF has led the way as a catalyst and advocate for the application of valuebased healthcare principles in its region and within the private funder community. Its partnership with ICHOM has integrated it into a global network of organisations similarly advancing the value-based healthcare agenda. Organisations within this network benefit from the support of healthcare innovators and thought leaders that are working together to learn from each other. They put patient-reported outcomes measurement into action around the world, sharing and comparing their experiences and challenges. The HCF Research Foundation’s collaboration with ICHOM reflects a growing recognition that driving value in health care requires cross-stakeholder (industry-wide) engagement. ‘The value agenda is not just about providers,’ notes Michael E. Porter. ‘Health funds also have a critical role to play. HCF Research Foundation’s work with ICHOM represents both organisations’ long-term commitment to driving value, not just locally in Australia, but across health systems globally.’ Acute complications of treatment Survival & Disease Control 6 LIF E of TechHub. TechHub is an online resource that connects care providers with technology firms that have developed electronic measuring tools. These tools make the adoption of patient-reported outcomes measurement more accessible than ever to organisations around the world. 10 Patient Reported Health Status 7 BUILDING CAPACITY IN HEALTH SERVICES RESEARCH IN THE WORDS OF OUR RESEARCHERS… 8 “One of the greatest attributes of holding the position of HCF Research Foundation Professorial Fellow is the opportunity it provides to secure research grants aimed at creating sustainable health for all Australians. Recently secured NHMRC (National Health and Medical Research Council) grants ensure many more researchers are now engaged in research that will positively impact healthcare policy.” “The Australian Prevention Partnership Centre (TAPPC) is proud of the partnership that has been forged with the HCF Research Foundation, state governments, the Australian Government Department of Health and the NHMRC. Over the past three years, TAPPC has invested $9.7 million in a comprehensive program of research, and it will invest a further $9.5 million over the next two years. There are currently 35 research projects focused on delivering a preventive healthcare framework for the Australian community.” Professor Adam Elshaug Professor Andrew Wilson HCF Research Foundation Professorial Research Fellow Director, TAPPC “The George Institute for Global Health acknowledges the significant contribution the HCF Research Foundation has made to enable our organisation to fund two PhD students over a three-year period, as well as a Post Doctorate Fellow for two years. These scholarships have greatly enhanced the number of people at the George Institute focused on health services research.” “The Royal Australian College of General Practitioners (RACGP) is delighted with our affiliation with the HCF Research Foundation. Together, we have established research grants for the purpose of funding research into health services issues of relevance to general practice. Each year we provide two additional scholarships – continually increasing the number of GPs involved in research for the benefit of our patients.” Anushka Patel Professor Peter Mudge Chief Scientist, The George Institute for Global Health Patron, RACGP Foundation 9 NEWS HIGHLIGHTS NEW RESEARCH FUNDING FOR GENERAL PRACTITIONERS The HCF Research Foundation, in partnership with The Royal Australian College of General Practitioners (RACGP), has awarded $120,000 in research grants to two researchers investigating innovation in primary care. Every year, the HCF Research Foundation co-funds two research grants with The RACGP Foundation, with the aim of improving access to health services. Out of 17 applications from general practitioners and general practice registrars, the two successful applicants and their topics of research are: • Dr Tejas Kanhere and Scientia Professor Mark Harris, University of New South Wales (UNSW) – Accelerometers in monitoring physical activity in primary care • Professor Moyez Jiwa, University of Notre Dame (Melbourne Clinical School), with co-investigators Dr Alan Leeb and Dr Jonathan Darby – Informing policy for patients who have been prescribed antibiotics for an upper respiratory tract infection. Both of the winning proposals included innovative technological applications. Dr Kanhere and Scientia Prof. Harris, from UNSW, identified a practice issue in monitoring and managing physical inactivity in patients. The study aims to use the simple technology of accelerometers, or activity trackers worn on the wrist, which can provide both real-time and historical data in the form of a step count. Using a trial of 60 patients in NSW with a BMI of 25 and above, the study hopes to demonstrate accelerometers can be a useful tool in promoting physical activity in at-risk patients. 