M CE at Te er st ia l The Importance of Child Life and Pain Management During Vascular Access Procedures in Pediatrics Gail A. Heckler-Medina, RN, BS Abstract The author asks of the reader: Have you ever been called to start a peripheral intravenous (IV) catheter or place a peripherally inserted central catheter (PICC) in a child, and you wished someone else could do it? Performing vascular access procedures on children is considered by many one of the most stressful and difficult jobs. This article discusses the role of certified child life specialists (CCLSs) and some of the techniques used to assist children in coping with painful procedures as well as the necessity for proper assessment and pain management. The goal of this article is to eliminate the uncertainty of performing these procedures on pediatric patients. By making a few changes in your practice, one could dramatically increase successful outcomes and improve the overall quality of care provided to the patient. One of the most frightening experiences for many children is being admitted to the hospital. If the child is not chronically ill, he or she will most likely be in an unfamiliar environment, away from home, toys, siblings, pets, and friends. Daily responsibilities such as career and upkeep of one’s home and other children often make it even more stressful for everyone involved. Many times, the hospitalized child may be left alone or not see one or both parents for hours or even days at a time. Thinking back to your childhood, what comes to mind when you hear the words doctor’s office, procedure, and shot? Are your memories positive? I remember going to have laboratory draws for a preoperative exam when I was five years old. Everything around me felt so big: the room, the chair, the laboratory technician, and especially that needle. “It is longer than my arm is wide!” “Is the entire needle going into my arm?” “Is it going to hurt? If so, how much will it hurt?” “Will it cause me to pop like a balloon?” “I will need a bandage to keep my insides from leaking out of the needle hole!” These are all statements that pediatric nurses hear frequently. From the time we are born until the time we die, our identity of self and the ego continue to develop and go through successive stages that naturally unfold throughout the lifespan. Eric Erikson called this the “stages of development.”1 The eight stages are trust versus mistrust (infancy), autonomy versus shame and doubt (toddler hood), initiative versus guilt (preschool), industry Technological Advancements and Research Prevail Over the past 10 years, there has been a growing demand for alternative vascular access, specifically, peripherally inserted central catheters (PICCs), and skilled professionals to place these devices. As health care facilities across the nation are experiencing tremendous growing pains because of the ever-increasing need for medical attention, vascular access has never in history been as important as it is today. Two topics I discuss are the use of certified child life specialists (CCLSs) and appropriate pain management interventions as they apply to vascular access. Correspondence concerning this article should be addressed to [email protected] DOI: 10.2309/java.11-3-X CCLS: An Integral Part of the Vascular Access Team A CCLS is a professional who is specially trained to help children and their families understand and manage challenging life events and stressful or unfamiliar health care experiences. CCLSs are skilled in providing developmental, educational, and 32 | JAVA | Vol 11 No 3 | 2006 versus inferiority (middle childhood), identity versus role confusion (adolescence), intimacy versus isolation (young adulthood), generativity versus stagnation (middle adulthood), and ego integrity versus despair (older adulthood). Depending on the developmental stage, some children may feel that they are sick because they were “bad.” However, what about the healthy child who is going to the doctor’s office for his/her series of shots that are referred to as vaccinations. We tell the child this shot is for “your own good health” so that you will not get sick. The first question the child will usually ask is, “Is it going to hurt?” As health care providers is there a way to lessen the pain? Is there a way to help the sick child understand his/her illness and the cause of it? The answer to both of these questions is “yes.” therapeutic interventions for children and their families. They support growth and development while recognizing family strengths and individuality. The CCLSs recognize and respect different methods of coping. They help to take the mystery out of hospitalization, illness, and procedures. CCLSs have earned a bachelor's or master's degree with an educational background that includes human growth and development, education, psychology, and counseling. They are usually required to complete an internship program and a certification