3/18/2016 Making Infant Feeding Successful: Skillful Evaluation and Treatment Techniques Financial Disclosure • We have no financial disclosures other than we are all employees of Gillette Children’s Specialty Healthcare Karri Larson, RD Kathy Maroney, OTR/L Michelle Seim, MA, CCC-SLP Feeding as a system Infant Feeding Evaluation Sensory /Oral Aversion Oral motor Behavior Family Dynamics Positioning Medical/Dysphagia Order • We are presenting in the order we try to accomplish the evaluation • Be flexible History section • What brings you to feeding clinic? • Past Medical History • Current Services – Sometimes they are hungry and fussy at the beginning. At least try to get major medical information first but you might have to feed before oral motor exam, feeding schedule, etc. 1 3/18/2016 Past Medical History Family Support • • • • Anxiety around feeding Fears of FTT Coping with parental expectations less science and more art/reading cues of the infant • • • • Diagnoses? Food Allergies? Chronic nasal congestion? History of respiratory illness, intubation, asthma, or pneumonia? • Difficulties managing secretion? • Diagnoses like laryngomalacia, vocal fold paralyses? Past Medical History • Cry frequently, arching, Sandifer’s reflex, draw the legs up to the stomach or other behaviors that suggest abdominal discomfort/reflux? • Constipation? • History of tube feeding? When and why? • History of diagnostic tests—Video fluoroscopy swallow study, GI emptying study, upper GI study for reflux? When and results? Analysis of Medical History • Allergies: eosinophilic esophagitis (EE) or gut or esophageal inflammation • Nasal congestion: mouth breathing, poor suck/swallow, morning vomiting, tonsils/adenoids, referral to ENT • Respiratory: aspiration? VFLO?, positioning, breathing over eating, poor pacing, poor coordination, tonsils/adenoids, referrals to pulmonology, pulse oxymeter, cardiac history, implication of intubation Review of systems Analysis of Medical History • Abdominal discomfort/reflux: reflux, motility, allergies or tolerance, muscle tone, volumes, positioning (during and after), constipation, referral to GI • Tube feeding: why? Volume, alertness, airway, growth, type of tube-G or GJ?, type of formulaelemental?, rate and timing • Diagnostics: any diagnoses? Any ruled out issues? • Reflexes: 4-6 months rooting and suckling reflex deminishes • Consider in the assessment how this affects treatment planning – Structures and muscles of: • • • • • • mouth nose respiratory system digestive system cardiac systems overall postural control 2 3/18/2016 Sensory considerations Feeding Schedule • Review: – – – – Diet Timings volumes/reflux red flags • We use a feeding schedule form for family to fill out • • • • • • Previous experiences highly important Proprioception Vision Hearing Taste Tactile Oral Motor • Make your observations as functional as possible • Infant state at rest and non-nutritive suck – – – – try to initiate a suck on finger-slight upward position dip finger for a taste similac/nuk pacifier with finger inside stroke tongue mid-tongue to front Start Feeding Observation • Parent should feed the infant first – as they would typically do at home • Therapist should try to feed prior to infant finishing feed – know timing and amounts and hunger level Oral Motor • Areas to look at with nutritive and non-nutritive suck: – – – – – – – – – – – Oral tongue movement Control Strength and ROM Lip closure/lip seal Liquid loss (when and where) Frenulum/tongue tie Oral transit (efficiency) Munch vs. suckle Jaw Voice-quality Gag-observed Documentation • Presented by • Equipment used – Bottles – Nipples – Positioning • Description of swallow function • Sensory responses/adverse reactions • Other observations • Strategies assessed and outcomes 3 3/18/2016 Positioning • In what? – Arms – Swaddled – With boppy pillow – Tumbleform – Pillows on couch • By whom? – Mother – Father – Nurse/PCA – Extended family – Daycare provider • Position? – Upright – Semi-reclined – Full reclined – Side-lying – Breast feeding position Description of swallow • Suck: Swallow Ratio (should be 1:1), number of sucks in the burst. – Any signs or symptoms of aspiration: coughing, gurgly voice, increased congestion. – If possible palpate swallow to describe timing of trigger and laryngeal elevation (particularly in older children 1 year and up). – Increased respiratory rate or