The Arc of Fayette County The Arc of Pennsylvania’s Annual Advocacy and Policy Day 2014 Audra Barozzini, Executive Director, and Dana Zinck, Assistant Executive Director, attended The Arc of Pennsylvania’s Annual Advocacy and Policy Day held in Harrisburg on April 1, 2014. The day’s events began with a presentation by First Lady Susan Corbett, who spoke about an upcoming art contest, “Art: The Universal Language.” The contest is co-sponsored by the Governor’s Office and The Arc of Pennsylvania. The contest is open to any Pennsylvanian of any age with a disability. Please visit www.thearcpa.org for details. Nancy Thaler, Executive Director of the National Association of State Directors of Developmental Disabilities Services (NASDDDS), presented on the national viewpoint on developmental disability services and funding. New Office of Vocational Rehabilitation (OVR) initiatives and policy updates were also presented to the group. The legislative reception concluded the day’s events as several members of the Senate and House of Representatives met with the various Arc Chapter representatives in order to discuss current public policy priorities identified by The Arc of Pennsylvania. Audra and Dana had an opportunity to meet with Representative Ted Harhai, 58 th District. Representative Harhai has supported many Arc initiatives over the years and most recently supported HB 315, which is being sponsored by Representative Gene DiGirolamo. The bill addresses the Human Service Block Grant and calls for the return of line items to their FY11-12 funding levels. Additional information about The Arc of Pennsylvania’s 2013-2014 Public Policy Priorities can be found on their website at www.thearcpa.org. (Pictured above-Dana Zinck, Representative Ted Harhai, and Audra Barozzini) Raising Awareness Disabilities Awareness Month In honor of Disabilities Awareness Month, The Arc of Fayette County joined the campaign to “Spread the Word to End the Word.” The month long series of events and assemblies kicked-off on the steps of the Fayette County Courthouse. A rally was held in conjunction with the Fayette County Behavioral Health Administration on March 6, 2014. The Arc of Fayette County also held events at Lafayette School, Bullskin Elementary School, Uniontown Mall, and the Uniontown Wal-Mart. Over 1,200 signatures were obtained throughout Fayette County by people pledging to stop the use of the “R” word. The Arc of Fayette County believes in “people first” language and will continue to raise awareness through community outreach and education. The campaign to “Spread the Word to End the Word” originated in 2008 when college students, Soeren Palumbo and Timbo Shriver, launched a website www.r-word.org, calling for pledges of those promising to stop using the “R” word and raise public awareness. They soon partnered with Special Olympics and Best Buddies International and in 2009 the first round of “End the R Word” events were held around schools and universities across the United States. This campaign continues to grow and public policy changes have begun. In October 2010, President Obama signed into law, Rosa’s Law, which eliminates the use of the “R Word” in federal health, education, and labor laws. In 2011, Governor Corbett, signed the “Words Do Matter” bill, which strikes the “R Word” from state statutes and state use in Pennsylvania. Please visit www.r-word.org where you will find personal stories and information about the movement and while you are there, please pledge to stop the use of the “R Word.” (Pictured front row L to R-Dana Zinck, Ida Croushore, Mia Sabatini, Michael Weakland, Audra Barozzini; second row L to RLisa Ferris, Kristyne Geyer, Pam Morgan, Donald Morgan, Josephine Eckenrod, George Myers, Sharon Carrigan, and Lynn Orawiec) March was national Disabilities Awareness Month and The Arc held a nationwide event inviting people to raise awareness about people with intellectual and developmental disabilities (I/DD) by going out into the community. The Arc of Fayette County held a luncheon on March 29th at Bud Murphy’s Sports Bar and Restaurant where over 70 people spent the day eating, laughing, and socializing with their friends and family. April has been designated as Autism Awareness Month According to the Autism Society, 1% of children in the U.S. aged 3-17 have an autism spectrum disorder. It is estimated that 1 child out of 68 births will be diagnosed on the autism spectrum. 1 to 1.5 million people in the Unites States lives with an autism spectrum disorder. Experts are not sure what causes autism but theories include a combination of genetics and environment. Research is still needed and is ongoing. Autism is diagnosed by a panel of experts. If you suspect that your child has autism, you need to make an appointment with your pediatrician. The pediatrician will conduct an assessment based on the parent’s observations along with their own observations. If the pediatrician suspects that the child may have autism, he will schedule a more in depth neurological, cognitive, and speech assessment. This assessment is usually conducted by a multidisciplinary team comprised of a psychologist, neurologist, psychiatrist, and speech therapist. There are a number of resources for children and adults diagnosed with an autism spectrum disorder in Fayette County. For further information, you can contact the Fayette County Behavioral Health Administration at (724) 430-1370 or visit their website at www.fcbha.org; Highlands Hospital at