examination. Child life specialists are certified through a program administered by the Child Life Council (CLC).2 Many children’s hospitals across the nation are recognizing that having a team of CCLSs play an integral role into the successful outcomes of their patients. Intravenous (IV) access is statistically one of the most stressful and dreaded events that occur during hospitalization: This is even more so in the pediatric population. Integrating a CCLS with a vascular access department dramatically increases not only the number of successful PICC line/IV insertions on the first attempt but increases the scores on patient satisfaction surveys. CCLSs are invaluable when used in conjunction with a vascular access program; this, however, requires a financial commitment from the hospital to establish, but the end result is a cost savings to the hospital that is substantive. Vascular access programs that use CCLSs have a lower staff turnover than those that do not. Performing painful procedures on children is extremely stressful and challenging. When the chances of success are increased as much as possible, it is best for all involved. It also provides cost savings to the hospital for nonreimbursed supplies and what would have been a loss of revenue had the child needed to remain in the hospital for an extra day or two awaiting PICC line placement for discharge. Case Study Joey M., a six-year old boy, is brought to the emergency room because he stepped on a nail. He receives a tetanus shot, blood cultures are drawn, and an IV is started for antibiotics. The physician decides to admit him for cellulitis to rule out osteomyelitis. After a few days in the hospital and nine “pokes” later, the physician orders a PICC line to be placed for vancomycin administration. The vascular access (VA) nurse is notified of the pending PICC placement. On notification of the PICC order, the VA nurse gathers a tourniquet, the ultrasound machine with gel, and a PICC consent form, and goes to Joey’s room. The nurse introduces him-/herself to Joey and his parents. The nurse explains that a PICC line has been ordered and answers any questions the parents have about the PICC prior to venous assessment. On determining that Joey is a candidate for PICC placement, the VA nurse obtains informed consent for the procedure and explains that a CCLS will be in soon to talk with Joey about the procedure and answer any questions he may have. The VA nurse then fills in the appropriate information on the Vascular Access/Child Life Procedure Form (see Figure 1) and delivers it to the CCLS. The CCLS introduces him-/herself to Joey and his parents. During this introductory period, the CCLS inquires as to what interests Joey has. They talk about video games, catching grasshoppers, playing on the monkey bars, and a famous cartoon character. By discovering what is important to Joey, the CCLS establishes a way to communicate with him and hold his attention. This allows the CCLS to begin building and facilitating an honest and trusting relationship. The CCLS explains to Joey what a PICC line is and what it is used for. He/she gives Joey a teddy bear with a PICC line and central line dressing on the bear’s arm. This enables Joey to see what it will look like and how the PICC line feels after the procedure is finished. A big part of the CCLS responsibility is to ask a series of questions during the evaluation process to see how he/she can best assist Joey with coping mechanisms during the PICC insertion. The CCLS asks him if he would like to have his parents present during the procedure; if he would like to sing songs, read a book, or watch a DVD; if he wants to be told what is happening throughout the process; and whether he would like to watch the insertion procedure. Depending on the answers, the CCLS plays with Joey using either medical play or real PICC insertion supplies so that the equipment will be familiar to him. They look at a photo album detailing a step-by-step PICC-insertion procedure. This helps to answer questions, alleviate fears, and decrease some of the anxiety that Joey may be harboring. After a thorough assessment, the CCLS communicates the findings to the VA nurse. Ideally, the CCLS stays with Joey throughout the PICC insertion. This keeps him focused on the coping techniques that work best for him. The CCLS is the liaison between Joey and the VA nurse. The CCLS makes suggestions that can ensure the best outcomes for Joey psychologically as well as procedurally. Because the VA nurse and CCLS worked together, Joey’s PICC insertion was successful on the first attempt. Joey’s mom was present during the PICC insertion. She held his left hand as the CCLS talked with him about one of his favorite books. When Joey grimaced, the CCLS asked Joey if he was hurting anywhere and asked him to use his words to explain how he was feeling right then. The CCLS told Joey that it is okay to be scared