10 The second grant, awarded to Prof. Jiwa, Dr Leeb and Dr Darby, will also use technology for practice monitoring and management in relation to upper respiratory tract infections (URTIs). The grant recipients identified it can be difficult for GPs to manage the correct administration of antibiotics for patients with URTIs. Their study will facilitate real-time surveillance of patients from 10 general practices who have been prescribed antibiotics for an URTI, with the aim of enhancing the evidence-based policy on deferred antibiotic prescribing for self-limiting URTIs and also reducing the number of people prescribed antibiotics inappropriately. The HCF Research Foundation, in partnership with the RACGP, has awarded $120,000 in research grants to two researchers investigating innovation in primary care. IMPROVING CARE FOR DEMENTIA PATIENTS New research released today by the Clinical Excellence Commission shows there are significant benefits for dementia patients, carers and healthcare staff when carers and staff communicate during patient transfers. The research, funded by the HCF Research Foundation, is the second analysis of the ‘TOP 5’ communication tool. The tool involves carers sharing five important pieces of information about dementia patients with staff members so they can better understand the person they are caring for. Releasing the findings at the international health improvement conference APAC Forum, Clinical Excellence Commission Project Officer Erin Gilmore said the findings reinforced that carers were an important part of the healthcare team. ‘Our research shows there are significant benefits for staff, patients and carers when using TOP 5 while transferring dementia patients between hospitals, aged care facilities, community services and NSW ambulances,’ Ms Gilmore said. ‘Benefits include improved staff knowledge and confidence when caring for people with dementia, improved communication, increased carer satisfaction, more personalised care and reduced patient anxiety. ‘During the research, we tracked patient experiences across seven public and three private hospitals and their associated referral centres. As with our earlier research, we found overwhelming support for the involvement of carers through TOP 5.’ The study’s chief investigator Dr Karen Luxford said: ‘This is very important and timely research. The Australian Bureau of Statistics reported Alzheimer’s and dementia as the third-highest killer in Australia in 2012, and the number of people with dementia is likely to reach almost 400,000 by 2020. There is no denying that dementia is affecting more people than ever before and this research shows improved care and outcomes for this vulnerable patient group are achievable through very simple strategies.’ RECENT PROJECTS PROJECT YEAR AMOUNT FUNDED Dr Ilana Ackerman, Senior Research Fellow, University of Melbourne Feasibility and costs of implementing the International Consortium for Health Outcomes Measurement Standard Set for hip and knee osteoarthritis. 2015 $150,000 Professor Gavin Andrews, Director, Professor of Psychiatry, St Vincent’s Hospital Sydney A low-cost accessible online program that improves the mental wellbeing of women experiencing depression and/or anxiety during the perinatal period 2015 $150,500 Dr Lynette Cusack, Research Fellow, The University of Adelaide Evaluating the costs and effectiveness of reduced length of stay for planned caesarean sections 2015 $46,333 Dr Kirtan Ganda, Endocrinologist and Research Fellow, Concord Repatriation General Hospital Improving the identification and management of patients with radiographically proven osteoporotic vertebral fractures 2015 $20,000 Professor Edward Janus, Head of General