The International Classification of Functioning, Disability and Health (ICF): Implications for Rehabilitative Audiology Travis Threats Donna Fisher Smiley Jean-Pierre Gagné David Wark Travis T. Threats, Ph.D. Associate Professor, Chair Department of Communication Sciences and Disorders Saint Louis University 3750 Lindell Blvd. St. Louis Mo, 63108 [email protected] World Health Organization’s Definition of Health “Health is the state of complete physical, mental, and social well-being and not merely the absence of disease or infirmity.” n National Committee of Vital Health and Statistics (NCVHS) n n n Medical Advisory Board of the Department of Health and Human Services In 2001, wrote report entitled “Classifying and Reporting Functional Health Status” Documented lack and need of data on functional status NCVHS report n The point has already been made that administrative data generally do not include information on functional status. The significance of this fact is that information on this dimension of healthincreasingly the sine qua non for understanding healthis not available to the health care system (e.g., insurers and health plans), nor to the researchers, public health workers, and policy makers who depend on administrative data NCVHS report n Without functional status information, the researchers, policy makers, and others who are already using administrative data have at best a rough idea of how people, individually and collectively, are doingand at worst they are making erroneous assumptions and decisions. ICIDH (1980) 1980 Version- International Classification of Impairments, Disabilities, and Handicaps (ICIHD) n Set out broad framework of health and disability having more than one aspect n Existed with competing frameworks, particularly Nagi n Widely discussed, but the classification system itself was too ambiguous and narrow in scope to be used for epidemiology or as an outcome measure. 2001 International Classification of Functioning, Disability, and Health (ICF) In 1995, WHO began to revise it in such a way as to take advantage of the additional knowledge in the field of disability and make classification that people WOULD ACTUALLY USE. Significant changes including 1) no longer unidirectional, 2) use of neutral terminology, 3) greatly expanded with operational definitions, 4) addition of Environmental Factors, and 5) extensively field tested. Why is this needed? Knowing the disorder/disease does not predict functional health outcomes ICF n n Biopsychosocial approach- Does not fall into only medical or social model camps Thus, individual’s health is viewed from a biological, individual, and social perspective Aims of ICF ICF is a multipurpose classification designed to serve various disciplines and different sectors. Its specific aims can be summarized as follows: To provide a scientific basis for understanding and studying health and health-related states, outcomes and determinants; Aims - 2 To establish a common language for describing health and health-related states in order to improve communication between different users, such as health care workers, researchers, policy-makers and the public, including people with disabilities; Aims - 3 To permit comparison of data across countries, health care disciplines, services and time; To provide a systematic coding scheme for health information systems. Applications of ICF n n As a statistical tool – in the collection and recording of data (e.g. in population studies and surveys or in management information systems); As a research tool - to measure outcomes, quality of life or environmental factors Applications - 2 n n n As a clinical tool – in needs assessment, matching treatments with specific conditions, vocational assessment, rehabilitation and outcome evaluation; As a social policy tool – in social security planning, compensation systems and policy design and implementation; As an educational tool – in curriculum design and to raise awareness and undertake social actions. ICF Framework Health Condition (disorder/disease) Body function&structure (Impairment) Activities (Limitation) Environmental Factors Participation (Restriction) Personal Factors Body Structures CHAPTER CHAPTER CHAPTER CHAPTER 1 2 3 4 CHAPTER 5 CHAPTER 6 CHAPTER 7 CHAPTER 8 Structures of the nervous system The eye, ear and related structures Structures involved in voice and speech Structures of the Cardiovascular, Immunological and Respiratory systems Structures related to the Digestive, Metabolic and Endocrine systems Structures related to the Genitourinary and Reproductive system Structures related to movement Skin and related structures Body Functions CHAPTER CHAPTER CHAPTER CHAPTER 1 2 3 4 CHAPTER 5 CHAPTER 6 CHAPTER 7 CHAPTER 8 Mental Functions Sensory Functions and Pain Voice and Speech Functions Functions of the Cardiovascular, Hematological, Immunological and Respiratory Systems Functions of the Digestive, Metabolic and Endocrine systems Genitourinary and Reproductive Functions Neuromusculoskeletal and movementrelated functions Functions of the skin and related structures ACTIVITIES AND PARTICIPATION CHAPTER 1 CHAPTER CHAPTER CHAPTER CHAPTER CHAPTER CHAPTER 2 3 4 5 6 7 CHAPTER 8 CHAPTER 9 Learning and applying knowledge General tasks and demands Communication Mobility Self-care Domestic