effort, gag, stridor? – Watch for: Nasal flaring, pacing, munch vs. suckle, color change, watery eyes Nutritive and Non-Nutritive • • • • • • • Strength: ___strong ___moderate ___weak Suction? Compression? Coordinated? Breaks in suction? When? Initiates sucking? Rhythmic? Infant State • • • • Oral aversion State at rest versus feeding Respiratory quality Stress signals • Nasal flaring, watery eyes, shutting eyes, arching, breathing changes, unstable heart rate and O2 sats, increased movement, crying, color change, gulping, gurgly sounds, repeat swallows, coughing Description of swallow • Good seal with a suck every 1 second • Burst-pause pattern: – 10-15 sucks, pause, swallow, take a breath and repeat – normal but more important is consistent, coordinated, rhythmic pattern to reduce risk of aspiration • Bubbles should be seen with every suck in bottle to show good flow • Burping as needed/burping hesitancy Breastfeeding • Looking for similar swallow patterns with breastfeeding as bottle – latching=lip seal on bottle – Coordination of suck, swallow, breathe – Jaw and tongue movement • Breastfeeding variables – Child vs. parent initiated latch – Flow / amount 4 3/18/2016 Swallow Documentation • Description of swallow should include more than just signs and symptoms of aspiration and penetration – – – – – – – Signs and symptoms of aspiration When see signs and symptoms of aspiration Coordination Oxymetry reading (if appropriate) Fatigue Baby’s alertness/reactions Timing of reactions Clinician input • Therapist should try to feed prior to infant finishing feed. • Modifications: – – – – – – Pacing Positioning Support Thickening Swaddling Is he/she a VitalStim candidate? Positioning Pacing • External – Rhythmic patting, tap of bottle – Take bottle out • Bottle – Flow too fast or too slow? Thickening? – Don’t get bogged down with the types and nipples – Start with what they come in with and try to adjust within that system based off of what you see – Air to liquid ratio • Volume – With dietician, consider changing amounts and schedule • Consider changing positioning during and after the feeding • More upright- consider for reflux • Elevated side-lying-consider for strong/weak sides or vocal cords and for more stable oxygen and heart rate • In front for better external support of head and oral structures Support Swaddle • External support can improve: – Organization of body – Feedings with hyper/hypotonic – Temperature regulation – Alertness • Be weary of too tight of a swaddle during and after the feeding with reflux • Facial support – Hold bottle with one to two cheek and/or chin support if extra oral loss • Consider the feeder’s hand and bottle type (sometimes a narrower bottle makes it easier) – Front to bottom of jaw to reduce jaw thrusting – Press up on bone under chin to help with stripping action of tongue – Pull jaw forward 5 3/18/2016 Thickening • The goal is to reduce thickening • Each facility has different guidelines and at Gillette we require a physician recommendation for thickening due to NEC concerns • Normally they come in with recommendations from VFLO and have changes based on VFLO but it is fair to recommend another VFLO to assess thickening or change in session for a trial • Check they are thickening appropriately Consider NMES/VitalStim • • • • • • FDA approved modality for treatment of dysphagia Certification is required VFLO prior to treatment with NMES and repeat VFLO NMES is a modality in treatment 3x/week for 8-12 weeks Studies show improvement as a modality in conjunction with traditional therapy Christiaanse et. al, 2011, Rice, 2012 How to move forward? Infant Nutrition Tidbits • What would be treatment strategies you would try with this child? – 8 month infant with Down’s syndrome – low tone – Incoordination of suck/swallow/breathe – increased illness-decreased weight gain – intubation leaving left vocal cord paralysis – VFLO: silent aspiration. Watery eyes observed. Study recommended honey thick and NMES Karri Larson, RD Ultimate Goal of Infant Nutrition GROWTH! Goal of Infant Nutrition • Secondary Goal – Prepare infant for successful eating in the real world – 12 months of age • Eating modified version of what family is eating • 3 meals + 2-3 snacks • Drinking from a sippy cup 6 3/18/2016 Division of Responsibility (Ellyn Satter) The Division of Responsibility for infants: • The parent is responsible for what. • The child is responsible