Spring 2017 Newsletter Helping families find peace and hope! Today While The Blossoms Still Cling To The Vine In the beautiful month of May, we celebrate mothers and caregivers and all that they represent. HOPe embraces tenacity as we witness parents fight for every inch of success for their child. We admire perseverance as we watch families endure heartbreaking setbacks. We applaud progress, big or small, as we recognize the little successes mean everything to our families. We accept the things we can not change and move forward hopefully into the joy that is ours today. I am always awed by the magnificent job mothers are doing for their children. There is nothing more beautiful than hearing a parent share a success story with a member of our team. The day my son, Timmy, was born was the best day of my life. I will never forget the overwhelming feeling of wholeness I had that day. My life was now complete and I would never need anything more. Timmy was born at Princeton Hospital where we lived in 1996. Tim scored “9” on the Apgar scale, but the doctor said he thought Tim had “low set ears” and he would like to test him for any potential chromosomal abnormalities. To me, Tim was perfect and this doctor was a bit over the top with the testing, which turned out to come back “normal”, a word that would haunt me for years. When Tim turned one, I remember another doctor recommending Tim undergo tests by a developmental pediatrician. Love really can be blinding, because I still couldn’t fathom what these doctors were seeing. In hindsight, Tim showed many classic signs; he was not walking, talking or expressing himself in any kind of constructive way. This year Timmy turns 21, which is a major milestone for our family. We have endured tremendous challenges, yet we have continued to develop our faith in God, the love in our hearts, the knowledge that all of this will make sense one day, and perhaps most importantly, our sense of humor. This Mother’s Day, we want to acknowledge all the families who have reached milestones. This past year, we were able to share in many victories that both our children and families achieved. Many of our HOPe children were able to celebrate the freedom of sleeping away from home for the first time, or to experience the wonders of going out into the community for an adventure. Molly can sit and create beautiful paintings for over an hour. Caitlin helps out with Saturday’s cooking group and is an engaging, proactive participant. Kevin keeps asking to come to sleepovers. These are the triumphs we share together. In the end, I was right all along, there is nothing wrong with Timmy. Nor is there anything wrong with any of our children. Timmy has brought the good in people around him to life, showing the love, the patience, and the amazing spirit of humanity that there is in the world. To be able to do this is a beautiful gift, a wondrous insight into how God must view the world. There could never be anything wrong with someone with this incredible ability. Thus, there is nothing “wrong” with our special children; rather, they are blessed with an aptitude to highlight the indomitability of the human spirit. Here’s to the mothers who see the beauty in each child and to the many milestones we will reach together. Love to all, Paula Kavolius Paula Kavolius - Founder “A million tomorrow’s shall all pass away, ‘ere I forget all the joy that is mine today.” - John Denver House of Possibilities • 350 Washington Street • North Easton, MA 02356 www.houseofpossibilities.org The Gift of a Social Often, we can take for granted the little things in life that our children do, such as outings with friends or sleepovers. For Natasha, it took almost 18 years for her to partake in her first sleepover, and it was here, at HOPe. Natasha would first only attend dinners at HOPe during a regular overnight and would make promises to staff that she would someday stay the full evening. Natasha’s mom was very scared to have her at HOPe as she had never spent a night away, but was reassured by the caring and well trained staff. After committing to her first full overnight, she made it through with a smile. Mom emailed HOPe stating “yesterday Carl Carl loves people and everyone he meets loves him. All of us can learn from Carl’s cheerful smile and genuine interest in everything around him. He most enjoys going out in the community, where he makes and maintains friendships along the way. It is a frequent occurrence to see Carl having a conversation with someone he has just met during one of our outings, asking for their name and following up with how their family is or what they do for a living. Carl also has an inquisitive mind, always trying to learn and read more. One of his favorite community activities is when we go to the Brockton Recycling Center and visit their Book Swap, where every week he brings different books to swap out and read. On any given day he may be reading an architectural digest or a medical book. When asked what he likes about the books, he replies, “I like the pictures, the stories - all of it.” Thank you Carl for teaching us that all of it is a gift and that if we learn to be more like you, laugh more, care more, learn more, we can make this world a better place. Life morning we picked up Natasha with a large smile on her face, and she was asking when her next sleepover was!” Mom, Marta, expressed “this was a huge