and that this procedure was happening to help him get better, not as a result of anything that he had done. The CCLS continuously reinforced how Joey was doing such a good job by helping to hold his arm still and let him know that he would receive a surprise after the procedure was complete. Joey did not feel any pain during the PICC insertion. He was able to cope very well with the help of the CCLS. He received his surprise. He felt as if he had made a new friend and stated that he would not be afraid in the future if he needed another PICC line. He was happy to be on his way home. His family had a great experience and rated the quality of care as exceptional. The hospital, which usually operates at full capacity, had another available bed for a child in need. Although Joey coped very well with the procedure, not all children are able to cope. The inability to cope can be directly related to the procedure requiring multiple attempts, being too lengthy, too painful, and/or a result of traumatic experiences in the past. It can also be that the child is too young to hold still for such a procedure (ie, toddlers). In a situation like this, one may wish to consider the 2006 | Vol 11 No 3 | JAVA | 33 PLACE PATIENT LABEL/STICKER HERE This portion to be completed by vascular access nurse: ___________________(RN/NP/PA/MD) Patient is scheduled on ____________ (date) at _______ (time) for the following • Peripheral IV (PIV) • PICC Insertion • PICC Exchange • CVC Repair • PICC Removal • Other: _________________ Patient Assessed by Nurse:Y N (circle one) Assessed with Ultrasound:Y N (circle one) PIV and PICC Insertions Only: Preferred Vein of Choice: Right/Left (circle one) • Basillic • Cephallic • Saphenous • Scalp • Popliteal • Other: ________________ Check all that apply to patient during procedure: • Anxiolysis • Sedation • General Anesthesia • Fluoroscopy This portion to be completed by Certified Child Life Specialist: _________________(CCLS) Patient Age: _______________ Developmentally Appropriate for Age:Y N (circle one) If no, explain: __________________ Coping Preferences: • Would like family member present during procedure: _______________(name) • Wants to watch the procedure • Wants to be told exactly what is happening during procedure • Would like to read a book/watch a DVD/play with a toy: ___________________(which one) After assessment, I feel child can cope successfully for the scheduled procedure Y N (circle one) Figure 1. Vascular Access/Child Life Procedure Form. Copyright © 2006 P & A PICC, LLC. Reprinted with permission. 34 | JAVA | Vol 11 No 3 | 2006 use of sedation or general anesthesia prior to attempting the procedure. Nurse practitioners, physician assistants, and physicians are usually responsible for determining weather the child will receive sedation or anesthesia. The decision is based on the child’s age, current medical condition, medical history, allergies, and an assessment of the child’s coping abilities. Pain Management Did the use of a CCLS make the PICC insertion a pain-free experience for Joey? Mosby’s Medical Dictionary defines pain as follows: “An unpleasant sensation caused by noxious stimulation of the sensory nerve endings. It is a subjective feeling and an individual response to the cause. Experiencing pain is influenced by physical, mental, biochemical, psychological, physiological, social, cultural, and emotional factors.”3 In 2001, the Joint Commission on Accreditation of Healthcare Organizations (JCAHO) published Pain Assessment and Management Standards—Hospitals,4 and in a Powerpoint presentation available on the Internet, Pain Assessment in Infants and Children,5 these standards are Figure 2. 0–10 Numeric Rating Pain Scale. Source: National Institutes of Health. explained. One of the standards makes pain rating the fifth vital sign. The reason that one would assess pain is to take action to relieve the pain. tion greater than 95%; I: increased vital signs; E: expresIn Joey’s case study, not only was a CCLS present but approsion; S: sleepless) (32–60 weeks gestational age) by priate pain management measures were also taken. L-M-X4 Kretchel and Bildner, 199512 (Figure 5) (Ferndale Laboratories, Inc; Ferndale, MI) was placed on Joey’s • Checklist of Nonverbal Indicators (CNVI) (Figure 6) right arm in two different places prior to setting up for the procedure, and during the procedure lidocaine 1% buffered with Pain is subjective and responses to pain vary widely among sodium bicarbonate was injected at the site very slowly. individuals. Different factors determine how individuals respond to pain, such as age, gender, specific diseases or injuries, health, Pain Is Subjective pain threshold, fear, anxiety, the culture and background of the There are many ways to identify and quantify pain in the pediindividual experiencing the pain, and the way the person atric setting. The use of pain scales is recommended by JCAHO. expresses