for how much (and everything else). • Parents choose breast- or formula-feeding, and help the infant be calm and organized. Then they feed smoothly, paying attention to information coming from the baby about timing, tempo, frequency, and amounts. Medically Complex Infants • This goal may need to be modified or the timeline to reach this goal altered • Developmental delays interfere with timeline • Goals need to be adapted to fit each infant – No two infants are the same • Goal should never be “I want my baby to sleep through the night” • Consider quality of life issues for child/parent Calories Please! Babies need a lot of calories • Calorie goal is 108 calories/kg up to 6 months • Calorie goal is 98 calories/kg for 6-12 months • Adults get 25-35 calories/kg (68 x 30 = 2040) Division of Responsibility (Ellyn Satter) The Division of Responsibility for babies making the transition to family food: • The parent is still responsible for what, and is becoming responsible for when and where the child is fed. • The child is still and always responsible for how much and whether to eat the foods offered by the parent. • Based on what the child can do, not on how old s/he is, parents guide the child’s transition from nipple feeding through semi-solids, then thick-and-lumpy food, to finger food at family meals. Infant Feeding Practices • Breastfeeding is best • Bottle Feeding Expressed breast milk is close 2nd • Formula feeding is a wonderful alternative – Many options on the market – Low lactose, broken down proteins, added rice, hypoallergenic, soy – Names, additives, concentrations constantly changing Baby calories • Baby born 8 pounds = 3.64 kg – 3.64 x 108 = 393 calories • Most breast milk and formula averages to be 20 calories/ounce so baby would need to drink ~ 20 ounces/ day • Newborn stomach is the size of a walnut so that is why they need to eat 8-12 times a day 7 3/18/2016 A note about reflux • Some degree of spit up is normal – Esophageal sphincter is immature • when baby is in pain and uncomfortable, it may need to be treated • Reflux meds do not cure reflux, they treat it • Research has shown that thicker formula does not lessen reflux – Should not be adding rice cereal for reflux – Can be added for dysphagia but it displaces nutrients – Enfamil AR is better than adding it ($$) Tube feedings • Goal is for tube feedings to mimic similar feeding pattern for age – For example a 2 month old infant would get 3 ounce bolus 6-7 times/day – an 11 month old would get 6 ounce bolus 3 times a day and 4 ounce bolus 2 times a day • If tolerance is an issue, may need to consider continuous feeds via pump Starting Solids Weaning tube feedings • To wean from feeds, infant must be able to demonstrate: – feeding skills – ability to eat safely – intact hunger/satiety cues • Most often a large decrease in calories is needed to promote hunger • May need to consider appetite stimulant Allergies • • • • On the rise, but not as prevalent as you think More common in babies with family history 4 in 100 children have a confirmed food allergy 90% of food allergies are from: milk, eggs, peanuts, tree nuts, fish, shellfish, soy, and wheat (protein) – Much less common to be allergic to fruit or vegetables • Current recommendation from AAP is 6 months of age • This is from a physiological perspective, some babies many not be developmentally ready • What to begin with? – Anything! – Some countries, start with avocado and mashed beans, some countries start with rice or (grain) porridge, some countries start with pureed fruit or vegetable, new trend to start with meats to help with iron levels – Baby lead weaning (trend in Europe) When to seek help from an RD • Weight loss or FTT • Very limited diet – I can’t get a kid to eat any more than you can, but I can recommend supplements to bridge the gap until feeding skills have improved and the repertoire of foods has expanded • Oral intake has improved and tube feedings may need to be weaned • Tube feeding routine is impeding progress in feeding therapy • Diagnosis has nutrition considerations – Bartter syndrome=salt wasting disease=Na/K rich foods 8 3/18/2016 Making Infant Feeding Successful: Skillful Evaluation and Treatment Techniques Karri Larson, RD Kathy Maroney, OTR/L Michelle Seim, MA, CCC-SLP How to move forward? • What would be treatment strategies you would try with this child? – 8 month infant with Down’s syndrome – low