milestone for Natasha and us! But only possible because of your giving and dedicated staff! I have never found a program that I could trust Natasha to be so appropriately cared for. You have changed her life experience, and you have given her the gift of a social life!” Molly From day one at HOPe, Molly has never suffered from a lack of energy! When she first arrived, she immediately took off to climb around the playground, as staff quickly made chase to ensure her safety. Molly was another child that required staff to always be watchful, because on a whim she could take off like a rocket, or decide she wanted to try and climb a bookcase. At HOPe, our intention is never to bridle a child’s enthusiasm, but rather, to channel it in a productive medium. For Molly, that medium was painting. Molly’s creativity is astounding, and when she gets a paint set in front of her, all the energy that she used to express physically now flows across the paper with her brush. It is truly astounding to see how sharply she can focus on creating a work of art, when once she had such trouble staying still for even a few moments. This is a true milestone that continues to keep our eyes wide open, and proud of the inner, hidden talents that our children have, and we can foster while Molly visits us at HOPe. Tyler When Tyler first arrived at HOPe, he had trouble with consistently following along with our programs. Some days, Tyler would demand to be placed in front of the washing machine so he could soothe himself with its repetitive motion and sounds. Other times, Tyler would be running around getting into everything, and unknowingly put himself in dangerous situations. Tyler required one-on-one, constant attention and could not be left alone. Through the patient and nurturing care of our amazing staff, and thanks to the kindness and friendliness of his peers, Tyler now thrives in group settings. He has made great friends here that he looks forward to socializing with, and is now able to attend our Overnight programs without incident. His sense of independence continues to develop, as Tyler is now able to communicate his food allergies, prepare his own food and clean his own dishes. The life skills he has developed are a paramount example of HOPe’s mission, and we could not be more proud of Tyler and all he has accomplished! Jordan Community Give Back We have all heard it takes a village to raise a child, and it takes an even more giving and caring village to raise our special children. The community we belong to is truly amazing and supportive. In particular, our local Police and Firefighters go above and beyond to make necessary accommodations when coming to HOPe for alarm testing, or drills, making sure we are fully aware, and any sensitivities and needs are met, including silencing alarms. At HOPe we feel it is important to recognize those who support us on a regular basis by giving back. This past November, HOPe Club did just that, they spent the evening baking homemade treats, and gave back. Hope Club made a special surprise trip to our local Police and Fire Departments to drop off their home made baked goods as a sign of appreciation of their support and dedication to all of us at HOPe. Not only were they thrilled and thankful to have the treats, the whole crew got to tour the firehouse and the trucks, and they tried on helmets and gear. HOPe is so thankful to have such dedicated first responders who have the patience and understanding needed to keep us safe at HOPe. Jordan has been one of the bravest and most energetic gifts to our HOPe family. When Jordan made her initial visit to HOPe, she struggled mightily. Her behavioral issues prevented her from fully engaging in our activities. Jordan is a strong-willed, independent girl, who knows exactly what she wants. HOPe is fundamentally committed to our policy that no child will be turned away, no matter how extreme their behavioral problems may be. If nowhere else, there is a sanctuary for every child here at HOPe. Jordan now visits HOPe nearly every weekend and is an active participant in Adventure Club, Overnight Respite, and Vacation Week programs. She is friendly, happy, lovable, and we all look forward to her visits every bit as much as she does. Jordan has created lifelong friendships at HOPe, the types of friendships we all strive for and can learn from. We would all be lucky to be as charismatic as Jordan, with her inner desire to please and grow, a true milestone and true triumph at its best! Save The Date! A Remarkable Night of Inspiration Please mark your calendars to join us on Thursday, June 15th at the Four Points by Sheraton Norwood for HOPe’s seventh annual Embracing Possibilities Gala! This special event brings together hundreds of business leaders, advocates, and families who have a passion for making a difference in the lives of individuals with developmental disabilities. Our annual gala is our signature fundraising event that raises critically needed funds to support our clients, maintain high-quality programs, and reach out to more families in need. This year, we are thrilled to welcome back, by popular demand,worldrenowned Irish Tenor, medical doctor, recording artist, and Paralympian, Dr. Ronan Tynan! Born with a lower limb disability, Dr. Tynan has persevered throughout life’s most difficult challenges with enormous passion and determination. He attributes his success to his faith