IN TOUCH FROM THE LEARN IT FAMILY OF COMPANIES HELPING ALL CHILDREN SUCCEED IN SCHOOL AND LIFE Newsletter WHAT ARE THE HALLMARKS OF A QUALITY ABA PROGRAM NOT ALL ABA PROGRAMS ARE CREATED EQUAL Page 3 NAVIGATING THE COMMUNICATION WATERS Understanding the options for non-verbal children. Page 7 EVIDENCE-BASED PRACTICE How to identify high-quality research in the field of autism. Page 9 CREATING SUCCESSFUL PLAY DATES Preparing for a play date and having it go as planned can be a challenge. IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 1 1 11/17/16 9:41 AM IN TOUCH Newsletter Helping All Children Succeed in School and Life Autism Spectrum Therapies (AST) Provides Applied Behavioral Analysis (ABA) services to individuals with autism in schools, home and communities in Arizona, California, Illinois, Louisiana, Michigan, New Mexico and Washington. IN THIS ISSUE 2550 N. Hollywood Way, Suite 102 Burbank, CA 91505 866-727-8274 autismtherapies.com Page 3 Page 5 Page 7 Page 9 NAVIGATING THE COMMUNICATION WATERS Understanding the options for non-verbal children. HALLMARKS OF A QUALITY ABA PROGRAM Not all ABA programs are created equal. EVIDENCE-BASED PRACTICE How to identify high-quality research in the field of autism. CREATING SUCCESSFUL PLAY DATES Preparing for a play date and having it go as planned can be a challenge. Trellis Services Serves children with autism through home, school and community programs based on the principles of Applied Behavioral Analysis (ABA) and Verbal Behavior (VB) in Maryland. 14550A York Road, Sparks, MD 21152 443-330-7900 trellisservices.com Desert Choice Schools Arizona private day school that provides fully-managed, self-contained classrooms for students with emotional disabilities and behavior-related challenges. 4525 S. College Ave., Tempe, AZ 85282 480-398-1994 desertchoiceschools.com Beach Cities Learning BCL is a full service Non Public School in Southern California which offers a full academic curriculum, as well as a variety of specialized educational, vocational, and extracurricular activities to serve students with a variety of disabilities and learning challenges. Beach Cities Learning 500 W. 190th Street, Suite 220 Gardena, CA 90248 310-546-4109 beachcitieslc.com Light Street Special Education Solutions Offers both telepractice services and on-the-ground special education services nationwide. We partner with schools to improve the quality and efficiency of services provided to children with special needs. © 2016 Learn-It Systems LLC 3600 Clipper Mill Rd., Ste. 330 Baltimore, MD 21211 866-986-0008 lightstreetsolutions.com Learn It Systems - Academic Intervention Provides academic intervention programs, professional development and parent engagement to public and private schools nationally to meet Title I requirements. 3600 Clipper Mill Rd., Ste. 330 Baltimore MD 21211 1–877-576-4824 410-369-0000 learnitsystems.com IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 1-2 2 11/17/16 9:41 AM motor, imitation, and discrimination skills. For example, fine and gross motor skills are essential for sign language and some speech-generating devices. As the vocabulary of a child grows, the complexity of the sign can lead to an increase in required coordinated fine and gross motor movements. Sign Language Navigating the communication waters Parents of children with special needs are faced with many challenges. Having a child with a disability leads to a crash course in law, education, medicine, and behavior. Parents become well versed in the general information found in each area and become experts in the areas specific to their child. The wealth of information can be difficult to navigate particularly when the content is filled with jargon, which essentially forces a parent to learn a new language. To add a further layer of complexity, the growth of awareness and application of resources leads to new laws, curriculums, medicine, and behavioral treatments to learn. When it comes to choosing the method a non-vocal child communicates, it may be assumed to be an area that is best addressed through the services of a speech language pathologist and special educator. Although this may be true in some instances, a different approach may be necessary. When considering an augmentative and alternative communication (AAC) system (e.g., picture exchange, speech-generating devices, sign language), a multi-disciplinary team approach is necessary to truly “The single biggest problem with communication is the illusion that it has taken place” -George Bernard Shaw maximize a child’s communication potential. Without this approach, the choice of AAC system can appear to be effective for the child or it can be a choice that gives the illusion of effective communication. Unfortunately, many situations arise where the decision is made and the parent is not aware of all the options, or the benefits and shortcomings for each communication modality. AAC & Verbal Behavior Alternative and augmentative communication system is a term that encompasses different communication methods used as a substitute or supplement for a child’s voice. AAC is not a substitute to verbal behavior, which is a behavioral approach to communication, rather 3 IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 3-4 it is a tool for the child to communicate to different people effectively. A choice between an AAC system and verbal behavior should not be presented because they work in very different ways. One essential difference between AAC and verbal behavior is