An Inconvenient Truth: A Sustainable Healthcare System Requires Chronic Disease Prevention and Management Transformation INVITED ESSAY Matthew W. Morgan, MD, MSc, FRCP(C) Partner, Courtyard Group University of Toronto University Health Network Nicholas E. Zamora, BSc Pharm, MBA, CHE Specialist, Courtyard Group Michael F. Hindmarsh, MA President, Hindsight Healthcare Strategies Affiliate, MacColl Institute for Healthcare Innovation, Group Health Cooperative, Seattle, Washington ABSTRACT Canada’s initial success at shortening wait times will not transform our healthcare system unless it is matched with equal success in the prevention and management of chronic diseases. A growing body of evidence highlights the significant gap between recommended care and actual care received for those at risk for or living with chronic illnesses. This quality gap not only results in significant preventable morbidity and mortality but also lengthens wait times for healthcare services and threatens the sustainability of our healthcare system. 6 An Inconvenient Truth A national strategy on chronic disease prevention and management (CDPM) that leverages the federal, provincial and territorial (FPT) response to wait times will not only transform chronic illness care but also help to ensure the sustainability of our healthcare system. We begin this paper by highlighting some of the facts behind this inconvenient truth. We then review and provide examples of several best practices in CDPM. We suggest that these best practices provide the foundation for a national CDPM strategy and argue that the FPT mandate for wait times be expanded to encompass CDPM and result in “care guarantees.” We conclude with a high-level preliminary analysis of costs and benefits of this strategy to transform CDPM in Canada. The Inconvenient Truth: The Burden of Chronic Disease It is an inconvenient truth that Canada’s initial success at shortening wait times will not transform our healthcare system unless it is matched with equal success in the prevention and management of chronic diseases. It is also an inconvenient truth that it is only a matter of time before someone in Canada living with a chronic disease successfully makes the case that he or she unnecessarily suffered as a result of inadequate care received from a healthcare system that is not meeting the minimum standards in chronic disease prevention and management (CDPM). As a country, we must not wait for the CDPM equivalent of the Chaoulli case (2005). A national strategy on CDPM that leverages the federal, provincial and territorial (FPT) response to wait times will not only transform CDPM but also help to ensure the sustainability of our healthcare system. We begin this paper by highlighting some of the facts behind this inconvenient truth. We then review and provide examples of several best practices in CDPM. We suggest that these best practices provide the foundation for a national CDPM strategy and argue that the FPT mandate for wait times be expanded to encompass CDPM. We conclude with a high-level preliminary analysis of costs and benefits of this strategy to transform CDPM in Canada. Although Canadians are generally living longer and healthier lives, many of us are living with multiple chronic diseases. These two statements may seem contradictory, but they are not. As our population ages and as medical advances continue to convert acute life-threatening diseases into chronic illnesses, our healthcare system is challenged to meet the growing burden of chronic disease. The vast majority of patients in the healthcare system today are people living with one or more chronic diseases. To quantify the extent of the problem, it is estimated that more than half of all North American adults have a chronic disease, two-thirds of medical admissions via emergency are due to the exacerbation of a chronic disease, 80% of primary care physician visits are related to chronic disease and more than two-thirds of all medical costs involve chronic disease (Rapoport et al. 2004). Patients living with chronic illnesses are at higher risk of developing additional chronic diseases, as highlighted by a recent analysis of Medicare beneficiaries in the United States (Thorpe and Howard 2006). In this analysis, more than half of all adults were being managed for five or more chronic conditions, accounting for 76% of the total healthcare spending and virtually all growth in spending from 1998 to 2002. 7 HealthcarePapers Vol. 7 No. 4 guaranteed care that meets minimum standards. These guarantees Avoidable Toll are as important as 29,000 kidney failures wait time guarantees if 2,600 blind we are to improve the 9,600 deaths health of individuals and 10,000 deaths populations and ensure the sustainability of our 37,000 deaths healthcare system. This significant gap 68,000 deaths between recommended care and received care has been referred to as the “quality chasm” (Institute of Medicine 2001). In Canada, this chasm can be attributed to a number of factors, including the following: Table 1. Projected toll in the United States resulting from the quality gap Condition Shortfall in Care Diabetes Average blood sugar not measured for 24% Colorectal cancer 62% not screened Pneumonia 36% of elderly did not receive vaccine Heart attack 39–55% did not receive needed medications Hypertension <65% received indicated care In 2003, McGlynn and colleagues completed a large multi-city review of care received by 6,712 adult Americans. The researchers concluded that adherence to recommended care is low for chronic conditions, ranging from 45% for diabetes to 68% for coronary artery disease. Extrapolation of these findings to the entire US population suggests that this shortfall in care results in a significant avoidable toll in terms of morbidity and mortality, as highlighted in Table 1. This poor performance is not unique to the United States, as assessed by Schoen and colleagues in 2005. These researchers found that physicians’ compliance with basic chronic disease practice guidelines in six countries was poor. Although all countries scored reasonably well when individual indicators of the guidelines were considered (e.g., annual evaluation of cholesterol in patients with diabetes), all countries scored poorly when compliance with multiple basic indicators was assessed, as depicted in Table 2. Canada scored the lowest in terms of compliance with multiple indicators of diabetes care. Simply put, our current healthcare system does not enable physicians and other members of the healthcare team to provide coordinated, comprehensive chronic disease prevention and management. Canadians living with diabetes should be • • • • • • • 8 A healthcare system designed around the acute care setting that focuses on the delivery of episodic care, where urgency trumps severity Highly fragmented care delivery resulting in patients being “lost in transition” A lack of investment in interoperable clinical information systems that enable providers to appropriately share needed information for effective clinical decisionmaking Poor adoption by clinicians of advanced clinical decision support tools that effectively incorporate reminders, protocols and guidelines at the point of care Reluctance to measure performance and quality improvement, both on an individual patient level and a population basis A misalignment of incentives and