www.highlandshospital.org/services/autism-center; Advocacy and parent groups in the county include Parents of Autistic Kids, (PAK)-Contact person is Lorraine Sproul at (724) 430-9824; Additional resources for information and links include Autism Speaks at www.autismspeaks.org and ABOARD at www.autism-support.org. The Adult Autism Waiver (AAW) is funding available to those diagnosed that are 21 years of age or older. Eligibility for this funding and service provision is based on age requirements, U. S. citizenship, Pennsylvania residency, and one must meet financial eligibility for income and resource limitations. To find out more about the Adult Autism Waiver, you can contact the Bureau of Autism Services at 1-866-539-7689. Occupational Therapy…Skills for the Job of Living April is Occupational Therapy Awareness Month. When you hear the word Occupational Therapy or Therapist (OT) what do you think of? Many people think it has something to do with their job, while it doesn’t have to do with your career it does have to do with the job of living. Occupational therapists work on the activities that everyone takes for granted in their daily lives until something happens that makes those activities hard to complete. The occupational therapist’s job is to evaluate what makes these every day “jobs” difficult to complete and come up with functional activities and adaptions to meet the individual’s goals. Occupational therapists can work in a variety of settings and with people of all ages. They may work in a hospital, rehab center, nursing home, outpatient center, school, or in someone’s home. An occupational therapist who works in an acute care where a person might reside after a bad accident may access the individual’s need for splints to prevent deformities or skin breakdown if bed ridden. They may teach the individual and family how to safely move around their environment. They may even visit their home and perform a home assessment if modifications are needed after discharge. For example, if someone is now in a wheelchair modifications may be needed to make doors wider or re-design a bathroom or kitchen so they can independently use it. An occupational therapist may provide adaptive equipment for someone who had a knee or hip replacement and teach them how to get in and out of a car safely, so that they do not re-injure themselves. An occupational therapist may recommend weighted utensils for someone suffering from Parkinson’s so they don’t shake as much when they eat. If someone has had a stroke an occupational therapist may help them become more aware of an affected side through exercises and functional activities. In the behavioral health system, an occupational therapist may help individuals find enjoyable and meaningful activities. They may facilitate classes on stress management and coping skills as well as teach life skills such as balancing a check book or learning basic meal preparation. At The Arc of Fayette County, the Occupational Therapist specializes in pediatrics seeing children from birth to three years of age in their home through the Early Intervention Program. A child’s occupation is play. It is through play that a child learns how to interact with the world, develop hand-eye-coordination, explore their environment, and become a functional independent person. In Early Intervention, the occupational therapist focuses primarily on the development of fine motor skills, self-help skills (holding a bottle, using utensils, dressing) and sensory processing (some children do not like to get their hands dirty, avoid certain food textures, or are too hyper or avoid interactions with their environment). There are many reasons a child may be eligible for Early Intervention OT; they may have been born prematurely, have Down Syndrome, Cerebral Palsy, Autism, or for some unknown reason are not meeting their developmental milestones. If you feel your child may be displaying a delay in any area and is failing to reach age related milestones, please contact your pediatrician as a referral for Early Intervention Services may be needed to assist. Information on services in PA can be found at www.dpw.state.pa.us/forchildren/earlyinterventionservices.com. You can also contact the Fayette County Behavioral Health Administration at 724-430-1370 and speak to someone within their Early Intervention Unit. -Submitted by: Amanda Kanouff, The Arc of Fayette County Occupational Therapist May is Mental Health Awareness Month Since 1949, Mental Health Awareness Month has been observed in May by reaching millions of people in the United States through the media, local events, and screenings. Mental Health Awareness Month also comes to The United States via the Mental Health America organization. During this month, National Health America runs a number of activities which are based on a different theme each year. The theme for the 2014 Mental Health Awareness month is “Mind Your Health.” A focus of this year’s theme is to create a motivational effort that will put toward the goal of building public recognition in regards to the importance of mental health and to the overall health and wellness of those around us. The association hopes to inform United States citizens of the connection between the mind and body and intends to provide advice, tips, and strategies that will encourage people to take positive actions and protective measures for one’s own mental health and whole body health. Free Mental Health Screenings - Axiom will offer mental health screenings and assessments to the public