found in form vs. function. Augmentative and alternative communication looks at “how” something is being said or the form of the response, where verbal behavior looks at “why” a response is being made. Verbal behavior looks at the function of communication. More specifically, it looks at the effects the communicator has on the listener. If someone says, “Can you hand me a pencil”, the statement will lead to the listener grabbing a pencil and giving it to the speaker. Verbal Behavior A person can request a drink in many different ways. If the person is at a baseball game and hears the vendor yell “soda”, they will wave their hand until the vendor sees them, which leads to the vendor walking the soda over to the person. The hand waiving functioned as a way to say, “I would like a soda”. If a person wants a soda at a restaurant, they will use their voice and say, “I would like a soda”. If a person is at a food kiosk, they may select a picture of a soda to add to their order. That picture communicates, “I would like a soda” to the person preparing the food. At work one coworker goes to lunch while the other stays back. The person that stays back sends his coworker a text message, “Can you get me a soda?” All four examples have the same function and illustrate different types of behavior to communicate a request. The way each response looks, or the topography of the response, changes based on the environment. What does not change is the purpose, or function, of communication. Teaching the purpose of communication using the principles of verbal behavior allows for a choice in AAC based on what would be most effective for the child. A closer look at AAC systems Many factors need to be considered when choosing AAC system. Areas to examine are fine and gross Often times sign language will rely on finger spelling which involves a rapid fine and gross motor movements in a short period of time. Additionally, because the person who teaches sign uses demonstration or modeling, the child learning signs needs to have strong imitation skills. One of the biggest benefits of sign language is also its drawback. Sign language allows for the ability to communicate in all environments because your hands are always with you. Unfortunately, most people do not comprehend sign language. This reduces the probability of the communicator having an effect on the listener. Speech-generating devices and picture exchange With speech-generating devices and picture exchange, a strong ability to discriminate across different examples and non-examples is necessary. Both speech- generating devices and picture exchange systems hold the child’s vocabulary, with picture exchange typically housing the child’s vocabulary in a book. The child must navigate the device or book to communicate. As a child navigates through their system they have to identify which pictures or icons are representative of what they want to say. With some children the device or book may contain hundreds of other pictures or icons from which they have to choose from. If a child does not have strong discrimination skills, a high probability of committing communication errors exists and may inhibit spontaneous communication. Lastly, speech-generating devices are not very portable and devices may fail (e.g., software crash, defective battery). This can lead to a child being without their communication modality for extended periods of time. With picture exchange, pictures get lost all the time. If the parent, caregiver, teacher or speech language pathologist is not constantly taking an inventory of the pictures, the child may potentially be missing pictures they use to communicate. A child learning a new word creates the need to add a new picture. This also poses a problem due to the inability to communicate the new word until the picture is made and added to their book. Consider time & place When selecting a communication modality, the environment and the audience also need to be considered. When the parents consider a “multimodal” communication system, an examination of the modalities available in specific environments should be made. For example, if a child uses a speech generated device to request bathroom the child would not be able to request the bathroom if they are swimming. In this instance the child would need to be taught the sign for “bathroom”. Supporting spontaneous communication Perhaps the most important factor to consider is spontaneity of communication. Many AAC require the listener to act as a facilitator once a communication attempt has been made. If a child approaches a staff member pointing to an item, the staff typically says, “What do you want”. This leads to the staff doing some detective work to figure out what the child wants. Although this may be acceptable when first teaching communication, the child needs to engage in spontaneous communication once a basic foundation has been established. The child needs to be able to say, “I am thirsty” or “can I have a drink?” Spontaneous communication is the most important but most overlooked factor when choosing a modality. The end goal is for the child to be as independent and fluent as possible. Weighing the options Prior to selecting a communication modality, a parent should take some time and examine the child’s strengths and limitations. Strengths in fine and gross motor and imitation would suggest sign language as the most effective method of communication. If a child does not have strengths in fine and gross motor but can make discriminations in