reimbursement strategies that overcompensate for service delivered and under-compensate for performance and quality improvement A lack of attention in effectively involving patients and their families as active partners in the management of their chronic illness An Inconvenient Truth Table 2. Six country performance on diabetes care Indicator Canada Australia New Zealand A1C in past 6 mo. (%) 90 86 79 Foot examination in past yr. (%) 52 57 66 Eye examination in past yr. (%) 73 73 66 Cholesterol checked in past year. (%) 91 93 87 All 4 services received in past yr. (%) 38 41 40 tion of scarce acute-care and emer85 90 91 gency services for the 75 70 65 management of patients 83 69 85 with complications 92 92 95 resulting from their chronic 58 56 55 illnesses. In making the connection between access to services and demand for services, it is essential to recognize that many of these complications either are avoidable or can be significantly delayed by CDPM best practices. If, as a country, we do not effectively address CDPM, not only will our healthcare system become economically unsustainable, but we will start to see a reversal in both quality of life and life expectancy gains that have occurred over the last 50 years. United Kingdom As a result, Canada’s physicians, nurses, pharmacists and other clinicians have not been able to provide the standard of care that is required to minimize the burden of chronic disease. Offering all the right tests and providing all the right therapies for most of our patients most of the time is not currently achievable, especially when it comes to the complex care of patients with multiple chronic illnesses. Canada’s poor showing in CDPM was recently described in the Commonwealth Fund International Health Policy Survey of Primary Care Physicians (Schoen et al. 2006). Table 3 highlights that Canada as a nation ranked last in measuring CDPM activities, managing CDPM activities and integrating multidisciplinary teams. Unlike the United Kingdom, which scored first in most categories, Canada lacks a national vision, direction and funding to help ensure standards of CDPM services, integration and coordination. Since 1948, the United Kingdom has been driving healthcare transformation through its National Health Services and has developed a CDPM strategy that is a key component of primary care reform and regionalization. This inconvenient truth not only negatively impacts patients living with chronic illnesses but also results in escalating costs and lengthening wait times due to the consump- United States Germany Best Practices in CDPM In order to address this CDPM care deficit, we must invest in best practices that provide comprehensive, coordinated care delivery across the continuum. These models of care must be population-based and patient-centric and should encompass health promotion, disease prevention and disease management. The most widely adopted and studied model is the Chronic Care Model (CCM), developed at the MacColl Institute for Healthcare Innovation at Group Health Cooperative of Puget Sound. This model provides a framework to improve patient and system outcomes and is depicted in Figure 1 below. The CCM creates practical, supportive, evidence-based interactions between an informed, activated patient and a prepared, proactive practice team. Informed, activated 9 HealthcarePapers Vol. 7 No. 4 the patients’ care. Prepared, proactive practice teams are CDM-Related Activities of CAN UK GER NZ NETH AUS US Primary Care Physicians those that have the right information, Overall Ranking 7th 1st 2nd 3rd 4th 5th 6th tools and personMeasurement activities: nel at the time of Participated in collaborative QI 6th 4th 2nd 1st 3rd 4th 5th care delivery and efforts throughout the Conducted clinical audit of patient 7th 1st 5th 2nd 6th 3rd 4th duration of the care patient-provider Sets formal targets for clinical 5th 1st 1st 3rd 4th 6th 2nd relationship. performance Appropriate deciReporting “well prepared” re 7th 2nd 1st 5th 3rd 4th 5th sion support is patients with multiple chronic easily accessible diseases in order to Reporting “well prepared” re 6th 3rd 1st 6th 2nd 4th 7th deliver evidencepatients with mental health problems based clinical care and selfManagement activities: management Least difficulty in generating list of 7th 1st 4th 2nd 3rd 5th 6th support. The patients by diagnosis interaction is Gave patients with chronic diseases 7th 5th 1st 6th 4th 3rd 2nd now one in which plan to manage care at home all clinical and Multidisciplinary team activities: behavioural assessPractice routinely uses 4th 1st 3rd 5th 2nd 4th 6th ments are available multidisciplinary teams as required. The Routinely uses clinicians other than 7th 1st 2nd 3rd 4th 5th 6th providers underdoctors to help manage patients stand the patients’ with chronic diseases confidence level Routinely uses clinicians other than 7th 1st 2nd 3rd 6th 5th 4th in managing the doctors to provide primary care services chronic condition. Clinical Countries included in the comparison are Australia, Canada, Germany, the Netherlands, New Zealand, the United care is tailored Kingdom and the United States. Adapted from 2006 Commonwealth Fund International Health Policy Survey of Primary Care Physicians. to the individuals and based on best practices patients are those who understand their supported by evidence. Collaborative goal disease process and are empowered as selfsetting and problem solving result in a managers of their own care. The patients take shared care plan that both the patients and advantage of the clinicians’ medical expertise, the providers understand. Critically, there rather than assuming the clinician will “fix” is active, sustained follow-up to ensure the them. Family and caregivers are included and patients can manage their treatment plan and appropriately involved in the management of engage in improved self-management support. Table 3. Seven country comparison of chronic care delivery in primary care 10 An Inconvenient Truth or lowered use of healthcare services in diabetes, asthma and congestive heart ��������� �������������� ���������������������� �������������������������� failure (Tsai et al. 2005). �������� �������� �������� ��������������� ����������� ������ Two other ������� ������� ������� ������ systematic reviews assessed elements of the model and classified interventions ���������� ������������������� �������������������� ������������� ������������ ������� as decision support, delivery system design, information ����������������� systems or self(Wagner 1998) Reprinted with permission of the American College of Physicians. management support. In these The CCM identifies essential elements studies, no single element emerged as essenof a healthcare system that encourage hightial or superfluous, but 19 of 20 studies that quality CDPM in the community and the included a self-management component health system, and within self-management showed improved care. Studies with multisupport, delivery system design, decision faceted interventions were more likely to support and clinical information systems. have a greater impact on patient outcomes Within each of these elements, there are (Bodenheimer et al. 2002; Renders et al. 2001). specific concepts (“change concepts”) that A retrospective data analysis of managed teams use to direct their improvement efforts. Medicare organizations