Medicine, Director of Research, Western Health Standardising evidence-based interventions to shorten length of stay, reduce readmissions, reduce hospital costs and improve patient-reported outcomes for elderly patients in hospital with pneumonia 2015 $300,000 Dr Isuru Ranasinghe, Cardiologist and National Health and Medical Research Council/National Heart Foundation of Australia Research Fellow, University of Adelaide Reducing unwarranted variation in early complications following cardiac pacemaker and defibrillator implantation in Australian hospitals 2015 $250,000 Professor Michael Solomon, Academic Head and Consultant Surgeon, Royal Prince Alfred Hospital Retrospective analysis on the impact of mental health co-morbidities on key outcomes for surgical patients 2015 $85,000 Professor John Attia Reducing unnecessary test ordering 2014 $372,927 Associate Professor Roderick Clifton-Bligh Evaluation of fracture risk calculators for clinical practice 2014 $124,268 Ms Karen Demangone Paediatric & Adolescent iNsulin pump Decision Aid – a Novel Intervention (PANDANI) 2014 $50,023 Professor Alan Pearson A multi-site audit of current in-hospital falls prevention practices and assessment of the effectiveness of best practice implementation strategies 2014 $265,000 Ms Carmel Kennedy Design and implementation of an improved pre-admission assessment clinic 2014 $309,532 Associate Professor Friedbert Kohler Hospital Inpatient versus HOme-based rehabilitation after knee replacement (HIHO Study) 2014 $140,463 11 PUBLICATION AND PRESENTATION HIGHLIGHTS FY2016 MS LIZ BROAD ‘PANDANI – developing a Paediatric and Adolescent iNsulin pump Decision Aid’, Joint 7th International Shared Decision-Making and the 3rd International Society for Evidence Based Healthcare – Sydney, Australia JULY TAGGART J, LIAW S-T, YU H Structured data quality reports to improve EHR data quality. International Journal of Medical Informatics. 2015;84(12):1094-8. AUGUST SEPTEMBER ASSOCIATE PROFESSOR FRIEDBERT KOHLER Australian Orthopaedic Association 75th Annual Scientific Meeting: Brisbane, Queensland – presentation Australasian Faculty of Rehabilitation Medicine and New Zealand Rehabilitation Association Combined Rehabilitation Meeting; Wellington, New Zealand – presentation OCTOBER DR KAREN LUXFORD NSW Rural Health and Research Conference – poster presentation ASSOCIATE PROFESSOR FRIEDBERT KOHLER National Allied Health Conference: Melbourne, Victoria – presentation NOVEMBER DR KAREN LUXFORD 9th Health Services and Policy Research Conference – presentation PROFESSOR MARGARET ALLMAN-FARINELLI HSRAANZ conference – presentation DECEMBER 2015 PROFESSOR JACQUES JOUBERT ICARUSS, the Integrated Care for the Reduction of Secondary Stroke trial; rationale and design of a randomized controlled trial of a multimodal intervention to prevent recurrent stroke in patients with a recent cerebrovascular event. Int J Stroke, July 2015 vol. 10 no. 5 773-777 12 HAN A, NAIRN L, HARMER A, CROSBIE J, MARCH L, PARKER D, CRAWFORD R, FRANSEN M Early rehabilitation after total knee replacement surgery. A multicenter non-inferiority randomized clinical trial comparing a home exercise program with usual outpatient care. Arthritis Care and Research 2015; 67: 195-202. PROFESSOR IAN HARRIS Australia and New Zealand Orthopaedic Nurses Association Conference – presentation PROFESSOR WILLIAM RUNCIMAN C. Mandel, T. Schultz, A. Deakin, Z. Munn, E. Aromataris, K. Giles, A. Pearson, M. Peters, G. Maddern, W. Runciman. The use of checklists in radiology: An Australiawide cross-sectional study. RANZCR Annual Scientific Meeting. Adelaide, October 29th – 1st November 2015. [selected by RANZCR as a top 20 poster for the American Roentgen Ray Society Annual Scientific Meeting, Los Angeles, April 17-22, 2016] LIS NEUBECK, GENEVIEVE COOREY, DAVID PEIRIS, JOHN MULLEY, EMMA HEELEY, FRED HERSCH, JULIE REDFERN Development of an integrated e-health tool for people with, or at highrisk of, cardiovascular disease: The Consumer Navigation of Electronic Cardiovascular Tools (CONNECT) web application International Journal of Medical Informatics. JANUARY DR ILANA ACKERMAN (CO-AUTHOR) Publication reporting the development of the ICHOM Standard Set for Hip and Knee Osteoarthritis paper in Arthritis Care and Research FEBRUARY PARTRIDGE SR, MCGEECHAN K, BAUMAN A, PHONGSAVAN P, ALLMAN-FARINELLI M Improved eating behaviours mediate weight gain prevention of young adults: moderation and ASSOCIATE mediation results of a PROFESSOR randomised controlled FRIEDBERT KOHLER American Academy of trial of TXT2BFiT, Orthopaedic Surgeons: mHealth program. Annual Meeting: Florida, Int J Behav Nutr Phys Act. 13(1):44. 