and the knowledge that the man above guides him through every door he opens. When he was twenty, his legs had to be amputated below the knee after an auto accident caused serious complications. Just weeks after the operation, he was climbing up the steps of his college dorm, and within a year, he was winning gold medals in the Paralympics as a multitalented athlete. Between 1981 and 1984, Tynan amassed eighteen gold medals and fourteen world records of which he still holds nine. We are extremely excited to share his incredible talent with you. Thursday, June 15, 6-10 pm Dr. Tynan’s performance at last year’s Gala was so moving, and the feedback we received from attendee’s was so overwhelmingly positive, that we are honored and thrilled to say that he has accepted our invitation to once again grace us with a performance. Though Ronan enjoyed singing as a boy, he did not seriously consider formal voice study until he was 33, when he was well into his residency as a physician. His quick success is a typical development in a life of extraordinary achievement. Ronan won both the John McCormack Cup for Tenor Voice and the BBC talent show Go For It less than one year after beginning his study of voice. The following year, he won the International Operatic Singing Competition in Maumarde, France. In 1998, Tynan joined Anthony Kearns and John McDermott (later Finbar Wright) as The Irish Tenors, an instant worldwide sensation. HOPe could not be prouder to share Dr. Tynan’s gift with our patrons, a shining example that disability does not preclude an individual from leading a full, happy, and accomplished life. For more information about the Gala, please visit: www.houseofpossibilities.org. Bringing Art for the Heart HOPe with a If a picture is worth a thousand words, then a painting is surely worth more, for it often captures the thoughts and feelings of the artist, telling a story that words cannot. Painting is a wonderful medium for people of all abilities to use their creativity to express themselves in a beautiful way. Our Stonehill Service Corps Member and resident artist, Chanel Mazzone, loves to bring the joy of art to others by hosting “Paint Nights,” where she takes children through the creation of their very own work of art, step by step. Our inaugural Paint Night in November was led by Chanel and put on for the staff of HOPe, as a way to unwind and paint some fun snowmen to welcome winter. This was the first of many paint nights, which all snowballed from this event. Through Paint Night, we’ve enabled the children and adults, the staff, and our community of friends to create lovely paintings ranging from spring flower scenes to owls against a purple sky. The most special participants of these painting events are the children and adults of HOPe. The Easton Cultural Council generously awarded us a grant that allowed us to purchase the paint supplies, including canvases, palettes, brushes, and the paints. The children of HOPe were treated to a special “PaintA-Long,” and guided through painting either a heart or an owl, Wednesday Wednesdays are my favorite day of the week. Is it because it means we are halfway through the week? Nope. Does something special happen that day, then? Yes! Every week, I get to take my trusty crew of four to Brush and a Canvas or something left completely up to their own vivid imaginations. These children dove headfirst into the painting process, quick to pick out their favorite colors, mix their own paints, and let their creativity run wild. It was wonderful to see children express themselves so freely and constructively, painting as many different creations as they could imagine. In the Adult Day Habilitation Program, one Friday afternoon, we brought out the paints and canvases. They loved it so much that asking to paint has quickly become a frequent request. Often, these paintings will be done in honor of various family or staff members. In Chanel’s own words, “it completely fills your heart to see others enjoy something you love so much and experiencing the wonder of expressing yourself in a different medium.” Some of these Paint Nights have even served as fundraisers for HOPe, put on by our committed friends in the community. At Stonehill College, we were joined by over 80 students on a Saturday night for their annual Paint to Donate event, raising $500 in support of HOPe. The students were elated to be there, and really took the time to understand the mission of HOPe and what their donation meant. Kathleen Nardi also hosted her own Paint Night at Red Mill Village in Norton, joined by many of the lovely members of that community, who were equally engaged in the painting process. Shredding Mansfield Shredding, where my team volunteers to shred important documents. This may seem like a trivial task to some, but amongst this crew, it has been a source of fun, of learning, and of accomplishment. Since taking on this group, I have seen growth in each of my shredders. They have learned many useful skills such as teamwork, dedication, communication, and independence. They genuinely look forward to their work, usually asking about it as soon as the week starts. It is perhaps most impressive that they all take on their own roles and work seamlessly together as a team. Alex likes to lead on the vacuuming and clean-up, working meticulously to clean every inch of the office. Jamie has become quite the efficient