painful experiences. Some samples6 of Pain Rating Scales from the JCAHO Pain Other factors associated with how children deal with pain may Assessment and Management Standards—Hospitals4 are as follows: include previous experiences with pain, how their parents treated the child when the child was in pain, and how parents respond • 0–10 Numeric Scale (Figure 2) to pain when they themselves are hurting. Early experiences of • Visual Analog Scale (VAS)7 pain may produce permanent structural and functional reorgani• Wong-Baker FACES Pain Rating Scale8 (Figure 3) zation of developing neural pathways, affecting future experiences of pain. For infants and nonverbal children, use appropriate observaStress response to pain increases breakdown of body tissue: tional scales such as the following:6 increases the metabolic rate, blood clotting, and water retention; • NPASS (Neonatal Pain, Agitation and Sedation Scale) (predecreases immune function; triggers fight or flight response; maturity) by Hummel and Puchalski, 20029 causes diaphoresis or palmar sweating; increases heart rate, • FLACC10 (Faces, Legs, Activity, Cry, and Consolability) (full blood pressure, and shallow respirations; increases cough supterm neonate–7 years) by Merkel et al, 199711 (Figure 4) pression; increases retention of pulmonary secretions; and • CRIES (C: crying; R: requires oxygen to maintain satura- 2006 | Vol 11 No 3 | JAVA | 35 increases the delay of return of gastric and bowel function.13 It is by far more effective and safer to prevent pain rather than to try to catch up and treat already existing pain. The Use of Analgesics Although it may be necessary at times to use sedation or general anesthesia for certain vascular access procedures, there are some reasonably priced analgesic products that could be used for most patients who are not allergic. These would include, but are not limited to, the use of Sweet-Ease (Respironics, Pittsburgh, PA), ethyl chloride, L-M-X4, EMLA (AstraZeneca LP, Södertälje, Sweden), and 1% lidocaine subdermal/subcutaneous injection at the site. All of these require a physician or allied health professional’s (AHP’s) order. Sweat-Ease is a 24% sucrose and water solution. Sucrose produces analgesia through both endogenous opioid and nonopioid pathways. In neonates, the taste receptors are an important consideration for pain management. Nonnutritive sucking with sucrose has the best effect. It is recommended to be given 1 to 2 minutes prior to starting the procedure, either with a syringe on the tongue or on the buccal surface followed by a pacifier. It should not be used on patients less than 27 weeks ges- Figure 3. Wong-Baker Faces Pain Rating Scale. Source: National Institutes of Health. tational age, those who weight less than 1000 grams or have cardiovascular instability, or with neonates ratio. This combination eliminates the stinging property of the who have persistent pulmonary hypertension. lidocaine. It should be mixed under a hood in the pharmacy. It Ethyl chloride spray, often referred to as “cold spray,” temis recommended that no more than 4.5 mg/kg be administered porarily numbs the skin on contact by making it feel very cold. for procedures in children. The sensation is similar to effects of an ice pack. The bottle It is important to write down the patient’s pain history before should be held approximately 7 inches from the skin and sprayed pain is expected, such as before the vascular access procedure. In continuously between three and 7 seconds. The skin will turn addition, try to involve the family when possible. Families are white when it is numb. This analgesic only lasts for approxioften helpful in interpreting and recording response to pain relief mately 30 seconds. When using this type of analgesic, it is of measures. Pain experienced during vascular access procedures is utmost importance to act quickly. The child may consider the acute. Acute pain activates body’s fight or flight stress response. frosty, cold, and tingling unfamiliar and mildly uncomfortable. When pain persists, the body begins to adapt and there is a It is best to show the child in advance how it feels and allow decrease in the sympathetic responses. In chronic pain, stress him/her to choose. response is absent or diminished. For this reason, chronically ill L-M-X4 and EMLA are both topical creams that are applied patients may have a lower pain tolerance. directly to the proposed site. L-M-X4 contains lidocaine 4% and should be applied 15 to 30 minutes prior to the procedure. Conclusions EMLA contains lidocaine 2.5%/prilocaine 2.5% and is recomPain is an unpleasant sensory and emotional experience arismended to be applied 1 to 2 hours prior to the procedure. Both ing from actual or potential tissue damage. The major responsiof these creams have anesthetic properties that reach to a depth bility for alleviating a child’s pain during a vascular access of 4 mm. They are very useful for