in the United States Change concepts are the principles by which that had implemented numerous components care redesign processes are guided. Once of the CCM (reminders, registries, selfimplemented, these change concepts result in management programs, clinical guidelines improved patient and system outcomes. and linkages to community resources) showed For a greater understanding of the model, significantly improved process and clinical please visit www.improvingchroniccare.org. outcomes for their patients with Type 2 diabeIn addition, see Barr and colleagues’ review of tes (Fleming et al. 2004). These and other CCM in Canada in Healthcare Quarterly (2003). studies can be viewed via the bibliography on the Improving Chronic Illness Care (ICIC) Evidence Supporting the CCM website (www.improvingchroniccare.org). The CCM has been implemented widely, and Implementing the CCM and Other a growing body of evidence suggests that it Best Practices can improve outcomes and decrease costs. A systematic review of the literature found that To help organizations in succeed, the MacColl 32 of 39 studies that evaluated the use of the Institute brought in experts in CDPM and model in diabetes demonstrated improved created “learning collaboratives.” These patient outcomes, and that in 18 of 27 studies collaboratives are based on the Institute for the use of the model resulted in reduced costs Healthcare Improvement’s Breakthrough Figure 1. Chronic Care Model 11 HealthcarePapers Vol. 7 No. 4 Series quality improvement methodology and provide organizations with the required expertise, tools and learning environment for success. Over a one-year period, these teams meet for three two-day sessions. Between sessions, the practice teams implement CCM changes for the condition of interest, collect data and report monthly on their improvements with their pilot populations. Results to date show that more than 70% of teams participating in these learning collaboratives have created system change that improves both process and clinical outcomes. Three examples of these results follow: • • • step guide titled “Improving Care in the Practice” (http://www.improvingchroniccare.org/improvement/collaboratives/index. html). While not extensively tested, this guide provides practice teams with a seven-step process to begin transforming chronic illness care using best practice tools to test, implement and measure changes in care. This guide is available free of charge at the ICIC website. In 2006, Singh completed a comprehensive review of the CDPM literature – more than 35,520 studies, of which 560 met the inclusion criteria. This extensive analysis includes randomized trials and systematic reviews and summarizes the varying levels of evidence for CDPM interventions that have been applied internationally: Twice as many patients with major depression have recovered in six months Inner-city kids with moderate or severe asthma are at 13 or fewer days per year with symptoms Readmission rates of patients hospitalized with congestive heart failure were cut nearly in half • • • • • • • One of the most notable sets of learning collaboratives is the Bureau of Primary Healthcare’s Health Disparities Collaboratives. The bureau oversees the 850 federally funded community health clinics in the United States that serve the poor and uninsured. To date, almost all 850 clinics have gone through at least one collaborative, and results suggest that there have been significant improvements in processes of care for patients with diabetes, asthma, cardiovascular disease, depression and human immunodeficiency virus. There are currently hundreds of thousands of patients in disease registries who are receiving planned care and enhanced selfmanagement support. To read more about the Health Disparities Collaboratives, visit www. healthdisparities.net. In addition to the collaboratives, the MacColl group has developed a step-by- • • • Broad chronic care management models Involvement of patients in decisionmaking Provision of accessible structured information Self-management education Self-monitoring and referral systems Electronic monitoring and telemonitoring Identification of people at high risk of hospitalization Integration of community and hospital care Greater reliance on primary care Use of nurse-led strategies, where appropriate This report is available at www.hsmc.bham. ac.uk/news/TransformingChronicCare.pdf, and is a must-read on CDPM. CDPM Best Practices in Canada The CCM is being studied, adapted and implemented by a number of provinces, mostly in Western Canada. British Columbia has created the Expanded Chronic Care Model, which includes the necessary elements 12 An Inconvenient Truth to encompass health promotion and disease prevention as well as disease management. This expanded model was introduced in 2003 by Barr et al. British Columbia has also made a significant investment in the development and implementation of a chronic disease management toolkit that includes flow sheets used by providers at the point of care, and in the creation of a provincial registry of patients that is used for performance management and an incentive program that reimburses family physicians for high-quality management of congestive heart failure, diabetes and hypertension. For more information, see www. health.gov.bc.ca/cdm. Alberta’s Capital Health Region and Calgary Health Region are both implementing comprehensive CDPM programs based on the CCM. These programs leverage a common provincial electronic health record that will include patient registries and clinical decision support capabilities. HealthLink Alberta, a nurse telephone advice service (available 24 hours a day and seven days a week) and health information service, is also being used to better coordinate and deliver CDPM. In addition, Alberta is investing in primary care initiatives aimed at improved CDPM and fostering new relationships with specialists and community services to better support patients with chronic illnesses. Selfmanagement support programs for patients living with chronic illness are being successfully developed and implemented. Learning collaboratives are being implemented throughout Alberta. Saskatchewan is running learning collaboratives for all its primary care health providers and creating a cadre of practice facilitators who support primary care within the health authorities. Manitoba is undertaking a Chronic Disease Prevention Initiative, which expands on a number of chronic disease programs including a regional diabetes program, a renal health outreach program, chronic disease monitoring and surveillance and the Healthy Living Resource/Institute (www.gov.mb.ca/ health/diabetes/priorities.html). The Western provinces have also collaborated on the Western Canada Chronic Disease Management Infostructure initiative, funded by Health Canada’s Primary Health Care Transition Fund. This initiative resulted in the creation of high-level business requirements and CDM data standards and HL7 message specifications, which are being incorporated into provincial CDM standards (www.whic.org). In Ontario, the Ministry of Health and Long-Term Care, in partnership with the Ministry of Health Promotion, has endorsed the Expanded CCM through the development of a Chronic Disease Prevention and Management Framework. This framework is widely communicated and supported by the newly launched