Life Interpersonal interactions and relationships Major life areas Community, social and civic life ENVIRONMENTAL FACTORS CHAPTER 1 CHAPTER 2 CHAPTER 3 CHAPTER 4 CHAPTER 5 Products and technology Natural environment and human-made changes to environment Support and relationships Attitudes Services, systems and policies Personal Factors n n n Not coded in ICF because of wide international variability and thus could not agree upon codes Still is included in framework because of its importance to understanding functioning and disability Includes lifestyles, socioeconomic level, education, race, ethnicity, coping mechanism, past experiences, other health factors, cultural factors, etc. Universal Qualifiers ICF codes are never to be used without qualifiers xxx.0 xxx.1 xxx.2 xxx.3 xxx.4 xxx.8 xxx.9 NO problem (none, absent, negligible) 0-4% MILD problem (slight, low…) 2-24% MODERATE (medium, fair) 25-49% SEVERE (high, extreme, …) 50-95% COMPLETE (total…) 96-100% not specified not applicable Activity/Participation Qualifiers n Uses Universal Qualifier ranges for all four qualifiers • Performance- how person does in their natural environment • Capacity without assistance – how person does in clinical setting without assistance • Capacity with assistance – how person does in clinical setting with assistance • Performance without assistance- how person would perform in environment without assistance Environmental Factors Qualifiers Can either be a Barrier or a Facilitator n n Universal qualifier applies to barriers or impediments to function Facilitating qualifiers • +0 • +1 • +2 • +3 • +4 – No facilitator – Mild facilitator - Moderate facilitator - Substantial facilitator – Complete facilitator Clinical/Research outcomes using ICF framework 1. 2. 3. Increased attention regarding Activity/Participation domains, especially how to assess, enhance, and quantify changes in persons’ actual lives Increased attention regarding examination of Environmental Factors in the rehabilitation process, including family members Increased attention regarding understanding the relationship between Body Structure/Function and the Activity/Participation domains ICF outcomes - 2 4. Increased attention regarding possible relevant Personal Factors in the rehabilitation process 5. Increased attention regarding quality of life issues related to specific clinical outcomes 6. Increased attention regarding the functioning and disability of family members (i.e. “third-party disability”) ICF Future n n n Procedural Manual and Guide for the Standardized Use of the ICF: A Manual for Health Professionals, expected publication 2007 ICF for Children and Youth, expected publication 2007 Increased integration/separation of ICF with ICD ICF – Health Policy and Reimbursement n n n n Interest of Margaret Gianniti, M.D. who is appointee of Director of Office of Disability in the Department of Health and Human Services Centers for Medicare and Medicaid and Social Security Administration considering it Veteran’s Administration Hospitals have high interest in it Private insurances, including ones handling disability insurance looking at it. ICF – Health Policy n n n Classifying Functional Health Status- a report discussing ICF for administrative records by the National Vital Health Statistics Committee of the Department of Health and Human Services In all Centers for Disease Control and Prevention documents relating to functional health and in health/disability surveys To be used in 2007 AMA Guide for Determination of Permanent Impairment NCVHS report and ICF n “The concepts and conceptual framework of the ICF have promise as a code set for reporting functional status information in administrative records and computerized medical records. In the Committee’s view, the ICF is the only existing classification system that could be used to code functional status across the age span” ICF and Professional Organizations n n n n n In American Speech-Language-Hearing Association (ASHA) Scope of Practice for SpeechLanguage Pathology, and Scope of Practice for Audiology In key practice documents for American Occupational Therapy Association, National Association of Social Workers, American Recreational Therapy Association Significant work and inclusion by American Psychological Association Being considered by American Nursing Association Adopted by International Society for Physical Medicine and Rehabilitation ICF – International sampling n n n n n Adopted in Japan’s national health program Use in Scandinavian countries Training to health professionals including Italy, South Africa, and Australia Considerable study in Canada, Germany, Thailand, France, Austria, Brazil, Russia, United Arab Emirates, Netherlands, China ICF Global Awareness Campaign, spearheaded out of the UK Applications of the ICF to Educational Audiology Donna Fisher Smiley, Ph.D., CCC-A Assistant Professor & Audiologist Department of Speech Language Pathology University of Central Arkansas 201 Donaghey Avenue Conway, AR 72035 [email protected] Children and Youth with Auditory Disorders n n n Old view: Medical model New view (ICF): Biopsychosocial model Need to consider functional status of our pediatric patients The “TEAM” n n n n n n n n The Individual The Individual’s Family Members Regular Education Teacher Special