peripheral IV insertions and procedure rests with the VA nurse. Pain is whatever the experifor the administration of lidocaine 1% during PICC placements. encing child says it is, and it exists whenever he or she says it Lidocaine 1% can be buffered with sodium bicarbonate in a 10:1 does. If using CCLSs and appropriate pain management inter- 36 | JAVA | Vol 11 No 3 | 2006 ventions have such a positive effect on the outcomes of our children, why do hospitals not always use them consistently? It may be because of a lack of funding or time. It may be inconvenient at times for us, as health care professionals, to take the time to apply a topical analgesic or consult with a CCLS. You may be part of a Vascular Access Team who manages all IV therapy and vascular access devices or you could be a one-person PICC “team” in a large facility. Using CCLSs and appropriate pain management techniques may sound like a great idea. The need is evident. However, many practitioners may believe that, although the concept is idealistic, it is not realistic in the daily hospital setting. Having come from a large children’s hospital that operates at 100% capacity most days, a place where it seems there is never enough time in the day to accomplish all of the orders and respond to all of the calls, I can say that it is important to take the time and show you care. The remembrance of a positive experience is invaluable and will serve to make your job much easier in the future should another vascular access procedure be necessary. Consider the loss of revenue and supplies that are not reimbursed, the frustration and nursing time it takes for one to repeatedly attempt a failed vascular access procedure, the fear that we have Figure 4. FLACC Pain Scale. Source: National Institutes of Health. instilled in the child, and the dissatisfaction of the family. Can we truly afford to sacrifice the quality of 6. National Institutes of Health. Pain Intensity Scales [online]. care we provide? The next time you are called on to “stick” a Available at: pediatric patient, remember that this may be the child’s first http://painconsortium.nih.gov/pain_scales/index.html. experience with vascular access or it may be their hundredth. Accessed June 1, 2006. Why not make it their best? The power to make a difference rests 7. Johnson E. Visual Analog Scale (VAS). Am J Phys Med in your hands. Rehabil. 2001;80:717. 8. Wong D, Baker C. Pain in children: comparison of assessReferences ment scales. Pediatr Nurs. 1988;14:9-17. 1. Sowden, B. Mosby’s Pediatric Nursing Reference, 5th ed. St. 9. Hummel P, Puchalski M. Establishing Initial Reliability and Louis, MO: Mosby/Elsevier; 2004. Validity of the N-PASS: Neonatal Pain, Agitation, and Seda2. Child Life Council [website]. Available at: tion Scale—A Pilot Study. Presented at The Association of http://www.childlife.org. Accessed June 1, 2006. Women's Health, Obstetric and Neonatal Nurses 2002 Con3. Mosby’s Medical Dictionary, 7th ed. St. Louis, MO: vention: Lighting the Way. Boston, MA. Mosby/Elsevier; 2006. 10. Chambers CT, Giesbrecht, K, Craig KD, Bennett SM, Hunts4. Joint Commission on Accreditation of Healthcare Organizaman E. A comparison of Faces Scales for the Measurement tions. Pain Assessment and Management Standards—Hospiof Pediatric Pain: children’s and parents’ ratings. PAIN [serial tals [online]. Available at: http://www.jcrinc.com/subscribers/ online]. 1999;83:25-35. Available from: Association for the perspectives.asp?durki=3243&site=10&return=.… Accessed Study of Pain International, Vancouver, Canada. Accessed July 28, 2006. May 29, 2006. 5. Wong DL. Pain Assessment in Infants and Children [Online 11. Merkel SI, Voepel-Lewis T, Shayevitz JR, Malviya S. The presentation]. Available at: www.mosby.com/WOW. FLACC: a behavioral scale for scoring postoperative pain in Accessed June 1, 2006. young children. Pediatr Nurs. 1997;23:293-297. 2006 | Vol 11 No 3 | JAVA | 37 12. Krechel, Bildner J. CRIES: a new neonatal postoperative pain measurement score—initial testing of validity and reliability. Paediatr Anaesth. 1995;5:53-61. 13. Straight A’s in Pediatric Nursing. Philadelphia, PA: Lippincott Williams & Wilkins; 2004. Gail Heckler-Medina, BS, RN, is a PICC line expert and vascular access nurse. She has assisted in the growth and development of the vascular access programs throughout the nation. Ms. Heckler-Medina is the founder of P & A PICC, LLC, an independent contracting company that is responsible for education of staff and the placement and maintenance of PICCs and midline catheters. Ms. Heckler is a clinical nurse educator and preceptor for BARD Access Systems. Received 6/9/2005; revision received 7/27/2006; accepted 7/28/2006 Figure 5. CRIES Pain Scale. Source: National Institutes of Health. 38 | JAVA | Vol 11 No 3 | 2006 Figure 6. Checklist of Nonverbal Indicators (CNVI). 2006 | Vol 11 No 3 | JAVA | 39
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