Local Health Integration Networks, which are responsible for managing healthcare resources and improving the health status of people from a regional perspective. The government also established a Diabetes Expert Panel, which used the best practice interventions within the framework to guide the development of its provincial strategy to implement a Diabetes Prevention and Management infrastructure and system redesign. The Group Health Centre in Sault Ste. Marie is considered to be a Canadian best practice in population-based CDPM. Through its electronic health record and coordinated primary care health service model, it has been able to deliver care more consistent with best practices for its patients with diabetes and with congestive heart failure, with fewer resources. Quebec developed the Program to Integrate Information Services and Manage Education (PRIISME) in 1999, and since 13 HealthcarePapers Vol. 7 No. 4 then has implemented numerous multidisease projects. This public/private sector partnership with GlaxoSmithKline provides personalized education to patients with chronic illnesses and specific training to healthcare professionals. The Atlantic provinces are in the midst of a multi-province project called Building Table 4. Select examples of CDPM best practices in Canada Scope of Program Organizational Delivery System Design/ Self-Management IT and Decision Support Impact of Change 1. Risk assessment for prevention/proactive management services 2. Implementation of best practices 3. Focus on system & GP office redesign 4. Self-management support 5. Multi-disciplinary practice team 1.Decision support tool - “CDM Toolkit” 2. Data analysis to assess gap in quality of care and burden of demand on system 1. Increase compliance with evidence based guidelines for people with diabetes and CHF 2. Decrease hospitalization of people with diabetes 3. Decrease standard mortality rate for people with CHF 1. Regional booking system; single point of referral 2. Triage system with delegated care to right provider at the right time 3. Virtual support for primary care providers with connections to care team 4. Ongoing client support 1. CDM IS for registration and ongoing tracking of outcomes 2. Analyzes patient and population data 3. Reminds at appropriate points in care continuum; decision support 4. Supports workflow consistent with clinical practice guidelines 1. Improved wait times for program 2. Increased system capacity (almost tripled new referrals) 3. Reported behaviour change 7–14 days post intervention; sustained behaviour change 4. Reduced need for medical specialist 1. Provider support - nurse case management 2. Algorithm-driven care plans 3. Client programs - “Living Well with a Chronic Condition” program ( includes: exercise, education, selfmanagement) 1. Foundation for data collection, tracking and reporting is the electronic CDM IS 2. Analyzes patient and population data 3. Reminds at appropriate points in care continuum; decision support 1. Better A1Cs for patients with diabetes 2. Better scores on 6-minute walk test for patients with COPD 3. Better WOMAC scores for patients with osteoarthritis 4. Reduced wait times – wait for diabetes education program 5. More satisfied healthcare providers 1. Victoria, British Columbia 1. Ministry of Health embraces BC’s Expanded Chronic Care Model 2. Endorsed by BC’s Health Authorities 3. Started with diabetes, CHF, depression, HT & prevention 1. Strategy and vision 2. Support for learning collaboratives 3. Incentives to use tools 4. Performance management 2. Capital Health Region, Edmonton, Alberta 1. Integration of regional chronic disease programs: asthma, COPD, CV risk, heart failure, renal disease, obesity 2. Adaptation of health system to focus on primary care 1. Clear vision and strategic commitment to support CCM 2. Focus to achieve horizontal and vertical CDM program integration 3. Formal networks with community providers and partners 4. Visible physician champions 3. Calgary Health Region, Calgary, Alberta 1. Endorse CCM and other proven models of CDM 2. Build on strengths of current system and within existing operations 3. Infrastructure to regionally manage multiple conditions including - diabetes, COPD, arthritis, osteoarthritis, CHF & chronic pain 1. Integrate CDM strategies into current operations e.g., home care 2. Support for champions and change management 3. Provide the evidence with key indicators (RCTs not required) 4. Provide financial incentives - MDs bill for patients that are case managed 14 An Inconvenient Truth Table 4. Continued 4. Group Health Centre, Sault Ste. Marie, Ontario 1. 60,000 patient membership (75% of regional population) for all primary and specialty care with diagnostic services 2. Longestestablished membershipbased health care organization. 3. Over 60 physicians 1. Regional physician group practice 2. Blended funding – capitation based pay with mix of fee for service (incentives for preventative care) 3. Population based service delivery 4. Quality improvement research to inform practice patterns 1. Multi-disciplinary team approach to education and service delivery 2. Centralized Appointment Centre: allows urgent direct contact with physician’s (or NP’s) office; same day clinic – when physician is out of office: extended office hours 3. Telephone health advisory service 4. Risk stratification and service delivery based on evidence 1. Electronic Medical Record (EMR) accessed at all service delivery sites and many professionals in the community 2. Practice Management Application (PMA) includes roster management, registration, appointments, billing, transcription, scanning; PMA is interfaced seamlessly to EMR 3. CDPM best practice workflow sheets integrated with EMR 1. Increase participation of patient and family in decision making, self-care and adherence to agreed management plans 2. Increase collaboration among health care team 3. Increase patient access to continuity of care and best practices 4. Decrease modifiable CV risk factors 5. Appropriate use of cardioprotective medications CCM = Chronic Care Model; CDM = chronic disease management; CDPM = chronic disease prevention and management; CHF = congestive heart failure; CPG = clinical practice guideline; COPD = chronic obstructive pulmonary disease; CV = cardiovascular; GP = general practitioner; IS = information system; IT = information technology; NP = nurse practitioner; PCP = primary care physician; RCT = randomized controlled trial; WOMAC = Western Ontario McMaster Osteoarthritis Index. Better Tomorrows. The objective is to teach primary care providers about chronic illness management and provide them with the necessary tools to engage in practice change. Table 4 summarizes CDPM best-practice interventions implemented by several leading organizations in Canada. These efforts in British Columbia, Alberta and Ontario are profiled with a description of their impact. Of particular note is that each organization has a commitment to a CDPM vision and strategy, strong leadership and information technology (IT) investment in order to ensure its healthcare system is designed to empower patients, support providers and improve the health of the population served. program on the American healthcare system (Bigelow et al. 2005). The assessment was based on a simulated model that included components and programs that were consistent with the elements of