during the Month of May. Call (724) 439-0308 to schedule. There are several community awareness events scheduled throughout Fayette County for the month of May. Please visit the Fayette County Behavioral Health Administration’s website at www.fcbha.org for a calendar of events. March for Babies 2014 On Saturday, April 26, 2014, The Arc of Fayette County participated in The March of Dimes Campaign, March for Babies by sponsoring a table, registering a team, and fundraising. This was the 24th annual walk for the March of Dimes. There were over 50 teams with 400 walkers registered. The Arc of Fayette County’s team of “power walkers” consisted of Jaimie Tresatti, Beth Kaider, Maria Kelley, her daughter, Shannon Kelly and two grandsons, Shane and Noah Kelly. Donald Morgan, Brenda Fike and Dana Zinck greeted visitors at the Arc’s table that was set up during the walk. They were able to provide information regarding child development and Early Intervention services. The Fayette County March for Babies raised $40,000 this year. (Pictured above L-to-R: Dana Zinck, Beth Kaider, Jaimie Tresatti, Donald Morgan, and Pam Morgan) Ida’s Wrap-Up March 2014: We held our first annual End the R-Word Rally on the steps of the Fayette County Courthouse on Friday, March 6. We worked hard to make posters for the rally and had a great turn out of support from the community. The Herald Standard wrote a very nice article. You can view the article on our website at: www.arcfayette.org On March 7, Tamika Burke, Donald Morgan, and I went to Lafayette elementary school to speak to the students about ending the R-Word. I was very excited to see my first program specialist from The Arc of Fayette County, Lori, who is now a teacher there. Spring is here! Yay us! I am so ready for spring after such a long winter. April 2014: We had a contest to make the best spring wreath for the doors of our program area. Southside Sunburst won! We also had an Easter coloring day, it was so fun! Every Wednesday, each room takes turns going to Meals on Wheels. I love when it’s our turn in Candy Crush! I love helping others. Every Friday a group of program participants and staff goes out to the Laurel Mall to sell items from our store “Twice As Nice" May 2014: I am so excited about the new computer class every Thursday. I help Brenda out with the beginner class. Brenda says that I am a wonderful assistant. On May 6 we wore our Penguin Gear. “A Walk in the Spring,” By K. Clark What could be nicer than spring When little birds begin to sing When for my daily walk Through fields that once were white with snow When in green open spaces Lie baby lambs with sweet black faces What could be finer than to shout That all the buds bursting out And oh at last beneath the hill To pick a daffodil One Man’s Junk, is Another Man’s Treasure… Every Friday afternoon a group of program participants and staff from the Adult Training Facility (ATF) travel to the Laurel Mall. A former employee, Mary Budinsky, has donated an area and table of her rental space to The Arc of Fayette County. Items that have been donated to the agency have been taken to the mall and staff along with program participants spend the afternoon selling the items. The program participants are given the opportunity to work on developing vocational skills, socialization, and money management skills. Spring cleaning??? Donate your unwanted items to The Arc of Fayette County. All proceeds benefit the Adult Training Facility. Throughout the month of March several events were held in honor of Disabilities Awareness Month. A special thanks to the following for their support: The Fayette County Commissioners The Fayette County Behavioral Health Administration Sheetz-Uniontown Route 40 Uniontown Mall Wal-Mart-Uniontown Bullskin Elementary School Lafayette School Where Have the Years Gone? The year was 1974…President Nixon refused to hand over tapes subpoenaed by the Watergate Committee, a 55 MPH speed limit was imposed, Cher filed for legal separation from Sonny Bono, and on September 4, 1974 Patti Jo Crawford was hired at The Arc of Fayette County as an Aide in the Child Development Center. The year was 1978…the television show, “Dallas,” premiered on CBS, 1st class postage was 15 cents, a gallon of unleaded gasoline was 59 cents, and on November 6, 1978 Neil Dinan was hired at The Arc of Fayette County. My career at The Arc of Fayette began on September 4, 1974 as an aide at the Child Development Center. I had graduated from California University with a Bachelor of Science degree in Special Education and was eager to work with children with disabilities. I was promoted to teacher the next year at the Connellsville Center and within a couple of years was promoted to the supervisor of the Early Intervention Program in Uniontown. In 2006, I was named Director of the Home and Community Services, which included supervising the Home Based Waiver program. In my 39+ years at The Arc of Fayette County, I have had the opportunity to meet and work with many wonderful children and their families. I have also had the opportunity to work with many great professionals and non- professionals in the field of developmental disabilities. I have seen many positive changes in the field since 1974 for children and adults with disabilities I have decided that having spent 39+ years at The Arc of Fayette County, it is time for me to retire and spend time with my 2 daughters, their husbands, and my 3 grandsons. I am anxiously awaiting the arrival of 2 more grandchildren in the