4 USA – presentation MARCH APRIL DR ILANA ACKERMAN (CO-AUTHOR) Invited poster presentation at the ICHOM international conference, London DR KAREN LUXFORD Carers NSW Conference – poster MAY ALLMAN-FARINELLI M, PARTRIDGE S, MCGEECHAN K, ET AL. A Mobile Health Lifestyle Program for Prevention of Weight Gain in Young Adults (TXT2BFiT): Nine-Month Outcomes of a Randomized Controlled Trial. JMIR mHealth uHealth 2016 4:e78. JUNE 2016 PARTRIDGE S, ALLMAN-FARINELLI M, MCGEECHAN K, BALESTRACCI K, WONG A, HEBDEN L, HARRIS M, BAUMAN A, PHONGSAVAN P Process evaluation of TXT2BFiT a multicomponent mHealth randomised controlled trial to prevent weight gain in young adults. Int J Behav Nutr Phys Act. 13:7. PROFESSOR MARGARET ALLMAN-FARINELLI University College London Digital Health conference 2016 – presentation. PROFESSOR WILLIAM RUNCIMAN C. Mandel, T. Schultz, A. Deakin, Z. Munn, E. Aromataris, K. Giles, A. Pearson, G. Maddern, M. Peters, W. Runciman. Checklist use in PROFESSOR IAN radiology: an AustraliaHARRIS wide cross-sectional International Congress study. European for Joint Reconstruction Congress of Radiology. Australia – presentation Vienna. J. MULLEY, J. REDFERN, L. NEUBECK, G. COOREY, D. PEIRIS A consumer-focused e-health strategy for cardiovascular risk management in primary care: the Consumer Navigation of Electronic Cardiovascular Tools (CONNECT) study. Primary Health Care Research Conference, Canberra, 2014. PROFESSOR MARGARET ALLMAN-FARINELLI International Congress of Obesity 2016 MAY ASSOCIATE PROFESSOR FRIEDBERT KOHLER 10th World Congress of the International Society of Physical and Medical Rehabilitation: Kuala Lumpur, Malaysia – presentation 13 THE BOARD Lisa M. McIntyre Claire L. Jackson Helen Lapsley Shaun M. Larkin B.Sc (Hons), PhD, GAICD MBBS, MD, MPH, CertHEcon, GradCert Management, FRACGP, FAICD BA MEc FCHSM HlthScD, MBA, MHSc, BHA Director Director Prof. Lapsley was appointed to the Board of Directors of the Corporate Trustee in 2015. Mr Larkin, the Managing Director of HCF, was appointed as a Trustee in 2010 and has been a Director of the Corporate Trustee since its registration in 2015. Director Ms McIntyre was appointed as a Trustee in 2013, became Chair in March 2014 and has been a Director of the Corporate Trustee since its registration in 2015. Director Prof. Jackson was appointed as a Trustee in 2013 and has been a Director of the Corporate Trustee since its registration in 2015. MANAGEMENT M. E. Rummery AM Russell J. Schneider AM John Yu Wayne Adams B.Univ (Hons) SCU GAICD AC, MB, BS, FRACP, FRACMA BMath Director Director Director Manager Ms Rummery was appointed as a Trustee in 2009 and has been a Director of the Corporate Trustee since its registration in 2015. Mr Schneider was appointed as a Trustee in 2006 and has been a Director of the Corporate Trustee since its registration in 2015. John Yu was appointed as a Trustee in 2013 and has been a Director of the Corporate Trustee since its registration in 2015. Wayne Adams is the manager of the Foundation. Full details of the Directors’ skills, experience and expertise can be found at hcf.com.au/foundation 14 AUSTRALIAN CHARITIES AND NOT-FOR-PROFITS COMMISSION AUSTRALIAN CHARITIES AND NOT-FOR-PROFITS COMMISSION The Australian Charities and Not-forprofits Commission (ACNC) commenced on 1 July 2013 and now regulates approximately 54,000 charities, including the HCF Research Foundation. Its purpose is to maintain, protect and enhance public trust and confidence in the sector through increased accountability and transparency. AUSTRALIAN COMPETITIVE RESEARCH GRANTS REGISTER The HCF Research Foundation’s Health Services Research Grants Program is listed on the Australian Competitive Grants Register. The register lists granting schemes that provide competitive research grants to higher education providers. The income received by these providers from schemes listed on the register is used in allocating the Australian Government’s Research Block Grants. 15 hcf.com.au/foundation
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