the CCM and with programs defined by the Disease Management Association of America (DMAA) (www. dmaa.org/definition.html). The simulated model developed by RAND included the following key components: • • • • Costs and Benefits of a National CDPM Program The RAND Corporation assessed the socioeconomic impact of implementing a CDPM • 15 Population identification processes Evidence-based practice guidelines Collaborative practice models to include physician and support-service providers Patient self-management education (may include primary prevention, behaviour modification programs and compliance/ surveillance) Process and outcomes measurement, evaluation and management HealthcarePapers Vol. 7 No. 4 Table 5. Potential benefits of a combined CDM program† Region USA Canada Region* 100% 50% 50% (millions) (millions) (thousands) in-patient stays (3.6) (0.2) (6.5) in-patient nights (26.3) (1.5) (46.6) hosp outpatient & ER visits (4.9) (0.3) (8.7) office/disease mgmt visits 33.2 1.9 58.9 ($billions) ($billions) ($millions) hospital (30.1) (1.7) (53.4) physician - - - 1.9 0.1 3.3 other - - - Total (28.3) (1.6) (50.2) Days Affected (millions) (millions) (thousands) schooldays lost (12.9) (0.7) (22.9) workdays lost (28.2) (1.6) (50.0) total days abed (244.6) (13.9) (433.7) (thousands) (thousands) (ones) (394.1) (22.4) (699) Adoption Utilization Measures Expenditures medications Mortality deaths Combined program for diabetes, congestive heart failure, asthma and chronic obstructive pulmonary disease. *Includes 1 million people. † Table 6. CDPM regional program* costs Cost Categories Year 1 Operating Disease registry 8.0 3.8 Patient portal 3.5 2.4 Provider portal and connectivity 3.5 2.4 Complex case managers & software support 3.0 6.0 Care plan coordination services (administration systems and outreach calls) 8.6 5.2 Scheduling 4.8 2.0 Other (evaluation & program operations) 1.6 2.2 Project Totals 33.0 24.0 *Program for prevalence of 4.6% diabetes, 0.8% congestive heart failure, 1% chronic obstructive pulmonary disease and 8.3% asthma. 16 • Routine reporting/feedback loop (may include communication with patient, physician, health plan and ancillary providers and practice profiling) RAND’s model applies consolidated results from published literature on comprehensive integrated disease management programs for four chronic diseases (diabetes, congestive heart failure, asthma and chronic obstructive pulmonary disease) in order to predict the costs and benefits of an implementation across the entire US population. Table 5 highlights the results of the RAND analysis and the potential changes to the healthcare system based on an enrolment of 50% of the US population with chronic disease. As depicted, the traditional physician visits are replaced with proactive multidisciplinary team encounters that enforce adherence to best practices, resulting in a reduction of in-patient admissions. The projected trajectory of system utilization, spending, productivity and mortality are markedly reduced – overall saving the national system US$14.2 billion in expenditures and reducing deaths by 197,000 each year. Using this model, we extrapolated the results to the An Inconvenient Truth Table 7. Financial summary of national CDPM program 74,000 people, including 23,000 people with diabetes, 4,000 people with Regional CDM 1 33 24 50 Model* congestive heart failure, 5,000 † Canada 32 1,063 779 1,610 6.3 people with * Based on a region of 1 million Ontarians. chronic obstrucDirect extrapolation from Ontario to Canada based on population. Breakeven calculated by amortizing capital over 4 years and applying cumulative benefits as net of cumulative expenses tive pulmonary based on 50% adoption. disease and 41,500 people Canadian environment of 32 million people with asthma (based on Ontario prevalence data (see Table 5). This projected an annual reducfrom the 2003 Canadian Community Health tion of 1.5 million in-patient nights, a cost Survey database prevalences). For Canada, the avoidance of $1.6 billion and 22,360 fewer program would reach over 2.3 million people deaths. Our Canadian analysis assumed a with chronic diseases. For this analysis, similar prevalence of disease and equivalency benefits from the program were recognized of healthcare costs between the United States 12 months after the start of each program. and Canada, and we also assumed an adoption Using a direct population-based extrapolarate of 50%. tion, Table 7 shows that it would take approxThese benefits are significant, but at what imately $1 billion in upfront costs (capital) cost? To further explore this, we developed a and $780 million in annual operating costs financial model based on a Canadian regional to implement a national CDPM program population of 1 million. Elements of the for four key disease groups. This effort has model were consistent with the key compothe potential to realize annual benefits of nents specified in the RAND study, includ$1.6 billion in avoided healthcare costs, ing a disease registry, patient and provider assuming a 50% adoption rate. education portals, case managers and outreach Figure 2 illustrates that cumulative phone calls with supportive administrabenefits would surpass the cumulative costs tive and management systems. We assumed between years six and seven. By year 10, the that basic computing infrastructure and cumulative return on investment is more secure Internet connectivity were in place for than $9 billion to the Canadian healthcare primary care settings. Table 6 provides details system. This return could be higher if adopon these costs. tion rates increased or if costs were reduced We then extrapolated the costs to the through consolidation of IT infrastructure entire Canadian population of 32 million into a multi-regional or provincial program. and made the assumption that 32 programs, On the contrary, if benefits were not realized each covering a million people, would be until three or four years after implementarequired. We also assumed that one disease tion instead of after year one as assumed in group program would be rolled out each year the model, then the breakeven point would until all four disease programs were launched be pushed out to a later date. Adoption of by year five. This regional program would the program by providers and adherence provide direct CDPM services to almost to providers’ advice by the patients are two Program Target Population (millions) Upfront Capital ($millions) Annual Operating Costs ($millions) † ‡ 17 Annual Net Benefits ($millions) Breakeven‡ (years) HealthcarePapers Vol. 7 No. 4 Figure 2. Projected cumulative benefits and cumulative costs of a chronic disease management program to a maximum of 50% adoption ������������������� ���������������� ������� ���������� ������� ������� ������ �� ������ ������ ������ ������ ������ critical elements to realizing the program benefits. The costs and benefits used in this model are based on an adoption by 50% of the population with the four chronic diseases. In summary, this analysis comes with a significant disclaimer – “if there is no pain, there is no gain” or, in healthcare IT terms, “no adoption equals no benefits.” This model does provide some sensitivity to adoption rates since a significant proportion of the annual operating costs are human resources and can be scaled up or down as the program rolls out. Once the program