fall…hopefully girls. I will be splitting my retirement time between Pennsylvania and Florida. With that being said, I am sure I will miss all the children, families, and staff that I have had the pleasure to work with. Maybe if I get bored, I will apply for a part time job at The Arc of Fayette County. It has been a wonderful place to work. Thanks Arc for a wonderful career and a lifetime of memories. -Patti Jo Crawford There are many changes that occurred over 36 years of working with the same agency, but in those 36 years there has been one constant, the people we serve. Whether I have been called “Babu”, a “handsome old goat”, or “Meil” I have had the opportunity to work with the nicest, most genuine population of people for all these years. They will all be my fondest memory. People ask me “what are you going to do after you retire?” The only answer I can think of is to do what I want, when I want, for as long as I want. I believe I am going to be a “natural” at the retirement thing. -Neil Well Wishes… It is with mixed emotions that The Arc of Fayette County says goodbye to 2 outstanding individuals this summer that have spent their careers helping children and adults with disabilities throughout Fayette County. For those of you that have worked with Neil and Patti Jo, their knowledge base and genuine concern for those we support are apparent. I first met Neil and his smiling face when I was a Supports Coordinator with the Fayette County Behavioral Health Administration and regardless of the referral or support needs, Neil was always willing to give them a chance. I am happy to say that those same program participants are still attending our Adult Training Facility and they “light-up” when they see Neil coming down the hall. Over the last year and half, Neil has been a resource for me and he is always willing to offer a helping hand. I want to say thank you for supporting me during my first year and a half as Executive Director. I first got to know Patti Jo when I was a Casework Supervisor with the Fayette County Behavioral Health Administration as we would meet monthly to review the Home-Based Waiver caseloads. It amazed me that she knew all the program participants and it still amazes me…no matter the name, Patti Jo can give you their background information. If you have had an opportunity to attend an annual Fayette County Board Meets Board Night, then you have heard the Early Intervention families thank Patti Jo for her support and guidance through the years. Patti Jo has held several positions at the agency over the 39+ years and if I have a historical question about the agency, I know I can rely on Patti Jo for the answer…thanks for all your support and assistance over this last year and a half. I would like to wish both Neil and Patti Jo a very relaxing and rewarding retirement!! They will be missed by the program participants, families, and staff at The Arc of Fayette County. Thank you and God bless!! -Audra Barozzini, Executive Director -Patti Jo, It was a pleasure working with you and getting to know you. Thank you for sharing all your experience and knowledge with me. Also, thank you for making me feel welcome when I came to The Arc of Fayette County. Enjoy your retirement with your family, especially those grandbabies. Dana -Neil, I remember when we worked for competing day programs. It was a pleasure working with you at the Arc for the past year. Thank you for all your help. Relax and enjoy your retirement. Dana -Neil and Patti Jo, Thanks for welcoming me with open arms to the Arc Family. It was a pleasure to call you a co-worker. Good Luck and I hope your retirement treats you well. Sincerely, Donald -Neil and Patti Jo, Good luck and hope your retirement is relaxing. Enjoy it! Janet To Neil Written by: Kelli R. Newell Your voice, your actions, your demeanor… Every bit of you we are going to miss for sure… Your sense of humor and sense of style… Will surely be remembered fondly for quite a while… Your skills, your abilities, your star qualities will Be recalled, along with other memories… Now can you see how much we care about you… Which we will always continue to…. For teaching us a lot of wisdom that cannot be learned by reading… And knowledge that cannot be bought, farewell dear boss… In life, whichever way you go… All your talents may you always show… I hope you pursue your future dreams… Lots of good wishes to you from me… -Neil, It has been great working with you. Our room worked as a team. I have learned so much from you and your guidance has helped me become the person I am today. From bake sales to ball games, it has been a great journey. Although you will be gone, you will not be forgotten. You will be truly missed. Enjoy Retirement! Thank you! Jaimie T. Upcoming Events Pirate Game-May 20, 2014 for Home and Community Habilitation Program Participants Pirate Game-June 19, 2014 for Adult Training Facility Program Participants Home-Based Waiver Picnic-July 17, 2014 3p-7p at Fairchance Playground/Ballparkplease RSVP to 724-438-9042 Dana Zinck Idlewild Day-July 25, 2014 (Adult Training Facility) New to the Adult Training Facility-Computer classes are being held every Thursday in our computer lab. There is a beginner’s class and intermediate class for those that wish to participate. The Arc of Fayette County will be closed in observance of the following holidays: Memorial Day, Monday, May 26, 2014 Independence Day, Friday, July 4, 2014 Labor Day, Monday, September 1, 2014
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