Education Teacher Deaf Educator Managing Audiologist Educational Audiologist Speech-Language Pathologist Case Example n n n n 3rd grader; female Moderate, bilateral sensorineural hearing loss Wears binaural amplification Uses a personal FM system at school n n Has speech and language impairments/delays (receptive and expressive) Is experiencing limitations/restrictions in: • • • • • Hearing in background noise Analyzing problems Reading Writing Telling a story ICF Coding: Body Functions n B1: Mental Functions • b1646 Problem solving • b16700 Reception of spoken language • b16701 Reception of written language • b16710 Expression of spoken language • b16711 Expression of written language n B2: Sensory function and pain • b2300.2 Sound detection n B3: Voice & speech function • b320 Articulation function Activities and Participation n D1: Learning & Applying Knowledge • • • • n d115 d140 d145 d175 Listening Learning to read Learning to write Solving problems D3: Communication • • • • • d310 d325 d330 d345 d350 Receiving spoken messages Receiving written messages Speaking Writing messages Conversation n D8: Major Life Areas • d820 School education Environmental Factors n E1: Products and technology • e125 Products for technology for communication • e1301 Assistive products for technology for education n n n E3: Support and relationships E4: Attitudes E5: Services, systems and policies References Fisher, D.L. & Thelin, J.W. (1999). The World Health Organization model of functioning and disability applied to audition. Journal of Educational Audiology, 7, 42-49. Simeonsson, R.J. (2003). Classification of communication disabilities in children: Contribution of the International Classification on Functioning, Disability and Health. International Journal of Audiology, 42, S2-S8. World Health Organization. (2001). International classification of functioning, disability and health. Geneva: Author. The ICF: A major paradigm shift for adult audiological rehabilitation Jean-Pierre Gagné École d’orthophonie et d’audiologie Université de Montréal C.P. 6128, succursale Centre-Ville Montréal, Québec, Canada, H3C 3J7 [email protected] Outline of Presentation 1. 2. 3. 4. Implications of ICF re: AR Definition of AR A problem-solving approach to AR Some key elements of problem solving International Classification of Functioning, Disability and Health (ICF: WHO, 2001) Health Condition (disorder/disease) Body function&structure (Impairment) Activities (Limitation) Environmental Factors Participation (Restriction) Personal Factors 1. Implications of ICF (WHO, 2001) re: Audiological Rehabilitation Implications for AR…: § The domains of ACTIVITY and PARTICIPATION forces a much more functional approach to rehabilitation § It places the focus of AR on optimizing participation in activities rather than on focusing on impairments and disabilities § participation in real-life every day activities § activities judged important (relevant) by the persons who participate in the intervention program (not by the professional) 48 Implications for AR…: § It recognizes that there is a very personal and “subjective” dimension to what constitutes activity limitations and restricted participation § Each activity is unique Due to: • the personal factors of the persons (participants) involved in the activity • the environmental factors (physical and social) in which the activity takes place Implications for AR…: It makes it possible (almost necessary) for the people involved in the activity limitations and/or participation restrictions to play an active role in every component of the intervention program. Implications for AR …: Generic intervention programs (such as wearing a hearing aid, participation in a communication management training program, etc..) may constitute potential intervention strategies (tools) that may be applied to overcome activity limitation and participation restriction. *Tools/approaches/strategies • GOALS Implications for AR…: It clearly specifies that persons who do not have a hearing impairment may be candidates for AR intervention. Third party disabilities 2. DEFINITION OF AR Based on the nomenclature of the ICF (WHO, 2001) The goal of AR is to restore or optimize participation in activities considered limitative by persons who have a hearing impairment and/or by other individuals who partake in activities that include persons with a hearing impairment. (Gagné, E&H, 21, p. 65s., 2000) 4. AR is a solution-centered problem-solving process General sequence of events that apply to problem-solving in AR 1. Recognize that there is a problem associated with an activity. 2. Identify the problem. 3. Describe the limitations). problem (participation Sequence of events… 4. Set objectives and define desired outcome taking into account: • the impairment • the activity • the nature of the participation restriction • the personal factors of all the persons involved • the environmental factors (physical and social) Sequence of events… 5. Identify possible solutions (Hearing aid, HAT, communication strategies, etc.). 6. For each solution identified, analyze and evaluate the implications of choosing that solution. 7. Select one (or more) acceptable solution. 