a large field, then a speech generated device or picture exchange may be the most effective way to communicate. Get help When analyzing the best match for your child’s needs and abilities, enlist the help of your team. Ideally, an analysis needs to be placed on the different assessments provided by each discipline (i.e., occupational therapy, speech-language therapy, education) to decide which communication modality is best and what alternative modality would be best taught in certain environments. Parents can then utilize the data and establish the goal of independent and fluent communication. Identifying the child’s strengths and limitations while knowing the benefits and shortcomings of each AAC system allows parents to prevent the illusion of communication and best support their child’s success. meet the author Reyes W. Vera, M.S.Ed., BCBA, LBA Reyes is the Educational Director at the Trellis School in Baltimore. He is a Licensed Behavior Analyst in the state of Maryland who has been working with children with autism since 2000. IN TOUCH NEWSLETTER 4 11/17/16 9:41 AM OF A QUALITY ABA PROGRAM focus on skills from a variety of domains to address the client’s needs, including language/communication, social skills, self-help/independent living skills, play skills, self-management, coping/tolerance, safety skills, and behavior problems. Parents and caregivers play an important role in selecting goals to be targeted and should be sharing their major concerns and future goals for their child with the BCBA. 4. Lots of Rewards: Individuals receiving ABA treatment should be receiving rewards frequently. For desirable behaviors to increase, they must be reinforced (rewarded). This is not the same a bribing your child and it does not mean that children should be given overdoses of candy every session. Rewards can be anything from praise to tickles to tokens to activities to toys and so on. The important thing is that the reward is truly something the child enjoys at that moment. 5. Treatment Plans for Challenging Behaviors: A quality ABA program does not just teach new skills but also addresses challenging behaviors that are a concern. A behavior reduction plan should be created by the Parents play a very important role in the ABA team. They know their children better than anyone WE KNOW THAT ABA HAS BEEN ESTABLISHED AS THE MOST EFFECTIVE TREATMENT FOR INDIVIDUALS WITH AUTISM. HOWEVER, NOT ALL ABA PROGRAMS ARE CREATED EQUAL, AND AS A PARENT NEW TO THE WORLD OF ABA, IT CAN BE VERY DIFFICULT TO DETERMINE WHETHER OR NOT YOUR CHILD IS RECEIVING APPROPRIATE AND QUALITY ABA TREATMENT. HERE ARE A FEW HALLMARKS OF A QUALITY ABA PROGRAM THAT YOU SHOULD LOOK FOR. 1. Individualization: ABA programs are not cookiecutter programs. And therefore, one size does not fit all. Changes are constantly being made as the BCBA reviews the data and observes whether or not the current treatment is effective. If a child is having difficulty mastering goals, the BCBA should introduce new strategies to help them learn more quickly. As goals are mastered, new goals should be introduced. This requires paying close attention to the program. 5 2. Data Collection: ABA is a science which means it is objective. In order to be objective, accurate data must be collected consistently. The direct interventionist should ALWAYS be collecting data. The BCBA should be reviewing graphs of the data regularly. Program decisions should be made based on the data. 3. Meaningful Goals: ABA programs target a wide range of goals that are meaningful to the individual, their family, and even society. A quality ABA program will BCBA based on the function of the behavior (the reason the behavior occurs) and should include teaching functional behaviors and communication to replace the challenging behaviors. If the individual does not engage in challenging behaviors, then clearly there is no need for a behavior reduction plan. However, if he does engage in challenging behaviors, they should be addressed in the program. Again, data will need to be collected and analyzed regularly to ensure the treatment plan is effective. If the individual engages in numerous challenging behaviors, one or two of the most serious behaviors should be targeted first. Once those behaviors are under control, the next priorities can be addressed. Attempting to implement several behavior reduction plans at one time will likely be ineffective. 6. Maintenance and Generalization: Individuals with autism can master many skills quickly when receiving ABA therapy, but they can lose those skills just as quickly if they are not practiced. A quality ABA program will have a system in place for periodically targeting goals that have been mastered to ensure that they are maintained and not lost. Likewise, there should be a system in place to ensure skills are generalized. If a child can tell his interventionist that his red bouncy ball is a ball 100% of the time while sitting at the table in his bedroom, it does not mean he has mastered the concept of “ball.” He should be able to identify a variety of different balls (football, baseball, basketball, etc.) with numerous people (mom, dad, teacher, etc.) in multiple settings (backyard, park, school, etc.). A quality ABA program will ensure generalization of skills before deeming them mastered. 