is at steady state with 50% adoption, there is about a $2 dollar return to the system for each dollar spent. There is also the potential to extract further benefits if this program was integrated with a comprehensive lifestyle program that encourages health promotion and disease prevention through healthy behaviours such as exercise, eating well, not smoking and compliance with other prevention measures including preventive medication (e.g., cholesterollowering drugs). Then, the savings to the system would be even greater due to the reduction of risk factors and the subsequent ������ ������ ������ ������ ������� reduction in the prevalence of chronic diseases. Overall, there was an attempt to be conservative with the model by using conservative numbers for the benefits and overestimating the costs of the program. Limitations of the analysis include the following: • • • • • 18 US costs for providing healthcare services were used to show benefits and are typically considered to be higher than Canadian costs by 15% The value in US dollars was directly translated into Canadian dollars, which assumes approximately a 15% discount on costs, which counteracts the impact of using US costs Infrastructure costs were based on the implementation in a region, without existing components to leverage The regional costs were based on number of patients served and did not factor in that certain diseases require more effort to care for and manage (e.g., RAND assumed that asthma patients take about 45% of the effort required for diabetes patients) There is an overestimation of the costs An Inconvenient Truth resulting from scaling up the regional program costs by 32 times based on a per capita extrapolation without consideration for economies of scale created from a multi-regional or provincial IT solution or reduced costs due to multi-regional purchases compared with 2004–2005, thus showing no evidence of the so-called ballooning effect. A national CDPM strategy should be modelled after Canada’s approach to wait times: • A National CDPM Strategy: Leveraging Canada’s Approach to Wait Times In 2004, the first ministers agreed that timely access to care across Canada is a national priority (Health Canada 2004). Specific measurable commitments to Canadians were made to address wait times. These included benchmarks for wait times for five services, comparable indicators of access, the setting of targets by certain dates, annual reporting of progress and the establishment of a $5.5 billion Wait Times Reduction Fund allocated on a per capita basis. In response, provinces and territories developed strategies, made investments and committed resources to build capacity and shorten wait times. Major investments were made in human resources, equipment, training and information systems. Annual reporting of progress is ongoing, and public websites have been established with near real-time reporting in some jurisdictions to support transparency and patientprovider decision-making. Although early days, there is now preliminary evidence that strategies to address wait times are working in Canada. A recent report from the Canadian Institute for Health Information (CIHI) showed a significant increase in the number of priority area surgeries in 2005–2006 compared with the previous year (CIHI 2007). Of the provinces studied (data were not available for Quebec), there was a 7% increase in (or nearly 42,000 additional) procedures. For surgeries performed outside of the priority areas, there was a 2% increase in the number performed in 2005–2006 • • • The first ministers need to agree that improving the quality of care for Canadians living with chronic illnesses is a national priority that is key to sustaining the improvements in wait time reductions and the viability of our healthcare system. The existing quality of care gap should be assessed through the use of evidence based CDPM performance indicators, and targets should be set for improved performance. Annual reporting of progress should occur. A CDPM fund should be established. The concept of establishing “wait time guarantees” is also valid for CDPM transformation. The establishment of “care guarantees” would ensure that quality of care remains a priority and that funding is in part linked to performance. More important, care guarantees would help ensure that Canadians at risk of, or living with, chronic illnesses receive a minimal standard of care. Provinces and territories can leverage their wait time investments and apply their experience in reducing wait times to improving CDPM. The investment in information systems and interoperable EHRs is required by providers and patients to improve CDPM as well as reduce wait times. In addition, all of the following elements used by provinces and territories to address wait times are equally important to transforming CDPM and include (1) ensuring clear accountability for all key stakeholders of the healthcare system; (2) aligning incentives to support CDPM strategic goals; (3) empowering patients by democratizing knowledge about CDPM; 19 HealthcarePapers Vol. 7 No. 4 (4) increasing system capacity with more and better use of resources; (5) seeking the expert advice of providers and local communities; and (6) tracking, monitoring and improving performance using disease registries, standardized data and targets. All of the key components of the wait times strategy along with the supporting tools and reporting mechanisms are needed to transform CDPM in Canada. For CDPM success, accountability resides primarily with primary care providers and patients; however, the regional health authorities, specialists, community services, home care agencies, government and public health agencies all have significant roles and responsibilities. Empowering patients with knowledge that enables them to be active, involved participants in their care is the underlying principle of the CCM and is necessary for success. Increasing system capacity through better use of resources is the goal of “planned care,” in which scheduled disease management visits with providers and with groups of patients living with the same chronic illnesses can help obviate the need for urgent, unscheduled episodic visits to primary care providers, emergency departments and other acute care services. The early and frequent use of CDPM experts both as policy and program development advisers and as clinical decision support experts is also key to success. Tracking, monitoring and improving CDPM performance using a single disease registry for a given population is crucial, as are the use of interoperable clinical information systems, the standardization of CDPM data and establishment of performance targets that can be compared across practices, regions and provinces and territories. Two critical success factors for CDPM transformation are regionalization and primary care reform. Without these, we will not achieve large-scale, rapid improvement in population-based outcomes. Alberta is clearly leading on both fronts and has established clear accountability structures and is delivering care in effective ways that improve the health and wellness of individual patients and entire populations. Alberta has also recognized the importance of primary care reform that focuses on multidisciplinary teams that are funded to deliver care consistent with the CCM. Alberta has established Primary