8. Implement the solution (the therapy: practice in implementing the solution: clinic, secure environment, real-life) sequence of events… 9. Evaluate the effect of applying the solution (re: the objective 10. Identify the factors that facilitated, or constituted and impediment to, the implementation of the solution 11. Identify and evaluate the impacts and consequences of the intervention program. sequence of events… 9. Evaluate the effect of applying the solution (re: the objective 10. Identify the factors that facilitated, or constituted and impediment to, the implementation of the solution 11. Identify and evaluate the impacts and consequences of the intervention program. 4. Key elements of a problem solving approach Key elements ..: Functional approach The goal is to solve specific problems experienced by the people who participate in certain activities. Problems that are identified as being important by the persons. Key elements ..: The client must be involved in every step of the problem solving process. Key elements ..: Defining the objective of an intervention program and identifying the critical elements of goal setting (McKenna, 1987). Keywords: Who Will do what Under what circumstance What is the criterion The timeline Example of goal setting… After watching the evening news, Mr. So-and-so, will be able to discuss the main news report of the day without having to ask his wife for any clarifications concerning the news story. This goal will be reached within three weeks, after Mr. So-and-so purchases and installs an infrared amplification system for watching the television. Whenever she uses the agreed upon strategy (flicking the light switch) Mr. Smith will come upstairs for dinner after the first time that Mrs. Smith calls him. This goal will be reached constantly (100% of the time) within a week of its implementation in the household. Key elements ..: Teach the problem solving approach to the client(s) Thank you for your time and for the interest you may have in my work. I welcome your: qReactions qQuestions qComments References Gagné, J.-P., & Jennings, M.-B. (2000). Intervention services for adults with acquired hearing impairment. In M. Valente, R. J. Roeser, & H. Hosford-Dunn (Eds.), Audiology Treatment. NY: Thieme Press. (2nd edition to be published in March 2007). Gagné J.-P. (2000). What is treatment evaluation research? What is its relationship to the goals of audiological rehabilitation? Who are the stakeholders of this type of research? Ear Hear 2000; 21(Suppl):60-73S Gagné J.-P. (2003). Treatment effectiveness research in audiological rehabilitation: fundamental issues related to dependent variables. International Journal of Audiology, 2003:42, S104-S111. McKenna, L. (1987). Goal planning in audiological rehabilitation. British J. Audiology, 21, 5 - 11, 1987. The International Classification of Functioning (ICF): Implications for Rehabilitative Audiology David J. Wark School of Audiology & Speech Pathology University of Memphis 807 Jefferson Avenue Memphis, Tennessee 38105 [email protected] “I saw no evidence in my survey of the literature of a widespread clinical routine in this country in which there is a systematic and comprehensive effort to assess the full implications of an adventitious hearing loss so as to develop an effective rehabilitative strategy.” Ross, 1987 Audiology is Rehabilitation “Consulters appear to have more disability (measured by performance testing and self-report) than nonconsulters with similar impairment, and they rate themselves more handicapped than non-consulters with similar disability.” Swan & Gatehouse, 1990 ICF Framework Health Condition (disorder/disease) Body function&structure (Impairment) Activities (Limitation) Environmental Factors Participation (Restriction) Personal Factors Audiology Assessment (ICF) Health Condition (disorder/disease) Impairment Case History Test Battery Activities Interview Self-Report Environmental Interview Self-Report Participation Interview Self-Report Personal Interview Self-report Assessment of Activity & Participation Case History/Interview Tell me about: The problems you are having with your hearing The effects of hearing problems on your life The kinds of activities you are involved in The problems you have in these activities The activities you like to do that you have stopped doing The new activities you would like to undertake Kiessling et al. (2003) “It seems that audiologists assume that by improving Impairments and Activity Limitations, this will reduce Participation restrictions.” and recommend “…the direct assessment and management of Participation…” Hickson & Worrell, (2001) Assessment of Activity & Participation Case History/Interview Emphasis on Participation: What would you like to participate in? What is stopping you from participating? What were you involved in two years ago? What are you doing now? Why the change? What can be done so that you can return to things you used to like to do? Hickson & Worrall (2001) Assessment of Activity & Participation Self-Report Screening HHIE Hearing Aids (Benefit/Satisfaction) APHAB GHABP Comprehensive Assessment CPHI Self-Report Interpretation n Content-based interpretation • Measurement intent, construct • Item content • Response Scale n Norm-based interpretation • Mean, SD Demorest & Walden, 1984 Assessment of Activity and Participation Domains Self-Report n Screening Instruments