tone – Incoordination of suck/swallow/breathe – increased illness-decreased weight gain – intubation leaving left vocal cord paralysis – VFLO: silent aspiration. Watery eyes observed. Study recommended honey thick and NMES Feeding as a system Infant Feeding Treatment Sensory /Oral Aversion Oral motor Behavior Family Dynamics Positioning Medical/Dysphagia Outcomes of successful treatment • • • • Safe feeder Appropriate duration of feeding times Optimal weight gain Pleasure and bonding from feeding Evidence • Bag of tricks – Get Permission/Marsha Dunn Klein – Food Chaining/Cheri Fraker – Oral Motor/ Beckman – NMES/Vital Stim – SOS/ Kay Toomey – Division of Responsibility/Ellyn Satter – Cue-based Feeding/Catherine Shaker • There is more evidence but it is still limited 9 3/18/2016 Family Dynamics • Feeding is social • Bottling/Breastfeeding has a bonding component • Parental stress • Negative experiences Issues seen in Evaluation • Prolonged feeding times – Changing daily scheduling, limiting to 20-30 minute feedings • Grazing – Changing the schedule and caregiver’s expectations • Forced Feedings – Positive successful experiences most important, don’t want to see signs of stress during feedings • Sleeper feeding – Place to start but need to develop skill versus reflexes, consider breathing as component, work on gentle arousal strategies Feeding Schedule/Duration • • • • • Facilitate hunger Consider endurance and fatigue Pacifier versus nutritive Routine Always end with positive experience Bottling • • • • Tube feed or FTT typically Stress pleasure feeding versus volume Quality is more important that quantity Non-Nutritive suck can be helpful in treatment Strategies • Modifications: – Feeding duration – Safety/thickening – Positioning/Swaddling – Support/oral motor/non-nutritive – Pacing/bottling Safety • Oral hygiene is a consideration for all infants that aspirate to help reduce aspiration pneumonia • Pulse oximeter – Get baseline information on O2 saturations – Use with your signs and symptoms you are seeing to create a better feeding plan 10 3/18/2016 Thickening Thickening • Types of thickening – Oatmeal/rice cereal – Gel for thickening breastmilk – Commercial thickeners – please check with their doctor before the age of one year of age • Liquid thickness: – Thin – Nectar – Honey – Pudding • Normally they come in with recommendations from VFLO but it is fair to recommend another VFLO to assess thickening or trial a different texture in therapy • Check they are thickening appropriately • Goal is to get to a thinner liquid for infants • Consider thickening may affect digestion • Consider NMES/Vital Stim NMES/VitalStim • NMES is a modality in treatment to strengthen the swallow • 3x/week for 8-12 weeks • This is in addition to all other treatment techniques Positioning • Consider changing positioning during and after the feeding • More upright – consider for reflux • Elevated side-lying – consider for strong/weak sides or vocal cords and for more stable oxygen and heart rate • In front for better external support of head and oral structures Support Swaddle • External support can improve: – Organization of body – Feedings with hyper/hypotonic – Temperature regulation – Alertness • Be wary of too tight of a swaddle during and after the feeding with reflux • Commercial swaddle blankets are an option • Facial support – Hold bottle using your fingers to support one or two cheeks and/or chin (if seal issues and extra oral loss) • Consider the feeder’s hand and bottle type (sometimes a narrower bottle makes it easier) – Front to bottom of jaw to reduce jaw thrusting – Press up on bone under chin to help with stripping action of tongue – Pull jaw forward 11 3/18/2016 Oral Motor/Non-nutritive • Where are skills with lips, cheeks, and tongue? – Consider – Consider – Consider – Consider Beckman depending on needs pacifier nuk brush, vibration different tactile stimuli Flow rates • Different nipples have different flow rates • These change all of the time – Avent:1-4, variable – Gerber: visualized with drops, S, M, F, X, Y – Dr. Brown Premie, Specialty,1-4, Y – Medela: S, M, F – Playtex: S, M, F – Tommy Tippie: S, M, F Oral Aversion • What about the infant that refuses the bottle? – – – – – – – – – PLEASURE is key Remind the family that it is a slow process Start where the infant is at and take the next baby step Note the different stimuli the infant allows in