Care Networks based on tripartite agreements among the primary care physicians, the provincial government (Alberta Health and Wellness) and the Alberta Medical Association. With such agreements in place, a regional approach to CDPM provides the levers to better design, coordinate and deliver comprehensive CDPM programs that appropriately involve primary care providers, acute care services, specialists, home care services, community services and public health agencies. Regional CDPM programs can effectively scale to manage patients with multiple chronic diseases in a coordinated manner, with the vast majority of services being provided by primary healthcare teams in conjunction with community-based services. Alberta health regions also enjoy increased purchasing power that can be used for the investment and deployment of interoperable electronic health records, population-based disease registries and other advanced clinical information systems required to standardize care and measure performance. As part of a national CDPM strategy, the federal government should assess as a condition of funding whether there is a real commitment to regionalization and primary care reform. Alberta should be used as the gold standard against which the commitment of other provinces and territories should be benchmarked. Provincial quality and safety councils could also assist with the development of performance indicators and 20 An Inconvenient Truth benchmarks. There is a growing body of international literature on evidence-based quality indicators from the United States and the United Kingdom that could easily be adapted to the Canadian environment (for example, Developing Quality of Care Indicators for the Vulnerable Elderly, ACOVE Project in the United States; Quality of Outcomes Framework from the Information Centre Services of National Health Services (NHS) in the United Kingdom.) The Health Council of Canada has begun reporting on the state of chronic disease management in Canada and, along with CIHI, could play a lead role in public reporting of progress (see Health Council of Canada, Health Outcomes Report, “Why Health Care Renewal Matters: Lessons from Diabetes,” 2007). Significant investment in clinical information technologies is an essential element of CDPM transformation. Electronic medical records, disease registries, self management devices, clinician and patient portals, telemedicine solutions and ultimately an interoperable pan-Canadian EHR are key enablers of CDPM. However, these emerging technologies must not be implemented for the sake of technology but rather to support improved care delivery. It is essential that clinicians, healthcare teams and patients be provided with sensible clinical information management tools that provide real value. Canada Health Infoway could play a lead role in allocating and managing those investments to ensure that solutions that work and are adopted by clinicians and patients are rapidly deployed to advance CDPM transformation in Canada. chairman of CIHI’s Board of Directors. In Canada, healthcare spending has risen to 10.3% of the gross domestic product, which is the highest it has been in 31 years, with an average per capita spending of $4,548. Our population continues to age, shifting our healthcare spending to those aged 65 and older at an annual cost of $8,969 per capita. These increases, weighed against provincial budgets that are already hovering around 45%, are clearly an unsustainable situation. Something has to give! We contest that it is our healthcare system that has to give, rather than the health of Canadians living with chronic illnesses. Canadians with chronic illness deserve a transformed healthcare system that provides coordinated, comprehensive care – a system that results in fewer visits to the emergency department, fewer complications and a better and longer quality of life. The inconvenient truth about CDPM is that it is recognized as a problem more often internationally than it is domestically. The World Health Organization (WHO) stated that “the global epidemic of chronic diseases continues to grow. In 2005, they caused an estimated 35 million deaths. Total deaths from chronic disease are projected to increase by a further 17% over the next 10 years. This is happening when the means of preventing and controlling most chronic diseases are already well established” (World Health Organization 2005). Many countries, such as India and Nigeria, have publicly taken on WHO’s challenge to reduce the chronic disease death rate by 2% per year for the next 10 years. Canada is well positioned to take on this challenge. A “made in Canada solution” for CDPM can be created by leveraging our unique approach to wait times along with a greater commitment to regionalization, primary care reform and a greater investment in electronic health record technologies. A national strategy for CDPM transformation Concluding Thoughts Canada must move quickly to transform CDPM, for health and economic reasons. “For the tenth consecutive year, healthcare spending continues to outpace inflation and population growth,” says Graham W.S. Scott, 21 HealthcarePapers Vol. 7 No. 4 Health Canada. 2004. First Ministers’ Meeting on the Future of Health Care. Ottawa: Author. <www.hcsc.gc.ca/hcs-sss/delivery-prestation/fptcollab/2004fmm-rpm/index_e.html>. will not only improve the health of Canadians living with chronic illnesses - it will also improve the health of our nation. It will help to ensure the sustainability of our healthcare system and strengthen our brand recognition as a country committed to health and wellness. Health Council of Canada. 2007 (March). Health Outcomes Report, “Why Health Care Renewal Matters: Lessons from Diabetes. < http://healthcouncilcanada.ca/en/index.php?option=com_content&task =view&id=192&Itemid=10>. Acknowledgement Institute for Healthcare Improvement. 2003. The Breakthrough Series: IHI’s Collaborative Model for Achieving Breakthrough Improvement. Boston: Author. <www.IHI.org>. The authors thank Kai Teh, Consultant Courtyard Group Ltd, for data analysis assistance. Institute of Medicine. 2001. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: Author. References Barr, V.J., S. Robinson, B. Marin-Link, L. Underhill, A. Dotts, D. Ravensdale, S. Salivaras. 2003. “The Expanded Chronic Care Model: An Integration of Concepts and Strategies from Population Health Promotion and the Chronic Care Model.” Healthcare Quarterly 7(1): 73–82. McGlynn, E.A., S.M. Asch, J. Adams, J. Keesey, J. Hicks, A. DeCristofaro and E.A. Kerr. 2003. “The Quality of Health Care Delivered to Adults in the United States.” New England Journal of Medicine 348: 2635–45. Bigelow, H., K. Founkych, C. Fung and J. Wang. 2005. Analysis of Healthcare Interventions that Change Patient Trajectories. RAND Health. Santa Monica, CA: Author. <http://www.rand.org/pubs/monographs/MG408/>. Quality of Outcomes Framework. Information Centre Services of National Health Services (NHS). <http:// www.ic.nhs.uk/pubs/qofexrep>. Rapoport, J., P. Jacobs, N.R. Bell and S. Klarenbach. 2004. “Refining the Measurement of the Economic Burden of Chronic Disease in Canada.” Chronic Diseases in Canada 25(1): 13–21. Bodenheimer, T., E.H. Wagner and K. Grumbach. 2002. “Improving Primary Care for Patients with Chronic Illness: The Chronic Care Model, Part 2.” Journal of the American Medical Association 288: 1909–14. Renders, C.M., G.D. Valk, S.J. Griffin, E.H. Wagner, J.T. Van Eijk and W.J. Assendelft. 