7. Parent Involvement: Parents play a very important role in the ABA team. They know their children better than anyone, and they have valuable information and insights about their children that can be crucial for developing an effective program. The entire team (including parents) should meet regularly to discuss progress toward goals, what has been working, what has not been working, what new concerns have arisen, etc. Parents should always be informed of their child’s progress and know what their child is learning. A quality ABA program will also teach parents how to incorporate ABA principles into their everyday routines so they can promote maintenance and generalization of skills and manage problem behaviors on their own. 8. BCBA Supervision: A quality ABA program must be developed and supervised by a Board Certified Behavior Analyst (or an individual working toward becoming a BCBA who is overseen by a BCBA) and must be based on evidence-based practices. The BCBA supervisor should observe the ABA sessions in person on a regular basis. They should provide coaching to the interventionist and parents and make changes to the program as necessary. The amount of face to face supervision will vary with the size of the client’s program, but should not be less than once per month. We hope this information helps you to recognize and support the best services for your family. If you find yourself concerned that any of these hallmarks are lacking in your child’s program, talk to your BCBA. Always remember, that you as a parent are the most valuable member of the team! meet the author Kelly Namanja, M.A., BCBA Kelly Namanja is AST’s Clinical Director for Chicagoland. She is a Board Certified Behavior Analyst and a Midwest native. IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 5-6 11/17/16 9:41 AM EVIDENCE BASED PRACTICE What in the world is a systematic review? Glad you asked. A systematic review is a collection of empirical research articles that are reviewed by a researcher or research group. The review typically includes a rating the of the quality of science in each study. That is, the researchers develop a way to measure whether or not the study was well designed and carried out or was not well designed or carried out. The researchers then determine the impact of the treatment/intervention on the participants in the study. Researchers may develop a rating indicating how much participants benefited from the treatment. Once researchers evaluate the quality of science and impact of treatment, they summarize the results. These summaries make it easy for professionals and family members to interventions to meet the needs of your family. If you have home-based staff assisting with intervention implementation, ensure they have training to effectively use scientifically supported interventions. Recommended websites: National Professional Development Center http://autismpdc.fpg.unc.edu/evidence-based-practices National Autism Center http://www.nationalautismcenter.org/national-standards-project/phase-2 A systematic review is a collection of empirical research articles that are reviewed by a researcher or research group. BY NOW, MANY PEOPLE HAVE HEARD OF THE TERM “EVIDENCE-BASED PRACTICE” (EBP). MANY PROFESSIONALS IN AREAS SUCH AS HEALTHCARE AND EDUCATION USE THE TERM EBP. A CLINICIAN OR PRACTITIONER IS ENGAGING IN EBP IF HE/SHE IS MAKING USE OF HIGH-QUALITY RESEARCH IN THEIR SPECIFIED AREA, THEIR find results of a multitude of studies in one place. A number of recent systematic reviews regarding behavioral and educational interventions for individuals with autism have been published. See below for links to websites providing access to the results of two systematic reviews. CLINICAL JUDGMENT BASED ON EXPERIENCE WITH CERTAIN POPULATION, INTERVENTION, OR PROGRAM, AND TAKING INTO CONSIDERATION THE VALUES AND PREFERENCES OF THEIR CLIENT/STUDENT AND THEIR FAMILIES. EBP IS NOT ONE THING BUT A FRAMEWORK THAT GUIDES THE PRACTICE OF PROFESSIONALS. How does a person identify high-quality research in the field of autism treatment? It can be hard for people to keep up with the very active literature of autism treatment (e.g., behavioral interventions, educational interventions, medical interventions, etc). So 7 what is a family member to do when attempting to find research supporting a particular autism treatment/intervention? One way professionals and family members can remain informed about high quality research in the area of autism treatment is to read systematic reviews on the subject. What do you do with this information? Once you review the results of a systematic review, you can make informed decisions regarding the treatment/ intervention programs for your loved one with autism. For example, use this information when meeting with the professionals working with your family member with autism. Ask professionals about their knowledge of interventions supported by quality scientific research and how to tailor these meet the author Hanna Rue, Ph.D., BCBA-D Hanna is a Director of Research and Development for AST. She is a Licensed Clinical Psychologist in Massachusetts and a Board Certified Behavior Analyst. IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 7-8 11/17/16 9:41 AM GET Creating Successful Play Dates For a child, afternoon and weekend hours can be an ideal time for a little adventure or bonding with a friend. Play dates have become a regular practice for most parents who want to make the most of their child’s free time. These coordinated get togethers can also be a great way to help your child practice social skills, play skills, and communication skills with peers in a safe and structured setting. Preparing for a play date and having it go as planned