the mouth Start with toys/pacifiers/teethers for oral exploration Consider caregiver kisses for oral tactile input Dipping into formula for taste exploration May consider spoon before bottle depending on the age Stop while your ahead and it is still a positive experience Pacing • External – Rhythmic body patting or tap of bottle – Take bottle out-move to corner • Bottle – Flow too fast or too slow? Thickening? – Don’t get bogged down with the types and nipples – Start with what they come in with and try to adjust within that system based off of what you see – Air to liquid ratio • Volume – With dietician, consider changing amounts and schedule Nipple types – First problem solve flow rate, then lip seal, then nipple shape – All number systems are not the same – Nipple length is a consideration – Flatter nipples vs. straight – Wide nipple (in vogue) vs. standard size – Generally you can interchange standard nipples on a standard size bottles – Specialty nipples like Haberman, Dr. Brown Spoon to bottle? • Depending on age and developmental age the infant may have more success with purees first before bottle • Some infants skip bottles all together • Especially consider for infants with thickened liquid recommendations • Variety of sip cups could be considered 12 3/18/2016 Spoons Bottle to spoon • Limit wiping- best if only at end • Positive atmosphere- no force feeding or tricks • Start with spoon only and/or formula they already know • Use pacifier, fingers, nuk with tastes • Consider spoon type • Spoon presentation Case Example 1 • History: – 8 mo infant with Down’s syndrome – low tone – Incoordination of suck/swallow/breathe – increased illness-decreased weight gain – intubation leaving left vocal cord paralysis – VFLO: silent aspiration. Watery eyes observed. Study recommended honey thick and NMES Case Example 1 • Treatment: – NMES – right side lying for VF paralysis from intubation – pulse oximeter/signs for breathing breaks – history of cardiac and coordination needs – swaddled for additional support- low tone – patting – thickened liquids-honey per VFLO • Results: – NMES: 8 weeks resulted in nectar liquids, no aspiration, no positioning needed – Intubation injury resolved – More coordination and continued pacing • Consider bowl depth – Smaller/ shallow: duospoon, Beckman EZ spoon, maroon, infant coated, Dr. Brown spatula spoons, take n toss – Deeper/wider: maroon, munchkins, gerber Case Example 1 Goals: – Will drink 5 oz of thickened formula in less than 25 minutes over an 8-10 week period to reduce fatigue and feeding times – Will drink thickened liquids without any signs of aspiration as determined by a follow up VFLO after NMES treatment is complete – His family will learn and implement oral hygiene into his feeding routine as noted by parent report over 3 sessions within 8 weeks Case Example 2 History: • Chronic lung disease • Bilateral Grade IV IVH • s/p shunt • Increased tone • Born at 23 weeks gestation • Arrived to clinic on oxygen via nasal cannula • G-tube feeds and history of silent aspiration but moved up to nectar during NICU stay. 13 3/18/2016 Case Example 2 Goals: • Will demonstrate coordinated suck/swallow/ breathe pattern with no s/s of aspiration. • Will take 60 mls of nectar thickened formula in 30 minutes 4 times per day. • Will be cleared for thin liquids following NMES with no s/s of aspiration. Case Example 2 Case Example 2 Treatment: • NMES using Vital Stim • Recommended swaddling which did not work. • Re-positioned him to a better visual field for mother to watch cues. • Taught Beckman oral motor. • Exchanged nipple and bottle for increased efficiency (moved away from self cut nipple and decreased volume of bottle) • Pacing for breath and rhythm (nasal flaring, butt/back patting) Questions? Results: • Off of oxygen 2-3 weeks into treatment • Moved to all oral feeds and g-tube removed by 8 weeks • Video swallow study resulted in moving to thin liquids via medium to slow nipple rate. • Continued with some oral dyscoordination with suck/swallow/breathe • Discontinued speech and continued OT for transition to puree and overall developmental concerns Work Cited Anderson, G.C., Behnke, M., Gill, N., Conlon, M., Measel, C.P., & McDonie, T.E. (1990). Self-regulatory gavage to bottle feeding for preterm infants: Effect on behavioral stat, energy, expenditure, and weight gain. 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