shredder, and will often be found working right up to when we leave, trying to shred every last box and taking the initiative to partner up and help his peers. Stephen will do the same, always the one to shout out “bag check!” when the bag needs to be swapped out. Lastly, Danny leads the group in fun banter and conversation, forming good relationships with the staff there while keeping focused, sorting the papers for the shredders, and keeping morale sky high! This group is truly incredible and I have so many wonderful stories of all they accomplish and the energy they bring to everything they do. I’d like to thank them all for making Wednesdays a day I look forward to every week! Kenny Jones Memorial Garden Spring has sprung and just in time for HOPe’s new garden to begin to flourish. Every spring we anticipate the signs of new life and renewed hope. Gardens are nature’s best and purest symbol of that hope, and thanks to Bill and Sue O’Malley, an amazing garden is being created that will have the same effect in our families. This garden stands as a memorial for a wonderful man whose efforts were instrumental in making HOPe a reality. Kenny Jones was there when HOPe was just getting its footing, and quite literally helped us plow through one of our earliest obstacles. In the early stages of excavation, ledge was hit and all digging came to a halt. Kenny forged ahead and out of the goodness of his heart, drilled through the ledge and made the HOPe dream come true. Cultural Heritage - During the winter months, we celebrated the cultural heritage of our many diverse individuals through everyone’s favorite activity – lunch! Over the course of several months, we expanded our palates as well as our understanding of ourselves by sampling staple dishes from such regions as Puerto Rico, Mexico, Greece, Germany, and England. Courtney Coan, the head of our cooking group, led discussions about each of these cultures and the origin of their traditional foods. Every week, the gang would get together and create a culturally inspired menu from countries around the world with their many different and unique ingredients. As a group, they would shop for Sadly, Kenny Jones Sr. died 2 years ago. Kenny loved the House of Possibilities, and the O’Malleys wanted to show his family we loved him back. There is no better way to keep his memory alive than to build a garden of HOPe in his honor. The HOPe garden will also serve as a therapy garden for both staff and guests. There will be a sensory garden, a vegetable garden and a flower garden. Children will be planting and harvesting vegetables, smelling, feeling, and tasting the fruits of their labor, hearing the trickle of water, and picking and arranging beautiful flowers. The pathways will be wheelchair accessible so that the beauty can be easily enjoyed by everyone! We look forward to watching the seeds our children plant here blossom into a Garden of HOPe! Appetite Appreciation the ingredients under the supervision of Courtney as well as several of our dedicated volunteers. Together, they would then put all the ingredients together and create authentic dishes from various cultures across the world represented by the individuals in our adult Program. These dishes included Puerto Rican empanadas, German Schweinshaxe (a dish consisting of German-style sausage and cabbage), pastel de carne griega (Greek-style meatloaf), pepperoni ripieni (Italian stuffed peppers), Mexican chili con carne, English fish and cauli-chips, and Hawaiian hua kabobs made with fruit. These dishes grew our appreciation for the many diverse cultures that are represented at the House of Possibilities while providing us a rewarding and tasty activity to participate in! Viva la differences! 2017 Boston Marathon: Team HOPe Makes a Difference! We would like to thank John Hancock and all of our outstanding runners who represented the House of Possibilities at the Boston Marathon on April 17th! Thanks to John Hancock, we received official marathon numbers that were used to raise $89,448 in critically needed funds for our precedent setting programs. HOPe Team Runners: Craig Adler Erin Digan Jillian Ricciardelli Dr. Rafael Castro Meaghan Irvine Elizabeth Rock Lisa Vasallo Castro Patrick McGovern Brianna Whelan The day was unforgettable for both runners and excited children who were rooting on Team HOPe. We are extremely proud of our runners’ accomplishments, compassion, and overwhelming commitment! Thank you Team HOPe! House of Possibilities 350 Washington Street • North Easton, MA 02356 508-205-0555 • [email protected] www.houseofpossibilities.org 501(c)(3) non-profit Design services donated by ICON Advertising, Inc. 350 Washington Street North Easton, MA 02356 Please consider a donation of any kind to ensure that our precious mission of HOPe is sustainable for families who benefit enormously from our services. FIRST NAME LAST Annual Fund Campaign STREET CITY STATE PHONE FAX ZIP Please make checks payable to: House of Possibilities, 350 Washington St., N. Easton, MA 02356 CARD NO. SIGNATURE card, please complete the following: EXP. DATE Overnight Respite Childrenʼs Weekend Programs As Needed E-MAIL To donate by debit or credit I would like to earmark my donation towards the following category: SECURITY CODE AMOUNT $ In Honor of: Emergency Support Board Directed Sustainability Fund Thank you!
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