2001. “Interventions to Improve the Management of Diabetes Mellitus in Primary Care, Outpatient, and Community Settings: A Systematic Review.” Diabetes Care 24: 1821–33. Canadian Institute for Health Information (CIHI). 2007. Wait Time Priority Surgeries Increased Significantly in 2005–2006. Ottawa: Author. <http:// secure.cihi.ca/cihiweb/dispPage.jsp?cw_page=media_ 05feb2007_e>. Schoen, C., R. Osborn, P. Trang Huynh, M. Doty, J. Peugh and K. Zapert. 2006. “On the Front Lines of Care: Primary Care Doctors’ Office Systems, Experiences, and Views in Seven Countries.” Health Affairs: (published online 2 November 2006). <http:// content.healthaffairs.org/cgi/content/abstract/25/6/ w555>. Canadian Institute for Health Information (CIHI). 2006. <http://secure.cihi.ca/cihiweb/dispPage. jsp?cw_page=media_05dec2006_e>. Chaoulli v. Quebec (Attorney General). 2005. Ottawa: Judgments of the Supreme Court of Canada. <http://scc.lexum.umontreal.ca/en/2005/2005scc35/ 2005scc35.html>. Schoen, C., R. Osborn, P. Trang Huynh, M. Doty, K. Zapert, J. Peugh and K. Davis. 2005. “Taking the Pulse of Health Care Systems: Experiences of Patients with Health Problems in Six Countries.” Health Affairs 24: w509–25. Developing Quality of Care Indicators for the Vulnerable Elderly, ACOVE Project. 2001. RAND Corporation. <www.rand.org/pubs/research_ briefs/2005/RB4545-1.pdf>. Singh, D. 2006. Transforming Chronic Care: Evidence about Improving Care for People with Long-Term Conditions. Birmingham: University of Birmingham. www.hsmc.bham.ac.uk/news/ TransformingChronicCare.pdf>. Fleming, B., A. Silver, K. Ocepek-Welikson and D. Keller. 2004. “The Relationship between Organizational Systems and Clinical Quality in Diabetes Care.” American Journal of Managed Care 10: 934–44. 22 An Inconvenient Truth Thorpe, K.E. and D.H. Howard. 2006. “Beneficiaries: The Role of Chronic Disease Prevalence and Changes in Treatment Intensity.” Health Affairs 25: w378–88. Thank you Tsai, A.C., S.C. Morton, C.M. Mangione and E.B. Keeler. 2005. “A Meta-analysis of Interventions to Improve Care for Chronic Illnesses.” American Journal of Managed Care 11(8): 478–88. for supporting Breakfast with the Chiefs Wager, E.H. 1998. “Chronic Disease Management: What Will It Take To Improve Care for Chronic Illness?” Effective Clinical Practice 1: 2-4. Longwoods Publishing Enabling Excellence World Health Organization. 2005. Preventing Chronic Diseases: A Vital Investment. <http://www.who.int/ chp/chronic_disease_report/en/>. some inconvenient truths … Diabetes • In 2005, 4.9% of Canadians aged 12 and over reported being diagnosed by a health professional as having diabetes, with the highest provincial rates in Newfoundland and Labrador (6.8%), Nova Scotia (6.6%) and Prince Edward Island (6.3%). kidney failure registered in the Canadian Organ Replacement Registry. (Source: CIHI’s Treatment of End-Stage Organ Failure in Canada 1995-2004) Ambulatory Care Sensitive Conditions • In 2005-06, after adjusting for population and aging, 389 out of 100,000 Canadians under 75 were hospitalized for conditions where appropriate ambulatory care can prevent or reduce hospitalization. While not all admissions for conditions such as diabetes, asthma and hypertension are avoidable, appropriate care in the community could potentially prevent the onset of this type of illness or condition, control an acute episodic illness or manage a chronic disease or condition. Asthma • In 2005, 8.3% of Canadians aged 12 and over reported being diagnosed by a health professional as having asthma. • In 2000, asthma was the number one cause of hospitalizations among children aged 1 to 9 in Canada. Arthritis or Rheumatism • In 2005, 45.9% of Canadians aged 65 and over reported being diagnosed by a health professional as having arthritis or rheumatism. • In 2005-06, the highest provincial rates of ambulatory care sensitive conditions (ACSC) were in New Brunswick (666 per 100,000), Prince Edward Island (655 per 100,000) and Saskatchewan (622 per 100,000). A disproportionately high ACSC rate is presumed to reflect problems in obtaining access to primary care. High Blood Pressure • In 2005, 14.9% of Canadians aged 12 and over reported being diagnosed by a health professional as having high blood pressure. (Source: CIHI Health Indicators 2007 report) (Source: Statistics Canada Community Health Survey, in CIHI Health Indicators 2007 report) Mental Health • In 2003-04, there were 62,319 hospitalizations in Canada for patients diagnosed with a mood disorder (depression or bipolar disorder). End-Stage Organ Failure • The number of new diabetes-related kidney failure cases more than doubled in ten years in Canada, increasing from 1,066 in 1995 to 2,139 in 2004. The type of diabetes driving the increase is type 2 diabetes, linked to obesity and lifestyle. • In 2003-2004, the average length of stay in hospital for a mood disorder patient was 20.8 days, compared to 7.2 days for patients with a non-psychiatric diagnosis. • At the end of 2004, there were 18,827 patients on dialysis and 12,099 living with a functioning kidney transplant, for a total of 30,924 Canadians with (Source: CIHI’s Hospital Mental Health Services, 2003-2004) 23 Award of Excellence in Nursing Leadership 2007 LEADERSHIP AWARD NOMINATION The Ontario Hospital Association (OHA) is pleased to announce the fifth annual Award of Excellence in Nursing Leadership. The OHA Award of Excellence in Nursing Leadership is designed to acknowledge outstanding leadership of an individual nurse in a senior leadership position who is employed in a member organization (Hospitals, Affiliates and Associates) of the Ontario Hospital Association. The award will be presented at the OHA HealthAchieve2007 held November 5, 6 & 7, 2007 in Toronto. Many individuals across the industry exemplify leadership in healthcare. Nurses in senior leadership positions in Ontario healthcare settings provide a unique contribution of direct care experience, management ability and system thinking that leads to innovation and effectiveness at many levels in their organizations and associated communities. The winner demonstrates outstanding individual contribution in nursing leadership and meets the following criteria: • Registered with the College of Nurses of Ontario as a Registered Nurse, Registered Nurse (Extended Class) or Registered Practical Nurse; • Employed in a full-time senior leadership position in a member organization of the Ontario Hospital Association; • Exemplifies qualities of leadership that are outstanding and that produce innovative and effective results for staff, patients and the organization; • Demonstrates a commitment and contribution to professional associations; • Demonstrates a commitment to the nursing profession through leadership in major initiatives in clinical practice, leadership, education, research or quality improvement activities; • Demonstrates commitment to ongoing learning and professional development; • Recognized as an exemplary leader at the forefront of innovation in their community of peers and colleagues; and • Contributes as a leader to broad change in health care services integration. Nomination Deadline: July 17, 2007 Nomination Form available at www.longwoods.com/awards
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