can be a challenge for many families with a child who has special needs. Here are some tips for creating a successful play date. Be thoughtful about the invitation Choose a child who is close to your child’s age and displays age appropriate communication, social, and play skills. The peer should be able to play cooperatively and be flexible. It can be helpful if the child enjoys giving lots of help and suggestions to friends. Your child’s school, neighbors, or members of your religious congregation may be able to connect you with peers. Pre-teach the activities to your child Prepare your child for the play date by practicing the planned activities in advance. Try role playing and pretend to be the other child. Consider what you want your child to learn during play dates Play in and of itself is valuable but it is also an opportunity to learn new skills. Having clear goals will increase the likelihood that specific skills can be practiced during play dates. Have two or three specific goals (e.g. taking turns, asking questions, responding to questions, changing play activities appropriately), and consider taking notes on how your child did on each goal. 9 Autism Community Resources Keep it short You may want to stick to 30 minutes for first few play dates. The 30 minutes can be further broken down into several 10-15 minute activities. Make sure transitions between activities are short and smooth. Facilitate the play and provide reinforcement Encourage cooperative play and guide the children to interact with each other. Provide frequent treats and praise as reinforcement for positive interactions. ALL AUTISM TALK allautismtalk.com THE BLOG POST Champion a Child Consider activities where the children need to work together, problem solve, and share the same materials. Treasure hunts are great activities - hide toys and treats around the house and give the children a map to the treasures. Art projects are also fun with friends - make a collage, paint a poster or mural. Yard games to try are Freeze Tag, Hide and Seek, Red light Green Light. Have fun! Our podcast offers a friendly conversation with leaders in the autism community. Guests include experts and authors in the field of autism as well as inspiring advocates and community groups. ALL AUTISM NEWS Suggested activities Plan the activities ahead of time Choose activities which both children will enjoy. Some great options are activities that are structured, organized and require some level of cooperation. Planning this way can help make the time fun and special for all. CONNECTED: allautismnews.com We all can recall a moment where a teacher, a family member or someone in our community made a difference in our lives. As parents and professionals working with children with special needs, we see opportunities every day to make a profound difference for a child. We are also honored to witness the passionate and dedicated individuals who rise to the occasion. Champions are most commonly seen in the fierce determination and strength of the parents who work tirelessly to ensure their child’s rights are honored, their needs are met and their therapy schedule is adhered to. We see champions in the faces of therapists, interventionists and supervisors who passionately execute their job not only with clinical excellence, but with love. Champions can also come in the form of young siblings who play with, defend and celebrate their special needs siblings – enlisting advocates in their classrooms and on the playground. Get plugged in to the latest news, research, legislation and technology affecting the autism community through the All Autism News bi-weekly newsletter. And then their are our kids and adults with autism who teach us every day that they are extraordinary, brave, different (but not less), intelligent, loving, funny, kind…and uniquely wonderful. ALL AUTISM VIDEOS For all of us who know how profoundly changed we have been to know or witness a champion, let this be our mission. May we help bring awareness to the needs of all kids, so that others can know what we know, and they too can champion a child. “Every child deserves a champion—an adult who will never give up on them, who understands the power of connection, and insists that they become the best that they can possibly be.” -Rita Pierson allautismvideos.com Our video library provides quick tips to your pressing questions in friendly and educational 3-minute segments. AST BLOG autismtherapies.com/blog Just as no two children with autism are the same, neither are the interests, priorities or needs of their family. AST’s blog page offers a variety of voices and perspectives. Visit us online at autismtherapies.com IN TOUCH NEWSLETTER AST-InTouch-News_FALL2016_f1.indd 9-10 11/17/16 9:41 AM AST & TRELLIS SERVICES We are proud to celebrate more than 15 years of serving the autism community. Along with our partners, AST and Trellis serve families across the country, providing services in-home, at school, and in the community. AST and Trellis are part of the Learn It Family of Companies. Helping all children succeed in school and life. AST-InTouch-News_FALL2016_f1.indd 11 2550 N. Hollywood Way, Suite 102 Burbank, CA 91505 Phone: 866-727-8274 14550A York Road Sparks, MD 21152 Phone: 443-330-7900 Serving: Arizona, California, Illinois, Louisiana, New Mexico, Michigan and Washington Located in Sparks and serving the greater Baltimore area www.autismtherapies.com www.trellisservices.com 11/17/16 9:41 AM
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