Hearing Handicap Inventory for the Elderly. (HHIE) Hearing Handicap Inventory for the Elderly (HHIE) Ventry & Weinstein (1982) n n Does a hearing problem cause you to visit friends, relatives or neighbors less than you would like? Does a hearing problem cause you to listen to TV or radio less often than you would like? Assessment of Activity and Participation Domains Self-Report n Hearing Aid Instruments • Abbreviated Profile of Hearing Aid Benefit (APHAB) • Glasgow Hearing Aid Benefit Profile (GHABP) Abbreviated Profile of Hearing Aid Benefit (APHAB) Cox & Alexander (1995) n n n n I have difficulty hearing a conversation when I’m with one of my family at home. I miss a lot of information when I’m listening to a lecture. Traffic noises are too loud. The sound of screeching tires is uncomfortably loud. Glasgow Hearing Aid Benefit Profile (GHABP) Gatehouse (1999) n n n n Listening to the television with other family or friends when the volume is adjusted to suit other people. Having a conversation with one other person when there is no background noise. Carrying on a conversation in a busy street or shop Having a conversation with several people in a group. Assessment of Activity and Participation Domains Self-Report n Comprehensive Instrument • Communication Profile for the Hearing Impaired (CPHI) Demorest & Erdman, 1987 Erdman & Demorest, 1998 ICF and Audiology Litigation Hearing Impairment Question on 1st examination for new Au.D. students in a basic testing course. “Briefly describe how the 2001 ICF framework might provide you with guidance in your approach to a new client in your audiology clinic.” “During the initial interview with a new client, one of the most important things to learn is why they have come in. Most of the time a client comes to an audiologist because of a specific hearing related problem and it’s effect on his or her lifestyle. It is important to understand the specific frustrations an individual is experiencing because, ultimately, the audiologist’s goal is to address those issues.” “If a person is unable to perform his or her job (activity limitation) or unwilling to spend time with others (participation restriction) due to hearing loss, the audiologist’s goal is not just to raise the person’s thresholds, but also to help that person be rehabilitated into the activities that he or she needs and wants to be part of.” A Student References Alpiner, J. Chevrette, W., Glascoe, G., Metz, M. & Olsen, F. (1977) in: J. Alpiner (Ed.) (1978): Handbook of adult rehabilitative audiology (1st ed.) (pp. 53-56). Baltimore: Williams & Wilkins. Cox, R. & Alexander, G. (1995). The Abbreviated Profile of Hearing Aid Benefit. Ear & Hearing, 16;176-186. Demorest, M. E., & Erdman, S. A. (1987). Development of the communication profile for the hearing impaired. Journal of Speech and Hearing Disorders, 52(2), 129-143. Demorest, M. E., & Walden, B. E. (1984). Psychometric principles in the selection, interpretation, and evaluation of communication selfassessment inventories. Journal of Speech and Hearing Disorders, 49, 226-240. Dillon, H. James, A., & Ginis,J. (1997). Client Oriented Scale of Improvement (COSI) and it’s relationship to several other measures of benefit and satisfaction provided by hearing aids. Journal of the American Academy of Audiology, 8;27-43. References cont. Erdman, S. A., & Demorest, M. E. (1998a). Adjustment to hearing impairment i: Description of a heterogeneous clinical population. Journal of Speech, Language, and Hearing Research, 41(1), 107122. Erdman, S. A., & Demorest, M. E. (1998b). Adjustment to hearing impairment ii: Audiological and demographic correlates. Journal of Speech, Language, and Hearing Research, 41(1), 123-136. Gatehouse, S. (1999). Glasgow Hearing Aid Benefit Profile: Derivation and validation of a client-centered outcome measure for hearing aid services. Journal of the American Academy of Audiology, 10(2), 80103. Giolas, T., Owens, E., Lamb, S., and Schubert, E. (1979). Hearing Performance Inventory. Journal of Speech and Hearing Disorders, 44;169-195. Hickson, L. & Worral, L. (2001). Older people with hearing impairment application of the new World Health Organization International Classification of Functioning and Disability. Asia Pacific Journal of Speech, Language, and Hearing, 6, 129-133. References cont. Hickson, L. & Worral, L. (2003). Beyond hearing aid fitting: Improving communication for older adults. International Journal of Audiology, 42, S84-S91. Kiessling, J., Pichora-Fuller, M., Gatehouse, S., Stephens, D., Arlinger, S., Chislom, T. et al. (2003). Candidature for and delivery of audiological services: Special needs of older people: International Journal of Audiology, 42, S92-S101. Schow, R. L., & Nerbonne, M. A. (1982). Communication screening profile: Use with elderly clients. Ear and Hearing, 3(3), 135-14. Stephens, D. & Hétu, R. (1991). Impairment, disability and handicap in audiology: Towards a consensus. Audiology, 30, 185-200. Swan, I. R. C., & Gatehouse, S. (1990). Factors influencing consultation for management of hearing disability. British Journal of Audiology, 24, 155-160. Ventry, I. M., & Weinstein, B. E. (1982). The hearing handicap inventory for the elderly: A new tool. Ear and Hearing, 3(3), 128134.
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